[TMIC]
Hi can someone please tell me how to remove myself from the list? Thank you, Wendy in NJ
[TMIC] IGG Indes CSF OLIGO
Does anyone know what the IGG Index and the CSF OLIGO are and how they relate to TM? Thank you!! Wendy in NJ
RE: [TMIC] Questions
1.Yes, when I was a kid 2. No 3. No
RE: [TMIC] age at incident
It was right before my 40th b-day. On my 40th b-day I got a spinal tap. -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 11:09 AM To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] age at incident me to, I was 38, onset 1 year ago [EMAIL PROTECTED] wrote: I was 38. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
Rob, I believe what you are saying 100%. It was a very stressful time in my life as well when I was hit with TM. If I remember correctly, I had a cold shortly before also. Nothing major, just the common cold. Wendy in NJ From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 2:58 PM To: sal r; tm Subject: RE: [TMIC] time has passed butthis is for Every1 on the TMA list I truly believe that TM was caused by stress in my life. I believe I had nothing more serious than a summer cold, but due to the stress in my life which was extremely high at that time my immune system was weakened allowing the onset of TM. This is not very scientific, but I believe this was the cause for me. To further your research Sal, I would be interested to know if other TM'rs had a similar stressful period prior or during the onset. Rob in New Jersey _ From: sal r [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 2:51 PM To: tm Subject: [TMIC] time has passed butthis is for Every1 on the TMA list I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? _ Never miss a thing. Make Yahoo http://us.rd.yahoo.com/evt=51438/*http:/www.yahoo.com/r/hs your homepage.
Re: [TMIC] Another unidentified becomes identified!
My son Cole has TM. He was 6 months old, it will be 7 yeasr for him on the 15 of march. Cole is paralyzed from the chest down. He has autonomic dysreflexia and osteoporosis all because of TM. I kinds stay in the background.If you have any questions please ask. Wendy - Original Message - From: Tracey L. Black [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Monday, March 10, 2008 10:19 AM Subject: RE: [TMIC] Another unidentified becomes identified! Rita: WELCOME!!! I personally have not been inflicted with TM, but my daughter has. She was 11 at the time and is now 14. She had her anniversary on 2/1 (3 years). I think she is probably the youngest person that we talk about on this site. I basically stay involved on this site b/c I want her and the rest of our family to know what her future might bring. She has been very lucky, she doesn't have any where near the issues that most on here do and I believe that is due to her young age. Don't feel embarrassed to ask ANY type of question on here. Everyone on here is very knowledgeable and will answer whatever questions you have. Again, Welcome! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, March 08, 2008 4:25 PM To: tmic-list Subject: [TMIC] Another unidentified becomes identified! My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland)
RE: [TMIC] Symposium in Anaheim
I'm just curious how many of us from the list are going? I would love to go but cannot make it. My parents live in So Cal and are going to attend. Wendy in NJ From: Regina Rummel [mailto:[EMAIL PROTECTED] Sent: Wednesday, February 13, 2008 12:11 PM To: tmic-list@eskimo.com Subject: [TMIC] Symposium in Anaheim Is there anyone in the San Francisco going to attend? I would love to go but can't get anyone to go with me. If the answer is yes, please let me know. Regina
[TMIC] Fw: mmantis1 sent you a video!
YouTube - mmantis1 sent you a video! Subject: mmantis1 sent you a video! YouTube Broadcast YourselfT mmantis1 wants to share a video with you watch video Video Description 7 year old Cole and Dad jammin' at backyard party. Personal Message Cole has a few vides on here. We will add more soon. To accept my friend request, click here. To respond to mmantis1, click here. Thanks, mmantis1 Using YouTube YouTube Help Check the Help Center for answers to common questions. -- Your Account Settings To change your preferences, settings, or personal info, go to the 'My Account' section. -- Email Notifications To change or cancel email notifications from YouTube, go to the Email Options section of your Profile. Copyright © 2007 YouTube, Inc.
