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---BeginMessage---
ITS THAT TIME OF YEAR AGAIN
FAMILIES,FRIENDS AND LOVE
SOME ARE SO FORTUNATE
OTHERS ARE
Ms. Pam,
That is so true. I forget so many important things and it is not me...it is
because of the medications that I take. I hate it.
Prayers work,
Jude
In a message dated 12/2/2008 11:26:50 P.M. Eastern Standard Time,
[EMAIL PROTECTED] writes:
It's hard to do
Once again on House last night Transverse Myelitis was
mentionedeven though House quickly ruled it out!
Rob in New Jersey
Saw that!!!
-- Original message from "Robert Pall" [EMAIL PROTECTED]: --
Once again on "House" last night Transverse Myelitis was mentioned….even though House quickly ruled it out!
Rob in New Jersey
Darn I missed it. There was a program on Discovery Health several months
ago ( I think it was called Mystery Diagnosis) that featured a women who
could not get out of bed. After many doctors and tests , they said it was
TM, but this woman sometime later had Devics.
Patti in Wisconsin
HousePatti in Wisconsin
That was our friend Grace in the Mystery Diagnosis.
Heather in Calgary
- Original Message -
From: Patricia Cooley
To: 'Robert Pall' ; 'tmic'
Sent: Wednesday, December 03, 2008 11:57 AM
Subject: RE: [TMIC] House
Darn I missed it. There was a
I have memory loss along with cognitive dysfunction. It is better since I am
currently able to be on much lower doses of my meds. (I am not anti-meds and
will go back up when I must)
The suggestion on group about doing crossword puzzles, etc. is excellent. My
neuro told me that years ago.
In response to:
like acid on my skin
These words are excite as it really feels.
Todd in CC, TX
Todd, those were the exact words I've used, also! The 'band' around my
chest is like a piece of metal being squeezed tighter and tighter. I do have
to say the new
Patti, I have it up on YouTube. It's Grace, who posts on this site. It's in 3
parts.
http://www.youtube.com/watch?v=1QFmF6Bh1gg
http://www.youtube.com/watch?v=k1wdFSx_LOw
http://www.youtube.com/watch?v=KA-tDVzp5QI
--Forwarded Message Attachment--
Date: Wed, 3 Dec 2008 12:57:59 -0600
From:
In response to:
I have memory loss along with cognitive dysfunction. It is better since
I am currently able to be on much lower doses of my meds. (I am not anti-meds
and will go back up when I must)
The suggestion on group about doing crossword puzzles, etc. is excellent.
I saw a friend that had a light brake in his ankle wearing a adjustable ankle
stabilizer that he got from Wal-Mart for about $12.
I got one, it can be warn on the left or right ankle.
It has really helped with my drop foot around the house.
I want to be able to where all night long ( I
In response to:
I saw a friend that had a light brake in his ankle wearing a adjustable
ankle stabilizer that he got from Wal-Mart for about $12.
I got one, it can be warn on the left or right ankle.
It has really helped with my drop foot around the house.
I want to
Hi, Randy,
I've been taking Lyrica and Lexapro for quite awhile but just changed over to
Cymbalta from the Lexapro and added Tramadol for pain and I can't tell you how
much I've improved! I experimented with the timing on taking the Tramadol and
only take two a day. You can take 1-2 up to 4
*Hi Patti, *
*Marieke and Heather are right. That was me on the Discovery Channel.
Recurrent LETM (Longitudinal Extensive Transverse Myelitis) is one of the
symptoms of Devic's. It's pretty wicked. *
*Gracie*
Randy,
Like Jeanne, I take Cymbalta and tramadol which does seem to help the pain. I
have yet to find anything to completely wipe out the pain only things that make
it tolliable. I also wear a TENS machine on my back. I seem to have the
worst pain during the cold, too hot, and humidity
Yes Grace,
you're our own celebrity! we'll keep your 15 minutes of fame going
for quite a while. Hope you're doing better!
Mindy the Artist
On Dec 3, 2008, at 7:11 PM, Grace M. wrote:
Hi Patti,
Marieke and Heather are right. That was me on the Discovery
Channel. Recurrent LETM
Do you think there is a possibility of purchasing a copy of the video tape?
I missed the show and would really like to see my dear friend's television
debut.
Jude
In a message dated 12/3/2008 2:22:14 P.M. Eastern Standard Time,
[EMAIL PROTECTED] writes:
Patti in Wisconsin
I was fitted with a "custom made" AFO in 04 at the rehab hospital for drop foot... really helped but problem is I can't take anything (no socks, shoes, blankets) ect on my feet (yes winter is a real buggar let me tell you)
but so the AFO does help alot if you have insurance they will pay
Jeanne, when I was the hospital I had a band around my waist like a steel
band. After some time out of the hospital and for
many years it has been a band of pain. No medication relieved it. It was
especially bad when i laid on my back.
Ken in N.M.
Date: Wed, 3 Dec 2008 18:18:58 -0800From:
Jeanne, when I was the hospital I had a band around my waist like a steel
band. After some time out of the hospital and for
many years it has been a band of pain. No medication relieved it. It was
especially bad when i laid on my back.
Ken in N.M.
Date: Wed, 3 Dec 2008 18:18:58 -0800From:
I also wear an AFO boot (s) and they make it so much more comfortable. I
take them off at night for sleeping, but wear them most of the day, especially
when I am sitting up in bed.
Some are meant to walk in and some are not, so you ought to see a specialist
to get fitted and to
Hello all.
I wear a Dictus Splint. It is a cuff that fits around my ankle, fastened
by Velcro straps. It has a D ring and an elastic. The elastic hooks on
two hooks that are inserted into the lace holes on my shoes. It is great.
I sure notice when I don't wear it. It makes a huge
In response to:
Are you taking Tramadol and Cymbalta?
Jude
I take both in the AM along with the Lyrica 75mg. plus one Tramadol at noon.
Then at night before I go to bed I take another Lyrica, Klonazepam 1mg (for
Restless Leg Syndrome), Toprol for my heart and a baby aspirin. I can take
In response to:
Jeanne, when I was the hospital I had a band around my waist like a steel band.
After some time out of the hospital and for
many years it has been a band of pain. No medication relieved it. It was
especially bad when i laid on my back.
Ken in N.M.
It is pretty horrible,
In response to:
Hi, Jeanne,
I am currently on 300 mg a day of Lyrica. I find that I am very stiff
with pain late night and early morning, especially when turning in bed. I
think I may ask my neur. about Tramadol to add and see if that helps. Thanks
for the information.
Thank you Pam. That was absolutely beautiful. You always put others before
you, which is a precious gift. We are very blessed indeed that you are a part
of the TM family. Best wishes to you and your family for a very special
Holiday.
Love,
Linda
- Original Message -
From:
Hi Jeanne,
Awesome that you are having such relief from all the fun pain. I tried Lyrica
- it did nothing for me - again, we are all different, but I am going to ask my
doctor about the Tramadol. Yep, it would be worth adding yet another drug to
my current cocktail if it helped!
Linda
In response to:
Hi Jeanne,
Awesome that you are having such relief from all the fun pain. I tried Lyrica
- it did nothing for me - again, we are all different, but I am going to ask my
doctor about the Tramadol. Yep, it would be worth adding yet another drug to
my current cocktail if it
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