I have been prescribed 2 oz of pot per month ...the problem is that the "legal"
pot is $450 per oz.
But I do agree that pot truly helps!!!
Rob in NJ
Sativex is sprayed under my tongue. I use it two or three times a day, with
little euphoria. It's a legal prescription drug, in Canada and soon t
Hey,
Pumps don't allways work.
Don't let them talk you out of pain.
Consider Cannabis, or Sativex if you live in Canabis
Try things
Frank
Who takes Nortriptolin, Dextromethorphin, Phenobarbitol,Sativex; uses self
hypnosis/meditation.
) use is spreading across the globe
Frank
ut in the evening. I take the provigil
right after my afternoon nap.
Take Care
Frank
Crazzy,
The woman was CRAZY, a psycho, some kind of psychotic.
Maybe caused by Hypnosis.
My Clinical Expertise at work---No Charge.
Free/Helpful advice: We with TM get neurological constipation, so we respond
better using prunes than with bulking agents
Stay Regular
fs
>>Is anyone here?
Actually, some people are outside gardening, some people are working on their
boats(getting them ready to be launched for the season), some people have been
traveling to and from a graduation, some have been just sitting outside
listening to the birds, grass and trees singi
StemCells, Inc. to Present at 2012 BIO CEO Investor Conference
NEWARK, Calif., Feb. 8, 2012 (GLOBE NEWSWIRE) -- StemCells, Inc. (Nasdaq:STEM)
announced today that President and CEO Martin McGlynn will present an update on
the Company's programs and operations at the 14th Annual Biotechnology Ind
Sativex® has received regulatory approval in Austria as a treatment of
spasticity due to Multiple Sclerosis (MS). The launch of Sativex® in Austria is
expected to take place during 2012 following completion of the national pricing
and reimbursement process. Sativex® will be marketed in Austria
appy Holidays.
Oh, cutting your feet off actually intensifies the discomfort (phantom limb
pain).
Frank
Sativex® approved in Sweden for the treatment of spasticity due to Multiple
Sclerosis (MS)
Porton Down, UK; 22nd December 2011: GW Pharmaceuticals plc (AIM:GWP) today
announced that the Medical Products Agency in Sweden has granted regulatory
approval for Sativex® (Delta-9-Tetrahydro-cannabino
Seriously,
That does happen to me. I usually am able to sit down , before I fall down. My
mind slowly shuts down. Too much data- can not compute, overloading occurring.
I stay seated for several minutes, then I'm able to resume my activities. My
GalPal used to take these events personally,
-Original Message-
>>where my brain just locks up and I become stiff from head to toe, lose speech
>>and coordination,
That happens to me too, especially when I'm talking to an attractive woman !
WaBamBam...Boing
pH
>>and what about us in the U.S.?
>Why should we be excluded? Are the pharmaceuticals afraid of the competition?
The U.S. has stricter rules about new drugs
F
Sativex® successfully launched in UK, Germany, Spain and Denmark - strong
initial uptake in key German market recently reported by marketing partner,
Almirall
· Licence agreement signed with Novartis to commercialise Sativex in
Australasia, Asia (excluding Japan/China), Middle East (excludi
Porton Down, UK; 18 July 2011: GW Pharmaceuticals plc (AIM:GWP) today announces
the launch in Denmark of Sativex® oromucosal spray as a treatment for the
relief of spasticity in Multiple Sclerosis (MS).
Regulatory approval for Sativex® was granted in June 2011 by the health
authorities in D
Jill,
I've been on this so long that I don't know what I'd do without this group, so
have forgotten the secret code to leave.
But as with all Questions, Ask the group !
Good Luck in all your adventures. Send Money when you get a job.
pH
Ya'll,
Usually I'd say, "It's only the Bourbon talking."
But with a Marine, "It's only the testosterone talking."
Semper Fi
F
GW Pharmaceuticals plc (AIM:GWP) today announces that Sativex® oromucosal spray
has been approved in the Czech Republic as a treatment for spasticity due to
Multiple Sclerosis (MS).
