I never liked electric blankets when I used them many, many years ago. I have
never heard of the electric mattress pads. I live off-grid though so I won't
be able to try one.
So can you trace MS back before TM? I had problems here and there back to my
childhood and I now think it was MS related. I'm 57 now and was hit with TM in
97. I have been sensitive to heat most of my life. But the cold hasn't
affected me until the past 10 years or so.
Sharon, from chilly Northern Arizona, where I WISH we had deer in the freezer :)
The bluebird in the cedar tree spoke to me... "Your heart's desire dwells
here--this is where you belong"
--- On Sat, 11/29/08, Sandy Heidel <[EMAIL PROTECTED]> wrote:
From: Sandy Heidel <[EMAIL PROTECTED]>
Subject: Re: [TMIC] Too Cold
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Saturday, November 29, 2008, 1:25 PM
AOL Email
I use an electric mattress pad (not an electric
blanket) and a down comforter. I turn it on and warm up the bed and then
turn it off when I get in. It helps me stay warm, relaxes my legs so they
don't spasm from the cold sheets, and I fall asleep easily. I prefer light
covers so the down comforter works best for me.
I have read all the stuff on electric blankets
and how they can be bad for you but this works for me. I turn it off
when I get in bed so I don't get over heated. My body temp will drop too
low so I have to make sure I keep it as stable as possible so I avoid a cold
bed
whenever I can.
This temp thing can be either TM or MS and I
have both, too. But I did have trouble with over heating and also body
temp dropping low when I just had TM before the MS Rx. I think its a
chicken/egg thing. All I know is my body temp seems to be set on
"manual" now and I have to keep track of it both in summer and
winter.
Sandy in chilly Wisconsin where thankfully all
the deer are now in the freezer.
----- Original Message -----
From:
Sharon
M
To: tmic-list@eskimo.com
Sent: Saturday, November 29, 2008 12:38
PM
Subject: [TMIC] Too Cold
I, too, have the temp issues. I
don't know if that's TM or MS, as MS has temp control problems
too. With MS it is usually heat issues.
When I get cold it takes forever to
warm up again! At night I have a have a hard time getting the
right blankets. If my legs get too hot they will ache and it causes
bladder spasms. That's what happened to me last night. The
wood stove was too hot before bed and I was miserable all night with
pain and bladder spasms. Does that happen to anyone else?
I'm sorry, Jude, to hear how bad it is for you.
hugs
Sharon
Life should be easier. So should your homepage. Try the NEW AOL.com.
Jude,
Temperature control is the only thing that my doc said
would not return!.......
that said, I have found that silk underwear is the best
thing to help.....Silk
is nice to your skin and light weight, so you need fewer
heavy blankets!!
I get my silks from Winter Silks, which has a 20% off sale
right now. The
web site is: www.wintersilks.com
Hope this helps!
Hugs,
janh in OK
--- On Sat, 11/29/08, [EMAIL PROTECTED]
<[EMAIL PROTECTED]> wrote:
Hi
All,
Is anyone else
out there suffering from that bone-chilling cold that
settles deeply into your bones and nothing you do helps
to warm you up?
I began to get
cold earlier in the evening and have had Dave put mega
blankets on me until they are so heavy I can barely
lift
them. I now have a queen sized silk blanket
doubled on top of all of my other covers on my small
hospital bed.
This kind of
cold came with the Transverse Myelitis and I don't
believe it will ever go away. At least there is no
kind of medication to warm me up that I know of.
Does anyone out there have a clue?
I know that some
of you have also felt this chilling cold. What do
you do to combat it? It is ridiculous the lengths
I go to in order to be able to sleep, but am so
uncomfortable that I can't.
At least I am
tired enough to give it a go...
Jude
Life should be easier. So should your homepage. Try the NEW
AOL.com.
Grace,
Please know that ALL of us are sending vibes to help
you make it over
this hump. With all of us pushing, you know that this
too shall pass!
You're in our prayers.
Hugs,
janh in OK
Sorry for being out of touch, but have
relapsed. It is my vision this time. We did
an emergency chemo and three days of IV SoluMedrol and
I'll be repeating chemo on Devcember 8th. My vision
has not improved much, and I am very
disheartened.
I just had
an MRI of the cord, brainstem and brain, about three months
ago and everything was stable---so, this really hit me out
of the blue.
Why couldn't
it have been simple MS? Why this? We have
recently had several deaths among our Devic's
Advocacy members and have several more that are in terrible
shape. My heart just can't cope with it anymore.
I HATE this.
Grace
I don't have the temp.
control issue but I wonder if taking capsaicin capsules might help
those who do
warm up from the inside I understand you need to build up your dosage
if you try it.
Mindy the Artist
On Nov 29, 2008, at 11:05 AM, Jan Hargrove wrote:
Jude,
Temperature control is the only thing that my doc said
would not return!.......
that said, I have found that silk underwear is the best
thing to help.....Silk
is nice to your skin and light weight, so you need fewer
heavy blankets!!
I get my silks from Winter Silks, which has a 20% off
sale right now. The
web site is: www.wintersilks.com
Hope this helps!
Hugs,
janh in OK
--- On Sat, 11/29/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]>
wrote:
Hi
All,
Is anyone else
out there suffering from that bone-chilling cold that
settles deeply into your bones and nothing you do
helps to warm you up?
I began to get
cold earlier in the evening and have had Dave put
mega
blankets on me until they are so heavy I can barely
lift them. I now have a queen sized silk blanket
doubled on top of all of my other covers on my small
hospital bed.
This kind of
cold came with the Transverse Myelitis and I don't
believe it will ever go away. At least there is
no kind of medication to warm me up that I know
of. Does anyone out there have a
clue?
I know that
some of you have also felt this chilling cold.
What do you do to combat it? It is ridiculous
the lengths I go to in order to be able to sleep, but
am so uncomfortable that I
can't.
At least I am
tired enough to give it a go...
Jude
Life should be easier. So should your homepage. Try the NEW
AOL.com.
