[TMIC] BLESSED TO BE A MEMBER
I HAVE BEEN A MEMBER FOR QUIT A FEW YEARS. I KNOW I DON'T WRITE OFTEN. BUT I READ EVERY LETTER AND YOU ALL HAVE BEEN SO MUCH HELP TO ME. I HAVE HAD TIM FOR 10 YEARS IN JULY. I CANNOT WALK OR USE MY HANDS AND ARMS . I HAVE A POWER CHAIR AND A HUSBAND THAT TAKES CARE OF ME. I LOVE YOU ALL AND AM BLESSED TO HAVE FOUND A GROUP LIKE ALOF YOU.. I HAVE TALKED TO JUDE A FEW TIMES. SHE IS A WOUNDFUL PERSON. I AM HAPPY TO SAY I AM HER FRIEND. I AM SORRY I CAN'T TYPE WELL BUT THIS IS IT. I REALLY HAVE ALOT OF PAIN LIKE EVERYONE ELSE. THANK YOU ALL AND GOD BLESS MARIE **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220572844x1201387506/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26 hmpgID%3D62%26bcd%3DAprilfooter420NO62)
[TMIC] Re: tmic-digest Digest V2009 #255
Please remove me from the mailing e-mail list. My husband Arthur made his
transition 3/20/09. I appreciate the information and friendship available to us
on this site. Again thank you all and I know God is blessing us each and every
one.
Dee
--- On Thu, 4/9/09, tmic-digest-requ...@eskimo.com
tmic-digest-requ...@eskimo.com wrote:
From: tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #255
To: tmic-dig...@eskimo.com
Date: Thursday, April 9, 2009, 6:55 PM
tmic-digest Digest Volume 2009 : Issue 255
Today's Topics:
Re: [TMIC] RE: tmic-digest Digest V2 [ Janice
jan...@centurytel.net ]
#yiv338963554 .hmmessage P {
PADDING-RIGHT:0px;PADDING-LEFT:0px;PADDING-BOTTOM:0px;MARGIN:0px;PADDING-TOP:0px;}
#yiv338963554 {
FONT-SIZE:10pt;FONT-FAMILY:Verdana;}
Okay, you all are making me feel braver about traveling. Also, I have a great
husband to help me. Marieke, you surprised me when you said you wear a
brace. How did that come about and how does it help you? Janice
- Original Message -
From: marieke dufresne
To: tmic-list@eskimo.com
Sent: Thursday, April 09, 2009 3:45 PM
Subject: [TMIC] RE: tmic-digest Digest V2009 #247
I have travelled by plane alone and with my boyfriend (now ex). Last time I
went alone was from Montreal QC, Canada to Seattle, WA. Took 2 planes there and
2 back. (Mtl to Toronto to Seattle there, Seattle to Vancouver BC to Mtl back).
The long rides were 6 hrs, the short was 1.5 hrs (Mtl-TO) and 30 min (SeaTac to
Van).
I travel with my wheelchair and bring my cane and wear my long leg brace. When
I travel alone I usually get bumped to FIRST Class for FREE! I ask for seats
close to the bathroom (and often they figure since I am alone I will need more
help as I am in a chair, and they have more time to help when in 1st class).
The first time I travelled alone I was nervous about going through security,
the only time they ever gave me problems was going from Mtl to TO to Seattle.
The Mtl security (US side) was ok really, but one lady there wanted me to take
off my brace... um, I need to take off my shoes/pants.. I just looked at them
and said, it's a brace that surrounds my leg, no hollow parts, I can't hide
anything there. I was pissed, not b/c that they wanted to check it, that's
fine, but it was her attitude that really got to me. She was rude and talked
like I was mentally challenged. Um , hello, I may be in a wheelchair, but I
am perfectly capable of making conversation! Grrr...
Don't let the difficulties of travelling stop you! It sounds harder than it is,
and I was plenty worried, but it turned out just fine and I had a great flight!