This approval follows GW's announcement on 22nd March 2011 that the European
Mutual Recognition Procedure had
Porton Down, UK; 11 April 2011: GW Pharmaceuticals plc (AIM:GWP) today
announces that it has entered into an exclusive licence agreement for Novartis
Pharma AG to commercialise Sativex® in Australia and New Zealand, Asia
(excluding Japan, China and Hong Kong), Middle East (excluding
Israel/Pale
.
I will pray for your speedy recovery. (Prayer always helps.)
Take care
Frank
>>
How can you two drink with pain meds? I get knocked on my butt!
Janice
>>
Janice,
That is exactly what happens to me!!
F
>>
>>When I get pain, I focus on the specific spot where the pain is putting on a
>>show, and I say to it:
stop it, stop it, stop it..!!!
When my pain acts up,
I use DRUGS,
and if that doesn't work,
I use BOURBON
pH
Yes, it has been quiet, but not as quiet as the time in 2003 or was it 2004?
Change of seasons affects us all.
Blame the quiet on that Woodchuck, or whatever.
Take care of yourselves
Frank
BobbyJim,
I had lots of probems with my bladder/prostate when I first was afflicted with
TM, then I was started on Cannabis every day, and within six months I was
having much less problems. I went to my Urologist who found that my prostate
was smaller, and my cystometrogram (bladder pressure
Greetings to all
Dextromethorphan is right handed Morphine, and works like morphine but works
on different receptors. As far as I know it is not addictive. I use 60 mg.
every 12 hours (upon arising and at bed, 8am and 8pm). If you take more, you
can/will have hallucinations ( Not Good). In M
try to make every physician appointment a teaching event for both
myself and the doctor.
Good Luck on your journey. If I can help, email me.
Frank
StemCells, Inc. Receives Authorization to Conduct World's First Neural Stem
Cell Trial in Spinal Cord InjuryPALO ALTO, Calif., Dec 7, 2010 (GlobeNewswire
via COMTEX) --
StemCells, Inc. (Nasdaq:STEM) announced today that is has received
authorization from Swissmedic, the Swiss regulatory age
News release:
StemCells, Inc. Files to Conduct Neural Stem Cell Trial in Chronic Spinal Cord
InjuryPALO ALTO, Calif., Nov 15, 2010 (GlobeNewswire via COMTEX) --
StemCells, Inc. (Nasdaq:STEM) announced today that is has filed an application
with Swissmedic, the Swiss regulatory agency for ther
>"one" of the most aggravating parts of this lifestyle for me is this season of
>commercialism,everything on tv or conversation is about having money to spend
>when i have not any. Im always having to come up with a topic that has meat
>without money.
Money is one of my favorite subjects.
I
, dorsal column)
Frank
Yes,
I, too, have noticed when the pressure was moving down or up.
We could become weathermen.
F
Greetings,
This is one of the worst times of the year for TM and other similar diseases.
Please note that Halloween is one of Four astronomical holidays that are half
way between the Solstice and the Equinox, so the days are beginning to rapidly
change.
Can you name the other three "Holidays
Emily,
TM causes the brown-sequard syndrome, but other diseases cause the syndrome too.
F
Carol,
I take a whole lot of meds for the pain: SATIVEX under tongue spray
(Cannabinoid spray, works better than eating or smoking cannabinoids),
Dextromethorphan ( right handed morphine, usually used to stop a cough),
Phenobarbital, Nortriptyline and Vit. D.
I have been a very active patie
Carol,
Google Brown-Sequard Syndrome.
I was afflicted with TM in August 2000. I had sensitivity and pain on my right
side of my body. My lesion was at C-6 on the right of my spinal cord. In August
2001, 12 months later, I began having horrible, severe pain on my left side
from the base of
Greetings from Montreal- where there are very few handicapped spots.
I always carry a point and shoot camera in my "Hand bag". When I see someone
parking in a handicapped space here or in Maine,
I take a picture of the auto, its license plate, and the handicapped sign (All
in one picture th
>>
>>Have you seen any study of arthritis being worsened by Myelitis?
I know of no connection between degenerative arthritis and myelitis. Rheumatoid
Arthritis is an auto-immune disease, so there could be a connection, positive
or negative, with myelitis.
