Hi Greenie
Sorry to hear you still have your nausea.
Have you tried Meclizine ? I find it works better than compozine. My nausea
is better since coming off hydrea.
I am on my 5th day of ponatinib.I had blood work done yesterday.
My WBC came down but the platelets keep going up. Still i
s shown by an article from the
> Boston University; just google mucosal pigmentation imagining".
> I am so glad I do not have mouth canes!!!
> Carpe died,
> Rien
>
> Op dinsdag 20 januari 2015 heeft 'Icandoallttc' via CMLHope
> het volgende geschreven:
>&g
over fourteen years.
>
> Sent from my iPad
>
>> On Jan 27, 2015, at 10:04 AM, 'Icandoallttc' via CMLHope
>> wrote:
>>
>> You are really helping me a lot John. I have just come off sprycel also. I
>> developed mutant to it. I was also very sick.
Mostly every two weeks, but it depends
> on whether I am taking two or three pills a week John
>
> Sent from my iPad
>
>> On Jan 27, 2015, at 6:40 AM, ICANDOALLTTC via CMLHope
>> wrote:
>>
>> Hi John and thanks so much!!
>> I hadn't heard fro
xis for not
> having the Gout. When someone has CML they have a lot of uric acid in their
> body. That is usually the reason they are put on Allopurinol.
>
> 18's,
>
> Marty
>
>> On Tue, Jan 27, 2015 at 8:54 AM, 'Icandoallttc' via CMLHope
>> wrote
differently.
>
> Sent from my iPad
>
>> On Jan 27, 2015, at 7:43 AM, 'Icandoallttc' via CMLHope
>> wrote:
>>
>> Have a huge headache. Hope this isn't going to be a side effect for me.
>> It was for sprycel.
>> John do you rem
or three pills a week John
>
> Sent from my iPad
>
>> On Jan 27, 2015, at 6:40 AM, ICANDOALLTTC via CMLHope
>> wrote:
>>
>> Hi John and thanks so much!!
>> I hadn't heard from anyone who is taking the drug.
>> I was on Hydrea and I think the d
The problem is no one really knows how these drugs affect our tkis. They told
me the drugs I was taking were ok with ponatinib.I was told not to get any
vaccinations.
It is a hot and miss for sure.
Prayers & Blessings Jeanie 18's 🐠🐠
> On Jan 27, 2015, at 8:25 AM, Myvety2k via CMLHope
get. When people are first diagnosed with CML they are usually started on
> both of these drugs however in today's time they may go directly to a TKI.
> Allopurinol helps your body get rid of Uric Acid which causes the gout.
>
> 18's,
>
> Marty
>
>> On
Have a huge headache. Hope this isn't going to be a side effect for me. It
was for sprycel.
John do you remember how much ponatinib you took in the beginning?
Prayers & Blessings Jeanie 18's 🐠🐠
> On Jan 26, 2015, at 6:13 PM, John Barrons wrote:
>
> Hi I live in Toronto. I am normally on
Do you get your flu shots?
They tell us to stay away from crowds--but how is that possible?
Drink lots of fluids and stay warm.
Prayers & Blessings Jeanie 18's 🐠🐠
> On Jan 27, 2015, at 7:17 AM, Myvety2k via CMLHope
> wrote:
>
> Boy, I hope so like the rest of us with CML we don't need any ot
on saying there is a cure coming soon, then you won't have to make any
choices.
18's,
Marty
On Mon, Jan 26, 2015 at 1:54 PM, 'Icandoallttc' via CMLHope
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:
Hi all,
Blessings Jeanie 18's
Good luck on Tasigna Joan!
Blessings And Prayers 18's Love
In a message dated 1/26/2015 6:01:20 P.M. Eastern Standard Time,
lilak...@gmail.com writes:
Greenie,
I had to quit Gleevec because it was messing with my kidneys. Now I take
Tasinga.
Joan
On Saturday, January 24, 2015 at 9:
issues. Be
positive!!! It's going to work for you! it has done a great job for many
already, the
majority without a lot of side effects. Go you
Beth :)
-Original Message-
From: 'Icandoallttc' via CMLHope
To: cmlhope
Sent: Mon, Jan 26, 2015 2:59 pm
Subject: Re
Hi Greenie, sounds like a flu--a lot is going around now.
