Hi, Mark,
Some years ago there was an informal study done of people in the Transverse
Myelitis Association, and about 1/3 of the respondents had no visible lesion
on the spine. I was one of those. I believe my spinal fluid came back clear
as well. My dr. said I was diagnosed based on my
@eskimo.com
Subject: Re: [TMIC] New Address...please add to your address book
Hello Everyone, I have not been on line for about a month. I am so sorry
to hear the stories about the pain, numbness and other problems that
many of you are having. Hang in there it has to get better!!
Refresher: I
Not knowing is so frustrating although you don't want a worse diagnosis than
you already have!
Today I am going back to Temple Hospital in Philadelphia for a urodynamic(sp)
test on my bladder. Has anyone ever had one? What should I expect?
Mark
Marlton, NJ
Interesting.
This is related to something I've wondered about: If 'TM' is 'inflamation of
the myelin', which of course we've already been treated for, then do we really
still have TM? I was treated with 5,000 mg methyl-prednisone during the first
5 days after my sudden (with-in 30 min)
To: Butcher, Bernie [SFS]
Cc: tmic-list@eskimo.com
Subject: RE: [TMIC] New Address...please add to your address book
Interesting.
This is related to something I've wondered about: If 'TM' is
'inflamation of the myelin', which of course we've already been treated
for, then do we really still have TM
PROTECTED]mailto:[EMAIL PROTECTED] ;
tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Friday, March 02, 2007 9:35 AM
Subject: RE: [TMIC] New Address...please add to your address book
Jude~ You have been missed. I was just about to send the Marines out looking
for you. What great news
Hello Everyone, I have not been on line for about a month. I am so sorry to
hear the stories about the pain, numbness and other problems that many of you
are having. Hang in there it has to get better!!
Refresher: I was diagnosed with TM from the head of Neurology at Temple
Hospital in
PROTECTED] ; tmic-list@eskimo.com
Sent: Friday, March 02, 2007 11:35 AM
Subject: RE: [TMIC] New Address...please add to your address book
Jude~ You have been missed. I was just about to send the Marines out looking
for you. What great news.
You sound awesome. Life here on the list goes
Hey Jude,
So glad to see you're back on the list. You've been missed! I don't e-mail
you at your e-mail address, but I was used to reading your comments and
advice on the message board. Glad you're back.
Naomi
BRBRBR**BR AOL now offers free
email to