Re: [TMIC] Hi Stacy
Don't speak so quick. I don't know how long it will take for me to get back to it. I messed myself up pretty bad with my back. A lot of therapy is still needed. I'm still trying to figure out how to get to my feet so I can get dressed in a fair amount of time. LOL. stacy - Original Message - From: Jill Zmailto:[EMAIL PROTECTED] To: Stacy Harimmailto:[EMAIL PROTECTED] ; TM listmailto:tmic-list@eskimo.com Sent: Monday, September 17, 2007 10:45 PM Subject: Re: [TMIC] Hi Stacy Stacy, I'm still trying to finish my Bachelors Degree and I'm 37 You guys are lucky! Stacy Harim [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] wrote: I've come to grips. I also want to get my masters and doctrine. I feel like I'll be in school forever and if I don't get that far, then that's ok too. I want to at least get my masters and hopefully teach part time. With a social work masters, I can bring awareness to students going into the field. Stacy - Original Message - From: randy rankinmailto:[EMAIL PROTECTED] To: Stacy Harimmailto:[EMAIL PROTECTED] Sent: Monday, September 17, 2007 5:10 PM Subject: Re: [TMIC] Hi Stacy Stacy - Don't feel bad about graduating when you are 35. I started working on my doctorate at 38 - now I'm 40 and hope to graduate in another year or two. TM hit me the same DAY that I started school - can you believe it? Instead of being in class, or at work, i was in the hospital paralyized from the waist down. Had I not listen to that inner voice, instead of the idiots at work, it would have been full paraylized with loss of blatter instead of have a partial problem with my right leg. Thank God I walked well limped and drug myself off the job and went to the clinic. My boss wrote me up for defiance but they all back tracted when they realized how much trouble they were about to get into. Keep working on your school - slowly but surely you'll have it out of the way!! Stacy Harim [EMAIL PROTECTED] wrote: Hi Jude, I'm pretty OK. I was trying to give Regina a glimmer of hope. I believe that any of us that have to deal with the physical/mental after affects of TM or ADEM are brave. I know I will get out of this bed soon. I won't be the same as I was before the spinal fusion but I still have my arms and with work, I will be more independent again. I was going to school for social work so I can help others with disabilities and plan to finish when I can. I did have a down time in May before I broke my back when everyone was graduating bc I was also supposed to graduate and I still have 2 years left. I am only 33 but it does get discouraging to think I'll be 35 before I'm finished. I have a lot of debt to pay off and want to one day own a house and have it paid off before I retire which seems it might be impossible but in reality I know its not. I think we do learn from each other and without this and that quadlist, I would be lost without knowing what to do. I do more reading here hence the lace of replies but it doesn't mean I don't get anything out of it. Thanks to you all, Stacy - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, September 15, 2007 5:28 AM Subject: Re: [TMIC] Hi Stacy In a message dated 9/14/2007 4:19:05 PM Eastern Daylight Time, [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] writes: Stacy and Regina, Whatever you both do, please stay with us and give us a good try. I'm relatively certain that we will help you and I'm sure that in turn, we will learn something from the experience you have gone through. Best of everything to you both, Jude Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT -- See what's new at AOL.comhttp://www.aol.com/?NCID=AOLCMP0030001170 and Make AOL Your Homepagehttp://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169. -- Be a better Globetrotter. Get better travel answers http://us.rd.yahoo.com/evt=48254/*http://answers.yahoo.com/dir/_ylc=X3oDMTI5MGx2aThyBF9TAzIxMTU1MDAzNTIEX3MDMzk2NTQ1MTAzBHNlYwNCQUJwaWxsYXJfTklfMzYwBHNsawNQcm9kdWN0X3F1ZXN0aW9uX3BhZ2U-?link=listsid=396545469from someone who knows. Yahoo! Answers - Check it out. www.greatamericanbeanbag.comhttp://www.greatamericanbeanbag.com/
Re: [TMIC] Hi Stacy
Thank you Barbara and everyone else giving me encouragement I really appreciate the thoughtfulness. You all are great support. Stacy - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, September 18, 2007 12:29 AM Subject: Re: [TMIC] Hi Stacy Hi Stacy, You Rock! I absolutely believe that you will get you degree, whether it be a masters and doctrine or not, you will be able to bring awareness to students going into the field. And, if you go into social work of any kind, you will do that as well. You have the kind of determination that is needed to succeed and get yourself going, even after the problems and surgeries you've had with your spine. I think you can go one step backward and two steps forward, and not all of us can do that. YOU GO GIRL!! Anytime you are feeling like you need a pep talk, just let me know. I'm here for you! Hugs, Barbara A -- See what's new at AOL.comhttp://www.aol.com/?NCID=AOLCMP0030001170 and Make AOL Your Homepagehttp://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169.
