Re: [QUAD-L] Another question for SP users

[Eric Olson]

 Are you in a different position during the day?   When is your next
catheter change?

On Sat, May 1, 2021 at 12:54 PM Lori Michaelson 
wrote:

> Definitely Eric and I hope my next catheter change will make a difference.
> Why it does not happen during the day is beyond us including me.
>
> On Sat, May 1, 2021 at 10:51 AM Eric Olson  wrote:
>
>> Nothing worse than waking up in a puddle of your own piss.  I think that
>> sometimes the catheter gets up against the bladder wall in a funky way and
>> just doesn't drain well.  I always start simple by changing the catheter.
>>
>> On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn  wrote:
>>
>>> Wow, Lori that does sound strangedo you think the catheter is in
>>> place correctly and the little balloon that holds it in bladder is inflated
>>> right? I'm a male so not sure if there is a difference with the SP or not.
>>> We change my catheter about once a month or at 5-6 weeks at longest. You
>>> have probably already tried a fresh catheter change but if not perhaps that
>>> could help? Hope you can get it figured out...Us Quads have enough to worry
>>> about as it is. Dan H.***
>>>
>>> On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson <
>>> lorilivin...@gmail.com> wrote:
>>>
>>>
>>> When I went to my urologist's office for my January 22nd of this year
>>> (as expected for my every 6 month appointment with him) and he said that
>>> everything looked great and instead of seeing him every 6 months I should
>>> not need to see him for another year. I was going to him every 6 months to
>>> see him and have him do a cystoscopy to make sure there were no more
>>> 'growths' or 'polyps' that was found several years ago and was superficial
>>> bladder cancer. I did not feel bad or expect the following:
>>>
>>> Less than 2 months later and me not having any problems... on April 16
>>> in the morning I was laying in a bunch of pee. Just out of the blue and
>>> absolutely no reason for it. And it kept coming and mostly in the evening
>>> after laying down and we never knew what to expect the following morning.
>>> For one example, as I was doing my care this morning, I felt the pressure
>>> of me not urinating through the catheter and, sure enough, it was like a
>>> fountain in the air.
>>>
>>> I made an appointment on April 21st to see my urologist and he was as
>>> surprised as I was. I have always taken oxybutynin 5mg extended release 3
>>> times a day. On Wednesday before my appointment at the end of January of
>>> this year I was doing great (physically for the most part) and had no
>>> problems with my bladder, spasms or anything else. I have really enjoyed
>>> this urologist and he is great. Another member of the Quad list has him and
>>> he likes him too.
>>>
>>> He gave me several boxes of Toviaz to try (which I did for a good week)
>>> but it did not help.
>>>
>>> I was the symptomatic of a UTI but they wanted me to take a couple of
>>> antibiotics for what was in my urine and had been off and on for years.
>>> This week they said they were going to: antibiotic but never did. Then
>>> wrote out a script for Myrbetrig (another script for bladder spasms) and
>>> the co-pay for that was over $300!!!
>>>
>>> I asked my insurance what was the most inexpensive bladder spasm
>>> medications and they said it would be Tolterodine  4 mg extended release
>>> once a day. My co-pay was around $31 for 30 days. I started it yesterday at
>>> dinner time.
>>>
>>> Last evening  there was some leaking but not like this morning which was
>>> having it spurt up in the air like a fountain of urine.
>>>
>>> I have never experienced this before. I need 2 chux on my bed, a large
>>> heavy duty paper and one ABD pad that I was going to stop ordering because
>>> I had always been having large amounts of vaginal discharge but that
>>> discontinued quite a while ago. Now I need them.
>>>
>>> Have any of you with SP catheters experienced this? I am actually
>>> stunned with this coming on so quickly and continuing.
>>>
>>> Thanks!
>>>
>>> --
>>> “Petting, scratching, and cuddling a dog could be as soothing to the
>>> mind and heart as deep meditation and almost as good for the soul as
>>> prayer.” ― Dean Koontz
>>>
>>
>
> --
> “Petting, scratching, and cuddling a dog could be as soothing to the mind
> and heart as deep meditation and almost as good for the soul as prayer.”
> ― Dean Koontz
>

Re: [QUAD-L] Another question for SP users

[Lori Michaelson]

Definitely Eric and I hope my next catheter change will make a difference.
Why it does not happen during the day is beyond us including me.

On Sat, May 1, 2021 at 10:51 AM Eric Olson  wrote:

> Nothing worse than waking up in a puddle of your own piss.  I think that
> sometimes the catheter gets up against the bladder wall in a funky way and
> just doesn't drain well.  I always start simple by changing the catheter.
>
> On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn  wrote:
>
>> Wow, Lori that does sound strangedo you think the catheter is in
>> place correctly and the little balloon that holds it in bladder is inflated
>> right? I'm a male so not sure if there is a difference with the SP or not.
>> We change my catheter about once a month or at 5-6 weeks at longest. You
>> have probably already tried a fresh catheter change but if not perhaps that
>> could help? Hope you can get it figured out...Us Quads have enough to worry
>> about as it is. Dan H.***
>>
>> On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson <
>> lorilivin...@gmail.com> wrote:
>>
>>
>> When I went to my urologist's office for my January 22nd of this year (as
>> expected for my every 6 month appointment with him) and he said that
>> everything looked great and instead of seeing him every 6 months I should
>> not need to see him for another year. I was going to him every 6 months to
>> see him and have him do a cystoscopy to make sure there were no more
>> 'growths' or 'polyps' that was found several years ago and was superficial
>> bladder cancer. I did not feel bad or expect the following:
>>
>> Less than 2 months later and me not having any problems... on April 16 in
>> the morning I was laying in a bunch of pee. Just out of the blue and
>> absolutely no reason for it. And it kept coming and mostly in the evening
>> after laying down and we never knew what to expect the following morning.
>> For one example, as I was doing my care this morning, I felt the pressure
>> of me not urinating through the catheter and, sure enough, it was like a
>> fountain in the air.
>>
>> I made an appointment on April 21st to see my urologist and he was as
>> surprised as I was. I have always taken oxybutynin 5mg extended release 3
>> times a day. On Wednesday before my appointment at the end of January of
>> this year I was doing great (physically for the most part) and had no
>> problems with my bladder, spasms or anything else. I have really enjoyed
>> this urologist and he is great. Another member of the Quad list has him and
>> he likes him too.
>>
>> He gave me several boxes of Toviaz to try (which I did for a good week)
>> but it did not help.
>>
>> I was the symptomatic of a UTI but they wanted me to take a couple of
>> antibiotics for what was in my urine and had been off and on for years.
>> This week they said they were going to: antibiotic but never did. Then
>> wrote out a script for Myrbetrig (another script for bladder spasms) and
>> the co-pay for that was over $300!!!
>>
>> I asked my insurance what was the most inexpensive bladder spasm
>> medications and they said it would be Tolterodine  4 mg extended release
>> once a day. My co-pay was around $31 for 30 days. I started it yesterday at
>> dinner time.
>>
>> Last evening  there was some leaking but not like this morning which was
>> having it spurt up in the air like a fountain of urine.
>>
>> I have never experienced this before. I need 2 chux on my bed, a large
>> heavy duty paper and one ABD pad that I was going to stop ordering because
>> I had always been having large amounts of vaginal discharge but that
>> discontinued quite a while ago. Now I need them.
>>
>> Have any of you with SP catheters experienced this? I am actually stunned
>> with this coming on so quickly and continuing.
>>
>> Thanks!
>>
>> --
>> “Petting, scratching, and cuddling a dog could be as soothing to the mind
>> and heart as deep meditation and almost as good for the soul as prayer.”
>> ― Dean Koontz
>>
>

-- 
“Petting, scratching, and cuddling a dog could be as soothing to the mind
and heart as deep meditation and almost as good for the soul as prayer.” ― Dean
Koontz

Re: [QUAD-L] Another question for SP users

[Eric Olson]

Nothing worse than waking up in a puddle of your own piss.  I think that
sometimes the catheter gets up against the bladder wall in a funky way and
just doesn't drain well.  I always start simple by changing the catheter.

On Fri, Apr 30, 2021 at 3:22 PM Danny Hearn  wrote:

> Wow, Lori that does sound strangedo you think the catheter is in place
> correctly and the little balloon that holds it in bladder is inflated
> right? I'm a male so not sure if there is a difference with the SP or not.
> We change my catheter about once a month or at 5-6 weeks at longest. You
> have probably already tried a fresh catheter change but if not perhaps that
> could help? Hope you can get it figured out...Us Quads have enough to worry
> about as it is. Dan H.***
>
> On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson <
> lorilivin...@gmail.com> wrote:
>
>
> When I went to my urologist's office for my January 22nd of this year (as
> expected for my every 6 month appointment with him) and he said that
> everything looked great and instead of seeing him every 6 months I should
> not need to see him for another year. I was going to him every 6 months to
> see him and have him do a cystoscopy to make sure there were no more
> 'growths' or 'polyps' that was found several years ago and was superficial
> bladder cancer. I did not feel bad or expect the following:
>
> Less than 2 months later and me not having any problems... on April 16 in
> the morning I was laying in a bunch of pee. Just out of the blue and
> absolutely no reason for it. And it kept coming and mostly in the evening
> after laying down and we never knew what to expect the following morning.
> For one example, as I was doing my care this morning, I felt the pressure
> of me not urinating through the catheter and, sure enough, it was like a
> fountain in the air.
>
> I made an appointment on April 21st to see my urologist and he was as
> surprised as I was. I have always taken oxybutynin 5mg extended release 3
> times a day. On Wednesday before my appointment at the end of January of
> this year I was doing great (physically for the most part) and had no
> problems with my bladder, spasms or anything else. I have really enjoyed
> this urologist and he is great. Another member of the Quad list has him and
> he likes him too.
>
> He gave me several boxes of Toviaz to try (which I did for a good week)
> but it did not help.
>
> I was the symptomatic of a UTI but they wanted me to take a couple of
> antibiotics for what was in my urine and had been off and on for years.
> This week they said they were going to: antibiotic but never did. Then
> wrote out a script for Myrbetrig (another script for bladder spasms) and
> the co-pay for that was over $300!!!
>
> I asked my insurance what was the most inexpensive bladder spasm
> medications and they said it would be Tolterodine  4 mg extended release
> once a day. My co-pay was around $31 for 30 days. I started it yesterday at
> dinner time.
>
> Last evening  there was some leaking but not like this morning which was
> having it spurt up in the air like a fountain of urine.
>
> I have never experienced this before. I need 2 chux on my bed, a large
> heavy duty paper and one ABD pad that I was going to stop ordering because
> I had always been having large amounts of vaginal discharge but that
> discontinued quite a while ago. Now I need them.
>
> Have any of you with SP catheters experienced this? I am actually stunned
> with this coming on so quickly and continuing.
>
> Thanks!
>
> --
> “Petting, scratching, and cuddling a dog could be as soothing to the mind
> and heart as deep meditation and almost as good for the soul as prayer.”
> ― Dean Koontz
>

Re: [QUAD-L] Another question for SP users

[Danny Hearn]

 Wow, Lori that does sound strangedo you think the catheter is in place 
correctly and the little balloon that holds it in bladder is inflated right? 
I'm a male so not sure if there is a difference with the SP or not. We change 
my catheter about once a month or at 5-6 weeks at longest. You have probably 
already tried a fresh catheter change but if not perhaps that could help? Hope 
you can get it figured out...Us Quads have enough to worry about as it is. Dan 
H.***
On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson 
 wrote:  
 
 When I went to my urologist's office for my January 22nd of this year (as 
expected for my every 6 month appointment with him) and he said that everything 
looked great and instead of seeing him every 6 months I should not need to see 
him for another year. I was going to him every 6 months to see him and have him 
do a cystoscopy to make sure there were no more 'growths' or 'polyps' that was 
found several years ago and was superficial bladder cancer. I did not feel bad 
or expect the following:
Less than 2 months later and me not having any problems... on April 16 in the 
morning I was laying in a bunch of pee. Just out of the blue and absolutely no 
reason for it. And it kept coming and mostly in the evening after laying down 
and we never knew what to expect the following morning. For one example, as I 
was doing my care this morning, I felt the pressure of me not urinating through 
the catheter and, sure enough, it was like a fountain in the air.
I made an appointment on April 21st to see my urologist and he was as surprised 
as I was. I have always taken oxybutynin 5mg extended release 3 times a day. On 
Wednesday before my appointment at the end of January of this year I was doing 
great (physically for the most part) and had no problems with my bladder, 
spasms or anything else. I have really enjoyed this urologist and he is great. 
Another member of the Quad list has him and he likes him too.
He gave me several boxes of Toviaz to try (which I did for a good week) but it 
did not help.
I was the symptomatic of a UTI but they wanted me to take a couple of 
antibiotics for what was in my urine and had been off and on for years. This 
week they said they were going to: antibiotic but never did. Then wrote out a 
script for Myrbetrig (another script for bladder spasms) and the co-pay for 
that was over $300!!!
I asked my insurance what was the most inexpensive bladder spasm medications 
and they said it would be Tolterodine  4 mg extended release once a day. My 
co-pay was around $31 for 30 days. I started it yesterday at dinner time.
Last evening  there was some leaking but not like this morning which was having 
it spurt up in the air like a fountain of urine.
I have never experienced this before. I need 2 chux on my bed, a large heavy 
duty paper and one ABD pad that I was going to stop ordering because I had 
always been having large amounts of vaginal discharge but that discontinued 
quite a while ago. Now I need them.
Have any of you with SP catheters experienced this? I am actually stunned with 
this coming on so quickly and continuing.
Thanks!
-- 
“Petting, scratching, and cuddling a dog could be as soothing to the mind and 
heart as deep meditation and almost as good for the soul as prayer.” ― Dean 
Koontz  

[QUAD-L] Another question for SP users

[Lori Michaelson]

When I went to my urologist's office for my January 22nd of this year (as
expected for my every 6 month appointment with him) and he said that
everything looked great and instead of seeing him every 6 months I should
not need to see him for another year. I was going to him every 6 months to
see him and have him do a cystoscopy to make sure there were no more
'growths' or 'polyps' that was found several years ago and was superficial
bladder cancer. I did not feel bad or expect the following:

Less than 2 months later and me not having any problems... on April 16 in
the morning I was laying in a bunch of pee. Just out of the blue and
absolutely no reason for it. And it kept coming and mostly in the evening
after laying down and we never knew what to expect the following morning.
For one example, as I was doing my care this morning, I felt the pressure
of me not urinating through the catheter and, sure enough, it was like a
fountain in the air.

I made an appointment on April 21st to see my urologist and he was as
surprised as I was. I have always taken oxybutynin 5mg extended release 3
times a day. On Wednesday before my appointment at the end of January of
this year I was doing great (physically for the most part) and had no
problems with my bladder, spasms or anything else. I have really enjoyed
this urologist and he is great. Another member of the Quad list has him and
he likes him too.

He gave me several boxes of Toviaz to try (which I did for a good week) but
it did not help.

I was the symptomatic of a UTI but they wanted me to take a couple of
antibiotics for what was in my urine and had been off and on for years.
This week they said they were going to: antibiotic but never did. Then
wrote out a script for Myrbetrig (another script for bladder spasms) and
the co-pay for that was over $300!!!

I asked my insurance what was the most inexpensive bladder spasm
medications and they said it would be Tolterodine  4 mg extended release
once a day. My co-pay was around $31 for 30 days. I started it yesterday at
dinner time.

Last evening  there was some leaking but not like this morning which was
having it spurt up in the air like a fountain of urine.

I have never experienced this before. I need 2 chux on my bed, a large
heavy duty paper and one ABD pad that I was going to stop ordering because
I had always been having large amounts of vaginal discharge but that
discontinued quite a while ago. Now I need them.

Have any of you with SP catheters experienced this? I am actually stunned
with this coming on so quickly and continuing.

Thanks!

-- 
“Petting, scratching, and cuddling a dog could be as soothing to the mind
and heart as deep meditation and almost as good for the soul as prayer.” ― Dean
Koontz

Re: [QUAD-L] Strange Question

[Billy Lang]

Three times. Once when I had  The injury I drowned, dead for about 12 minutes. 
Second time anesthesiologist put me in cardiac arrest prior to spinal fusion. 
Last month I went into a coma my stats were 40 oxygen. Three days with hospice 
standing by and 60 people in my bedroom (I have a big family) saying goodbye. 
My daughter put on a favorite song (Spirit in the sky) and my eyes opened and I 
asked, “what the hell are you all doing here?”

Guaranteed I will not have that many when I do pass.

> On Dec 20, 2018, at 8:31 PM, Bobbie Humphreys  
> wrote:
> 
> For me it was double pneumonia after surgery.
> Bobbie 
> 
> On Dec 20, 2018, at 8:13 PM, Greg mailto:g...@eskimo.com>> 
> wrote:
> 
>> Since your injury, how many times, because of your injury, have you come 
>> close to passing?
>> 
>> Me, 3 Times...
>> 
>> OD, medication interaction.
>> 
>> Almost fell in Pool when no one was around, seatbelt on. (I no longer use a 
>> seatbelt, only chest strap if I go out by myself. Actually a few close calls.
>> 
>> Choking, eating bread, it got stuck very bad. Could not breath. Semi 
>> heimlich got it out.
>> 
>> Greg

Re: [QUAD-L] Strange Question

[Don Smith]

Your van should have a spare tire the tow truck driver could have put on.


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Tue, Jan 1, 2019 at 11:01 PM Dana Wray  wrote:

>  Hi Lori, Eric,Jim, Greg, Nancy and  all fellow Quad-list  members,
> I have suffered  numerous  medical situations  that could’ve ended my
> life. The Lord is not finished with me yet.   Lori  and all, I commend you
> on your survival  experiences. I wish I could document all my experiences
> like Lori  is able to do. I  thank you all  for sharing your life stories.
> I  have had some strange experiences when septic. I was  in a coma twice.
> Several situations were physician error. Yesterday after leaving a
> appointment  for blood work and Prolia  shot for osteoporosis. My caregiver
> hit the curb and blew out my tire and wheel  on the front right tire. I was
> able to get it towed by AAA but it took an hour and a half to find someone
> to bring me home. A taxi service said they did not provide that kind of
> transportation.  Finally someone through AAA found out three places to
> call. It happened around 5:30 PM and I got home around   9:30 PM. I am  at
> blessed  that AAA waited till 10-10  large wheelchair  assessable van
>  arrived. I thought it was going to be a desperate situation.  AAA  wanted
> to pay for it  by credit card but the taxi company would not accept. I
> thought this was strange. Has anyone else ever had this experience, when
> their vehicle was not drivable?
>  Dana C4-5  complete, 44 years post. 7/26/74, passenger in a motor vehicle
>  accident at 20
> On Fri, Dec 21, 2018 at 1:21 PM Lori Michaelson 
> wrote:
>
>> My injury (car accident) happened nearly 40 years ago and I was in the
>> hospital for a total of 13 months (October 1979 to the end of November
>> 1980) because I was so bad. I was not even able to sit up until I got to
>> rehab so I was flat on my back for at least two thirds of that time  which
>> included a neck fusion and having a tracheotomy at least 8 months. During
>> that time alone I came close to dying so many times I can't even remember
>> if and ever since.
>>
>> I had such a bad neck injury that I choke often but have figured out that
>> it is from tight neck muscles so it is 100% easier for me to swallow laying
>> down. I have choked over 1000 times or more whereby I almost died. A
>> neurosurgeon nearly killed me in Brooklyn New York after I finally got the
>> diagnosis of Posttraumatic Syringomyelia and would have easily died if my
>> ex common-law husband of 13 years was not with me. They let cerebral spinal
>> fluid leak out of the back of my head for two weeks without doing anything!
>>
>> That is only a small list of so many times and I almost died this year
>> when my sodium level dropped so low that I did not know who I was, began
>> chewing on my finger without even knowing it (and I would have broken it
>> had my caregiver not noticed it was happening) so I was rushed to the
>> hospital and spent two weeks in ICU, aspirated twice before and after the
>> hospital requiring a chest tube and one week later for a total of three
>> weeks in the hospital this year. Unbelievable.
>>
>> ~Lori
>>
>> On Fri, Dec 21, 2018 at 10:46 AM Eric Olson  wrote:
>>
>>> A couple times but try to learn something so it doesn't happen again
>>>
>>>
>>> 
>>>  Virus-free.
>>> www.avast.com
>>> 
>>> <#m_5896484920279362603_m_-9073437861150003753_m_-1256766246196393347_m_1553701315410400077_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>>>
>>> On Thu, Dec 20, 2018 at 7:13 PM Greg  wrote:
>>>
 Since your injury, how many times, because of your injury, have you
 come close to passing?

