Re: [QUAD-L] New Chair Prob

2017-08-09 Thread Fragile
What is the quality like on bounder (21st-century) power wheelchairs? Has anybody had any luck getting coverage for one through Medicaid? On Thu, Aug 3, 2017 at 1:38 PM, Jeffrey Gaede wrote: > BOUNDER POWER SEATING SYSTEMS > > BOUNDER POWER SEATING SYSTE

Re: [QUAD-L] Shingles Shot ?

2017-06-13 Thread Fragile
I tried to get a shingles shot. My doctor wrote a script, sent me to Walgreens. They said they don't give the shots to people under 60, regardless of a prescription from the doctor. On Tue, Jun 13, 2017 at 11:05 AM, Randy Anderson wrote: > Hello, > I'm a 61-year-old male 19 years with a SCI. H

Re: [QUAD-L] 4X4Chairs?

2017-06-10 Thread Fragile
http://www.cajunmobility.com/ On Fri, Jun 9, 2017 at 6:57 PM, Eric Olson wrote: > http://www.actiontrackchair.com/Default.aspx > https://www.tankchair.com/tankchair/ > http://www.mobility-usa.com/ > http://www.freedommobilityllc.com/ > > On 6/6/2017 5:23 PM, Gail Overton wrote: > > I’m looking f

[QUAD-L] Re: [QUAD-L] Re: [QUAD-L] Re: [QUAD-L] Alternating air pressure mattress not doing what is supposed to I believe… Need your opinions

2017-04-10 Thread Fragile
ing mom of 9 and pvt. pilot Currently: Quadrapeligic > due to advanced MS and living in a nursing home Phone: 561-588-4333 > <(561)%20588-4333> SC student 20yrs ROMANS 8:28* > B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH > > > -- > *From:* Fr

Re: [QUAD-L] employment a quadriplegic could do from the power chair

2017-04-09 Thread Fragile
I used Amazon mechanical Turk for a while last year and made about $200. On Tue, Mar 28, 2017 at 7:17 PM, DEBRA DEW wrote: > > I'm trying to think of ways I could earn a small amount of income. I'm > hoping you might be able to make suggestions. I have a journalism > background in college and ed

[QUAD-L] Re: [QUAD-L] Re: [QUAD-L] Alternating air pressure mattress not doing what is supposed to I believe… Need your opinions

2017-04-09 Thread Fragile
I also have a microair, model ma50. My only complaint is the noise of the pump every time it alternates the air. Most of the time I just leave it on low air loss mode so I only have to hear the noise about once an hour when it senses that the pressure is getting low. Would love to find one that's q

Re: [QUAD-L] Electric toothbrush

2017-01-12 Thread Fragile
Bobbie, this is what I use to have a toothbrush: http://www.accesstr.com/Pool-Cue-Cuff-p/9462.htm On Tue, Jan 10, 2017 at 7:24 PM, Bobbie Humphreys < bobbiehumphre...@gmail.com> wrote: > Those of you who have an electric toothbrush, how do you hold it? > > If you could please send me a link I wou

[QUAD-L] Wheelchair backrest

2017-01-03 Thread Fragile
I have a Permobil M 300 with the corpus seating. I like the plastic wedges that you can put on both sides of the lower part of the backrest for better lumbar support, they don't get in the way that the swing away lateral supports do. After a few years, my lower back began to hurt, so I put in the

Re: [QUAD-L] Toothbrushes...

2017-01-02 Thread Fragile
> This is what I use to hold an electric toothbrush in my hand: > http://www.accesstr.com/Pool-Cue-Cuff-p/9462.htm > > On Fri, Dec 23, 2016 at 3:51 PM, Jeffrey Gaede wrote: > >> Hello, Everyone. Anyone have any special ideas about finding something >> that would hold an electric toothbrush for

[QUAD-L] Re: [QUAD-L] the purple mattress… Is it effective for quadriplegics? The air mattress I have is painful

2016-12-06 Thread Fragile
Got a more detailed response through email: "Thank you for your interest in Purple! While we can't make any medical recommendations, I can tell you that our mattress is awesome for the relief of pressure points. Our technology is licensed with Striker Medical for hospital beds that are created for

[QUAD-L] Re: [QUAD-L] the purple mattress… Is it effective for quadriplegics? The air mattress I have is painful

2016-12-05 Thread Fragile
Response from the company: "We actually can't make any medical claims, but the purple helps to relieve pressure and give comfort!" I'm very tempted to give it a try. On Sun, Dec 4, 2016 at 4:55 PM, DEBRA DEW wrote: > https://www.google.com/webhp?sourceid=chrome-instant&ion=1&; > espv=2&ie=UTF-8

