Re: [QUAD-L] Re: [QUAD-suction catheters 14 French

Hi Eric, I use 14 French catheters with gloves. I haven’t called the manufacture and they are the ones that told me there is a nationwide shortage. Thank you for your assistance. I thought there were probably a few people on the list that also have to be suctioned. Dana C4-5 complete, 50 years

[QUAD-L] RE: [QUAD-suction catheters 14 French

called the manufacturer, which is cardinal and they said there was a nationwide shortage. They keep giving and date they will be in, but that date passes and they have not received any shipment. I would appreciate your help. Gratefully yours, Dana Wray I live in, Prairie Village, Kansas. I

Re: [QUAD-L] CNA rates?

That is way above the average pay a CNA makes. They should not be asking for a raise if so I try to find other people. That's just my opinion. It will be great to hear, what others have to say from the list. Thank you for asking pertinent questions. Dana On Thu, Jan 25, 2024 at 3:18 PM D

Re: [QUAD-L] BONE DENISITY

I wonder why they took me off Fosamax, maybe my bone density had not improved. I don’t know if our bone density can ever improve since we aren’t able to bear weight. What do you think? Dana On Thu, Dec 14, 2023 at 8:35 AM Noel wrote: > I was diagnosed with osteoporosis about 10 years ago, h

Re: [QUAD-L] BONE DENISITY

getting and the results of the treatment Gratefully yours, Dana C 4-5, complete,ileo-conduit,trach, 49 years post. I so enjoy the Quad-List. Thank you Jim for Starting this productive group of survivors.I am grateful for this Quad-List. We are a few That contribute but United. On Sun, Dec 10, 2023

Re: [QUAD-L] Ileostomy

I had my first Ileo-conduit in 1986 from bladder cancer. Then In 2014 I kept having UTIs all the time. The kidney doctor didn’t know how to do the surgery that was needed to make another ileo-conduit. She wanted to put me on hospice. We started calling every kidney doctor and that was able to do th

Re: [QUAD-L] PLAN F PLANS

What is plan F, As I have never heard of before. Thank you Paul On Wed, Nov 29, 2023 at 5:25 PM Paul Jacobson wrote: > Hi, it is that time of the year where I need to renew Plan F. > > Does anyone know where I can find simple cost comparisons? > > > > Thank you, > > > > Paul > > C5/6 Injured 11

Re: [QUAD-L] PROLIA INJECTIONS - BONE LOSS

Thank you so much for your input. I haven’t gotten a scam for 2 1/2 years it seems like it always gets worse and I take prolia. On Wed, Oct 25, 2023 at 10:09 AM SHIRLEY BELL wrote: > Hi Dana, I had something years back, shots of ? I don't get bone scans > anymore. I feel what is the

Re: [QUAD-L] PROLIA INJECTIONS - BONE LOSS

everyone’s responses. Dana On Sat, Sep 30, 2023 at 8:47 PM Paul Jacobson wrote: > Has anyone had PROLIA injections for bone loss? If so, how did it work for > you? > > Any side effects? > > > > Thank you! Paul c5/6 >

Re: [QUAD-L] nighttime alert

Use Alexa for music. I use Google to call people if my iPhone Siri is not working . I don’t have a way to control the thermostat. I have Nest but I couldn’t get it to work and then 800 number couldn’t help me. Now Nest is not available unless you downloaded another programs. I wasn’t able to in tim

Re: [QUAD-L] Support groups

I want to see the article. I love this group and I love Jim for creating this group. On Thu, Apr 20, 2023 at 12:16 PM Don Price wrote: > I agree, Danny. I’m very thankful for Jim and this group. And I also agree > that there are many other options for people to connect these days. I hope > you a

Re: [QUAD-L] Greg Wickenburg

My condolences to Greg and his family. I had never spoken to him,when Dana was alive she had spoke with him and his family. She was quite concerned, because if I'm remembering correctly he had breathing problems. She had not been able to get a hold of him. Thank you for posting abou

