[TMIC] The Donut Hole (aka Medicare Part D:)
Hi Kevin: I watch my meds cost very closely so I knew in August I was in danger of running out of meds money. I was able to cut way down on my more expensive meds and stopped (on my own) taking Cymbalta. That was my most expensive med. I am so glad I was able to cut down/stop meds but that isn't always possible. Does your mom know there are some Medicare Part D insurances that cover generics during the donut hole period? The problem is some of those insurances are more expensive. I also use the Wal Mart $4 generic program for everything possible. And I check prices at several different pharmacies and use the cheapest for the meds not on the generic program. Good luck to your mom! Sharon, from the freezing Arizona high country TM '97, MS '98 The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong Has anyone else fallen into the donut hole of Medicare's prescription coverage? My Mother had to pay $188.00 for a months' refill of ONE PRESCRIPTION this week! The pharmacist said it was the donut hole until more bills add up. Does anyone think the rich politicians who arranged this farce are worried about paying for prescriptions AND food on the table? Yet they bail out the predatory lenders and crooks of AIG and stock brokers, with our tax money. Whoever has President-elect Obama's ear, (Frank?) would you please tell him that WE THE PEOPLE need bailing out! End of rant. Kevin
[TMIC] can't see
I'm sorry! I will try to remember to use a large font.
I also have cataracts. I haven't ever had IV steroids. By the time my (then)
primary doc gave me a referral to a neuro three darned weeks had passed since
the TM attack, so it was too late.
love you all
Sharon, from snowy Arizona
The bluebird in the cedar tree spoke to me... Your heart's desire dwells
here--this is where you belong
--- On Tue, 12/9/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #497
To: [EMAIL PROTECTED]
Date: Tuesday, December 9, 2008, 11:21 PM
tmic-digest Digest Volume 2008 : Issue 497
Today's Topics:
Re: [TMIC] Can't see [ Gillian Clark
[EMAIL PROTECTED] ]
Re: [TMIC] Can't see [ Pieter and Heather
pieterheather ]
Re: [TMIC] Can't see [ CANDIS KALLEY
[EMAIL PROTECTED] ]
Re: [TMIC] Can't see [ Jenna [EMAIL PROTECTED]
]
AOL Email
G'day
Jude,
You should also
ask everyone to use bold type, if you have cataracts it makes it
easier.
I have a
condition called Fuchs Dystrophy which causes the same effects as cataracts,
one
lives in a very foggy world. Because of this, I have had 3 corneal
transplants, the last one after tm and I had it with just a local anaesthetic,
so there is no need for you to be afraid of the cataract surgery and you will
be
so pleased you have had it.
hugs
Gilly
- Original Message -
From:
[EMAIL PROTECTED]
To: TMIC-LIST@eskimo.com
Sent: Tuesday, December 09, 2008 8:12
PM
Subject: [TMIC] Can't see
Hello All My Friends,
My eyes are being affected by my TM. It
is becoming increasingly more difficult to read email written in any
size under 14.
I guess that I have cataracts and must have
them removed, which I hear is a piece of cake, but the surgeon won't
operate unless I am free of infection. Considering I have had this
UTI for several months, I don't imagine he will operate any time
soon.
In the meantime if you would write all of your
email at a size 14 I will greatly appreciate it. We need to take
care of one another, right?
Thank you all so much. This List is my
lifeline and I depend on all of you so much. You help to ground
me, keep me feeling safe, and I know I can count on any one of you
for help should I need it. I know that I will help any one of you
if it is within my means.
Bless You,
Jude
Make your life easier with all your friends, email, and favorite sites in one
place. Try
it now.
AOL Email
Hi Jude,
I agree with you about the font
size. I have started sending my messages to friends an family in the size
14 bold font. It is easier for me to read what I am sending
to.
I hope that you
are able to have the cataracts removed.
Hugs,
Heather in Calgary
- Original Message
-
From:
[EMAIL PROTECTED]
To: TMIC-LIST@eskimo.com
Sent: Tuesday, December 09, 2008 2:42
AM
Subject: [TMIC] Can't see
Hello All My Friends,
My eyes are being affected by my TM. It
is becoming increasingly more difficult to read email written in any
size under 14.
I guess that I have cataracts and must have
them removed, which I hear is a piece of cake, but the surgeon won't
operate unless I am free of infection. Considering I have had this
UTI for several months, I don't imagine he will operate any time
soon.
In the meantime if you would write all of your
email at a size 14 I will greatly appreciate it. We need to take
care of one another, right?
Thank you all so much. This List is my
lifeline and I depend on all of you so much. You help to ground
me, keep me feeling safe, and I know I can count on any one of you
for help should I need it. I know that I will help any one of you
if it is within my means.
Bless You,
Jude
Make your life easier with all your friends, email, and favorite sites in one
place. Try
it now.#yiv518639364 {font-family:'Times New
Roman';font-size:12pt;color:#00;}Are cataracts more prevalent with TM? I
was having problems with my eyes (nearsighted and getting worse) and needed a
check-up - someways I wish I hadn't because the doctors always seem to find
something else. I have low blood pressure glaucoma and the start of cataract
on my R eye. I had a followup today, luckily the pressure has dropped within
high normal. My list of meds seems to just keep growing!
