Re: [QUAD-L] lyrica/scoilisos

2015-06-15 Thread Fragile
I've been on Lyrica for several years.  Started taking it to try and
relieve spinal cord injury related nerve pain.  It didn't help.  But,
it did help with nausea.  It's caused weight gain, dry mouth and
lethargic.  I've tried to stop taking it a few times, but the
withdrawal is pretty bad.

On 6/14/15, diannal...@aol.com diannal...@aol.com wrote:
 Has anyone tried Lyrica for SCI pain? It really helped my stiffness and
 tightness in my back/chest. Dealing with scoliosis now. It sure is getting
 hard to deal with. Constantly getting my position changed. Pain in my spine.
 Anyone else having this problem? (developed from 25 yrs in this chair)
 Dianna




Re: [QUAD-L] lyrica/scoilisos

2015-06-15 Thread diannal767
do you remember your dosage? i got up to 150mg 3xa day. i was having too many 
side effects, one being i was awake all night. i just went down to 150mg twice 
a day but i'm considering lowering even more. maybe 100mg twice a day. it's 
really helped me. i'm also in remission for cancer so i'm really not thinking 
about going off it completely. at this point, i'm looking for quality of life. 
(started lyrica 3 mos ago0
dianna


I was on lyrica for nerve pain right after my injury occurred. It worked well
for me, but I wanted to stop as many medications as possible. I remember lyrica
being one of the hardest meds to stop. It took a couple of tries. I reduced the
dose slowly. A few times I needed to increase the dose because the pain would
return. So I stayed at the higher dose for about a month, then reduced the dose
again. It took time, but eventually I stopped taking it and I haven't needed it
since then. 

Michelle 





-Original Message-
From: Michelle michelle.keph...@gmail.com
To: John S. alcibiat...@yahoo.com
Cc: Fragile swl...@gmail.com; diannal767 diannal...@aol.com; quad-list 
quad-list@eskimo.com
Sent: Mon, Jun 15, 2015 2:51 pm
Subject: Re: [QUAD-L] lyrica/scoilisos


I was on lyrica for nerve pain right after my injury occurred. It worked well
for me, but I wanted to stop as many medications as possible. I remember lyrica
being one of the hardest meds to stop. It took a couple of tries. I reduced the
dose slowly. A few times I needed to increase the dose because the pain would
return. So I stayed at the higher dose for about a month, then reduced the dose
again. It took time, but eventually I stopped taking it and I haven't needed it
since then. 

Michelle 



 On Jun 15, 2015, at 2:32 PM, John S.
alcibiat...@yahoo.com wrote:
 
 The doctor should tell you how to get off
Lyrica.  Cut your  dosage every 21 days until your off. After  another 21 days 
you're clean. Determination and self discipline are the keys. 
 Good Luck and
Best wishes, 
 John s.
 
 
  Original message 
 From:
Fragile swl...@gmail.com 
 Date: 06/15/2015 8:34 AM (GMT-05:00) 
 To:
diannal...@aol.com 
 Cc: quad-list@eskimo.com 
 Subject: Re: [QUAD-L]
lyrica/scoilisos 
 
 I've been on Lyrica for several years.  Started taking
it to try and
 relieve spinal cord injury related nerve pain.  It didn't help.
But,
 it did help with nausea.  It's caused weight gain, dry mouth and

lethargic.  I've tried to stop taking it a few times, but the
 withdrawal is
pretty bad.
 
 On 6/14/15, diannal...@aol.com diannal...@aol.com wrote:

 Has anyone tried Lyrica for SCI pain? It really helped my stiffness and
 
tightness in my back/chest. Dealing with scoliosis now. It sure is getting
 
hard to deal with. Constantly getting my position changed. Pain in my spine.

 Anyone else having this problem? (developed from 25 yrs in this chair)
 
Dianna
 
 

 


Re: [QUAD-L] lyrica/scoilisos

2015-06-15 Thread Michelle
I was on lyrica for nerve pain right after my injury occurred. It worked well 
for me, but I wanted to stop as many medications as possible. I remember lyrica 
being one of the hardest meds to stop. It took a couple of tries. I reduced the 
dose slowly. A few times I needed to increase the dose because the pain would 
return. So I stayed at the higher dose for about a month, then reduced the dose 
again. It took time, but eventually I stopped taking it and I haven't needed it 
since then. 

Michelle 



 On Jun 15, 2015, at 2:32 PM, John S. alcibiat...@yahoo.com wrote:
 
 The doctor should tell you how to get off Lyrica.  Cut your  dosage every 21 
 days until your off. After  another 21 days  you're clean. Determination and 
 self discipline are the keys. 
 Good Luck and Best wishes, 
 John s.
 
 
  Original message 
 From: Fragile swl...@gmail.com 
 Date: 06/15/2015 8:34 AM (GMT-05:00) 
 To: diannal...@aol.com 
 Cc: quad-list@eskimo.com 
 Subject: Re: [QUAD-L] lyrica/scoilisos 
 
 I've been on Lyrica for several years.  Started taking it to try and
 relieve spinal cord injury related nerve pain.  It didn't help.  But,
 it did help with nausea.  It's caused weight gain, dry mouth and
 lethargic.  I've tried to stop taking it a few times, but the
 withdrawal is pretty bad.
 
 On 6/14/15, diannal...@aol.com diannal...@aol.com wrote:
  Has anyone tried Lyrica for SCI pain? It really helped my stiffness and
  tightness in my back/chest. Dealing with scoliosis now. It sure is getting
  hard to deal with. Constantly getting my position changed. Pain in my spine.
  Anyone else having this problem? (developed from 25 yrs in this chair)
  Dianna
 
 



Re: [QUAD-L] lyrica/scoilisos

2015-06-15 Thread John S.
The doctor should tell you how to get off Lyrica.  Cut your  dosage every 21 
days until your off. After  another 21 days  you're clean. Determination and 
self discipline are the keys. Good Luck and Best wishes, John s.

 Original message 
From: Fragile swl...@gmail.com 
Date: 06/15/2015  8:34 AM  (GMT-05:00) 
To: diannal...@aol.com 
Cc: quad-list@eskimo.com 
Subject: Re: [QUAD-L] lyrica/scoilisos 

I've been on Lyrica for several years.  Started taking it to try and
relieve spinal cord injury related nerve pain.  It didn't help.  But,
it did help with nausea.  It's caused weight gain, dry mouth and
lethargic.  I've tried to stop taking it a few times, but the
withdrawal is pretty bad.

On 6/14/15, diannal...@aol.com diannal...@aol.com wrote:
 Has anyone tried Lyrica for SCI pain? It really helped my stiffness and
 tightness in my back/chest. Dealing with scoliosis now. It sure is getting
 hard to deal with. Constantly getting my position changed. Pain in my spine.
 Anyone else having this problem? (developed from 25 yrs in this chair)
 Dianna




[QUAD-L] lyrica/scoilisos

2015-06-14 Thread diannal767
Has anyone tried Lyrica for SCI pain? It really helped my stiffness and 
tightness in my back/chest. Dealing with scoliosis now. It sure is getting hard 
to deal with. Constantly getting my position changed. Pain in my spine. Anyone 
else having this problem? (developed from 25 yrs in this chair)
Dianna


Re: [QUAD-L] Lyrica

2014-08-02 Thread Naomi Hudson
I think taking Lyrica for nine years (800 mg per day) it has helped me 
tremendously and I don't have any side effects. Originally, they tried 
Neurontin , but I was unable to function. I ran my wheelchair into the walls 
and other people.


Have a Blessed Day, Naomi



-Original Message-
From: jume jume9...@comcast.net
To: quad-list quad-list@eskimo.com
Sent: Fri, Aug 1, 2014 4:48 pm
Subject: [QUAD-L] Lyrica



Does anyone here take Lyrica for pain? My Dr. gave me a sample but I'm afraid 
of all the side effects. Anyone know about this med?



Meredith





[QUAD-L] Lyrica

2014-08-02 Thread jume9999
I meant does the Lyrica make you tired? 

- Original Message -

From: jume9...@comcast.net 
To: quad-list quad-list@eskimo.com 
Sent: Saturday, August 2, 2014 5:13:22 PM 
Subject: Re: [QUAD-L] Hey Ron 

Does it make you tired? 

Meredith 

- Original Message -

From: Danny Espinoza da...@immortaldesigns.co 
To: RONALD L PRACHT r.pra...@sbcglobal.net, quad-list 
quad-list@eskimo.com 
Sent: Saturday, August 2, 2014 5:04:54 PM 
Subject: RE: [QUAD-L] Hey Ron 

Whats the ripped fuel do to your blood pressure? I'm only curious because I've 
been trying not to take anything that raises mine for fear that I'll have an AD 
episode and that things that raise my BP will get me closer to something 
horrible happening. 