 Me, 3 Times...

 OD, medication interaction.

 Almost fell in Pool when no one was around, seatbelt on. (I no longer
 use a seatbelt, only chest strap if I go out by myself. Actually a few
 close calls.

 Choking, eating bread, it got stuck very bad. Could not breath. Semi
 heimlich got it out.

 Greg

>>>
>>
>> --
>> "Petting, scratching and cuddling a dog could be soothing to the mind and
>> heart and deep meditation and almost as good for the soul as prayer." ~Dean
>> Koontz
>>
>

Re: [QUAD-L] Strange Question

[Dana Wray]

 Hi Lori, Eric,Jim, Greg, Nancy and  all fellow Quad-list  members,
I have suffered  numerous  medical situations  that could’ve ended my life.
The Lord is not finished with me yet.   Lori  and all, I commend you on
your survival  experiences. I wish I could document all my experiences like
Lori  is able to do. I  thank you all  for sharing your life stories.  I
 have had some strange experiences when septic. I was  in a coma twice.
Several situations were physician error. Yesterday after leaving a
appointment  for blood work and Prolia  shot for osteoporosis. My caregiver
hit the curb and blew out my tire and wheel  on the front right tire. I was
able to get it towed by AAA but it took an hour and a half to find someone
to bring me home. A taxi service said they did not provide that kind of
transportation.  Finally someone through AAA found out three places to
call. It happened around 5:30 PM and I got home around   9:30 PM. I am  at
blessed  that AAA waited till 10-10  large wheelchair  assessable van
 arrived. I thought it was going to be a desperate situation.  AAA  wanted
to pay for it  by credit card but the taxi company would not accept. I
thought this was strange. Has anyone else ever had this experience, when
their vehicle was not drivable?
 Dana C4-5  complete, 44 years post. 7/26/74, passenger in a motor vehicle
 accident at 20
On Fri, Dec 21, 2018 at 1:21 PM Lori Michaelson 
wrote:

> My injury (car accident) happened nearly 40 years ago and I was in the
> hospital for a total of 13 months (October 1979 to the end of November
> 1980) because I was so bad. I was not even able to sit up until I got to
> rehab so I was flat on my back for at least two thirds of that time  which
> included a neck fusion and having a tracheotomy at least 8 months. During
> that time alone I came close to dying so many times I can't even remember
> if and ever since.
>
> I had such a bad neck injury that I choke often but have figured out that
> it is from tight neck muscles so it is 100% easier for me to swallow laying
> down. I have choked over 1000 times or more whereby I almost died. A
> neurosurgeon nearly killed me in Brooklyn New York after I finally got the
> diagnosis of Posttraumatic Syringomyelia and would have easily died if my
> ex common-law husband of 13 years was not with me. They let cerebral spinal
> fluid leak out of the back of my head for two weeks without doing anything!
>
> That is only a small list of so many times and I almost died this year
> when my sodium level dropped so low that I did not know who I was, began
> chewing on my finger without even knowing it (and I would have broken it
> had my caregiver not noticed it was happening) so I was rushed to the
> hospital and spent two weeks in ICU, aspirated twice before and after the
> hospital requiring a chest tube and one week later for a total of three
> weeks in the hospital this year. Unbelievable.
>
> ~Lori
>
> On Fri, Dec 21, 2018 at 10:46 AM Eric Olson  wrote:
>
>> A couple times but try to learn something so it doesn't happen again
>>
>>
>> 
>>  Virus-free.
>> www.avast.com
>> 
>> <#m_-9073437861150003753_m_-1256766246196393347_m_1553701315410400077_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>>
>> On Thu, Dec 20, 2018 at 7:13 PM Greg  wrote:
>>
>>> Since your injury, how many times, because of your injury, have you come
>>> close to passing?
>>>
>>> Me, 3 Times...
>>>
>>> OD, medication interaction.
>>>
>>> Almost fell in Pool when no one was around, seatbelt on. (I no longer
>>> use a seatbelt, only chest strap if I go out by myself. Actually a few
>>> close calls.
>>>
>>> Choking, eating bread, it got stuck very bad. Could not breath. Semi
>>> heimlich got it out.
>>>
>>> Greg
>>>
>>
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>

Re: [QUAD-L] Strange Question

[Lori Michaelson]

My injury (car accident) happened nearly 40 years ago and I was in the
hospital for a total of 13 months (October 1979 to the end of November
1980) because I was so bad. I was not even able to sit up until I got to
rehab so I was flat on my back for at least two thirds of that time  which
included a neck fusion and having a tracheotomy at least 8 months. During
that time alone I came close to dying so many times I can't even remember
if and ever since.

I had such a bad neck injury that I choke often but have figured out that
it is from tight neck muscles so it is 100% easier for me to swallow laying
down. I have choked over 1000 times or more whereby I almost died. A
neurosurgeon nearly killed me in Brooklyn New York after I finally got the
diagnosis of Posttraumatic Syringomyelia and would have easily died if my
ex common-law husband of 13 years was not with me. They let cerebral spinal
fluid leak out of the back of my head for two weeks without doing anything!

That is only a small list of so many times and I almost died this year when
my sodium level dropped so low that I did not know who I was, began chewing
on my finger without even knowing it (and I would have broken it had my
caregiver not noticed it was happening) so I was rushed to the hospital and
spent two weeks in ICU, aspirated twice before and after the hospital
requiring a chest tube and one week later for a total of three weeks in the
hospital this year. Unbelievable.

~Lori

On Fri, Dec 21, 2018 at 10:46 AM Eric Olson  wrote:

> A couple times but try to learn something so it doesn't happen again
>
>
> 
>  Virus-free.
> www.avast.com
> 
> <#m_1553701315410400077_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>
> On Thu, Dec 20, 2018 at 7:13 PM Greg  wrote:
>
>> Since your injury, how many times, because of your injury, have you come
>> close to passing?
>>
>> Me, 3 Times...
>>
>> OD, medication interaction.
>>
>> Almost fell in Pool when no one was around, seatbelt on. (I no longer use
>> a seatbelt, only chest strap if I go out by myself. Actually a few close
>> calls.
>>
>> Choking, eating bread, it got stuck very bad. Could not breath. Semi
>> heimlich got it out.
>>
>> Greg
>>
>

-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

Re: [QUAD-L] Strange Question

[Don Smith]

Three times, food poisning, allegic reaction to medicine and pneumonia

On Thu, Dec 20, 2018 at 5:13 PM Greg  wrote:

> Since your injury, how many times, because of your injury, have you come
> close to passing?
>
> Me, 3 Times...
>
> OD, medication interaction.
>
> Almost fell in Pool when no one was around, seatbelt on. (I no longer use
> a seatbelt, only chest strap if I go out by myself. Actually a few close
> calls.
>
> Choking, eating bread, it got stuck very bad. Could not breath. Semi
> heimlich got it out.
>
> Greg
>

Re: [QUAD-L] Strange Question

[Jim Lubin]

Four or Five times all due to ventilator problems (mechanical or tube
disconnects when no one was nearby)

On Thu, Dec 20, 2018 at 5:13 PM Greg  wrote:

> Since your injury, how many times, because of your injury, have you come
> close to passing?
>
> Me, 3 Times...
>
> OD, medication interaction.
>
> Almost fell in Pool when no one was around, seatbelt on. (I no longer use
> a seatbelt, only chest strap if I go out by myself. Actually a few close
> calls.
>
> Choking, eating bread, it got stuck very bad. Could not breath. Semi
> heimlich got it out.
>
> Greg
>

Re: [QUAD-L] Strange Question

[Eric Olson]

A couple times but try to learn something so it doesn't happen again


Virus-free.
www.avast.com

<#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

On Thu, Dec 20, 2018 at 7:13 PM Greg  wrote:

> Since your injury, how many times, because of your injury, have you come
> close to passing?
>
> Me, 3 Times...
>
> OD, medication interaction.
>
> Almost fell in Pool when no one was around, seatbelt on. (I no longer use
> a seatbelt, only chest strap if I go out by myself. Actually a few close
> calls.
>
> Choking, eating bread, it got stuck very bad. Could not breath. Semi
> heimlich got it out.
>
> Greg
>

Re: [QUAD-L] Strange Question

[Greg]

What does compression socks have to do with MRIs and Heart? I've had 
MRIs with those on.

Interesting..

Greg

On 12/20/2018 8:22 PM, Danny Espinoza wrote:
A fewtimes recently... I was getting an MRI and someone put 
compression stalking on my legs which caused me to stop breathing and 
my heart ended up stopping but adrenaline brought me back all because 
of horrible spasms. Bad cases of pneumonia, UTI's, infections, sepsis 
and autonomic dysreflexia.

-Danny

 Original Message 
Subject: Re: [QUAD-L] Strange Question
From: "RONALD L PRACHT" mailto:r.pra...@sbcglobal.net>>
Date: Thu, December 20, 2018 5:54 pm
To: "Quad-list Post" mailto:quad-list@eskimo.com>>


I was injured in 98. I had a burst appendix for 5 days and almost
died. I grabbed onto the back of a car and flipped my chair. I
flipped my chair backwards and hit head on couch. Ive been hit by
a car. Almost drowned. been at the point of heat exhaustion with
no water or a/c several times. Had ad from a full bladder and
couldnt insert tube. my van engine died going down a hill and i
had no brakes. On and on.

Ron
On Thursday, December 20, 2018, 7:47:09 PM CST, Lori Michaelson
mailto:lorilivin...@gmail.com>> wrote:


Unfortunately, too many times to even list them all.

On Thu, Dec 20, 2018 at 6:13 PM Greg mailto:g...@eskimo.com>> wrote:

Since your injury, how many times, because of your injury,
have you come close to passing?

Me, 3 Times...

OD, medication interaction.

Almost fell in Pool when no one was around, seatbelt on. (I no
longer use a seatbelt, only chest strap if I go out by myself.
Actually a few close calls.

Choking, eating bread, it got stuck very bad. Could not
breath. Semi heimlich got it out.

Greg



-- 
"Petting, scratching and cuddling a dog could be soothing to the

mind and heart and deep meditation and almost as good for the soul
as prayer." ~Dean Koontz

RE: [QUAD-L] Strange Question

[Danny Espinoza]

A fewtimes recently... I was getting an MRI and someone put compression stalking on my legs which caused me to stop breathing and my heart ended up stopping but adrenaline brought me back all because of horrible spasms. Bad cases of pneumonia, UTI's, infections, sepsis and autonomic dysreflexia.-Danny


 Original Message 
Subject: Re: [QUAD-L] Strange Question
From: "RONALD L PRACHT" <r.pra...@sbcglobal.net>
Date: Thu, December 20, 2018 5:54 pm
To: "Quad-list Post" <quad-list@eskimo.com>

 I was injured in 98. I had a burst appendix for 5 days and almost died. I grabbed onto the back of a car and flipped my chair. I flipped my chair backwards and hit head on couch. Ive been hit by a car. Almost drowned. been at the point of heat exhaustion with no water or a/c several times. Had ad from a full bladder and couldnt insert tube. my van engine died going down a hill and i had no brakes. On and on.RonOn Thursday, December 20, 2018, 7:47:09 PM CST, Lori Michaelson <lorilivin...@gmail.com> wrote:Unfortunately, too many times to even list them all.On Thu, Dec 20, 2018 at 6:13 PM Greg <g...@eskimo.com> wrote:  Since your injury, how many times, because of your injury, have you come close to passing?  Me, 3 Times...  OD, medication interaction.  Almost fell in Pool when no one was around, seatbelt on. (I no longer use a seatbelt, only chest strap if I go out by myself. Actually a few close calls.  Choking, eating bread, it got stuck very bad. Could not breath. Semi heimlich got it out.  Greg   -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz  

RE: [QUAD-L] Strange Question

[Danny Espinoza]

 fewtimes ;( 


 Original Message 
Subject: Re: [QUAD-L] Strange Question
From: "Bobbie Humphreys" <bobbiehumphre...@gmail.com>
Date: Thu, December 20, 2018 5:31 pm
To: "Greg" <g...@eskimo.com>
Cc: <quad-list@eskimo.com>

For me it was double pneumonia after surgery.Bobbie On Dec 20, 2018, at 8:13 PM, Greg <g...@eskimo.com> wrote:  Since your injury, how many times, because of your injury, have you come close to passing?  Me, 3 Times...  OD, medication interaction.  Almost fell in Pool when no one was around, seatbelt on. (I no longer use a seatbelt, only chest strap if I go out by myself. Actually a few close calls.  Choking, eating bread, it got stuck very bad. Could not breath. Semi heimlich got it out.  Greg  

Re: [QUAD-L] Strange Question

[RONALD L PRACHT]

 
I was injured in 98. I had a burst appendix for 5 days and almost died. I 
grabbed onto the back of a car and flipped my chair. I flipped my chair 
backwards and hit head on couch. Ive been hit by a car. Almost drowned. been at 
the point of heat exhaustion with no water or a/c several times. Had ad from a 
full bladder and couldnt insert tube. my van engine died going down a hill and 
i had no brakes. On and on.
RonOn Thursday, December 20, 2018, 7:47:09 PM CST, Lori Michaelson 
 wrote:  
 
 Unfortunately, too many times to even list them all.
On Thu, Dec 20, 2018 at 6:13 PM Greg  wrote:

  Since your injury, how many times, because of your injury, have you come 
close to passing?
 
 Me, 3 Times...
 
 OD, medication interaction.
 
 Almost fell in Pool when no one was around, seatbelt on. (I no longer use a 
seatbelt, only chest strap if I go out by myself. Actually a few close calls.
 
 Choking, eating bread, it got stuck very bad. Could not breath. Semi heimlich 
got it out.
 
 Greg
  


-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
  

RE: [QUAD-L] Strange Question

[poajoan]

After gallbladder surgery I had 2 have an emergency tracheotomy, that went OK, 
but then one of the nurses knocked it loose and didn’t notice, but luckily my 
attendant had just come to visit and saw that I was turning purple.  She yelled 
for help on when they came the nurse said oh no see her oxygen stats are just 
fine.  My attendant yelled at her and called the code.  That created a little 
bit of hullabaloo, but it worked thank god.

 

From: Bobbie Humphreys  
Sent: Thursday, December 20, 2018 5:32 PM
To: Greg 
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Strange Question

 

For me it was double pneumonia after surgery.

Bobbie 


On Dec 20, 2018, at 8:13 PM, Greg mailto:g...@eskimo.com> > 
wrote:

Since your injury, how many times, because of your injury, have you come close 
to passing?

Me, 3 Times...

OD, medication interaction.

Almost fell in Pool when no one was around, seatbelt on. (I no longer use a 
seatbelt, only chest strap if I go out by myself. Actually a few close calls.

Choking, eating bread, it got stuck very bad. Could not breath. Semi heimlich 
got it out.

Greg

Re: [QUAD-L] Strange Question

[Lori Michaelson]

Unfortunately, too many times to even list them all.

On Thu, Dec 20, 2018 at 6:13 PM Greg  wrote:

> Since your injury, how many times, because of your injury, have you come
> close to passing?
>
> Me, 3 Times...
>
> OD, medication interaction.
>
> Almost fell in Pool when no one was around, seatbelt on. (I no longer use
> a seatbelt, only chest strap if I go out by myself. Actually a few close
> calls.
>
> Choking, eating bread, it got stuck very bad. Could not breath. Semi
> heimlich got it out.
>
> Greg
>


-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

Re: [QUAD-L] Strange Question

[Bobbie Humphreys]

For me it was double pneumonia after surgery.
Bobbie 

> On Dec 20, 2018, at 8:13 PM, Greg  wrote:
> 
> Since your injury, how many times, because of your injury, have you come 
> close to passing?
> 
> Me, 3 Times...
> 
> OD, medication interaction.
> 
> Almost fell in Pool when no one was around, seatbelt on. (I no longer use a 
> seatbelt, only chest strap if I go out by myself. Actually a few close calls.
> 
> Choking, eating bread, it got stuck very bad. Could not breath. Semi heimlich 
> got it out.
> 
> Greg

[QUAD-L] Strange Question

[Greg]

Since your injury, how many times, because of your injury, have you come 
close to passing?


Me, 3 Times...

OD, medication interaction.

Almost fell in Pool when no one was around, seatbelt on. (I no longer 
use a seatbelt, only chest strap if I go out by myself. Actually a few 
close calls.


Choking, eating bread, it got stuck very bad. Could not breath. Semi 
heimlich got it out.


Greg

[QUAD-L] Movie question

[RONALD L PRACHT]

Has anybody been to see the Freddie Mercury movie, Bohemian Rhapsody??

[QUAD-L] a question about the echo dot second-generation

[john owens]

is Echo dot second-generation a good TV remote?

[QUAD-L] Another Question

[Carolyn Boyles]

Hi All,

I have recently developed a new symptom from the SCI/TBI: hands 
releasing when you don't want them to (ie holding something in your hand).


It's been 22 years since my accident. I'm guessing it's age-related.

Does anybody else have this problem and is there a way to make it stop?

Thanks.

Carolyn

[QUAD-L] Tech question

[Bryce Willis]

Hey peeps. Tech question -- I need a program to add text to my photos. Got any 
good suggestions? Larry Willis

Sent from my iPad

[QUAD-L] Another question/electric toothbrush

[Bobbie Humphreys]

What is a good  brand?
Can you choose soft, medium or firm brushes?
What should I look  for when buying one?
Bobbie 

"You must fail in order to succeed"

Re: [QUAD-L] Burning question

[Lori Michaelson]

Yup ... that is the first thing I bought and used it for a while. Things
began to settle down on their own for a while unless I talk a lot.

I started to have a problem with my lower left tooth and my caregiver could
clearly see that one or two cavities were there. When I left my sister and
brother-in-law's home I had seen a great dentist there and everything was
fine when I left in late 2015. I later read whereby Biotene can cause
cavities.

I do not have any dental insurance and with all the other medical problems
(including being bedridden 3 months at different times after being here) I
haven't had a chance to get to a dentist here. Every... single... day is
filled with something to do or something to begun or problems I have been
having. *Sigh*

I got the name of one from a friend of mine here and I made an appointment
at one time but then had to cancel it. I have been trying to find the
opportunity ever since but other things have taken top priority. One time
when I called them they asked me if I have ever heard of the available
travel dentist or dentist outfit and what I like a number. I told them that
I hope to make it to the dentist so I said no at the time. I guess that is
an option but they probably cost an arm and a leg and a few toes and more.
My expenses have increased 50% since my husband passed away and moving away
from being able to live with my sister and brother-in-law. I never had to
pay for a 24-hour live-in caregiver before.