[TMIC] Cole( OT)
I thought I would share with you Cole's good news. Cole is a huge fan of Ozzy Osbourne, I don't know where that comes from because I like country myself. I wrote Sharon Osbourne a letter telling her how much Cole love's his music, and sent some pictures of him derssed as Ozzy for halloween. Ozzy is doing a concert in Toronto on Jan 21. Cole has been given backstage passes to meet the band, Ozzy and go to the concert. He is so excited, I don't think he will sleep till after that night. When we told him he almost cried.This will give him a memory that will last forever. I an taking some ear plugs for myself! I'll send pic's. Wendy
RE: [TMIC] lyrica
Hi Rob, Can you please explain what banding is? I have a pain around my lower back that causes me to be stiff. I am wondering if that is banding. Thanks!! Wendy in NJ _ From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Monday, December 10, 2007 8:11 AM To: LifeIsJoy; tm Subject: RE: [TMIC] lyrica Cookie: I have stated this previouslyI have now been on Lyrica (450 mg) for about 2 years. For me this has been the most effective med I have taken for TM in 10 years. It has helped the pins needles, numbness and excessive banding. I have encountered no side effects. Rob in New Jersey _ From: LifeIsJoy [mailto:[EMAIL PROTECTED] Sent: Monday, December 10, 2007 12:12 AM To: 'tm' Subject: [TMIC] lyrica My doctor and I have discussed Lyrica for my diabetic neuropathy. I think I will try it. Those of you who have used this medication for TM-tell me, please, is it helpful for TM, also? Will I be helping two problems??? Cookie
RE: [TMIC] aspartame
http://www.aspartame.com/ (fox news broadcast on web site) http://www.dorway.com/indexnew.html I've done some research on aspartame. A friend of mine told me I should absolutely stop using it since I was diagnosed with TM and a brain tumor last year. Here's a couple web sites I thought you may be interested in to do some of your own research. I don't want to preach my views, but will not longer allow my kids to use it. We have switched to splenda. Best wishes to all!! _ From: Natalie Boyles [mailto:[EMAIL PROTECTED] Sent: Saturday, July 14, 2007 4:11 PM To: tmic-list-at-eskimo.com Subject: Re: [TMIC] aspartame I have oftened wondered about this too. I have read aspartame is thought to cause pain, ms like symptoms and all sorts of horrible things. The web is filled with horror stories pertaining to aspertame. But, then the funny thing also, aspartame has a form of phenylalanine in it and using aspartame raises the level of phenylalnine in the blood. Some people use phenylalanine to ease pain. I think any sugar is bad for people, but I do find when I drink something with aspartame in it I hurt less. I wonder if anyone will really ever know the answers about aspartame. Natalie Boyles On 7/14/07, [EMAIL PROTECTED] [EMAIL PROTECTED] mailto:[EMAIL PROTECTED] wrote: I wonder if there is any link to the use of aspartame and the fact that some TMers have more neuropathic pain or other TM symptoms than others. As a result of reading a letter to Peter Gott MD that was published in our local newspaper about complex idiopathic neuropathy and aspartame, I just finished an hour of research on the toxity of aspartame. Oddly, aspartame was the very first subject I researched on the internet years ago.
RE: RE: [TMIC] hot feet
Just got in and couldn't wait to take my shoes off. My feet are on fire. Thank you too all of you that have shared your stories regarding hot feet or cold feet. :) It nice to know that I'm not going crazy and that you understand. It's been a year since I was diagnosed and my symptoms are much less then many I have heard so I really do try not to complain. I'm so thankful for everything that I do have and want to be strong so I can help others. Thanks again! Wendy in NJ -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, June 11, 2007 5:31 AM To: [EMAIL PROTECTED]; 'Kevin Wolfthal'; 'Diane'; Tmic-list@eskimo.com; Wendy Subject: Re: RE: [TMIC] hot feet Wendy, Ifound out in mearly years with that there are so many changes going on all at once that it boggles the mind. Beware,there are probably more changes coming,some good some bad. We've all been there. Just fight throught them as best you can. Rick inTN. From: [EMAIL PROTECTED] Date: 2007/06/10 Sun PM 10:31:02 EDT To: 'Kevin Wolfthal' [EMAIL PROTECTED], 'Diane' [EMAIL PROTECTED], Tmic-list@eskimo.com, [EMAIL PROTECTED], Wendy [EMAIL PROTECTED] Subject: RE: [TMIC] hot feet It's easy to adjust to the fatigue caused by the summer heat - naps are nice! However, I haven't found any adjustment for the extra pain caused by the winter cold. I gave up on wearig my AFO brace because my feet burned too much. My neuro admitted that he hears of burning