-Danny 



 Original Message  
Subject: Re: [QUAD-L] Hey Ron 
From: RONALD L PRACHT  r.pra...@sbcglobal.net  
Date: Sat, August 02, 2014 12:58 pm 
To:  quad-list@eskimo.com  

Well, when I first was injured and came home I was weak as a kitten and needed 
something to give me the energy to build myself up. Each day I would strap my 
belly bag on with my Walkman and plenty of water and hit the streets to wheel 
as far as I could. At first I couldn't make it a quarter mile and if I fell 
over I couldn't get back up. I went to GNC and started buying ripped fuel. I 
would take 2 capsules and hit the streets and within a few months I was doing 
3+ miles a day with energy to spare. Not only did I increase my stamina, but I 
was able to maneuver my chair better and get myself up and down. This allowed 
me to be able to start swimming at the YMCA, which led me to be able to drive a 
fullsize Ford Van with standard paraplegic hand controls. I kept taking it b4 I 
entered the pool or any workout. I was able to bench 150 on an Olympic weight 
bench with quad hands and use the sci-fit bike for an hour after swimming an 
hour in the pool. What really messed me up is after all my working out, 
lifting, wheeling and biking I developed a spinal syrinx then my appendix 
burst, then got a hernia. I believe that all those issues can be linked to my 
vigorous workouts. At the same time though when I went down in the hospital, I 
was able to come back because of the good shape I was in. I still take one 
ripped fuel capsule w/ephedra b4 a I handcycle or wheel. You can take it 
without working out, but it makes you a little jumpy sometimes. you have to buy 
it from a special website called neutri I believe, but I will get you the 
actual website. some people are scared of ephedra, but it is like anything 
else..if you take six capsules at once you will have a problem. They have 
another pill called a yellow devil which is more ephedra, but I wouldn't 
suggest that. 

ron 


On Saturday, August 2, 2014 11:58 AM, Larry Willis  lwillis82...@gmail.com  
wrote: 


Hey Ron, tell me about the ephedra for weight loss. I have developed a belly 
that just makes me miserable. It hurts, is in the way, and presses on my 
bladder causing pain and accidents. The gut has got to go. 

Sent from my iPad 








RE: [QUAD-L] Lyrica

2014-08-02 Thread Danny Espinoza
I'm not sure who you're asking Meredith but it barely makes me tired-Danny


 Original Message 
Subject: [QUAD-L] Lyrica
From: jume9...@comcast.net
Date: Sat, August 02, 2014 5:14 pm
To: quad-list quad-list@eskimo.com

I meant does the Lyrica make you tired?From: jume9...@comcast.netTo: "quad-list" quad-list@eskimo.comSent: Saturday, August 2, 2014 5:13:22 PMSubject: Re: [QUAD-L] Hey RonDoes it make you tired?MeredithFrom: "Danny Espinoza" da...@immortaldesigns.coTo: "RONALD L PRACHT" r.pra...@sbcglobal.net, "quad-list" quad-list@eskimo.comSent: Saturday, August 2, 2014 5:04:54 PMSubject: RE: [QUAD-L] Hey RonWhats the ripped fuel do to your blood pressure? I'm only curious because I've been trying not to take anything that raises mine for fear that I'll have an AD episode and that things that raise my BP will get me closer to something horrible happening.-Danny Original Message  Subject: Re: [QUAD-L] Hey Ron From: "RONALD L PRACHT" r.pra...@sbcglobal.net Date: Sat, August 02, 2014 12:58 pm To: quad-list@eskimo.com Well, when I first was injured and came home I was weak as a kitten and needed something to give me the energy to build myself up. Each day I would strap my belly bag on with my Walkman and plenty of water and hit the streets to wheel as far as I could. At first I couldn't make it a quarter mile and if I fell over I couldn't get back up. I went to GNC and started buying ripped fuel. I would take 2 capsules and hit the streets and within a few months I was doing 3+ miles a day with energy to spare. Not only did I increase my stamina, but I was able to maneuver my chair better and get myself up and down. This allowed me to be able to start swimming at the YMCA, which led me to be able to drive a fullsize Ford Van with standard paraplegic hand controls. I kept taking it b4 I entered the pool or any workout. I was able to bench 150 on an Olympic weight bench with quad hands and use the sci-fit bike for an hour after swimming an hour in the pool. What really messed me up is after all my working out, lifting, wheeling and biking I developed a spinal syrinx then my appendix burst, then got a hernia. I believe that all those issues can be linked to my vigorous workouts. At the same time though when I went down in the hospital, I was able to come back because of the good shape I was in. I still take one ripped fuel capsule w/ephedra b4 a I handcycle or wheel. You can take it without working out, but it makes you a little jumpy sometimes. you have to buy it from a special website called neutri I believe, but I will get you the actual website. some people are scared of ephedra, but it is like anything else..if you take six capsules at once you will have a problem. They have another pill called a yellow devil which is more ephedra, but I wouldn't suggest that.ronOn Saturday, August 2, 2014 11:58 AM, Larry Willis lwillis82...@gmail.com wrote:Hey Ron, tell me about the ephedra for weight loss. I have developed a belly that just makes me miserable. It hurts, is in the way, and presses on my bladder causing pain and accidents. The gut has got to go.Sent from my iPad





[QUAD-L] Lyrica

2014-08-01 Thread jume9999
Does anyone here take Lyrica for pain? My Dr. gave me a sample but I'm afraid 
of all the side effects. Anyone know about this med? 

Meredith 


RE: [QUAD-L] Lyrica

2014-08-01 Thread Danny
I’ve taken it for eight years and can say it works well.

-Danny

 

From: jume9...@comcast.net [mailto:jume9...@comcast.net] 
Sent: Friday, August 01, 2014 1:48 PM
To: quad-list
Subject: [QUAD-L] Lyrica

 

Does anyone here take Lyrica for pain? My Dr. gave me a sample but I'm afraid 
of all the side effects. Anyone know about this med?

 

Meredith



[QUAD-L] Lyrica + Narcotics

2009-09-10 Thread John S.
From the school of hard knocks:
I have been trying to ween back my narcotics since starting Lyrica. I have been 
taking 6 to 8 5mg vicodin for over 4 years. I have been using 4 10mg valiums 
for almost 33 years. Oxycontin for 3 years, 20mg 2 times a day. The Lyrica that 
I began using made me feel I could reduce my other pills. WRONG! 
Obviously, withdrawal from these drugs is more complicated than I had even 
dreamed. If any of you are in this situation, please talk to your doctor before 
trying at home detox. If it isn't done right it can be as dangerous to a quad 
as any other cause of AD. Withdrawal from these drugs can cause death to a 
normal person. It will reverse the positive effects of the lyrica and screw you 
up.
When you take the lyrica just increase the mirilax or poly-glycolax.
I have returned to my normal drug schedual and I'm doing well. I wanted to 
mention this to those of you with pain issues that are also on narcotics. 

best wishes to all,
john



  

[QUAD-L] LYRICA MEDICATION

2008-07-09 Thread NICHOLE ROHLING
ARE ANY OF YOU ON OR EVER BEEN ON LYRICA MEDICATION? MY BROTHER WAS GIVEN A RX 
FOR IT AND LOOKING FOR ANY ADDITIONAL INFO ON IT. BECAUSE IT IS FOR NEUROPATHY 
I THOUGHT SOMEONE HERE MIGHT KNOW ABOUT HOW LONG IT TAKES TO TAKE EFFECT.
 
NICKI


  

FW: [QUAD-L] LYRICA MEDICATION

2008-07-09 Thread Merrill
I am surely no help but as you know, minus the personal experience, that
Google is always a good step when learning about drugs.

Merrill

 

  _  

From: NICHOLE ROHLING [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, July 09, 2008 4:03 PM
To: QUADLIST
Subject: [QUAD-L] LYRICA MEDICATION

 


ARE ANY OF YOU ON OR EVER BEEN ON LYRICA MEDICATION? MY BROTHER WAS GIVEN A
RX FOR IT AND LOOKING FOR ANY ADDITIONAL INFO ON IT. BECAUSE IT IS FOR
NEUROPATHY I THOUGHT SOMEONE HERE MIGHT KNOW ABOUT HOW LONG IT TAKES TO TAKE
EFFECT.

 

NICKI

 



Fwd: [QUAD-L] Lyrica

2008-02-06 Thread Alboyztjp
Iloved it for a whole week until I noticed that my legs were swelling larger 
and larger everyday.  Thats an allergic reaction alot of people have if they 
have a reaction.  I hope that doesn't happen to you just watch for it.

Zeta   /HTML
---BeginMessage---

Hi everyone just curious if anyone on the list has?tried Lyrica, my doctor 
just?prescribed this in place of the Gabapentin I was taking in the same dosage 
200mg three times a day seems a little better for my pain anyone else try this 
yet?

Thanks! Ray C-5 C-6 GSW?coming up on 7yrs post St Patricts?Day :-)?


More new features than ever.  Check out the new AOL Mail ! - 
http://webmail.aol.com
---End Message---


RE: [QUAD-L] Lyrica

2008-02-01 Thread Debbie Hamilton
I was on 150 mg of alert that twice a day.  My doctor put me on it for nerve 
pain but also to help with my spasms.  I just don't like taking a lot of 
medicine and it made me to sleepy so I took myself off of it.  I take 
hydrocodone 7.5/500 mg twice a day for pain.  It works great for me and doesn't 
make me sleepy.  Lyrica has become more popular and is working for a lot of 
people.  I've been a nurse for 18 years but haven't been practicing since my 
accident in 2005.