People better write it down in their calendars if I can write a short
e-mail. LOL.

~Lori

On Mon, Dec 26, 2016 at 6:42 PM, Danny Hearn  wrote:

> Lori, as for the dry mouth issue have any of you tried  Biotene mouthwash
> ? they sell it at stores such as walgreens, some people said it really
> helps them.  Dan**
>
>
> On Monday, December 26, 2016 7:12 PM, Lori Michaelson <
> lorilivin...@gmail.com> wrote:
>
>
> Larry...
>
> I have been on Ditropan (Oxybutynin) for 37 years.
>
> I first started out with 5 mg twice a day but then when I began to have
> some bladder spasms in 2014 after I left my first visit to my local PCP
> there (who had an office that had a pretty good size 3 inch dip entrance
> because nothing in that town is accessible except for Wal-Mart or a grocery
> store or one other physician I saw there) and going down off that drop from
> his office with 6 tires they were quickly resolved with Extended Release
> Oxybutynin - 10 mg twice a day.
>
> But now that that nurse stretched my urethra beyond all recognition
> causing me to leak terribly around my catheter I am now on Oxybutynin ER
> (15 mg) which is the maximum dose but, unfortunately, that did not solve my
> problem and now I am looking at surgery. I will never forget that woman!
>
> Anyway, to answer your question... I have never experienced burning mouth
> syndrome. Only dry mouth... which occurred when I had to up it to 15 mg
> twice a day. Dry mouth IS a side effect but, again, I only began
> experiencing it after increasing it to 15 mg extended release twice a day
> until I can get this damn problem (not caused by me) taken care of.
>
> I hope to get off of the medication simply because starting in the new
> year my co-pay for it will be over $80 a month! That is the only extremely
> high co-pay with the only Part D original Medicare can offer me with the
> medications I am on. Our government is getting worse with Medicare and
> Medicaid but I only been eligible for Original Medicare because, God
> forbid, I did something like getting any Baccalaureate Degree, a job and
> working and my husband did as well so I am not eligible for any Medicaid
> programs until I tried to find out more about and perhaps go ahead and open
> an ABLE account when it starts sometime in 2017 in Arizona. Other states
> start earlier even though it is open nationwide now. I haven't had time to
> look in depth about it because of my urology problem and making decisions
> on what exactly to do to resolve it. Which I hope to find out on January 12.
>
> How long have you been on it and when did you begin experiencing the
> burning mouth syndrome?
>
> On Mon, Dec 26, 2016 at 5:08 PM, Larry Willis 
> wrote:
>
> Question- Can extended use of ditropan (oxybutynin) lead to burning mouth
> syndrome? Anyone else here experienced such a thing? It is a miserable
> curse. Any food with even the slightest spice feels like a marriage of
> cayenne and habanero. Sprite and Crest toothpaste both make my eyes water.
> It will go away for a week or two then come roaring back. Anybody got a
> clue?
>
> Sent from my iPad
>
>
>
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>
>
>


-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

Re: [QUAD-L] Burning question

[Danny Hearn]

Lori, as for the dry mouth issue have any of you tried  Biotene mouthwash ? 
they sell it at stores such as walgreens, some people said it really helps 
them.  Dan** 

On Monday, December 26, 2016 7:12 PM, Lori Michaelson 
 wrote:
 

 Larry...
I have been on Ditropan (Oxybutynin) for 37 years. 
I first started out with 5 mg twice a day but then when I began to have some 
bladder spasms in 2014 after I left my first visit to my local PCP there (who 
had an office that had a pretty good size 3 inch dip entrance because nothing 
in that town is accessible except for Wal-Mart or a grocery store or one other 
physician I saw there) and going down off that drop from his office with 6 
tires they were quickly resolved with Extended Release Oxybutynin - 10 mg twice 
a day. 
But now that that nurse stretched my urethra beyond all recognition causing me 
to leak terribly around my catheter I am now on Oxybutynin ER (15 mg) which is 
the maximum dose but, unfortunately, that did not solve my problem and now I am 
looking at surgery. I will never forget that woman!
Anyway, to answer your question... I have never experienced burning mouth 
syndrome. Only dry mouth... which occurred when I had to up it to 15 mg twice a 
day. Dry mouth IS a side effect but, again, I only began experiencing it after 
increasing it to 15 mg extended release twice a day until I can get this damn 
problem (not caused by me) taken care of. 
I hope to get off of the medication simply because starting in the new year my 
co-pay for it will be over $80 a month! That is the only extremely high co-pay 
with the only Part D original Medicare can offer me with the medications I am 
on. Our government is getting worse with Medicare and Medicaid but I only been 
eligible for Original Medicare because, God forbid, I did something like 
getting any Baccalaureate Degree, a job and working and my husband did as well 
so I am not eligible for any Medicaid programs until I tried to find out more 
about and perhaps go ahead and open an ABLE account when it starts sometime in 
2017 in Arizona. Other states start earlier even though it is open nationwide 
now. I haven't had time to look in depth about it because of my urology problem 
and making decisions on what exactly to do to resolve it. Which I hope to find 
out on January 12.
How long have you been on it and when did you begin experiencing the burning 
mouth syndrome?
On Mon, Dec 26, 2016 at 5:08 PM, Larry Willis  wrote:

Question- Can extended use of ditropan (oxybutynin) lead to burning mouth 
syndrome? Anyone else here experienced such a thing? It is a miserable curse. 
Any food with even the slightest spice feels like a marriage of cayenne and 
habanero. Sprite and Crest toothpaste both make my eyes water. It will go away 
for a week or two then come roaring back. Anybody got a clue?

Sent from my iPad




-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz


   

Re: [QUAD-L] Burning question

[Lori Michaelson]

Larry...

I have been on Ditropan (Oxybutynin) for 37 years.

I first started out with 5 mg twice a day but then when I began to have
some bladder spasms in 2014 after I left my first visit to my local PCP
there (who had an office that had a pretty good size 3 inch dip entrance
because nothing in that town is accessible except for Wal-Mart or a grocery
store or one other physician I saw there) and going down off that drop from
his office with 6 tires they were quickly resolved with Extended Release
Oxybutynin - 10 mg twice a day.

But now that that nurse stretched my urethra beyond all recognition causing
me to leak terribly around my catheter I am now on Oxybutynin ER (15 mg)
which is the maximum dose but, unfortunately, that did not solve my problem
and now I am looking at surgery. I will never forget that woman!

Anyway, to answer your question... I have never experienced burning mouth
syndrome. Only dry mouth... which occurred when I had to up it to 15 mg
twice a day. Dry mouth IS a side effect but, again, I only began
experiencing it after increasing it to 15 mg extended release twice a day
until I can get this damn problem (not caused by me) taken care of.

I hope to get off of the medication simply because starting in the new year
my co-pay for it will be over $80 a month! That is the only extremely high
co-pay with the only Part D original Medicare can offer me with the
medications I am on. Our government is getting worse with Medicare and
Medicaid but I only been eligible for Original Medicare because, God
forbid, I did something like getting any Baccalaureate Degree, a job and
working and my husband did as well so I am not eligible for any Medicaid
programs until I tried to find out more about and perhaps go ahead and open
an ABLE account when it starts sometime in 2017 in Arizona. Other states
start earlier even though it is open nationwide now. I haven't had time to
look in depth about it because of my urology problem and making decisions
on what exactly to do to resolve it. Which I hope to find out on January 12.

How long have you been on it and when did you begin experiencing the
burning mouth syndrome?

On Mon, Dec 26, 2016 at 5:08 PM, Larry Willis 
wrote:

> Question- Can extended use of ditropan (oxybutynin) lead to burning mouth
> syndrome? Anyone else here experienced such a thing? It is a miserable
> curse. Any food with even the slightest spice feels like a marriage of
> cayenne and habanero. Sprite and Crest toothpaste both make my eyes water.
> It will go away for a week or two then come roaring back. Anybody got a
> clue?
>
> Sent from my iPad
>



-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

RE: [QUAD-L] Burning question

[Kay at Amplified Agility]

Larry, you might find this page useful.  Scroll part way down and click on
link to drugs that could cause and the other link "conditions" that could
cause...it's useful data.  Don't see ditropan on the list.  Might be
something else as cause...

http://www.ehealthme.com/condition/burning%20mouth%20syndrome/

Warmly,
Kay



-Original Message-
From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Monday, December 26, 2016 4:09 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Burning question

Question- Can extended use of ditropan (oxybutynin) lead to burning mouth
syndrome? Anyone else here experienced such a thing? It is a miserable
curse. Any food with even the slightest spice feels like a marriage of
cayenne and habanero. Sprite and Crest toothpaste both make my eyes water.
It will go away for a week or two then come roaring back. Anybody got a
clue?

Sent from my iPad

[QUAD-L] Burning question

[Larry Willis]

Question- Can extended use of ditropan (oxybutynin) lead to burning mouth 
syndrome? Anyone else here experienced such a thing? It is a miserable curse. 
Any food with even the slightest spice feels like a marriage of cayenne and 
habanero. Sprite and Crest toothpaste both make my eyes water. It will go away 
for a week or two then come roaring back. Anybody got a clue?

Sent from my iPad

[QUAD-L] Mattress question

[Noel]

Any chance somebody has tried a Purple Mattress? Good, bad?
https://onpurple.com/

Re: [QUAD-L] Bluetooth question

[wheelchair]

If you are truly interested in the Telca Sheild,  Ask your State's  
Adaptive Tech Dept to purchase one for their inventory and try it for 90 
days...  
FREE
 
Best Wishes
 
 
In a message dated 11/12/2016 12:11:56 A.M. Central Standard Time,  
jlu...@eskimo.com writes:

Take a look at the Telca Sheild http://gettecla.com/  


There are videos here 
https://www.youtube.com/channel/UCydaubYIt9jAX-Gb7jeS-6Q


I have one and I can use the iPad with it using a sip and puff switch.  You 
can use one or two switches or a multi-switch joystick.


On Fri, Nov 11, 2016 at 5:14 PM, <_wheelchair@aol.com_ 
(mailto:wheelch...@aol.com) > wrote:


If you have the opportunity, consider.. _www.nobuttonsheadset.com_ 
(http://www.nobuttonsheadset.com/)   
 
It won't cost you a penny to look n see.  See if your State  Adaptive Tech 
Dept will purchase one and then let you try it out, again  free.
 
Good Luck 
Best Wishes
 
 

 
In a message dated 11/11/2016 5:17:12 P.M. Central Standard Time, 
_n148dp@hotmail.com_ (mailto:n14...@hotmail.com)  writes:

 
I am trying to figure out how I can use a cell phone and be able  to turn 
it on, without touching it. 
I have been told, a Bluetooth in my ear would accomplish this. But I am  
trying to figure out if I had a Bluetooth on my head, would I be  able to turn 
it on  By turning my head into the pillow. 

I use a U-shaped neck pillow to support my head and hold it up so I can  
see my computer screen, because without it I am looking at the ceiling. So  I 
would be turning my head into the neck pillow, which is relatively hard.  If 
any of you have a Bluetooth and a neck pillow.. Please check this out  for 
me and tell me if it works. Thank you guys so much 

Debra Scruggs-Scruggs phalanx-dragon  slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom  of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced  MS and living in a nursing home
Phone: _561-743-5093_ (tel:561-743-5093)  Room 227B
SC student 20yrs   
ROMANS 8:28  
B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING  EARTH 

Re: [QUAD-L] Bluetooth question

[Jim Lubin]

Take a look at the Telca Sheild http://gettecla.com/

There are videos here
https://www.youtube.com/channel/UCydaubYIt9jAX-Gb7jeS-6Q

I have one and I can use the iPad with it using a sip and puff switch. You
can use one or two switches or a multi-switch joystick.

On Fri, Nov 11, 2016 at 5:14 PM,  wrote:

> If you have the opportunity, consider.. www.nobuttonsheadset.com
>
> It won't cost you a penny to look n see.  See if your State Adaptive Tech
> Dept will purchase one and then let you try it out, again free.
>
> Good Luck
> Best Wishes
>
> In a message dated 11/11/2016 5:17:12 P.M. Central Standard Time,
> n14...@hotmail.com writes:
>
> I am trying to figure out how I can use a cell phone and be able to turn
> it on, without touching it.
>
> I have been told, a Bluetooth in my ear would accomplish this. But I am
> trying to figure out if I had a Bluetooth on my head, would I be able to
> turn it on  By turning my head into the pillow.
>
>
> I use a U-shaped neck pillow to support my head and hold it up so I can
> see my computer screen, because without it I am looking at the ceiling. So
> I would be turning my head into the neck pillow, which is relatively hard.
> If any of you have a Bluetooth and a neck pillow.. Please check this out
> for me and tell me if it works. Thank you guys so much
>
>
>
>
>
>
>
> *Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH.
> 9Formerly: Homeschooling mom of 9 and pvt. pilotCurrently: Quadrapeligic
> due to advanced MS and living in a nursing homePhone: 561-743-5093
> <561-743-5093> Room 227BSC student 20yrs  ROMANS 8:28*
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
>
>

Re: [QUAD-L] Bluetooth question

[wheelchair]

If you have the opportunity, consider.. _www.nobuttonsheadset.com_ 
(http://www.nobuttonsheadset.com)   
 
It won't cost you a penny to look n see.  See if your State Adaptive  Tech 
Dept will purchase one and then let you try it out, again free.
 
Good Luck 
Best Wishes
 
 
In a message dated 11/11/2016 5:17:12 P.M. Central Standard Time,  
n14...@hotmail.com writes:

 
I am trying to figure out how I can use a cell phone and be able to  turn 
it on, without touching it. 
I have been told, a Bluetooth in my ear would accomplish this. But I am  
trying to figure out if I had a Bluetooth on my head, would I be  able to turn 
it on  By turning my head into the pillow. 

I use a U-shaped neck pillow to support my head and hold it up so I can see 
 my computer screen, because without it I am looking at the ceiling. So I 
would  be turning my head into the neck pillow, which is relatively hard. If 
any of  you have a Bluetooth and a neck pillow.. Please check this out for 
me and tell  me if it works. Thank you guys so much 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER  OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and  pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a  nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs   
ROMANS 8:28  
B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING  EARTH 

[QUAD-L] Bluetooth question

[DEBRA DEW]

I am trying to figure out how I can use a cell phone and be able to turn it on, 
without touching it.

I have been told, a Bluetooth in my ear would accomplish this. But I am trying 
to figure out if I had a Bluetooth on my head, would I be able to turn it on  
By turning my head into the pillow.


I use a U-shaped neck pillow to support my head and hold it up so I can see my 
computer screen, because without it I am looking at the ceiling. So I would be 
turning my head into the neck pillow, which is relatively hard. If any of you 
have a Bluetooth and a neck pillow.. Please check this out for me and tell me 
if it works. Thank you guys so much


Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-743-5093 Room 227B
SC student 20yrs
ROMANS 8:28
B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH

Re: Sneaky changes within the system and_Re: [QUAD-L] Cushion question

[Lori Michaelson]

Bobbie... How then were you able to get the Hill Rom bed this year? Ordered
by a wound care physician?

Also, has anyone been denied rehab power wheelchair adaptations since July
1 when we were notified here on the quad list that Medicare and Medicaid
were going to stop paying for those?

On Mon, Aug 1, 2016 at 5:12 PM, Bobbie Humphreys <bobbiehumphre...@gmail.com
> wrote:

> I had not gotten a hospital bed fro my insurance company, Medicaid, since
> the 1970s
> This year I requested a fully electric bed and was completely denied.
> I just hope that insurance companies don't start denying electric CHAIRS!!!
> Bobbie
>
> Smile Everyday
>
> On Aug 1, 2016, at 4:56 PM, Lori Michaelson <lorilivin...@gmail.com>
> wrote:
>
> Yeah Eric I found out six months ago (when moving from PA back to Arizona,
> and wanting to bring my old fully electric bed with me but not having it
> fit in the U-Haul and wanting Medicare to purchase me a new, fully electric
> hospital bed) that Medicare will now not pay for a fully electric bed, but
> only a semi-electric bed. I don't know when that started (Medicare cutbacks
> with fully adjustable hospital beds) , but it was a surprise to me.
>
> That sucks because my caregivers need the height adjustment for their
> backs and for other reasons (transferring to and from the bed to the chair,
> etc.). Fortunately, I was able to find a lady who is selling new fully
> electric beds for only $200 so I took that opportunity to purchase one
> since my old hospital bed was older than 20 years old but still working and
> chugging along.
>
> ~Lori
>
> On Mon, Aug 1, 2016 at 3:26 PM, Eric Olson <whee...@wi.rr.com> wrote:
>
>> My bed is 20 years old and on it's last legs but all Medicare pays for is
>> a crappy semi-electric thing.  That would be a downgrade to my current bed.
>>
>> On 7/31/2016 2:56 PM, Bobbie Humphreys wrote:
>>
>> I got a band new Hill Rom hospital bed AND a Hill Rom hi tec alternating
>> pressure mattress, the VERY best they have just this year.
>> I've been having sores on my butt for 25 years or more.
>> I've been in bed since Christmas and my wound is healed ... almost.
>> But, I got 2 different sores since I've been in bed turning and on the
>> supper duper mattress.
>> I'm so ready to just get up and live. But I'm talking about getting
>> up 3 days a week for just 7-8 hours per day.
>> Bobbie
>>
>> Smile Everyday
>>
>> On Jul 30, 2016, at 10:03 PM, cviewe...@aol.com wrote:
>>
>> With pressure sores...you have to keep off it. Yes, stay in bed 24/7.  I
>> have been there, done that. It took 6 months to clear.  I use a Roho and am
>> pressure sore free now.
>> Have someone check your bottom often. I used to have to go to the wound
>> center every week until it cleared.For 6 months the only time I was off my
>> butt was the day I went to the wound center. Never want to do that again.
>> Rose
>>
>> In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time,
>> lwillis82...@gmail.com writes:
>>
>> I have had a pressure sore on my bottom for over ten years now. It
>> refuses to heal. I got it during a hospital stay for an infection. I got a
>> roho shortly thereafter. It healed other sores but not this one. I thought
>> I would give this one a try.
>>
>> -- Forwarded message --
>> From: <cviewe...@aol.com>
>> Date: Saturday, July 30, 2016
>> Subject: Re: [QUAD-L] Cushion question
>> To: lwillis82...@gmail.com
>>
>>
>> Is your current Roho not working? I have used a Roho for more than 30
>> years and would be afraid to go to something else and possibly get a
>> pressure sore. Rose
>>
>> In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time,
>> lwillis82...@gmail.com writes:
>>
>> Hey guys. I am trying to get a new chair and cushion. My advisor wants me
>> to get a new style cushion by Ride Designs. Any of you familiar with it?
>> Take a look at ridedesigns.com and tell me what you think. I value your
>> opinion. I currently use a roho. Thanks, Larry WILLIS
>>
>> Larry Willis
>> Retired and proud of it
>>
>>
>> Begin forwarded message:
>>
>> *Resent-From:* quad-list@eskimo.com
>> *From:* Bobbie Humphreys <bobbiehumphre...@gmail.com>
>> *Date:* July 27, 2016 at 2:39:21 PM EDT
>> *To:* quad-list@eskimo.com
>> *Subject:* *[QUAD-L] Pens?*
>>
>> I wanted to ask what kind of pens dose everybody use to write with?
>> I'm looking for a retractable pen that I don't need to apply much or any
>> pressure.
>> Bobbie
>>
&g

Re: Sneaky changes within the system and_Re: [QUAD-L] Cushion question

[Bobbie Humphreys]

