Jeanne: I still read all the mail too. Even though I don't add my 2 cents very often. I had no illness at all before being struck. I had no colds for at least a year, probably two years before that, and we all just scratched our heads! When at about 2 years out, I went to Dr. Kerr, he said my "TM" was caused by B-12 deficiency. I found out that it can take years for the B-12 deficiency to show up--but my neuro in Ark. doesn't agree, and still holds my diagnosis as TM, idiopathic (no apparent cause). Whatever! I still got paralyzed from navel down in the matter of a few hours, couldn't urinate, ended up like most of us, with iv solumedrol (steroids), a lumbar puncture and PT and OT. That was in Oct. of 2002.
Cora in Oklahoma On Tue, Mar 25, 2008 at 9:21 PM, jrushton <[EMAIL PROTECTED]> wrote: > I, for one, am SO glad to be reading every single one of these > stories! I'm pretty new at TM (5/2005) and am trying to learn every thing I > can. I really don't mind hearing the stories repeated because this is just > the type of thing that will help us know we ARE NOT ALONE!! I've seen new > names appear lately and heard stories and events about TM I would not have > heard otherwise. I was all by myself doing the PT/OT and had the hardest > time trying to explain what had happened and how the numbness, pain, spasms, > heaviness, weird feelings, sensation on the skin on one leg with none at all > on the other, trying to explain how I couldn't even feel when I sat on a > chair and often would just slide off (still do!!!!)....all of these things, > I now can talk to you all about and be blessed that someone out there truly > understands. > > I have said since the onset of TM, part of me lives with all of the pain > and weakness and the knowledge that I probably will not get much better. > > BUT! I want the world to know that I will NEVER give up hoping for a cure > and that maybe someone who is a whole lot wiser than I will learn from all > of us and what we say on this site. > > Part of me as a nurse looks on in wonder and curiosity and so when > everyone sends their own stories, I am so thankful. So is the Internest > that I worked with pre and post -TM who I just happened to see today, who > gave me a great big bear hug and said, "Yes, (by golly), I still want to > work with you to set up a series of questions (for others with TM) so we can > become more knowledgeable on why it occurs." We started talking about doing > this way before I ever found you all, my wonderful new friends! > > Now, for my story!! I, too, had flu-like symptoms for several weeks PLUS > a persistent burning itch on my left shoulder that I had been bothered with > also for several weeks (no marks at all). We (nurses like to diagnose) felt > it might be shingles, although I had never been bothered with it before. > Once a person has Chicken Pox, the varicella virus stays in your system > forever and a person can suffer from shingles from that same virus. One of > the theories of TM is that it is related to that virus. (This can be backed > up by reading it in the Merck Manual). Our body just goes to war against > whatever is fighting inside itself. With TM, evidently it happens to be our > spinal cord. > > The first neurologist that worked with me said it all. He said no one > really knows and not enough people are stricken with TM and that is why > there just aren't many studies being done. > > Well, I've yacked enough for awhile... > > Thank you all for all of the time you've taken to share with us > newcomers!!! I sure do appreciate it! Jack and I are planning on going to > the Seattle Symposium if we can afford the cost of the hotel room!!! We > might pitch a tent in the parking lot! > > > Jeanne in Dayton, WA > > > > *-------Original Message-------* > > *From:* sal r <[EMAIL PROTECTED]> > *Date:* 3/25/2008 9:04:48 PM > *To:* wim from holland <[EMAIL PROTECTED]>; Robert Pall<[EMAIL PROTECTED]>; > tm <tmic-list@eskimo.com> > *Subject:* RE: [TMIC] UNBELIEVABLE! > > i undertstand there is probably tons of research and foums out there but > im pretty sure that people would like to share their own stories and we can > compare between ourselves and conduct our own research...SaL > > *wim from holland <[EMAIL PROTECTED]>* wrote: If you look in to > the archives, probenly you will find a lot of people that think, or almost > know for sure, that stress is related to sicknesses by lowering the immune > system. This discussion has been done for several times, also blurry vision, > cold feet, painfull knees and ancles, sensitivity, no sex , marijuana and > more. > > Follow this group now for over more than 10 years. > > Wim from Holland > > > ------------------------------ > Date: Tue, 25 Mar 2008 17:27:47 -0400 > From: [EMAIL PROTECTED] > To: tmic-list@eskimo.com > Subject: [TMIC] UNBELIEVABLE! > > OK…Is this list good or not! So far having approx. 10 responses….9 out of > 10 state that they had a minor sickness but they were going thru a very > stressful time in there lives. I am totally convinced that stress lowered my > immume system to the point that TM occurred. I find it unbelievable how > many on the list agree! I believe in order to find a cure you must first > find the cause….perhaps we have!!!!!!!!!!!!!!!!!!! > Rob in New Jersey > > ------------------------------ > Chat met al je vrienden. Nodig ze nu uit voor > Messenger!<https://www.invite2messenger.nl/Default.aspx> > > ------------------------------ > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it > now.<http://us.rd.yahoo.com/evt=51733/*http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ> > >
