Allodynia is my worst pain also and is steadily increasing. Finding clothes that cause the least pain is a challenge and taking care of the tiniest details, e.g. wrinkles in anything. What a pain in the bum it all is.
Gilly Subject: [TMIC] Re: pain > Has it steadily gotten worse since you got TM? Sally, I started off with mild "pain" and hypersensitivity/ allodynia. My pain slowly built over the first 12 months, then all of a sudden, middle of the night-BAMMM- the pain increased by 10 fold. My original pain was mainly right sided but the new pain was mainly left sided- I phoned my neurologist (Dr. Kerr)and he happened to be "On Call." He quickly diagnosed Brown- Sequard Syndrome, told me to increase my Marinol, get an MRI, and make an appointment to see him in 6 weeks. My pain now is not crampy as I use cannabinoids daily. I had severe cramping the first year (pre-Kerr, pre- cannabinoids). I have the numb, tingly, stabbing, lancinating, crushing, burning pain. I have minimal temperature control in my left side. I often wear a silk or polarfleece glove on my left hand. Allodynia is my biggest problem. I have to hold hands using my right hand. I find that medication has little effect on the Allodynia. Yes, I believe the pain is slowly getting worse. I believe the increase is due to the original affliction, much as a small patch of rust will spread slowly but surely. Take care F