[TMIC] memory, cognitive function, helps
I have memory loss along with cognitive dysfunction. It is better since I am currently able to be on much lower doses of my meds. (I am not anti-meds and will go back up when I must) The suggestion on group about doing crossword puzzles, etc. is excellent. My neuro told me that years ago. It's good to keep those brain cells working! I also have a really bad time with MS fatigue. My neuro has given me Ritalin to help with that fatigue and it helps me focus mentally. love you all Sharon
Re: [TMIC] lesions, re-occurance of TM .... and such
After I tried Lyrica, I was put on Cymbalta. That did work! I was on it for a year plus and it really helped my leg pain. I hope I can stay off it now because I am trying to be off drugs as much as I can stand.:) I do take Neurontin. It helps. When my rib banding gets bad I take extra Baclofen and increase my Neurontin a little. It's so hard to find that right combination! Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Mon, 12/1/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: [EMAIL PROTECTED], [EMAIL PROTECTED], tmic-list@eskimo.com Cc: Sharon M [EMAIL PROTECTED] Date: Monday, December 1, 2008, 7:49 PM I also tried Lyrica and all it did was make me loopy. Leg stinging was still the same and banding pain on waist did nto change Any other suggestions? (also tried Neuroten) it did not work either -- Original message from Sharon M [EMAIL PROTECTED]: -- Thanks for the info. Unfortunately Lyrica didn't work for me. I had a weird opposite reaction to it and it mad everything way worse. I'm so glad to hear it is working for you! Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Sun, 11/30/08, George Kittner [EMAIL PROTECTED] wrote: From: George Kittner [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: [EMAIL PROTECTED] Date: Sunday, November 30, 2008, 9:44 PM I am on Lyrica 100mg 3x day for my TM. It seems to help a lot. I originally started out at 50 mg 3x day and then 75 mg 3x day and have been on the current dosage of 100mg. I was diagnosed in February 2005. I have some pain in my mid back by late afternoon after working all day. It hit at T7 for me. When walking I lean toward my right side which is the side that it hit me on. I recently went for a balance test and will be going for an evaluation which I am told they will be able to work with me to assist with helping with my walking. Ask your doctor about Lyrica for TM. Let me know what your doctor says and if he will prescribe it for you. Valerie in Illinois --- On Fri, 11/28/08, Sharon M [EMAIL PROTECTED] wrote: From: Sharon M [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: Pieter and Heather [EMAIL PROTECTED], tmic-list@eskimo.com Date: Friday, November 28, 2008, 9:21 AM Thanks Heather. The pain in my back was so severe last night that I decided I would see a doctor and insist that they get to the bottom of it. I want to find out for sure what is causing this pain. It is so easy to blame everything on MS. I'm not a wimp when it comes to pain. I have had chronic pain most of my life, but this is different. I don't think it would help to help to see neuro again. He assumes the pain is nerve pain, is connected to TM level in my spine and says the Neurontin should help. Hello! Neurontin does not help. How is your sister doing now? I run a large MS support group on Yahoo and it's not unusual to have other family members with MS or some of the rare neuro diseases. Hugs))) Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Thu, 11/27/08, Pieter and Heather [EMAIL PROTECTED] wrote: From: Pieter and Heather [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: [EMAIL PROTECTED], tmic-list@eskimo.com Date: Thursday, November 27, 2008, 10:42 PM Sharon, Are you going to be seeing your neuro again soon? I would be asking him about it again. Could it be another attack of the MS? I know my sister has MS and hers was a severe attack back in the late 80's. At that time they weren't sure it was MS.She then had a second severe attack in 1991 (when she was finally diagnosed). She figures she must have had MS even in the mid to late 70's and into the 80's but was never diagnosed. So I'm sure that MS can bring attacks more than once. Have you also seen your family physician to rule out any other problems? I know that even with TM or MS that we need to remember there are other medical problems other than these two that can cause problems. Keep us posted Heather in Calgary - Original Message - From: Sharon M To: tmic-list@eskimo.com Sent: Thursday, November 27, 2008 5:39 PM Subject: [TMIC] lesions, re-occurance of TM and such Hi again everyone! I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They have never found lesions in my spine but I do have lesions in my brain. My original neuro says he still thinks I have a hidden lesion on my spine. In late August 08 I was hit again with the severe numbness. This time on the right side instead of the original left side
Re: [TMIC] lesions, re-occurance of TM .... and such
Thanks for the info. Unfortunately Lyrica didn't work for me. I had a weird opposite reaction to it and it mad everything way worse. I'm so glad to hear it is working for you! Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Sun, 11/30/08, George Kittner [EMAIL PROTECTED] wrote: From: George Kittner [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: [EMAIL PROTECTED] Date: Sunday, November 30, 2008, 9:44 PM I am on Lyrica 100mg 3x day for my TM. It seems to help a lot. I originally started out at 50 mg 3x day and then 75 mg 3x day and have been on the current dosage of 100mg. I was diagnosed in February 2005. I have some pain in my mid back by late afternoon after working all day. It hit at T7 for me. When walking I lean toward my right side which is the side that it hit me on. I recently went for a balance test and will be going for an evaluation which I am told they will be able to work with me to assist with helping with my walking. Ask your doctor about Lyrica for TM. Let me know what your doctor says and if he will prescribe it for you. Valerie in Illinois --- On Fri, 11/28/08, Sharon M [EMAIL PROTECTED] wrote: From: Sharon M [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: Pieter and Heather [EMAIL PROTECTED], tmic-list@eskimo.com Date: Friday, November 28, 2008, 9:21 AM Thanks