Re: [CMLHope] Update on Marty G

our leader. Please know you are in my prayers. We will remember 18 stands for life and every day is a gift. Wish I could attend his services. I will be thinking of you all. 18's, hugs, bigger hugs, Susan Zimmerman On Nov 11, 2018 1:54 AM, Marty Gartenberg wrote: Hello everyone

Re: [CMLHope] Please answer to see if I’m getting my mail

Hey Greenie! I come also on Dec. 5th to see Dr. Altman in Chicago. Let's meet up again! I am also scheduled to see Dr. Kumthekar, a neurologist right around the same time that day. Mine is around 1:00 Chicago time, so let's discuss privately. Right now I am going out of town for two

Re: [CMLHope] Bosulif and high blood pressure

Hi Ann, I have slightly elevated blood pressure and am on bosulif (very low dose...100mg every other day). Also take lisinopril 20 mg every day. It keeps me normalized. Just fyi. I sincerely hope your mom can find the right dosages. Prayer applied, too! 18's, Susan F. Zimmerman On Friday,

RE: [CMLHope] Fantastic cabin.

Beautiful!!! So glad yoy're enjoying. Susan F. Zimmerman On Saturday, June 9, 2018 'Jeanie' via CMLHope wrote: Hi all. I highly recommend this cabin if you want to visit The Great Smoky Mountains. I loved it.  Hated to leave.  Love you so very much.    My Motto: Faith and Pills

RE: [CMLHope] Jeanie

What a great picture of you and your watermelon! Thanks for the beautiful pics of your vacay. Never been there! We go to the Shenandoah mountains every couple of years ourselves. Seize the day, Jeanie! Love ya and 18's, On Friday, June 8, 2018 'Jeanie' via CMLHope wrote: My Motto: Faith

Re: [CMLHope] New Canary hatchings

I noticed that, too! (Jean) Susan F. Zimmerman A merry heart does good like a medicine. -Original Message- From: Marty Gartenberg To: cmlhope Sent: Wed, Jun 6, 2018 12:08 pm Subject: Re: [CMLHope] New Canary hatchings Hey have a great time. Well one thing that bothers me.

Re: [CMLHope] Peppers

Hi Jeanie and Marty and all, Just ckg. in since been absent awhile. Loved the pepper picture but you can have them all! My eyebrows start sweating just looking at them! So thankful it's finally spring. Worked outside for 2 hours with hedgetrimmers and pulled all kinda muscles trying to do it.

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

For me it's been 13 years. 18's, Susan F. Zimmerman On Saturday, March 10, 2018 Marty Gartenberg wrote: Hi Jeanie, Wow 17 years! Good for you as well. My congratulates to you. Hey are you catching up with me? 30 years for me. Time fly's by when your riding on the

RE: [CMLHope] Yahoo!! Yippie!!! I'm 0

Sooo happy for your numbers, Jeanie! Maybe when they cut your meds in half that side pain will go away!!! I pray it does 18's and hugs, Susan Z. On Thursday, February 1, 2018 'Jeanie' via CMLHope wrote: I saw my new doctor at Moffitt. Her name is Martine

Re: [CMLHope] anemia

I am on bosutinib for over 2 years now. There are absolutely no side effects except diarrhea. This can be controlled with medicine. I am happy to be on this drug. Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace."

RE: [CMLHope] Stating

Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center  On Dec 22, 2017, at 5:19 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Hi Jeanie! Was wond

Re: [CMLHope] Well wishes

ew Year ahead... Thanks for being here. Love to all on this Thankful holiday 18s Beth -Original Message- From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Wed, Nov 22, 2017 4:43 pm Subject: RE: [CMLHope] Well

Re: [CMLHope] Please I need your help

...@gmail.com> wrote: You all know me, and i have to ask all of you a favor especially some of the "old timers" of this group, like Bobby Dole, Zavie's Zero Club member 840 or Susan Zimmerman and anyone that knew Zavie Miller going back about twenty years ago. I wish that Za

Re: [CMLHope] Right hand numb

Sep 27, 2017, at 9:57 AM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Sorry Jeanie, I have numbness in left side due to a stroke but never what you are describing. Hope somebody else can help! Meanwhile you are in my thoughts and prayers, as is everybody else in our group!

