Sally and Debbie....Well the Lymphonema Clinic trip was bad. First of all I tipped my wheel chair over backwards going down a ramp into the crosswalk. I ended up on my back in the middle of the street. People came running to me form everywhere. When they lifted me up there were cars parked in the street with the doors standing open where they left them coming to my rescue. No damage to me or my wheelchair. My wife fell trying to catch me and scraped her knee a little. I was pleasantly surprised by the assistance offered by all of the strangers passing by. Once in the clinic I found out I will need to go to therapy three times a week for four weeks. They will massage and wrap my legs to reduce the swellling. Once the swelling is down they will put the support hose on them. I will probably have to wear them the rest of my life. I will be able to stop taking the Lasix and the coumadin. Then I went to the scales and found out I had gained a bunch of weight. When it rains it pours. I am now on Effexor and Lyrica as I try to get completely off the Lyrica. Pain level has increased some. Will keep you posted on the progress...........Cody in Austin ----- Original Message ----- From: Sally Wilkinson To: 'Cody Kidwell' Sent: Monday, December 04, 2006 3:53 AM Subject: RE: [TMIC] TM Question
Hi my husband had to come off Lyrica as his whole body became swollen including his chest which in turn caused him to have breathing difficulties! He got off Lyrica ASAP. He then found his legs jumped like mad when he went to bed so he started just taking 75mils at night, which did not cause any side effects but did help stop the legs jumping! He is now off it completely as he is awaiting a spinal implant and was asked to take as little as possible drug wise as he has now been taught different methods to deal with his pain. Hope this helps. Regards Sally in the UK -----Original Message----- From: Cody Kidwell [mailto:[EMAIL PROTECTED] Sent: 01 December 2006 22:43 To: TMIC; [EMAIL PROTECTED] Subject: Re: [TMIC] TM Question Debbie.... Iam going to a Lymphnema Clinic on Tuesday for the swelling. I am trying to get off the Lyrica and back on hte Effexor. I did better witht he Effexor. I think the Lyrica is affecting my breathing as well. Have you noticed any breating problems?............Cody ----- Original Message ----- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Thursday, November 30, 2006 10:27 PM Subject: Re: [TMIC] TM Question In a message dated 11/27/2006 9:13:43 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Todd and Rogette.....I have had a lot of leg swelling since I started the Lyrica. I was taking 150mg 2XD and I am now up to 300mg 2XD. It still does not completely control the pain. Today I asked my neurologist about switching back to the Effexor. He agreed to switch me back. I had taken Effexor before after Lenora from the TMIC list said it had helped her. I switched to the Lyrica when it first came out hoping it would be the answer. I think all in all the Effexor worked better. I would be interested in hearing about others experience with Lyrica and Effexor....Cody in Austin ----- Original Message ----- From: Todd Tarno To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Monday, November 27, 2006 4:03 PM Subject: Re: [TMIC] TM Question Yes this is part of TM. I use Lyrica twice a day and Nortriptyline once at night time. It doesn't stop it completely, but it does help a lot. I never got to go to a pain clinic where they could really know what medications to give me. That would be a great place to start. Todd in Corpus Christi, TX [EMAIL PROTECTED] wrote: I have had TM for six months. I have it from the waist down and was initially paralyed from the waist down. I am now walking on a walker and semi on a heme cane. However, I get these strange sensations from the nerves in my legs and when I am laying down a burning sensation in my thighs that really hurts. Have any of you experienced this and is this medication for it? Hi Cody, I also have had extreme leg swelling with Lyrica. I was on Nuerontin initially and then switched to Lyrica. I think the Lyrica helps, but the swelling is awful! Debbie in Atlanta