Debbie C4, incomplete April 11, 2005

Danny Espinoza [EMAIL PROTECTED] wrote:  v\:* {   BEHAVIOR: 
url(#default#VML)  }  o\:* {   BEHAVIOR: url(#default#VML)  }  w\:* {   
BEHAVIOR: url(#default#VML)  }  .shape {   BEHAVIOR: url(#default#VML)  }  
@font-face {   font-family: Cambria Math;  }  @font-face {   font-family: 
Calibri;  }  @font-face {   font-family: Tahoma;  }  @page Section1 {size: 
8.5in 11.0in; margin: 1.0in 1.0in 1.0in 1.0in; }  P.MsoNormal {   FONT-SIZE: 
12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman,serif  }  
LI.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New 
Roman,serif  }  DIV.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; 
FONT-FAMILY: Times New Roman,serif  }  A:link {   COLOR: blue; 
TEXT-DECORATION: underline; mso-style-priority: 99  }  SPAN.MsoHyperlink {   
COLOR: blue; TEXT-DECORATION: underline; mso-style-priority: 99  }  A:visited { 
  COLOR: purple; TEXT-DECORATION: underline; mso-style-priority: 99  } 
 SPAN.MsoHyperlinkFollowed {   COLOR: purple; TEXT-DECORATION: underline; 
mso-style-priority: 99  }  SPAN.EmailStyle17 {   COLOR: #1f497d; FONT-FAMILY: 
Calibri,sans-serif; mso-style-type: personal-reply  }  .MsoChpDefault {   
mso-style-type: export-only  }  DIV.Section1 {   page: Section1  }Im on 
it, it works good for me! Less nerve pain without the effects of nerontin or 
however its spelt
   
   
   
  Danny Espinoza 24/m/California
  Occupation before accident - Network engineer / SR. Network security engineer
  Broke c2,c6,c7 and doner  bone at c2
  TBI from blood going to central cortex from spinal cord
  off a vent woohoo however only one diaphragm works right now due to
  asymmetric SCI
   
  http://secureminds.us/
   
   
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 30, 2008 4:50 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Lyrica

   
Hi everyone just curious if anyone on the list has tried Lyrica, my doctor 
just prescribed this in place of the Gabapentin I was taking in the same dosage 
200mg three times a day seems a little better for my pain anyone else try this 
yet?

Thanks! Ray C-5 C-6 GSW coming up on 7yrs post St Patricts Day :-) 

  
-
  
  More new features than ever. Check out the new AOL Mail!





Debbie
C4 incomplete/April 2005
   
-
Be a better friend, newshound, and know-it-all with Yahoo! Mobile.  Try it now.

[QUAD-L] Lyrica

2008-01-30 Thread radnbadatpj

Hi everyone just curious if anyone on the list has?tried Lyrica, my doctor 
just?prescribed this in place of the Gabapentin I was taking in the same dosage 
200mg three times a day seems a little better for my pain anyone else try this 
yet?

Thanks! Ray C-5 C-6 GSW?coming up on 7yrs post St Patricts?Day :-)?


More new features than ever.  Check out the new AOL Mail ! - 
http://webmail.aol.com


RE: [QUAD-L] Lyrica

2008-01-30 Thread Danny Espinoza
Im on it, it works good for me! Less nerve pain without the effects of
nerontin or however its spelt

 

 

 

Danny Espinoza 24/m/California

Occupation before accident - Network engineer / SR. Network security
engineer

Broke c2,c6,c7 and doner  bone at c2

TBI from blood going to central cortex from spinal cord

off a vent woohoo however only one diaphragm works right now due to

asymmetric SCI

 

http://secureminds.us/

 

 

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 30, 2008 4:50 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Lyrica

 

Hi everyone just curious if anyone on the list has tried Lyrica, my doctor
just prescribed this in place of the Gabapentin I was taking in the same
dosage 200mg three times a day seems a little better for my pain anyone else
try this yet?

Thanks! Ray C-5 C-6 GSW coming up on 7yrs post St Patricts Day :-) 

  _  

More new features than ever. Check out the new AOL Mail
http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aol/en-us/text.htm?ncid=ao
lcmp000503 !



Re: [QUAD-L] Lyrica for nerve pain, it's helping me

2007-01-15 Thread LadyOnWheels725
I am taking 600mg of Lyrica twice  daily.  I have been on this dose about 3 
months.  They are raising my  baclofen also.  My pain is better  as far as deep 
pain,  but I am  much more touch sensitive.\
Kathy


[QUAD-L] Lyrica for nerve pain, it's helping me

2007-01-14 Thread Bobbie299
Anybody else taking Lyrica for pain? It's helping me out a lot.
   Bobbie


Re: [QUAD-L] Lyrica for nerve pain, it's helping me

2007-01-14 Thread Dan Tessiatore
What kind of pain is it good for?  Dan

[EMAIL PROTECTED] wrote:  Anybody else taking Lyrica for pain? It's helping 
me out a lot.
 Bobbie



Re: [QUAD-L] LYRICA

2006-10-27 Thread Chet Smith
Responding to Remarks about having a Big Living Communities  strickly for the Disabled People only with a SCI. I do believe if they can  provide Prisons for the People that have killed, robbed, stoled, and done  other terrible things, The States aughta build places for the less fortunate  People that have had either accidents or God for bid born with a desease  that needa Place to Live out a Productive Life if possible at all. Give also  People that have lost their jobs because of closing down of a Plant of  some kind or place. All those that are doing well with Family is all good  and well it's just Great. But can People once placed get along with all  who live their where it can work like we expect
 ittoo!! Well that is my idea  of a place where people with SCI could be protected as well as taken  care of.Best Regards, Chet (a.k.a. Cquad7)  "B. Kimberlin (Quadius)" [EMAIL PROTECTED] wrote:  I really don't understand why they would think it discriminates, considering there are clinics and centers which deal exclusively with SCI.Quadius[EMAIL PROTECTED] wrote: Economics! Some quads have enormous settlements and are not
 particularly concerned with living problems that confront quads that rely on medicaid. I would like to see an assistive living center for quads. I've seen attempts to build them but the ACLU claimed it discriminated against people that suffered from other disabilities. Diseases like drug addiction and alcoholism, mental retardation, all of which when combined into that structure altered it into a handicapped slum where no aide wanted to work. If you can find one that doesnt use public money you can do it.johnIn a message dated 10/24/2006 4:40:30 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:Maybe we should all get together and form our own community and have our own laws. If the Amish and the polygamist can do it,,why can't a quad group do it ? It would be different.  KathyStay in the know. Pulse on the new Yahoo.com. Check it out.  

Low, Low, Low Rates! Check out Yahoo! Messenger's cheap  PC-to-Phone call rates.


Re: [QUAD-L] LYRICA

2006-10-25 Thread B. Kimberlin \(Quadius\)
I really don't understand why they would think it discriminates, considering there are clinics and centers which deal exclusively with SCI.Quadius[EMAIL PROTECTED] wrote:Economics! Some quads have enormous settlements and are not particularly concerned with living problems that confront quads that rely on medicaid. I would like to see an assistive living center for quads. I've seen attempts to build them but the ACLU claimed it discriminated against people that suffered from other disabilities. Diseases like drug addiction and alcoholism, mental retardation, all of which when combined into that structure altered it into a handicapped slum where no aide wanted to work. If you can find one that doesnt use public money you can do it.
johnIn a message dated 10/24/2006 4:40:30 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:Maybe we should all get together and form our own community and have our own laws. If the Amish and the polygamist can do it,,why can't a quad group do it ? It would be different.  Kathy   
		Stay in the know. Pulse on the new Yahoo.com.  Check it out. 