RE: [CMLHope] Right hand numb

Sorry Jeanie, I have numbness in left side due to a stroke but never what you are describing. Hope somebody else can help! Meanwhile you are in my thoughts and prayers, as is everybody else in our group! 18's, Susan Z. Susan F. Zimmerman "All who humble themselves before the Lord shall be given

Re: [CMLHope] Words OF WISDOM.

Hi Greenie, so glad all is ok regarding your house. Maybe next time you are up you will come for dinner. Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Saturday, September 16, 2017 Myvety2k via CMLHope

Re: Re: [CMLHope] Words OF WISDOM.

Hey Greenie, So glad you are coming to visit! If you want to come over and visit our underground earth home, let us know!!! Would love to see you and Grace. We are in Granger. Susan and Roy Zimmerman On Friday, September 8, 2017 myvety2k via CMLHope wrote: Hi

Re: [CMLHope] Gleevec

18's Beth -Original Message----- From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: rbhuffman1 <rbhuffm...@gmail.com>; cmlhope <cmlhope@googlegroups.com> Sent: Wed, Aug 9, 2017 6:38 pm Subject: Re: [CMLHope] Gleevec Beth, my heart goes out to you from all

Re: [CMLHope] Gleevec

Beth, my heart goes out to you from all you've gone through since last September. You have always been a great encourager to all of us. I am sure I speak for all in saying we missed you tremendously and hope you will have no more setbacks. Obviously those kidneys are so important to function

RE: [CMLHope] Gleevec

Hello and welcome back Ken! Congrats on becoming a grandfather. It's a great experience, eh? I have four, only two of which are still children. Glad you are still in the battle. Whatever the outcome, we win the war! Susan F. Zimmerman On Tuesday, August 8, 2017 Ken Roberson

Re: [CMLHope] Stopping Gleevec

Greenie, I recommend Moffitt also. You know I go to Dr. Altman becuz I'm up here in Indiana. But my old doc was Pinilla that Jeanie recommended. They will help u get your medicine. A lot less expensive to go there!!! Blessings, Susan F. Zimmerman On Sunday, August 6, 2017 Myvety2k via

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 8 updates in 1 topic

to your purpose? Just watched The Fugitives as a comedy on netflix. Nick Nolte and Martin Short w James Earl Jones took my mind off my pain. I recommend it. Thanks for letting me share. Hope your holiday was great and the wind is always at your back! Also that your pain is minimal and energy is ab

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 8 updates in 1 topic

s great and the wind is always at your back! Also that your pain is minimal and energy is abounding! 18's, Susan Zimmerman Xoxoxo Praying for you. On Monday, May 29, 2017 'Jeanie' via CMLHope <cmlhope@googlegroups.com> wrote: Hi Marty.   Glad you are good.  The watch sounds wonderful!

Re: [CMLHope] Digest for cml...@googlegroups.com - 8 updates in 1 topic

Ah, Richard! I am getting reports of kidney not as healthy as it used to be, also. Sz Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Monday, May 29, 2017 'Jeanie' via CMLHope

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 8 updates in 1 topic

brats on the grill 18's, Susan Zimmerman Xoxo to all On Monday, May 29, 2017 'Jeanie' via CMLHope <cmlhope@googlegroups.com> wrote: Blessed.    Pills and faith.  Glad you are doing good.   Got a question for the group.  I had a blister like sore Come up on my back and it doesn't w

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 8 updates in 1 topic

I am still here, too. I'm on fb more than email. All is well, waiting for my bcr/abl test results. Praying for all you wonderful people. Enjoy each day. I wear a bracelet most days that has "Delighted" imprinted on it. That reminds me to be delighted in God every day of my life. What is your

Re: [CMLHope] Fun thing to do

I walked between 5 diesel buses for half an hour on a trip once, deciding which bus I should get on. Have always wondered about the benzene in the diesel fuel.not good. This was about a year before detection. 18's, Susan F. Zimmerman -Original Message- From: ANGELYN ESDERS

Re: [CMLHope] 39 years with cml

y and repeat it a zillion times. He was some type of guy and i really do miss him and his wife Ida... So Susan now it is your time... 18's, Marty On Fri, Feb 3, 2017 at 6:54 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Thanks, good to hear from you, Skip!