F
>> I miss most being able to using my hands easily
I also have problems with my fingers and hands. The diagnosis is loss of
Proprioception. Most of us get some loss, others get a lot. It has decreased my
speed on the computer, made walking on gravel or the lawn difficult, and causes
me to fal
RIGHT ON, Emily !!
F
Emily,
That is a great Idea !!
How would you like to start the group?
I know my caregiver would interested
Take Care
Frank
<>
Chantal,
Where in Canada do you live? I live part time in Montreal, and go to McGill
University, Montreal General Hospital, Pain Clinic. Dr. MarkWare started me on
Sativex which is used for pain, spasm, and alot of the other problems of TM.
Take Care
Frank
<><>
>Can a US doctor prescribe a drug only available in Canada and the UK? How does
>one buy it then (if not able to go to Canada to purchase it) Can it be
>obtained over the internet or some other way?
I really don't know. My neurologist in Portland (Maine) says that he writes Rx
to patients w
Spasms?
Try Cannabinoids. I found that Marinol worked well for spams, but didn't help
the pain. Sativex works on both just like natural cannibis sativa (Medical
Marijuana.)
F
>
Doesn't help those of us who are not connected!
I drive 250 miles to Montreal, 250 miles back to Freeport,ME
I pay $640 every three months
Am I "connected"?? I think Not 11
F
Janet,
If you have pain that medication can't handle, ask your M.D. for a prescription
of Sativex, subungal spray, one spray as needed every 8 to 12 hours, 4 spray
bottles per box, Disp. 0ne (1) box every 2 to 3 months. Sativex is a distillate
of cannabinoids made in the U.K. and now paid fo
, this biological vessel, and
so is less important to me.
My two cents
Frank
, if it doesn't work for you, you are not relaxing enough.
Frank
Dear Janice,
I never knew you cared.
Frank
Let me tell you,
My daughter was married on July 31- It was a fantastic event. Abby is in Law
School, Will is doing a MD, PhD program which costs nothing for him, Oh and he
gets $20K each year to help him get by. They were married on an island in Lake
Muskoka, Ontario, Canada, and the Sun was
Yes,
The memory problem is caused by many things, but mainly for me because I'm
aways in pain so my mind attends to the pain first and forgets the rest. i also
have loss of proprioception so my mind is constantly wondering where the parts
of my body are.
I hope this muddies the water.
F
Pat,
Of course, it will be experimental till the daughter of the insurance co. CEO
develops the affliction.
We used to throw bean suppers, Lobster bakes, Casserole suppers, sold chocolate
bars, washed cars...
We were able to raise $1,000 a week towards some local person getting
experim
, now am a professional patient.)
I'm sorry we had to meet this way. I was afflicted with TM for just over 10
years and discovered this site 9 years ago.
Take care
Frank
Patty,
YES. This study is for us!!
All the studies up to the current one have been on young rats with recent
spinal cord injury.
Note also who this email came from, StemCell Inc. a US corporation listed I
believe on the NASDAC exchange ( I own shares in this corporation). This is a
for-pr
StemCells, Inc. Reports Breakthrough Using Human Neural Stem Cells to Restore
Motor Function in Chronic Spinal Cord InjuryNewly Published Study Shows
Long-Term Reversal of Hind Limb Paralysis in Spinal Cord Injured MicePALO ALTO,
Calif., Aug 19, 2010 (GlobeNewswire via COMTEX) --
StemCells, Inc.
Hi All,
I'm not going to go over my pain meds ( Nortriptyline, Vitamin D,
Dextromethorphan, Cannabinoids, Phenobarbital) again.
My pain never really goes away unless I add a couple shots of Bourbon or other
high test drinks. I am able to keep my pain at #2 or 3 with meds.
What really hel
>>Don?t forget Lyrica, which is pregabalin
Lyrica is either an antibiotic or an antidepressant. It probably is
considerably more expensive than Nortriptyline or Phenobarbital.
F
Pain Clinic
I hope this helps
Frank
e temp, I'll be dead! I wear a velvet glove on my left hand from time to
time. I'm not sure it helps.