Re: [QUAD-L] An Introduction to ABLE Accounts

nd it very interesting, but that email and several others that were speaking along that line were lost. My Google is full. Dana Dana C 4-5. Complete, Tracheostomy,,ileo-conduit, problems with kidney stones and blocking drainage i’m requiring nephrostomy tubes. I have told by my kidney doctor th

Re: [QUAD-L] Caregiver services

Good for you that didn’t ever work for me. Dana On Wed, Dec 28, 2022 at 5:10 PM Nichole Rohling wrote: > I find my own by asking on Facebook…I’ve had great luck doing that. > > > > Nichole > > > > *From:* Eric Olson [mailto:whee...@wi.rr.com] > *Sent:* Wednesday, D

Re: [QUAD-L] sharing game changing products

This is such a great email from you was so many things that have helped you Live independently. The RV van sounds amazing. I guess I thought your lift was more someone that was a paraplegic . I want to look up your bowel System. Thank you so much. Dana On Sat, Oct 15, 2022 at 9:33 PM Philip

[QUAD-L] Re: can anyone recommend a Cup holder that will Fasten on the armrest

are various forms on the Internet but it doesn’t really tell you if it will fit on the push Handles. Thank you for your information. Dana Wray C4-5 complete, 48 years post. On Fri, Oct 7, 2022 at 3:44 AM Shala Silverstein wrote: > Lissette, also senokot ass has helped me wonders, it's a

Re: [QUAD-L] " re looking forward to any advice" Danny

and do and share the best suppliers for medical supplies. i’m on Facebook under Dana Wray if anyone wants to be friends. If you ever need prayers I enjoy praying for others also.I belong to several spinal cord groups on Facebook. Someone stole my Facebook account so I had to open a new one. I’m in a

[QUAD-L] Subscribe

[QUAD-L] Subscribe

[QUAD-L] Subscribe

[QUAD-L] subscribe

Re: [QUAD-L] 33 years

Congratulations Jim, I am so proud of everything you have done for the disability community. You’re so special and a joy to know and learn from. Always, Dana Wray On Tue, May 17, 2022 at 7:33 PM Danny Hearn wrote: > Congrats Jim. You have been an inspiration to many, including having >

Re: [QUAD-L] Re: Testing my email

I am Dana Wray C 4- 5 Complete quadriplegic, tracheostomy, ILEO-conduit from bladder cancer and I also had colon cancer. I have a lot of problems with kidney stones. I have learned much from everybody also and I really enjoyed the group. Thank you all for posting so we can Reconnect. I am 68

Re: [QUAD-L] Covid and Vaccine

that I'll never talk to her again until Heaven. Dana C4-5, 47 years post, On Sun, Sep 12, 2021 at 8:41 PM Aaron Mann wrote: > Must Watch: > https://www.youtube.com/watch?v=QAHi3lX3oGM&ab_channel=AssociationofAmericanPhysiciansandSurgeons > > If you get a po

Re: [QUAD-L] ARE QUADS IN CONSIDERD HIGH RISK FOR BOOSTER SHOT

, 2021 at 11:12 AM DAVID LEWIS wrote: > hi, i got my Phizer booster shot last week because Quads are at high risk > because they dont have the stomach muscles to cough and get the phlem up. > Be safe and get it. > On Monday, October 11, 2021, 01:38:46 AM EDT, Dana Wray < > daano..

Re: [QUAD-L] ARE QUADS IN CONSIDERD HIGH RISK FOR BOOSTER SHOT

great. It is Crest gum and sensitivity all the protection it is the prohealth Crest. I have been using fluoride from my doctor for at least five years. My prescription ended because I have to start a new dentist this month. I am 68 and we usually get recession as we get older. Dana C4-5 complete, i

[QUAD-L] Fwd: Month of Action: Caregiving, SSI, and Accessible Transportation

Sent from my iPad Begin forwarded message: > From: Steve Lieberman > Date: September 30, 2021 at 10:44:04 AM CDT > To: Dana Wray > Subject: Month of Action: Caregiving, SSI, and Accessible Transportation >

