Re: [QUAD-L] giving up
How often does anybody feel like just giving up on life because I know it's hard everyday being a quad isn't easy but it gets even older everyday ! Living as a quad is a day by day life but it gets so old and feel like a 90 year old but only am 47 have been a quad for 21yrs and have had more problems than u can wag a stick at . How does everyone stay positive ? Was in a car wreak in 91 when I was 25 and it's been a long and tiering life ! Any suggestions anyone ? Sent from my iPad On Sep 11, 2012, at 12:50 PM, Bobbie Humphreys bobbie...@aol.com wrote: Carson, Welcome back! Bobbie 39 years post … Parsippany New Jersey 25 miles West of NYC Sent from my iPad On Sep 11, 2012, at 4:18 AM, daa...@aol.com wrote: Glad you're back. Carson. Dana C 4-5, 38 years post, Prairie village Kansas , Kansas City area In a message dated 9/10/2012 8:59:23 P.M. Central Daylight Time, wheelch...@aol.com writes: Hiya Kit! Welcome Back. Best Wishes In a message dated 9/10/2012 2:28:28 P.M. Central Daylight Time, c1c2...@gmail.com writes: I have been on the list before, thought I should come back. I am high quad for 15 years. I live in arizona. Carson
[QUAD-L] Is this inappropriate touching?
I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] giving up
I can completely understand how you feel ! Our car wreck was August 3rd 1997. I was 40 and now i'm 55 years old. This morning we were both struggling to get up get going another day, My wife was in the accident with me and is my sole caregiver, She gets severe migraine headaches from the accident and must work full time plus take care of me and a grandson we must raise. My 1st 10 years as a quad was heavenly compared to now . lol, I feel like i'm like a feeble older 80 plus year old man at times. I guess all we can do is try to stay positive, focus on the good things we have or can enjoy--I think we all gotta be tough mentally...We are not alone, as many of the quads on here face similar trials of life. Stay strong ! like I have found out thru the years-things could always be worse than most current situations, even when that seems hard to imagine at times. I have seen quads on T.V. in forein countries that are so poor they must be pulled around in a wagon because the terrain is bad and can't afford wheelchairs. When I think of poor folks like that...I realize how blessed I am. Dan H.* C-6 From: Toby Ausbun toby.aus...@yahoo.com To: quad-list@eskimo.com quad-list@eskimo.com Cc: daa...@aol.com daa...@aol.com; wheelch...@aol.com wheelch...@aol.com; c1c2...@gmail.com c1c2...@gmail.com; quad-list@eskimo.com quad-list@eskimo.com Sent: Wed, September 12, 2012 6:24:51 AM Subject: Re: [QUAD-L] giving up How often does anybody feel like just giving up on life because I know it's hard everyday being a quad isn't easy but it gets even older everyday ! Living as a quad is a day by day life but it gets so old and feel like a 90 year old but only am 47 have been a quad for 21yrs and have had more problems than u can wag a stick at . How does everyone stay positive ? Was in a car wreak in 91 when I was 25 and it's been a long and tiering life ! Any suggestions anyone ? Sent from my iPad On Sep 11, 2012, at 12:50 PM, Bobbie Humphreys bobbie...@aol.com wrote: Carson, Welcome back! Bobbie 39 years post … Parsippany New Jersey 25 miles West of NYC Sent from my iPad On Sep 11, 2012, at 4:18 AM, daa...@aol.com wrote: Glad you're back. Carson. Dana C 4-5, 38 years post, Prairie village Kansas , Kansas City area In a message dated 9/10/2012 8:59:23 P.M. Central Daylight Time, wheelch...@aol.com writes: Hiya Kit! Welcome Back. Best Wishes In a message dated 9/10/2012 2:28:28 P.M. Central Daylight Time, c1c2...@gmail.com writes: I have been on the list before, thought I should come back. I am high quad for 15 years. I live in arizona. Carson
[QUAD-L] Re: Is this inappropriate touching?
I would have if I had my speech machine with me. From now on I will Always be prepared. KK From: Eric Batte ericba...@gmail.com To: KK kkba...@yahoo.com Cc: quad-list@eskimo.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wed, September 12, 2012 10:03:51 AM Subject: Re: Is this inappropriate touching? I think if someone takes my keys and scratches my feet with them, I would immediately ask what are you doing? On Wed, Sep 12, 2012 at 9:21 AM, KK kkba...@yahoo.com wrote: I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] Is this inappropriate touching?