Time to make dinner!
Frank
spray obtained by Rx from a pain Dr. in Montreal,
Vitamin D and Dextromethorphan.
If you need help feel free to email
Frank
is not concentrated, but goes from my upper chest to
the bottom of my feet.
Have your MD email me. I'll tell him.
Frank Sheldon M.D., C.M.
Sounds BOGUS to me.
Iron has nothing to do with TM- It's Auto-immune Inflammatory Demyelination-
with no indication of the presence of IRON.
Now, I'm on Vacation, so I don't want to be bothered by other's problems. I
have enough of my own. My daughter's getting married next week and can't find
Bladder problems??
Don't we all have some abnormality from TM. I have a flaccid/spastic bladder-
It fills with an enormous amount of urine, then takes two or three times to
empty. Also, When I have to urinate, I have to really urinate- no waiting
F
I agree,
It doesn't make sense since TM by definition is demyelination of a part of the
spinal cord.
F
S,
it's the summer solstice.
everyone's gone to Stonehedge, gotten drunk, gotten up to see the sun rise,
gone back to sleep...
is it thursday yet?
pH
>>You had mentioned in the past that you could only use Sativex while in
>>Canada, and you could not take it across the border back into the U.S.Has
>>that now changed?
Yes with the relaxation of Medical Cannabis federal actions, and also many
states decriminalizing or at least thinking ab
Sativex, One spray under your tongue works for eight hours approximately.
Sativex is made in Englnd out of really potent cannabis. The cannabis is brewed
and distilled then bottled. Oddly Sativex is only available in England with a
special dispensation from the national medical board- no pres
Sativex is only available in Canada, Japan and Spain NOW, but it won't be long
till it's available here in the US. The drug company is doing the testing to
gain certification here.
Sativex is available in Boxes of four small spray bottles. Each bottle has 51
sprays, each equal to one cannabis
Marinol didn't work,
Then I travelled to Montreal, to the McGill University Health Center within the
Montreal General Hospital to Dr. Ware on the 19th floor where he tried me on
sativex.
One spray under my tongue decreased my pain by 75% within ten minutes. SATIVEX
lasts longer than Cann
Kevin,
At what level is your T.M.?
Frank
__
Wow,
My 10th anniversary is coming up, July 31st.
But, WoW,
My daughter is getting married on that day on Belle Isle. on Lake Muskoka in
Ontario, Canada.
It's amazing how time can fly.
F
<><>
>>spread sheet for ALL my medications & ALL my vitamins
Todd,
That is a great idea. My assistant keeps a notebook record of my meds
A spreadsheet is so much better, so before an appointment just print out a copy
or copies.
Very Cool.
I often will do a HPI (History of Present Illness) li
I was on Amitriptyline for one week when I was being medicated. I was switched
to Nortriptyline and still take 50 mg in the morning and 100 mg at bed.
I take Phenobarbital 15 mg in AM and 45 mg at bed instead of Neurontin, and
Dextromethorphan twice a day, SATIVEX twice a day, and VIT D.
Ho
Hi Gang ! ,
Has anyone been keeping count of the number of different spelling of that drug,
you now the one in the subject line??
I count at least half a dozen.
I hate it when you can't even know the spelling of one of your meds. You need
to be spending more time reading your medicine bott
>>>Are there other options?
Yes, I take Phenobarbital 15 mg in AM and 45 mg. at bed time instead of
Neurontin or Lyrica (Both tried and failed).
I go to Dr. Kerr along with visits to Dr. Ware at the Montreal General Hospital
Pain Center where I receive excellent care.
F
Greetings Dear-Ones,
The weather affects [ note the spelling] me too.
I have started building a machine to control the weather so I will no longer
have to increase my medication. I found the plans on the internet- cast off by
some ultra-secret government agency I suspect.
When I finish, I'l
Betty, et al,
I've just returned from sunny, but chilly Florida.
The treatment for shingles has, since about 1985, been low dose cortisone
(Prednisone). A team of doctors at the Univ. of Washington (seattle) did a
double blind experiment that was "broken" by the patients. Patients were given
Thank you all for the recipes.