Re: [CMLHope] 39 years with cml

Thanks, good to hear from you, Skip!!! Keep on keepin on... Great news everybody! Just got my numbers back from last bcr/abl. In the third month of taking bosulif at 100 mg every OTHER day, it is down to .911%. YAY, HAPPY DANCE, HOORAY, HALLELUHIAH, THANK GOD, WHOOPP, WHOOP WHOOP!!!

Re: [CMLHope] Disability and retirement

Dear Lee, You cannot collect disability and social security together. You get one or the other. Yes, he can apply now for disability and they will consider his medical condition and let you know. I got it at 62 because I went to apply for Soc. Sec. and asked about disability. I did have

Re: [CMLHope] My latest Blood test.

Hey Richard, Sorry to hear about your low counts. What a bummer!!! Glad your doc is going along with you, like mine does. I haven't been keeping up well with my emails. Every 3 days I delete about 500 if I don't go every day to computer, which I do not. Guess we both enjoyed our years

Re: [CMLHope] Got a brand new Hip!

Dear Susie-Q, So much has gone on with you! Nothing can replace your mom, and I'm so sorry for your loss. I am just reading this even though you posted a week ago. I get at least 200 emails a day so sometimes they don't get read quickly. But I always keep my cml group's emails for

RE: [CMLHope] About John Hopkins Cancer Update

I still know that every bit of Marty's article is true re. avoiding carcinogens. Snopes is not always right. Any naturopathic doc would agree w the article. Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11

Re: [CMLHope] Check out MyNMs MyChart - Test Details

Great great news Blessings and 18's, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Tuesday, June 7, 2016 Myvety2k via CMLHope wrote: Well Hi again,  I think I got it

Re: [CMLHope] Pictures

I'm glad you got to see our doc, Greenie! Sorry it was a hard day... I bet today was better! How is all going? We are enjoying this spring seasonup here in no. Indiana. I"m struggling without medicine. Got a bad eye bleed Sunday and a rash. Then yesterday fell off a top step of a stepstool

Re: [CMLHope] Prayers are offered.

Wow Beth, Sounds very interesting, glad you could go! What is CPK? Thinking of you. Love and 18's, Susan F. Zimmerman -Original Message- From: bkbarney via CMLHope To: cmlhope Sent: Tue, May 3, 2016 2:44 pm Subject: Re:

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

st, like a rock on top of a mountain because everyone is in fact a rock for what you have been going through, and you will never break! 18's Marty https://www.youtube.com/embed/gKpFhPdyQLM?rel=0 On Fri, May 13, 2016 at 9:57 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegr

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

fy. A red rose for you!  18's, Marty On Fri, May 13, 2016 at 9:57 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: My best to Beth and Jeanie and Marty as you battle onward and upward to be victorious. The victory is more in the attitude, and all of you personify it. I

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

My best to Beth and Jeanie and Marty as you battle onward and upward to be victorious. The victory is more in the attitude, and all of you personify it. I got numbers back for bcr/abl test. It's been 4 mos., almost 5 since my stroke and getting off bosulif. It was 3.56. Ok but steadily

Re: [CMLHope] Re: Zavie's Zero Club.xls

Oh my goodness!!! Marcie I so wish we were closer so I could be with you. Know that you are so dear to me and so consequently your husband is also. Please let me know if there's anything I can do to help. Do you have a strong support system of friends/family? Pm me if you'd like. You know I'm

Re: [CMLHope] To Susan Zimmerman

is is the season for miracles and I wish you and Roy and the family a happy and very blessed Easter.  Marcie  Sent from my iPhone On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: So sorry to hear about a hospital stay. These are not places we want t

Re: [CMLHope] To Susan Zimmerman

  My Motto: Faith and Pills❤️ With Jeanie 18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna  9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Mar 24, 2016, at 5:30 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googleg

Re: [CMLHope] To Susan Zimmerman

ansfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimme

Re: [CMLHope] To Susan Zimmerman

l be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.