(the attendents were so very nice and helpful and it doesn't hurt that I look
under 18 sometimes!).
Marieke 33yo, t...@t1 since March 18, 2004
Date: Thu, 9 Apr 2009 12:38:45 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #247
To: tmic-dig...@eskimo.com
--Forwarded Message Attachment--
tmic-digest Digest Volume 2009 : Issue 247
Today's Topics:
Re: [TMIC] Lack of Communication [ Trudy Ogilvie mother...@gmail.com ]
--Forwarded Message Attachment--
Date: Thu, 9 Apr 2009 14:44:48 -0400
From: mother...@gmail.com
To: pieterheat...@shaw.ca
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] Lack of Communication
Heather I have found that sometimes you just have to do what you have to do!!
I flew alone to be with my mom when she was in her late 80's and I was so glad
that I did. Everyone was so kind and helpful. I too use a walker and sometimes
a cane! Long trips are awful but my son is getting married in Lima, Peru in
November and I am definitely going to be there! I have hand controls on my car
because I do not have any real control over my legs. All rental cars have
handicapped equipped cars. And they are not allowed to charge extra for the
device. There are different types but it's so easy, you catch on very quickly.
Tho it sounds like you have lots of people to ferry you around. Have a
wonderful time!! I love it when our family gets together! Cherish those
moments!
Again, ENJOY!!!
Trudy
On Thu, Apr 9, 2009 at 1:20 AM, Pieter and Heather pieterheat...@shaw.ca
wrote:
Janice et al,
I will be flying. I have done this before. I take my walker and my cane. I
get a bulkhead seat. Hubby and I were back to Ontario last fall. However, he
just doesn't feel like going this soon. However, my Mom is 85 so I feel I want
to go. My daughter, 2 sisters and all their families are there as well as my
husbands four sisters. So there will be lots of people to visit as well as my
old friends. My only problem is that when I get there I have to rely on others
to ferry me around. I can only drive with the left foot accelorator. It is a
four hour flight which seems quite long. I also take my air/gel filled seat
cushion from my wheelchair.
RE: [TMIC] BLESSED TO BE A MEMBER
MARIE: IT IS GOOD TO HEAR FROM YOU EVEN IF IT ISN'T TOO OFTEN. I ALSO FEEL BLESSED TO HAVE FOUND THIS SITE. I AM ABLE TO GET AROUND FAIRLY WELL, BUT DEPEND ON MY HUSBAND AND DAUGHTERS FOR SO MUCH I DON'T KNOW WHAT I WOULD DO WITHOUT ALL OF THE PEOPLE ON THIS SITE. THEY WERE SUCH A BLESSING WHEN I GOT HOME FROM THE HOSPITAL AND YOU FEEL SO ALONE. I HOPE WE ARE ABLE TO HEAR FROM YOU AGAIN SOON. PATTI IN WISCONSIN From: deer...@aol.com [mailto:deer...@aol.com] Sent: Monday, April 20, 2009 11:42 AM To: tmic-list@eskimo.com Subject: [TMIC] BLESSED TO BE A MEMBER I HAVE BEEN A MEMBER FOR QUIT A FEW YEARS. I KNOW I DON'T WRITE OFTEN. BUT I READ EVERY LETTER AND YOU ALL HAVE BEEN SO MUCH HELP TO ME. I HAVE HAD TIM FOR 10 YEARS IN JULY. I CANNOT WALK OR USE MY HANDS AND ARMS . I HAVE A POWER CHAIR AND A HUSBAND THAT TAKES CARE OF ME. I LOVE YOU ALL AND AM BLESSED TO HAVE FOUND A GROUP LIKE ALOF YOU.. I HAVE TALKED TO JUDE A FEW TIMES. SHE IS A WOUNDFUL PERSON. I AM HAPPY TO SAY I AM HER FRIEND. I AM SORRY I CAN'T TYPE WELL BUT THIS IS IT. I REALLY HAVE ALOT OF PAIN LIKE EVERYONE ELSE. THANK YOU ALL AND GOD BLESS MARIE _ A Good Credit Score is 700 or Above. See http://pr.atwola.com/promoclk/100126575x1220572844x1201387506/aol?redir=htt p:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID% 3D62%26bcd%3DAprilfooter420NO62 yours in just 2 easy steps!