Heather. The pain in my back was so severe last night that I decided I would see a doctor and insist that they get to the bottom of it. I want to find out for sure what is causing this pain. It is so easy to blame everything on MS. I'm not a wimp when it comes to pain. I have had chronic pain most of my life, but this is different. I don't think it would help to help to see neuro again. He assumes the pain is nerve pain, is connected to TM level in my spine and says the Neurontin should help. Hello! Neurontin does not help. How is your sister doing now? I run a large MS support group on Yahoo and it's not unusual to have other family members with MS or some of the rare neuro diseases. Hugs))) Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Thu, 11/27/08, Pieter and Heather [EMAIL PROTECTED] wrote: From: Pieter and Heather [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: [EMAIL PROTECTED], tmic-list@eskimo.com Date: Thursday, November 27, 2008, 10:42 PM Sharon, Are you going to be seeing your neuro again soon? I would be asking him about it again. Could it be another attack of the MS? I know my sister has MS and hers was a severe attack back in the late 80's. At that time they weren't sure it was MS.She then had a second severe attack in 1991 (when she was finally diagnosed). She figures she must have had MS even in the mid to late 70's and into the 80's but was never diagnosed. So I'm sure that MS can bring attacks more than once. Have you also seen your family physician to rule out any other problems? I know that even with TM or MS that we need to remember there are other medical problems other than these two that can cause problems. Keep us posted Heather in Calgary - Original Message - From: Sharon M To: tmic-list@eskimo.com Sent: Thursday, November 27, 2008 5:39 PM Subject: [TMIC] lesions, re-occurance of TM and such Hi again everyone! I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They have never found lesions in my spine but I do have lesions in my brain. My original neuro says he still thinks I have a hidden lesion on my spine. In late August 08 I was hit again with the severe numbness. This time on the right side instead of the original left side. The numbness has not gotten better this time. Then about 3 weeks ago I had a sudden, sharp severe pain in my back at that same level. I saw my new neuro last week and he said it was all connected. I had already figured it was connected. lol I am having much worse back pain lately, too. Really bad and nothing helps it. It's pain, burning and weakness That said, I am really doing pretty good. MS has kicked my butt at times and I have never been symptom-free since the TM attack Labor Day, 1997. I've just gotten worse over time. I am one of the lucky TMers, though, so I really hate to complain. I know it could be so much worse. I just wonder what you experts have to say about this latest occurance for me. hugs to you all Sharon Marsden --- On Tue, 11/25/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #457 To: [EMAIL PROTECTED] Date: Tuesday, November 25, 2008, 3:32 PM tmic-digest Digest Volume 2008 : Issue 457 Today's Topics: Re: [TMIC] Re: tmic-digest
Re: [TMIC] Too Cold
I never liked electric blankets when I used them many, many years ago. I have never heard of the electric mattress pads. I live off-grid though so I won't be able to try one. So can you trace MS back before TM? I had problems here and there back to my childhood and I now think it was MS related. I'm 57 now and was hit with TM in 97. I have been sensitive to heat most of my life. But the cold hasn't affected me until the past 10 years or so. Sharon, from chilly Northern Arizona, where I WISH we had deer in the freezer :) The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Sat, 11/29/08, Sandy Heidel [EMAIL PROTECTED] wrote: From: Sandy Heidel [EMAIL PROTECTED] Subject: Re: [TMIC] Too Cold To: [EMAIL PROTECTED], tmic-list@eskimo.com Date: Saturday, November 29, 2008, 1:25 PM AOL Email I use an electric mattress pad (not an electric blanket) and a down comforter. I turn it on and warm up the bed and then turn it off when I get in. It helps me stay warm, relaxes my legs so they don't spasm from the cold sheets, and I fall asleep easily. I prefer light covers so the down comforter works best for me. I have read all the stuff on electric blankets and how they can be bad for you but this works for me. I turn it off when I get in bed so I don't get over heated. My body temp will drop too low so I have to make sure I keep it as stable as possible so I avoid a cold bed whenever I can. This temp thing can be either TM or MS and I have both, too. But I did have trouble with over heating and also body temp dropping low when I just had TM before the MS Rx. I think its a chicken/egg thing. All I know is my body temp seems to be set on manual now and I have to keep track of it both in summer and winter. Sandy in chilly Wisconsin where thankfully all the deer are now in the freezer. - Original Message - From: Sharon M To: tmic-list@eskimo.com Sent: Saturday, November 29, 2008 12:38 PM Subject: [TMIC] Too Cold I, too, have the temp issues. I don't know if that's TM or MS, as MS has temp control problems too. With MS it is usually heat issues. When I get cold it takes forever to warm up again! At night I have a have a hard time getting the right blankets. If my legs get too hot they will ache and it causes bladder spasms. That's what happened to me last night. The wood stove was too hot before bed and I was miserable all night with pain and bladder spasms. Does that happen to anyone else? I'm sorry, Jude, to hear how bad it is for you. hugs Sharon Life should be easier. So should your homepage. Try the NEW AOL.com. Jude, Temperature control is the only thing that my doc said would not return!... that said, I have found that silk underwear is the best thing to help.Silk is nice to your skin and light weight, so you need fewer heavy blankets!! I get my silks from Winter Silks, which has a 20% off sale right now. The web site is: www.wintersilks.com Hope this helps! Hugs, janh in OK --- On Sat, 11/29/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Hi All, Is anyone else out there suffering from that bone-chilling cold that settles deeply into your bones and nothing you do helps to warm you up? I began to get cold earlier in the evening and have had Dave put mega blankets on me until they are so heavy I can barely lift them. I now have a queen sized silk blanket doubled on top of all of my other covers on my small hospital bed. This kind of cold came with the Transverse Myelitis and I don't believe it will ever go away. At least there is no kind of medication to warm me up that I know