Hang in there!
Jeanie<3
In a message dated 1/26/2015 6:06:31 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Hi Joan, I don't know what's going on because a few days later Grace
started to get nausea also and we don't h
Hi John and thanks so much!!
I hadn't heard from anyone who is taking the drug.
I was on Hydrea and I think the dr thought that would bring my platelets
and wbc down but it didn't.
This is good news! Maybe this will bring them down for sure.
How often do you get tested?
Thanks again,
Blessings
us know how you
are tolerating ponatinib. I am praying for you that this drug will work
for you and not have unmanageable side effects.
God bless and keep you,
Joyce in IL
On Jan 26, 2015, at 1:00 PM, 'Icandoallttc' via CMLHope wrote:
> Just took my first dose of ponatinib. He said
gt; you...praying, and hoping and smiling..cause we love you..Take care.on
> your first week..praying for no side effects and a great outcome for
> youyou have been through enough for now..you need a break
>
> Thanks for your noteBeth :)
>
>
> -Original
gine that's causing it. What does anybody else
> think? We upped my antidepressant and lowered my blood pressure med to see
> if this helps. Going to a cardiologist soon.
>
> Everyone, we are all in this together and we'll all make it through!!!
>
> 18's,
&
can't imagine that's causing it. What does anybody else
> think? We upped my antidepressant and lowered my blood pressure med to see
> if this helps. Going to a cardiologist soon.
>
> Everyone, we are all in this together and we'll all make it through!!!
>
&
other choice do I have???
> 1 baby aspirin daily and stay on the allopurinol daily. Hope every one is
> good. Let us know.
> Prayers
>
> Blessings Jeanie 18's 🐠🐠
>
> > On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope"
> > wrote
and stay on the allopurinol daily. Hope every one is
good. Let us know.
Prayers
Blessings Jeanie 18's 🐠🐠
> On Jan 26, 2015, at 1:54 PM, "'Icandoallttc' via CMLHope"
> wrote:
>
> Hi all,
>
>
> Blessings Jeanie 18's 🐠🐠
>
> --
Hi all,
Blessings Jeanie 18's 🐠🐠
--
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To
> them at health food store. Just go by the directions.
> It cured the diarrhea but I had to finally change tkis.
>
>
> Blessings Jeanie 18's 🐠🐠
>
>> On Jan 24, 2015, at 11:39 AM, "'Icandoallttc' via CMLHope"
>> wrote:
>>
>
.
It cured the diarrhea but I had to finally change tkis.
Blessings Jeanie 18's 🐠🐠
> On Jan 24, 2015, at 11:39 AM, "'Icandoallttc' via CMLHope"
> wrote:
>
> Hi Richard and hang in there. I wake up with nausea every morning which I
> think is
8's,
>
> Marty
>
>> On Sat, Jan 24, 2015 at 11:45 AM, 'Icandoallttc' via CMLHope
>> wrote:
>> Thanks Marty. I will try and stay positive.
>> I think the problem was that my counts were coming down and he cut back on
>> hydrea.
>>
>> time in coming..with symptoms progressing...
>>
>> had a momentary pity party yesterday..but today rallied..to carry
>> ontrying to be strong and stay positive...
>>
>> with you all in spirit...more updates when I know something...
>>
>>
>> Fondly, Beth
Joyce in IL
>>
>>
>>> On Jan 22, 2015, at 5:49 PM, bkbarney via CMLHope wrote:
>>>
>>> Thinking of you Jeannie, sending you lots of peaceful, warm thoughts,
>>> prayers and hugs. You are a real trouper.. a true warrior. We all love
>>&g
blems
>
> Will keep you all up to date as how things go.
>
> greenie
>
> In a message dated 1/23/2015 11:35:02 P.M. Eastern Standard Time,
> rbhuffm...@gmail.com writes:
> Seventeen and on my first adventure this wonderful world we live in.
>
> Richard H.
>
5, at 5:49 PM, bkbarney via CMLHope wrote:
>>
>> Thinking of you Jeannie, sending you lots of peaceful, warm thoughts,
>> prayers and hugs. You are a real trouper.. a true warrior. We all love
>> you...and admire you...Rest yourself. take good care..keep us posted. Beth
>>
Sorry about that!!
