Hi friends,
A couple of months ago I left Brasil to try to remember who I was before
TM..as you all know. Do you remember the little child I found with TM who
changed my life? Well if not, her name is Christa Brumant who also suffer from
this disease of ours from Trinidad. She is presently
Ok so I'm only 31, but this thing of ours sure does some tricks on me and my
memory. I am sure that I have lost some of my most painful days as when I was
in the hospital a few times are completely unknown to me now. My wife tells me
a lot of stories about things that happened to me when I was
I'm so sorry to hear thisall I can offer is the thoughts and prayers of me
and my wife. I hope Mike knows how much people all over the world cares for him
and he feels our love and prayers in his time of need.
Jeron
Date: Tue, 17 Aug 2010 10:13:55 -0700
From: rn11...@yahoo.com
Subject: Re:
Thanks, this is why I am so deeply in love with my wife.
Jeron
Date: Fri, 13 Aug 2010 15:49:04 -0700
From: jcs...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] Fw: Fwd: FW: How to dance in the rain.
How to Dance in the Rain
I for one can't blame my lack of sleep on TM. I had Insomnia for 14 years now.
I take sleeping pills everynight or else I get just around 15 to 20 minutes
sleep, no more. I use a drug called Doxylamine Succinate 50 mg for my sleeping
problems (it's highly restricted here in Brasil, but my
Ok, I'll give it a shot! why not...
Jeron
From: suret...@sympatico.ca
To: tmic-list@eskimo.com
Date: Sat, 31 Jul 2010 13:00:17 -0400
Subject: [TMIC] helpful hints
good afternoon everyone (except those on the west coast where it is still
morning) herein is an article that appeared in the
Truely inspiring. Thanks Gunny
Jeron
From: bgunny7...@aol.com
Date: Wed, 28 Jul 2010 12:02:20 -0400
To: Tmic-list@eskimo.com
Subject: [TMIC] Fwd: Do I like getting old?
--Forwarded Message Attachment--
From: lindalee5...@aol.com
Date: Wed, 28 Jul 2010 08:26:10 -0400
Subject: Do I
Hey Rev. Craig,
Welcome to our little society! Just like so much of us, I'm sorry to meet you
this way, but please know we only do one thing here and that is support each
other. I know for a fact that these TMers do so much for eachother that it
borders on an other worldly experience
Gunny,
Good stuff as usual! What an amazing story. I am always glad to hear stuff like
this, especially from a man like you. I remember the kick in the pants I got
from you a couple months ago and how much it truely helped me. Now my wife and
I are happy again and it only took a journey half
This is so touchingthis is why we need eachother. I too am thankful to have
found you guys...all of you! Jude must know how loved she is. Let's all
continue to wish her well and wait for a response from her.
Jeron
From: patticoole...@gmail.com
To: pjv1...@chartermi.net;
Pray for Jude
From: jan...@centurytel.net
To: pjv1...@chartermi.net; tmic-list@eskimo.com
Subject: Re: [TMIC] about Jude (Hey Jude)
Date: Wed, 21 Jul 2010 22:43:11 -0500
Tell her Janice, from Missouri, thinks about her and wishes her well.
Janice
Bernie,
I am so sorrythis is so sad! Your family is in my prayers. Please hang in
there, remember we are not only joined by this affliction, but also by the love
and caring we have for eachother. We'll get you through this, please keep us
updated with all of their needs and how we can
Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone
and try to rediscover life before TM. It's been tough, especially because I
decided to quit meds. No gabapentin, no miosan (for the shakes, think it's
called xanaflex elsewhere) no valium, just sleeping
Hey Roger,
Hang in there buddy! Just when we think things can't get worse for us TMers, TM
throws us a curve ball. I took the opportunity to read up on this disorder and
I am in shock that there are so much things that are always going to be heading
our way because of TM.
My thoughts and my
Glad to hear you're back! It's amazing that you travelled so far! I'm sorry
about the pneumonia bout though and I pray all is well now.
I myself have completed three legs of my journey. I'm off to Tobago to do some
more scuba diving and some deep sea fishing out in the atlantic ocean. It's
Hey Ruben,
I, as most of us here, can empathise with your situation. It is very costly and
the burden becomes unbearable. We've all been there. I'm sure someone on our
list must be able to help you get the financial support that you need. The rest
of us can give you the emotional support that
Wow, simply awesomefound some of his stuff on youtube.
Date: Thu, 27 May 2010 13:38:49 -0700
From: hwyfli...@yahoo.com
Subject: Re: [TMIC] music
To: bgunny7...@aol.com; Tmic-list@eskimo.com
Dang Gunny...I just pulled up his website and listened to some tracksthis
guy straight out
From: Barbara H.
Sent: Saturday, May 22, 2010 9:57 AM
To: j
ra
Cc: Transverse Myelytis
Subject: Re: [TMIC] alive
Hi Jeron,
Thanks for the further insight.
Though you don't owe any of us an explanation, this does help us understand
more. I have known of people who did push loved ones
damn...this is so cool! It took me 6 months to learn to walk again, so I'm in
guys.