I had not gotten a hospital bed fro my insurance company, Medicaid, since the 
1970s
This year I requested a fully electric bed and was completely denied.
I just hope that insurance companies don't start denying electric CHAIRS!!!
Bobbie

Smile Everyday

> On Aug 1, 2016, at 4:56 PM, Lori Michaelson <lorilivin...@gmail.com> wrote:
> 
> Yeah Eric I found out six months ago (when moving from PA back to Arizona, 
> and wanting to bring my old fully electric bed with me but not having it fit 
> in the U-Haul and wanting Medicare to purchase me a new, fully electric 
> hospital bed) that Medicare will now not pay for a fully electric bed, but 
> only a semi-electric bed. I don't know when that started (Medicare cutbacks 
> with fully adjustable hospital beds) , but it was a surprise to me.
> 
> That sucks because my caregivers need the height adjustment for their backs 
> and for other reasons (transferring to and from the bed to the chair, etc.). 
> Fortunately, I was able to find a lady who is selling new fully electric beds 
> for only $200 so I took that opportunity to purchase one since my old 
> hospital bed was older than 20 years old but still working and chugging along.
> 
> ~Lori
> 
>> On Mon, Aug 1, 2016 at 3:26 PM, Eric Olson <whee...@wi.rr.com> wrote:
>> My bed is 20 years old and on it's last legs but all Medicare pays for is a 
>> crappy semi-electric thing.  That would be a downgrade to my current bed.
>> 
>>> On 7/31/2016 2:56 PM, Bobbie Humphreys wrote:
>>> I got a band new Hill Rom hospital bed AND a Hill Rom hi tec alternating 
>>> pressure mattress, the VERY best they have just this year.
>>> I've been having sores on my butt for 25 years or more.
>>> I've been in bed since Christmas and my wound is healed ... almost.
>>> But, I got 2 different sores since I've been in bed turning and on the 
>>> supper duper mattress.
>>> I'm so ready to just get up and live. But I'm talking about getting up 
>>> 3 days a week for just 7-8 hours per day.
>>> Bobbie
>>> 
>>> Smile Everyday
>>> 
>>> On Jul 30, 2016, at 10:03 PM, cviewe...@aol.com wrote:
>>> 
>>>> With pressure sores...you have to keep off it. Yes, stay in bed 24/7.  I 
>>>> have been there, done that. It took 6 months to clear.  I use a Roho and 
>>>> am pressure sore free now.
>>>> Have someone check your bottom often. I used to have to go to the wound 
>>>> center every week until it cleared.For 6 months the only time I was off my 
>>>> butt was the day I went to the wound center. Never want to do that again.  
>>>>  Rose
>>>>  
>>>> In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time, 
>>>> lwillis82...@gmail.com writes:
>>>> I have had a pressure sore on my bottom for over ten years now. It refuses 
>>>> to heal. I got it during a hospital stay for an infection. I got a roho 
>>>> shortly thereafter. It healed other sores but not this one. I thought I 
>>>> would give this one a try.
>>>> 
>>>> -- Forwarded message --
>>>> From: <cviewe...@aol.com>
>>>> Date: Saturday, July 30, 2016
>>>> Subject: Re: [QUAD-L] Cushion question
>>>> To: lwillis82...@gmail.com
>>>> 
>>>> 
>>>> Is your current Roho not working? I have used a Roho for more than 30 
>>>> years and would be afraid to go to something else and possibly get a 
>>>> pressure sore. Rose
>>>>  
>>>> In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time, 
>>>> lwillis82...@gmail.com writes:
>>>> Hey guys. I am trying to get a new chair and cushion. My advisor wants me 
>>>> to get a new style cushion by Ride Designs. Any of you familiar with it? 
>>>> Take a look at ridedesigns.com and tell me what you think. I value your 
>>>> opinion. I currently use a roho. Thanks, Larry WILLIS
>>>> 
>>>> Larry Willis
>>>> Retired and proud of it
>>>> 
>>>> 
>>>> Begin forwarded message:
>>>> 
>>>>> Resent-From: quad-list@eskimo.com
>>>>> From: Bobbie Humphreys <bobbiehumphre...@gmail.com>
>>>>> Date: July 27, 2016 at 2:39:21 PM EDT
>>>>> To: quad-list@eskimo.com
>>>>> Subject: [QUAD-L] Pens?
>>>>> I wanted to ask what kind of pens dose everybody use to write with?
>>>>> I'm looking for a retractable pen that I don't need to apply much or any 
>>>>> pressure.
>>>>> Bobbie
>>>>> 
>>>>> Smile Everyday
>>>> =
>> 
>> 
>> 
>>  
>> This email has been checked for viruses by Avast antivirus software. 
>> www.avast.com
>> 
> 
> 
> 
> -- 
> "Petting, scratching and cuddling a dog could be soothing to the mind and 
> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
> Koontz

Sneaky changes within the system and_Re: [QUAD-L] Cushion question

[Lori Michaelson]

Yeah Eric I found out six months ago (when moving from PA back to Arizona,
and wanting to bring my old fully electric bed with me but not having it
fit in the U-Haul and wanting Medicare to purchase me a new, fully electric
hospital bed) that Medicare will now not pay for a fully electric bed, but
only a semi-electric bed. I don't know when that started (Medicare cutbacks
with fully adjustable hospital beds) , but it was a surprise to me.

That sucks because my caregivers need the height adjustment for their backs
and for other reasons (transferring to and from the bed to the chair,
etc.). Fortunately, I was able to find a lady who is selling new fully
electric beds for only $200 so I took that opportunity to purchase one
since my old hospital bed was older than 20 years old but still working and
chugging along.

~Lori

On Mon, Aug 1, 2016 at 3:26 PM, Eric Olson <whee...@wi.rr.com> wrote:

> My bed is 20 years old and on it's last legs but all Medicare pays for is
> a crappy semi-electric thing.  That would be a downgrade to my current bed.
>
> On 7/31/2016 2:56 PM, Bobbie Humphreys wrote:
>
> I got a band new Hill Rom hospital bed AND a Hill Rom hi tec alternating
> pressure mattress, the VERY best they have just this year.
> I've been having sores on my butt for 25 years or more.
> I've been in bed since Christmas and my wound is healed ... almost.
> But, I got 2 different sores since I've been in bed turning and on the
> supper duper mattress.
> I'm so ready to just get up and live. But I'm talking about getting up
> 3 days a week for just 7-8 hours per day.
> Bobbie
>
> Smile Everyday
>
> On Jul 30, 2016, at 10:03 PM, cviewe...@aol.com wrote:
>
> With pressure sores...you have to keep off it. Yes, stay in bed 24/7.  I
> have been there, done that. It took 6 months to clear.  I use a Roho and am
> pressure sore free now.
> Have someone check your bottom often. I used to have to go to the wound
> center every week until it cleared.For 6 months the only time I was off my
> butt was the day I went to the wound center. Never want to do that again.
> Rose
>
> In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time,
> lwillis82...@gmail.com writes:
>
> I have had a pressure sore on my bottom for over ten years now. It refuses
> to heal. I got it during a hospital stay for an infection. I got a roho
> shortly thereafter. It healed other sores but not this one. I thought I
> would give this one a try.
>
> ------ Forwarded message --
> From: <cviewe...@aol.com>
> Date: Saturday, July 30, 2016
> Subject: Re: [QUAD-L] Cushion question
> To: lwillis82...@gmail.com
>
>
> Is your current Roho not working? I have used a Roho for more than 30
> years and would be afraid to go to something else and possibly get a
> pressure sore. Rose
>
> In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time,
> lwillis82...@gmail.com writes:
>
> Hey guys. I am trying to get a new chair and cushion. My advisor wants me
> to get a new style cushion by Ride Designs. Any of you familiar with it?
> Take a look at ridedesigns.com and tell me what you think. I value your
> opinion. I currently use a roho. Thanks, Larry WILLIS
>
> Larry Willis
> Retired and proud of it
>
>
> Begin forwarded message:
>
> *Resent-From:* quad-list@eskimo.com
> *From:* Bobbie Humphreys <bobbiehumphre...@gmail.com>
> *Date:* July 27, 2016 at 2:39:21 PM EDT
> *To:* quad-list@eskimo.com
> *Subject:* *[QUAD-L] Pens?*
>
> I wanted to ask what kind of pens dose everybody use to write with?
> I'm looking for a retractable pen that I don't need to apply much or any
> pressure.
> Bobbie
>
> Smile Everyday
>
> =
>
>
>
>
>
> --
> [image: Avast logo] <https://www.avast.com/antivirus>
>
> This email has been checked for viruses by Avast antivirus software.
> www.avast.com <https://www.avast.com/antivirus>
>
>


-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

Re: [QUAD-L] Cushion question

[Eric Olson]

  
  
My feeling has always been if it ain't broke...  


On 7/29/2016 8:42 PM, Larry Willis
  wrote:


  
  Hey guys. I am trying to get a new chair and cushion. My
advisor wants me to get a new style cushion by Ride Designs. Any
of you familiar with it? Take a look at ridedesigns.com
and tell me what you think. I value your opinion. I currently
use a roho. Thanks, Larry WILLIS

Larry Willis
Retired and proud of it


  
  
Begin forwarded message:

  
  
Resent-From: quad-list@eskimo.com
  From: Bobbie Humphreys 
  Date: July 27, 2016 at 2:39:21 PM EDT
  To: quad-list@eskimo.com
  Subject: [QUAD-L] Pens?
  

  
  
I wanted to ask what kind of pens dose everybody use
to write with?
  I'm looking for a retractable pen that I don't need to
apply much or any pressure.
  Bobbie
  
  Smile Everyday

  


  



	
		
			

			
		
		
			
This email has been checked for viruses by Avast antivirus software.
www.avast.com
			
		
	

Re: [QUAD-L] Cushion question

[Eric Olson]

  
  
My bed is 20 years old and on it's last legs but all Medicare
  pays for is a crappy semi-electric thing.  That would be a
  downgrade to my current bed.


On 7/31/2016 2:56 PM, Bobbie Humphreys
  wrote:


  
  I got a band new Hill Rom hospital bed AND a Hill Rom hi tec
alternating pressure mattress, the VERY best they have just this
year.
  I've been having sores on my butt for
25 years or more.
  I've been in bed since Christmas and
my wound is healed ... almost.
  But, I got 2 different sores since
I've been in bed turning and on the supper duper mattress.
  I'm so ready to just get up and
live. But I'm talking about getting up 3 days a week for just
7-8 hours per day.
  Bobbie

Smile Everyday
  
On Jul 30, 2016, at 10:03 PM, cviewe...@aol.com wrote:

  
  

  
  
  
With pressure sores...you have to keep off it. Yes,
  stay in bed 24/7.  I have been there, done that. It took 6
  months to clear.  I use a Roho and am pressure sore free
  now.
Have someone check your bottom often. I used to have to
  go to the wound center every week until it cleared.For 6
  months the only time I was off my butt was the day I went
  to the wound center. Never want to do that again.   Rose
 

  In a message dated 7/30/2016 9:17:58 P.M. Eastern
Daylight Time, lwillis82...@gmail.com
writes:
  I have had a pressure sore on
  my bottom for over ten years now. It refuses to heal.
  I got it during a hospital stay for an infection. I
  got a roho shortly thereafter. It healed other sores
  but not this one. I thought I would give this one a
  try.
  
  -- Forwarded message --
  From: <cviewe...@aol.com>
  Date: Saturday, July 30, 2016
  Subject: Re: [QUAD-L] Cushion question
  To: lwillis82...@gmail.com
  
  
  
  Is your current Roho not working? I have used
a Roho for more than 30 years and would be
afraid to go to something else and possibly get
a pressure sore. Rose
   
  
In a message dated 7/29/2016 9:42:50 P.M.
  Eastern Daylight Time, lwillis82...@gmail.com
  writes:

Hey guys. I am trying to get a new
  chair and cushion. My advisor wants me to
  get a new style cushion by Ride Designs.
  Any of you familiar with it? Take a look
  at ridedesigns.com and
  tell me what you think. I value your
  opinion. I currently use a roho. Thanks,
  Larry WILLIS
  
  Larry Willis
  Retired and proud of it
  
  


  Begin forwarded message:
  


  Resent-From: quad-list@eskimo.com
From: Bobbie Humphreys <bobbiehumphre...@gmail.com>
Date: July 27, 2016 at 2:39:21 PM
EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Pens?

  


  I wanted to ask what kind of
  pens dose everybody use to write with?
I'm looking for a retractable pen
  that I don't need to apply much or any
  pressure.
Bobbie

Smile Everyday
  

=
  

  


  
  


  



	
		
			

			
		
		
			
This email has been checked for viruses by Avast antivi

Re: [QUAD-L] Cushion question

[diannal767]

I s agree as well. I have mantle cell lymphoma, a cousin to leukemia. 
Diagnosed in 2013. By all studies, it could return in 3 yrs in which chemo will 
have no effect. There has been a pill that came out in 2014. If my body can't 
tolerate it, I'm done! So there comes a time in which we have to look at the 
quality of life!!!
Dianna (still dealing with a stage 4 wound since last summer)


I sooo agree with you Larry
Bobbie

Smile Everyday

On Jul 31, 2016, at 4:32 PM, Larry Willis <lwillis82...@gmail.com> wrote:



I know relieving all pressure is absolutely essential to healing a pressure 
sore. But I simply refuse to stay in bed for six months. I know it sounds awful 
negative, but I refuse to waste six months of life on a miserable bed stay. 
I'll soon be 65, and will be 45 years post next Sunday, Aug 7. Like Joan, I 
choose to roll the dice. Whatever the outcome, I'll live with it.or die 
with it. Regardless, I'll face this world with my ass in the saddle. Larry 
Willis






-Original Message-
From: Bobbie Humphreys <bobbiehumphre...@gmail.com>
To: Larry Willis <lwillis82...@gmail.com>
Cc: quad-list <quad-list@eskimo.com>
Sent: Sun, Jul 31, 2016 8:33 pm
Subject: Re: [QUAD-L] Cushion question



I sooo agree with you Larry
Bobbie

Smile Everyday

On Jul 31, 2016, at 4:32 PM, Larry Willis <lwillis82...@gmail.com> wrote:



I know relieving all pressure is absolutely essential to healing a pressure 
sore. But I simply refuse to stay in bed for six months. I know it sounds awful 
negative, but I refuse to waste six months of life on a miserable bed stay. 
I'll soon be 65, and will be 45 years post next Sunday, Aug 7. Like Joan, I 
choose to roll the dice. Whatever the outcome, I'll live with it.or die 
with it. Regardless, I'll face this world with my ass in the saddle. Larry 
Willis

Larry Willis
Retired and proud of it




Begin forwarded message:



From: Bobbie Humphreys <bobbiehumphre...@gmail.com>
Date: July 31, 2016 at 3:56:55 PM EDT
To: cviewe...@aol.com
Cc: lwillis82...@gmail.com, quad-list@eskimo.com
Subject: Re: [QUAD-L] Cushion question




I got a band new Hill Rom hospital bed AND a Hill Rom hi tec alternating 
pressure mattress, the VERY best they have just this year.
I've been having sores on my butt for 25 years or more.
I've been in bed since Christmas and my wound is healed ... almost.
But, I got 2 different sores since I've been in bed turning and on the supper 
duper mattress.
I'm so ready to just get up and live. But I'm talking about getting up 3 
days a week for just 7-8 hours per day.
Bobbie

Smile Everyday

On Jul 30, 2016, at 10:03 PM, cviewe...@aol.com wrote:



With pressure sores...you have to keep off it. Yes, stay in bed 24/7.  I have 
been there, done that. It took 6 months to clear.  I use a Roho and am pressure 
sore free now.
Have someone check your bottom often. I used to have to go to the wound center 
every week until it cleared.For 6 months the only time I was off my butt was 
the day I went to the wound center. Never want to do that again.   Rose
 

In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time, 
lwillis82...@gmail.com writes:
I have   had a pressure sore on my bottom for over ten years now. It refuses to 
heal. I   got it during a hospital stay for an infection. I got a roho shortly  
 thereafter. It healed other sores but not this one. I thought I would give   
this one a try.

-- Forwarded message --
From:   <cviewe...@aol.com>
Date: Saturday,   July 30, 2016
Subject: Re: [QUAD-L] Cushion question
To: lwillis82...@gmail.com


  
  
Is your current Roho not working? I have used a Roho for more than 30   years 
and would be afraid to go to something else and possibly get a pressure   sore. 
Rose
  
 
  
  
In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time, 
lwillis82...@gmail.com writes:
  

Hey guys. I am trying to get a new chair and cushion. My advisor wants me 
to get a new style cushion by Ride Designs. Any of you familiar with it? 
Take a look at ridedesigns.com and tell me what you think. I value your 
opinion. I currently use a roho. Thanks, Larry WILLIS

Larry Willis 
Retired and proud of it





Begin forwarded message:



  
Resent-From: quad-list@eskimo.com
From: Bobbie Humphreys   <bobbiehumphre...@gmail.com>
Date: July 27,   2016 at 2:39:21 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L]   Pens?