I hope all is well.
Hang in there everyone!!
Let's all look for joy in the morning.
Jeanie❤️😇
Sent from my iPhone
> On Jan 23, 2015, at 3:59 PM, "'Icandoallttc' via CMLHope"
> wrote:
>
>
>
> Sent from my iPhone
>
&g
Sent from my iPhone
> On Jan 23, 2015, at 7:26 AM, Marty Gartenberg wrote:
>
> Greenie,
>
> I also want to get this wait over with, and the way that I look at it is we
> all help each other not just me. This is what this site is all about one
> helping the other just compare it to a family
nking of you Jeannie, sending you lots of peaceful, warm thoughts, prayers
> and hugs. You are a real trouper.. a true warrior. We all love you...and
> admire you...Rest yourself. take good care..keep us posted. Beth
>
>
> -Original Message-
> From: 'Icandoallttc&
itches, of course using another needle.
>>
>> So about 4 years ago my kidneys fail and I go on dialysis. Two very large
>> needles are stuck into my arm every Monday, Wednesday and Friday, and they
>> stay in there for four hours.
>>
>> I wouldn'
Endoscopy was kk--put me to sleep --inflamed stomach.
Platelets had gone high again. Increased hydrea till mon. More test.
Got my ponatinib.Or it is coming in the mail. Wait and see right now.
Tired blessings
Jeanie
Sent from my iPhone
> On Jan 22, 2015, at 6:28 PM, Marty Gartenberg
pefully I will be getting some
> more needles for a kidney transplant soon. Now doesn't that sound warped from
> someone that had a phobia against needles? It just all depends on how one
> looks at it I guess...
>
> 18's,
>
> Marty
>
>
>
>> O
Millie had that but they never told her what is was. How are your liver
counts? Do you have diabetes? Could be reaction from meds. Get it checked
out.
Jeanie
Sent from my iPhone
> On Jan 21, 2015, at 11:57 AM, Mohan wrote:
>
> hi
> i had disease in foot on middle arc portion and it is
Hi sherry
I just had the Bma and it is very quick. Will you be under sedation. I didn't
feel anything and was just a little sore.
I am having endoscopy today. I will pray for you.
Jeanie
Sent from my iPhone
> On Jan 22, 2015, at 4:25 AM, sherri swanson
> wrote:
>
> Hi everyone!
>
> This
d a bit. So we just wait and see.
> Good luck on your endoscopy. Hope they can find the reason for your
> discomfort.
> God bless and keep you,
>Joyce in IL
>
>
>
>> On Jan 21, 2015, at 11:57 AM, 'Icandoallttc' via CMLHope wrote:
>>
>> Hi Joyce
Hi Joyce
How is your hubby and what will he be on now.
Good luck
Jeanie
Sent from my iPhone
> On Jan 21, 2015, at 11:58 AM, grammie wrote:
>
> My husband has been taken permanently off Sprycel. He has 32 pills that were
> purchased before we knew he would be taken off. These are 50 mg pil
r if I was the one that knocked myself out
> and she just smiled.
>
> By the way this Propofol is white in color and looks like milk.
>
> Humor is the spice of life.<360.gif>
>
> 18's,
>
> Marty
>
>> On Tue, Jan 20, 2015 at 3:19 PM, '
f I took too much and
> it would take about a week for them to start working. Once they did then my
> blood counts would drop sometimes drastically so the doses had to be
> adjusted, but I never got sick or anything like that from them.
>
> Good luck,
>
> 18's,
>
Hi Rien
I understand exactly what you are feeling. Every day seems to be a challenge
with cancer. Just hope for the best and have faith that it will all be
alright.
I always think if I wake up for another day I will face it bravely, but of
course we do get down every now and then-- I think
Hi Rein
Yes I try to take a wait and see when something unusual happens.
I had awful boils on Gleevec but just doctored them and they finally went away.
I love France-- I took a tour there years ago--took in Paris and saw a lot of
beautiful things.
Blessings and so happy to meet you.
Jeanie🐟🐟
15 heeft 'Icandoallttc' via CMLHope
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > het volgende
geschreven:
Hi Rien
In my 11 years on tki's nothing surprises me anymore!!!