Re: [TMIC] BLESSED TO BE A MEMBER
Hi Marie I'm glad to hear you've been able to talk with Jude. Yes, she is a wonderful woman. I'm also glad you're able to read all of our posts and keep up with such a great group of wounded people. I often think the pain is the worst part of TM. I'm always happy for any TMer who has been spared from pain as it gives me hope that mine will go away. I cringe when I read that someone has the pain, because know one understands how it hangs on like a mad pitt bull. Patti - Michigan deer...@aol.com wrote: I HAVE BEEN A MEMBER FOR QUIT A FEW YEARS. I KNOW I DON'T WRITE OFTEN. BUT I READ EVERY LETTER AND YOU ALL HAVE BEEN SO MUCH HELP TO ME. I HAVE HAD TIM FOR 10 YEARS IN JULY. I CANNOT WALK OR USE MY HANDS AND ARMS . I HAVE A POWER CHAIR AND A HUSBAND THAT TAKES CARE OF ME. I LOVE YOU ALL AND AM BLESSED TO HAVE FOUND A GROUP LIKE ALOF YOU.. I HAVE TALKED TO JUDE A FEW TIMES. SHE IS A WOUNDFUL PERSON. I AM HAPPY TO SAY I AM HER FRIEND. I AM SORRY I CAN'T TYPE WELL BUT THIS IS IT. I REALLY HAVE ALOT OF PAIN LIKE EVERYONE ELSE. THANK YOU ALL AND GOD BLESS MARIE **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220572844x1201387506/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26 hmpgID%3D62%26bcd%3DAprilfooter420NO62)
Re: [TMIC] quadraplegia
I'm a C 4 quadriplegic who have the same issues and would definitely like to hear from someone who is living independently. I would even like to hear from someone who's living in a facility that supplies their needs. I seem to have a problem finding a place that can supply my needs and that's affordable. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220572844x1201387506/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26 hmpgID%3D62%26bcd%3DAprilfooter420NO62)
[TMIC] (no subject)
Hi Everyone, I was un-subscribed for awhile when we decided to run away to Mexico for a week last month and just got back on board today. I hope everyone is doing well. How is our Jude? (Make mental note to self to write her privately) It's very hot here today. Spring has not completely sprung here in Ventura, yet the heat of the summer is upon us with a vengeance as of yesterday. 99 degrees. I was SO looking forward to Spring... I hope it reappears soon. Terry is having some difficulties and at long last, gets his second (complete) shoulder replacement tomorrow. He is looking forward to it, but not the recovery as he will be down to one limb, (so to speak), until he has the mobility back in it. Hopefully he'll be pain free once he's recovered, too. I will keep you posted. As always, I am so glad you are in my life! Sandy Parker **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [TMIC] (no subject)
Sandy, Was thinking about Terry today. Realizing he has surgery tomorrow. Please let us know how he makes out. Heather in Calgary - Original Message - From: parkersw...@aol.com To: tmic-list@eskimo.com Sent: Monday, April 20, 2009 2:01 PM Subject: [TMIC] (no subject) Hi Everyone, I was un-subscribed for awhile when we decided to run away to Mexico for a week last month and just got back on board today. I hope everyone is doing well. How is our Jude? (Make mental note to self to write her privately) It's very hot here today. Spring has not completely sprung here in Ventura, yet the heat of the summer is upon us with a vengeance as of yesterday. 99 degrees. I was SO looking forward to Spring... I hope it reappears soon. Terry is having some difficulties and at long last, gets his second (complete) shoulder replacement tomorrow. He is looking forward to it, but not the recovery as he will be down to one limb, (so to speak), until he has the mobility back in it. Hopefully he'll be pain free once he's recovered, too. I will keep you posted. As always, I am so glad you are in my life! Sandy Parker -- Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!