Re: [QUAD-L] LYRICA

2006-10-24 Thread B. Kimberlin \(Quadius\)
It is absolutely ludicrous these laws are still on the books. If they would repeal these laws I could eliminate 90% of my medication. It is absolutely wonderful at relieving spasms, or so I am told. The nerve pain in my neck would probably be diminished also. The only downside is I have no earthly idea how to obtain any and I am a little apprehensive about diminishing my already limited lung capacity, given that I spent four months on the ventilator.Quadius"David K. Kelmer" [EMAIL PROTECTED] wrote:Hi O'C,The State laws were passed before the Federal ones, but it was in the 1900's that the first laws appeared. The three main reasons brought about State laws against marijuana are immigration from Mexico, the substitution concept, and
 religion. http://www.forces.org/articles/files/whiteb/white04.htmThe first criminal law at the Federal level was in 1914, and comes down to the biggest reason marijuana is still illegal today, money! http://www.forces.org/articles/files/whiteb/white03.htmWith Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA[EMAIL PROTECTED] wrote:  I heard thatin the 1800s, they decided to outlaw something and pot was considered to be the black man's drug of choice so they outlawed that instead of alcohol, the white man's drug of choice. Then in the early 1900's of course they tried outlawing alcohol, now they really need to wise up
 and legalize pot as well - (prostitution too) regulate and tax the crap out of them like they do now with tobacco and alcohol. We waste such great resources chasing these two 'evils' it is just unbelievable.  O'C  ]In a message dated 10/23/2006 11:31:31 A.M. US Mountain Standard Tim, [EMAIL PROTECTED] writes:  I have a cousin that's a cop, another is a deputy Sherriff and an uncle that is a captain of the guard for the Sheriff's dept' where they handle prisoners all day. In this part of the country pot laws are looked at as just plain stupid ways to fill jail cells. They could go set up a watch on a nightclub where extacy and coke are being sold in bulk to teens or they could bust the 40
 yldguy sittin at home, watching cartoons, eating a twinkie. Pot is no longer a big money crime drug. So many people grow their own and theres virtually no violent crime attached to it. It is Kentucky's #1 cash crop. The reduculous part is when I see them smuggling it in from mexiico when everyone knows, Canada has the good stuff. The best stuff comes from basements and is grown using hydroponics. In any case, I don't buy it or sell it. An ounce lasts me about 6 months.   If they choose to arrest me for it I'll cost them about $6500a day to keep in custody at a local hospital and I haven't got the money to pay a fine.   The only reason pot is illegal is because a study done in the 1930's stated that marijuana made blackl and hispanic men want to rape white women. Thiswas also a time when it was illegal to
 marry between races in many states.  Just think of all the space we would have in jails and prisons if we dumped that one stupid law and taxed the stuff. It isn't even addictive. The US government has not recognized any medical studies that show it has a medicinal value and has misspent billions of dollars eradicating a weed thats native to the western hemisphere while subsidizing tobacco and alcohol which are both addictive and poisonous.  Teach the dog a practical job and have him sniff out moneyjohnIn a message dated 10/23/2006 12:21:41 PM Eastern Daylight Time, LadyOnWheels725 writes:Hi John,  My nephew is a chief investigator with the police department and he has a drug dog. When you get a dog like this they live with you and become part ofyour family.Our house is where all the family comes to eat and congregate. We have them over ever week or 2 to eat and watch a game or race and the dog comes along. When Jimmy needs to go places without the dog he will have a   " play date " at our house. We have often said that the dog could bust us for all the meds we keep in our house. I bet he would let Jimmy know if I tried to hide some " pot " in this house. At the University of Mississippi ( Ole Miss ) they do grow pot there for the school of pharmacy.  Kathy   Dave daveoconnell.com C3 
		Get your email and more, right on the  new Yahoo.com 


Re: [QUAD-L] LYRICA

2006-10-24 Thread LadyOnWheels725



Maybe we should all get together and form 
our own community and have our own laws. If the Amish and the polygamist 
can do it,,why can't a quad group do it ? It would be 
different.
Kathy


Re: [QUAD-L] LYRICA

2006-10-24 Thread DeLiMiTeD4



Economics! Some quads have enormous settlements and are not particularly concerned with living problems that confront quads that rely on medicaid. I would like to see an assistive living center for quads. I've seen attempts to build them but the ACLU claimed it discriminated against people that suffered from other disabilities. Diseases like drug addiction and alcoholism, mental retardation, all of which when combined into that structure altered it into a handicapped slum where no aide wanted to work. If you can find one that doesnt use public money you can do it.

john

In a message dated 10/24/2006 4:40:30 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

Maybe we should all get together and form our own community and have our own laws. If the Amish and the polygamist can do it,,why can't a quad group do it ? It would be different.
Kathy



Re: [QUAD-L] LYRICA

2006-10-23 Thread LadyOnWheels725



Hi John,
My nephew is a chief investigator with 
the police department and he has a drug dog. When you get a dog like this 
they live with you and become part ofyour family.Our house is where all 
the family comes to eat and congregate. We have them over ever week or 2 
to eat and watch a game or race and the dog comes along. When Jimmy needs 
to go places without the dog he will have a 
" play date " at our house. 
We have often said that the dog could bust us for all the meds we keep in our 
house. I bet he would let Jimmy know if I tried to hide some " pot " 
in this house. At the University of Mississippi ( Ole Miss ) they do grow 
pot there for the school of pharmacy.
Kathy 



Re: [QUAD-L] LYRICA

2006-10-23 Thread DeLiMiTeD4



I have a cousin that's a cop, another is a deputy Sherriff and an uncle that is a captain of the guard for the Sheriff's dept' where they handle prisoners all day. In this part of the country pot laws are looked at as just plain stupid ways to fill jail cells. They could go set up a watch on a nightclub where extacy and coke are being sold in bulk to teens or they could bust the 40 yldguy sittin at home, watching cartoons, eating a twinkie. Pot is no longer a big money crime drug. So many people grow their own and theres virtually no violent crime attached to it. It is Kentucky's #1 cash crop. The reduculous part is when I see them smuggling it in from mexiico when everyone knows, Canada has the good stuff. The best stuff comes from basements and is grown using hydroponics. In any case, I don't buy it or sell it. An ounce lasts me about 6 months. 
If they choose to arrest me for it I'll cost them about $6500a day to keep in custody at a local hospital and I haven't got the money to pay a fine. 
The only reason pot is illegal is because a study done in the 1930's stated that marijuana made blackl and hispanic men want to rape white women. Thiswas also a time when it was illegal to marry between races in many states.
Just think of all the space we would have in jails and prisons if we dumped that one stupid law and taxed the stuff. It isn't even addictive. The US government has not recognized any medical studies that show it has a medicinal value and has misspent billions of dollars eradicating a weed thats native to the western hemisphere while subsidizing tobacco and alcohol which are both addictive and poisonous.
Teach the dog a practical job and have him sniff out money

john

In a message dated 10/23/2006 12:21:41 PM Eastern Daylight Time, LadyOnWheels725 writes:

Hi John,
My nephew is a chief investigator with the police department and he has a drug dog. When you get a dog like this they live with you and become part ofyour family.Our house is where all the family comes to eat and congregate. We have them over ever week or 2 to eat and watch a game or race and the dog comes along. When Jimmy needs to go places without the dog he will have a 
" play date " at our house. We have often said that the dog could bust us for all the meds we keep in our house. I bet he would let Jimmy know if I tried to hide some " pot " in this house. At the University of Mississippi ( Ole Miss ) they do grow pot there for the school of pharmacy.
Kathy 



Re: [QUAD-L] LYRICA

2006-10-23 Thread Oconnelldb





I heard thatin the 1800s, they decided to outlaw something and pot 
was considered to be the black man's drug of choice so they outlawed that 
instead of alcohol, the white man's drug of choice. Then in the early 
1900's of course they tried outlawing alcohol, now they really need to wise up 
and legalize pot as well - (prostitution too) regulate and tax the crap out of 
them like they do now with tobacco and alcohol. We waste such great 
resources chasing these two 'evils' it is just unbelievable.
O'C


]In a message dated 10/23/2006 11:31:31 A.M. US Mountain Standard Tim, 
[EMAIL PROTECTED] writes:

  
  I have a cousin that's a cop, another 
  is a deputy Sherriff and an uncle that is a captain of the guard for the 
  Sheriff's dept' where they handle prisoners all day. In this part of the 
  country pot laws are looked at as just plain stupid ways to fill jail cells. 
  They could go set up a watch on a nightclub where extacy and coke are being 
  sold in bulk to teens or they could bust the 40 yldguy sittin at home, 
  watching cartoons, eating a twinkie. Pot is no longer a big money crime drug. 
  So many people grow their own and theres virtually no violent crime attached 
  to it. It is Kentucky's #1 cash crop. The reduculous part is when I see them 
  smuggling it in from mexiico when everyone knows, Canada has the good stuff. 
  The best stuff comes from basements and is grown using hydroponics. In any 
  case, I don't buy it or sell it. An ounce lasts me about 6 months. 
  
  If they choose to arrest me for it 
  I'll cost them about $6500a 
  day to keep in custody at a local hospital and I haven't got the money to pay 
  a fine. 
  The only reason pot is illegal is 
  because a study done in the 1930's stated that marijuana made blackl and 
  hispanic men want to rape white women. Thiswas also a time when it was 
  illegal to marry between races in many states.
  Just think of all the space we would 
  have in jails and prisons if we dumped that one stupid law and taxed the 
  stuff. It isn't even addictive. The US government has not recognized any 
  medical studies that show it has a medicinal value and has misspent billions 
  of dollars eradicating a weed thats native to the western hemisphere while 
  subsidizing tobacco and alcohol which are both addictive and 
  poisonous.
  Teach the dog a practical job and 
  have him sniff out money
  
  john
  
  In a message dated 10/23/2006 12:21:41 PM Eastern Daylight Time, 
  LadyOnWheels725 writes:
  
Hi John,
My nephew is a chief investigator 
with the police department and he has a drug dog. When you get a dog 
like this they live with you and become part ofyour family.Our house 
is where all the family comes to eat and congregate. We have them over 
ever week or 2 to eat and watch a game or race and the dog comes 
along. When Jimmy needs to go places without the dog he will have a 

" play date " at our 
house. We have often said that the dog could bust us for all the meds 
we keep in our house. I bet he would let Jimmy know if I tried 
to hide some " pot " in this house. At the University of Mississippi ( 
Ole Miss ) they do grow pot there for the school of 
pharmacy.
Kathy 



Dave 
daveoconnell.com 
C3


Re: [QUAD-L] LYRICA

2006-10-23 Thread David K. Kelmer
Hi Diane,And I've found that parts of my body that I hurt post SCI aches a lot more as time passes. Age puts a strain on the body of someone with a SCI.With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  [EMAIL PROTECTED] wrote:  In a message
 dated 10/21/2006 4:41:31 PM Eastern Standard Time, [EMAIL PROTECTED] writes:   Anyway I'm just curious to know if most of your pain levels increased -- got better -- or remained about the same ??? Dan  Hi Dan,  As for me they got worse,,,after the 1st year.  Diane  