[QUAD-L] Re: [QUAD-I received From United spinal cord injury Association

I thought you might be interested in filling it out Thank you Dana [image: United Spinal 75: Building an Inclusive World] As September draws to a close, United Spinal wants to make sure that we are keeping up the pressure on Congress to pass important priorities for our community. Please take a

Re: [QUAD-L] ARE QUADS IN CONSIDERD HIGH RISK FOR BOOSTER SHOT

Thank you so much for that video, that is helpful to show caregivers. I have a trach so, I usually get suctioned. Dana On Thu, Sep 30, 2021 at 7:56 PM Greg wrote: > they gave me one. > age 57 > > > greg > > On 9/21/2021 9:45 AM, DAVID LEWIS wrote: > > Im 63 year ol

Re: [QUAD-L] wondering about people

Miss them both.I hope you can drive again.My love and prayers.Dana Sent from my iPad > On Sep 7, 2021, at 10:02 AM, Shirley Bell wrote: > >  > Thanks Nicki, so sad indeed about Lori. We never knew how Bobbie Humphies > died either. Miss them both. Also wonder how Joan and Larry are?? I am go

Re: [QUAD-L] Lori Michaelson

dog that you dearly loved. I pray that she died in her sleep and didn't have to suffer. I don't know that we will find out what the cause of death was. We have lost quite a few persons that I miss. it seems. I'm not familiar with you Julie. I'm on Facebook. I've always enjoyed

[QUAD-L] Re: [QUAD-LIST Sharing personal care agreements

for this group Thank you, Dana Wray C 4-5 47 years post in July. Tracheostomy, ileo-conduit From bladder cancer, colon cancer and respiratory difficulties.

Re: [QUAD-L] Bed/Mattress Question

feedback. They only have one year warranty, which is crazy unfair, when they cost so much. Dana C4-5 complete, trach button ,ileo-conduit bladder cancer, colon cancer, Osteoporosis, it will be 47 years post in July. I keep pictures of all my different wounds,2 result of wound doctor and surgeon.A

Re: [QUAD-L] sweating

They are no longer making a Medications I have used for decades call propanethine. 15 mg, it worked so great was sweating. Does anyone know of any other medication for sweating. My doctor is out of the office, hopefully they will know of something. I hope somebody knows of something better On Sun

[QUAD-L] Congressional Sign-On Letter Closes Sept 18

Sent from my iPad > >  > > > > > > > September 15, 2020 > > CRT Advocates and Friends, > > We only have a few more days to get Congressional signatures on the letter to > CMS to permanently protect important components (a.k.a. "accessories") used > with Complex Rehab manual w

Re: [QUAD-L] Celebrating Life 31 years after Transverse Myelitis!

Belated Congratulations to Eric and Jim in case I did not.Dana On Mon, May 18, 2020 at 11:56 AM Eric Olson wrote: > rock on James! > > On Sun, May 17, 2020 at 10:12 PM Jim Lubin wrote: > >> On May 17, 1989, I suddenly, within minutes, went from a sharp pain in my >> shoulder to becoming paralyz

[QUAD-L] Sweating

What I have taken for sweating for years 15 mg https://www.progressnp.com/wp-content/uploads/sites/29/2017/03/DN-Propantheline-lsw.pdf

Re: [QUAD-L] Quads and virus battle

Let’s keep each other posted. My love and prayers to everyone. By his stripes we are healed. Amen Sent from my iPad > On Mar 22, 2020, at 2:59 PM, Nichole Rohling wrote: > >  > I haven’t heard of any. We are up to 67 cases and 2 deaths. > > Nicki > C5/6

Re: [QUAD-L] Quads and virus battle

are able to get home soon. Dana Prairie Village Kansas C-4 5, tracheostomy, ileo-conduit. Survivor of bladder and colon Cancer. 45 years post. One of my caregivers has been out with the flu and her son and my other caregiver, Her daughter was exposed to the Coronavirus. It’s difficult to