Re: [QUAD-L] Shower Chair

2016-05-19 Thread Fragile
Here are some that I've been tempted to try, a little on the pricey side, but can be folded up into a suitcase. https://goesanywhere.com/ On 5/19/16, RONALD L PRACHT wrote: > Im in a search for a rolling shower/commode chair I found one called a > Ezeelife aluminum shower chair. Im probally goi

Re: [QUAD-L] foleys

2016-03-28 Thread Fragile
When I 1st switched over to a suprapubic, it caused Autonomic dysreflexia. After about 6 months, I started using a Duette instead of the standard catheter, made a big difference. On 3/28/16, diannal...@aol.com wrote: > > i'm going to a urologist in april to discuss getting a suprapubic foley. > I

Re: [QUAD-L] Congress May Consider Tweaks To ABLE Accounts

2016-03-23 Thread Fragile
The webinar is planned for March 29 http://www.ablenrc.org/events/webinar-able-accounts-trusts-financial-and-benefits-planning On 3/22/16, Jim Lubin wrote: > Check out this article from Disability Scoop: > https://www.disabilityscoop.com/2016/03/22/congress-tweaks-able-accounts/22074/ > > Federa

Re: [QUAD-L] To those of us on pain medication

2016-03-22 Thread Fragile
A couple of years ago, I got on my states (New Mexico) medical marijuana program to try to get some relief from nerve pain. I tried several different strains from several different dispensaries. A couple of the strains were ones that were not supposed to get me "high." Unfortunately, they all did,

Re: [QUAD-L] Malware

2016-03-07 Thread Fragile
My mother's computer somehow got infected with DNS Unlocker. Finally got rid of it, took 3 programs. AdwCleaner, Malwarebytes Anti-Malware Free, HitmanPro. Kind of strange, have to download programs to get rid of a virus that resulted from downloading a program. On 3/6/16, greg wrote: > Got Malw

Re: [QUAD-L] Just a question

2016-03-02 Thread Fragile
I got my permobil in 2012, it has been very solid. On 3/1/16, john owens wrote: > I'm trying to buy a power chair has anyone had mishaps, malfunctions, or any > problems with the permobil power wheelchairs? Can anybody give me some > insights on this company. Is it a good brand of chairs? Are th

Re: [QUAD-L] Can i ask everyone how much Baclofen they take daily?

2016-02-02 Thread Fragile
I took baclofen several years ago, had to constantly keep increasing the dosage. I think I got to about 100 mg per day before I switched to another medication. On 2/2/16, DAVID LEWIS wrote: > Im a quad, i have more spasms now. I have to up my Baclofen to 65 mg a > day.How much u guys take daily.?

Re: [QUAD-L] leg exercise equipment

2016-01-09 Thread Fragile
I use an RT300 FES bike At my home, it's from restorative therapies. Gives me quite a workout, only problem is they are quite expensive. On 1/9/16, Dr.Ron and Sharion Austin wrote: > living in rural Okla we don't have any rehab or physical therapy outpatient > clinic, for my wife C5 sci > does an

Re: [QUAD-L] New wound

2016-01-08 Thread Fragile
Very sorry to hear that Bobbie. I have an Invacare alternating pressure/low air loss mattress. It works very well as far as pressure relief, but the pump is kind of loud. So, I disable the alternating pressure part and just use Low air loss. Prior to this one I had one called the Genesis Deluxe

Re: [QUAD-L] Twitter

2015-12-30 Thread Fragile
Yeah, I believe everybody who follows @John can see it. A couple of months ago I tweeted a photograph of a tornado to a local weatherman, it was commented on by storm chasers in other states. On 12/29/15, greg wrote: > Off topic, but hopped you can help. > I never used Twitter, but had an accoun

Re: [QUAD-L] Recommendations for a trackball please

2015-12-05 Thread Fragile
I really like the Kensington Expert Mouse. On 12/4/15, Dave Krehbiel wrote: > I can move my arms but not my fingers, and I am using Dragon > NaturallySpeaking with Windows 8. In some cases, it can be tedious or > difficult or impossible to move the mouse pointer using Dragon > NaturallySpeaking.