Re: [TMIC] 10 LONG YEARS
Robert, I wish you a belated Happy Birthday. Next year will be 20 years with TM for me. I don't remember the exact date of onset, I just remember standing up from my seat at a movie theatre, and my left foot/leg was numb. Nothing has been normal since then. FWIW, I, and many others, understand how you feel. I hope and pray there will be a breakthrough that will help us old timers. Take care, Kevin Robert Pall wrote: Yesterday was my 60th birthday….in 6 days it will be my 10 year aniversary of having TM. I am feeling somewhat sad and melancholy. I normally accept my condition and give thanks that it is not as bad as many on the list. However looking back I can no longer remember what it felt like to be normal. For people who do not have an affliction like ours it is so difficult to explain. This was the first time I was ever sick where I could not expect to be all better. Therefore instead of celebrating a birthday milestone, I spent much of the day feeling sorry for myself. Knowing my personality I am quite sure this feeling will soon be over and I will go back to being upbeat. But….10 years….and not one waking minute where I felt good. Some days are better than others….but no day is without discomfort or worse. I have found our condition almost impossible to explain to a healthy person…I cannot even come to terms with TM at my own level. I understand strides are being made to help us…but I truly doubt it is going to help the old timers. I am grateful that the younger TM'rs will benefit. I have not given up hope and will continue to battle this condition for as long as I live. I will regain my positive attitude and be grateful for all of the wonderful things in my life. I just needed to vent to the people who really understand! Rob in New Jersey
Re: [TMIC] 10 LONG YEARS
Hi Folks, Ok, I just wrote to the Oprah show. Here's the address: http://www.oprah.com/email/reach/email_showideas.jhtml This is what I wrote: I have a rare medical condition called Transverse Myelitis. I, and others with the illness, are trying to raise awareness of it. Cody Unser, daughter of race car driver Al Unser Jr., is a paraplegic from Transverse Myelitis. Would you consider doing a segment on this devastating illness? Sincerely, Kevin Wolfthal If you want to write to her, you are welcome to copy/paste what I wrote, just change the name. It can't hurt. Kevin Kevin Wolfthal wrote: Gunny, The only thing I can think of right now is if we could get someone like Cody Unser on a show like Oprah, maybe with Dr. Kerr. She has done programs on medical subjects. Kevin [EMAIL PROTECTED] wrote: Kev: Gimme some ideas on how we can make money to fund Doug Kerr. Every time I talk to him, he tells me he's hamstringed without the funding. Think, I need all the help I can get. Oh, 11 years for me July 12th. Gunny See what's new at AOL.com http://www.aol.com?NCID=AOLCMP0030001170 and Make AOL Your Homepage http://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169.