Re: [CMLHope] To Susan Zimmerman

rasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessic

RE: [CMLHope] To Susan Zimmerman

Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causesnothing unusual except cavernous malformations turns up. Have

Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

d talking   Have some pain where they made the incision but some Tylenol PM should help me sleep, nothing I can't handle. Thank you for asking about me.    18's, Marty On Mon, Mar 21, 2016 at 7:25 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Love you to p

Re: [CMLHope] Re: CMLHope] Re: Dizzy all day

Love you to pieces, Marty! Hope you comfortably home by now. An update for me, please! 18's, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Monday, March 21, 2016 Myvety2k via CMLHope

RE: [CMLHope] Dizzy all day

Dear Jeanie, Sorry you're having troubles today. I havent been on for awhile cuz I've had the wonderful flu...wheezing, coughing, exhausted. I'm getting over it graduallytwo days ago I slept literally all day and night except for two light meals. Been on antibiotic for it. Been tested

Re: [CMLHope] Just wanted to check in with folks I remember

!! We are all rooting for you!!! Blessings and 18's, Susan zimmerman "Look among the nations and watch; be utterly astounded!  For I will work a work in your days which you would not believe, though it were told you."  Hab. 1:5 On Thursday, February 4, 2016 'judy' via CMLHop

Re: [CMLHope] Info update

Life 18's again. Marty On Fri, Feb 12, 2016 at 1:14 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Dear Marty, So sorry to hear about the mouth sores and low wbc. UGH!!! We are all rooting for you to beat this problem with immunity ASAP. You are not complaini

Re: [CMLHope] Info update

Dear Marty, So sorry to hear about the mouth sores and low wbc. UGH!!! We are all rooting for you to beat this problem with immunity ASAP. You are not complaining, just stating a reason for us to pray for you! If we don't know about it we can't zero in on it in intercessory prayer.

Re: [CMLHope] Just wanted to check in with folks I remember

Hello Peg, So glad to hear from you! We are tough, us CML bunch. We can take it if you want to share with us the additional battles that have gone along with your CML. We are here to encourage! You don't need to suffer alone, (altho I'm hoping you have a good family, etc.) Your battle

Re: [CMLHope] rob's message long ago

Dear Rob, So sorry to hear of your father's passing. I'll remember you in my prayers. Susan F. Zimmerman "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -Original

Re: [CMLHope] Re: stroke

d Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jan 3, 2016, at 9:00 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Hi Jeanie, I have had four previous strokes, all due to trying the four other

Re: [CMLHope] Re: stroke

Thank you so very much for all the well wishes! It means a whole lot to me. Thanks Greenie, and Beth, and Jeannie and Marcie!!! Sure wish we'd hear from Marty.. Does anyone have any contact with his family? Greenie, I sure do feel safer at home for sure! Now that I'm older, I am

Re: [CMLHope] Re: stroke

ing energy... Beth -Original Message- From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Wed, Dec 30, 2015 11:50 pm Subject: Re: [CMLHope] Re: stroke Dear all, Just a note to say I'm in my local hospital. It did turn o

Re: [CMLHope] Re: stroke

Dear Angie, Hooray for 6 mos free of gleevec! I'm so hopeful I can stay off bosulif until I turn 65 next September without my numbers going crazy. I know you are thrilled to get your body back, lol! Thanks and you are right, what a way to end 2015! So glad I got out of hospital on the

Re: [CMLHope] Re: stroke

Thanks Dave! Sz Sent from my Sprint phone -- Original message--From: Myvety2k via CMLHope Date: Thu, Dec 31, 2015 7:51 AMTo: cmlhope@googlegroups.com;Subject:Re: [CMLHope] Re: stroke Sz, Hang in their I'll be thinking of good thoughts for you so that you can get better.   