Re: [TMIC] Sandy/Terry
Hi Sandy Welcome back. I'm glad you had your vacation and hope you have lots of pictures for Terry to review during his recovery. He'll be your handsome bionic man soon. I'll be praying for a successful surgery, speedy recovery and pain-free days ahead. Patti - Michigan parkersw...@aol.com wrote: Hi Everyone, I was un-subscribed for awhile when we decided to run away to Mexico for a week last month and just got back on board today. I hope everyone is doing well. How is our Jude? (Make mental note to self to write her privately) It's very hot here today. Spring has not completely sprung here in Ventura, yet the heat of the summer is upon us with a vengeance as of yesterday. 99 degrees. I was SO looking forward to Spring... I hope it reappears soon. Terry is having some difficulties and at long last, gets his second (complete) shoulder replacement tomorrow. He is looking forward to it, but not the recovery as he will be down to one limb, (so to speak), until he has the mobility back in it. Hopefully he'll be pain free once he's recovered, too. I will keep you posted. As always, I am so glad you are in my life! Sandy Parker **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [TMIC] BLESSED TO BE A MEMBER
In a message dated 4/20/2009 1:59:34 P.M. Eastern Daylight Time, pjv1...@chartermi.net writes: someone has the pain,know one understands how it hangs on like a mad pitt bull. oh my gosh Patti, that is a good way to put it. The pain grabs you and locks in. We do have a nice 'club' don't we? Ella in Ohio **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220572844x1201387506/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd= Aprilfooter420NO62)
Re: [TMIC] (no subject)
Good to have you back.How was Mexico? Janice - Original Message - From: parkersw...@aol.com To: tmic-list@eskimo.com Sent: Monday, April 20, 2009 3:01 PM Subject: [TMIC] (no subject) Hi Everyone, I was un-subscribed for awhile when we decided to run away to Mexico for a week last month and just got back on board today. I hope everyone is doing well. How is our Jude? (Make mental note to self to write her privately) It's very hot here today. Spring has not completely sprung here in Ventura, yet the heat of the summer is upon us with a vengeance as of yesterday. 99 degrees. I was SO looking forward to Spring... I hope it reappears soon. Terry is having some difficulties and at long last, gets his second (complete) shoulder replacement tomorrow. He is looking forward to it, but not the recovery as he will be down to one limb, (so to speak), until he has the mobility back in it. Hopefully he'll be pain free once he's recovered, too. I will keep you posted. As always, I am so glad you are in my life! Sandy Parker -- Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!
Re: [TMIC] leg and foot comfort in bed
We all find what makes us comfortable. Funny how different we all are. janice - Original Message - From: Gillian Clark To: TM list Sent: Monday, April 20, 2009 12:22 AM Subject: Re: [TMIC] leg and foot comfort in bed Janice, I am now able to move enough to get on my side but the pain is intolerable in that position and I can't do the pillow between the legs thing. I think it might be because they are too short and far too fat! hugs Gilly - Original Message - From: Janice To: Gillian Clark ; TM list Sent: Sunday, April 19, 2009 2:27 PM Subject: Re: [TMIC] leg and foot comfort in bed Just thought I'd let you know that I am completely opposite. I can not sleep on my back. I really spasm around my middle section trying to get in that position and trying to get back up is a nitemare. I stick to sleeping on my side with a pillow between my legs to lessen spasms. Also take baclofen for spasms - helps a lot. I also have developed a thing of needing to have air movement when I go to bed. I have the ceiling fan going on no matter what the room temperature is. I just need air movement. This has really been an adventure/nitemare. Love the support of family and friends - and other TM'ers! - Original Message - From: Gillian Clark To: TM list Sent: Thursday, April 16, 2009 10:04 PM Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position. I can't sleep with them bent up though Barb, that causes huge spasms. Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to. Not only what you wear but where you are walking, avoiding anything that will brush on you. Shopping is a nightmare when someone brushes past etc. Since I was born being unconventional a lot of things came easily for me. If you were not born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the normal people are doing. I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. hugs all Gilly - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with