feet from a lot of his patients. I like some sort of slip-on shoe that I can take off as soon as I'm sitting down. Patti - Michigan Wendy [EMAIL PROTECTED] wrote: = Since I'm fairly new with the TM everyone's input has really been helpful. Sometimes I think I'm going crazy as symptoms come and go or change, then I read the comments and many of you are having the similar experience. Heat seems to make my fatigue worse also and I've been getting these hot flashes in my feet. My feet get so hot I have to take my shoes off at times. Wendy in NJ _ From: Diane [mailto:[EMAIL PROTECTED] Sent: Friday, June 08, 2007 8:51 PM To: Kevin Wolfthal; [EMAIL PROTECTED]; Tmic-list@eskimo.com Subject: Re: [TMIC] ot Heat also makes my fatigue worse and often leads to a flare. I do not feel the cold unless I am unwell. Diane in 90oF. today. - Original Message - From: mailto:[EMAIL PROTECTED] e To: [EMAIL PROTECTED] ; Tmic-list@eskimo.com Sent: Friday, June 08, 2007 11:43 AM Subject: Re: [TMIC] ot Extremes of heat OR cold affect me badly. Heat makes my fatigue worse, and generally feel weak. Cold causes my pain to be worse. Kevin
RE: [TMIC] ot
Since I'm fairly new with the TM everyone's input has really been helpful. Sometimes I think I'm going crazy as symptoms come and go or change, then I read the comments and many of you are having the similar experience. Heat seems to make my fatigue worse also and I've been getting these hot flashes in my feet. My feet get so hot I have to take my shoes off at times. Wendy in NJ _ From: Diane [mailto:[EMAIL PROTECTED] Sent: Friday, June 08, 2007 8:51 PM To: Kevin Wolfthal; [EMAIL PROTECTED]; Tmic-list@eskimo.com Subject: Re: [TMIC] ot Heat also makes my fatigue worse and often leads to a flare. I do not feel the cold unless I am unwell. Diane in 90oF. today. - Original Message - From: mailto:[EMAIL PROTECTED] e To: [EMAIL PROTECTED] ; Tmic-list@eskimo.com Sent: Friday, June 08, 2007 11:43 AM Subject: Re: [TMIC] ot Extremes of heat OR cold affect me badly. Heat makes my fatigue worse, and generally feel weak. Cold causes my pain to be worse. Kevin
RE: [TMIC] June birthdays
HAPPY BIRTHDAY TO ALL YOU JUNE BABIES. :-) Wendy in NJ _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, June 01, 2007 2:31 PM To: tmic-list@eskimo.com Subject: [TMIC] June birthdays Happy Birthday to the first-of-summer kids! (If you would like to add your birthday to the list or make a correction, please send that information to [EMAIL PROTECTED]) 6-2 Crystal ([EMAIL PROTECTED]) 6-5 Tobe Kanon ([EMAIL PROTECTED]) 6-11 Irene ([EMAIL PROTECTED]) 6/11/ Marabeth ([EMAIL PROTECTED]) 6-11 Sharon Marsden ([EMAIL PROTECTED]) 6-17 Cheryl ([EMAIL PROTECTED]) 6-19 Tom in Delaware ([EMAIL PROTECTED] ) 6-19 Debbie Capen ([EMAIL PROTECTED]) 6-22 Ann Moran ([EMAIL PROTECTED]) 6-25 Errol White ([EMAIL PROTECTED] ) 6-25 Dennis Galvin ([EMAIL PROTECTED]) 6-29 Pauline ([EMAIL PROTECTED]) 6/30 Bobby Jim ([EMAIL PROTECTED]) _ See what's free at AOL.com http://www.aol.com?ncid=AOLAOF0002000503 .
RE: [TMIC] news
Hi Cora: Glad you came thru the surgery fine. You are in my thoughts and prayers for more significant results. I'm fairly new to the TM list and I really appreciated everyone sharing their experiences. Wendy in NJ -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 20, 2007 2:40 AM To: tmic-list@eskimo.com Subject: [TMIC] news Well, Gang, We are here in Baltimore. I had the surgery to implant the leads for the interstim device, and I'm giving it some try-out. There's been some soreness and discomfort from the surgery, and I've had pain medication for that--just quit that today. So far I cannot tell that it is doing much. after the first week, we try the second lead. I am wondering if they use both in the end. It has seemed to give me a better stream. I hoped for more dramatic results. but it's only been 3 days so far. I'll keep on this trial and give it everything I can. A representative of the company that manufactures the Interstim is helping with the calibrations. No magic pill :-( Not getting rid of the diapers just yet. Cora
[TMIC] Fw: Looking for someone
Hi Everyone, Some time ago I sent an email to the list looking for any info on Dennis Galvin. Well Debbie found what I was wishing would not be true. Here is the link if you would like to read it. Dennis was a good friend who helped me in many ways. He had so much to give.I will miss him. Wendy Hi Wendy, I have been doing more research and I am very sorry, really very sorry to have to tell you that your instincts were right. I finally found the obituary for Dennis. Hopefully these links will lead you to it: http://www.rgj.com/obits/index.php?id=18324 http://www.rgj.com/obits/index.php?id=18312 If you want to share your feelings with the list, you can forward that link for the people on the list to see. Take care, Debbie - Original Message - From: Neil Wendy To: TMA/Deborah Capen Sent: Tuesday, March 06, 2007 4:31 PM Subject: Re: Looking for someone Hi Debbie, Well no luck finding Dennis. I am sure something happened to him, his phone email are no longer in service. We were good friends, I wish I had his family's name number. Now that I think of it , it's to late. I wish I could have found out what happened to him. He was so much help to me. I'll miss him. Wendy