Re: [CMLHope] Re: stroke

Dear all,Just a note to say I'm in my local hospital. It did turn out to be a small stroke which started last Sat. In morning I will learn if 2nd cat svan showed the bleeding stopped. Prayers are appreciated. I am agitated w myself for agreeing to up the bosulif when my numbers

Re: [CMLHope] Re: Merry Christmas and happy Hilidays

Merry Christmas and Happy New Year to all of you, ALL!!! This was the best Christmas I can remember, as both my adult children and their families were in attendance. It made the celebration wonderful with a 7 and a 4 yr old (grandkids). I will be recuperating for a few days since they left

Re: [CMLHope] Test Day

and healthy Thanksgiving to each and everyone of you... 18's and love, Beth -Original Message- From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Fri, Oct 30, 2015 8:26 am Subject: Re: [CMLHope] Test Day Hi all,

Re: [CMLHope] Hi john 11th month on ponatinib

Hi Jeanie, I know you know that you are in the palm of His hand and He is watching over you. A great response for brain fog foibles is this"Yes, I am having a smooth transition into senility." Might as well laugh cuz it makes others laugh also. The side pain is I'm sure hard to

Re: [CMLHope] Test Day

Hi all, My bcr/abl results were not as great as I hoped. Last time I was .012.almost to zero. This time I expected to be zero, but alas I am up to .348. So doc wants me to go to 300 mg bosulif, instead of 100 mg. I am compromising and will go to 200 so I don't have to stay in the

Re: [CMLHope] Test Day

Hi Beth dear,Hoping you realize you are not in danger by going off a tkiIt is so important for yr immune system to rebuild. So if both those things are true, why wait on going off? You know I was off all tki's for over 7 yrsand here I am. I know everone is different but God is

Re: [CMLHope] Test Day

Good news Richard#!!! So glad yr wife is better also. Relief!  18's? Susan z Sent from my Sprint phone -- Original message--From: bkbarney via CMLHope Date: Wed, Oct 7, 2015 11:35 AMTo: cmlhope@googlegroups.com;Subject:Re: [CMLHope] Test Day Dear Richard,Sounds like good news

Re: [CMLHope] Three months

Angie, So very very happy for you! This will show you that even if you begin climbing again, (and we don't believe that), you will never get bad with CML and you will happily go to the great beyond because of something else!!! 18's and blessings, Susan Zimmerman -Original Message

Re: [CMLHope] to Beth

@googlegroups.com;Subject:Re: [CMLHope] to Beth  I would love to see you Susan. What is your timing? do you need a place to stay while you are here? Let me know!  I definitely want to see you. From when to when will you be here? Thanks. Beth -Original Message- From: 'Susan Zimmerman' via

Re: [CMLHope] New results

hat I hit, I am uplifted by all the this group. I cannot thank each one of you that responded to me, enough for taking the time and connecting. It has been a a life line during a difficult patch. much love, Beth -Original Message- From: 'Susan Zimmerman' via CMLHope <cmlhope@g

Re: [CMLHope] to Beth

Dear Beth again,I looked again and we come to Northwestern on Oct. 22nd. That's a Thursday. Let me know! Sent from my Sprint phone -- Original message--From: 'Susan Zimmerman' via CMLHope Date: Mon, Sep 28, 2015 4:01 PMTo: cmlhope@googlegroups.com;Subject:Re: [CMLHope] New

Re: [CMLHope] CBC results 7/17

Great news, Greenie! Sorry to have missed your trip to Chicago this time. We've all been very busy enjoying our brief time without snow, I guess. Enjoy summer, dance today! I am going to get so healthy with the new discoveries I've learned that you all will be blown away! 18's and

Re: [CMLHope] Platelets

Pete, When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is GREAT!!! 18'S, Susan F. Zimmerman -Original Message- From: Pete Pabon nyc...@hotmail.com To: cmlhope cmlhope@googlegroups.com Sent: Mon, Jun 15, 2015 12:36 am Subject: RE: [CMLHope] Platelets