Re: [QUAD-L] Hands free wheelchair

2015-10-20 Thread Fragile
This one worked like the Segway, just leaning from side to side, forward and backward. On 10/20/15, wheelch...@aol.com wrote: > I could not get the link but if it is the Star Tec System, that has been > around more than a decade. It uses a link that is attached to the top of > one's head (often

Re: [QUAD-L] new chair

2015-10-12 Thread Fragile
> in > customers shoes and ride around town and into stores to see what its > like. > > DME are sparse in rural areas like I live in so there is not many > choices. My friend down the road was just told to find another dealer > > after getting his n

Re: [QUAD-L] wheelchair cushion

2015-10-01 Thread Fragile
Came across this cushion today, thought it was kind of interesting. Wish it was a little bit thicker. http://www.intellibed.com/product/wondergel-extreme-seat/ On 9/21/15, gah17...@aol.com wrote: > > I would like to hear from anyone about what kind of wheelchair cushion you > > may use, Roho u

Re: [QUAD-L] wheelchair cushion

2015-09-21 Thread Fragile
Sorry, can't help you, but I have been curious about these: http://www.supracor.com/products/medical/cushions/ On Mon, Sep 21, 2015 at 2:13 PM, wrote: > I would like to hear from anyone about what kind of wheelchair cushion you > may use, Roho users please don’t respond as I have used the roho a

Re: [QUAD-L] Sitting wrong/Pressure sore

2015-09-04 Thread fragile
Was the seating system from Pride as well? When I had one, 7 years ago, the seating system was from Motion Concepts. It worked well until time to change the batteries. Then, there wasn't enough room to remove the rear battery without also removing a bunch of electronics. On Fri, Sep 4, 2015 at 10:

Re: [QUAD-L] Joyless stick

2015-09-01 Thread Fragile
Same here. On a previous chair, an invacare, and my current chair a permobil. So far, knock on wood, the gorilla glue has held. On Tue, Sep 1, 2015 at 6:09 PM, donald scott wrote: > I glued mine on with GORILLA GLUE about 6 months ago and it's still on. > Knock on wood. > > -

Re: [QUAD-L] Hiprex anybody

2015-08-15 Thread Fragile
What is it? Googled it, all I could come up with real quick Was a bunch of foreign language websites. On 8/14/15, Gmail wrote: > > Anybody take Hiprix to combat UTI's. > Bobbie > > Smile Everyday > >

Re: Fwd: [QUAD-L] Old sci

2015-08-09 Thread Fragile
Don, is there anything specific you've done over the years That you believe has contributed to your lack of debilitating pain? On Sat, Aug 8, 2015 at 9:01 PM, Don Price wrote: > > I'm writing this for any new quads on the list because I see things > differently than most of those who have respon

Re: [QUAD-L] Reevaluated

2015-08-05 Thread Fragile
Yeah, every year. This year they gave me 36.5 hours per week. I asked the caseworker where the 0.5 hours come from, she told me it's determined by some kind of computer algorithm. On Tue, Aug 4, 2015 at 3:17 PM, Gmail wrote: > I had one of those days when a representative came out (once a year

Re: [QUAD-L] New Chairs

2015-07-24 Thread Fragile
I have a Permobil M300, the fastest I can get it to go is 5.5 mph. I tried it out on the flight deck of the USS midway while on vacation. Which is fine with me, the terrain I have to go over outside of my home is usually pretty rough. The only problems I've had is one of the armrests falling apar

Re: [QUAD-L] Belly binder

2015-07-15 Thread Fragile
Does it trigger dysreflexia? The slightest movement of the tube triggers it in my case. On 7/15/15, greg wrote: > Yes and it does not bother mine at all. It just slightly covers it but not > tight enough to block it off. > Greg > >> any chance that you, or anybody else here uses one of these and

Re: [QUAD-L] Belly binder

2015-07-14 Thread Fragile
any chance that you, or anybody else here uses one of these and also has a suprapubic catheter? Does the catheter get in the way? On 7/14/15, greg wrote: > > I use a binder on and off. When my breathing is not well, or when my stomach > is not feeling well, or just going out somewhere nice. > The

Re: [QUAD-L] Broken ankle

2015-07-12 Thread Fragile
what is a "Rob Jones" cast? On 7/9/15, gah17...@aol.com wrote: > I had a spiral fracture 12 years ago and the first thing the DR asked, "do > > you want to just amputate"? > > It so happens the cast technician just graduated and remarked > that it should not be casted in the traditional way, but

Re: [QUAD-L] new chair

2015-06-29 Thread Fragile
I had similar problems with a quantum 600. When I complained to the company that sold me the chair, I was told, "you got what you ordered." It was too wide. It was between 18 and 19 inches wide, ordered between 16 and 17. Come to find out later, 17 inches wasn't an option, so they went to 18. I jus

Re: [QUAD-L] lyrica/scoilisos

2015-06-15 Thread Fragile
I've been on Lyrica for several years. Started taking it to try and relieve spinal cord injury related nerve pain. It didn't help. But, it did help with nausea. It's caused weight gain, dry mouth and lethargic. I've tried to stop taking it a few times, but the withdrawal is pretty bad. On 6/1