I recently suffered from terrible jaw and ear pain. It finally went away
but my blood
Hi all,
My family all love to fish, and we keep and eat everything legalhehe.
I was reared on good fried to a golden brown perch that live in the Fl
lakes and rivers.
There is nothing better than good fried mullet with their roe fried to t
golden brown.
We love it with grits and tomato gravy an
Wow!!! 17 awake!!! You are truly a warrior Marty!!
My hip is quite sore today. Dr lowered my hydrea to once a day. Said my
counts were coming down too fast.
Blessings
Jeanie
18's
🐟🐟
Sent from my iPhone
> On Jan 17, 2015, at 8:16 AM, "'Icandoallttc' via CMLHope"
opy next week.
>
> Hi Jeanie,
>
> Wow, your "lucky" for a better word to use. I had 17 of them and was never
> put out OUCH x 17<33A.gif>
>
> 18's,
>
> Marty
>
>> On Fri, Jan 16, 2015 at 10:54 AM, 'Icandoallttc' via CMLHope
>
Got everything done-- had to spend all day__
Got to start a new med--ponatinib-- anyone take this? Got to see if my
insurance will pay
I see dr balducci at Moffitt. He is the head of senior adult oncology there.
Blood counts were good.
Thanks for all your prayers.
Very tired.
Blessings
Je
Finished Bma --waiting on doctor-- great he had to attend computer seminar.
Every thing went very well-- was asleep about 20 minutes.
Went down and had breakfast--coffee finally
Blessings
Jeanie🐝
Sent from my iPhone
> On Jan 16, 2015, at 5:20 AM, "'Icandoallttc' via
; Iearned my lesson.
> I never take any pain med without food.
>
> thinking of you. big hug,. Beth
> -Original Message-
> From: 'Icandoallttc' via CMLHope
> To: cmlhope
> Sent: Thu, Jan 15, 2015 12:34 pm
> Subject: Re: [CMLHope] Hi all finally going in for
Wanted to add that you are the first one that went through "Getting off
Gleevec" trial that I have heard off. Thanks so much for that!!!
Great news!!!
Hang in there!!
Jeanie🐟🐟
Sent from my iPhone
> On Jan 14, 2015, at 2:19 AM, Rien Jonkers wrote:
>
> Thank you Peter, for your quick reply. I
Hi Rien
In my 11 years on tki's nothing surprises me anymore!!!
I recently suffered from terrible jaw and ear pain. It finally went away but
my blood counts went way up.
Have you bruise your mouth?
Has this been going on for a long time?
Sometimes a wait and see might work.
Keep a close check o
t is going on and can reset
>> from there...So sorry you are so nauseated.Take good care...and jeannie,
>> if you feel at all like talking, happy to listen. Feel free to email me at
>> personal email and I can give you phone number.
>>
>> Beth
>>
>>
>
Anyone have an endoscopy ? Jeanie🐝🐝
Sent from my iPhone
> On Jan 14, 2015, at 2:14 PM, "'Icandoallttc' via CMLHope"
> wrote:
>
> Maybe they can find out why my side is hurting.
> Blessing everyone
> Jeanie🐝🐝
>
> Sent from my iPhone
>
Maybe they can find out why my side is hurting.
Blessing everyone
Jeanie🐝🐝
Sent from my iPhone
> On Jan 14, 2015, at 10:57 AM, "'Icandoallttc' via CMLHope"
> wrote:
>
> They put you to sleep for Bma.
>
> Sent from my iPhone
>
>> On Jan 14,
They put you to sleep for Bma.
Sent from my iPhone
> On Jan 14, 2015, at 10:56 AM, "'Icandoallttc' via CMLHope"
> wrote:
>
> Hi it's not me who lost their dad-- I lost mine many years ago.
> I am still so nauseas.
> Hanging in there.
> Doi
You will always have them in your heart.
> I lost my parent a long time ago but I miss them as if it were yesterday.
> When I read your message, I looked at their photo and asked them to take good
> care of your dad.
>
> L'chaim,
>
> Sherri
>
>
>> On M
g
>> evening prayers our rabbi asked that everyone pray for not only my father
>> and our family but for our group struggling with the impact of CML. My dad
>> hated the fact that I had this illness and knew that I had such a wonderful
>> online support family.
>>
t; support family.
>
> So lots of prayers for you and all of us headed out from Baltimore all week!
>
> Much love,
>
> Marcie
>
> Sent from my iPhone
>
> On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope
> wrote:
>
>> Hi Marty.
our family but for our group struggling with the impact of CML. My dad hated
> the fact that I had this illness and knew that I had such a wonderful online
> support family.
>
> So lots of prayers for you and all of us headed out from Baltimore all week!
>
> Much love,
>
ad this illness and knew that I had such a wonderful online
> support family.
>
> So lots of prayers for you and all of us headed out from Baltimore all week!
>
> Much love,
>
> Marcie
>
> Sent from my iPhone
>
> On Jan 11, 2015, at 9:33 AM, 'Icand
m thinking of you today. feel so badly you feel so
> horrible. Praying it eases and you feel better soon. Fondly, Beth
>
>
> -Original Message-
> From: 'Icandoallttc' via CMLHope
> To: cmlhope
> Sent: Sun, Jan 11, 2015 8:33 am
> Subject: Re: [CMLHop
A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE
> SUCCESSFUL OUTCOME...
>
> FOCUS...
>
>
>
> Yes Jeanie you just keep on focusing because you are much more powerful then
> you think.
>
>
>
> Now you know why I keep on sending 18's.
>
&
Hi all
For some reason I couldn't understand what 163.28 C means in my WBC.
I know they are high.
Can anyone explain this??
Jeanie
Sent from my iPhone
> On Jan 10, 2015, at 10:45 AM, "'Icandoallttc' via CMLHope"
> wrote:
>
> Thanks Joyce
> Yes I&#
about your set-back. Glad you are going to Moffitt to try
> to sort things out. Remember that we have several other drugs to
> use.just have to get over this rough patch. you are in my prayers and
> thoughts.
> Joyce in IL
>
>
>
> Begin forwarded mes
ic they also make a light cranberry juice.
>>
>> You know what? You have been through so much that this is only a bump in the
>> road for you, and so it is for me.
>>
>> We have two choices. One, continue to fight and the other is not an option
>> for me or you.
t;>
>> You know what? You have been through so much that this is only a bump in the
>> road for you, and so it is for me.
>>
>> We have two choices. One, continue to fight and the other is not an option
>> for me or you.
>> That is why I always end an
Hi Greenie and thanks.
I knew you were one of the successful gleevec patients.
So happy for you.
Blessings
Jeanie
Sent from my iPhone
> On Jan 9, 2015, at 8:11 AM, Myvety2k via CMLHope
> wrote:
>
> Jeanie, as of Jan. 10th I will have been on Gleevec for 15 years. Starting to
> retain fluid
Hi Sherri,
I think the tki's contribute to kidney disease. I think that I am in the
beginning of the disease and I have been on tki's for 11 years now.
Hang in in there; blessings
Jeanie<3
In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time,
swanson.sherri...@gmail.com writes:
Hi Richard and thanks for the update. My onc doesn't like for me to be
informed either; he just ignores what I say and goes on to tell me what he
thinks.
My uric acid was high along with my WBC and Platelets. He seemed to be
more concerned with the high uric acid--even called me on my cell
Many thanks to all.
Jeanie❤️
Sent from my iPhone
> On Jan 8, 2015, at 3:51 PM, gfrankli wrote:
>
> Prayers and healing thoughts
>
>
> Sent from Samsung Mobile.
>
>
> Original message ----
> From: 'Icandoallttc' via CMLHope
&g
mutation may be an option for you...take good care and know I am
> thinking of you..praying hard. Beth
>
>
> -Original Message-
> From: gfrankli
> To: cmlhope
> Sent: Thu, Jan 8, 2015 2:51 pm
> Subject: RE: [CMLHope] Bad need
>
> Prayers and healing thoughts..
Yes you are right.
Thanks Greenie.
Test and wait.
I forgot to get a copy if my blood work. I'll post counts when I get them. I
believe he said WBC were 700,000.
Time will tell.
Seems strange to be back on Hydrea.
Blessings Jeanie
Sent from my iPhone
> On Jan 8, 2015, at 1:58 PM, Myvety2k
ick in and be restful..