Re: [CMLHope] Humor is the spice of life. When your laughing your not crying.

could he have known. I guess that GOD must have picked him to be HIS receiver for me??? So Susan, everything happens for a reason... 18's Marty On Wed, Jun 24, 2015 at 10:48 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote

Re: [CMLHope] Humor is the spice of life. When your laughing your not crying.

and show him my salvation.” 18's, Marty On Fri, Jun 19, 2015 at 5:16 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote: Hey Marty, Please notice that I also say blessings

Re: [CMLHope] Stopping Gleevec

Dear Angie, I stopped gleevec after being on 400 mg for 2 yrs and 2 mos. It was because I had a brain bleed, then another. I decided back in 2007 before it was popular that I'd rather take my chances and keep myself monitored by blood tests than die of a stroke. I did have a big stroke

Re: [CMLHope] Humor is the spice of life. When your laughing your not crying.

, I'm glad to see that you are using 18's at the end of your posts. As you already know it's meaning is life and that is what I pray for everyone. 18's, Marty On Fri, Jun 19, 2015 at 11:18 AM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote

Re: [CMLHope] Humor is the spice of life. When your laughing your not crying.

hahahaha, Marty. I knew your talents were endless! Jeannie, so excited for you! 18's and blessings, Susan F. Zimmerman -Original Message- From: Marty Gartenberg wa2...@gmail.com To: CMLHope CMLHope@googlegroups.com Sent: Fri, Jun 19, 2015 12:29 am Subject: [CMLHope] Humor is the

Re: [CMLHope] Marty's Post on CML2

I am rejoicing with you, Marty!!! And praying. Love and hugs, Susan F. Zimmerman Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From: Marty Gartenberg

Re: [CMLHope] Checking in/ to all my CML friends

with liver enzymes being out of bounds? Anybody else on this site have liver issues? I hope you get a good report on the 23rd. Joyce in IL On Apr 2, 2015, at 4:55 PM, 'Susan Zimmerman' via CMLHope wrote: Hi Joyce

Re: [CMLHope] Today's Test

YAY RICHARD!!! So glad for you. 18's and delighted, Susan F. Zimmerman Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From: Richard H

Re: [CMLHope] Dual Diagnosis: CLL/ CML

Dear David, Dealing with two issues has happened to several of us, but usually not two types of leukemia! You are very special to decide to keep fighting on this. What choice do we really have? It's a win-win, if we leave this earth we go to a better place forever, or if we stay here

Re: [CMLHope] Today's Test

Sorry to hear this Richard. I hope they will proceed to the next drug, (bosulif is working for me), and we have similar histories. It is so tough to fight the fatigue. I feel for ya! What are your bcr/abl numbers at last check because of the gleevec? Hoping they are good. Have a

Re: [CMLHope] Checking in/ to all my CML friends

Hi Joyce and Wayne, Enjoyed your encouragement for the people below. Just wanted you to know I'm also on 100 mg of bosulif since last April 30th, and doing quite well! Last test was done 3 months ago, but it was a fakeout as they got no results cuz it was botched. So I opted to wait 3 more

Re: [CMLHope] Re: U[PDATE FOR MARTY

Hey Marty, We are so thankful you made it through the surgery! Now that we have seen your written word, we can pray and keep you in our thoughts to get rid of that pain and improve like Marcie says. Love and hugs, and 18's, Susan -Original Message- From: margood18 via CMLHope

Re: [CMLHope] Moffit visit

\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20. 18,s On Mar 11, 2015, at 6:26 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote

Re: [CMLHope] CML visit

the snow melt away. Take good care and thanks for always lifting us up in prayer. Marcie Sent from my iPhone On Mar 10, 2015, at 10:10 PM, 'Susan Zimmerman' via CMLHope cmlhope@googlegroups.com wrote

Re: [CMLHope] CML visit

Dear Greenie, Thinking of you and hoping for a good report. This is just another small bump in the road. I am praying extra for you. God bless and keep us posted. I am thinking about all of you and pray for good news. The great news is we get up every day and I really think we might

Re: [CMLHope] Doctor's Visit

So happy for you, Richard!!! Fuzzy vision is weird, never had that myself.but those leg and foot cramps, yeah! Now with my bosulif and only on 100 mg, virtually no side effects. Your turn will come, I'm sure of it. Either they'll find a real cure or you'll get to bosulif eventually.