  
I wanted to ask what kind of pens dose everybody use to write   with?
I'm looking for a retractable pen that I don't need   to apply much or any  
 pressure.
Bobbie

Smile   Everyday

=

Re: [QUAD-L] Cushion question

[Bobbie Humphreys]

I sooo agree with you Larry
Bobbie

Smile Everyday

> On Jul 31, 2016, at 4:32 PM, Larry Willis <lwillis82...@gmail.com> wrote:
> 
> I know relieving all pressure is absolutely essential to healing a pressure 
> sore. But I simply refuse to stay in bed for six months. I know it sounds 
> awful negative, but I refuse to waste six months of life on a miserable bed 
> stay. I'll soon be 65, and will be 45 years post next Sunday, Aug 7. Like 
> Joan, I choose to roll the dice. Whatever the outcome, I'll live with 
> it.or die with it. Regardless, I'll face this world with my ass in the 
> saddle. Larry Willis
> 
> Larry Willis
> Retired and proud of it
> 
> 
> Begin forwarded message:
> 
>> From: Bobbie Humphreys <bobbiehumphre...@gmail.com>
>> Date: July 31, 2016 at 3:56:55 PM EDT
>> To: cviewe...@aol.com
>> Cc: lwillis82...@gmail.com, quad-list@eskimo.com
>> Subject: Re: [QUAD-L] Cushion question
>> 
>> I got a band new Hill Rom hospital bed AND a Hill Rom hi tec alternating 
>> pressure mattress, the VERY best they have just this year.
>> I've been having sores on my butt for 25 years or more.
>> I've been in bed since Christmas and my wound is healed ... almost.
>> But, I got 2 different sores since I've been in bed turning and on the 
>> supper duper mattress.
>> I'm so ready to just get up and live. But I'm talking about getting up 3 
>> days a week for just 7-8 hours per day.
>> Bobbie
>> 
>> Smile Everyday
>> 
>>> On Jul 30, 2016, at 10:03 PM, cviewe...@aol.com wrote:
>>> 
>>> With pressure sores...you have to keep off it. Yes, stay in bed 24/7.  I 
>>> have been there, done that. It took 6 months to clear.  I use a Roho and am 
>>> pressure sore free now.
>>> Have someone check your bottom often. I used to have to go to the wound 
>>> center every week until it cleared.For 6 months the only time I was off my 
>>> butt was the day I went to the wound center. Never want to do that again.   
>>> Rose
>>>  
>>> In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time, 
>>> lwillis82...@gmail.com writes:
>>> I have had a pressure sore on my bottom for over ten years now. It refuses 
>>> to heal. I got it during a hospital stay for an infection. I got a roho 
>>> shortly thereafter. It healed other sores but not this one. I thought I 
>>> would give this one a try.
>>> 
>>> -- Forwarded message --
>>> From: <cviewe...@aol.com>
>>> Date: Saturday, July 30, 2016
>>> Subject: Re: [QUAD-L] Cushion question
>>> To: lwillis82...@gmail.com
>>> 
>>> 
>>> Is your current Roho not working? I have used a Roho for more than 30 years 
>>> and would be afraid to go to something else and possibly get a pressure 
>>> sore. Rose
>>>  
>>> In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time, 
>>> lwillis82...@gmail.com writes:
>>> Hey guys. I am trying to get a new chair and cushion. My advisor wants me 
>>> to get a new style cushion by Ride Designs. Any of you familiar with it? 
>>> Take a look at ridedesigns.com and tell me what you think. I value your 
>>> opinion. I currently use a roho. Thanks, Larry WILLIS
>>> 
>>> Larry Willis
>>> Retired and proud of it
>>> 
>>> 
>>> Begin forwarded message:
>>> 
>>>> Resent-From: quad-list@eskimo.com
>>>> From: Bobbie Humphreys <bobbiehumphre...@gmail.com>
>>>> Date: July 27, 2016 at 2:39:21 PM EDT
>>>> To: quad-list@eskimo.com
>>>> Subject: [QUAD-L] Pens?
>>>> I wanted to ask what kind of pens dose everybody use to write with?
>>>> I'm looking for a retractable pen that I don't need to apply much or any 
>>>> pressure.
>>>> Bobbie
>>>> 
>>>> Smile Everyday
>>> =
>>> 

Re: [QUAD-L] Cushion question

[Bobbie Humphreys]

I got a band new Hill Rom hospital bed AND a Hill Rom hi tec alternating 
pressure mattress, the VERY best they have just this year.
I've been having sores on my butt for 25 years or more.
I've been in bed since Christmas and my wound is healed ... almost.
But, I got 2 different sores since I've been in bed turning and on the supper 
duper mattress.
I'm so ready to just get up and live. But I'm talking about getting up 3 
days a week for just 7-8 hours per day.
Bobbie

Smile Everyday

> On Jul 30, 2016, at 10:03 PM, cviewe...@aol.com wrote:
> 
> With pressure sores...you have to keep off it. Yes, stay in bed 24/7.  I have 
> been there, done that. It took 6 months to clear.  I use a Roho and am 
> pressure sore free now.
> Have someone check your bottom often. I used to have to go to the wound 
> center every week until it cleared.For 6 months the only time I was off my 
> butt was the day I went to the wound center. Never want to do that again.   
> Rose
>  
> In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time, 
> lwillis82...@gmail.com writes:
> I have had a pressure sore on my bottom for over ten years now. It refuses to 
> heal. I got it during a hospital stay for an infection. I got a roho shortly 
> thereafter. It healed other sores but not this one. I thought I would give 
> this one a try.
> 
> -- Forwarded message --
> From: <cviewe...@aol.com>
> Date: Saturday, July 30, 2016
> Subject: Re: [QUAD-L] Cushion question
> To: lwillis82...@gmail.com
> 
> 
> Is your current Roho not working? I have used a Roho for more than 30 years 
> and would be afraid to go to something else and possibly get a pressure sore. 
> Rose
>  
> In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time, 
> lwillis82...@gmail.com writes:
> Hey guys. I am trying to get a new chair and cushion. My advisor wants me to 
> get a new style cushion by Ride Designs. Any of you familiar with it? Take a 
> look at ridedesigns.com and tell me what you think. I value your opinion. I 
> currently use a roho. Thanks, Larry WILLIS
> 
> Larry Willis
> Retired and proud of it
> 
> 
> Begin forwarded message:
> 
>> Resent-From: quad-list@eskimo.com
>> From: Bobbie Humphreys <bobbiehumphre...@gmail.com>
>> Date: July 27, 2016 at 2:39:21 PM EDT
>> To: quad-list@eskimo.com
>> Subject: [QUAD-L] Pens?
>> I wanted to ask what kind of pens dose everybody use to write with?
>> I'm looking for a retractable pen that I don't need to apply much or any 
>> pressure.
>> Bobbie
>> 
>> Smile Everyday
> =
> 

RE: [QUAD-L] Cushion question

[Joan Anglin]

I think it's very important to remember that each of us is very different.
We ask for opinions, and many times a solution or partial solution is found
in the answers.  However, because of our differences, sometimes it is not.

25 years ago I was bitten by a brown recluse spider.  This was back before
the destructiveness of their bite was widely known.  The poison spread and
tunneled throughout my right thigh and hip.  It required extensive surgery,
and took almost a year before we were done.  As a result I had to learn to
sit differently, which eventually led to a sore in my groin.

Over the years we tried everything, staying in bed, roho cushion, wound
vacuum, all ineffective in the long run.  During eight years of that time I
was unable to get insurance because I did not qualify for Social Security
disability.  After a particularly nasty flare up and six months in a sand
bed, a very kind and generous plastic surgeon who treated me for years and
charged me $25.00 a visit, said I had a couple of options.

Continue treating this and doing all the preventive staying in bed etc. etc.
which led to no life to speak of, or get up and start a life treating this
wound.  I made the decision to just deal with it.  17 years later I still
have the wound, it has only flared up a couple of times but considering
where it is located it is understandable.  I go to wound care once a month,
and we watch it like a hawk.

For me it was the right decision, at 77 I know that my skin is becoming more
fragile and I am glad for the years when I was able to fully live my life.
Luckily I have been fortunate in having no other pressure sores that have
ever developed into serious problems.

I am not advocating my solution for anyone else, but I'm just putting it
forth to point out that we are all different.  Have a great day everyone,
and enjoy the warm weather.

 

From: cviewe...@aol.com [mailto:cviewe...@aol.com] 
Sent: Saturday, July 30, 2016 7:03 PM
To: lwillis82...@gmail.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Cushion question

 

With pressure sores...you have to keep off it. Yes, stay in bed 24/7.  I
have been there, done that. It took 6 months to clear.  I use a Roho and am
pressure sore free now.

Have someone check your bottom often. I used to have to go to the wound
center every week until it cleared.For 6 months the only time I was off my
butt was the day I went to the wound center. Never want to do that again.
Rose

 

In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time,
<mailto:lwillis82...@gmail.com> lwillis82...@gmail.com writes:

I have had a pressure sore on my bottom for over ten years now. It refuses
to heal. I got it during a hospital stay for an infection. I got a roho
shortly thereafter. It healed other sores but not this one. I thought I
would give this one a try.

-- Forwarded message --
From: < <mailto:cviewe...@aol.com> cviewe...@aol.com>
Date: Saturday, July 30, 2016
Subject: Re: [QUAD-L] Cushion question
To:  <mailto:lwillis82...@gmail.com> lwillis82...@gmail.com



Is your current Roho not working? I have used a Roho for more than 30 years
and would be afraid to go to something else and possibly get a pressure
sore. Rose

 

In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time,
<javascript:_e(%7B%7D,'cvml','lwillis82...@gmail.com');>
lwillis82...@gmail.com writes:

Hey guys. I am trying to get a new chair and cushion. My advisor wants me to
get a new style cushion by Ride Designs. Any of you familiar with it? Take a
look at  <http://ridedesigns.com/> ridedesigns.com and tell me what you
think. I value your opinion. I currently use a roho. Thanks, Larry WILLIS

Larry Willis 

Retired and proud of it

 


Begin forwarded message:

Resent-From:  <javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>
quad-list@eskimo.com
From: Bobbie Humphreys <
<javascript:_e(%7B%7D,'cvml','bobbiehumphre...@gmail.com');>
bobbiehumphre...@gmail.com>
Date: July 27, 2016 at 2:39:21 PM EDT
To:  <javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>
quad-list@eskimo.com
Subject: [QUAD-L] Pens?

I wanted to ask what kind of pens dose everybody use to write with?
I'm looking for a retractable pen that I don't need to apply much or any
pressure.
Bobbie

Smile Everyday

=

 

Fwd: [QUAD-L] Cushion question

[Larry Willis]

I have had a pressure sore on my bottom for over ten years now. It refuses
to heal. I got it during a hospital stay for an infection. I got a roho
shortly thereafter. It healed other sores but not this one. I thought I
would give this one a try.

-- Forwarded message --
From: <cviewe...@aol.com>
Date: Saturday, July 30, 2016
Subject: Re: [QUAD-L] Cushion question
To: lwillis82...@gmail.com


Is your current Roho not working? I have used a Roho for more than 30 years
and would be afraid to go to something else and possibly get a pressure
sore. Rose

In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time,
lwillis82...@gmail.com
<javascript:_e(%7B%7D,'cvml','lwillis82...@gmail.com');> writes:

Hey guys. I am trying to get a new chair and cushion. My advisor wants me
to get a new style cushion by Ride Designs. Any of you familiar with it?
Take a look at ridedesigns.com and tell me what you think. I value your
opinion. I currently use a roho. Thanks, Larry WILLIS

Larry Willis
Retired and proud of it


Begin forwarded message:

*Resent-From:* quad-list@eskimo.com
<javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>
*From:* Bobbie Humphreys <bobbiehumphre...@gmail.com
<javascript:_e(%7B%7D,'cvml','bobbiehumphre...@gmail.com');>>
*Date:* July 27, 2016 at 2:39:21 PM EDT
*To:* quad-list@eskimo.com
<javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>
*Subject:* *[QUAD-L] Pens?*

I wanted to ask what kind of pens dose everybody use to write with?
I'm looking for a retractable pen that I don't need to apply much or any
pressure.
Bobbie

Smile Everyday

=

Re: [QUAD-L] Cushion question

[diannal767]

I sit in the foam/air combo which keeps me more stable. the air is only in the 
back. this cushion is meant for people with or has had skin breakdown. I sat in 
a gel for 25 yrs with no problems and like you lori, was up for the whole day 
and yes, I had no problems until I got my new quatrum. the rep did not adjust 
the cushion flush to the back which allowed my cheeks to hang over the edge of 
the back of the cushion. I drive and yes I sit much higher. it's strange but I 
got use to it. my head is very close to the door post. i'm 5'2 with short arms 
and sit close to the steering wheel. had to be that way so I could reach 
everything! Happy Birthday Lori!!!




I would love to sit more "stable" as well as keeping my ischial tuberousities 
safe from further breakdown... especially having old battle wound on both of 
them. The Ride Design cushions seem to offer that. Along with breathing room 
down there.





-Original Message-
From: Lori Michaelson <lorilivin...@gmail.com>
To: quad-list <quad-list@eskimo.com>
Sent: Sat, Jul 30, 2016 3:30 pm
Subject: Re: [QUAD-L] Cushion question




I have never had a problem with "pressure" no matter what Cushion I have used. 
Further, I never needed a "special" cushion until all of these rehab chairs 
that began to come out around 1999 came with seat plates rather than bucket 
seats. I digress, when I came home from rehab in 1980 in first Wheelchair 
[Everest and Jennings] it had a seat plate I sat up on a foam/gel cushion 
whereby I got a little sore on my tailbone.


I did not have any problem with any wounds until they came out with these 
latest chairs. After my Everest and Jennings [of which I sat in for only 4 or 5 
years) I had a wheelchair called a Fortress Scientific that I sat in for 14 
years, 14 hours a day without shifting my weight, and it was just a very 
comfortable bucket seat with nothing underneath my butt except for a thick area 
of air which was below the seat part of the bucket seat. I never had one... 
single... skin breakdown over those 14 years.


However, it is just another way for the people who come out with wheelchairs 
and cushions and all of that stuff to keep the money rolling in. Sorry to sound 
so cynical, but it is true.


I was just encouraged [by someone on this list fairly recently] to try it since 
the Roho cushions have always had me weeble wobbling all over the place. I 
began using the Roho cushions after having a Stage III wound. I have not been 
able to try another kind [like the ride design cushions] but being held more 
stable and sitting lower to the ground. Instead of buying high-profile Roho 
question that always has to be "maintained" when I now do not have someone to 
maintain it. Except for faithful Tom Borcherding... the president of Roho. 
Which I can't thank him enough for!


For the longest time I have been wanting to ask people on the list how they are 
able to see out of there van windows??? 


This is simply because ever since I have gotten one of the latest rehab power 
chairs (whether it be Permobil or Quantum which basically all sit at a high 
level because of the tilt features) and then have had to put a Roho Cushion on 
top of such a high sitting chair... I sit so high in my conversion vehicles 
(even with a 10 inch drop floor!) that I can't see anything except the road in 
front of me. I can't even see road signs. 


I am the passenger and no matter who my driver is... my chin is level with 
their forehead! 


I would love to sit more "stable" as well as keeping my ischial tuberousities 
safe from further breakdown... especially having old battle wound on both of 
them. The Ride Design cushions seem to offer that. Along with breathing room 
down there.


~Lori 





On Fri, Jul 29, 2016 at 9:42 PM, Larry Willis <lwillis82...@gmail.com> wrote:


Hey guys. I am trying to get a new chair and cushion. My advisor wants me to 
get a new style cushion by Ride Designs. Any of you familiar with it? Take a 
look at ridedesigns.com and tell me what you think. I value your opinion. I 
currently use a roho. Thanks, Larry WILLIS

Larry Willis
Retired and proud of it




Begin forwarded message:



Resent-From: quad-list@eskimo.com
From: Bobbie Humphreys <bobbiehumphre...@gmail.com>
Date: July 27, 2016 at 2:39:21 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Pens?



I wanted to ask what kind of pens dose everybody use to write with?
I'm looking for a retractable pen that I don't need to apply much or any 
pressure.
Bobbie

Smile Everyday








-- 


"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

Re: [QUAD-L] Cushion question

[Lori Michaelson]

I have never had a problem with "pressure" no matter what Cushion I have
used. Further, I never needed a "special" cushion until all of these rehab
chairs that began to come out around 1999 came with seat plates rather than
bucket seats. I digress, when I came home from rehab in 1980 in first
Wheelchair [Everest and Jennings] it had a seat plate I sat up on a
foam/gel cushion whereby I got a little sore on my tailbone.

I did not have any problem with any wounds until they came out with these
latest chairs. After my Everest and Jennings [of which I sat in for only 4
or 5 years) I had a wheelchair called a Fortress Scientific that I sat in
for 14 years, 14 hours a day without shifting my weight, and it was just a
very comfortable bucket seat with nothing underneath my butt except for a
thick area of air which was below the seat part of the bucket seat. I never
had one... single... skin breakdown over those 14 years.

However, it is just another way for the people who come out with
wheelchairs and cushions and all of that stuff to keep the money rolling
in. Sorry to sound so cynical, but it is true.

I was just encouraged [by someone on this list fairly recently] to try it
since the Roho cushions have always had me weeble wobbling all over the
place. I began using the Roho cushions after having a Stage III wound. I
have not been able to try another kind [like the ride design cushions] but
being held more stable and sitting lower to the ground. Instead of buying
high-profile Roho question that always has to be "maintained" when I now do
not have someone to maintain it. Except for faithful Tom Borcherding... the
president of Roho. Which I can't thank him enough for!

For the longest time I have been wanting to ask people on the list how they
are able to see out of there van windows???

This is simply because ever since I have gotten one of the latest rehab
power chairs (whether it be Permobil or Quantum which basically all sit at
a high level because of the tilt features) and then have had to put a Roho
Cushion on top of such a high sitting chair... I sit so high in my
conversion vehicles (even with a 10 inch drop floor!) that I can't see
anything except the road in front of me. I can't even see road signs.

I am the passenger and no matter who my driver is... my chin is level with
their forehead!

I would love to sit more "stable" as well as keeping my ischial
tuberousities safe from further breakdown... especially having old battle
wound on both of them. The Ride Design cushions seem to offer that. Along
with breathing room down there.

~Lori


On Fri, Jul 29, 2016 at 9:42 PM, Larry Willis 
wrote:

> Hey guys. I am trying to get a new chair and cushion. My advisor wants me
> to get a new style cushion by Ride Designs. Any of you familiar with it?
> Take a look at ridedesigns.com and tell me what you think. I value your
> opinion. I currently use a roho. Thanks, Larry WILLIS
>
> Larry Willis
> Retired and proud of it
>
>
> Begin forwarded message:
>
> *Resent-From:* quad-list@eskimo.com
> *From:* Bobbie Humphreys 
> *Date:* July 27, 2016 at 2:39:21 PM EDT
> *To:* quad-list@eskimo.com
> *Subject:* *[QUAD-L] Pens?*
>
> I wanted to ask what kind of pens dose everybody use to write with?
> I'm looking for a retractable pen that I don't need to apply much or any
> pressure.
> Bobbie
>
> Smile Everyday
>
>


-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

Re: [QUAD-L] Cushion question

[alcibiates2]

Contour seats have to be designed to fit you. If it's meant to fit everyone it 
will just cause you more problems. I personally need a seat that reclines and 
can tilt in space. I do know it's possible to get Contour seats that can do 
this. Car seats are made to recline an automotive manufacturers have been 
studying the way people sit for a long time much longer then wheelchair 
manufacturers. I'm absolutely certain that Contour seats can be made to fit 
into wheelchairs without risking sores.
I get a little upset when I get into a car seat that is more comfortable then 
my wheelchair and reclines electrically yet nothing like it is available in a 
wheelchair. Let's face it a Roho seat maybe the height of comfort in 
wheelchairs but it looks like crap. I think it's about time some wheelchairs 
had a little bit more Style.
Best wishes to all
John



 Original message 
From: greg <g...@eskimo.com> 
Date: 07/30/2016  12:04 PM  (GMT-05:00) 
To: quad-list@eskimo.com 
Subject: Re: [QUAD-L] Cushion question 

I have always gone back to Roho after trying a new cushion. I'm sure there will 
be a better one sometime. I like the contour part. But, I worry every butt is a 
different shape and size. If it curves where you don't, could cause an issue. 
though if it fits good, might as well try it.
Greg


> Hey guys. I am trying to get a new chair and cushion. My advisor
> wants me to get a new style cushion by Ride Designs. Any of you
> familiar with it? Take a look at ridedesigns.com and tell me what
> you think. I value your opinion. I currently use a roho. Thanks,
> Larry WILLIS
>
> Larry WillisRetired and proud of it
>
>
> Begin forwarded message:
>
>
>> Resent-From: quad-list@eskimo.com
>> From: Bobbie Humphreys <bobbiehumphre...@gmail.com> Date: July
>> 27, 2016 at 2:39:21 PM EDT To: quad-list@eskimo.com Subject:
>> [QUAD-L] Pens?
>>
>>
>> I wanted to ask what kind of pens dose everybody use to write
>> with? I'm looking for a retractable pen that I don't need to
>> apply much or any pressure. Bobbie
>>
>> Smile Everyday

Re: [QUAD-L] Cushion question

[diannal767]

I currently have a stage 4 wound and NSN (national seating & mobility) put me 
on a Roho Hybrid Elite which is foam/air combo but they suggested otherwise, 
try the Ride Designs by Java. So it must be a good cushion.
Dianna


I don't know much about any other seating other than ROHOI have been on 
them for 19 years now, when there has ever been a problem the team at Roho work 
with me to try and get it right.  Dan H**
 



 
 
 
 On Saturday, July 30, 2016 11:04 AM, greg <g...@eskimo.com> wrote:

  

 

I have always gone back to Roho after trying a new cushion. I'm sure there will 
be a better one sometime. I like the contour part. But, I worry every butt is a 
different shape and size. If it curves where you don't, could cause an issue. 
though if it fits good, might as well try it.
Greg