I would say that any unwanted touching would be inappropriate. The fact that it made you feel uncomfortable should confirm that. On Wed, Sep 12, 2012 at 10:21 AM, KK kkba...@yahoo.com wrote: I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] Is this inappropriate touching?
That seems creepy to me, If I were you I would just ask her why she did it and tell her you you were uncomfortable. I fortunately have some feeling, but if I didn't I would not let my aides know that. A long time ago an aide did try something extremely innappropriate and from that time on I swore to let every aide in the future know I have feeling. Lets us know how she explains it. Meredith - Original Message - From: KK kkba...@yahoo.com To: quad-list@eskimo.com, eric ericba...@gmail.com, Lainie Batte lainieba...@yahoo.com, MS Quads ms-qu...@yahoogroups.com Sent: Wednesday, September 12, 2012 7:21:33 AM Subject: [QUAD-L] Is this inappropriate touching? I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] Is this inappropriate touching?
Yes KK, I feel that was inappropriate touching, talk to her to let her know how you feel. Lindaf
RE: [QUAD-L] Is this inappropriate touching?
Any touching that makes you feel uncomfortable is definitely inappropriate. The fact that your aide was doing this when she knew you did not have your speech machine with you and you could not let her know how you felt about it. As someone else said, let her know that you felt uncomfortable and ask her why she did it. As we are very dependent upon our aides to act appropriately and safely for us, you need to know why she acted so oddly, especially in front of somebody else. This is why it is so important to have your guidelines and rules in place with your aides so that everyone is clear on appropriate behavior and attitudes. Good luck. Joan
Re: [QUAD-L] Is this inappropriate touching?
yes that is very wrong...she needs to be fired!! ~LittleQuad~ From: KK kkba...@yahoo.com To: quad-list@eskimo.com; eric ericba...@gmail.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wednesday, September 12, 2012 9:21 AM Subject: [QUAD-L] Is this inappropriate touching? I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] Re: Is this inappropriate touching?
I don't know if that was sexual or not but in my early quad years my kids and grandkids were very curious as to what I could or could'nt feel--they would rub feathers and objects across my feet and legs to see if I really felt it or not, A few doctors were curious too during rehab times. Dan H. From: KK kkba...@yahoo.com To: Eric Batte ericba...@gmail.com Cc: quad-list@eskimo.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wed, September 12, 2012 10:10:49 AM Subject: [QUAD-L] Re: Is this inappropriate touching? I would have if I had my speech machine with me. From now on I will Always be prepared. KK From: Eric Batte ericba...@gmail.com To: KK kkba...@yahoo.com Cc: quad-list@eskimo.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wed, September 12, 2012 10:03:51 AM Subject: Re: Is this inappropriate touching? I think if someone takes my keys and scratches my feet with them, I would immediately ask what are you doing? On Wed, Sep 12, 2012 at 9:21 AM, KK kkba...@yahoo.com wrote: I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] Is this inappropriate touching?
You are crazy KK, but that is another issue (smiling) In the world of law, that action would be considered, assault. If the person touched you again after any sign of disapproval, those actions would be considered, assault and battery. This alone would lead to police intervention, a report, an arrest and money bond. The case would have to be heard by the court and a judgement. These actions would also lead to additional hearings, by the person's employment. These types of actions should not be tolerated by anyone, verbal or none verbal. Best Wishes -Original Message- From: KK kkba...@yahoo.com To: quad-list quad-list@eskimo.com; eric ericba...@gmail.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wed, Sep 12, 2012 9:21 am Subject: [QUAD-L] Is this inappropriate touching? I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] Is this inappropriate touching?
