I don't know about anyone else but I have had problems with over heating since
TM hit. Seems like I am constantly putting on and taking off clothes. Don't
remember the last time I was able to crawl into bed and snuggle down under the
covers without having to throw them off a couple of minutes
The only thing I was told that I would not regain, is
my temperature!! My legs which were paralyzed, feel hot on the inside and
freezing on the outsidethus phrase
freeze/burning...I cannot stay out in heat too long
because I can sweat only above my point of paralysis (t8)
and heat
Oh the joys of TM - yes I also have the same problem - our internal thermostats
are also affected. Once you go either direction, hot or cold, it seems like
forever before it evens out. I don't know how many times I've woke up sweating
like a race horse and then the next minute I'm freezing
Your words, Candy, are an echo of mine!! You could not have said it better.
I was going to send you a note, Lynne, but now there is no need!!Good to
have us all start to come out of the woodwork, isn't it? :)) Jeanne in
Dayton
---Original Message---
From: CANDIS KALLEY
Date:
Hi, Jan,
It looks like we TMer's are back in business with all of the notes going
back and forth and your temp. problem is one of the main subjects right now!
I'm so glad we're back in business as I miss you all when we take our 'naps
as we do off and on.
I'm off to stay with my little Sis
Jeanne,
I understand how great keeping those contacts alive is!! I've become much more
active
with my class affairs since tm came to stay!! TM let's you know what's really
important
in life!! My class has had our 50th reunion, so you see how very important
those times
together
Temperature Regulation:
http://www.apparelyzed.com/temperature.html
Temperature
Regulation
A normal, healthy human is able to maintain a constant
body temperature of approximately 98.6F despite the temperature
of the environment. In a hot
I too feel the same way. I'm forever asking my husband if it is hot or cold in
the house. He will tell me and then I figure it is just me feeling hot or cold
so I either take off or put on other clothes.
The joys of having TM.
Heather in Calgary
- Original Message -
Funny how this came up. I live in Calgary, 2000 miles from where I grew up in
Hamilton Ontario. About a dozen or more of my high school friends get together
every May now. Used to be at Xmas every year since 1964, but with age, road
conditions they now meet in May. I don't often see these
and hugs right back to you!! Jeanne
---Original Message---
From: Pieter and Heather
Date: 4/8/2009 2:08:36 PM
To: jmh1...@sbcglobal.net; Janice; tmic; jrushton
Subject: Re: [TMIC] Lack of Communication
Funny how this came up. I live in Calgary, 2000 miles from where I grew
THANKS FOR ALL THE INFORMATION. IT DOES ANSWER A LOT OF QUESTIONS ABOUT WHY
I AM ALWAYS SO COLD AND WHY MY FEET FEEL SO COLD EVEN WHEN THEY ARE WARM TO
THE TOUCH. ONE QUESTION THOUGH. THIS SUMMER I HOPE TO BE ABLE TO GET OUT
AND ABOUT MORE AND WONDER WHAT SPECIAL PRECAUTIONS I DID TO TAKE TO BE
HI JUDE:
THE ONLY RESPONSE I RECEIVED IS THIS ONE. I AM SO SORRY YOU ARE NOT DOING SO
WELL. I HAD THOUGHT YOU WERE DOING PRETTY GOOD SINCE YOU RETURNED FROM THE
HOSPITAL. I WONDER IF THERE ISN’T ANY SOCIAL ORGANIZATION THAT CAN ARRANGE FOR
SOMEONE TO BE WITH YOU WHILE DAVE IS HAVING HIS
Jeanne have a fantastic time. Our 45th High School reunion is in October and
my husband and I are going since we graduated together way back in 1964! I
only missed the 40th I was still trying to get my life back together
after TM hit. But definitely looking forward to this reunion. So again,
Dear Jude,
I hope that you are on the mend now since your surgery. Is it painful to sit
up? I am still sensitive since my pressure sore 8 years ago.
I feel so terrible about your not having any one to stay with while Dave has
his surgery. If I didn't have 2 different caregivers, I could be
That sounds like a great time!! You will have to tell us all about it when
you return.God Speed.Janice
- Original Message -
From: jrushton
To: Janice ; tmic
Sent: Wednesday, April 08, 2009 9:07 AM
Subject: Re: [TMIC] Lack of Communication
Hi, Jan,
Heather,
You are so brave to travel alone. I am trying to get the strength I need to
travel, by car, with my husband, to Savannah, Ga.
I am in therapy for my legs now and hopeful I can make a trip like that this
fall. It would be to see my sister and her husband.
I love Savannah deeply, but
Can we switch problems?!I also love St. Crois Falls, Wis. I have
relatives there and it is beautiful!
- Original Message -
From: Patricia Cooley
To: 'jrushton' ; 'Janice' ; 'tmic'
Sent: Wednesday, April 08, 2009 3:50 PM
Subject: RE: [TMIC] Lack of Communication
HI
Same here! my feet burn 24/7, they fell like there in grease frying all the time. I can not take socks or shoes on my feet, even the blankets oin the bed hurt them.
-- Original message from "Janice" jan...@centurytel.net: --
Can we switch problems?! I also love
Do you use ceiling or floor fans in your rooms?I have found that I am much
more comfy with air movement. I also sleep in
a summer gown all winter with the ceiling fan going and a sheet and blanket.
I do pretty well with that. But, during the day, if
I am doing something that is
You all are describing more of a painful heat, but what I feel is more like a
menopause heat flash - but it lasts longer, and it makes me very weak and light
headed.Anyone else feel that way? Janice
- Original Message -
From: jrushton
To: CANDIS KALLEY ; tmic
Jan, I did not know, but it makes sense, that you only sweat above the point of
paralysis.Do you get to feeling weak when you get too hot?And, does it
come over you all of a sudden, sometimes for no reason? Janice
- Original Message -
From: Jan Hargrove
To:
Thank you.I am making a copy of this and putting it on our refrigerator.
Next time a flash hits me, I will know what is going on and so will anyone
around me. Janice
- Original Message -
From: marieke dufresne
To: tmic-list@eskimo.com
Sent: Wednesday, April 08, 2009
Yes Janice - that's the heat I feel. From time to time, I will break out sweating just sitting in my recliner. I get over-heated when I do something - even as simple as fixing a bowl of cereal in the morning.
I live alone so I do as much as possible, but that's very little, for myself-cooking
My husband Arthur was diagnosed with TM several years ago. A new neuro examined him later and tried to tell me it was not TM, I knew better. I sought another opinion. We had moved to a different area to live. Anyway Art at the age of 81 made his transition.Wehad a beautiful memorial service for
None of you have mentioned what cold does. This evening I was waiting for my
son
to fix my Hoveround wheel and I had a window open and the door, here in NM when
the
sun goes down it cools off fast. I was stuck to the recliner until I got the
chair fixed.
in the mean time it cooled
Janice,
I get that and never know when it will hit me either. I start to sweat. A lot
of the times it turns out I need to take the time to sit in the bathroom as my
bowels are trying to work. Sometimes that works and soemtimes it doesn't. TM
is such a mystery to us all. We are like
Janh,
I like that. We are a living puzzle. Good thinking. I'm sure there are other
ailments in this world that people with them feel the same way. I guess a lot
of conditions, especially ones that are not so common resemble puzzles. Also
by looking at some of the different websites that
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