> Hey guys. I am trying to get a new chair and cushion. My advisor
> wants me to get a new style cushion by Ride Designs. Any of you
> familiar with it? Take a look at ridedesigns.com and tell me what
> you think. I value your opinion. I currently use a roho. Thanks,
> Larry WILLIS
>
> Larry WillisRetired and proud of it








-Original Message-
From: Danny Hearn <ddh...@sbcglobal.net>
To: greg <g...@eskimo.com>; quad-list <quad-list@eskimo.com>
Sent: Sat, Jul 30, 2016 12:39 pm
Subject: Re: [QUAD-L] Cushion question



I don't know much about any other seating other than ROHOI have been on 
them for 19 years now, when there has ever been a problem the team at Roho work 
with me to try and get it right.  Dan H**
 



 
 
 
 On Saturday, July 30, 2016 11:04 AM, greg <g...@eskimo.com> wrote:

  

 

I have always gone back to Roho after trying a new cushion. I'm sure there will 
be a better one sometime. I like the contour part. But, I worry every butt is a 
different shape and size. If it curves where you don't, could cause an issue. 
though if it fits good, might as well try it.
Greg




> Hey guys. I am trying to get a new chair and cushion. My advisor
> wants me to get a new style cushion by Ride Designs. Any of you
> familiar with it? Take a look at ridedesigns.com and tell me what
> you think. I value your opinion. I currently use a roho. Thanks,
> Larry WILLIS
>
> Larry WillisRetired and proud of it
>
>
> Begin forwarded message:
>
>
>> Resent-From: quad-list@eskimo.com
>> From: Bobbie Humphreys <bobbiehumphre...@gmail.com> Date: July
>> 27, 2016 at 2:39:21 PM EDT To: quad-list@eskimo.com Subject:
>> [QUAD-L] Pens?
>>
>>
>> I wanted to ask what kind of pens dose everybody use to write
>> with? I'm looking for a retractable pen that I don't need to
>> apply much or any pressure. Bobbie
>>
>> Smile Everyday




  
 
  

Re: [QUAD-L] Cushion question

[Danny Hearn]

I don't know much about any other seating other than ROHOI have been on 
them for 19 years now, when there has ever been a problem the team at Roho work 
with me to try and get it right.  Dan H** 

On Saturday, July 30, 2016 11:04 AM, greg  wrote:
 

 #yiv4554099931 #yiv4554099931 --body{font-size:14pt;}#yiv4554099931 
LI{display:list-item;margin:0.00in;}#yiv4554099931 
p{display:block;margin:0.00in;}#yiv4554099931 body{}#yiv4554099931 I have 
always gone back to Roho after trying a new cushion. I'm sure there will be a 
better one sometime. I like the contour part. But, I worry every butt is a 
different shape and size. If it curves where you don't, could cause an issue. 
though if it fits good, might as well try it.Greg

> Hey guys. I am trying to get a new chair and cushion. My advisor> wants me to 
> get a new style cushion by Ride Designs. Any of you> familiar with it? Take a 
> look at ridedesigns.com and tell me what> you think. I value your opinion. I 
> currently use a roho. Thanks,> Larry WILLIS>> Larry WillisRetired and proud 
> of it>>> Begin forwarded message: Resent-From: quad-list@eskimo.com>> 
> From: Bobbie Humphreys  Date: July>> 27, 2016 at 
> 2:39:21 PM EDT To: quad-list@eskimo.com Subject:>> [QUAD-L] Pens?>> I 
> wanted to ask what kind of pens dose everybody use to write>> with? I'm 
> looking for a retractable pen that I don't need to>> apply much or any 
> pressure. Bobbie Smile Everyday

  

Re: [QUAD-L] Cushion question

[greg]

I have always gone back to Roho after trying a new cushion. I'm sure there will be a better one sometime. I like the contour part. But, I worry every butt is a different shape and size. If it curves where you don't, could cause an issue. though if it fits good, might as well try it.
Greg
> Hey guys. I am trying to get a new chair and cushion. My advisor
> wants me to get a new style cushion by Ride Designs. Any of you
> familiar with it? Take a look at ridedesigns.com and tell me what
> you think. I value your opinion. I currently use a roho. Thanks,
> Larry WILLIS
>
> Larry WillisRetired and proud of it
>
>
> Begin forwarded message:
>
>
>> Resent-From: quad-list@eskimo.com
>> From: Bobbie Humphreys  Date: July
>> 27, 2016 at 2:39:21 PM EDT To: quad-list@eskimo.com Subject:
>> [QUAD-L] Pens?
>>
>>
>> I wanted to ask what kind of pens dose everybody use to write
>> with? I'm looking for a retractable pen that I don't need to
>> apply much or any pressure. Bobbie
>>
>> Smile Everyday

[QUAD-L] Cushion question

[Larry Willis]

Hey guys. I am trying to get a new chair and cushion. My advisor wants me to 
get a new style cushion by Ride Designs. Any of you familiar with it? Take a 
look at ridedesigns.com and tell me what you think. I value your opinion. I 
currently use a roho. Thanks, Larry WILLIS

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Bobbie Humphreys 
> Date: July 27, 2016 at 2:39:21 PM EDT
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Pens?
> 
> I wanted to ask what kind of pens dose everybody use to write with?
> I'm looking for a retractable pen that I don't need to apply much or any 
> pressure.
> Bobbie
> 
> Smile Everyday

Re: [QUAD-L] a question

[Gmail]

I dated a "devotee" in college.
He LOVED taking care of me.
He drove for me, when I can drive myself 
He fed me, when I can fed myself 
He changed the time I slept and ate

I was extremely depressed when he asked me out Halloween night.
He'd been asking me out since September and something told me to say "No"

We even got engaged Christmas, with a ring I bought 

After Valentines Day I broke up with him.
I was laying in bed when I told him (shouldn't have) and he ranted and raved 
... extremely angry. He straddle my hips, put his hands around my throat and 
they can't squeeze and squeeze. He was a big guy, over 6'2"
Hey wanted me to beg him to stop or scream or both but I refused all I did was 
stare him down he got mad and got off of me.

I had a lot of friends all around me after that all the time, they would NOT 
let him near me.

My last year of college I had to transfer to another state!
I went from New Jersey to Pennsylvania about 500 miles.

Never saw or heard from him again.
Bobbie 

Smile Everyday

> On Apr 6, 2016, at 1:59 PM, Robert Vogel <rhvsh...@me.com> wrote:
> 
> Hi Larry,
> 
> To answer your question, Yes.  A devotee is a person that gets sexually 
> turned on by people with 
> disabilities, wheelchair users, amputees etc.
> 
> Not sure about devotees interest in para’s vs. quads.
> 
> Bob V
> 
>> On Apr 6, 2016, at 8:15 AM, Larry Willis <lwillis82...@gmail.com> wrote:
>> 
>> Good question, Danny. Quad devotee? We are not talking fetish here, are we?
>> 
>> Sent from my iPad
>> 
>> Begin forwarded message:
>> 
>>> Resent-From: quad-list@eskimo.com
>>> From: "Danny Espinoza" <da...@immortaldesigns.co>
>>> Date: April 6, 2016 at 9:43:35 AM EDT
>>> To: "'john owens'" <jrowen...@yahoo.com>, "'Quad-list Post'" 
>>> <quad-list@eskimo.com>
>>> Subject: RE: [QUAD-L] a question
>>> Reply-To: <da...@immortaldesigns.co>
>>> 
>>> Quadriplegic devotee? What’s that?
>>> -Danny
>>>  
>>> From: john owens [mailto:jrowen...@yahoo.com] 
>>> Sent: Wednesday, April 6, 2016 5:52 AM
>>> To: Quad-list Post <quad-list@eskimo.com>
>>> Subject: [QUAD-L] a question
>>>  
>>>   
>>> Are there any quadriplegic devotees on here?
> 

Re: [QUAD-L] a question

[Robert Vogel]

Hi Dianna,

It’s called “Body Integrity Disorder”, something goes haywire in a person’s 
mind and they feel as if they
are “supposed” to have some type of disability, spinal cord injury, amputation 
etc.  Very bizarre, and sad.
Seems quite real, although their minds can’t seem to wrap themselves around 
real SCI problems like UTI’s
bowel & bladder accidents, pain, etc.—seems they often “choose” to be low level 
incomplete injuries…

Here is a link to a blog I wrote about it:  
https://roho.com/paraplegic-feels-trapped-in-a-non-disabled-body/ 
<https://roho.com/paraplegic-feels-trapped-in-a-non-disabled-body/>

Bob V
> On Apr 6, 2016, at 11:15 AM, diannal...@aol.com wrote:
> 
> DaveOc once told us about "wheelchair want to be's" I quess they fake their 
> injuries and used wheelchairs. they have a website but if you googled it, i'm 
> sure you'll find it. I don't have the link. he posted it years ago.
> dianna
> wheelchair wanna be'ssomething to that sort.
> 
> 
> -Original Message-
> From: Robert Vogel <rhvsh...@me.com>
> To: Larry Willis <lwillis82...@gmail.com>
> Cc: quad-list <quad-list@eskimo.com>
> Sent: Wed, Apr 6, 2016 1:59 pm
> Subject: Re: [QUAD-L] a question
> 
> Hi Larry,
> 
> To answer your question, Yes.  A devotee is a person that gets sexually 
> turned on by people with 
> disabilities, wheelchair users, amputees etc.
> 
> Not sure about devotees interest in para’s vs. quads.
> 
> Bob V
> 
> On Apr 6, 2016, at 8:15 AM, Larry Willis <lwillis82...@gmail.com 
> <mailto:lwillis82...@gmail.com>> wrote:
> 
> Good question, Danny. Quad devotee? We are not talking fetish here, are we?
> 
> Sent from my iPad
> 
> Begin forwarded message:
> 
> Resent-From: quad-list@eskimo.com <mailto:quad-list@eskimo.com>
> From: "Danny Espinoza" <da...@immortaldesigns.co 
> <mailto:da...@immortaldesigns.co>>
> Date: April 6, 2016 at 9:43:35 AM EDT
> To: "'john owens'" <jrowen...@yahoo.com <mailto:jrowen...@yahoo.com>>, 
> "'Quad-list Post'" <quad-list@eskimo.com <mailto:quad-list@eskimo.com>>
> Subject: RE: [QUAD-L] a question
> Reply-To: <da...@immortaldesigns.co <mailto:da...@immortaldesigns.co>>
> 
> Quadriplegic devotee? What’s that?
> -Danny
>  
> From: john owens [mailto:jrowen...@yahoo.com <mailto:jrowen...@yahoo.com>] 
> Sent: Wednesday, April 6, 2016 5:52 AM
> To: Quad-list Post <quad-list@eskimo.com <mailto:quad-list@eskimo.com>>
> Subject: [QUAD-L] a question
>  
>   
> Are there any quadriplegic devotees on here?
> 

Fwd: [QUAD-L] a question

[Bryce Willis]

Ah yes. Saw a show on tv a couple of years ago about people who felt they were 
in the wrong body. They believed they were supposed to be disabled. I remember 
one fellow put his leg in a bucket of dry ice until it was destroyed, had to be 
amputated. The fellow was overjoyed. He said that leg never belonged to him. 
Well, I would be glad to trade bodies with someone (if they were strong and 
healthy). I cannot imagine wanting to be a quad!

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: RONALD L PRACHT <r.pra...@sbcglobal.net>
> Date: April 6, 2016 at 2:28:34 PM EDT
> To: Quad-list Post <quad-list@eskimo.com>
> Subject: Re: [QUAD-L] a question
> Reply-To: RONALD L PRACHT <r.pra...@sbcglobal.net>
> 
> Ive read all about people that have a sexual desire to be with a disabled 
> individual, be disabled themselves or have a certain disabled fetish like 
> crippled feet or legs. Ive had men come on to me for that reason, women 
> pretend to be disabled and phone me. There are paralyzed girls online that 
> make a living doing videos for these crazy people. I say give them what they 
> want and cut out there spines and give it to people that really want their 
> normal life back, lol.
> 
> Ron
> 
> 
> On Wednesday, April 6, 2016 1:17 PM, "diannal...@aol.com" 
> <diannal...@aol.com> wrote:
> 
> 
> DaveOc once told us about "wheelchair want to be's" I quess they fake their 
> injuries and used wheelchairs. they have a website but if you googled it, i'm 
> sure you'll find it. I don't have the link. he posted it years ago.
> dianna
> wheelchair wanna be'ssomething to that sort.
> 
> 
> -Original Message-
> From: Robert Vogel <rhvsh...@me.com>
> To: Larry Willis <lwillis82...@gmail.com>
> Cc: quad-list <quad-list@eskimo.com>
> Sent: Wed, Apr 6, 2016 1:59 pm
> Subject: Re: [QUAD-L] a question
> 
> Hi Larry,
> 
> To answer your question, Yes.  A devotee is a person that gets sexually 
> turned on by people with 
> disabilities, wheelchair users, amputees etc.
> 
> Not sure about devotees interest in para’s vs. quads.
> 
> Bob V
> 
> On Apr 6, 2016, at 8:15 AM, Larry Willis <lwillis82...@gmail.com> wrote:
> 
> Good question, Danny. Quad devotee? We are not talking fetish here, are we?
> 
> Sent from my iPad
> 
> Begin forwarded message:
> 
> Resent-From: quad-list@eskimo.com
> From: "Danny Espinoza" <da...@immortaldesigns.co>
> Date: April 6, 2016 at 9:43:35 AM EDT
> To: "'john owens'" <jrowen...@yahoo.com>, "'Quad-list Post'" 
> <quad-list@eskimo.com>
> Subject: RE: [QUAD-L] a question
> Reply-To: <da...@immortaldesigns.co>
> 
> Quadriplegic devotee? What’s that?
> -Danny
>  
> From: john owens [mailto:jrowen...@yahoo.com] 
> Sent: Wednesday, April 6, 2016 5:52 AM
> To: Quad-list Post <quad-list@eskimo.com>
> Subject: [QUAD-L] a question
>  
>   
> Are there any quadriplegic devotees on here?
> 
> 
> 

Re: [QUAD-L] a question

[RONALD L PRACHT]

Ive read all about people that have a sexual desire to be with a disabled 
individual, be disabled themselves or have a certain disabled fetish like 
crippled feet or legs. Ive had men come on to me for that reason, women pretend 
to be disabled and phone me. There are paralyzed girls online that make a 
living doing videos for these crazy people. I say give them what they want and 
cut out there spines and give it to people that really want their normal life 
back, lol.
Ron 

On Wednesday, April 6, 2016 1:17 PM, "diannal...@aol.com" 
<diannal...@aol.com> wrote:
 

 DaveOc once told us about "wheelchair want to be's" I quess they fake their 
injuries and used wheelchairs. they have a website but if you googled it, i'm 
sure you'll find it. I don't have the link. he posted it years 
ago.diannawheelchair wanna be'ssomething to that sort.


-Original Message-
From: Robert Vogel <rhvsh...@me.com>
To: Larry Willis <lwillis82...@gmail.com>
Cc: quad-list <quad-list@eskimo.com>
Sent: Wed, Apr 6, 2016 1:59 pm
Subject: Re: [QUAD-L] a question

Hi Larry,
To answer your question, Yes.  A devotee is a person that gets sexually turned 
on by people with disabilities, wheelchair users, amputees etc.
Not sure about devotees interest in para’s vs. quads.
Bob V

On Apr 6, 2016, at 8:15 AM, Larry Willis <lwillis82...@gmail.com> wrote:
Good question, Danny. Quad devotee? We are not talking fetish here, are we?

Sent from my iPad
Begin forwarded message:


Resent-From: quad-list@eskimo.com
From: "Danny Espinoza" <da...@immortaldesigns.co>
Date: April 6, 2016 at 9:43:35 AM EDT
To: "'john owens'" <jrowen...@yahoo.com>, "'Quad-list Post'" 
<quad-list@eskimo.com>
Subject: RE: [QUAD-L] a question
Reply-To: <da...@immortaldesigns.co>



Quadriplegic devotee? What’s that?-Danny From: john owens 
[mailto:jrowen...@yahoo.com] 
Sent: Wednesday, April 6, 2016 5:52 AM
To: Quad-list Post <quad-list@eskimo.com>
Subject: [QUAD-L] a question   Are there any quadriplegic devotees on here?




  

Re: [QUAD-L] a question

[diannal767]

DaveOc once told us about "wheelchair want to be's" I quess they fake their 
injuries and used wheelchairs. they have a website but if you googled it, i'm 
sure you'll find it. I don't have the link. he posted it years ago.
dianna
wheelchair wanna be'ssomething to that sort.



-Original Message-
From: Robert Vogel <rhvsh...@me.com>
To: Larry Willis <lwillis82...@gmail.com>
Cc: quad-list <quad-list@eskimo.com>
Sent: Wed, Apr 6, 2016 1:59 pm
Subject: Re: [QUAD-L] a question


Hi Larry,


To answer your question, Yes.  A devotee is a person that gets sexually turned 
on by people with 
disabilities, wheelchair users, amputees etc.


Not sure about devotees interest in para’s vs. quads.


Bob V




On Apr 6, 2016, at 8:15 AM, Larry Willis <lwillis82...@gmail.com> wrote:


Good question, Danny. Quad devotee? We are not talking fetish here, are we?

Sent from my iPad

Begin forwarded message:



Resent-From: quad-list@eskimo.com
From: "Danny Espinoza" <da...@immortaldesigns.co>
Date: April 6, 2016 at 9:43:35 AM EDT
To: "'john owens'" <jrowen...@yahoo.com>, "'Quad-list Post'" 
<quad-list@eskimo.com>
Subject: RE: [QUAD-L] a question
Reply-To: <da...@immortaldesigns.co>




Quadriplegic devotee? What’s that?
-Danny
 

From: john owens [mailto:jrowen...@yahoo.com] 
Sent: Wednesday, April 6, 2016 5:52 AM
To: Quad-list Post <quad-list@eskimo.com>
Subject: [QUAD-L] a question

 

  

Are there any quadriplegic devotees on here?

Re: [QUAD-L] a question

[Robert Vogel]

Hi Larry,

To answer your question, Yes.  A devotee is a person that gets sexually turned 
on by people with 
disabilities, wheelchair users, amputees etc.

Not sure about devotees interest in para’s vs. quads.

Bob V

> On Apr 6, 2016, at 8:15 AM, Larry Willis <lwillis82...@gmail.com> wrote:
> 
> Good question, Danny. Quad devotee? We are not talking fetish here, are we?
> 
> Sent from my iPad
> 
> Begin forwarded message:
> 
>> Resent-From: quad-list@eskimo.com <mailto:quad-list@eskimo.com>
>> From: "Danny Espinoza" <da...@immortaldesigns.co 
>> <mailto:da...@immortaldesigns.co>>
>> Date: April 6, 2016 at 9:43:35 AM EDT
>> To: "'john owens'" <jrowen...@yahoo.com <mailto:jrowen...@yahoo.com>>, 
>> "'Quad-list Post'" <quad-list@eskimo.com <mailto:quad-list@eskimo.com>>
>> Subject: RE: [QUAD-L] a question
>> Reply-To: <da...@immortaldesigns.co <mailto:da...@immortaldesigns.co>>
>> 
>> Quadriplegic devotee? What’s that?
>> -Danny
>>  
>> From: john owens [mailto:jrowen...@yahoo.com <mailto:jrowen...@yahoo.com>] 
>> Sent: Wednesday, April 6, 2016 5:52 AM
>> To: Quad-list Post <quad-list@eskimo.com <mailto:quad-list@eskimo.com>>
>> Subject: [QUAD-L] a question
>>  
>>   
>> Are there any quadriplegic devotees on here?