Yes, everything W said! Except the crazy part!! Lq ~LittleQuad~ Sent from my BlackBerry -Original Message- From: wheelch...@aol.com Date: Wed, 12 Sep 2012 13:17:44 To: kkba...@yahoo.com; quad-list@eskimo.com; ericba...@gmail.com; lainieba...@yahoo.com; ms-qu...@yahoogroups.com Subject: Re: [QUAD-L] Is this inappropriate touching? You are crazy KK, but that is another issue (smiling) In the world of law, that action would be considered, assault. If the person touched you again after any sign of disapproval, those actions would be considered, assault and battery. This alone would lead to police intervention, a report, an arrest and money bond. The case would have to be heard by the court and a judgement. These actions would also lead to additional hearings, by the person's employment. These types of actions should not be tolerated by anyone, verbal or none verbal. Best Wishes -Original Message- From: KK kkba...@yahoo.com To: quad-list quad-list@eskimo.com; eric ericba...@gmail.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wed, Sep 12, 2012 9:21 am Subject: [QUAD-L] Is this inappropriate touching? I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] Is this inappropriate touching?
Ick. I shivered just reading this. In my opinion, any contact unrelated to care is inappropriate unless I give consent. Yes it is easy to get attached to certain aides and relax the rules a little bit but as a whole, just because these people take care of our bodies doesn't mean they have any special rights to our bodies outside of that care. You're not crazy, dear. You're just listening to your instincts, which is very important. Mandy, c5-7 quad From: KK kkba...@yahoo.com To: quad-list@eskimo.com; eric ericba...@gmail.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wednesday, September 12, 2012 8:21 AM Subject: [QUAD-L] Is this inappropriate touching? I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
Re: [QUAD-L] 46 years post SCI
Hi Danny, I found out I had bladder cancer after I went to the urologist with blood in my stool as I was using a catheter I had stage III bladder cancer and my bladder was removed I received made out of the last 6 inches of my small intestine in 1986. Dana Sent from my iPhone On Sep 11, 2012, at 10:26 PM, Nan nlg52...@yahoo.com wrote: One of my biggest clues would be sweating (AD). That said, I too have a continent stoma (Kock Pouch) and I self cath - I've had it since 1987 and it rocks!!! Nan From: Danny Hearn ddh...@sbcglobal.net To: carolyndeand...@comcast.net; jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Tuesday, September 11, 2012 1:33 PM Subject: Re: [QUAD-L] 46 years post SCI I'm curious to know how a quad can tell if they have something like bladder cancer going on, would there be some noticable problems or just during a urologist check up ? thanks Dan H.** From: carolyndeand...@comcast.net carolyndeand...@comcast.net To: jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Tue, September 11, 2012 11:40:20 AM Subject: Re: [QUAD-L] 46 years post SCI I had bladder cancer so my bladder was re-made using my intestines and was put just inside my stomach beneath my belly button. I self cath...as my daughter said I now pee through my stomach. Its sometimes called the Miami or Indiana pouch. - Original Message - From: jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Tuesday, September 11, 2012 11:35:04 AM Subject: Re: [QUAD-L] 46 years post SCI What is the miami pouch? Meredith - Original Message - From: carolyndeand...@comcast.net To: daa...@aol.com Cc: quad...@gmail.com, gah17...@aol.com, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 9:24:16 AM Subject: Re: [QUAD-L] 46 years post SCI I'm 49 years post..may 5th will be 50 years omg..its hard to believe its been such a long time. I will be 68 next month, I was 18 when I was in a car accident. I have had many, many problems but I'm still hanging in. Like Lori who just lost her husband my husband is my care giver and hes 72 now..I hate to think about what would happen if he dies but I'm trying to be realistic and have some plans in place. My biggest problem right now is kidney and bladder stones and I have a Miami pouch due to bladder cancer..has anyone on the list had stones removed from a pouch? Carolyn - Original Message - From: daa...@aol.com To: quad...@gmail.com, gah17...@aol.com, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 3:26:11 AM Subject: Re: [QUAD-L] 46 years post SCI Sorry you are not feeling too young, I know how you feel. Dana congratulations Quadius on 17 years. God bless all of us as we struggle each year with our different problems with SCI. In a message dated 9/10/2012 8:22:18 P.M. Central Daylight Time, quad...@gmail.com writes: today I'm not feeling too young myself. However, I am only 17 years into this life of quadriplegia. Congratulations on making to 46. Q On Fri, Sep 7, 2012 at 6:23 PM, gah17...@aol.com wrote: 63 years old, feel 110 today. Glenn Henry