Re: [TMIC] New Member
Peggy, glad you found this website. I have been with this group only a few months and it already means a lot to me. If we can't come up with answers, you at least have our complete support. Personally, I think you need to go back to your neurologist or surgeon and really bug them for help or have them give you a referral to a doctor who can help you. Stay tuned, this is a great group of people. Janice from Missouri - Original Message - From: jrushton To: pwi1991...@aol.com ; tmic Sent: Sunday, April 19, 2009 8:48 PM Subject: Re: [TMIC] New Member Hi, Peggy! Welcome to this wonderful group of people who will be here for you through everything! I constantly have the ice cold then hot feet. I have just learned to live with it. When I wake each morning, my feet are always warm??? Don't know why. Just keep reading what all of the TMer's say and you will learn so much and realize how you are not alone at all with this. We are all so blessed to have found this site..Jeanne in Dayton ---Original Message--- From: pwi1991...@aol.com Date: 4/19/2009 10:43:23 PM To: tmic-list@eskimo.com Subject: [TMIC] New Member I was diagnosed in 2002 C 4-C 6 I am having problems with balance . My hands and feet have started back to being extremely cold and sometimes hot. Any suggestions from anyone. I had surgery in 2007 to remove the disc. They were pressing on the spine. It was very successful,however it seems as if I am going backward with a lot of muscle weakness, bladder and bowel problems. What Can I do? for 7 years I have been doing very well. I have never really had pain except when I would pull a muscle in my back. Almost pain free from the time I contracted the disease. I stayed in rehab and hospitals where I lost all muscle strength. With therapy on a daily basis I overcame until this sudden backward spiral. I was taken off neurontin for a couple of month to try something different have to take an EMG on next month. I am trusting God to touch, heal, and deliver me from this terrible disease There is none so amazing as God Peggy Wilson Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! SuperStock_1196-107.jpg
Re: [TMIC] leg and foot comfort in bed
Yep, so much the same and so very different. That's just another reason this list is so wonderful, there are so many solutions offered to all sorts of problems. - Original Message - From: Janice To: Gillian Clark ; TM list Sent: Tuesday, April 21, 2009 12:19 PM Subject: Re: [TMIC] leg and foot comfort in bed We all find what makes us comfortable. Funny how different we all are. janice - Original Message - From: Gillian Clark To: TM list Sent: Monday, April 20, 2009 12:22 AM Subject: Re: [TMIC] leg and foot comfort in bed Janice, I am now able to move enough to get on my side but the pain is intolerable in that position and I can't do the pillow between the legs thing. I think it might be because they are too short and far too fat! hugs Gilly - Original Message - From: Janice To: Gillian Clark ; TM list Sent: Sunday, April 19, 2009 2:27 PM Subject: Re: [TMIC] leg and foot comfort in bed Just thought I'd let you know that I am completely opposite. I can not sleep on my back. I really spasm around my middle section trying to get in that position and trying to get back up is a nitemare. I stick to sleeping on my side with a pillow between my legs to lessen spasms. Also take baclofen for spasms - helps a lot. I also have developed a thing of needing to have air movement when I go to bed. I have the ceiling fan going on no matter what the room temperature is. I just need air movement. This has really been an adventure/nitemare. Love the support of family and friends - and other TM'ers! - Original Message - From: Gillian Clark To: TM list Sent: Thursday, April 16, 2009 10:04 PM Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position. I can't sleep with them bent up though Barb, that causes huge spasms. Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to. Not only what you wear but where you are walking, avoiding anything that will brush on you. Shopping is a nightmare when someone brushes past etc. Since I was born being unconventional a lot of things came easily for me. If you were not born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the normal people are doing. I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. hugs all Gilly - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I