[TMIC] Too Cold
I, too, have the temp issues. I don't know if that's TM or MS, as MS has temp control problems too. With MS it is usually heat issues. When I get cold it takes forever to warm up again! At night I have a have a hard time getting the right blankets. If my legs get too hot they will ache and it causes bladder spasms. That's what happened to me last night. The wood stove was too hot before bed and I was miserable all night with pain and bladder spasms. Does that happen to anyone else? I'm sorry, Jude, to hear how bad it is for you. hugs Sharon AOL Email Life should be easier. So should your homepage. Try the NEW AOL.com. Jude, Temperature control is the only thing that my doc said would not return!... that said, I have found that silk underwear is the best thing to help.Silk is nice to your skin and light weight, so you need fewer heavy blankets!! I get my silks from Winter Silks, which has a 20% off sale right now. The web site is: www.wintersilks.com Hope this helps! Hugs, janh in OK --- On Sat, 11/29/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Hi All, Is anyone else out there suffering from that bone-chilling cold that settles deeply into your bones and nothing you do helps to warm you up? I began to get cold earlier in the evening and have had Dave put mega blankets on me until they are so heavy I can barely lift them. I now have a queen sized silk blanket doubled on top of all of my other covers on my small hospital bed. This kind of cold came with the Transverse Myelitis and I don't believe it will ever go away. At least there is no kind of medication to warm me up that I know of. Does anyone out there have a clue? I know that some of you have also felt this chilling cold. What do you do to combat it? It is ridiculous the lengths I go to in order to be able to sleep, but am so uncomfortable that I can't. At least I am tired enough to give it a go... Jude Life should be easier. So should your homepage. Try the NEW AOL.com. Grace, Please know that ALL of us are sending vibes to help you make it over this hump. With all of us pushing, you know that this too shall pass! You're in our prayers. Hugs, janh in OK Sorry for being out of touch, but have relapsed. It is my vision this time. We did an emergency chemo and three days of IV SoluMedrol and I'll be repeating chemo on Devcember 8th. My vision has not improved much, and I am very disheartened. I just had an MRI of the cord, brainstem and brain, about three months ago and everything was stable---so, this really hit me out of the blue. Why couldn't it have been simple MS? Why this? We have recently had several deaths among our Devic's Advocacy members and have several more that are in terrible shape. My heart just can't cope with it anymore. I HATE this. Grace I don't have the temp. control issue but I wonder if taking capsaicin capsules might help those who do warm up from the inside I understand you need to build up your dosage if you try it. Mindy the Artist On Nov 29, 2008, at 11:05 AM, Jan Hargrove wrote: Jude, Temperature control is the only thing that my doc said would not return!... that said, I have found that silk underwear is the best thing to help.Silk is nice to your skin and light weight, so you need fewer heavy blankets!! I get my silks from Winter Silks, which has a 20% off sale right now. The web site is: www.wintersilks.com Hope this helps! Hugs, janh in OK --- On Sat, 11/29/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Hi All, Is anyone else out there suffering from that bone-chilling cold that settles deeply into your bones and nothing you do helps to warm you up? I began to get cold earlier in the evening and have had Dave put mega blankets on me until they are so heavy I can barely lift them. I now have a queen sized silk blanket doubled on top of all of my other covers on my small hospital bed. This kind of cold came with the Transverse Myelitis and I don't believe it will ever go away. At least there is no kind of medication to warm me up that I know of. Does anyone out there have a clue? I know that some of you have also felt this chilling cold. What do you do to combat it? It is ridiculous the lengths I go to in order to be able to sleep, but am so uncomfortable that I can't. At least I am tired enough to give it a go... Jude Life should be easier. So should your homepage. Try the NEW AOL.com.
Re: [TMIC] lesions, re-occurance of TM .... and such
Thanks Heather. The pain in my back was so severe last night that I decided I
would see a doctor and insist that they get to the bottom of it. I want to
find out for sure what is causing this pain. It is so easy to blame everything
on MS.
I'm not a wimp when it comes to pain. I have had chronic pain most of my life,
but this is different.
I don't think it would help to help to see neuro again. He assumes the pain is
nerve pain, is connected to TM level in my spine and says the Neurontin should
help. Hello! Neurontin does not help.
How is your sister doing now? I run a large MS support group on Yahoo and it's
not unusual to have other family members with MS or some of the rare neuro
diseases.
Hugs)))
Sharon
The bluebird in the cedar tree spoke to me... Your heart's desire dwells
here--this is where you belong
--- On Thu, 11/27/08, Pieter and Heather [EMAIL PROTECTED] wrote:
From: Pieter and Heather [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM and such
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Thursday, November 27, 2008, 10:42 PM
AOL Email
Sharon,
Are you going to be seeing your neuro again
soon? I would be asking him about it again. Could it be another
attack of the MS? I know my sister has MS and hers was a severe attack
back in the late 80's. At that time they weren't sure it was
MS.She then had a second severe attack in 1991 (when she was finally
diagnosed). She figures she must have had MS even in the mid to late 70's
and into the 80's but was never diagnosed. So I'm sure that MS can bring
attacks more than once.