Re: [QUAD-L] Wondering

independent living center person I know says that Kansas is in compliance., but The congressman walking at the bill don’t seem to want to change itThe congressman working Please join Stop EVV On Facebook, so you can keep informed about what is going on in each state and in Washington. Thank you Dana

Re: [QUAD-L] I would like to say to everyone a you

is going on in our country. We need to contact our representative right now. The website will give you all the information you need to know how to uphold your ability to come and go in your community Thank you Jim for starting this amazing group. Dana On Mon, Dec 30, 2019 at 8:44 PM Jim Lubin

Fwd: [QUAD-L] cell phone holder

you Dana I enjoyed the article that Ishmael shared. Has anyone heard of the oracle by Jonathan Cahn. It is a fascinating book. My caregiver ordered through Sid Roth.com It was $49 and included six CDs. Information that were not fit in the book. You can listen to a lot of YouTube Videos that

Re: [QUAD-L] cell phone holder

to correct my iPad. Dana C4-five Quadriplegic, 45 years On Wed, Nov 20, 2019 at 9:26 PM Lori Michaelson wrote: > That one is very similar to mine but I only used my cell phone in that > manner to watch a movie or a TV series on my bowel regimen nights. I don't > watch TV so I keep

[QUAD-L] Falling over from Scoliosis

I Use a peanut Pillow from Tempur-Pedic it is so great for cushioning my elbows, I had a little tiny pinhole that turns into osteomyelitis. Every couple months they go on sale two for the price of one. I always buy then.You can cut in any size to fit under your feet or wherever you get pressure ar

Re: [QUAD-L] Celebrating

Congratulations Michael, I don’t think I’ve had the pleasure to meet you. Are you on Facebook. I am under Dana Wray It will be 45 years post for me on July 26. It will be 45 years post for me on July 26. On Sun, Jul 14, 2019 at 12:13 PM Michael Galvin wrote: > I think it's a good

Re: [QUAD-L] anniversary

It’s good to hear from you again Glyan. Someone asked me the other day, why do we celebrate our anniversaries of being paralyzed? I think it is great do you make it another year and still be alive to enjoy life. What do you think? Dana C4-5 MVA 45 years on the 26th. We all face a lot of

Re: [QUAD-L] A favor

Happy Fourth of July! Dana almost 45 years poster On Tue, Jul 2, 2019 at 10:38 PM johnny Cammon wrote: > That I will > -- > *From:* ismaelcavaz...@gmail.com > *Sent:* Tuesday, July 2, 2019 10:37 PM > *To:* 'johnny Cammon' > *Su

Re: [QUAD-L] Test Message

Still here as well Dana On Tue, Jun 11, 2019 at 1:45 AM Ed Tessier wrote: > Still here as well > > Ed > > On Mon, Jun 10, 2019 at 12:22 PM wrote: > >> Just checking to see if anyone in the Quad list is there. I haven’t >> received anything lately. Thank you.

[QUAD-L] Action alert: ask your Representative to support Proposed Bill for Protecting People from EVV

http://www.advocacymonitor.com/action-alert-ask-your-representative-to-support-proposed-bill-protecting-people-from-evv/?fbclid=IwAR1-s0fWam6WdK_7QVsvuAll3m8n5K7hbZ8xRWEPT8KXz_YzH3zBbhYBK-I Congressional switchboard 202 224 3124 You can also find your members contact information at house.gov

Re: [QUAD-L] MRI

That is a wonderful idea I had osteomyelitis in my elbow from a sore. The wound Clinic scraped it too far and I had to have surgery at K U I sweat all the time and I use a pill called Propantheline 10 mg. I can take up to three a day. I was given by my rehab doctor decades ago. Dana On Thu

[QUAD-L] How is your state implementing EVV

provide. Dana

[QUAD-L] New EVV Advocacy Document and Opportunities to Take Action!

http://www.advocacymonitor.com/new-evv-advocacy-document-and-opportunities-to-take-action/ Sent from my iPad