[TMIC] one of our felloe TM'ers
Hello, I hope everyone is well today. I received this from a sister of one of our family (Roland 'Red) and I think his last name is Hiles (?), but she asked that I ask you to please pray for him, thanks.Ella Subj: Update on Red Date: 9/19/2007 10:37:13 PM Eastern Daylight Time From: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) To: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) Sent from the Internet _(Details)_ (aolmsg://02ea4938/inethdr/2) Hi Ella, Just wanted to let you know that Red is having his left leg amputated tomorrow, September 20th, around 2:00 in the afternoon. The doctors think it best to go above the knee since his leg is contracted. Would you please ask everyone on the list to remember him in prayer tomorrow? His picture is still in the members list if anyone is interested in who he is. Gee, this is such a hard time. I can't believe 5 years have passed so quickly. In fact, his T.M. anniversary was on July 27th this year. I think he is handling it well, always making a joke. He said he wanted to be a peg leg pirate now. Rick asked him this evening if we could keep his leg and make a lamp out of it, like in the movie A Christmas Story. Red really liked that one. I will give you an update after all is over. Love, your friend, Lisa. ** ** Hi Ella, Well, it's over. The doctors took off the leg above the knee. They also opted to give Red a spinal, thought it was safer than putting him under. Red was all for that. The nurses said Red talked non stop during the entire surgery!!! I just happened to be coming down the hall and came upon Red and the nurses (after the surgery) as they were taking him back to his room. He was wide awake and continued talking to me and dad for the next 1 1/2 hours. I am amazed. He is handling it all so well. Now all he wants to do is heal and be able to go fishing before the Fall is over. . I'll be in touch, let you know how Red progresses. Love, Lisa. ** See what's new at http://www.aol.com
Re: [TMIC] 10 LONG YEARS
Hi Rob, I just turned 50 last month and then had my 12th TM anniversary Sept. 1. For several years I have not looked forward to Sept. 1, but then I'd forget about it (one of the benefits of being middle-aged :-) ) and remember a few days later that I've passed another milestone with TM. I'm kind of glad it happens that way for me. There was a time when I could not accept not being healed from TM. I think I've pretty much come to a place of acceptance now, with the Lord's help. But, as you say, there are good days and bad days. Hope things look up for you soon. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 9/21/2007 1:24:53 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Yesterday was my 60th birthday….in 6 days it will be my 10 year aniversary of having TM. I am feeling somewhat sad and melancholy. I normally accept my condition and give thanks that it is not as bad as many on the list. However looking back I can no longer remember what it felt like to be normal. For people who do not have an affliction like ours it is so difficult to explain. This was the first time I was ever sick where I could not expect to be all better. Therefore instead of celebrating a birthday milestone, I spent much of the day feeling sorry for myself. Knowing my personality I am quite sure this feeling will soon be over and I will go back to being upbeat. But….10 years… .and not one waking minute where I felt good. Some days are better than others….but no day is without discomfort or worse. I have found our condition almost impossible to explain to a healthy person…I cannot even come to terms with TM at my own level. I understand strides are being made to help us…but I truly doubt it is going to help the old timers. I am grateful that the younger TM'rs will benefit. I have not given up hope and will continue to battle this condition for as long as I live. I will regain my positive attitude and be grateful for all of the wonderful things in my life. I just needed to vent to the people who really understand! Rob in New Jersey ** See what's new at http://www.aol.com
Re: [TMIC] one of our felloe TM'ers
*This is scary for me. For the last few months my right leg has been contracting to where I can hardly get the knee past 90 degrees anymore, no matter how much I massage and stretch my leg. And when I have spasms now, the leg tries to straighten out, and it causes a lot more pain than usual. Is this a normal procedure for someone in this condition? I really do NOT want another surgery, especially to lose my leg. Peace, Bernie in Texas* Hi Ella, Just wanted to let you know that Red is having his left leg amputated tomorrow, September 20th, around 2:00 in the afternoon. The doctors think it best to go above the knee since his leg is contracted. begin:vcard fn:May God bestow on us: peace, faith, blessings, compassion, and forgiveness in our next years as we venture through these times. adr;dom:Apt. #203;;1941 Gaston Place Drive;Austin;Texas;78723 email;internet:[EMAIL PROTECTED] tel;home:512-926-5475 note:Thomas Jefferson said it best,--Those that trade freedom for security deserve neither freedom nor security x-mozilla-html:TRUE version:2.1 end:vcard
Re: [TMIC] one of our felloe TM'ers
In a message dated 9/21/2007 4:25:31 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: For the last few months my right leg has been contracting to where I can hardly get the knee past 90 degrees anymore. Is this a normal procedure for someone in this condition? Bernie, I really don't know but when I talk to Lisa I will ask. I do know tis wasn't a sudden thing as he has had problems with his legs for a while. Ella ** See what's new at http://www.aol.com