[QUAD-L] Re2:
aloha http://cabinetbianchi.re/ttuweiroll.php?hybogo=485 Wed, 12 Sep 2012 21:17:12 __ A shirt, and a sheet, and a spoon, and six can--Missus, comes a young yaller wench, deys a brass cannelstick missn. jamilyn wynston
Re: [QUAD-L] 46 years post SCI
Thank you Dana and the others that responded, as a quad you just wonder about a lot of things like that or what if you have an appendix burst or a gall bladder go bad..I guess one would get sick or dysreflexia in many cases. Thanks, again, Dan H. ** From: Dana Wray daa...@aol.com To: Nan nlg52...@yahoo.com Cc: Danny Hearn ddh...@sbcglobal.net; quad-list@eskimo.com quad-list@eskimo.com Sent: Wed, September 12, 2012 3:04:17 PM Subject: Re: [QUAD-L] 46 years post SCI Hi Danny, I found out I had bladder cancer after I went to the urologist with blood in my stool as I was using a catheter I had stage III bladder cancer and my bladder was removed I received made out of the last 6 inches of my small intestine in 1986. Dana Sent from my iPhone On Sep 11, 2012, at 10:26 PM, Nan nlg52...@yahoo.com wrote: One of my biggest clues would be sweating (AD). That said, I too have a continent stoma (Kock Pouch) and I self cath - I've had it since 1987 and it rocks!!! Nan From: Danny Hearn ddh...@sbcglobal.net To: carolyndeand...@comcast.net; jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Tuesday, September 11, 2012 1:33 PM Subject: Re: [QUAD-L] 46 years post SCI I'm curious to know how a quad can tell if they have something like bladder cancer going on, would there be some noticable problems or just during a urologist check up ? thanks Dan H.** From: carolyndeand...@comcast.net carolyndeand...@comcast.net To: jume9...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Tue, September 11, 2012 11:40:20 AM Subject: Re: [QUAD-L] 46 years post SCI I had bladder cancer so my bladder was re-made using my intestines and was put just inside my stomach beneath my belly button. I self cath...as my daughter said I now pee through my stomach. Its sometimes called the Miami or Indiana pouch. - Original Message - From: jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Tuesday, September 11, 2012 11:35:04 AM Subject: Re: [QUAD-L] 46 years post SCI What is the miami pouch? Meredith - Original Message - From: carolyndeand...@comcast.net To: daa...@aol.com Cc: quad...@gmail.com, gah17...@aol.com, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 9:24:16 AM Subject: Re: [QUAD-L] 46 years post SCI I'm 49 years post..may 5th will be 50 years omg..its hard to believe its been such a long time. I will be 68 next month, I was 18 when I was in a car accident. I have had many, many problems but I'm still hanging in. Like Lori who just lost her husband my husband is my care giver and hes 72 now..I hate to think about what would happen if he dies but I'm trying to be realistic and have some plans in place. My biggest problem right now is kidney and bladder stones and I have a Miami pouch due to bladder cancer..has anyone on the list had stones removed from a pouch? Carolyn - Original Message - From: daa...@aol.com To: quad...@gmail.com, gah17...@aol.com, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 3:26:11 AM Subject: Re: [QUAD-L] 46 years post SCI Sorry you are not feeling too young, I know how you feel. Dana congratulations Quadius on 17 years. God bless all of us as we struggle each year with our different problems with SCI. In a message dated 9/10/2012 8:22:18 P.M. Central Daylight Time, quad...@gmail.com writes: today I'm not feeling too young myself. However, I am only 17 years into this life of quadriplegia. Congratulations on making to 46. Q On Fri, Sep 7, 2012 at 6:23 PM, gah17...@aol.com wrote: 63 years old, feel 110 today. Glenn Henry
[QUAD-L] Re: Is this inappropriate touching?