Have you also seen your family physician to rule
out any other problems? I know that even with TM or MS that we need to
remember there are other medical problems other than these two that can cause
problems.
Keep us posted
Heather in Calgary
- Original Message -
From:
Sharon
M
To: tmic-list@eskimo.com
Sent: Thursday, November 27, 2008 5:39
PM
Subject: [TMIC] lesions, re-occurance of
TM and such
Hi again
everyone!
I was hit with TM
suddenly in 9/97 and then was dxed with MS in 8/98. They have
never found lesions in my spine but I do have lesions in my brain.
My original neuro says he still thinks I have a hidden lesion on my
spine.
In late August 08 I
was hit again with the severe numbness. This time on the right
side instead of the original left side. The numbness has not
gotten better this time. Then about 3 weeks ago I had a
sudden, sharp severe pain in my back at that same level. I saw my
new neuro last week and he said it was all connected. I had
already figured it was connected. lol
I am having much
worse back pain lately, too. Really bad and nothing helps
it. It's pain, burning and weakness
That said, I am
really doing pretty good. MS has kicked my butt at times and I
have never been symptom-free since the TM attack Labor Day, 1997.
I've just gotten worse over time.
I am one of the lucky
TMers, though, so I really hate to complain. I know it could
be so much worse. I just wonder what you experts have to say about
this latest occurance for me.
hugs to you
all
Sharon
Marsden
--- On Tue, 11/25/08,
[EMAIL PROTECTED]
[EMAIL PROTECTED] wrote:
From:
[EMAIL PROTECTED]
[EMAIL PROTECTED]
Subject: tmic-digest Digest
V2008 #457
To: [EMAIL PROTECTED]
Date: Tuesday, November
25, 2008, 3:32 PM
tmic-digest Digest Volume 2008 : Issue 457
Today's Topics:
Re: [TMIC] Re: tmic-digest Digest V2 [ jrushton
[EMAIL PROTECTED] ]
#yiv625162981 #yiv1833211580 v\:* {
}
#yiv625162981 #yiv1833211580 v\:* {
}
Jenna, it must be 'where' the lesion is and how much damage
it has or they have done. Also, I think it also my have to
do with how long it went on from the onset before anything was
done to 'stop' it?? Your earlier comment, who knows for
sure is right on! Jeanne
---Original
Message---
From: Jenna
Date:
11/24/2008 8:13:40 PM
To: Pieter and Heather; [EMAIL PROTECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]
Subject: Re:
[TMIC] Re: tmic-digest Digest V2008 #431
It
is complicated. But I have 3 lesions on my spine. And
damage to my optic nerve. So since the damage to the
optic nerve
[TMIC] lesions, re-occurance of TM .... and such
Hi again everyone!
I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They
have never found lesions in my spine but I do have lesions in my brain. My
original neuro says he still thinks I have a hidden lesion on my spine.
In late August 08 I was hit again with the severe numbness. This time on the
right side instead of the original left side. The numbness has not gotten
better this time. Then about 3 weeks ago I had a sudden, sharp severe pain in
my back at that same level. I saw my new neuro last week and he said it was
all connected. I had already figured it was connected. lol
I am having much worse back pain lately, too. Really bad and nothing helps
it. It's pain, burning and weakness
That said, I am really doing pretty good. MS has kicked my butt at times and I
have never been symptom-free since the TM attack Labor Day, 1997. I've just
gotten worse over time.
I am one of the lucky TMers, though, so I really hate to complain. I know it
could be so much worse. I just wonder what you experts have to say about this
latest occurance for me.
hugs to you all
Sharon Marsden
--- On Tue, 11/25/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #457
To: [EMAIL PROTECTED]
Date: Tuesday, November 25, 2008, 3:32 PM
tmic-digest Digest Volume 2008 : Issue 457
Today's Topics:
Re: [TMIC] Re: tmic-digest Digest V2 [ jrushton
[EMAIL PROTECTED] ]
AOL Email
#yiv1833211580 v\:* {
}
#yiv1833211580 v\:* {
}
Jenna, it must be 'where' the lesion is and how much damage it has or they have
done. Also, I think it also my have to do with how long it went on from the
onset before anything was done to 'stop' it?? Your earlier comment, who knows
for sure is right on! Jeanne
---Original Message---
From: Jenna
Date: 11/24/2008 8:13:40 PM
To: Pieter and Heather; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
It is complicated. But I have 3 lesions on my spine. And damage to my optic
nerve. So since the damage to the optic nerve was first, before the first
problems showed up in the spine, it is call Divic's version of MS. I hope this
makes some kind of since. But the weird thing to me is so many of you my
friends have no lesions, just inflammation and can not walk and here I am with
3 lesions and can still walk???
Jenna
From: Pieter and Heather [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Monday, November 24, 2008 2:20:58 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
That is the way I understand it too Jude. My sister who is 3 yrs younger than
me has MS. It is the one that progresses slowly but everytime she has and MRI
she has more lesions on both spine and brain.
Heather in Calgary
- Original Message -
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Monday, November 24, 2008 12:06 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
Hello All,
It has been my understanding that with TM one must have lesions on the spine
but not on the brain. If one has lesions on the brain it is indicative of MS.
Am I misinformed regarding this information?
God Bless You,
Jude
In a message dated 11/24/2008 8:34:00 A.M. Eastern Standard Time, [EMAIL
PROTECTED] writes:
Frank,
They were never able to locate a lesion on my spine and from what I have read
on the message forums this is true for alot of people.