Re: [TMIC] 10 LONG YEARS
I've lived with TM so longit is normal for me. I can't remember what it feels like to not have to tell my leg to move or have to slingthemfrom one spot to another. I have to admit that I worry sometimes that as I age things get more difficult. I don't have the stamina that I used to have. My shoulders, hands and legs are getting worse. I don't know if it's the weather or just something wrong with me. It has just been killing me to write, transfer from my chair to the car, bed ect... They throb or ache constantly. Alieve used to help as did aspercream but niether seem to make a difference anymore. Oh well, I'v got a feeling that they might be doing the same even if I didn't have TM. Just not so bad. Hope you guys are all doing well. Thanks for letting me whine. Larry in Oklahoma who is really greatful for what I do have. Larry Throne, MSW From: Kevin Wolfthal [EMAIL PROTECTED]To: Tmic-list@eskimo.comSubject: Re: [TMIC] 10 LONG YEARSDate: Fri, 21 Sep 2007 13:47:35 -0400Robert,I wish you a belated Happy Birthday.Next year will be 20 years with TM for me. I don't remember the exact date of onset, I just rememberstanding up from my seat at a movie theatre, and my left foot/leg was numb. Nothing has been normalsince then.FWIW, I, and many others, understand how you feel. I hope and pray there will be a breakthroughthat will help us old timers.Take care,KevinRobert Pall wrote:Yesterday was my 60th birthday .in 6 days it will be my 10 year aniversary of having TM. I am feeling somewhat sad and melancholy. I normally accept my condition and give thanks that it is not as bad as many on the list. However looking back I can no longer remember what it felt like to be "normal". For people who do not have an affliction like ours it is so difficult to explain. This was the first time I was ever sick where I could not expect to be "all better". Therefore instead of celebrating a birthday milestone, I spent much of the day feeling sorry for myself. Knowing my personality I am quite sure this feeling will soon be over and I will go back to being upbeat. But .10 years .and not one waking minute where I felt good. Some days are better than others .but no day is without discomfort or worse. I have found our condition almost impossible to explain to a healthy person I cannot even come to terms with TM at my own level.I understand strides are being made to help us but I truly doubt it is going to help the old timers. I am grateful that the younger TM'rs will benefit. I have not given up hope and will continue to battle this condition for as long as I live. I will regain my positive attitude and be grateful for all of the wonderful things in my life. I just needed to vent to the people who really understand!Rob in New Jersey Its the Windows Live Hotmail® you love on your phone!
Re: [TMIC] 10 LONG YEARS
*Hi Kevin,* *RE; Oprah---we've been trying to get her attention also for a segment on rare neurological diseases. Recently, she did feature a gentleman with Transverse Myelitis. Last year, i heard that she would be doing a segement, specifically on neurological disorders, but i haven't seen it yet. Maybe if we all bombard her with mail?* ** *Grace* **
[TMIC] L'Shona Tova
For all of you that are Jewish and everyone else, have a Happy and Healthy New Year. May the coming year bring us all peace and a feeling of well being and perhaps a little more medical insight into our problems. I, for one, have not felt normal since Labor Day weekend 2005. If one more person tells me what a great attitude I have I am going to bop them one. I never let my feelings show on the outside so they never know what it is like to live with TM. Thank goodness for this list of understanding people. I may not write to often but I empathize with all of you. By the way, had drinks with a TMer who lives near me. We met without the spouses and had a wonderful talking session. Finally put a face to someone on the list. Stay well, Rosalie PS Lets try to get all of those non-handicapped people out of our parking spaces. That is one of my biggest pet peeves. ** See what's new at http://www.aol.com
Re: [TMIC] 10 LONG YEARS
Muscles in my left thigh fight it out every night - trying to flex and extend at the same time. Hard on the kneecap. Alton
Re: [TMIC] 10 LONG YEARS
Hi Grace, Was it the author with TM she had on? I think bombardment with email is worth a shot. I think I'll start emailing my state politicians also. I have gotten help from some of them on other matters. I'd be willing to testify to Congress if it would help. Kevin Grace M. wrote: /Hi Kevin,/ /RE; Oprah---we've been trying to get her attention also for a segment on rare neurological diseases. Recently, she did feature a gentleman with Transverse Myelitis. Last year, i heard that she would be doing a segement, specifically on neurological disorders, but i haven't seen it yet. Maybe if we all bombard her with mail? / // /Grace/ // Grace M. wrote: /Hi Kevin,/ /RE; Oprah---we've been trying to get her attention also for a segment on rare neurological diseases. Recently, she did feature a gentleman with Transverse Myelitis. Last year, i heard that she would be doing a segement, specifically on neurological disorders, but i haven't seen it yet. Maybe if we all bombard her with mail? / // /Grace/ //