Fwd: [QUAD-L] a question

[Larry Willis]

Good question, Danny. Quad devotee? We are not talking fetish here, are we?

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "Danny Espinoza" <da...@immortaldesigns.co>
> Date: April 6, 2016 at 9:43:35 AM EDT
> To: "'john owens'" <jrowen...@yahoo.com>, "'Quad-list Post'" 
> <quad-list@eskimo.com>
> Subject: RE: [QUAD-L] a question
> Reply-To: <da...@immortaldesigns.co>
> 
> Quadriplegic devotee? What’s that?
> -Danny
>  
> From: john owens [mailto:jrowen...@yahoo.com] 
> Sent: Wednesday, April 6, 2016 5:52 AM
> To: Quad-list Post <quad-list@eskimo.com>
> Subject: [QUAD-L] a question
>  
>  
> Are there any quadriplegic devotees on here?

RE: [QUAD-L] a question

[Danny Espinoza]

Quadriplegic devotee? What’s that?

-Danny

 

From: john owens [mailto:jrowen...@yahoo.com] 
Sent: Wednesday, April 6, 2016 5:52 AM
To: Quad-list Post <quad-list@eskimo.com>
Subject: [QUAD-L] a question

 

  

Are there any quadriplegic devotees on here?

[QUAD-L] a question

[john owens]

  Are there any quadriplegic devotees on here?

RE: [QUAD-L] Insurance question

[Joan Anglin]

I would suggest that you take the time to call Social security and talk to any 
disability specialist.  Or you have a local office talk to them, just be 
prepared to take a long time.  Good luck

 

 

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Tuesday, January 12, 2016 6:59 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Insurance question

 

I have insurance through the Ky teachers retirement system. It leaves much to 
be desired. It converts to Medicare in two years when I turn 65. My question is 
can I be declared disabled and get Medicare now? I inquired about home health 
making a daily visit to dress my wounds. The cost was $750 up front and a 30% 
co-pay. I can't do thatat all. What do youse guys think? Btw, wife Melissa 
has heart cath in the morning and is scheduled for defibrillator on Monday if 
cath goes well. Prayers. Thanks.

Larry Willis

Retired and proud of it

 


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Jim Lubin <jlu...@eskimo.com>
Date: January 12, 2016 at 8:13:16 PM EST
To: quad-list@eskimo.com
Subject: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected - 
Disability Scoop

https://www.disabilityscoop.com/2016/01/11/able-accounts-sooner-expected/21752/

RE: [QUAD-L] Insurance question

[nichole rohling]

Larry I think you qualify for Medicare now since you are disabled. Do you 
receive Social Security Disability? I believe one would be primary and one 
would be secondary insurance, just not sure which but your local social 
security office should be able to help. 

 

Nicki

 

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Tuesday, January 12, 2016 8:59 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Insurance question

 

I have insurance through the Ky teachers retirement system. It leaves much to 
be desired. It converts to Medicare in two years when I turn 65. My question is 
can I be declared disabled and get Medicare now? I inquired about home health 
making a daily visit to dress my wounds. The cost was $750 up front and a 30% 
co-pay. I can't do thatat all. What do youse guys think? Btw, wife Melissa 
has heart cath in the morning and is scheduled for defibrillator on Monday if 
cath goes well. Prayers. Thanks.

Larry Willis

Retired and proud of it

 


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Jim Lubin <jlu...@eskimo.com>
Date: January 12, 2016 at 8:13:16 PM EST
To: quad-list@eskimo.com
Subject: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected - 
Disability Scoop

https://www.disabilityscoop.com/2016/01/11/able-accounts-sooner-expected/21752/

RE: [QUAD-L] Insurance question

[Gail Overton]

My husband was disabled in May 2014 and started getting Social Security 
Disability in October 2014. He is eligible for Medicare in October 2016 – two 
years after he started receiving SSDI. I believe it is like that in all states 
– it is a Federal program…

From: Danny Hearn [mailto:ddh...@sbcglobal.net]
Sent: Tuesday, January 12, 2016 8:28 PM
To: Larry Willis; quad-list@eskimo.com
Subject: Re: [QUAD-L] Insurance question

Larryyou should be able to do that...a quad is 100% disabled. I don't know 
how long it takes to get the medicare going, I think each state is a bit 
different...I would  inquire thru medicade/social security or disability lawer 
office...I'm not sure exactly who to call in KY> but try a computer search of 
these govermment offices and i'm sure they will help you out, also A social 
services helper in your area may be of help...Most hospitals have workers there 
you can ask.  Good Luck, Dan H*

On Tuesday, January 12, 2016 8:59 PM, Larry Willis 
<lwillis82...@gmail.com<mailto:lwillis82...@gmail.com>> wrote:

I have insurance through the Ky teachers retirement system. It leaves much to 
be desired. It converts to Medicare in two years when I turn 65. My question is 
can I be declared disabled and get Medicare now? I inquired about home health 
making a daily visit to dress my wounds. The cost was $750 up front and a 30% 
co-pay. I can't do thatat all. What do youse guys think? Btw, wife Melissa 
has heart cath in the morning and is scheduled for defibrillator on Monday if 
cath goes well. Prayers. Thanks.

Larry Willis
Retired and proud of it


Begin forwarded message:
Resent-From: quad-list@eskimo.com<mailto:quad-list@eskimo.com>
From: Jim Lubin <jlu...@eskimo.com<mailto:jlu...@eskimo.com>>
Date: January 12, 2016 at 8:13:16 PM EST
To: quad-list@eskimo.com<mailto:quad-list@eskimo.com>
Subject: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected - 
Disability Scoop
https://www.disabilityscoop.com/2016/01/11/able-accounts-sooner-expected/21752/

Re: [QUAD-L] Insurance question

[Danny Hearn]

Larryyou should be able to do that...a quad is 100% disabled. I don't know 
how long it takes to get the medicare going, I think each state is a bit 
different...I would  inquire thru medicade/social security or disability lawer 
office...I'm not sure exactly who to call in KY> but try a computer search of 
these govermment offices and i'm sure they will help you out, also A social 
services helper in your area may be of help...Most hospitals have workers there 
you can ask.  Good Luck, Dan H* 

On Tuesday, January 12, 2016 8:59 PM, Larry Willis  
wrote:
 

 I have insurance through the Ky teachers retirement system. It leaves much to 
be desired. It converts to Medicare in two years when I turn 65. My question is 
can I be declared disabled and get Medicare now? I inquired about home health 
making a daily visit to dress my wounds. The cost was $750 up front and a 30% 
co-pay. I can't do thatat all. What do youse guys think? Btw, wife Melissa 
has heart cath in the morning and is scheduled for defibrillator on Monday if 
cath goes well. Prayers. Thanks.

Larry WillisRetired and proud of it

Begin forwarded message:


Resent-From: quad-list@eskimo.com
From: Jim Lubin 
Date: January 12, 2016 at 8:13:16 PM EST
To: quad-list@eskimo.com
Subject: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected - 
Disability Scoop



https://www.disabilityscoop.com/2016/01/11/able-accounts-sooner-expected/21752/


  

[QUAD-L] Insurance question

[Larry Willis]

I have insurance through the Ky teachers retirement system. It leaves much to 
be desired. It converts to Medicare in two years when I turn 65. My question is 
can I be declared disabled and get Medicare now? I inquired about home health 
making a daily visit to dress my wounds. The cost was $750 up front and a 30% 
co-pay. I can't do thatat all. What do youse guys think? Btw, wife Melissa 
has heart cath in the morning and is scheduled for defibrillator on Monday if 
cath goes well. Prayers. Thanks.

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Jim Lubin 
> Date: January 12, 2016 at 8:13:16 PM EST
> To: quad-list@eskimo.com
> Subject: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected - 
> Disability Scoop
> 
> https://www.disabilityscoop.com/2016/01/11/able-accounts-sooner-expected/21752/

Re: [QUAD-L] A question

[Don Price]

The movie is called Love and Mercy.
Don.
  From: wheelch...@aol.com wheelch...@aol.com
 To: bobbiehumphre...@gmail.com; quad-list@eskimo.com 
 Sent: Friday, August 7, 2015 7:31 PM
 Subject: Re: [QUAD-L] A question
   
 Bruce Johnson??Best Wishes In a message dated 8/7/2015 9:02:26 P.M. Central 
Daylight Time, bobbiehumphre...@gmail.com writes:
Dose anybody know what the name is about the Beach Boys that was just out?    
Bobbie

Smile Everyday


  

[QUAD-L] A question

[Gmail]

Dose anybody know what the name is about the Beach Boys that was just out?
Bobbie

Smile Everyday

Re: [QUAD-L] A question

[wheelchair]

Bruce Johnson??
Best Wishes
 
 
In a message dated 8/7/2015 9:02:26 P.M. Central Daylight Time,  
bobbiehumphre...@gmail.com writes:

Dose  anybody know what the name is about the Beach Boys that was just out? 
  Bobbie

Smile  Everyday

[QUAD-L] colostomy question

[Quadius]

all of you who have colostomy's, do you guys still get some paintings or
sensation in your lower colon. I swear that I almost feel as if I need to
go to the bathroom out the rectum. The x-rays, however, was said to look
normal couple of days ago. I wouldn't think that they would miss if the
colostomy wasn't done correctly.

Quadius

RE: [QUAD-L] colostomy question

[Toby Ausbun]

I have a colostomy and I still get that feeling 8yrs after having mine so don't worry part of being a quad with one.Sent from Yahoo Mail for iPadAt Jun 6, 2015, 8:20:04 PM, Quadius wrote:all of you who have colostomy's, do you guys still get some paintings or sensation in your lower colon. I swear that I almost feel as if I need to go to the bathroom out the rectum. The x-rays, however, was said to look normal couple of days ago. I wouldn't think that they would miss if the colostomy
 wasn't done correctly.Quadius

Re: [QUAD-L] Movie question

[RONALD L PRACHT]

sixth sense maybe 


On Monday, December 15, 2014 10:03 PM, Gmail bobbiehumphre...@gmail.com wrote:
  


Anybody remember the name of the movie with Bruce Willis (sp) who plays a 
psychiatrist whose wife is murdered and a little boy, co-star, says ... I see 
dead people.
Bobbie 

Smile Everyday

RE: [QUAD-L] Movie question

[Danny Espinoza]

The Sixth Sense-Danny


 Original Message 
Subject: [QUAD-L] Movie question
From: Gmail bobbiehumphre...@gmail.com
Date: Mon, December 15, 2014 8:03 pm
To: quad-list@eskimo.com

Anybody remember the name of the movie with Bruce Willis (sp) who plays a psychiatrist whose wife is murdered and a little boy, co-star, says "... I see dead people."
Bobbie 

Smile Everyday

Re: [QUAD-L] Movie question

[Bob Vogel]

The Sixth Sense.  There is a comedian that did a very funny riff on this 
premise.  In the movie
the boy always whispers I see dead people, the effect of the whisper pulls 
the audience in
and makes it more powerful.  The comedian does a how it would really play 
out, the key
phrase I see dead people is whispered and instead of Willis' psychiatrist 
character having
an important reaction he says What?  I didn't hear you, can you speak up!?  
The boy keeps
repeating the line, I see dead people in ever louder whispers, and Willis 
keeps saying What!!??
Still can't hear you. Finally saying something like, Look kid, for this to 
work out you have to speak
loud enough for me to hear…  Just cracked me up.

Bob V

On Dec 16, 2014, at 1:28 AM, RONALD L PRACHT wrote:

 sixth sense maybe
 
 
 On Monday, December 15, 2014 10:03 PM, Gmail bobbiehumphre...@gmail.com 
 wrote:
 
 
 Anybody remember the name of the movie with Bruce Willis (sp) who plays a 
 psychiatrist whose wife is murdered and a little boy, co-star, says ... I 
 see dead people.
 Bobbie 
 
 Smile Everyday
 

Re: [QUAD-L] Movie question

[Gmail]

Thanks everybody 

Smile Everyday

 On Dec 16, 2014, at 10:08 AM, Danny Espinoza da...@immortaldesigns.co wrote:
 
 The Sixth Sense
 
 -Danny
  Original Message 
 Subject: [QUAD-L] Movie question
 From: Gmail bobbiehumphre...@gmail.com
 Date: Mon, December 15, 2014 8:03 pm
 To: quad-list@eskimo.com
 
 Anybody remember the name of the movie with Bruce Willis (sp) who plays a 
 psychiatrist whose wife is murdered and a little boy, co-star, says ... I 
 see dead people.
 Bobbie 
 
 Smile Everyday

[QUAD-L] Movie question

[Gmail]

Anybody remember the name of the movie with Bruce Willis (sp) who plays a 
psychiatrist whose wife is murdered and a little boy, co-star, says ... I see 
dead people.
Bobbie 

Smile Everyday

[QUAD-L] medicaid question

[shirley bell]

Can anyone tell me if I could qualify for Medicaid if my husband has 
investments (money) in his name? thanks, Shirley

Re: [QUAD-L] medicaid question

[Jim Lubin]

http://www.medicaid.gov/medicaid-chip-program-information/by-topics/eligibility/eligibility.html

https://www.healthcare.gov/do-i-qualify-for-medicaid/

You might want to contact a lawyer about setting up a Special Needs Trust

http://en.wikipedia.org/wiki/Special_needs_trust



On Fri, Sep 26, 2014 at 10:23 AM, shirley bell sbell...@cox.net wrote:

  Can anyone tell me if I could qualify for Medicaid if my husband has
 investments (money) in his name? thanks, Shirley

Re: [QUAD-L] A Question Room 1 or Room 2

[wheelchair]

Interesting Question.  There is no correct answer.  There is no  best 
answer.  That room, with all the new people, could be filled with some  people 
who intend to harm you, injure you, steal from you and take advantage of  you. 
 On the other hand, as you mentioned, the room could be filled with  total 
strangers that offer you great opportunities, without threatening your  
security.  Much depends on one's frame of mind and security  standards.
 
Best Wishes
 
 
In a message dated 4/30/2014 9:21:23 P.M. Central Daylight Time,  
bobbiehumphre...@gmail.com writes:

If you  had 2 rooms in which you had a choice to pick to spend a long 
evening, which  would you choose and why?

Room 1.  Filled with all your friends  and family.

Room 2.  Filled with people of different ages you've  never met.

I would choose room 2 
Because I already know the people  in room 1 and it would give me a great 
opportunity to get to know roomful of  new people. 
Bobbie 

Smile  Everyday

Re: [QUAD-L] A Question Room 1 or Room 2

[Danny Hearn]

when I want a room full of strangers of all ages, I just go to the doctors 
office or grocery store. ;-)  Dan H.*

 


 From: wheelch...@aol.com wheelch...@aol.com
To: bobbiehumphre...@gmail.com; quad-list@eskimo.com 
Sent: Thursday, May 1, 2014 7:44 AM
Subject: Re: [QUAD-L] A Question  Room 1 or Room 2
  


Interesting Question.  There is no correct answer.  There is no 
best answer.  That room, with all the new people, could be filled with some 
people who intend to harm you, injure you, steal from you and take advantage of 
you.  On the other hand, as you mentioned, the room could be filled with 
total strangers that offer you great opportunities, without threatening your 
security.  Much depends on one's frame of mind and security 
standards. 

Best Wishes 

In a message dated 4/30/2014 9:21:23 P.M. Central Daylight Time, 
bobbiehumphre...@gmail.com writes: 
If you  had 2 rooms in which you had a choice to pick to spend a long evening, 
which  would you choose and why?

Room 1.  Filled with all your friends 
  and family.

Room 2.  Filled with people of different ages you've 
  never met.

I would choose room 2 
Because I already know the people 
  in room 1 and it would give me a great opportunity to get to know roomful of 
  new people. 
Bobbie 

Smile 
Everyday

Re: [QUAD-L] A Question Room 1 or Room 2

[Fragile]

Wish I could choose room 2, but I'm extremely nervous around strangers.


On Wed, Apr 30, 2014 at 8:21 PM, Gmail bobbiehumphre...@gmail.com wrote:

 If you had 2 rooms in which you had a choice to pick to spend a long
 evening, which would you choose and why?

 Room 1.  Filled with all your friends and family.

 Room 2.  Filled with people of different ages you've never met.

 I would choose room 2
 Because I already know the people in room 1 and it would give me a great
 opportunity to get to know roomful of new people.
 Bobbie

 Smile Everyday

[QUAD-L] A Question Room 1 or Room 2

[Gmail]

If you had 2 rooms in which you had a choice to pick to spend a long evening, 
which would you choose and why?

Room 1.  Filled with all your friends and family.

Room 2.  Filled with people of different ages you've never met.

I would choose room 2 
Because I already know the people in room 1 and it would give me a great 
opportunity to get to know roomful of new people. 
Bobbie 

Smile Everyday

Re: [QUAD-L] A Question Room 1 or Room 2

[Nan]

I'd pick room #2 ... I like adventure. :)

On Wednesday, April 30, 2014 10:21 PM, Gmail bobbiehumphre...@gmail.com wrote:
 
If you had 2 rooms in which you had a choice to pick to spend a long evening, 
which would you choose and why?

Room 1.  Filled with all your friends and family.

Room 2.  Filled with people of different ages you've never met.

I would choose room 2 
Because I already know the people in room 1 and it would give me a great 
opportunity to get to know roomful of new people. 
Bobbie 

Smile Everyday

Re: [QUAD-L] A Question Room 1 or Room 2

[RONALD L PRACHT]

I would choose room  because I need to catch up with some of my friends and 
family and in the end thats all you got.

ron
 


 From: Gmail bobbiehumphre...@gmail.com
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, April 30, 2014 9:21 PM
Subject: [QUAD-L] A Question  Room 1 or Room 2
  

If you had 2 rooms in which you had a choice to pick to spend a long evening, 
which would you choose and why?

Room 1.  Filled with all your friends and family.

Room 2.  Filled with people of different ages you've never met.

I would choose room 2 
Because I already know the people in room 1 and it would give me a great 
opportunity to get to know roomful of new people. 
Bobbie 

Smile Everyday

[QUAD-L] exercise question

[Larry Willis]

How many of you guys have a daily exercise routine? I know I should, but I
don't. I'm just wondering if it would help my sore shoulder joints. If you
have one, what do you do?
Larry

Re: [QUAD-L] exercise question

[Cviewer62]

Hi Larry,  My OT has me doing some exercises during the day for my  
shoulder...swing my arm pendulum style ( swinging slowly back and forth )  
about 3 
sets of 5 several times a day. also and this seems to help the  most is 
while in bed raise your arm up past your ear without bending the  elbow. This 
is 
easier while laying down because gravity helps. I try to do these  every 
day but mostly it is several times a week except for the ones while lying  
down. Rose
 
 
In a message dated 3/16/2014 10:37:45 P.M. Eastern Daylight Time,  
lwillis82...@gmail.com writes:

How many  of you guys have a daily exercise routine? I know I should, but I 
don't. I'm  just wondering if it would help my sore shoulder joints. If you 
have one, what  do you do?
Larry 

Re: [QUAD-L] Fertility question

[Todd Daugherty]

I just want to chime in and say pregnancy is not a 50/50 chance. The estimate
for chances of getting pregnant are 20 percent to 30 percent per menstrual
cycle. (Harvard Med School).  Even then, the chances will vary depending on
a number of factors (including age, current and past medical problems,
certain medication use, timing of intercourse, and the fertility of one's
partner) but many healthy, fertile couples are not pregnant even after six
months. It is common that couples only need to wait a bit longer and learn
more about the best time to have intercourse (based on the woman's
menstrual cycle, or ovulation pattern).

If vibro stimulation did not work I would think it is not being
administered properly or use a different model device that has proven to
work for others.  We were able to do it the normal way so my story won't be
of help.