Re: [QUAD-L] Phones

2015-06-03 Thread Fragile
http://www.myblueant.com/products/speakerphones/s4/ On 6/1/15, Toby Ausbun wrote: > Does anyone no about any voice activated phones a c4 complete with no use of > hands?? Just been looking and cant info any > > Sent from my iPad >

Re: [QUAD-L] Binder and Colotomy

2015-04-06 Thread Fragile
I believe their purpose is to support all of the organs inside the abdominal cavity from falling, after they have lost support from abdominal muscles due to atrophy. On 4/6/15, Danny wrote: > I've got a colostomy but have never used an abdominal binder what are they > and what is their purpose? >

Re: [QUAD-L] Permobil c350 tilt

2015-03-24 Thread Fragile
Does anybody happen to know exactly where to find the serial number on a permobil? I'm sure it's somewhere in the paperwork, heck… If you know where I left that I'd appreciate it as well. On Sun, Mar 22, 2015 at 7:31 PM, wrote: > Consider calling Permobil in Tennessee at 800-736-0925. Make sur

[QUAD-L] Fwd: Miami Project 5th Open House + Research Update and FAQs

2015-03-09 Thread Fragile
-- Forwarded message -- From: Anderson, Kimberly D Date: Mon, Mar 9, 2015 at 6:18 AM Subject: Miami Project 5th Open House + Research Update and FAQs To: "Anderson, Kimberly D" *Miami Project 5th Annual Community Open House* *April 11, 2015 – 12-5pm * Lois Pope LIFE Center, Un

Re: [QUAD-L] air mattress

2015-02-08 Thread Fragile
my bed sores. I can't say anything about how long it will last, but > it's been a huge relief so far. I guess time will tell. > > > On Sun, Feb 8, 2015 at 8:28 AM, Fragile wrote: > >> I'm on my 2nd one. The 1st one Worked very well for a couple of years, >

Re: [QUAD-L] air mattress

2015-02-08 Thread Fragile
I'm on my 2nd one. The 1st one Worked very well for a couple of years, it was a Genesis deluxe made by roscoe medical. But, it stopped holding air after a couple of years. I bought it on Amazon for about $350. I bought another one, an Invacare microAIR on eBay. Been using it for about a month.

Re: [QUAD-L] My big 40th Quad-living anniversary soon.

2015-01-24 Thread Fragile
This coming February 6 will mark 21 years for me. It seems like yesterday. Recently developed quite a bit of pain in my hips, knees, ankles. Tests show they are pretty much Bone on bone, arthritis. I suspect that is what's causing my autonomic dysreflexia. After 40 years, have you developed ar

Re: [QUAD-L] Bed Toppers

2015-01-24 Thread Fragile
Danny, for a few years I put a memory foam overlay on top of a mattress, and a sheepskin topper over the top of the memory foam. It worked pretty well. Also tried an air alternating pressure overlay, unfortunately they spring a leak after a few weeks. I came across an Invacare alternating pressur

Re: [QUAD-L] vaporizer to use medically

2015-01-12 Thread Fragile
I have, and occasionally use an Arizer Solo. It works very well. I got on my states medical marijuana program to try and combat Neuropathic pain. Tried Several of strains, unfortunately none of them have offered any relief. But, they do help with insomnia. On Sun, Jan 11, 2015 at 3:52 PM, Derri

[QUAD-L] Fwd: 2 SCI research survey opportunities from the Miami Project

2014-12-08 Thread Fragile
-- Forwarded message -- From: Anderson, Kimberly D Date: Mon, Dec 8, 2014 at 9:58 AM Subject: 2 SCI research survey opportunities from the Miami Project To: "Anderson, Kimberly D" *Survey About Pain* *After Spinal Cord Injury* Researchers at the Miami Project are conducting

[QUAD-L] transfer into the front seat of a vehicle

2014-11-18 Thread Fragile
might be a long shot, but has anybody here used a vehicle turning seat to get into a the front seat of a vehicle? Looking at something called Freedom Sciences Model 3100, but would need to be for the passenger side. Here's a video, https://www.youtube.com/watch?v=J2bR54o55js

Re: [QUAD-L] drainage bag

2014-10-26 Thread Fragile
-- > Date: Wed, 17 Sep 2014 16:21:06 -0400 > Subject: Re: [QUAD-L] drainage bag > From: quad...@gmail.com > To: swl...@gmail.com > CC: quad-list@eskimo.com > > I have a black piece of fabric that has Velcro on both sides. Basically it > encompasses the tube an

Re: [QUAD-L] drainage bag

2014-10-26 Thread Fragile
ep 2014 16:21:06 -0400 > Subject: Re: [QUAD-L] drainage bag > From: quad...@gmail.com > To: swl...@gmail.com > CC: quad-list@eskimo.com > > I have a black piece of fabric that has Velcro on both sides. Basically it > encompasses the tube and you can't really tell the differe

Re: [QUAD-L] staying warm in bed with a heating pad

2014-10-23 Thread Fragile
Hello Ronald, I purchased one of those small floor heaters that get their heat from some kind of infrared heating element. It heats up pretty quickly, and has a thermostat on it, so it will turn off and on, depending on how hot/cold the temperature is inside my bedroom. I think it cost me about $1

Re: [QUAD-L] Fwd: Walking again?