Re: [QUAD-L] LYRICA

2006-10-23 Thread David K. Kelmer
Hi O'C,The State laws were passed before the Federal ones, but it was in the 1900's that the first laws appeared. The three main reasons brought about State laws against marijuana are immigration from Mexico, the substitution concept, and religion. http://www.forces.org/articles/files/whiteb/white04.htmThe first criminal law at the Federal level was in 1914, and comes down to the biggest reason marijuana is still illegal today, money! http://www.forces.org/articles/files/whiteb/white03.htm 
   With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA[EMAIL PROTECTED] wrote:  I
 heard thatin the 1800s, they decided to outlaw something and pot was considered to be the black man's drug of choice so they outlawed that instead of alcohol, the white man's drug of choice. Then in the early 1900's of course they tried outlawing alcohol, now they really need to wise up and legalize pot as well - (prostitution too) regulate and tax the crap out of them like they do now with tobacco and alcohol. We waste such great resources chasing these two 'evils' it is just unbelievable.  O'C  ]In a message dated 10/23/2006 11:31:31 A.M. US Mountain Standard Tim, [EMAIL PROTECTED] writes:  I have a cousin that's a cop, another is a deputy Sherriff and an uncle that is a
 captain of the guard for the Sheriff's dept' where they handle prisoners all day. In this part of the country pot laws are looked at as just plain stupid ways to fill jail cells. They could go set up a watch on a nightclub where extacy and coke are being sold in bulk to teens or they could bust the 40 yldguy sittin at home, watching cartoons, eating a twinkie. Pot is no longer a big money crime drug. So many people grow their own and theres virtually no violent crime attached to it. It is Kentucky's #1 cash crop. The reduculous part is when I see them smuggling it in from mexiico when everyone knows, Canada has the good stuff. The best stuff comes from basements and is grown using hydroponics. In any case, I don't buy it or sell it. An ounce lasts me about 6 months.   If they choose to arrest me for it I'll cost them about $6500a day to keep in custody at a local
 hospital and I haven't got the money to pay a fine.   The only reason pot is illegal is because a study done in the 1930's stated that marijuana made blackl and hispanic men want to rape white women. Thiswas also a time when it was illegal to marry between races in many states.  Just think of all the space we would have in jails and prisons if we dumped that one stupid law and taxed the stuff. It isn't even addictive. The US government has not recognized any medical studies that show it has a medicinal value and has misspent billions of dollars eradicating a weed thats native to the western hemisphere while subsidizing tobacco and alcohol which are both addictive and poisonous.  Teach the dog a practical job and have him sniff out moneyjohnIn a message dated 10/23/2006 12:21:41 PM Eastern Daylight Time, LadyOnWheels725 writes:Hi John,  My nephew is a chief investigator with the police department and he has a drug dog. When you get a dog like this they live with you and become part ofyour family.Our house is where all the family comes to eat and congregate. We have them over ever week or 2 to eat and watch a game or race and the dog comes along. When Jimmy needs to go places without the dog he will have a   " play date " at our house. We have often
 said that the dog could bust us for all the meds we keep in our house. I bet he would let Jimmy know if I tried to hide some " pot " in this house. At the University of Mississippi ( Ole Miss ) they do grow pot there for the school of pharmacy.  Kathy   Dave daveoconnell.com C3

Re: [QUAD-L] LYRICA

2006-10-23 Thread wheelchair




Drug dogs are rewarded with playtime. When they find, they 
play. If they don't find... they don't play. Chasing the ball is one 
game to consider.
W


In a message dated 10/23/2006 11:22:36 A.M. Central Daylight Time, 
[EMAIL PROTECTED] writes:

  We have often said that the dog 
  could bust us for all the meds we keep in our house. I bet he 
  would let Jimmy know if I tried to hide some " pot " in this house. At 
  the University of Mississippi ( Ole Miss ) they do grow pot there for the 
  school of pharmacy.
  Kathy 
  




Re: [QUAD-L] LYRICA

2006-10-23 Thread DeLiMiTeD4



It's usually called a kong. Its a chew toy the dog associates with play and affection with is his reward for performing tasks. Amazingly enough, service dogs for the blind rarely rely on such toys. The service dogs are so much smarter than drug or bomb dogs that they are often capable of getting their own food and water. 
I'm not putting drug dogs down because they do a fabulous job, and the bomb sniffers have saved thousands of lives. I'm sure some are probably as smart as service dogs. I did see a guy on tv who had his dog trained to sit in front of people with the largest amount of cash when given the command "where's the money?". lol
I do love dogs and wish I had one.

john


In a message dated 10/23/2006 6:00:41 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

Drug dogs are rewarded with playtime. When they find, they play. If they don't find... they don't play. Chasing the ball is one game to consider.
W



Re: [QUAD-L] LYRICA

2006-10-22 Thread DeLiMiTeD4



My two cents on pain,
I never had much painuntill almost 15 years post. The doctors were always tellin me its in my head, and I would smirk, like DUH! So I started smoking pot and it helped me get to sleep, I swear ItWorked. I began using advil and aspirin cominations then tylenol. Y'all can say it doesn't do anything but it would take the edge off and I'd stop sweating and shaking. The doctor that I have now was horrified and asked if I'd ever had anything else that worked (beside pot). I had vicodin from my sister one night and I slept better than I could remember. I told him about it and my tylenol habit and he gave me a script for 240 vicodins a month and glyco-lax for the side effect. These aren't the strongest but as I deform and grow older I am starting to feel the old pain again.
You guys have described your pain as pins and needles. Some of you don't even try to describe it and I think I know what your feeling. I feel as if I'm slowly twisting and being bent. I begin to sweat and loose the ability to concentrate. Now what I'm feeling turns to full blown dysreflexia episode. There is no scale of pain because I'm on the verge of a stroke and breathing has become difficult. At this point I drop 3 valiums and 2 hydrocodones. 
Roll it back to where I feel like I'm being bent and twisted,,take 2 hydrocones. episode subsides. Although I will still need to lay back and relax, but I think it is from the hydrocone causing me to be drowsey.
I don't know if this helps anyone but my point is, don't wait to take the pain meds even if it is a slight overdose.

john


In a message dated 10/21/2006 4:41:31 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:
Thanks CorieI agree , Hard to understand why some people must endure so much pain., I guess we will just try to hang in there and take life a day at a time. Dan***Corie Jones [EMAIL PROTECTED] wrote: 




Hi Dan...I wanted to respond to your post because my pain has increased as time has gone by. I have been injured 13 years and my pain started a couple months after my injury and has gotten steadily worse over the years. I have severe burning and needles basically from my chest down to my feet. I have tried all kinds of medication and none have helped or only helped a little and for a short time. I also tried Lyrica, but it did not do anything for my pain. I have heard from other people with spinal cord injuries who have pain that some people's pain gets less over the years and others get worse, so I'm not sure why some people are forced to endure this horrible pain and that it gets worse. Also, like you and Ron (and others on the list), I also have a syrinx, which I found out about five years ago. I had the shunt surgery done, hoping it would reduce my pain, but did nothing for it. Fortunately I haven't lost any function.Anyway, just wanted to pass on my experience...Corie

- Original Message - 
From: Danny Hearn 
To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
Sent: Thursday, October 19, 2006 6:50 AM
Subject: Re: [QUAD-L] LYRICA
 Kathy and others.has your pain increased as time has gone by ? I just passed 9 years as a quad, I thought In time things would get better but it seems to be the opposite. The 1st 3 or 4 years I could sleep like a baby most of the night but now I suffer most the nights in pain getting very little good sleep rest-- I feel exhausted all the time. I take amitriptyline ( elavil ) at nights to sleep and it helps some. At night it seems my blood does not circulate good, I think I may try one of those air pressure relief electric mattresses that shift your weight when I can afford it, I know a few of the quads say they really help. Anyway I'm just curious to know if most of your pain levels increased -- got better -- or remained about the same ??? Dan[EMAIL PROTECTED] wrote: 


Hi Ron,
I had been taking neurotin for 7 years and it had increased to 1200 mg 3x a day. My neuropathy really covers me all over and I can take different muscle relaxers , pain pills, and botox shots
and still have pain.
My doctors had told me about lyrica and it is the "new" miracle medicine that is suppose to work wonders. I have been on it for 6 weeks and they have raised it once. I am taking 300 mg 2x a day and they say it can be increased a lot more. My baclofen has also been increased to 20 mg 3x aday. Right now I am super sensitive to touch. Bathing is horrible, I can't stand the feel of the bath cloth and towel going up and down my skin. I am crying by the time I am dressed. Then I have to take the pain pills.
The pain clinic is a new doctor to me and he says if I will hang in there he believes that lyrica will solve my pain when we find the right dose. I wish they could increase it faster.
Kathy in Mississippi