Re: [CMLHope] Doctor's Visit

Dear Susan, That was very interesting! I think we met once when I came to Miami to hear Dr. Druker with a friend named Sharon Kraby. Both of us of course have CML. We attended a meeting and dinner put on by LLS. It was great meeting Dr. Druker. Anyway, your history is unique as all of

Re: [CMLHope] Re: Kidney Transplant

Maria, I would buy cranberry capsules if I was you, as they work better in my book. I am diabetic also and can't stand the taste of non-sugared cranberry juice, (Lakewood brand). That's the only one without added sugar. 18's, Susan -Original Message- From: Marty Gartenberg

Re: [CMLHope] Kidney transplant

Serious serious prayers will go up for you tonight and tomorrow morning and after. I have a group of prayer warriors coming over for something else tomorrow, and we will all lift you up! I want to do the happy dance, but will first be lifting you before the Father for this to go smoothly with

Re: [CMLHope] Re: Kidney TransplantI

Dear Maria, You have the final word over your own body. If it was me, (it's not, so do what you want), I would be telling them I decided to start at 300 mg, NO MATTER WHAT THEY SAY. They will have to agree and monitor you if you stick to your guns. Being nice about it, tell them with a

Re: [CMLHope] Change from Sprycel to bosulif

for the encouraging words. Do you have any significant side effects? Joyce in IL On Feb 15, 2015, at 11:41 AM, 'Susan Zimmerman' via CMLHope wrote: To Joyce and Wayne, I had been on gleevec 400 mg for 2 yrstook myself off due to brain bleeds against doc's orders. I was able to stay

Re: [CMLHope] Change from Sprycel to bosulif

To Joyce and Wayne, I had been on gleevec 400 mg for 2 yrstook myself off due to brain bleeds against doc's orders. I was able to stay in cellular remission for over 7 years. Then I went to Northwestern Medical as my molecular was up to 23 on the bcr/abl test. It dropped the next month

Re: [CMLHope] Re: News

Richard H: Of course you can join me in the happy dance! We'll all join together for it! And Happy Valentine's Day to everyone, cuz the love is flowing from this group one to another! 18's, Susan -Original Message- From: Richard H rbhuffm...@gmail.com To: cmlhope

Re: [CMLHope] Kidney Transplant

Praying, YAYAYAYAYAY All of us are absolutely in agreement with this kidney coming FAST to aid you in continuing to minister to all of us, but especially for you to continue to enjoy life on this earth. We are with ya! Doin' the happy dance! 18'[s, Susan F. Zimmerman Look among the

Re: [CMLHope] Found this!!!

Thank you Susan, my doc is Dr. Altman. Glad to see her again proving she is on the cutting edge! Even though my last lab test was a futile investment of my time, as they got no results with the explanation, not enough substance gathered. or something like that. Oh well! Hope you are doing

Re: [CMLHope] Ponatinib

Dear Jeanie and all, Like Marty says, keep on going like the energizer bunny. No fear in your life makes a whole lot more tranquility and ability to concentrate and function. I'm using lavender essential oil to calm myself along with a nice soak in the tub with epsom salts, lavender oil,

Re: [CMLHope] Update Jeanie's blood counts

Dear Jeanie, Will surely be praying for you. Don't panic, and don't even be anxious! Worry accomplishes nothing except wasting time. I have not been on lately cuz of my own battles. We have God on our side, like Marty says! Loved that emoticon of him hugging you!!! Here's my only

Re: [CMLHope] Blood checkup platelets still over million

Hi Jeanie, Will be praying and believing with you that this will be easily tolerated by your body and counts will go down very quickly. I can't seem to want to stay out of the bed very long lately. Just exhausted, don't know why, trying different things. I am only on 100 mg a day of bosulif

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