2014-10-22 Thread Fragile
If you have money, you can get this done in China. Last time I checked, it's about $40,000. Some people have had positive results, others not so much. On Tue, Oct 21, 2014 at 7:57 PM, wrote: > > > What do you all think about the guy who was parilysed and got stem cell > therapy and is now walkin

Re: [QUAD-L] Hands-free telephone

2014-09-26 Thread Fragile
my grandmother has a Samsung galaxy, answers by just saying "answer". To place a call however, she has to press one button, then says "call" followed by the person's name. On Fri, Sep 26, 2014 at 9:30 AM, Larry Hopkins wrote: > I am a new subscriber to Quad-List & and I need y'alls help despera

[QUAD-L] drainage bag

2014-09-15 Thread Fragile
A while back there had been some discussion about hiding an overnight drainage bag behind the foot rest on a wheelchair. I ordered a messenger bag with the hopes that I can somehow hang it underneath/behind the feet rest and hide the drainage bag inside. For those who do this, how do you hide the

Re: [QUAD-L] AD issues still

2014-09-02 Thread Fragile
been having the same problem for about 2 years, don't know what is causing it, and Drs aren't interested in finding out On Tue, Sep 2, 2014 at 4:26 PM, wrote: > I’m still having the A.D. issue. High blood pressure and pounding headache > when I lay down or when washing my crotch area. While in

Re: [QUAD-L] Dragon NaturallySpeaking 13 Premium

2014-08-29 Thread Fragile
I've been very happy with version 12, spent more for a good desktop microphone than I did for the program on eBay. VEC Gooseneck USB Microphone On Tue, Aug 26, 2014 at 11:41 AM, Jim Lubin wrote: > Is this version worth getting? I have not tried any version yet. > > It's on sale until 9/30. > >

Re: [QUAD-L] supplies

2014-08-11 Thread Fragile
I get mine from 2 places, Byram and Edgepark. Medicaid is all I have as well. On Mon, Aug 11, 2014 at 8:30 AM, wrote: > where do some of you get your supplies? i was dealing with ccs medical. i > recently went to a local chain drug mart. they sent me a bill insisting i > have an additional ins

Re: [QUAD-L] Chair

2014-08-09 Thread Fragile
Have you looked at the Bounder H Frame? On Fri, Aug 8, 2014 at 12:26 PM, greg wrote: > My chair is in the shop again. Tires, tighten up where a few bolts have > fallen off, new lateral supports, etc. I asked about motors and motor > breaks, my chair rolls pretty easy when in off/stopped positio

Re: [QUAD-L] Peristeen

2014-07-28 Thread Fragile
I'm a C5 quad, been using enemeez for seven or eight years. Cut my bowel program down to about 45 minutes, but it is still excruciatingly painful. I'd like to give the peristeen system a try, but have a few concerns. Obvious is the cost/insurance coverage. Also, wonder how hard it will be for some

Re: [QUAD-L] Books?

2014-07-10 Thread Fragile
I can't tell you about the virus concerns, but thank you for directing to a great website On Tue, Jul 1, 2014 at 3:02 PM, greg wrote: > I know a lot of you read ebooks. Have you ever looked at booksee.org ? > It has like 80% of all books I looked for, including newer books. All free. > > I can

Re: [QUAD-L] Disreflexia

2014-07-02 Thread Fragile
I recently had two minor surgical procedures. Both times I told the doctor and the anesthesiologist that I was worried about developing dysreflexia. Both times they assured me that it wouldn't be a problem, that they knew how to deal with it. Both times when I woke up from the surgery, my blood pre

Re: [QUAD-L] i want this van......opinions?

