Have had TM for ten years and have had the flu shot each year with no problem.
This is the only site that I read.
How do you get on Facebook for this group?
GUESS YOU GET THE TROPY FOR AGE.
ann in Virginia
name robert diehl age now 77 live in doylestown,pa
i was 72 and got transverse meylitis and guillem bryee symdrum...that was april
1 2004
spent the whole month of april in the hospital
Have been using tramadol for years. It does not take away the pain but does
dull it some. Have no trouble getting tramadol in the states.
Ann in Virginia
-Original Message-
From: Kevin Wolfthal wolft...@optonline.net
To: tmic-list@eskimo.com
Sent: Sat, Nov 28, 2009 7:04 pm
Subject:
Don't forget I am treasurer.? Any amount of dues would be appreciated.
I note no one has said anything about being treasurer?? I will be glad to serve
as same.? Please send dues to me.
Rob I tried Cymbalta and the only effect it had on me was I could not pee.?
Decided I sitll had to put up with the banding.
Ann in Virginia
Have a pain all the time on my right side. When I become constipated the pain
becomes much worse and goes all the way up to my shoulder
Ann in Virginia
-Original Message-
From: Kevin Wolfthal wolft...@optonline.net
To: tmic-list@eskimo.com
Sent: Sun, Aug 9, 2009 5:16 pm
Subject: [TMIC]
Do not often post but have certainly learned from the comments.? Have used the
T,E.N. S unit for about seven years and have certainly found it helpful for
pain.? It does not relieve the pain but certainly does help it.
Ann in Virginia
I am getting the digest but am not getting the individual postings. Up
until this past week I have been getting the posting for all of you. Any
suggestions?
Ann in Virginia
**Get the Moviefone Toolbar. Showtimes, theaters, movie news
**Get the Moviefone Toolbar. Showtimes, theaters, movie news
more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt
p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
Am I still on list?
**Get the Moviefone Toolbar. Showtimes, theaters, movie news
more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt
p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
**Get the Moviefone Toolbar. Showtimes, theaters, movie news
more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt
p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
I have used the tens unit since Tm invited itself into my body. Have found
it to be very helpful. Am not aware of pain as much and it does help with my
legs. Give it a try.
Ann in Virginia
**Get fantasy football with free live scoring. Sign up for
FanHouse Fantasy
Just because my legs are attached to me does not mean that I recognize them
as part of my body. In fact I have disowned them. Since they are now
disowned my life has become much easier. I get up in the morning and do not
have
to think which way my legs are going . I just let them go
Gunny
Many thanks for becoming a part of my five year plan. Sounds as if I had
better get my fat ? to the pool. Guess there is no quick fix.
Trudy
Shame you don't live at Virginia Beach. I was referring to the Transverse
Myelitis newsletter of spring 2007.
and thanks for the good
Are we all cured or are we just not chattering due to the cold?
** See what's new at http://www.aol.com
Has everybody gone to find Frank?
Ann in Virginia
** See what's new at http://www.aol.com
** See what's new at http://www.aol.com
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Have been too busy helping husband who had stroke to be in contact with
you.. He is much better so now have a question for The MobDon't you all
like your new name. Anyway my massage therapist allowed as to how the muscles
in my legs were getting hard. I have noticed that my legs are
Don't have hot or cold feet. Have feet that feel like walking on marbles
with duck tape wrapped around them.
Ann in sunny Virginia
** See what's free at http://www.aol.com.
Hey Gang,
My husband recently had a stroke and he is now having spasms in his legs.
He has been put on bacolofin but I was wondering if any of you had any hints
of how to make one more comfortable. Thanks for any input you can give me.
Ann in Virginia
Or, should I simply be more thankful for getting any and all of the email
that I do get and Thank the Lord that there are people who think of me at all?
Of the two choices I choose the one above.
Ann in Virginia
** See what's free at
Trudy,
Just read your note to Jude and had to reply. First of all I live in
Roanoke which is in the western part of the state and have a few years on
you. I am 69 and have had TM for four years. My husband is a retired
physician and many years before I developed TM he described neurology
Welcome back Trudy. I have had Tm for five years. I
started off with a little numbness and have progressively gotten worse.
Right now I am on 2400 of neurontin. Am not aware that it helps but when I
forget to take it I realize that it does help with the burning. I also
take Tramadol (50
I notice that every thing refers to acute TM. Has anybody in the
group had TM that has come on gradually. Everyone should read the link
that Frank sent about GP's. There I guess is nothing we can do about this
but we certainly should be informed. At a hospital here in Virginia who
employs
You can correspond with all of the group by just writing using the original
address that you used that I replied to. In case you do not still have it,
the address is listed above along with yours.
Ann in Virginia
Have been gone for a week and have no mail from the group. Are we all
on vacation or do I have a problem at my end?
Ann in Virginia
The fun part you are having right now. Tomorrow will be a
breeze.
ann in Virginia
Just got back in town and have been reading the postings. Am glad I
found someone else as strange as I am. I too could not use the
Lyrica. Really did something to my muscles in my legs.
Ann in Virginia
Frank,
I was having a pretty decent weekend until I read your note to Sally.
Have not heard anyone else mentioning the fact that they were getting
worse. Like you, I had no pain originally and when they kept asking me
about pain I did not understand what they were talking about. Now I
do.
Dear Nima,
I have had Tm for almost four years. I too have been getting
considerably worse in my pain, walking etc. I have been on Bacloen,
Tizanidine and Lyrica all at separate times. I found all of these
medicines to make my muscles in my legs much weaker. Actually I was
walking like a
Kate.. Was hoping someone would reply to you since I have the same
questions but no answers. It does make sense that the more you use your
legs the better off you would be. Hopefully someone who knows the answers
to your questions will reply.
Is there any documentation on TM -
When on cruise I go to dance floor with my walker and then get on floor
pretending I am dancing. Porbably look like a fool but have a good
time.
Ann in Virginia
How the heck do you get to the digests? thanks
Dumb Ann in Virginia
Ok gang I thing I have had all my questions answered until my computer dies
again. Many thnks. I still think sour apple martinis are the best
and one question that I did have that I did not ask. HOW THE HECK DO YOU
GET RID OF THIS STUFF and I am not speaking of the martinis.
Ann in windy
I tried Lyrica for about ten days. At the end of that time my walking
was such that I did not know which way my legs would take me. Lyrica had
the same effect on me that Baclofin (sp) did. I took the Lyrica in
November. I am now walking better but my legs still feel like wooden solders and
Have you tried the support knee hi's? I just happend to have a pair
that I purchased years ago and put them on today. Really seems to
help. I do not mean the prescription kind but the kind that you can buy
anywhere.
Ann in Virginia
My computer has not been feeling well so have been away for a while.
Hope everyone had a happy new year. Prior to computer going down I heard
from someone in Uk that was taking Lyrica. I tried this and it made my
muscles weak and legs stiff. He also said his legs were stiff but he was
I also took the Lyrica and could not tolerate it. Definitely caused
muscle weakness in legs.
Did not have any trouble getting approval for it from Anthem here in
Virginia. Physician had to write and as soon as he did drug was
approved. Just wish I could take it. Would certainly be nice to
40 matches
Mail list logo