Re: [TMIC] leg and foot comfort in bed
Absolutely Janice, I was like a Raggedy Ann doll. Totally floppy from the waist down, couldn't sit without being propped up, and no matter what position my legs were put in, they flopped. It is painful to look back and see what I was like when TM happened, but good to see how far I've come. I often forget about all that has happened to me, all the strange little occurances as well. I could write a book, but then, I really wouldn't want to write it all down, and surely, I doubt anyone would want to read as much of it as there is. We've come a long way baby! Hugs to all! Barbara A -Original Message- From: Janice jan...@centurytel.net To: Patricia Cooley patticoo...@wi.rr.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Sun, 19 Apr 2009 8:34 pm Subject: Re: [TMIC] leg and foot comfort in bed You reminded me of my old hospital days where I could not turn over without help, or slide up in the bed. When you can look back and see where your body has actually gotten stronger - even with the problems TM has left us - you realize how fortunate we are. I am comparing us to 2 people I know that are dying of cancer. Parts of our lives are the pits, but we know we have our lives to live and in most cases, improvement to look forward to. Jance - Original Message - From: Patricia Cooley To: 'Janice' ; tmic-list @eskimo.com ; balmat...@aol.com Sent: Sunday, April 19, 2009 10:47 AM Subject: RE: [TMIC] leg and foot comfort in bed I, TOO, AM FORTUNATE THAT I DON’T HAVE ANY SKIN SENSITIVITY. I ALSO DON’T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASN’T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DON’T SUFFER MANY OF THE PROBLEMS A LOT OF TM’ERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE=2 0OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about. If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A 0A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying
Re: [TMIC] leg and foot comfort in bed
I keep saying we are like 'snowflakes' a lot the same but no two exactly the same. I did say 'snowflakes' and not just 'flaky' .. :) Heather in Calgary - Original Message - From: Gillian Clark To: TM list Sent: Monday, April 20, 2009 9:11 PM Subject: Re: [TMIC] leg and foot comfort in bed Yep, so much the same and so very different. That's just another reason this list is so wonderful, there are so many solutions offered to all sorts of problems. - Original Message - From: Janice To: Gillian Clark ; TM list Sent: Tuesday, April 21, 2009 12:19 PM Subject: Re: [TMIC] leg and foot comfort in bed We all find what makes us comfortable. Funny how different we all are. janice - Original Message - From: Gillian Clark To: TM list Sent: Monday, April 20, 2009 12:22 AM Subject: Re: [TMIC] leg and foot comfort in bed Janice, I am now able to move enough to get on my side but the pain is intolerable in that position and I can't do the pillow between the legs thing. I think it might be because they are too short and far too fat! hugs Gilly - Original Message - From: Janice To: Gillian Clark ; TM list Sent: Sunday, April 19, 2009 2:27 PM Subject: Re: [TMIC] leg and foot comfort in bed Just thought I'd let you know that I am completely opposite. I can not sleep on my back. I really spasm around my middle section trying to get in that position and trying to get back up is a nitemare. I stick to sleeping on my side with a pillow between my legs to lessen spasms. Also take baclofen for spasms - helps a lot. I also have developed a thing of needing to have air movement when I go to bed. I have the ceiling fan going on no matter what the room temperature is. I just need air movement. This has really been an adventure/nitemare. Love the support of family and friends - and other TM'ers! - Original Message - From: Gillian Clark To: TM list Sent: Thursday, April 16, 2009 10:04 PM Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position. I can't sleep with them bent up though Barb, that causes huge spasms. Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to. Not only what you wear but where you are walking, avoiding anything that will brush on you. Shopping is a nightmare when someone brushes past etc. Since I was born being unconventional a lot of things came easily for me. If you were not born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the normal people are doing. I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. hugs all Gilly - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To:
