Re: [TMIC] quiet ot

2011-11-30 Thread Janice Nichols
...@cox.net ; jan...@centurytel.net Cc: jcs...@yahoo.com ; celr...@aol.com ; TMC Group Subject: Re: [TMIC] quiet ot I do wish we could all meet together somehow; Now that we are good acquaintances, so that we could really appreciate each other's suffering and daily struggles, in order to give more

Re: [TMIC] quiet ot

2011-11-29 Thread Janice Nichols
Susan, I am taking your advice and not just taking it at nite too.It is helping. Thanks Janice From: Susan Kleinz Sent: Monday, November 28, 2011 6:32 PM To: Janice Nichols Cc: celr...@aol.com ; tmic Subject: Re: [TMIC] quiet ot Savella is a new drug designed to help people with fibro

Re: [TMIC] quiet ot

2011-11-29 Thread Janice Nichols
I agree. Janice From: Susan Kleinz Sent: Monday, November 28, 2011 6:34 PM To: bobberino Cc: celr...@aol.com ; tmic-list@eskimo.com Subject: Re: [TMIC] quiet ot I personally do not care for facebook. Even 2 of our 3 children realize the damage it can cause. This is better, for me. Susan

Re: [TMIC] quiet ot

2011-11-29 Thread john snodgrass
@eskimo.com Sent: Tuesday, November 29, 2011 1:02 PM Subject: Re: [TMIC] quiet ot Susan, I am taking your advice and not just taking it at nite too.    It is helping.   Thanks Janice  From: Susan Kleinz Sent: Monday, November 28, 2011 6:32 PM To: Janice Nichols Cc: celr...@aol.com ; tmic

Re: [TMIC] quiet ot

2011-11-29 Thread Janice Nichols
Susan, do you have break-through nights when the spasms keep you awake? Janice From: john snodgrass Sent: Tuesday, November 29, 2011 4:15 PM To: Janice Nichols ; Susan Kleinz Cc: celr...@aol.com ; tmic Subject: Re: [TMIC] quiet ot i take 20 mg of baclofen at @ 5am,12pm, and 8 pm. at one

Re: [TMIC] quiet ot

2011-11-29 Thread Susan Kleinz
On Nov 29, 2011, at 4:21 PM, Janice Nichols wrote: Susan, do you have break-through nights when the spasms keep you awake? Janice From: john snodgrass Sent: Tuesday, November 29, 2011 4:15 PM To: Janice Nichols ; Susan Kleinz Cc: celr...@aol.com ; tmic Subject: Re: [TMIC] quiet ot i take 20 mg

Re: [TMIC] quiet ot

2011-11-29 Thread Janice Nichols
What causes the nausea?Haven’t heard of that complaint. Had carpal tunnel a couple of years ago. No problem and it does work. Janice From: Susan Kleinz Sent: Tuesday, November 29, 2011 7:54 PM To: Janice Nichols Cc: john snodgrass ; celr...@aol.com ; tmic Subject: Re: [TMIC] quiet ot

RE: [TMIC] quiet ot

2011-11-29 Thread PAMELA S
...@yahoo.com; celr...@aol.com; tmic-list@eskimo.com From: skle...@cox.net Subject: Re: [TMIC] quiet ot Date: Tue, 29 Nov 2011 18:54:28 -0700 To: jan...@centurytel.net Janice,Yes, I do. I'm actually supposed to take 10 mg of Baclofen every 6 hours.So, I try to keep it by my bed at night. Baclofen

Re: [TMIC] quiet ot

2011-11-28 Thread Dalton Garis
It has indeed been very quiet. So: Has anyone used Ritalin for seizure control? I get what must be called Brain-lock seizures, where my brain just locks up and I become stiff from head to toe, lose speech and coordination, for some spell of time. That is because the lesion was on the brainstem,

Re: [TMIC] quiet ot

2011-11-28 Thread pat cooley
You're right Jane. It has been quiet. I guess everyone was busy with the Thanksgiving Holiday. I am always here, at least for part of the day. I hope everyone had a good holiday. Patti in Wisconsin On Mon, Nov 28, 2011 at 8:10 AM, celr...@aol.com wrote: ** I hope everyone is ok. It has

Re: [TMIC] quiet ot

2011-11-28 Thread rn11...@yahoo.com
; TMIC-LIST@eskimo.com Sent: Monday, November 28, 2011 9:27 AM Subject: Re: [TMIC] quiet ot It has indeed been very quiet. So: Has anyone used Ritalin for seizure control?  I get what must be called Brain-lock seizures, where my brain just locks up and I become stiff from head to toe, lose speech

Re: [TMIC] quiet ot

2011-11-28 Thread Susan Kleinz
I was busy with Thanksgiving... My two lesions are at T-7, so I do not have the brain thing going on. My first episode, I did have slurred speech...as there is a 3rd lesion in my brain that doesn't seem to be activated now. I would take any drug that would help me. Ritalin included. I'm on