[QUAD-L] Representative Diana DeGette committee on energy and commerce

Skip to main content Committee on Energy and Commerce Send U.S. Rep. DeGette an e-mail Denver Office 600 Grant Street, Suite 202 Denver, CO 80203-3525 Phone: (303) 844-4988 Fax: (303) 844-4996 Washington, D.C., Office 2111 Rayburn House Office Building Washington, D.C. 20515-4329 Phone: (202)

[QUAD-L] Story about a quadriplegic on Dr. Phil

Sorry about such late notice but Dr. Phil is going to have a story about a quadriplegic and his girlfriend doing all the care. I saw a clip from that and Dr. Phil was telling them you can’t be a girlfriend and a caregiver. It ought to be interesting. I watch the clips on Dr. Phil.com yesterday end

Re: [QUAD-L] Sweating iPad holder

under it comfortably to use it CTA Digital PAD-HASM Heavy-Duty Articulating Tablet Security Arm * I don’t know if I can send a picture. * *Dana * To anybody if you give me your email address. I know you will be pleased with this product. I love it. On Mon, Mar 4, 2019 at 6:23 PM Greg wrote

Fwd: [QUAD-L] DNR. DNI

-- Forwarded message - From: Dana Wray Date: Thu, Feb 7, 2019 at 3:27 AM Subject: Re: [QUAD-L] DNR. DNI To: Bobbie Humphreys I have in the past but I don't know what they get updated. I need to see if it is in my medical partners. Thanks for talking about that so I can wo

Re: [QUAD-L] Sores

that can cause wounds on Spinal cord injuries. It has happened to me several times . Dana C 4-5 44 yrs post On Fri, Jan 25, 2019 at 7:08 PM Greg wrote: > I wanted to dress up a bit for a photo, jeans instead of sweats. Only 1 > day and I got a sore on my butt. It was not bad, but kept g

Re: [QUAD-L] Wheelchair cushin

What is a smart check for your R Roho?I have not heard of. Thank you Dana On Thu, Nov 1, 2018 at 7:28 AM Noel wrote: > I received a new wheelchair a couple months ago, it came with a Roho > cushion and a smart check device. > > https://permobilus.com/product/smart-checkby-roho/ &

Re: [QUAD-L] Oldest living Quads

Congratulations Billy On Wed, Jan 2, 2019 yat 5:06 PM Billy Lang wrote: > I will be 70 in May, 30 years post in July. Just got a real good reason to > hang around. > > > On Dec 26, 2018, at 4:48 PM, Jim Lubin wrote: > > Some of the quads in this group are the longest living that I have seen. >

Re: [QUAD-L] Strange Question

anyone else ever had this experience, when their vehicle was not drivable? Dana C4-5 complete, 44 years post. 7/26/74, passenger in a motor vehicle accident at 20 On Fri, Dec 21, 2018 at 1:21 PM Lori Michaelson wrote: > My injury (car accident) happened nearly 40 years ago and I was in

Re: [QUAD-L] Holiday

Belated happy Thanksgiving to all. Thank you for your prayers and I am happy that you know Jesus and he is alive for everyone. I asked the Lord to bless you and give us wisdom and protect us all quadriplegic complications and I asked for his healing touch to heal everyone experiencing quadripl

Re: [QUAD-L] Fwd: Very bad side effects taking when taking antibiotics for UTI

I don’t do well with that drug.Dana On Wed, Nov 14, 2018 at 5:20 PM Greg wrote: > IV Antibiotics don't bother my stomach pain wise, but can cause runs. > Most UTI ones I can do ok, but now and then Leviquin (sp) will cause huge, > double over, stomach pains, can't eat. feel sick. Taking with lo

Re: [QUAD-L] It's hard

I know how you feel and I agree. Dana On Mon, Nov 5, 2018 at 4:49 PM Bobbie Humphreys wrote: > I find it very hard to be patient ALL-THE-TIME. > Bobbie > > "Be the change you want to see in the world". Gandhi > >

Re: [QUAD-L] employer/employee contracts to share

Hi fellow members: Wondered if anyone would be willing to share employer/employee contracts they have figured out. I would appreciate any help. Thank you, Dana C 4-5, 44Years post good yeah they are I wanted to share with you In great insulated glasses. They have a number of links Of

Re: [QUAD-L] iPhone holder to pick up and hold

I use a phone holder from Amazon that I have screwed to my bed. I cannot operate it but I can look at it you may have better use of your arms to touch the screen. I have the 6S plus. I found another phone holder that is longer that you have to order from Brookstone. I like the longer length As

[QUAD-L] Fw: Signatures Needed on Congressional Letter to CMS Regarding Competitive Bidding

Sent from Yahoo Mail for iPhone Begin forwarded message: On Wednesday, September 26, 2018, 1:18 PM, NCART wrote: @media screen and (max-width:480px){#yiv2691962502 body {width:100% !important;min-width:100% !important;padding:0px 0px 0px 0px;margin:0px 0px 0px 0px;}#yiv2691962502 table {b

Re: [QUAD-L] choking

Great inf. Dana On Sat, Aug 25, 2018 at 4:16 PM wrote: > Boy Greg > > It certainly hasn’t been your best period of time the last little bit! Do > you use the quad cough assist at all? We use it every day that I need to > have my nose blown (and seeing how it’s allergy season

Re: [QUAD-L] Elbows

The best answer for padding for your armrest is ordering a neck pillow from bed Bath and beyond that is Tempur-pedic. You can cut them in half and put one on each side of your chair. I always buy two so I can use the covers of the pillow and I attach with hair ties. Dana On Tue, Jun 26, 2018

Re: [QUAD-L] Elbows

I also get a Tempur-pedic neck pillow and cut it in half, cover it with a covering that comes with it and place on my armrest to prevent pressure. It works for me and it also helps you to stay straight or in your chair. Dana 43 years post 64 On Sun, Mar 18, 2018 at 1:59 AM Dana Wray wrote

Re: [QUAD-L] Elbows

Hi Greg, I found a way to solve that problem. They are hard to find, But look for Terry cloth angle socks. Cut off the toes and place on your hands after you cut out a spot for your thumb. Put another one on your elbow and it helps prevent red marks on your bony areas. Thank you, Dana On Wed

Re: [QUAD-L] FDA warns azithromycin "Z-pack" antibiotics could lead to deadly heart rhythms for some - CBS News

Thank you so much for the information Jim. Dana On Fri, Mar 16, 2018 at 1:37 AM Jim Lubin wrote: > > https://www.cbsnews.com/news/fda-warns-azithromycin-z-pack-antibiotics-could-lead-to-deadly-heart-rhythms-for-some/ >

[QUAD-L] Re: [QUAD-L] Nursing homes 🏡

waiver. If you don’t know that congressional hotline I will get it in the next email to you. You can use this letter to click on it and it will send your message to me I will send you the 800-number. Thank you, Dana [image: Creating life-changing solutions so that people with disabilities can

[QUAD-L] Re: [QUAD-L] Computer defrag question about Dragon naturally speaking being loaded upon completion… Can it be done automatically instead of manually

-- *Subject:* NCART Action Alert for H.R. 3730 November 1, 2017 CRT Stakeholders and Friends, Your action is needed this week to get your Congressional Representative to protect access to CRT Manual Wheelchair Accessories by cosponsoring H.R. 3730. This year is qui

Re: [QUAD-L] Low Air Loss Mattress Question

d but it does the trick. More sturdy than new ones. Dana On Wed, Oct 4, 2017 at 2:22 PM, Dave Krehbiel wrote: > I have the same style mattress. I've had very good luck with it. > > > > I had a similar problem at one point. There is a zipper down the side of > the mattr

Re: [QUAD-L] Broken leg..