I had mutiple MRIs done both with and without contrast.
Lynne
--- On Sun, 11/23/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
To: jrushton [EMAIL PROTECTED], [EMAIL PROTECTED], TMIC
tmic-list@eskimo.com
Date: Sunday, November 23, 2008, 4:30 PM
i have a question, has anyone else been told that
they don't have lesions on their spine? my neuro
says mine is just swelling from c6-t3 and t9-t10., so
what does that mean?
What does swelling from c6-t3 and t9-t10 mean??
Did you have an MRI with and with out gadolium
(enhansement)?
F
One site has it all. Your email accounts, your social networks, and the things
you love. Try the new AOL.com today!
Re: [TMIC] lesions, re-occurance of TM .... and such
That's what my first neuro says too. Thanks.
Sharon
The bluebird in the cedar tree spoke to me... Your heart's desire dwells
here--this is where you belong
--- On Thu, 11/27/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM and such
To: [EMAIL PROTECTED]
Date: Thursday, November 27, 2008, 5:42 PM
One of mine said that they r sometimes toob small to seeSent from my Verizon
Wireless BlackBerryFrom: Sharon M [EMAIL PROTECTED]
Date: Thu, 27 Nov 2008 16:39:25 -0800 (PST)
To: tmic-list@eskimo.com
Subject: [TMIC] lesions, re-occurance of TM and such
Hi again everyone!
I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They
have never found lesions in my spine but I do have lesions in my brain. My
original neuro says he still thinks I have a hidden lesion on my spine.
In late August 08 I was hit again with the severe numbness. This time on the
right side instead of the original left side. The numbness has not gotten
better this time. Then about 3 weeks ago I had a sudden, sharp severe pain in
my back at that same level. I saw my new neuro last week and he said it was
all connected. I had already figured it was connected. lol
I am having much worse back pain lately, too. Really bad and nothing helps
it. It's pain, burning and weakness
That said, I am really doing pretty good. MS has kicked my butt at times and I
have never been symptom-free since the TM attack Labor Day, 1997. I've just
gotten worse over time.
I am one of the lucky TMers, though, so I really hate to complain. I know it
could be so much worse. I just wonder what you experts have to say about this
latest occurance for me.
hugs to you all
Sharon Marsden
--- On Tue, 11/25/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #457
To: [EMAIL PROTECTED]
Date: Tuesday, November 25, 2008, 3:32 PM
tmic-digest Digest Volume 2008 : Issue 457
Today's Topics:
Re: [TMIC] Re: tmic-digest Digest V2 [ jrushton
[EMAIL PROTECTED] ]
AOL Email#yiv2048505932 #yiv1833211580 v\:* {}#yiv2048505932 #yiv1833211580
v\:* {} Jenna, it must be 'where' the lesion is and how much damage it has or
they have done. Also, I think it also my have to do with how long it went on
from the onset before anything was done to 'stop' it?? Your earlier comment,
who knows for sure is right on! Jeanne ---Original Message--- From:
JennaDate: 11/24/2008 8:13:40 PMTo: Pieter and Heather; [EMAIL PROTECTED];
[EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Re: tmic-digest Digest V2008
#431 It is complicated. But I have 3 lesions on my spine. And damage to my
optic nerve. So since the damage to the optic nerve was first, before the
first problems showed up in the spine, it is call Divic's version of MS. I
hope this makes some kind of since. But the weird thing to me is so many of
you my friends have no lesions, just inflammation and can not walk and here I
am with
3 lesions and can still walk???
Jenna
From: Pieter and Heather [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Monday, November 24, 2008 2:20:58 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
That is the way I understand it too Jude. My sister who is 3 yrs younger than
me has MS. It is the one that progresses slowly but everytime she has and MRI
she has more lesions on both spine and brain. Heather in Calgary -
Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ;
tmic-list@eskimo.com Sent: Monday, November 24, 2008 12:06 PMSubject: Re:
[TMIC] Re: tmic-digest Digest V2008 #431
Hello All, It has been my understanding that with TM one must have lesions on
the spine but not on the brain. If one has lesions on the brain it is
indicative of MS. Am I misinformed regarding this information? God Bless
You,Jude In a message dated 11/24/2008 8:34:00 A.M. Eastern Standard Time,
[EMAIL PROTECTED] writes:Frank,
They were never able to locate a lesion on my spine and from what I have read
on the message forums this is true for alot of people.
I had mutiple MRIs done both with and without contrast.
Lynne
--- On Sun, 11/23/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
To: jrushton [EMAIL PROTECTED], [EMAIL PROTECTED], TMIC
tmic-list@eskimo.com
Date: Sunday, November 23, 2008, 4:30 PM
i have a question, has anyone else been told that
they don't have lesions on their spine? my neuro
says mine is just swelling from c6-t3 and t9-t10., so
what does that mean?
What does swelling from c6-t3 and t9-t10 mean??
Did you have an MRI with and with out gadolium
(enhansement)?