RE: [TMIC] quiet ot

2011-11-28 Thread Emily
Has anyone used Clonopin (not sure of spelling)? If so, did it help with the spasms? _ From: Susan Kleinz [mailto:skle...@cox.net] Sent: Monday, November 28, 2011 11:34 AM To: celr...@aol.com Cc: tmic Subject: Re: [TMIC] quiet ot I was busy with Thanksgiving... My two

Re: [TMIC] quiet ot

2011-11-28 Thread Dalton Garis
...@cox.net, celr...@aol.com Cc: 'tmic' tmic-list@eskimo.com Subject: RE: [TMIC] quiet ot Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 28 Nov 2011 08:42:14 -0800 Has anyone used Clonopin (not sure of spelling)? If so, did it help with the spasms? From: Susan Kleinz [mailto:skle

Re: [TMIC] quiet ot

2011-11-28 Thread Susan Kleinz
AM, Emily wrote: Has anyone used Clonopin (not sure of spelling)? If so, did it help with the spasms? From: Susan Kleinz [mailto:skle...@cox.net] Sent: Monday, November 28, 2011 11:34 AM To: celr...@aol.com Cc: tmic Subject: Re: [TMIC] quiet ot I was busy with Thanksgiving... My two lesions

Re: [TMIC] quiet ot

2011-11-28 Thread john snodgrass
I think everyone is just trying to figure why this day is necessary From: celr...@aol.com celr...@aol.com To: TMIC-LIST@eskimo.com Sent: Monday, November 28, 2011 9:10 AM Subject: [TMIC] quiet ot I hope everyone is ok.  It has been very quiet on this site

Re: [TMIC] quiet ot

2011-11-28 Thread Janice Nichols
...@aol.com Cc: tmic Subject: Re: [TMIC] quiet ot I was busy with Thanksgiving... My two lesions are at T-7, so I do not have the brain thing going on. My first episode, I did have slurred speech...as there is a 3rd lesion in my brain that doesn't seem to be activated now. I would take any drug

Re: [TMIC] quiet ot

2011-11-28 Thread Janice Nichols
I have not used Clonopin, but have learned to use Baclofen during the day, not just at night, to work at it’s best.Makes a difference. Janice From: Emily Sent: Monday, November 28, 2011 10:39 AM To: 'Susan Kleinz' ; celr...@aol.com Cc: 'tmic' Subject: RE: [TMIC] quiet ot Has anyone used

Re: [TMIC] quiet ot

2011-11-28 Thread Janice Nichols
' ; celr...@aol.com Cc: 'tmic' Subject: Re: [TMIC] quiet ot I only get spasms when I fall asleep. Then I get these really big ones that twitch the whole body. Really explosive! But they go away on their own. Dalton From: Emily em...@telephonelady.com Reply-To: em...@telephonelady.com Date: Mon

Re: [TMIC] quiet ot

2011-11-28 Thread john snodgrass
...@centurytel.net To: Susan Kleinz skle...@cox.net; celr...@aol.com Cc: tmic tmic-list@eskimo.com Sent: Monday, November 28, 2011 6:20 PM Subject: Re: [TMIC] quiet ot Susan, I am on Baclofen, Neurontin, and Zoloft too.   What do you take Savella for?    Maybe I am missing out on something! You are right

Re: [TMIC] quiet ot

2011-11-28 Thread bobberino
If I got this, it means you´re still IN.Yes, the list has been very very quiet. Most folks are gravitating towards the Facebook pages. BobbyJim - Original Message - From: celr...@aol.com To: TMIC-LIST@eskimo.com Sent: Monday, November 28, 2011 8:10 AM Subject: [TMIC]

Re: [TMIC] quiet ot

2011-11-28 Thread john snodgrass
I resemble that remark! From: bobberino elbobber...@earthlink.net To: celr...@aol.com Cc: tmic-list@eskimo.com Sent: Monday, November 28, 2011 7:19 PM Subject: Re: [TMIC] quiet ot If I got this, it means you´re still IN.    Yes, the list has been very

Re: [TMIC] quiet ot

2011-11-28 Thread Susan Kleinz
- take a bow everyone of you!!! Janice From: Susan Kleinz Sent: Monday, November 28, 2011 10:33 AM To: celr...@aol.com Cc: tmic Subject: Re: [TMIC] quiet ot I was busy with Thanksgiving... My two lesions are at T-7, so I do not have the brain thing going on. My first episode, I did have

Re: [TMIC] quiet ot

2011-11-28 Thread Susan Kleinz
I personally do not care for facebook. Even 2 of our 3 children realize the damage it can cause. This is better, for me. Susan, Phx, AZ On Nov 28, 2011, at 5:19 PM, bobberino wrote: If I got this, it means you´re still IN.Yes, the list has been very very quiet. Most folks are

Re: [TMIC] quiet ot

2011-11-28 Thread john snodgrass
bless me? From: Susan Kleinz skle...@cox.net To: bobberino elbobber...@earthlink.net Cc: celr...@aol.com; tmic-list@eskimo.com Sent: Monday, November 28, 2011 7:34 PM Subject: Re: [TMIC] quiet ot I personally do not care for facebook. Even 2 of our 3 children