Tomorrow the nurse is coming. We get along great so I am planning on talking to her about the situation. I now have the wheelchair set up for the speech machine to go on easily. As far as transferring goes I use a board. She helps by standing in front of me with her foot between my legs. Basically it is a slide over from chair to bed. Most times I can manage it alone. But the afternoon bed time requires watching if some help. Thank everyone for your answers. KK
Re: [QUAD-L] 46 years post SCI
I have had bladder stones removed from my bladder, but I would think it's not much more difficult than that. If you cath from your belly button, they can simply go in with the scope and remove the stones from your makeshift bladder. As far as kidney stones go, that's another story. Quadius On Wed, Sep 12, 2012 at 4:32 PM, Danny Hearn ddh...@sbcglobal.net wrote: Thank you Dana and the others that responded, as a quad you just wonder about a lot of things like that or what if you have an appendix burst or a gall bladder go bad..I guess one would get sick or dysreflexia in many cases. Thanks, again, Dan H. ** -- *From:* Dana Wray daa...@aol.com *To:* Nan nlg52...@yahoo.com *Cc:* Danny Hearn ddh...@sbcglobal.net; quad-list@eskimo.com quad-list@eskimo.com *Sent:* Wed, September 12, 2012 3:04:17 PM *Subject:* Re: [QUAD-L] 46 years post SCI Hi Danny, I found out I had bladder cancer after I went to the urologist with blood in my stool as I was using a catheter I had stage III bladder cancer and my bladder was removed I received made out of the last 6 inches of my small intestine in 1986. Dana Sent from my iPhone On Sep 11, 2012, at 10:26 PM, Nan nlg52...@yahoo.com wrote: One of my biggest clues would be sweating (AD). That said, I too have a continent stoma (Kock Pouch) and I self cath - I've had it since 1987 and it rocks!!! Nan -- *From:* Danny Hearn ddh...@sbcglobal.net *To:* carolyndeand...@comcast.net; jume9...@comcast.net *Cc:* quad-list quad-list@eskimo.com *Sent:* Tuesday, September 11, 2012 1:33 PM *Subject:* Re: [QUAD-L] 46 years post SCI I'm curious to know how a quad can tell if they have something like bladder cancer going on, would there be some noticable problems or just during a urologist check up ? thanks Dan H.** -- *From:* carolyndeand...@comcast.net carolyndeand...@comcast.net *To:* jume9...@comcast.net *Cc:* quad-list quad-list@eskimo.com *Sent:* Tue, September 11, 2012 11:40:20 AM *Subject:* Re: [QUAD-L] 46 years post SCI I had bladder cancer so my bladder was re-made using my intestines and was put just inside my stomach beneath my belly button. I self cath...as my daughter said I now pee through my stomach. Its sometimes called the Miami or Indiana pouch. - Original Message - From: jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Tuesday, September 11, 2012 11:35:04 AM Subject: Re: [QUAD-L] 46 years post SCI What is the miami pouch? Meredith - Original Message - From: carolyndeand...@comcast.net To: daa...@aol.com Cc: quad...@gmail.com, gah17...@aol.com, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 9:24:16 AM Subject: Re: [QUAD-L] 46 years post SCI I'm 49 years post..may 5th will be 50 years omg..its hard to believe its been such a long time. I will be 68 next month, I was 18 when I was in a car accident. I have had many, many problems but I'm still hanging in. Like Lori who just lost her husband my husband is my care giver and hes 72 now..I hate to think about what would happen if he dies but I'm trying to be realistic and have some plans in place. My biggest problem right now is kidney and bladder stones and I have a Miami pouch due to bladder cancer..has anyone on the list had stones removed from a pouch? Carolyn - Original Message - From: daa...@aol.com To: quad...@gmail.com, gah17...@aol.com, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 3:26:11 AM Subject: Re: [QUAD-L] 46 years post SCI Sorry you are not feeling too young, I know how you feel. Dana congratulations Quadius on 17 years. God bless all of us as we struggle each year with our different problems with SCI. In a message dated 9/10/2012 8:22:18 P.M. Central Daylight Time, quad...@gmail.com writes: today I'm not feeling too young myself. However, I am only 17 years into this life of quadriplegia. Congratulations on making to 46. Q On Fri, Sep 7, 2012 at 6:23 PM, gah17...@aol.com wrote: 63 years old, feel 110 today. Glenn Henry
[QUAD-L] life