F
One site has it all. Your email accounts, your social
[TMIC] Guillain-Barré Syndrome Other Serious Neurological Adverse Events Following Vaccination
http://www.medscape.com/viewarticle/565691_2 Guillain-Barré Syndrome Other Serious Neurological Adverse Events Following Vaccination Until now, medical science cannot completely explain the cause of or mechanisms behind the development of serious neurological diseases, such as multiple sclerosis (MS), autism, Guillain-Barré syndrome (GBS) or general encephalopathy. Some of the diseases have definite genetic risk factors, while others are probably linked to infections. However, this is not enough to explain the whole picture, especially why some people develop serious diseases, while others in similar situations are not affected. As all these diseases do appear from time to time without obvious reasons, some individuals will necessarily develop such inexplicable diseases during the period after vaccination, when vaccines are administered to large groups of healthy people. This leads to the question of whether these are causal relationships or just coinciding events( Table 1 ).Pertussis Vaccine EncephalopathyThe first reports of seizures, encephalopathy and other signs of neurological pathology after vaccination came shortly after whole-cell pertussis vaccine was taken into general use more than 50 years ago.[7] As pertussis became rare as a result of vaccination, the focus on adverse events increased and the vaccine coverage dropped in several countries, resulting in large pertussis outbreaks and some deaths.[8] This was the starting point for the really large epidemiological study trying to determine the relationship between pertussis vaccination and encephalopathy, the British National Childhood Encephalopathy Study (NCES). The NCES concluded that the pertussis vaccine might cause serious neurological effects in approximately one in 100,000 cases.[9] Further studies found no significantly increased risk of serious acute neurological illness after the diphtheria, tetanus and pertussis (DTP) vaccination, but the data were compatible with the concept that vaccine-induced fever could possibly lead to an illness to which the child was predisposed, such as febrile convulsions.[10] Despite many large studies, the lack of a causal relationship has never been totally accepted.[11] From a practical point of view, the problem was solved by the introduction of acellular pertussis vaccines.Oral Polio Vaccine: Associations With Poliomyelitis GBSOral polio vaccine (OPV) has been the most important tool in the worldwide campaign attempting to eradicate poliomyelitis. The vaccine is inexpensive, effective and easy to administer. However, as the vaccine contains live-attenuated polio virus, there is a risk of vaccine-associated poliomyelitis (one in 2.4 million doses).[12] Therefore, many countries without endemic polio have switched to an inactivated polio vaccine.[13] A nationwide OPV vaccination campaign in Finland in 1985 raised the question of a relationship between OPV and GBS, but in-depth analysis of the data showed that the increase in GBS occurred before the vaccination campaign started.[14]Influenza Vaccine GBSConcerns about the risk of developing GBS after vaccination have been present since the mass vaccination with the A/New Jersey/H1N1 vaccine in the USA in 1976-1977. Nearly the entire adult population was vaccinated, using more than 35 million doses of the vaccine. A significantly increased risk of GBS became evident within 6-8 weeks after vaccination, with the largest percentage of cases occurring 2-3 weeks after vaccination. The vaccine probably caused approximately one extra case of GBS per 100,000 immunized persons.[15,16] The risk was later shown to be associated with the vaccine made from the A/New Jersey/H1N1 strain. The risk of GBS from other influenza vaccines has been followed closely in several studies and has been shown to be much lower, approximately one extra case per million people vaccinated.[17] According to data from the Vaccine Adverse Event Reporting System (VAERS) database, the incidence in the USA has fallen significantly from the 1993-1994 vaccine season (0.17 per 100,000 vaccinees) to the 2002-2003 season (0.04 per 100,000 vaccinees).[18] A possible explanation of the relationship between the influenza vaccine and GBS is that the eggs used for vaccine production may have been contaminated with Campylobacter. Campylobacter infection is a well-known cause of GBS. Better control of Campylobacter infections in chicken and eggs, especially eggs used for vaccine production, might explain the contemporary reduced incidence of influenza vaccine-associated cases of GBS.[18] However, it is impossible to exclude that some influenza vaccines may represent a higher risk of GBS, independent of the Campylobacter explanation. This is an important point when discussing mass-vaccination campaigns in a possible new influenza pandemic situation.MMR Vaccine Neurological EventsAseptic meningitis cases after MMR vaccination were reported from several countries pre-1992.
[TMIC] flu shots
I was talked into a flu shot by a doc in 96. Within a few weeks I had trouble walking, twisted my knee and spent 9 months on crutches. I got off crutches and a month later had my TM attack. My neuro told me not to have the flu shot again. And I NEVER will! Sharon TM 97, MS 98 The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong I was told not to get them. Truthfully, I'd be afraid to anyways, as all I would need would be another Devic's attack. Gracie --- On Tue, 9/16/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: [TMIC] ONE MORE OPINION ON FLU SHOTS To: tmic-list@eskimo.com Date: Tuesday, September 16, 2008, 7:48 AM HI, CAROL BELZ HERE,MY HUSBAND JIM IS IN HIS 4TH YEAR. HE NEVER HAD A FLU SHOT BECAUSE HIS DOCTOR SAID THAT THERE WAS ENOUGH GOING ON IN HIS BODY THAT IT DID NOT NEED ANY MORE TO FOR HIS BODY TO FIEGHT AND ADVISED AGINST IT HE HAS NOT HAD THE FLU BEFORE OR AFTER TM Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. My name is Dex Packard, and I have had TM since June 30th 1999. I had a Flu Shot in November of 1998, and have had one every year since in the fall. I have never had a problem with my TM because of it. I have