>
> Love and 18's,
> Susan
>
> -Original Message-
> From: Tracie Camlin
> To: cmlhope
> Sent: Thu, Jan 8, 2015 1:23 pm
> Subject: Re: [CMLHope] Bad need
>
> Sending you prayers!
>> On Jan 8, 2015 12:21 PM, "
Hang in there warrior💕
Jeanie❤️
Sent from my iPhone
> On Jan 8, 2015, at 1:31 PM, sherri swanson
> wrote:
>
> Hi Marty,
>
> The doctors are trying to treat the different illnesses that are included in
> my condition. There are so many and they do so many different things, that I
> am happy
Thanks Tracy
I has been so tired lately. I knew something was wrong.
Blessings
Jeanie🐟
Sent from my iPhone
> On Jan 8, 2015, at 1:23 PM, Tracie Camlin wrote:
>
> Sending you prayers!
>
>> On Jan 8, 2015 12:21 PM, "'Icandoallttc' via CMLHope"
>>
Thanks Marcie. You too!!
Jeanie🐟
Sent from my iPhone
> On Jan 8, 2015, at 1:23 PM, margood18 via CMLHope
> wrote:
>
> Jeanie:
>
> So sorry to hear about your issues. Thoughts, prayers and hugs being sent
> your way.
>
> Marcie
>
>
> -Original Mes
Just got back from Moffitt. All counts were up and uremic acid was high.
Dr took me off sprycel and put me on Hydrea, and other drugs. Took another
blood test for mutant. Will know next week if mutant is problem.
Pray for me and all in need.
Jeanie🐟
Sent from my iPhone
> On Jan 8, 2015, at
Hi Sherrie
I don't sweat much either.
I always thought it was good to sweat-gets rid if toxins. Even when I get real
hot no sweat. Really weird.
Feb is my 11th anniversary for taking tki's.
Good luck
Jeanie🐟
Sent from my iPhone
> On Jan 7, 2015, at 5:29 AM, sherri swanson
> wrote:
>
>
Hi Marcie.
Good to hear from you.
Yes I did have the night sweats on gleevec especially in the beginning.
They have disappeared with sprycel but I get really hot with no sweats. My face
gets red and I have to turn the air down.
Try to cool down with ice if needed. Drink ice water.
Just don't
> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
> Sent: Sunday, January 04, 2015 1:59 PM
> To: cmlhope@googlegroups.com
> Subject: [CMLHope] Good article on stopping tki
>
> http://asheducationbook.hematologylibrary.org/content/2011/1/136.full
>
> Sent from
http://asheducationbook.hematologylibrary.org/content/2011/1/136.full
Sent from my iPhone
> On Jan 3, 2015, at 11:28 AM, "'Icandoallttc' via CMLHope"
> wrote:
>
> Hi all
>
> From my experience gleevec quit working for me after 5 years--it probably wa
Hi all
>From my experience gleevec quit working for me after 5 years--it probably was
>a mutation but was never told. I started on full dose tasigna but it quit
>working after only a few months.
I then was placed on 150 Mgs sprycel. It worked great with no PE. However some
people do get PE f
Happy New Year to Greenie and all our family here!!!
Jeanie🐟
Sent from my iPhone
> On Dec 31, 2014, at 11:53 AM, Myvety2k via CMLHope
> wrote:
>
> I would like to also add a "HAPPY NEW YEAR " to all my CML friends and their
> care takers. To many names to list you all know who you are. Sta
Same to you Emile.
Blessings and love from Florida.
Jeanie🐟
Sent from my iPhone
> On Dec 31, 2014, at 12:17 PM, Emile Fichault
> wrote:
>
>
> "HAPPY NEW YEAR " to all CML warriors and best wishes of health and peace for
> 2015 .
>
> Have good times with your family in this special par
uld
> be such a blessing...
>
> in any case, I am thinking of everyone. please send a pray this week that the
> good docs at May can figure it out.
>
> big hug,
>
> Beth.
>
> -Original Message-
> From: 'Icandoallttc' via CMLHope
> To: cmlhope
Happy New Year Susan!!
Have a great one!!