October 8, will be 32 years that I'd been a quad October 26 when I was born. I was completely blind after six surgeries in my eyes. I started seeing. When I was 11 years old. Not very good, but it was better than nothing. I am consider legally blind. Nobody said being a quad is going to be simple, yet this true that I have come a long way with God help I been blessed. And I will continue being less every day is a challenge of being a quad I know that I'm not going to be the first or the last quad. The way I see it. The life of a quad is almost like a boxer they knocked him down. He tried to get up and try to win the next round. Life Knox us down, and we try to get up the next day. And we keep on punching life. Some of us quads was very young and we miss a lot that we know that we never going to catch up what we miss a lot of of dreams went down the drain. Yes it's true, we got good days and bad days, but sometimes we don't know what to do, what to say what to think but sometimes we don't want to realize that we been very lucky. And we been blessed and a lot of ways for a sample a lot of children's are born with leukemia yes, we had a chance to walk to run the play but that baby, what chance he had in life. Like I said yes it's true we were young, and we've got all the way to be an adult, but the question is, but would that baby get to be an adult. Yes it's true, Jesus suffer more then we are suffering is nothing compared what we are going through
[QUAD-L] Hernia
Any of you guys have experience/knowledge of hiatal hernias? I seem to have all the symptoms, and it feels like my stomach is pushing into my throat. Food seems to get stuck just below rib cage where my belly bulge begins. It's pretty miserable. Sent from my iPad
Re: [QUAD-L] Hernia
Ive got a hernia as a result of surgery from a burst appendix. The lower right side of my stomach is bulged out. Had it fixed but its still not right. I have alot of pain, not sure which is from the hernia and which is from my syrinx. I will look up a hiatal hernia Ron c7 From: Larry Willis lwillis82...@msn.com To: quad-list@eskimo.com Sent: Wed, September 12, 2012 8:15:09 PM Subject: [QUAD-L] Hernia Any of you guys have experience/knowledge of hiatal hernias? I seem to have all the symptoms, and it feels like my stomach is pushing into my throat. Food seems to get stuck just below rib cage where my belly bulge begins. It's pretty miserable. Sent from my iPad
Re: [QUAD-L] Is this inappropriate touching?
You are not being weird - she is! My call is ... Totally inappropriate! Nan From: ~LittleQuad~ littleq...@yahoo.com To: Wheelchair wheelch...@aol.com; kkba...@yahoo.com; Quad-list post quad-list@eskimo.com Sent: Wednesday, September 12, 2012 1:36 PM Subject: Re: [QUAD-L] Is this inappropriate touching? Yes, everything W said! Except the crazy part!! Lq ~LittleQuad~ Sent from my BlackBerry -Original Message- From: wheelch...@aol.com Date: Wed, 12 Sep 2012 13:17:44 To: kkba...@yahoo.com; quad-list@eskimo.com; ericba...@gmail.com; lainieba...@yahoo.com; ms-qu...@yahoogroups.com Subject: Re: [QUAD-L] Is this inappropriate touching? You are crazy KK, but that is another issue (smiling) In the world of law, that action would be considered, assault. If the person touched you again after any sign of disapproval, those actions would be considered, assault and battery. This alone would lead to police intervention, a report, an arrest and money bond. The case would have to be heard by the court and a judgement. These actions would also lead to additional hearings, by the person's employment. These types of actions should not be tolerated by anyone, verbal or none verbal. Best Wishes -Original Message- From: KK kkba...@yahoo.com To: quad-list quad-list@eskimo.com; eric ericba...@gmail.com; Lainie Batte lainieba...@yahoo.com; MS Quads ms-qu...@yahoogroups.com Sent: Wed, Sep 12, 2012 9:21 am Subject: [QUAD-L] Is this inappropriate touching? I am having a tough time deciding if this is wrong or I am being crazy. I have Multiple Sclerosis. I am paralyzed from the chest down except for my right arm. No feeling at all. I also can not speak. This aide has been with me about 2 months, M-F 5 hours a day. Yesterday we went outside on the front porch she was talking to a neighbor. Suddenly she took my keys ran them across my feet. I did nothing. Didn't feel it but saw her movements. She smiled did it over over again. It was like she did not believe I could not feel it. Now I feel this was inappropriate but not sure what she expected to get out of her actions. It has made me feel uncomfortable dread her coming today. Maybe I am being weird. What do you think about it? KK