written a three page essay on how to quit smoking. It tells how I quit and offers help so you can too. I chaege $3.00 a copy, and require a SASE a #10 works great. Send them to Bentnail Industries PO Box 876 Aurora, Or. 97002 I have not taken a flu shot since 11/03. I developed TM 3/04 was told by my neurologist that the flu shot probably caused my TM. He told me to never get any kind of immunization again (this even includes tetanus shots). I have not had any colds or flu since. I had taken a flu shot every year until my last shot without any problems. - Original Message From: Regina Rummel [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Monday, September 15, 2008 1:10:22 PM Subject: [TMIC] Flu vaccine I don't trust it. I stopped taking flu vaccines four years ago. That's when I was diagnosed with TM Haven't had a cold nor the flu since My co-workers who have taken the vaccine haven't been so lucky Before beeing hit with TM, I was taking the vaccine yearly regularly I wouldn't be surprised if it had something to do with my TM I think that taking and trusting the vaccine is a personal choice. Maybe it does work. Who knows. I'm sure I'm not sure of anything anymore. Good luck! RHi All I visited Jude, however, she slept most of the time. Jude was being over sedated from her pain patch so her doctor lowered the dose - he lowered it by half. Jude was awake when I arrived and her husband was there so I had the opportunity to talk with him too. Dave explained that I was lucky to find her awake. Her nurse said she had been falling asleep in mid-sentence. I sure don't understand how our hospital and medical system works - Jude is to be released from the hospital - today. Her doctor visited her, changed the rx for the pain patch and said he would write up her discharge. Dave left so he could get some groceries and get ready for her return home. I'm stumped. Dave said the last time this happened Jude called and said I'm comming home (always by ambulance) and they arrived home at 10:00 PM. Yes, P.M.. Jude is expecting to talk with Pam tomorrow. Hopefully, Pam will have another update. Patti - Michigan Patti, I too am amazed at our hospitals and medical systems in this country! Our leaders should be shamed. Was Jude sent home with MRSA and no antibiotic? I hope I misunderstood something along the way. Thank you Catherine [EMAIL PROTECTED] wrote: Hi All I visited Jude, however, she slept most of the time. Jude was being over sedated from her pain patch so her doctor lowered the dose - he lowered it by half. Jude was awake when I arrived and her husband was there so I had the opportunity to talk with him too. Dave explained that I was lucky to find her awake. Her nurse said she had been falling asleep in mid-sentence. I sure don't understand how our hospital and medical system works - Jude is to be released from the hospital - today. Her doctor visited her, changed the rx for the pain patch and said he would write up her discharge. Dave left so he could get some groceries and get ready for her return home. I'm stumped. Dave said the last time this happened Jude called and said I'm comming home (always by ambulance) and they arrived home at 10:00 PM. Yes, P.M.. Jude is expecting to talk with Pam tomorrow. Hopefully, Pam will have another update. Patti - Michigan Love Catherine Life is short, Break the rules sometimes, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile
[TMIC] Hi all--I'm back again
Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
Re: [TMIC] Hi all--I'm back again
Thanks Grace. I've been away from the TM community too long. No MRI has shown any lesions on my spine but my neuro told me he still thought I had a hidden spinal lesion. Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Fri, 9/12/08, Grace M. [EMAIL PROTECTED] wrote: From: Grace M. [EMAIL PROTECTED] Subject: Re: [TMIC] Hi all--I'm back again To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Date: Friday, September 12, 2008, 1:25 PM Hi Sharon, It's not uncommon for an MS patient to have an episode of TM. I have Devic's NMO, and have frequent bouts of severe myelitis. We have to remember that the term Transverse Myelitis means just what it says. Transverse---transversing, or across, Myelitis---inflammation of the spinal cord. It can be caused by a variety of illnesses but is also often idiopathic. (No known cause.) Gracie (Devic's NMO since 2005)
Re: [TMIC] Hi all--I'm back again
Hi Jan-- good to see you! The thoughts and prayers are always welcome. Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Fri, 9/12/08, Jan Hargrove [EMAIL PROTECTED] wrote: From: Jan Hargrove [EMAIL PROTECTED] Subject: Re: [TMIC] Hi all--I'm back again To: [EMAIL PROTECTED], tmic-list tmic-list@eskimo.com Date: Friday, September 12, 2008, 2:29 PM Sharon, It's great to see your name pop up again!! I've wondered about you and your family...I'm sorry you're having another bout with whatever, but so good to hear from you. Please keep us updated.I (of course) have no clue to help, but will keep you in my thoughts and prayers! Hugs, janh --- On Fri, 9/12/08, Sharon M [EMAIL PROTECTED] wrote: From: Sharon M [EMAIL PROTECTED] Subject: [TMIC] Hi all--I'm back again To: tmic-list@eskimo.com Date: Friday, September 12, 2008, 3:01 PM Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
Re: [TMIC] Hi all--I'm back again
Thanks Amanda. I am always in a quandary about what to do in situations like this. I don't want to go to the hospital. Stupid, huh? I'm sorry you have TM. How are you doing now? Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Fri, 9/12/08, Amanda Diskey [EMAIL PROTECTED] wrote: From: Amanda Diskey [EMAIL PROTECTED] Subject: Re: [TMIC] Hi all--I'm back again To: [EMAIL PROTECTED] Date: Friday, September 12, 2008, 2:32 PM hey sharon, my name is amanda i was diagnosed about a month ago, and i would definitely be afraid it was a tm attack. i would go see my neuro and see if he could find out what is going on. i really hope u get feeling better and it is not a tm attack. good luck --- On Fri, 9/12/08, Sharon M [EMAIL PROTECTED] wrote: From: Sharon M [EMAIL PROTECTED] Subject: [TMIC] Hi all--I'm back again To: tmic-list@eskimo.com Date: Friday, September 12, 2008, 4:01 PM Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