doctors neglect. They couldn't do anything because of my osteoporosis. I did not realize that with osteoporosis surgery will not work.. Has anyone else run into that experience? Dana 4-5 complete quadriplegic, 43 years. I get yearly injections is called IV therapy reclast up to six years . O

Re: [QUAD-L] Help for a urinary tract infection

Please call your Senators at the Congressional hotline. Congressional Switchboard 866-922-4970 The U.S. Senate is one or two votes away from approving new health care legislation that would cut and cap Medicaid and put at risk the essential health benefits and pre-existing condition protections

Re: [QUAD-L] New Chair Options

Hi Bobbie, I was supposed to start my wheelchair evaluation this month but when I called they are booked up until October. I have a Permoble so I will probably stick with this, Unless I hear about a better wheelchair. . July 26 is my 43rd anniversary Dana C 4-5 complete quadriplegic

[QUAD-L] Medicaid cuts and caps to the states: Please call your senators

Please call your Senators ASAP through the Congressional switchboard and write them on their websites as this will stop Home and Community Based Services. 866-922-4970 1) Capping Medicaid means states get a set amount per enrollee instead of being reimbursed for the actual cost to care for that in

[QUAD-L] Continue advocacy about Medicaid cuts and caps to your senators

Thank you for taking action to protect health care for people with disabilities! You probably already know that the Senate postponed the vote on their health care bill. This victory may be temporary, as we expect another version of the bill to come before the Senate sometime in July. Here's a sho

[QUAD-L] Medicaid Cuts and Medicaid Caps-Call your senators

Call Jerry Moran (202) 224-6521 Pat Robertson (202) 224-6521 Congressional switchboard voice-activated 1. It will ask your state 2. It will lash your ZIP Code 3. It will ask you if you want to call your Senators and representative in your state. 866-922-4970 “ Hi, my name is [NAME] and I'm a con

[QUAD-L] Urgent: contact your Senators to not cut Medicaid and no Medicaid caps through the American health care act

We need your continued support and advocacy! The U.S. Senate is planning to act quickly on changes to health care that could dramatically limit access to Medicaid services for people with disabilities. The Senate is working behind closed doors on its version of the American Health Care Act (ACHA)

[QUAD-L] Please call Senators about Medicaid cuts 866-922-4970

Senators: Reject the ACHA-and its cuts to Medicaid services that empower people with disabilities to live independently. I have high level spinal cord injury and it will be 43 years in July. I will not be able to live independently if these budget cuts to Medicaid happen through the AGH

[QUAD-L] Contact the Congressional switchboard 866-922-4970 about wheelchair accessory cuts on June 30

A pre-written email is available to send to your Senators and Representative at www.protectmymobility.org. Be sure to contact your Member's offices this week and share the link with others so that they can reach out too. Every message counts! Legislative intervention can take the form of cospons

[QUAD-L] Legislative cuts regarding accessories and Medicaid cuts that allow independent living

ories. The opportunity for new signatures ends this Friday. Please let me know what your Representatives and Senators are sensate about these 2 important pieces of legislation that will affect independent living for persons with disabilities. Thank you, Dana

[QUAD-L] Re: CRT Separate Benefit Category Legislation Reintroduced

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[QUAD-L] How do you add your picture to your email address

I have noticed that some of you have your pictures next your email address. I can't figure out how to do I would appreciate it if someone could assist me. Yes the new Medicare and Medicaid rolls are scary. Let's keep each other updated. Dana C 4-5, 42 years post. Prairie Village, Ka

[QUAD-L] Re: [QUAD-L] Re: [QUAD-L] Re: [QUAD-L] alternating pressure air mattress or pad needed… What do you recommend?

