Hi Gary - I have TM - lesion at C3-C4,C4-C5 - I saw
itonmy MRI. My Neurologist says that she believes I do not have MS
(MANY brain MRIs) but "will not rule it out" I think she is just trying to cover
her own ass. She sent me for a spinal tap because she thought I had
Hydrocephalus, and by
Hydrocephalus huh? Sounds like the same
technique as blood letting back in the dark ages. I guess they have to
rule out everything
AJ
- Original Message -
From:
Butcher, Bernie [SFS]
To: [EMAIL PROTECTED] ; TMIC List
Sent: Wednesday, July 19, 2006 6:55
basics: TM is like the first auto-immune attack of MS. In TM you rarely have
a second attack, but in MS you have multiple attacks- every six month to three
years- with slow and sure deterioration of the brain.
I had my TM attack in August 2000, and only this year did my local neuro. say
I HAVE ABOUT SIXTEEN 18 FRENCH 30 CC BULB FOLEY-TYPE CATHETERS I CANNOT USE, IF ANYONE CAN USE THEM. THEY WERE SHIPPED TO ME INSTEAD OF 16 FRENCH, AND MY URETHRA IS NOT THAT BIG TO ACCOMMODATE THAT SIZE.
IF ANYONE WANTS THEM OR KNOWS SOME ONE WHO CAN USE THEM, PLEASE REPLY OFF LIST AND I CAN
Now that's what I call a meeting! SE TX
region read below. Hell anyone for that matter. Bob has
BEER!!
Alan
- Original Message -
From:
ROBERT
COOK
To: Alan Junghans
Sent: Wednesday, July 19, 2006 10:55
AM
Subject: Re: [TMIC] FOLEY CATHETERS
IF YOU
Listening to waves on the rocks and drinking last dregs of morning coffee
(regardless of the bathrobe) sounds so relaxing. Don't hear too many waves
on the rocks here. But do see the 'big Rocky Mountains' in the distance.
Heather in Calgary
- Original Message -
From: [EMAIL
All I can see are refineries, chemical plants, and the Port of Houston.
Ah the serenity of it all..I love the smell of chemicals in the
morning.NOT!haha!!
Alan in La Porte, TX
- Original Message -
From: Heather Pieter [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; TMIC
Title: AOL Email
I have read that flying can be hard on we
TM'ers. Have any of you experienced exaggerated pain or any other
difficulties while in airplanes traveling in the wild blue
yonder?
Thinking about how to get to the Bar-B-Que!
Title: AOL Email
I flew to Brisbane Australia about 3
months after being released from the hospital and it was really tough. I
had to keep moving alot. Pacing up and down the isles was probably getting
on other's nerves, but I would get really stiff.
I guess to make a long story longer
and
Put your wings on and fly to Bob's BBQ, Jude! If it were that easy
Terry gets uncomfortable flying and has difficulties if it's a long flight. In particular; getting to the bathroom. We usually just use our true kindness along with his disabilities and approach the friendliest flight
Dunno why everybody is so bloody scared of an MS
dx. Chicken chips...!!!
It's NOT the end of the world, u noe.
???
Me missus did have two attacks, the first at T-8,
the second at C-5,6 seventeen months later.
Big effin deal. All her neuro do
was to put her on Avonex and it's
No problem on a short flight. Took the wheelchair with me. Having a
Foley helps.
Alton
Well, we've had no problems with insurance, even
tho CIGNA is a bit picky and now and then denies us till we provide them with a
letter of necessity. Par for the course, says aye.
Me missus has been on Avonex since March
1999. Can you imagine the co$t..
Right now, they want almost
My insurance is set to change at the
beginning of next year. They are changing my copay from $20 per month to
$400! I take Rebif and that is also around the $1800 rate. I am trying to
see what other options I have . Tysabri is back but my neruo does not want me to
take it until its been on
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Study shows spinal cord regeneration PHILADELPHIA, -- A U.S. scientist has demonstrated in a lab animal the successful regeneration of injured spinal nerve endings and recovery of arm movements. John Houle, professor of neurobiology and anatomy at Drexel University College of Medicine,
Title: AOL Email
This is probably more info than
most of you want but..
Jude, for those of us that have no
mobility I have found that the biggest problem is the bathroom. We are
stuck in our seat until someone decides to move us. I usually watch
my liquid intake, double up on the old
18 matches
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