2014-06-16 Thread Fragile
Looks nice. I have a full-size Econoline van, rear suspension is pretty stiff, makes for an uncomfortable ride. I wonder if anybody around 6 feet tall can fit inside a minivan like this? On Sun, Jun 15, 2014 at 11:29 PM, RONALD L PRACHT wrote: > > http://www.ebay.com/itm/Toyota-Sienna-SE-VMI-Ha

Re: [QUAD-L] Lime Oil

2014-06-11 Thread Fragile
I was told my urine samples would always test positive for bacteria because it had become colonized. On Wed, Jun 11, 2014 at 6:55 AM, wrote: > I don't understand. All bacteria will grow (colonize) if not flushed. > Just ask any Petri (sp) Dish. A wheelchair users, sitting... creates a > poo

Re: [QUAD-L] Lime Oil

2014-06-11 Thread Fragile
Has anybody successfully treated a colonized bacterial uti? On Tue, Jun 10, 2014 at 1:10 PM, Don Price wrote: > > > > A friend of mine who happens to be a person with quadriplegia swears that > lime oil has prevented UTIs in him for the past three years, which is when > he started using it. I h

Re: [QUAD-L] chills

2014-05-02 Thread Fragile
Dysreflexia? I've had a problem with dysreflexia ever since my sp was put in 16 months ago. On Fri, May 2, 2014 at 2:28 PM, Patricia Brown-Tulee wrote: > I've had these annoying chills & I don't know y they're here! wondering if > this is the way my body is "handling" my 3 week old supra-pub. D

Re: [QUAD-L] A Question Room 1 or Room 2

2014-05-01 Thread Fragile
Wish I could choose room 2, but I'm extremely nervous around strangers. On Wed, Apr 30, 2014 at 8:21 PM, Gmail wrote: > If you had 2 rooms in which you had a choice to pick to spend a long > evening, which would you choose and why? > > Room 1. Filled with all your friends and family. > > Room

Re: [QUAD-L] Supra pubic catheters and swimming

2014-04-12 Thread Fragile
According to a nurse at Care Cure, it's not a problem http://sci.rutgers.edu/forum/showthread.php?230446-bath-or-shower-%28foley-cath%29 On Sat, Apr 12, 2014 at 6:11 PM, wrote: > Hi, > I'm writing on behalf of Patricia who is having trouble getting a post to > go through. She is getting a sup

Re: [QUAD-L] Big Prob...

2014-04-11 Thread Fragile
"Peristeen is a prescription item and requires a 45-minute training session by a nurse or physician prior to its first use." How would somebody go about finding a nurse or physician for a training session? http://www.newmobility.com/2014/04/peristeen-for-bowel-management/ On Thu, Apr 10, 2014 a

[QUAD-L] Peristeen system

2014-04-03 Thread Fragile
Anybody have any information on the Peristeen system? Distributors, availability in the USA?

Re: [QUAD-L] Don't know if I shared this before

2014-03-23 Thread Fragile
Is there something out there somebody can recommend for television control? 2014-03-21 10:37 GMT-06:00 KK Batte : > It's about ECU > > > http://www.ablenetinc.com/Assistive-Technology/Environmental-Control-Units-ECU >

Re: [QUAD-L] A dream/nightmare I had

2014-03-13 Thread Fragile
Have you noticed your dreams become more "vivid" because of medications? On Tue, Mar 11, 2014 at 1:42 PM, Gmail wrote: > Hi All, >I wanted to tell you about a dream/nightmare I the other night. For > some reason I was being punished for something I did and my form of > punishment was to

Re: [QUAD-L] center drive wheelchair question

2014-03-06 Thread Fragile
I live on a farm, have had pretty good luck with my center wheel drive permobil. There's also a quantum edge (think that's what it's called) that has wider drive wheels. It would be nice if you could test it first. On Wed, Mar 5, 2014 at 4:14 PM, wrote: > As part of your OT Evaluation, livin

Re: [QUAD-L] Serious pain meds

2014-02-28 Thread Fragile
Two others you might consider are the fentanyl patch and actiq. I didn't react to well with them, but I've heard from people that they have helped. On Thu, Feb 27, 2014 at 6:49 PM, Gmail wrote: > Hi All, >I've been taking 20 mgs of morphine (time release) everyday for 3 > 1/2 years no

Re: [QUAD-L] Serious pain meds

2014-02-28 Thread Fragile
Elavil and lyrica are you on > > ron >*From:* Fragile > *To:* quad-list > *Sent:* Thursday, February 27, 2014 10:05 PM > *Subject:* Re: [QUAD-L] Serious pain meds > > For the syrinx pain, you might try lyrica + elavil > > > On Thu, Feb 27, 2014 at 6:49 PM, Gmail

Re: [QUAD-L] Serious pain meds

2014-02-27 Thread Fragile
For the syrinx pain, you might try lyrica + elavil On Thu, Feb 27, 2014 at 6:49 PM, Gmail wrote: > Hi All, >I've been taking 20 mgs of morphine (time release) everyday for 3 > 1/2 years now and 15 mgs of morphine (fast acting) when needed ... up to 4 > times a day. > Next week, Wednesda