Re: [QUAD-L] LYRICA

2006-10-21 Thread Danny Hearn
Thanks CorieI agree , Hard to understand why some people must endure so much pain., I guess we will just try to hang in there and take life a day at a time. Dan***Corie Jones [EMAIL PROTECTED] wrote:  Hi Dan...I wanted to respond to your post because my pain has increased as time has gone by. I have been injured 13 years and my pain started a couple months after my injury and has gotten steadily worse over the years. I have severe burning and needles basically from my chest down to my feet. I have tried all kinds of medication and none have helped or only helped a little and for a short time. I also tried Lyrica, but it did not do anything for my pain. I have heard from other people with spinal cord injuries
 who have pain that some people's pain gets less over the years and others get worse, so I'm not sure why some people are forced to endure this horrible pain and that it gets worse. Also, like you and Ron (and others on the list), I also have a syrinx, which I found out about five years ago. I had the shunt surgery done, hoping it would reduce my pain, but did nothing for it. Fortunately I haven't lost any function.Anyway, just wanted to pass on my experience...Corie- Original Message -   From: Danny Hearn   To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com   Sent: Thursday, October 19, 2006 6:50 AM  Subject: Re: [QUAD-L] LYRICA   Kathy and others.has your pain increased as time has gone by ? I just passed 9 years as a quad, I thought In time things would get better but it seems to be the opposite. The 1st 3 or 4 years I could sleep like a baby most of the night but now I suffer most the nights in pain getting very little good sleep rest-- I feel exhausted all the time. I take amitriptyline ( elavil ) at nights to sleep and it helps some. At night it seems my blood does not circulate good, I think I may try one of those air pressure relief electric
 mattresses that shift your weight when I can afford it, I know a few of the quads say they really help. Anyway I'm just curious to know if most of your pain levels increased -- got better -- or remained about the same ??? Dan[EMAIL PROTECTED] wrote:   Hi Ron,  I had been taking neurotin for 7 years and it had increased to 1200 mg 3x a day. My neuropathy really covers me all over and I can take different muscle relaxers , pain pills, and botox shots  and still have pain. 
 My doctors had told me about lyrica and it is the "new" miracle medicine that is suppose to work wonders. I have been on it for 6 weeks and they have raised it once. I am taking 300 mg 2x a day and they say it can be increased a lot more. My baclofen has also been increased to 20 mg 3x aday. Right now I am super sensitive to touch. Bathing is horrible, I can't stand the feel of the bath cloth and towel going up and down my skin. I am crying by the time I am dressed. Then I have to take the pain pills.  The pain clinic is a new doctor to me and he says if I will hang in there he believes that lyrica will solve my pain when we find the right dose. I wish they could increase it faster.  Kathy in Mississippi

Re: [QUAD-L] LYRICA

2006-10-21 Thread DiannaL767



In a message dated 10/21/2006 4:41:31 PM Eastern Standard Time, 
[EMAIL PROTECTED] writes:
 
  Anyway I'm just curious to know if most of your pain levels increased -- got 
  better -- or remained about the same 
  ??? 
  Dan
Hi Dan,
As for me they got worse,,,after the 1st 
year.
Diane





Re: [QUAD-L] LYRICA

2006-10-20 Thread Corie Jones



Hi Dan...I wanted to respond to your post because my pain has increased as 
time has gone by. I have been injured 13 years and my pain started a 
couple months after my injury and has gotten steadily worse over the 
years. I have severe burning and needles basically from my chest down to 
my feet. I have tried all kinds of medication and none have helped or only 
helped a little and for a short time. I also tried Lyrica, but it did not 
do anything for my pain. I have heard from other people with spinal cord 
injuries who have pain that some people's pain gets less over the years and 
others get worse, so I'm not sure why some people are forced to endure this 
horrible pain and that it gets worse. Also, like you and Ron (and others 
on the list), I also have a syrinx, which I found out about five years 
ago. I had the shunt surgery done, hoping it would reduce my pain, but did 
nothing for it. Fortunately I haven't lost any function.Anyway, 
just wanted to pass on my experience...Corie

  - Original Message - 
  From: 
  Danny 
  Hearn 
  To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Thursday, October 19, 2006 6:50 
  AM
  Subject: Re: [QUAD-L] LYRICA
   Kathy and others.has your pain increased as time 
  has gone by ? I just passed 9 years as a quad, I thought In time things 
  would get better but it seems to be the opposite. The 1st 3 or 4 years I could 
  sleep like a baby most of the night but now I suffer most the nights in pain 
  getting very little good sleep rest-- I feel exhausted all the time. I take 
  amitriptyline ( elavil ) at nights to sleep and it helps some. At night it 
  seems my blood does not circulate good, I think I may try one of those air 
  pressure relief electric mattresses that shift your weight when I can afford 
  it, I know a few of the quads say they really help. Anyway I'm just 
  curious to know if most of your pain levels increased -- got better -- or 
  remained about the same 
  ??? 
  Dan[EMAIL PROTECTED] wrote: 
  

Hi Ron,
I had been taking 
neurotin for 7 years and it had increased to 1200 mg 3x a 
day. My neuropathy really covers me all over and I can take 
different muscle relaxers , pain pills, and botox shots
and still have pain.
My doctors had told me about lyrica 
and it is the "new" miracle medicine that is suppose to work wonders. 
I have been on it for 6 weeks and they have raised it once. I am 
taking 300 mg 2x a day and they say it can be increased a lot 
more. My baclofen has also been increased to 20 mg 3x 
aday. Right now I am super sensitive to touch. Bathing is 
horrible, I can't stand the feel of the bath cloth and towel going up 
and down my skin. I am crying by the time I am dressed. Then I 
have to take the pain pills.
The pain clinic is a new doctor to me 
and he says if I will hang in there he believes that lyrica will solve my 
pain when we find the right dose. I wish they could increase it 
faster.
Kathy in Mississippi




Re: [QUAD-L] LYRICA

2006-10-19 Thread LadyOnWheels725



Hi Ron,
I had been taking neurotin 
for 7 years and it had increased to 1200 mg 3x a day. My 
neuropathy really covers me all over and I can take different muscle relaxers , 
pain pills, and botox shots
and still have pain.
My doctors had told me about lyrica and 
it is the "new" miracle medicine that is suppose to work wonders. I have 
been on it for 6 weeks and they have raised it once. I am taking 300 mg 
2x a day and they say it can be increased a lot more. My baclofen 
has also been increased to 20 mg 3x aday. Right now I am super 
sensitive to touch. Bathing is horrible, I can't stand the feel of 
the bath cloth and towel going up and down my skin. I am crying by the 
time I am dressed. Then I have to take the pain pills.
The pain clinic is a new doctor to me and 
he says if I will hang in there he believes that lyrica will solve my pain when 
we find the right dose. I wish they could increase it 
faster.
Kathy in Mississippi




Re: [QUAD-L] LYRICA

2006-10-19 Thread Danny Hearn
 Kathy and others.has your pain increased as time has gone by ? I just passed 9 years as a quad, I thought In time things would get better but it seems to be the opposite. The 1st 3 or 4 years I could sleep like a baby most of the night but now I suffer most the nights in pain getting very little good sleep rest-- I feel exhausted all the time. I take amitriptyline ( elavil ) at nights to sleep and it helps some. At night it seems my blood does not circulate good, I think I may try one of those air pressure relief electric mattresses that shift your weight when I can afford it, I know a few of the quads say they really help. Anyway I'm just curious to know if most of your pain levels increased -- got better -- or remained about the same ??? Dan[EMAIL PROTECTED] wrote:  Hi Ron,  I had been taking neurotin for 7 years and it had increased to 1200 mg 3x a day. My neuropathy really covers me all over and I can take different muscle relaxers , pain pills, and botox shots  and still have pain.  My doctors had told me about lyrica and it is the "new" miracle medicine that is suppose to work wonders. I have been on it for 6 weeks and they have raised it once. I am taking 300 mg 2x a day and they say it can be increased a lot more. My baclofen has also been increased to 20 mg 3x aday. Right now I am super sensitive to touch. Bathing is horrible, I
 can't stand the feel of the bath cloth and towel going up and down my skin. I am crying by the time I am dressed. Then I have to take the pain pills.  The pain clinic is a new doctor to me and he says if I will hang in there he believes that lyrica will solve my pain when we find the right dose. I wish they could increase it faster.  Kathy in Mississippi

Re: [QUAD-L] LYRICA

2006-10-19 Thread LadyOnWheels725



Hi Dan,
My pain had changed though the years and 
it also changes with the seasons and weather. When I think about it 
I never know what to expect day to day. I am just so thankful to 
know that I woke up.
When I am sitting up I will usually do 
ok. I can tilt/ recline and even in summer I might have a light 
blanket on me--I have to use one in the car too.  My body ' is all weird 
,,and when I am cold I hurt. Some days when I am hurting in my ribs I do 
have pain patches that I can wear, and that helps alot. My body rebels 
when I am being put back in the bed. I have several spasms that 
usually hits my legs and butt area. In about 30 minutes they are not 
bad. 
I sleep in a hospital bed with a special 
mattress ,but it isn't a electric air mattress. My doctor has tried 
in the past to get me one ,but I didn' t qualify for one because I didn't 
have sores or ulcers. Pain doesn't mean anything. One day 
those folks will learn about pain.
Kathy in 
Mississippi


Re: [QUAD-L] LYRICA and AMITRIPTYLINE

2006-10-19 Thread DiannaL767



 
In a message dated 10/19/2006 9:23:25 AM Eastern Standard Time, 
[EMAIL PROTECTED] writes:

  The pain clinic is a new 
  doctor to me and he says if I will hang in there he believes that lyrica will 
  solve my pain when we find the right dose. I wish they could 
  increase it faster.
  Kathy in 
  Mississippi
I recently asked my doctor about Lyrica and he said that for me 
it would do nothing. I have tried neurotin  he said it's the same. He also 
said that because I was on ultram  percocet that the lyrica was a joke. 
~~~His words. He didhowever say thathe precribes it to many 
diabetics for pain.
I was on Elavil (amitriptyline) in the 1st year.It helped with 
my pain but I gained 60 pounds in a year. We had to evacuate our home one night 
 I remember nothing of my husband dressing me in the middle of the night 
 driving us to my parents. I did wake through some of it,,,being bothered 
getting dressed and such. It was a chemical explosion which knocked pictures 
 nic-nacs off the walls  caused minor damage to thefoundation of 
the house. It's been 15-16 yrs so I can't recall the mgs I was on. I was on 
valium  baclofen to go along with that. I really don't think there's much 
out there for SCI. I'm maxed out on the ultram  percocet. I'm hoping  
wishing they come up with something. I've shyed away from oxycontin because I'm 
one of those folks who will take 2 instead of 1 and I've heard it gets ugly if 
you need it  don't have it. I'm finished rambling but this has been my 
experience with the drugs.
Diane


[QUAD-L] LYRICA

2006-10-18 Thread RONALD L PRACHT
Hi,  Has anyone had any luck with the new med lyrica? I remember Dan told me it didnt work for him. If anyone has had any luck how many mgs are u on?   Thanks, ron

[QUAD-L] Lyrica

2006-05-13 Thread Steve Oldaker



I have been taking Lyrica for 2.5 
weeks. So far, I have received no relief from my chronic pain (pins and 
needles, extreme cold, broken ribs feeling). My doctor said it could take 
as long as 1 month to determine whether or not this drug will have any 
appreciable effect. I definitely feel the drug in my system. Not 
sure how to describe it. Makes me somewhat drowsy, somewhat cloudy 
headed. It is manageable, but not something I wish to continue if I 
receive no relief from pain.

Steve - C4, 18 years


Re: [QUAD-L] Lyrica

2006-05-13 Thread ~LittleQuad~
i used it 5 weeks and got nothing... quit cold turkey...ouch... u definitely know that you were on it afterwards even though no relief at the time...  am winging it solo once again.Steve Oldaker [EMAIL PROTECTED] wrote:  I have been taking Lyrica for 2.5 weeks. So far, I have received no relief from my chronic pain (pins and needles, extreme cold, broken ribs feeling). My doctor said it could take as long as 1 month to determine whether or not this drug will have any appreciable effect. I definitely feel the drug in my system. Not sure how to describe it. Makes me somewhat drowsy, somewhat cloudy headed. It is manageable, but not something I wish to continue if I receive no
 relief from pain.Steve - C4, 18 years

Re: [QUAD-L] Lyrica

2006-05-13 Thread Stacy Harim




I had extreme pain and had to also take methadone on top of 1200 mg of 
neurontin 3 times a day and still had pain. I now take 200 mg of 
lyrica 3 times a day and oxycondone 2 times a day and often skip that. 
Aside from the extreme headaches as I came off of the neurontin that are now 
finally gone, the lyrica is working great. My pain level is much less than 
it was when I was taking the neurontin. It took me a while to notice 
because I was taking very low doses as I was cutting the neurontin until I 
finally was only taking lyrica and then that took about a week to start to feel 
the full effects. I'm sure it's not going to work the same for everyone 
but I would give it a chance.

Stacy

  - Original Message - 
  From: ~LittleQuad~ 
  To: Steve Oldaker ; quad-list@eskimo.com 
  Sent: Saturday, May 13, 2006 12:49 
  PM
  Subject: Re: [QUAD-L] Lyrica
  
  i used it 5 weeks and got nothing... quit cold turkey...ouch... u 
  definitely know that you were on it afterwards even though no relief at the 
  time...
  am winging it solo once again.Steve Oldaker [EMAIL PROTECTED] 
  wrote:
  

I have been taking Lyrica for 2.5 
weeks. So far, I have received no relief from my chronic pain (pins 
and needles, extreme cold, broken ribs feeling). My doctor said it 
could take as long as 1 month to determine whether or not this drug will 
have any appreciable effect. I definitely feel the drug in my 
system. Not sure how to describe it. Makes me somewhat drowsy, 
somewhat cloudy headed. It is manageable, but not something I wish to 
continue if I receive no relief from pain.

Steve - C4, 18 
years


[QUAD-L] Lyrica-- to Ron and others interested

2006-05-11 Thread Danny Hearn
 Hey Ron, they started me on Lyrica today. 75ml. twice a day--The doctor said it would take 2 weeks to really know if it is helping, he said some people can tell the difference in a week but he wants me to try it for a month then see him again to check the results.   Dan c-6 8.8 yrs. post

Re: [QUAD-L] Lyrica-- to Ron and others interested

2006-05-11 Thread KK Batte
Let me know if you get dry mouth.  Again I stopped taking Neurontin  
for 5 days, only take 900mg,  now I have things crawling on me   
biting me.  Not really but that is what it feels like.


Finally broke down  took a Neurontin at lunch.  Couldn't take the  
pain any more.


KK



Re: [QUAD-L] Lyrica-- to Ron and others interested

2006-05-11 Thread Houston809
I'm going through same thing. Fighting thru it. Chewing gum :)

On 5/11/06 2:02 PM, KK Batte [EMAIL PROTECTED] wrote:

 Let me know if you get dry mouth.  Again I stopped taking Neurontin
 for 5 days, only take 900mg,  now I have things crawling on me 
 biting me.  Not really but that is what it feels like.
 
 Finally broke down  took a Neurontin at lunch.  Couldn't take the
 pain any more.
 
 KK
 



Re: [QUAD-L] Lyrica

2006-01-22 Thread ~LittleQuad~
its probably a matter of finding the right combo..Corie Jones [EMAIL PROTECTED] wrote:  Yes the 300 mg (75 mg four times a day, two I take before I go to bed) makes me very drowsy/tired. I was taking three pills and was tired and started on taking the extra pill last night and feel totally drugged today. I'm going to give it a week and go off of it if I continue to get zero relief for my pain. If you are getting benefits from taking only 25 mg than that's really good! I don't know why nothing seems to work on my pain. :-(Corie - Original Message -   From: ~LittleQuad~   To: Corie Jones ; Quad-list post   Sent: Friday, January 20, 2006 10:34 PM  Subject: Re: [QUAD-L] Lyricai've been on 25mg for 3 weeks, took week for effect... started on 50mg today...   300mg? geez do u get sleepy etc??  Corie Jones [EMAIL PROTECTED] wrote: 
   I've been taking Lyrica for two weeks now for my Neuropathic pain (severe burning and needles from my chest down to my knees) and have not noticed any difference. I will go up to 4 pills a day starting tomorrow, getting up to 300 mg and see if that makes a difference. What dosage are you on and did you notice a difference right away?Corie- Original Message -   From: ~LittleQuad~   To: Quad-list post   Sent: Thursday, January 19, 2006 7:47 AM  !
 Subject: [QUAD-L] LyricaHas anyone tried this new medicine? I've been on it for 2-3 weeks and I think it is doing some good. It is an alternative to Neurontin.  http://www.lyrica.com/cwpb/appmanager/lyrica/lyricaDesktop?_nfpb=true_pageLabel=lyrica_main  

Re: [QUAD-L] Lyrica

2006-01-22 Thread Eric Olson




Another list member posted this site.
http://home.inreach.com/doodle/shtml/neurolysis.htm
I learned a lot from this page and may have to try some of them if
things don't improve. 

Eric 

Corie Jones wrote:

  
  
  Yes the 300 mg (75 mg four times a day, two I take before I go
to bed) makes me very drowsy/tired. I was taking three pills and was
tired and started on taking the extra pill last night and feel totally
drugged today. I'm going to give it a week and go off of it if I
continue to get zero relief for my pain. If you are getting benefits
from taking only 25 mg than that's really good! I don't know why
nothing seems to work on my pain. :-(
  
Corie 
  
-
Original Message - 
From:
~LittleQuad~

To:
Corie
Jones ; Quad-list post 
Sent:
Friday, January 20, 2006 10:34 PM
Subject:
Re: [QUAD-L] Lyrica


i've been on 25mg for 3 weeks, took week for effect... started
on 50mg today... 
300mg? geez do u get sleepy etc??


Corie Jones [EMAIL PROTECTED]
wrote:

  
  
  
  I've been taking Lyrica for two weeks now for my Neuropathic
pain (severe burning and needles from my chest down to my knees) and
have not noticed any difference. I will go up to 4 pills a day
starting tomorrow, getting up to 300 mg and see if that makes a
difference. What dosage are you on and did you notice a difference