Jeron
Date: Sat, 22 May 2010 18:52:56 -0700
To: tmic-list@eskimo.com
From: jlu...@myelitis.org
Subject: [TMIC] CYBER-thon to benefit TMA on June 8th
I am helping Sally Franz (a TM survivor) with her
oh hell yeah, I'm there now! I can't feel anything under my feet, but I'm a
walker. Somehow when the sand gets between your toes in the warm Caribbbean
sand, you can actually feel it. It's amazing. Warm, wet and new.what we all
TMers need. I'd like to walk barefoot in some snow soon
Hey everybody,
When I started this post, I sure as hell wasn't expecting the can of worms that
I opened up! I got what you all said about me being selfish and trying to go it
alonepushing my wife away and all that. When I came to the Caribbean it was
for two reasons. 1. I needed to learn
Have anyone of you ever wondered what it would be like without this? I've put
so much pressure on my family that I now know what loneliness feels like. I
haven't seen my wife for months and I prefer it this way. I have so much pain
and it's mine and mine alone to bear. I have fibromyalgia,
I truely appreciate everything that you each said to me about this. I guess it
killed me a little inside when I saw what I was doing to my wife and the
pressure she was under. I live in Brazil and I have a lot of faith in my team
of doctors, but being a 10 on a pain scale of 1-10 everyday is
Happy Birthday to you May babiesand also
Happy Mother's Day to all you mothers!! Enjoy your day! May it be pain-free!
Jeron
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I used it too, didn't work out too well for meIt is called Amytryptaline
here in Brasil. I still take gabapentin and neurotin, valium, cymbalta and
miosan plus prescription sleeping pills. What a cocktail, but never had any
depression or suicidal thoughts. I do see a psychologist every
I for one have horrible side-effects with Lyrica. I actually turn near blue
with this drug. I would say it works though. I am comfortable with neurotin and
gabapentin together. I also take Seroquel and sleeping pills and my pain is
reduced a bitenough to get by.
Jeron
From:
; toddtm2...@sbcglobal.net;
tmic-list@eskimo.com
Subject: Re: [TMIC] Walk Aide
Date: Sun, 4 Apr 2010 22:15:18 -0500
Jeron,
Can you get into physical
therapy? You have probably done that before, but maybe
at this point more can be done.
Janice
From: j ra
Sent: Sunday, April 04, 2010
Good night everyone,
I just out of the hospital for the 6th time in the almost 2 years of TM. I used
the walk aide for some time when I was learning to walk again, but found it
very difficult too, especially around tight corners. I'm using cruches now, but
I still drag my right leg along. I
From: Janice Nichols jan...@centurytel.net
To: j ra rumc...@hotmail.com; hwyfli...@yahoo.com; rp...@neillsupply.com;
Transverse Myelytis tmic-list@eskimo.com
Sent: Wed, March 31, 2010 5:12:53 PM
Subject: Re: [TMIC] Still in the Hospital
Weather
You got it!
Janice
From: j ra
Happy birthday April TMers!
Jeron, Rio de Janeiro, Brazil
_
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https://signup.live.com/signup.aspx?id=60969
Hey guys, It's 10 days now and I'm still stuck in an ICU. It's confirmed that
it is recurrent TM. Right now they are just treating pain and trying to manage
symptoms. So say a prayer for me, or keep me in your thouhgts.
Yours,
Jeron
From: jan...@centurytel.net
To: hwyfli...@yahoo.com;
on the information to you, their
patient.
Take care,
Debbie
-Original Message-
From: j ra
Sent: Mar 25, 2010 5:29 AM
To: jan...@centurytel.net, rp...@neillsupply.com, Transverse Myelytis
Subject: RE: [TMIC] Hospital
Dear Friends,
Last night I had a couple of bad episodes. Pain spasms
.
Janice
From: Robert Pall
Sent: Wednesday, March 24, 2010 2:43 PM
To: j
ra ; Transverse Myelytis
Subject: RE: [TMIC] Hospital
Jeron:
I know you are terrified and I don't blame youbut
please remember you are not alone. When did you have your first onset? What
tests did the Dr
--- On Tue, 3/23/10, j ra rumc...@hotmail.com wrote:
From: j ra rumc...@hotmail.com
Subject: RE: [TMIC] Children
To: jan...@centurytel.net, pieterheat...@shaw.ca, Transverse Myelytis
tmic-list@eskimo.com
Date: Tuesday, March 23, 2010, 3:14 AM
Hey all,
Firstly, I'm in the hospital again for more
Hey all,
Firstly, I'm in the hospital again for more treatments (severe back pain due
to herniated discs and dragging right leg, pins and needles etc). I asked Prof.
Ivan about the connection and he disagrees based on many things he started to
explain that I may have been too drugged up to
Your TM family is here for you.
Jeron
Date: Sat, 20 Mar 2010 09:27:30 -0700
From: jmh1...@sbcglobal.net
Subject: [TMIC] OT My Mom
To: wolft...@optonline.net; tmic-list@eskimo.com
Kevin,
It looks like by bringing her home you allowed her to see that you
were ok, to share time with you, and
Hi Kevin,
Please allow me to add my experience to this, maybe it would help. Around the
same time I was diagnosed for TM, my dad fell ill with ALS or Motor Neuron
Disease (in the US it's called Lou Gehrigs Disease). He was in and out of
Private hospitals for more than a year and he, like your
Hi everyone,
I have to ask a favour. This is a case that I'm personally getting involved
with and I need some help. It's a pediatric case and I need some advice as to
the best place for the child to receive care. Please read the article.
FULL STORY
Paralysed girl needs
I'm so glad to have found this site. I was diagnosed with TM in October 2008.
My battle continues.
Jeron o'Hara Rampersad
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