Re: [QUAD-L] United Spinal Hosts Free Webinars

2014-02-13 Thread Fragile
was anybody able to takje part in this Webinar? I registered and tried to join at the designated time, but got a message saying "This Webinar is over. " On Fri, Feb 7, 2014 at 8:32 AM, wrote: > Thank You! > Best Wishes > > In a message dated 2/7/2014 9:23:32 A.M. Central Standard Time, > kkb

Re: [QUAD-L] AD episodes

2014-02-07 Thread Fragile
nce or twice a day that the catheter would >> stop draining because the bladder had wrapped around the catheter. >> Q >> >> >> Sent from my iPad >> >> On Feb 5, 2014, at 9:34 AM, Fragile wrote: >> >> I've been having trouble with AD fo

Re: [QUAD-L] AD episodes

2014-02-07 Thread Fragile
at the catheter would > stop draining because the bladder had wrapped around the catheter. > Q > > > Sent from my iPad > > On Feb 5, 2014, at 9:34 AM, Fragile wrote: > > I've been having trouble with AD for the past 14 months after having a SP > cath put in. The

Re: [QUAD-L] AD episodes

2014-02-07 Thread Fragile
far? > You might also have a problem with bladder atrophy. Mine was pretty severe > and it would happen at least once or twice a day that the catheter would > stop draining because the bladder had wrapped around the catheter. > Q > > > Sent from my iPad > > On Feb 5, 2014,

Re: [QUAD-L] AD episodes

2014-02-05 Thread Fragile
I've been having trouble with AD for the past 14 months after having a SP cath put in. The first few days after the catheter is changed, AD occurs every 10 minutes or so. Transferring in and out of my chair also sets it off. When getting dressed, any contact to the groin area also sets it off.

Re: [QUAD-L] SelectAir air mattress

2014-01-27 Thread Fragile
Are the mattresses mentioned (Selectair mattresses, tempurpedic) able to have the head and feet raised and lowered? Like on a typical hospital bed. On Sun, Jan 26, 2014 at 9:54 PM, RONALD L PRACHT wrote: > tempurpedic adjustable 4 me for the past 10 yrs.its my best > friend I never

Re: [QUAD-L] Power chair questions

2014-01-22 Thread Fragile
The only compliant I have with my m300 is the leg rest setup. The pads that support the calves pushed my feet too far forward. My feet wouldn't rest against the heel supports, so I ended up just removing the calf support pads. I wish I'd gone with swing away feet rests, it folds back and the ffo

Re: [QUAD-L] Issues with ALT/air mattress pump

2013-12-29 Thread Fragile
I've used a Genesis Deluxe 8-inch Alternating Pressure and Low Air Loss Mattress with good luck for the past few years On Sat, Dec 28, 2013 at 9:09 AM, KK Batte wrote: > I have a Mason 2000ADJ which is cheap I know. This is my 3rd pump in 4 > years. They seem to lose pump pressure over time.

Re: [QUAD-L] SP catheter

2013-12-22 Thread Fragile
since. Have you had your bladder scoped? > > All my best, > > > > Gentrie Pool > > > > > > > > > > On Dec 22, 2013, at 5:17 PM, Fragile wrote: > > Is it possible to change the size of a catheter to a smaller size without > it leaking? When I

[QUAD-L] SP catheter

2013-12-22 Thread Fragile
Is it possible to change the size of a catheter to a smaller size without it leaking? When I had my supra pupic put in about a year ago a size 20 French was used. Ever since, I've been experiencing pretty bad dysreflexia. Looking into a different kind of catheter called a "duette." Unfortunately

Re: [QUAD-L] anxiety

2013-10-17 Thread Fragile
What are the symptoms indicating a bone infection? On Thu, Oct 17, 2013 at 1:54 PM, Monty wrote: > I speak from experience of having a bone infection on my bottom! I had > this old bag of bones nurse that thought she knew everything and went > months before getting a wound clinic appointment. D

Re: [QUAD-L] alternating pressure mattress

2013-10-01 Thread Fragile
I've been using this one for a few years http://www.amazon.com/Genesis-Deluxe-Alternating-Pressure-Mattress/dp/B002VI840M/ref=sr_1_2?ie=UTF8&qid=1380652721&sr=8-2&keywords=genesis+mattress On Mon, Sep 30, 2013 at 2:45 PM, greg wrote: > The pressure sore I have right now is from my wheelchair no

Re: [QUAD-L] Work question....