If the "pie book" gets published, all donators of recipes will receive a signed
copy, and all profits will go the TMA.
F
Dear Fellow Travelers,
I have decided to write a cookbook.
I have started with "Pies."
If anyone has a great pie recipe, would you share the recipe with me??
Your name would be in my book
Frank
8 YEARS FOR REPRESENTATIVES two terms that’s all.
Representative's terms are only TWO years
F
Hey there,
I do the same with my Segway. I drive it through security- usually they ask me
to sit on a chair ( while one of the agents tries the segway out)- then to the
boarding area where I take the segway apart and they put underneath with the
wheelcairs and baby buggies. At the other end, I
PALO ALTO, Calif., Jan 25, 2010 (GlobeNewswire via COMTEX) -- StemCells, Inc.
(Nasdaq:STEM) announced today the launch of GS1-R(TM), the first commercially
available medium to enable the derivation, maintenance and growth of true
(germline competent) rat embryonic stem (ES) cells. GS1-R, the l
Marinol made me hungry too, helped a little with the pain.
SATIVEX doesn't make me hungry!
F
Janice,
et al,
SATIVEX is not covered by insurance. I deduct the expense for IRS. I also keep
track of all expenses to Baltimore (Dr. Kerr), Montreal (Dr. Ware), and deduct
all those expenses. I also keep track of all medication that is not covered by
insurance.
F
because I am able to travel with no problems at customs or with
police as SATIVEX is a prescription medication.
Frank
Frank explained some time ago that one ocurrence is TM, the second one
indicates MS. Perhaps I misunderstood.
Yes, That is exactly correct
F
EXCUUSE M
This topic is OFF Topic- requiring "OT" be inserted in the subject line.
And proclaiming, "Th Best is Yet To Come". may not be totally appropriate.
Many people are expecting the earth and most animals will be destroyed on or
about 12/21/2012
The birth day of my two sons, a
Merry Christmas,
I've been up north helping Santa, just got home last night!!
And what do you know?
Santa brought me a 102 mm f/7 ED Apo OTA Telescope and a portable tripod.
But that's not why I'm writing...
I'm writing to let you know that Vitamon D has been shown to decrease central
n
I was 55 yo
f
Barbara,
Wives are usually unable to train their husband.
When shopping for a husband you need to make sure that he has been trained by
his mother or father.
I hope this info helps
F
I am here in Montreal watching humanity stroll and drive by.
My apartment looks on to Boulevard de Maisonnueve West, between Concordia
University and Dawson College.
Masses of college students are always strolling by, iPod buds plugged in their
ears.
What is weird is the couple holding han
Greetings,
Myeline grows back but in an unorganized manner so the nerves do not function
properly.
Myelitis refers to INFLAMMATION- as in "ITIS."
The MRI showed no abnormal signal meaning no inflammation.
Think of a nicely folded pile of laundry in the hall, a 5 years old comes a
long and
I took a course at Harvard on Back Pain. One of the professors was a fellow who
was a chiropractor and also an M.D., orthopedic surgeon. He was very good. Low
Impact Adjustments are OK, High Impact Adjustments are very dangerous. Deep
Massage helps a lot. Diathermy is very helpful to relax the
t realize that it is not just about him.
Jaime probably doesn't realize. He is caught in this very bad nightmare. He is scared
out of his mind- what if he stays in his present condition for ever Imagine how he
feels
> Sometimes I just feel very alone.
You're not alone. We're here.
Take care of your self
Frank
should report this Dr. - file a
complaint-to the state medical board of registration (ph# in Phone book under sta
te government)
Sorry for the bad luck. Good luck with your next doctor!
Frank
in clinic!!
Your condition weill not be helped by regional nerve block. You need meds- Tricyclic
Antyidepressant like Nortriptyline, Antiepilepsy med and perhaps some other pain med.
I use Marinol.
Good Luck- don't let that MD touch you!!
Frank
Excellent!!
Go to the head of the class!!!
Plus, when the Neuro nee4ds to do an evaluation for Soc Sec., or any insurance, They
will have your page to take quotes from.
Take care
F
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