Don't speak so quick. I don't know how long it will take for me to get back to
it. I messed myself up pretty bad with my back. A lot of therapy is still
needed. I'm still trying to figure out how to get to my feet so I can get
dressed in a fair amount of time. LOL.
stacy
- Original
Thank you Barbara and everyone else giving me encouragement I really
appreciate the thoughtfulness. You all are great support.
Stacy
- Original Message -
From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED]
To: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Tuesday,
Robert,
I wish you a belated Happy Birthday.
Next year will be 20 years with TM for me. I don't remember the exact
date of onset, I just remember
standing up from my seat at a movie theatre, and my left foot/leg was
numb. Nothing has been normal
since then.
FWIW, I, and many others,
Hi Folks,
Ok, I just wrote to the Oprah show. Here's the address:
http://www.oprah.com/email/reach/email_showideas.jhtml
This is what I wrote:
I have a rare medical condition called Transverse Myelitis. I, and
others with the illness, are trying to raise awareness of it. Cody
Unser,
Hello,
I hope everyone is well today. I received this from a sister of one of our
family (Roland 'Red) and I think his last name is Hiles (?), but she asked
that I ask you to please pray for him, thanks.Ella
Subj: Update on Red Date: 9/19/2007 10:37:13 PM Eastern Daylight Time
Hi Rob,
I just turned 50 last month and then had my 12th TM anniversary Sept. 1. For
several years I have not looked forward to Sept. 1, but then I'd forget
about it (one of the benefits of being middle-aged :-) ) and remember a few
days later that I've passed another milestone with TM.
*This is scary for me. For the last few months my right leg has been
contracting to where I can hardly get the knee past 90 degrees anymore,
no matter how much I massage and stretch my leg. And when I have spasms
now, the leg tries to straighten out, and it causes a lot more pain than
usual.
In a message dated 9/21/2007 4:25:31 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
For the last few months my right leg has been contracting to where I can
hardly get the knee past 90 degrees anymore. Is this a normal procedure for
someone in this condition?
Bernie,
I really
I've lived with TM so longit is normal for me. I can't remember what it feels like to not have to tell my leg to move or have to slingthemfrom one spot to another. I have to admit that I worry sometimes that as I age things get more difficult. I don't have the stamina that I used to have. My
*Hi Kevin,*
*RE; Oprah---we've been trying to get her attention also for a segment on
rare neurological diseases. Recently, she did feature a gentleman with
Transverse Myelitis. Last year, i heard that she would be doing a segement,
specifically on neurological disorders, but i haven't seen
For all of you that are Jewish and everyone else, have a Happy and Healthy
New Year. May the coming year bring us all peace and a feeling of well being
and perhaps a little more medical insight into our problems.
I, for one, have not felt normal since Labor Day weekend 2005. If
Muscles in my left thigh fight it out every night - trying to flex
and extend at the same time. Hard on the kneecap.
Alton
Hi Grace,
Was it the author with TM she had on?
I think bombardment with email is worth a shot. I think I'll start
emailing my
state politicians also. I have gotten help from some of them on other
matters.
I'd be willing to testify to Congress if it would help.
Kevin
Grace M.
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