Todd D
C6-inc (1989)




On Sun, Jan 5, 2014 at 8:37 AM, wheelch...@aol.com wrote:

  The internet is full of stories of male quads and female quads getting
 pregnant, the normal way. More often, pregnancy occurred even after doctors
 said it could not occur.  Pregnancy, as a whole, on this planet is 50-50
 chance. When one considers that most pregnancies are an accident to begin.
 I'm sure you have been warned that anything used to assist you in your
 attempts, such as chemicals and medicines can be dangerous to your body.
 Extraction can work, but it doesn't happen all of the time. Your doctors
 and specialist know more information about your body and case, then anyone
 here, including me.
 But I do wish you and yours much success in your endeavor.
 Best Wishes

  In a message dated 1/4/2014 9:15:21 P.M. Central Standard Time,
 gentr...@yahoo.com writes:

  Anyone here had success getting pregnant when the male has a SCI injury?
 Our specialist wants to extract sperm from him from the sac and put me on
 IVF...I don't want or need IVF but that's the only way they are telling us
 they will do it even though my fertility is fine:/ I don't want to spend
 the extra money or put unnecessary chemicals in my body. I'm not looking
 for stories of ppl getting pregnant the regular way...looking for
 alternatives to IVF.


 Some have suggested IUI.


 We have had no luck using a vibrator to get him to ejaculate.

 Sent from my iPhone

 On Jan 4, 2014, at 9:12 PM, cviewe...@aol.com wrote:

   Yes, It would be nice to wheel across the sandy beach. Rose

  In a message dated 1/4/2014 5:47:25 P.M. Eastern Standard Time,
 sbell...@cox.net writes:

 I need something that will help get through sand on beach. not a beach
 chair. any ideas? maybe these wheelblades would help?
 Best,
 Shirley Bell

 www.ShirleyBellDesigns.com http://www.shirleybelldesigns.com/
 - Original Message -
 From: Gmail bobbiehumphre...@gmail.com
 To: quad-list@eskimo.com
 Sent: Saturday, January 04, 2014 4:52 PM
 Subject: [QUAD-L] Check out these Wheelblades


  http://wheel-life.org/wheelblades-offer-winter-mobility-wheelchair/
 
  I saw these on line and absolutely LOVE them!   Bobbie
 
 
  Smile Everyday
 

 =

Re: [QUAD-L] Fertility question

[wheelchair]

The internet is full of stories of male quads and female quads getting  
pregnant, the normal way. More often, pregnancy occurred even after doctors 
said  it could not occur.  Pregnancy, as a whole, on this planet is 50-50 
chance.  When one considers that most pregnancies are an accident to begin.  
I'm  
sure you have been warned that anything used to assist you in your 
attempts,  such as chemicals and medicines can be dangerous to your body. 
Extraction 
can  work, but it doesn't happen all of the time. Your doctors and 
specialist know  more information about your body and case, then anyone here, 
including me.
But I do wish you and yours much success in your endeavor.
Best Wishes
 
 
In a message dated 1/4/2014 9:15:21 P.M. Central Standard Time,  
gentr...@yahoo.com writes:

 
Anyone here had success getting pregnant when the male  has a SCI injury? 
Our specialist wants to extract sperm from him from the sac  and put me on 
IVF...I don't want or need IVF but that's the only way they are  telling us 
they will do it even though my fertility is fine:/ I don't want to  spend the 
extra money or put unnecessary chemicals in my body. I'm not looking  for 
stories of ppl getting pregnant the regular way...looking for alternatives  to 
IVF. 

Some have suggested IUI. 

We have had no luck using a vibrator to get him to  ejaculate.
Sent from my iPhone

On Jan 4, 2014, at 9:12 PM, _Cviewer62@aol.com_ (mailto:cviewe...@aol.com)  
wrote:



 
Yes, It would be nice to wheel across the sandy beach. Rose
 
 
In a message dated 1/4/2014 5:47:25 P.M. Eastern Standard Time, 
_sbell137@cox.net_ (mailto:sbell...@cox.net)  writes:

I  need something that will help get through sand on beach. not a beach  
chair. any ideas? maybe these wheelblades would  help?
Best,
Shirley Bell

_www.ShirleyBellDesigns.com_ (http://www.shirleybelldesigns.com/) 
-  Original Message - 
From: Gmail _bobbiehumphreys7@gmail.com_ 
(mailto:bobbiehumphre...@gmail.com) 
To:  _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Sent:  Saturday, January 04, 2014 4:52 PM
Subject: [QUAD-L] Check out these  Wheelblades


 http://wheel-life.org/wheelblades-offer-winter-mobility-wheelchair/

  I saw these on line and absolutely LOVE them!Bobbie


 Smile Everyday
  





=

[QUAD-L] Fertility question

[gentrier]

Anyone here had success getting pregnant when the male has a SCI injury? Our 
specialist wants to extract sperm from him from the sac and put me on IVF...I 
don't want or need IVF but that's the only way they are telling us they will do 
it even though my fertility is fine:/ I don't want to spend the extra money or 
put unnecessary chemicals in my body. I'm not looking for stories of ppl 
getting pregnant the regular way...looking for alternatives to IVF.

Some have suggested IUI.

We have had no luck using a vibrator to get him to ejaculate.

Sent from my iPhone

 On Jan 4, 2014, at 9:12 PM, cviewe...@aol.com wrote:
 
 Yes, It would be nice to wheel across the sandy beach. Rose
  
 In a message dated 1/4/2014 5:47:25 P.M. Eastern Standard Time, 
 sbell...@cox.net writes:
 I need something that will help get through sand on beach. not a beach 
 chair. any ideas? maybe these wheelblades would help?
 Best,
 Shirley Bell
 
 www.ShirleyBellDesigns.com
 - Original Message - 
 From: Gmail bobbiehumphre...@gmail.com
 To: quad-list@eskimo.com
 Sent: Saturday, January 04, 2014 4:52 PM
 Subject: [QUAD-L] Check out these Wheelblades
 
 
  http://wheel-life.org/wheelblades-offer-winter-mobility-wheelchair/
 
  I saw these on line and absolutely LOVE them!   Bobbie
 
 
  Smile Everyday
  
 

[QUAD-L] bed question

[Danny Espinoza]

Just browsing for a better bed... Anyone know a way to raise and lower an
entire queen sized bed? The flexfit plus that sleep number sells only does
the head and foot of the bed because I need that functionality.

Also my current mattress is a rotating pressure mattress to prevent bed
sores. What is everyone's thought on sleep number beds? I currently have a
hospital bed that can raise and lower the head, foot and entire bed. I've
been sleeping in an adjustable hospital bed for the last seven and a half
years and would really like a bigger bed that isn't a little hospital bed.

Re: [QUAD-L] bed question

[Gmail]

I just bought an Easy Rest queen size that has the functions your describing. 
Head and knees AND bed has the Hi Low function.
Bobbie  

Smile Everyday

 On Oct 8, 2013, at 7:10 PM, Danny Espinoza da...@immortaldesigns.co wrote:
 
 Just browsing for a better bed... Anyone know a way to raise and lower an 
 entire queen sized bed? The flexfit plus that sleep number sells only does 
 the head and foot of the bed because I need that functionality.
 Also my current mattress is a rotating pressure mattress to prevent bed 
 sores. What is everyone’s thought on sleep number beds? I currently have a 
 hospital bed that can raise and lower the head, foot and entire bed. I’ve 
 been sleeping in an adjustable hospital bed for the last seven and a half 
 years and would really like a bigger bed that isn’t a little hospital bed…

Re: [QUAD-L] Work question....

[Quad Dude]

Danny,

You've gotten some great input on your work question particularly Bob's
detailed input on Web development and the suggestion to contact your local
Vocational Rehabilitation office for their assistance. I strongly concur
with the VR recommendation as they may have lines on jobs you are not aware
of and they may be able to assist you in paying for any training or
education you wish to pursue to enhance your skill sets.

One thing that is not well known is that while most federal government jobs
are only open to existing federal employees, there is an exception for
qualified individuals with disabilities. In fact, there are affirmative
employment programs in place that seek out individuals with disabilities
for employment and some of the positions are conducive to telecommuting
which can be extremely helpful to quads like us. I speak from experience
having worked federal IT related positions for 17 years until opting for an
early retirement five years ago. I also got my additional training and
internship for these federal jobs with the assistance of my state
Vocational Rehabilitation Agency. I'll be happy to elaborate if you have
any questions.

Best of luck in your quest for work.

Steve - C4, 25 years


On Sat, Sep 21, 2013 at 6:22 AM, Danny da...@immortaldesigns.co wrote:

 I’m technically a c2 incomplete asymmetrical quadriplegic and wondering if
 you guys could give me ideas work I’m able to do? I can move my right arm
 only a little up to my wrist, my bicep is strong but my tricep is weak so I
 can barely move my arm since extending my arm takes effort and my arm will
 start curling in eventually, get stuck and I need assistance extending it
 again. My left arm is completely paralyzed… I can use a computer with the
 use of a mouth joystick called a quadjoy and onscreen keyboard. I also have
 a trach atm… The reason I mentioned what function I have was purely to help
 you with recommendations. Before my accident I was a network security
 engineer and computer programmer. I’m good with math, technology, science
 and problem solving.

 Thanks in advance for your suggestions and feedback

 -Danny

RE: [QUAD-L] Work question....

[Danny]

I'll look into it

 

From: Fragile [mailto:swl...@gmail.com] 
Sent: Sunday, September 22, 2013 7:31 AM
To: quad-list@eskimo.com
Cc: quad-list
Subject: Re: [QUAD-L] Work question

 

Danny, can you contact a local Department of Vocational Rehabilitation?  If
there is one near you.

 

On Sat, Sep 21, 2013 at 4:22 AM, Danny da...@immortaldesigns.co
mailto:da...@immortaldesigns.co  wrote:

I'm technically a c2 incomplete asymmetrical quadriplegic and wondering if
you guys could give me ideas work I'm able to do? I can move my right arm
only a little up to my wrist, my bicep is strong but my tricep is weak so I
can barely move my arm since extending my arm takes effort and my arm will
start curling in eventually, get stuck and I need assistance extending it
again. My left arm is completely paralyzed. I can use a computer with the
use of a mouth joystick called a quadjoy and onscreen keyboard. I also have
a trach atm. The reason I mentioned what function I have was purely to help
you with recommendations. Before my accident I was a network security
engineer and computer programmer. I'm good with math, technology, science
and problem solving.

Thanks in advance for your suggestions and feedback

-Danny

 

Fwd: [QUAD-L] Work question....

[lwillis821]

I thought George Bernard Shaw said that.or something similar. Or I could be 
full of baloney, a pretty common condition for me.

Sent from my iPad

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: wheelch...@aol.com
 Date: September 22, 2013, 5:51:08 PM EDT
 To: c5sc...@gmail.com, quad-list@eskimo.com
 Subject: Re: [QUAD-L] Work question
 
 Actually, I should have given credit to Ben Franklin.and his faithful 
 kite.
 Best Wishes
  
 In a message dated 9/22/2013 4:47:51 P.M. Central Daylight Time, 
 c5sc...@gmail.com writes:
 Is that quote from Jack Black in School of Rock?
 - Original Message -
 From: wheelch...@aol.com
 To: da...@immortaldesigns.co ; quad-list@eskimo.com
 Sent: Saturday, September 21, 2013 6:21 PM
 Subject: Re: [QUAD-L] Work question
 
 Those who can do.  Those who can't, teach those who can do.  I'd consider 
 going back to school and get those certifications.
  
 Best Wishes
  
 In a message dated 9/21/2013 11:25:04 A.M. Central Daylight Time, 
 da...@immortaldesigns.co writes:
 All my certs have lapsed since you need to renew them but they were A+, N+, 
 CCNA, CCNP, CCSP. I never got any degrees but I did goto college for a while…
 
  
 
  

[QUAD-L] Work question....

[Danny]

I'm technically a c2 incomplete asymmetrical quadriplegic and wondering if
you guys could give me ideas work I'm able to do? I can move my right arm
only a little up to my wrist, my bicep is strong but my tricep is weak so I
can barely move my arm since extending my arm takes effort and my arm will
start curling in eventually, get stuck and I need assistance extending it
again. My left arm is completely paralyzed. I can use a computer with the
use of a mouth joystick called a quadjoy and onscreen keyboard. I also have
a trach atm. The reason I mentioned what function I have was purely to help
you with recommendations. Before my accident I was a network security
engineer and computer programmer. I'm good with math, technology, science
and problem solving.

Thanks in advance for your suggestions and feedback

-Danny

Re: [QUAD-L] Work question....

[wheelchair]

Do you have any degrees, certifications?  Are you willing to go back  to 
school for additional school or training?
 
Best Wishes
 
 
In a message dated 9/21/2013 5:22:14 A.M. Central Daylight Time,  
da...@immortaldesigns.co writes:

 
I’m technically a c2 incomplete asymmetrical quadriplegic  and wondering if 
you guys could give me ideas work I’m able to do? I can move  my right arm 
only a little up to my wrist, my bicep is strong but my tricep is  weak so I 
can barely move my arm since extending my arm takes effort and my  arm will 
start curling in eventually, get stuck and I need assistance  extending it 
again. My left arm is completely paralyzed… I can use a computer  with the 
use of a mouth joystick called a quadjoy and onscreen keyboard. I  also have 
a trach atm… The reason I mentioned what function I have was purely  to help 
you with recommendations. Before my accident I was a network security  
engineer and computer programmer. I’m good with math, technology, science and  
problem solving. 
Thanks in advance for your suggestions and  feedback 
-Danny

Re: [QUAD-L] Work question....

[Billy Lang]

Online courses towards a  will open up many opportunities. Add voice 
recognition to your tech inventory (if u have not already done so). 
Inventory of jobs by quads that I know personally include psychologists, 
psychiatrist, published novelists, poetess, physiatrists (2), software and 
application programmers, web developers et.al.

Danny, pick something that you love to do. Although you may not be physically 
capable you can still provide positively to the endeavor by documenting, 
advertising or teaching others.

Just don't let what you cannot do interfere with what you can do!

Sent from Billy Lang's iPad


 On Sep 21, 2013, at 8:57, wheelch...@aol.com wrote:
 
 Do you have any degrees, certifications?  Are you willing to go back to 
 school for additional school or training?
  
 Best Wishes
  
 In a message dated 9/21/2013 5:22:14 A.M. Central Daylight Time, 
 da...@immortaldesigns.co writes:
 I’m technically a c2 incomplete asymmetrical quadriplegic and wondering if 
 you guys could give me ideas work I’m able to do? I can move my right arm 
 only a little up to my wrist, my bicep is strong but my tricep is weak so I 
 can barely move my arm since extending my arm takes effort and my arm will 
 start curling in eventually, get stuck and I need assistance extending it 
 again. My left arm is completely paralyzed… I can use a computer with the use 
 of a mouth joystick called a quadjoy and onscreen keyboard. I also have a 
 trach atm… The reason I mentioned what function I have was purely to help you 
 with recommendations. Before my accident I was a network security engineer 
 and computer programmer. I’m good with math, technology, science and problem 
 solving.
 
 Thanks in advance for your suggestions and feedback
 
 -Danny

RE: [QUAD-L] Work question....

[Danny]

All my certs have lapsed since you need to renew them but they were A+, N+, 
CCNA, CCNP, CCSP. I never got any degrees but I did goto college for a while…

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Saturday, September 21, 2013 5:58 AM
To: da...@immortaldesigns.co; quad-list@eskimo.com
Subject: Re: [QUAD-L] Work question

 

Do you have any degrees, certifications?  Are you willing to go back to school 
for additional school or training?

 

Best Wishes

 

In a message dated 9/21/2013 5:22:14 A.M. Central Daylight Time, 
da...@immortaldesigns.co mailto:da...@immortaldesigns.co  writes:

I’m technically a c2 incomplete asymmetrical quadriplegic and wondering if you 
guys could give me ideas work I’m able to do? I can move my right arm only a 
little up to my wrist, my bicep is strong but my tricep is weak so I can barely 
move my arm since extending my arm takes effort and my arm will start curling 
in eventually, get stuck and I need assistance extending it again. My left arm 
is completely paralyzed… I can use a computer with the use of a mouth joystick 
called a quadjoy and onscreen keyboard. I also have a trach atm… The reason I 
mentioned what function I have was purely to help you with recommendations. 
Before my accident I was a network security engineer and computer programmer. 
I’m good with math, technology, science and problem solving.

Thanks in advance for your suggestions and feedback

-Danny

RE: [QUAD-L] Work question....

[Danny]

I’ve been doing web programming but it doesn’t make much… I’ve been using 
dragon for five years now. Hmmm psychiatrist sounds interesting I’ll research 
it. ty

 

From: Billy Lang [mailto:blan...@verizon.net] 
Sent: Saturday, September 21, 2013 9:07 AM
To: wheelch...@aol.com
Cc: da...@immortaldesigns.co; quad-list@eskimo.com
Subject: Re: [QUAD-L] Work question

 

Online courses towards a  will open up many opportunities. Add voice 
recognition to your tech inventory (if u have not already done so). 

Inventory of jobs by quads that I know personally include psychologists, 
psychiatrist, published novelists, poetess, physiatrists (2), software and 
application programmers, web developers et.al.

 

Danny, pick something that you love to do. Although you may not be physically 
capable you can still provide positively to the endeavor by documenting, 
advertising or teaching others.

 

Just don't let what you cannot do interfere with what you can do!

Sent from Billy Lang's iPad

 


On Sep 21, 2013, at 8:57, wheelch...@aol.com mailto:wheelch...@aol.com  wrote:

Do you have any degrees, certifications?  Are you willing to go back to school 
for additional school or training?

 

Best Wishes

 

In a message dated 9/21/2013 5:22:14 A.M. Central Daylight Time, 
da...@immortaldesigns.co mailto:da...@immortaldesigns.co  writes:

I’m technically a c2 incomplete asymmetrical quadriplegic and wondering if you 
guys could give me ideas work I’m able to do? I can move my right arm only a 
little up to my wrist, my bicep is strong but my tricep is weak so I can barely 
move my arm since extending my arm takes effort and my arm will start curling 
in eventually, get stuck and I need assistance extending it again. My left arm 
is completely paralyzed… I can use a computer with the use of a mouth joystick 
called a quadjoy and onscreen keyboard. I also have a trach atm… The reason I 
mentioned what function I have was purely to help you with recommendations. 
Before my accident I was a network security engineer and computer programmer. 
I’m good with math, technology, science and problem solving.

Thanks in advance for your suggestions and feedback

-Danny

Re: [QUAD-L] Work question....

[Don Smith]

How about math, technology  or science tuter at the local school or college.  
You can also work privately from your home.



 From: Danny da...@immortaldesigns.co
To: quad-list@eskimo.com 
Sent: Saturday, September 21, 2013 3:22 AM
Subject: [QUAD-L] Work question
 


I’m technically a c2 incomplete asymmetrical quadriplegic and wondering if you 
guys could give me ideas work I’m able to do? I can move my right arm only a 
little up to my wrist, my bicep is strong but my tricep is weak so I can barely 
move my arm since extending my arm takes effort and my arm will start curling 
in eventually, get stuck and I need assistance extending it again. My left arm 
is completely paralyzed… I can use a computer with the use of a mouth joystick 
called a quadjoy and onscreen keyboard. I also have a trach atm… The reason I 
mentioned what function I have was purely to help you with recommendations. 
Before my accident I was a network security engineer and computer programmer. 
I’m good with math, technology, science and problem solving.
Thanks in advance for your suggestions and feedback
-Danny