On Wed, Jan 11, 2017 at 8:20 PM Jim Lubin wrote: > here is an option for a full mattress replacement if you want more than > just an overlay. > > https://www.amazon.com/gp/product/B002VWKO9W/ > > > > On Wed, Jan 11, 2017 at 3:57 PM, Lori Michaelson > wrote: > > > https://www.amazon.com/Drive-Med

[QUAD-L] Six month delay on cutting wheelchairs and accessories

Message body | | | | | | | | | | | | December 7, 2016   Great news for all CRT stakeholders! This afternoon the Senate passed a 6-month delay of inappropriate Medicare payment cuts to CRT power wheelchair accessories as part of the 21st Century Cures Act. The House of Representat

[QUAD-L] Re: House Passes 21st Century Cures Act

The toll-free switchboard number is: 866-922-4970 Subject: House Passes 21st Century Cures Act @media screen and (max-width:480px){#yiv1392758365 body {width:100% !important;min-width:100% !important;padding:0px 0px 0px 0px;margin:0px 0px 0px 0px;}#yiv1392758365 table {border-collapse:

Re: [QUAD-L] Redoing my ileoconduit on Wednesday

Thank you for your love and prayers as I really appreciate your warm thoughts. We need all the strength we can get from the Lord and through our friends prayers. Dana On Sun, Sep 4, 2016 at 4:18 PM Bryce Willis wrote: > Wow. Helluva situation, Dana. My love and prayers go you way. God bl

[QUAD-L] Redoing my ileoconduit on Wednesday

I have been suffering numerous UTI for the last year and had a number of testing. I was just told a week and a half ago that my ileoconduit was no longer working and I needed a new one. I didn't realize that urologist I had been seeing realized what I was facing. He had given me 4 lithotripsy to br

[QUAD-L] Fw: Wheelchair Accessories Legislation Gains Support

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Re: [QUAD-L] Night

CMS Releases July 1 Medicare DME Fee Schedules with Major Cuts - NCART - - Today at 6:34 AM To - daanoo2...@yahoo.com Message body

[QUAD-L] Re: Action Needed: Verify your signature

Sent from my iPhone > On Sep 28, 2015, at 2:41 PM, We the People: Your Voice in Our Government > wrote: > > > > > Thank you for submitting your signature to the We the People petition "Stop > Medicare from Making Inappropriate Cuts to Complex Wheelchair Accessories" > via WhiteHouse.gov

Re: [QUAD-L] inhalers?

2-3 breathing treatment each night and morning.. It helps the mucus, and I am able to get it and Breezemore comfortably. I have a Trach button so sometimes that causes mucous. I seem to get congested every time I go outside. I must always have a suction machine with me.Dana Sent from my iPhone

Re: [QUAD-L] Rehabilitation doctor

I think your father needs a Second opinion with a new doctor and a new surgeon. Dana Sent from my iPhone > On Aug 18, 2014, at 4:19 PM, Quadius wrote: > > I hope someone can give me a hand here. My dad had spinal cord surgery, they > went in and cleaned up and putting hard wer

Re: [QUAD-L] Chair

Hi Ron, what a wonderful thing for him to do. I'm glad he noticed you in your manual chair. Dana Sent from my iPhone > On Aug 8, 2014, at 2:07 PM, RONALD L PRACHT wrote: > > Somebody saw me wheeling my manual wheelchair a few yrs back and I got a call > from the Gywnn- Stei

Re: [QUAD-L] Happy hurtday to me

So happy anniversary I know you have been through a lot as most of us have and you have survive. Congratulations on your amazing story and may God bless you. Dana cervical ; level 4-5, 40 yearsI on July 26/14 Sent from my iPhone > On Aug 7, 2014, at 4:06 PM, "Joan Anglin" wrote:

Re: [QUAD-L] 17 years.

Congratulations Danny On 17 years. I hope you had a wonderful day doing something you enjoy doing to commemorate your survival. Dana Sent from my iPhone > On Aug 3, 2014, at 8:10 PM, "Joan Anglin" wrote: > > Congratulations, you’re still here and kicking. Here’s to ma

Re: [QUAD-L] 48 years

Second that you give us so much information and help congratulations and God bless you Dana Sent from my iPhone > On Jul 10, 2014, at 1:22 PM, "nichole rohling" > wrote: > > Congratulations on 48 years. You’ve given a wealth of info to us!! > > Nicki

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