2013-09-22 Thread Fragile
Danny, can you contact a local Department of Vocational Rehabilitation? If there is one near you. On Sat, Sep 21, 2013 at 4:22 AM, Danny wrote: > I’m technically a c2 incomplete asymmetrical quadriplegic and wondering if > you guys could give me ideas work I’m able to do? I can move my right a

Re: [QUAD-L] I'm 60 years old today

2013-09-15 Thread Fragile
Every time my birthday rolls around I keep turning 17. Over and over again, kind of like groundhog day. On Sat, Sep 14, 2013 at 5:48 PM, Gmail wrote: > I'm right behind you at 57 until November when I turn 58. Bobbie > > Smile Everyday > > On Sep 14, 2013, at 7:44 PM, daa...@aol.com wrote: >

[QUAD-L] hoyer lifts

2013-08-29 Thread Fragile
On the subject of Hoyer lifts... Got my first one about a week ago. I know the sling I got with it isn't going to work because I'd have to sit on it while in my chair. Before buying a sling that I think will work I decided to give it a try. When I'm in the sling, I can't turn facing the hydraul

Re: [QUAD-L] Hoyer lifts

2013-08-29 Thread Fragile
stain out of my > indoor/outdoor carpet with no padding that sits on concrete? Bobbie > > Smile Everyday > > On Aug 29, 2013, at 2:13 PM, Fragile wrote: > > Have you noticed if it's leaking any hydraulic fluid? > > > On Wed, Aug 28, 2013 at 7:08 PM, Gmail wrote

Re: [QUAD-L] Hoyer lifts

2013-08-29 Thread Fragile
Have you noticed if it's leaking any hydraulic fluid? On Wed, Aug 28, 2013 at 7:08 PM, Gmail wrote: > Oh, it most definitely is getting weak. Bobbie > > Smile Everyday > > On Aug 28, 2013, at 9:02 PM, RONALD L PRACHT > wrote: > > sounds like not enough power, motor going bad or a gear, i be

Re: [QUAD-L] New chair delivery - no show

2013-08-06 Thread Fragile
You should give them a call and politely ask what's going on. On Tue, Aug 6, 2013 at 11:05 AM, Gmail wrote: > Friday Aug. 2nd I spoke to a rep from my supplier, they said they were > coming on Monday Aug. 5th in the afternoon ... nothing, no show and now > phone call. > I don't want to get on

Re: [QUAD-L] supra pubic, size

2013-08-05 Thread Fragile
Curious what you use now, after getting rid of the SP. I had one installed last Oct, it's been causing a lot of AD. On Sun, Aug 4, 2013 at 7:32 PM, Quadius wrote: > It's a long story, but I no longer had a suprapubic. When I did have one, > however, I had problems whenever my catheter was 16 F

Re: [QUAD-L] permobil

2013-07-20 Thread Fragile
I got a permobil m300 last december, it's been good so far. Seems to be more heavy duty than previous chairs, but that also means more weight. Gel filled tires, no flats. The back cushion is comfortable. Controls for the seating system could be a little more quad friendly. On Fri, Jul 19, 201

Re: [QUAD-L] Supplements

2013-07-09 Thread Fragile
Blood tests show I have low magnesium, calcium, and iron. I've been taking supplements for a long time. Has anyone had experience with supplements or food not being absorbed into the body? On Fri, Jul 5, 2013 at 6:05 PM, Paul Jacobson wrote: > Hello, as you can see I take a pile of suppleme

Re: [QUAD-L] Getting new Quantum chair

2013-07-01 Thread Fragile
Try going backwards in something like grass or gravel. Try backing up onto a wheelchair lift. Mine has trouble with traction in reverse, hopefully they have fixed the problem. On Mon, Jul 1, 2013 at 12:48 PM, Gmail wrote: > Hi All, >I'm going to be picking up my Quantum chair and I wa

Re: [QUAD-L] the list

2013-04-29 Thread Fragile
Eddie Castle - C5, MVA, 1994, New Mexico On Mon, Apr 29, 2013 at 12:33 PM, Elizabeth Schwab wrote: > Richard (my husband) quadriplegic from advanced progressive MS, dx'd > 1984. Uses Permobil & ceiling lift to move around, I drive the chair for > him. > > -- > > *Elizabeth* >

Re: [QUAD-L] Suprapubic info

2012-11-13 Thread Fragile
Wish I had read this in early October. One month in and already have an infection, some bacteria I'd never heard of. So much for gallons of water every day. Anybody have a time machine? On Mon, Nov 12, 2012 at 8:09 PM, Don Price wrote: > > I know nobody's been waiting for my 'results,' but I'

Re: [QUAD-L] Suprapubic info

2012-11-09 Thread Fragile
our nurse now. Insist that another catheter be installed. In an emergency, >> you can also try flushing the catheter using a mild solution of distilled >> water and vinegar. >> >> ** ** >> >> Dave Krehbiel >> >> (301) 924-4530 >

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