It depends on who you talk to when you ask what state are you in, my wife might say something like "oh, he lives in Abbynormal land!" I live in S. E. Oklahoma, about 90 miles south east of OKC. It was an internal medicine doctor doing a fellowship from Mayo Clinic who diagnosed TM. All in All I think I had about 7 to 10 spinal taps before they were able to figure it out. I think my introduction story in #304 in the members stories. If you haven't ever spent any time there I encourage you to do so. There are some amazing stories there, some real heros! Lately my pain has been mostly in my legs. It never quits. I agree with one of Franks recent post explaining donminoe effect of TM on our health. Mine has certainly gotten worse especially over the last 8 to 10 years. But keeping busy helps me a lot.
Larry in Oklahoma where it's been a beautiful day!
Larry Throne, MSW
From: natalie mizenko <[EMAIL PROTECTED]>
To: Larry Throne <[EMAIL PROTECTED]>, tmic-list@eskimo.com
Subject: RE: [TMIC] Pain
Date: Mon, 14 May 2007 10:39:43 -0700 (PDT)
Larry Throne <[EMAIL PROTECTED]> wrote:My legs throb, burn and ache 24/7, and it has only gotten worse over the years. I have taken just about everything and none of them really ever eliminate the pain & discomfort. I think I have just gotten used to it. That along with the constant fatigue and back/trunk pain have all stayed mostly the same. It used to leave me very depressed which helped me develop a dependence on narcotics and even alcohol. I stopped drinking or taking any pain killers or benzodiazepines 18 years ago. As I said, I was never able to find anything that worked for me but I have been taking cymbalta and that has helped with the depression. After living with TM for over thirty years I have also begun to experience age related problems. Arthritis in my hands and shoulders as well as loss of muscle strength & control have continued to plague. But Oh, well! All I've even known to do was keep on going. I go slower than most people and it takes me longer to accomplish many task. But I keep doing as much as I can. I have lost a lot of ability over the last ten years but so have most people my age. It's frustrating to know there are things that I could do but can no longer muster the strength or stamina to master. But I keep on going. Don't give up! At some point, I was able to look behind me and say, hey, I survived!Larry in Oklahoma where it is absolutely beautiful today!
Larry Throne, MSW
From: natalie mizenko <[EMAIL PROTECTED]>
To: Transverse Myellitis <tmic-list@eskimo.com>
Subject: [TMIC] Pain
Date: Sat, 12 May 2007 11:43:54 -0700 (PDT)
I have moderate to severe pain in my feet 24 hours a day. They tried tons of drugs while I was at Baylor Rehab. to get it under control. Many nights I couldn't even sleep & still up at 8:00 to 4:00 to do all the exercise groups and training they had. Exhausted I was indeed then...but they didn't like you missing a course. Very intense training. Anyway, who else has burning pain like this in their feet all the time? It really never, never leaves me. I was checked on an MRI for MS cause my pain was so severe. Dr. said my pain was out of the norm to be as severe as it was but she believed it was real. Natalie
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