Jeanie🐟
Sent from my iPhone
> On Dec 25, 2014, at 7:31 PM, "'Susan Zimmerman' via CMLHope"
> wrote:
>
> Loved it, Marty Happy New Year to you as well and may all of you folks
> out there live every day to the fullest, enjoying the magnificence of
Thanks Marty and same to you.
Blessings
Jeanie🐟
Sent from my iPhone
> On Dec 25, 2014, at 7:45 PM, Richard H wrote:
>
> Thank you, Marti.
>
>> On Thursday, December 25, 2014 6:32:01 PM UTC-6, rszi...@aol.com wrote:
>> Loved it, Marty Happy New Year to you as well and may all of you folk
Hi all
I hope everyone is good.
Beth, are you back on sprycel?? Just wondering how you are.
Richard, have you started your Gleevec and how are you?
Blessings
Jeanie🐟
Sent from my iPhone
> On Dec 25, 2014, at 7:45 PM, Richard H wrote:
>
> Thank you, Marti.
>
>> On Thursday, December 25, 201
Amen to that.
Blessings to all.
Glory in the highest.
Peace on earth and goodwill to all.
Hope everyone is good.
Jeanie🎅
Sent from my iPhone
> On Dec 25, 2014, at 9:49 AM, Richard H wrote:
>
> GLORY! HALLEJAH!! The SUN has Risen. The SON was born!!! What a Wonderful Day
> to Celebrate a
Merry Christmas and happy holidays to all.
Blessings
Jeanie 🎅🎅
Sent from my iPhone
> On Dec 23, 2014, at 11:33 PM, Marty Gartenberg wrote:
>
> AMEN! Richard.
>
> 18's,
>
> Marty
>
>> On Tue, Dec 23, 2014 at 11:29 PM, Richard H wrote:
>> I wish all a Happy Holiday Season. May we all ente
🎅🎅. Thanks Maria. You too!! Stay well!! 🎅🎅
Sent from my iPhone
> On Dec 24, 2014, at 6:56 AM, Maria Cashion wrote:
>
> Hoy es Nochebuena y mannana es Navidad...Wishing you all a very MERRY
> CHRISTMASSS and a positive NEW YEAR> We are all in the same journey, may we
> live long and happy
of holidays to you and yours. Beth.
>
>
>
> -Original Message-
> From: Richard H
> To: cmlhope
> Cc: icandoallttc
> Sent: Sun, Dec 14, 2014 12:33 am
> Subject: Re: [CMLHope] Dual Diagnosis: CLL/ CML
>
> I could not meet the requirements. I have too many
Hi David
So good to hear from you.
Marty sent us a site not long ago about a study for going off Gleevec. There
are certain things you must meet to be in the study.
Glad you are negative.
Blessings
Jeanie🎅
Sent from my iPhone
> On Dec 13, 2014, at 12:00 PM, dbra...@hotmail.com wrote:
>
> H
Hello Richard
I was put in Gleevec in 2004 when I was first dx. It never put me in remission
and and then just quit working for me in 2009. I was then put on tasigna.
That didn't work at all for me so they put me on sprycel.
I've been in that for almost 5 years.
Just hang in there and we a
Hi Richard and so sorry you couldn't get approved.
We warriors have double trouble. First we have to worry if our meds are
working: then we have to worry if our insurance will cover our meds.
I had to transfer from gleevec to tasigna and was on pins and needles til I got
it approved. Then a
at the time.
>
> Skip I wish you the very best and may GOD keep on blessing you.
>
> You are the perfect example of what 18's represent.
>
> Marty
>
>
>
>> On Tue, Dec 9, 2014 at 4:01 PM, 'Icandoallttc' via CMLHope
>> wrote:
>&g
Wow! Thanks for that Peter. I had considered it. I get the big dose if flu
vaccine every year. How are you?
Blessings
Jeanie🎅
Sent from my iPhone
> On Dec 10, 2014, at 11:06 AM, Peter wrote:
>
> Hi everybody.
> Has anyone here received the shingles vaccine Zostavax?
> The question is wheth
t to send me any more faxes. With my old fax machine I
> would have to do this one at a time but with this all in one it is a snap to
> keep on sending them literally hundreds of faxes. Hopefully they will finally
> get the idea after many months of them sending me their advertisement fa
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