right away?
  
Corie
  
-
Original Message - 
From:
~LittleQuad~ 
To:
Quad-list post 
Sent:
Thursday, January 19, 2006 7:47 AM
Subject:
[QUAD-L] Lyrica


Has anyone tried this new medicine? I've
been on it for 2-3 weeks and I think it is doing some good. It is an
alternative to Neurontin.
http://www.lyrica.com/cwpb/appmanager/lyrica/lyricaDesktop?_nfpb=true_pageLabel=lyrica_main
  



  






Re: [QUAD-L] Lyrica

2006-01-21 Thread Lori Michaelson






If it's IN the Neurontin family *I* would be leery. It took me over a year to get off Neurontin and the
process was hell. I think Greg had the same experience.

Further . Drs have been pushing Neurontin for MANY folks (not just SCIs or MS individuals) for years nowso
they must be getting kickbacks big time.

I'll look up the Lryica drugto see it's properties, etc.

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ


---Original Message---


From: ~LittleQuad~
Date: 01/20/06 23:51:43
To: Corie Jones; Quad-list post
Subject: Re: [QUAD-L] Lyrica

i've been on 25mg for 3 weeks, took week for effect... started on 50mg today... 
300mg? geez do u get sleepy etc??
Corie Jones [EMAIL PROTECTED] wrote:





I've been taking Lyrica for two weeks now for my Neuropathic pain (severe burning and needles from my chest down to my knees) and have not noticed any difference. I will go up to 4 pills a day starting tomorrow, getting up to 300 mg and see if that makes a difference. What dosage are you on and did you notice a difference right away?Corie

- Original Message - 
From: ~LittleQuad~ 
To: Quad-list post 
Sent: Thursday, January 19, 2006 7:47 AM
Subject: [QUAD-L] Lyrica

Has anyone tried this new medicine? I've been on it for 2-3 weeks and I think it is doing some good. It is an alternative to Neurontin.
http://www.lyrica.com/cwpb/appmanager/lyrica/lyricaDesktop?_nfpb=true_pageLabel=lyrica_main











Re: [QUAD-L] Lyrica

2006-01-21 Thread Corie Jones



Yes the 300 mg (75 mg four times a day, two I take before I go to bed) 
makes me very drowsy/tired. I was taking three pills and was tired and 
started on taking the extra pill last night and feel totally drugged 
today. I'm going to give it a week and go off of it if I continue to get 
zero relief for my pain. If you are getting benefits from taking only 25 
mg than that's really good! I don't know why nothing seems to work on my 
pain. :-(Corie 

  - Original Message - 
  From: 
  ~LittleQuad~ 
  To: Corie Jones ; Quad-list 
  post 
  Sent: Friday, January 20, 2006 10:34 
  PM
  Subject: Re: [QUAD-L] Lyrica
  
  i've been on 25mg for 3 weeks, took week for effect... started on 50mg 
  today... 
  300mg? geez do u get sleepy etc??
  Corie Jones [EMAIL PROTECTED] 
  wrote:
  




I've been taking Lyrica for two weeks now for my Neuropathic pain 
(severe burning and needles from my chest down to my knees) and have not 
noticed any difference. I will go up to 4 pills a day starting 
tomorrow, getting up to 300 mg and see if that makes a difference. 
What dosage are you on and did you notice a difference right 
away?Corie

  - Original Message - 
  From: 
  ~LittleQuad~ 
  To: Quad-list post 
  Sent: Thursday, January 19, 2006 7:47 
  AM
  Subject: [QUAD-L] Lyrica
  
  Has anyone tried this new medicine? I've been on it for 
  2-3 weeks and I think it is doing some good. It is an alternative to 
  Neurontin.
  http://www.lyrica.com/cwpb/appmanager/lyrica/lyricaDesktop?_nfpb=true_pageLabel=lyrica_main
  


Re: [QUAD-L] Lyrica

2006-01-20 Thread Corie Jones




I've been taking Lyrica for two weeks now for my Neuropathic pain (severe 
burning and needles from my chest down to my knees) and have not noticed any 
difference. I will go up to 4 pills a day starting tomorrow, getting up to 
300 mg and see if that makes a difference. What dosage are you on and did 
you notice a difference right away?Corie

  - Original Message - 
  From: 
  ~LittleQuad~ 
  To: Quad-list post 
  Sent: Thursday, January 19, 2006 7:47 
  AM
  Subject: [QUAD-L] Lyrica
  
  Has anyone tried this new medicine? I've been on it for 2-3 
  weeks and I think it is doing some good. It is an alternative to 
  Neurontin.
  http://www.lyrica.com/cwpb/appmanager/lyrica/lyricaDesktop?_nfpb=true_pageLabel=lyrica_main


Re: [QUAD-L] Lyrica

2006-01-20 Thread ~LittleQuad~
i've been on 25mg for 3 weeks, took week for effect... started on 50mg today...   300mg? geez do u get sleepy etc??  Corie Jones [EMAIL PROTECTED] wrote:I've been taking Lyrica for two weeks now for my Neuropathic pain (severe burning and needles from my chest down to my knees) and have not noticed any difference. I will go up to 4 pills a day starting tomorrow, getting up to 300 mg and see if that makes a difference. What dosage are you on and did you notice a difference right away?Corie- Original Message -   From: ~LittleQuad~   To: Quad-list post   Sent: Thursday, January 19, 2006 7:47 AM  Subject: [QUAD-L] LyricaHas anyone tried this new medicine? I've been on it for 2-3 weeks and I think it is doing some good. It is an alternative to Neurontin.  http://www.lyrica.com/cwpb/appmanager/lyrica/lyricaDesktop?_nfpb=true_pageLabel=lyrica_main  

Re: [QUAD-L] Lyrica

2006-01-20 Thread ~LittleQuad~
my insurance covered it all...Brien Stocker [EMAIL PROTECTED] wrote:  I recently began using it but, because there seems to be so many variables connected ted to what causes pain and what makes me feel pain, I am unable to be certain if the Lyrica, at this time, is the reason for perceiving less pain.Complicated answer, but the simple answer is: it is providing pain relief far better than gabapentin or gabatril, over this current trial. I encourage those with neuropain to try it free. The mfr. is offering free trials and my pharmacy appeared to have been able to push through 3, 7 day free trials!Given this, please check whether it will be covered when billed, over the long term, to your present drug insurance!Substantial relief from nerve pain may be out there for
 us!Happee Friday,BrienOn Jan 19, 2006, at 2:47 PM, [EMAIL PROTECTED] wrote: In [EMAIL PROTECTED], on  01/19/06 at 07:47 AM, ~LittleQuad~ <[EMAIL PROTECTED]>said: Has anyone tried this new medicine? I've been on it for 2-3 weeks  and I think it is doing some good. It is an alternative to Neurontin. It caused pain in my teeth and gums. Alan --  --  - Posted by alanh77[at]comcast.net using MR/2 ICE Newsreader #564 Proudly using eComstation 1.21 (OEM OS/2) BBS - The Nerve Center Telnet FidoNet 261/1000 tncbbs.no-ip.com --  -

[QUAD-L] Lyrica

2006-01-19 Thread ~LittleQuad~
Has anyone tried this new medicine? I've been on it for 2-3 weeks and I think it is doing some good. It is an alternative to Neurontin.  http://www.lyrica.com/cwpb/appmanager/lyrica/lyricaDesktop?_nfpb=true_pageLabel=lyrica_main

RE: [QUAD-L] Lyrica

2006-01-19 Thread Aaron Mann



You've got me curious. What type of neurological pain 
do you have that this is helping with? (Mine is in my back, stomach, and 
elbows)


From: ~LittleQuad~ [mailto:[EMAIL PROTECTED] 
Sent: Thursday, January 19, 2006 9:48 AMTo: Quad-list 
postSubject: [QUAD-L] Lyrica

Has anyone tried this new medicine? I've been on it for 2-3 
weeks and I think it is doing some good. It is an alternative to 
Neurontin.
http://www.lyrica.com/cwpb/appmanager/lyrica/lyricaDesktop?_nfpb=true_pageLabel=lyrica_main


RE: [QUAD-L] Lyrica

2006-01-19 Thread ~LittleQuad~
everywhere extreme burning, aching... now it seems more numb not burn so muchAaron Mann [EMAIL PROTECTED] wrote:  You've got me curious. What type of neurological pain do you have that this is helping with? (Mine is in my back, stomach, and elbows)  From: ~LittleQuad~ [mailto:[EMAIL PROTECTED] Sent: Thursday, January 19, 2006 9:48 AMTo: Quad-list postSubject: [QUAD-L] LyricaHas anyone tried this new medicine? I've been on it for 2-3 weeks and I think it is doing some good. It is an alternative to
 Neurontin.  http://www.lyrica.com/cwpb/appmanager/lyrica/lyricaDesktop?_nfpb=true_pageLabel=lyrica_main

Re: [QUAD-L] Lyrica

2006-01-19 Thread alanh77
In [EMAIL PROTECTED], on 01/19/06 
   at 07:47 AM, ~LittleQuad~ [EMAIL PROTECTED] said:


Has anyone tried this new medicine? I've been on it for 2-3 weeks and I
think it is doing some good. It is an alternative to Neurontin. 

It caused pain in my teeth and gums.

Alan

-- 

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Re: [QUAD-L] Lyrica

2006-01-19 Thread alanh77
In [EMAIL PROTECTED], on 01/19/06 
   at 07:47 AM, ~LittleQuad~ [EMAIL PROTECTED] said:


Has anyone tried this new medicine? I've been on it for 2-3 weeks and I
think it is doing some good. It is an alternative to Neurontin. 

It caused pain in my teeth and gums.

Alan

-- 

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  Proudly using eComstation 1.21 (OEM OS/2)

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