Here in the U.S., if I had MS, i would have had
REAL help: therapy, infrastructure, assistance, a
drug course, transportation, LOTS AND LOTS of
things that I did not get and do not have.
As soon as they deteremined that what I had was
NOT MS -- this was at Strong Hospital--
A whole level of attention and assistance was
dropped like a hot potato. They didn't know about
TM but they knew about MS. So basically nothing
happened for me. I was warehoused for months
and fought for every little bit that was done,
which in retrospect was shockingly little eg. no
water therapy, very little exercise, my leg
machines discontinued....
So diagnosis is critical to treatment in my experience.
Akua
Hi Dalton,
I don't disagree with what you are saying,
however it depends upon how far down the line
you are. I think we all need that diagnosis, we
need to know what has gone wrong, we need a
label. It takes a long time to accept what's
done is donewhen we have got there you're
right, the label/diagnosis becomes irrelevant.
Until we get there , well there's some comfort
in a label . After all, without that label
/diagnosis none of us would be here sharing our
experiences on the web.
Steve (one of 300 of the population of the uk
diagnosed in a year, we are a rare breed my gp
has never seen a tm before)
From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: 18 June 2010 17:38
To: 'Deborah Nord Capen'; 'Gerry Surette'; tmic-list@eskimo.com
Subject: RE: [TMIC]
Deborah;
Actually, I'm not concerned what the drs call
it; it doesn't change how I live if they end up
calling it TM or MS or whatever. The name of
the thing is their business. It's done its
thing if TM and if MS. I just live with it. I
don't see any difference, actually. It's not as
if we have cancer or something else here. Done
is done; so, how would it change anything?
Dalton
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