[TMIC] Dennis Galvin
I was just wondering if anyone has talked to Dennis Galvin? I never here from him anymore and I have emailed him several times. We email each other quite often, but he has not replyed. I'm very worried about him. Wendy (Cole's mom)
RE: [TMIC] CHECK OUT THIS WEB SITE
Hi Everyone: My name is Wendy and Im a 40 year old woman who live in NJ. Recently I was diagnosed with Transverse Myelitis and a brain tumor. Im curious what symptoms other people had with Transverse Myelitis and how the disease progresses or does it? Thank you!! Wendy From: jeff bernier [mailto:[EMAIL PROTECTED] Sent: Tuesday, October 24, 2006 5:08 PM To: tmic-list@eskimo.com; [EMAIL PROTECTED] Subject: [TMIC] CHECK OUT THIS WEB SITE i found this site,could you all do me a favor and pass this on to as many people as you can,this is not one of those chain things.it is an emotional tribute to one of our own,i watched this video once and can not bring myself to do it again,being a gulf war 1 vet ,i broke into tears over this.this really sends home the message of the unseen after effect of a tradgedy,and the sad thing is it happens everyday. www.bobbywarns.com click on the video and read the story. please pass this on. thanks jeff Stay in the know. Pulse on the new Yahoo.com. Check it out.
RE: [TMIC] CHECK OUT THIS WEB SITE
Title: AOL Email Hi Jude: Maybe I should have added they found a lesion on my thorasic that is TM. Thanks again!! From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, October 25, 2006 7:11 PM To: [EMAIL PROTECTED]; TMIC-LIST@eskimo.com Subject: Re: [TMIC] CHECK OUT THIS WEB SITE Hi Wendy, Thanks for making yourself known. We warmly welcome you into our family of TM'ers. It might be easier for us to respond to your questions if you told us more about your illness and how it came about. What was the onset like? What disabilities are you left with? How long you have had TM? What medications are you on? Put in anything you can think of that is pertinent to your TM experience as it is different for everyone. You are in my Prayers, Jude
[TMIC] My Thoughts
Well me being the one who cares for Cole. I have to watch and deal with all his pain and problems.I give him his suppositories, I catheterizehim, I give him all his meds, I transfer him around,bath him, monitor his blood pressure.Itry not to let him see how much it upsets me. He has no idea how breakable he is. He just wants to be like all his friends. A regular 5 year old boy who canrun and play ... not sit and watchand wish he could. I say this with tears streaming down my face. I don't care what it takes... I hope and pray every day for his miracle! Wendy
[TMIC] Kids camp
Hi , i received an email from Debbie Capen about a camp at Paul newman's Hole in the Wall camp in summer of 2007.Does anyone know the dates of this camp? Thanks, Neil
[TMIC] address for neil and wendy ross
Our email is [EMAIL PROTECTED] Thanks, Neil 705-549-4861
[TMIC] Anniversary
5 years for my litttle guy today with TM. Somehow we have managed to get through all that has been tossed at us so far. We just keep up the hope and pray for Cole's health and happiness. Wendy
[TMIC] Chest Pain!
Hi Everyone, Most of you know all about Cole, now 5 years old an incomplete Quad, got TM at 6 months of age. He has been having some chest pain lately, it is becoming more of a concern for me. It is always on his left , he kinda grabs his chest and says it hurts! I have taken his bp and it has been elevated a bit, also his heart rateis irregular. If I take him up to our hospital, it will be gone by then. I was wondering if anyone else has this problem, could it be from medication, could it be the banding everyone talks about. I guess I know what I need to do but I just hate getting him poked by more doctors that don't know anything about him. poor little guy it's so hard on him. Thanks for any info you may have. Wendy
Re: [TMIC] TMIC 44 years and still rolling
Dennis, The list is a wonderful help, But you are the one who always helps me get through a rough spell with Cole. I am so glad I have someone like you to talk to.Just when I am ready to crack you always email me with a little story of your childhood and cheer me up. THANK YOU for being there for Cole and I. Wendy
