Tried the Zanaflex and didn't work well for me.? It relaxed me too much, and
when I finally got to the bathroom, I generally fell asleep on the commode.? I
do that a lot when I take something to help me sleep in addition to my regular
meds, so the Zanaflex relaxed me way too much.? I would fall
Hi BobbyJim,
Do you just take the normal dosages of both of these?? And, how close to you
turning in for the evening?
Hugs, Barbara
-Original Message-
From: bobby jim elbobber...@earthlink.net
To: jharpe...@aol.com; balmat...@aol.com; tmic-list@eskimo.com
Sent: Thu, 30 Apr 2009 7:07
Janice,
DVT's are Deep Venous Thrombosis, or blood clots.? These?have reduced?the
bloodflow going back up my leg to the heart, and the leg swells and aches.? I
get spasms in that leg, which is my left leg, and?sometimes in my right leg and
my back.? I take 2 Baclofen in the early evening when
Hi Everyone,
I have not slept more than 4 hrs straight in over 30 years!Usually manage
about 3 hrs.
Before tm,I had bladder issues,and was up several times a night (or
day,when I worked the 7p-7:30a shift).Then after tm,I had incontinence problems
while paralyzed and in rehab.That
RE: DVT, are Deep Vein Thrombosis.
Basically, CLOTS in the vein that block it and can also break away and travel
up in your blood stream. Very dangerous as it can go to your lungs or heart or
brain and this can kill you. When you get DVT they put you on blood thinners to
get rid of them and
When I first came down with TM 11+ years ago after I was in rehab for
about a week I developed a clot behind my right knee...they put me on
Comidan and another blood thinner that they injected into my
stomachnone of this helped as the clot broke and part of it went to
my lungs and caused a
Very good explanation, Marieke! Thanks for sharing! Jeanne
---Original Message---
From: marieke dufresne
Date: 5/1/2009 8:38:05 AM
To: tmic-list@eskimo.com
Subject: [TMIC] RE: tmic-digest Digest V2009 #373
RE: DVT, are Deep Vein Thrombosis.
Basically, CLOTS in the vein that
Wow Robert. You were very fortunate to have survived. I have not heard of a
Greenfield Filter. My sister-in-law has been having little mini-strokes or
TIA's. I will be seeing her soon so will mention this to her. I'm sure all in
the medical field know about this but i have not heard of it
Cheryl,
Two years prior to TM I had 'bladder repair surgery' because of incontinence
when sneezing, laughing, walking too fast etc. At least I had 2 years where I
was safe from that problem. After TM I now again have the problem which no
surgery will help. Kind of ironic I guess.
Hi Barbara,Congrats on having 3 good nights of sleep! I'll bet you feel like a
whole new person.. I really don't work so hard, I do pace myself and if it
doesn't get done it doesn't get done. I do have someone come in every other
week to help me so I'm fortunate for that. My washing machine
April was National Poetry Month and I met the challenge of writing at
least one poem a day
every day in response to prompts. Over 30 new works!!!
I am so proud of me, as since contracting TM, my writing has
suffered, as has my reading. I wrote a couple of poems about my
condition-- which I
Akua, Good for you! Poetry is a true talent.
Tami
-Original Message-
From: Akua [mailto:a...@artfarm.com]
Sent: Friday, May 01, 2009 4:41 PM
To: tmic-list@eskimo.com
Subject: [TMIC] New Month, New Efforts
April was National Poetry Month and I met the challenge of writing at
least
Thanks, Tami!
--
I too fall asleep on the stool at nite. The drugs work well for what they are
used for, but you have to be careful. I would
either be awake because of my legs or drugged and sleeping.I prefer
sleeping. So far, I wake up as I am leaning. No fallling
off yet. Janice
-
I am proud of you, too Akua!!! I will be putting you in my Prayer Pot in
hopes for things to work out for you! Jeanne
---Original Message---
From: Akua
Date: 5/1/2009 4:41:03 PM
To: tmic-list@eskimo.com
Subject: [TMIC] New Month, New Efforts
April was National Poetry Month and I met
I'll either take 2 Valerium Root pills or one Melatonin Plus just before I hit
da sack.
Earlier on I took both (all 3 pills) but taking one or the other works just as
well.
I seem to fall asleep a bit faster and my dreams are not as chaotic as
before... just as crazy, yes, but not as
Well, my urologist told me that the sphincter muscle around the bladder gets
tight with age and needs to be relaxed with meds. For men it's Flomax (and
others), for women, dunno.
I did get some exercises similar to kegels to keep my muscles working and
prevent 'spills':
1.- If possible,
Heather,
Does Baclofen make you have to go the bathroom a lot?Janice
- Original Message -
From: Pieter and Heather
To: balmat...@aol.com ; mother...@msn.com ; tmic-list@eskimo.com
Sent: Friday, May 01, 2009 12:49 AM
Subject: Re: [TMIC] wow, you work too hard
My doctor put me on Spironolactone as a diuretic -- I'd had some swelling
in my lower legs and other diuretics contain sulfa, which I am allergic to.
At first I thought, Oh, great...I go to the bathroom so often as it is,
I'll just live in there now. But it actually seemed to help. I still
This is Janice,
As usual, I have another question. How many of you have to cath? Do you
know if that is from having a
catheter in too long when in the hospital, or is it a result of paralyzation
onset taking a long time to come back? Do you still feel improvement - cathing
less,
Robert,
I had a blood clot in my lung when in the hospital. I was lucky - no pain at
all. My doc just suspected I could have one after
being in bed as long as I was and had me tested. I did take some meds, but
don't remember what it was. What they did for
you sounds terrific.
You made me laugh. Thank you for too much information. I've never had any
of those experiences. I'm glad your feeling better.
Patti - Michigan
balmat...@aol.com wrote:
Tried the Zanaflex and didn't work well for me.? It relaxed me too much, and
when I finally got to the bathroom, I
Cheryl,
What a ex-husband! Any chance you two might get back together? Obviously
something is still there!
Just curious, how come you haven't slept more than 4 hours straight in 30
years?Did you mean you just
had to go to the bathroom or woke up and couldn't sleep any longer? That
You are so funny, Trudy...we do have our own vocabulary regarding
TM...kind of like twins do.
I love you,
Jude
In a message dated 5/1/2009 4:27:49 P.M. Eastern Daylight Time,
mother...@msn.com writes:
Crazy I know. so is this damn TM .. only those of you on this list can
Janice,
No, it doesn't. I do find that the Zanaflex though has helped to relax me and
I get a better sleep. Apparently for me it relaxes the bladder and I get to
sleep. At least that is how I understand it. I actually don't mind getting up
once or twice in the night. It is the only time I
Bobby Jim
I can't do those type of exercises. I wouldn't be able to feel if I'm doing
them or not. I actually don't go that much during the day which is fine with
me.
I go more at night when I think my body relaxes and is not all tightened up
trying to keep me from falling over while
Akua,
That is great that you are back doing what you like in writing the poetry.
I am very happy that you have a new neurologist who is also close to you.
Sounds like
he will be a person who is more in tune with you and the problems with TM.
Good luck with your other endeavours too.
Janice, you're so funny. The more questions, the better. Then we all learn
something. About the cathing,
I have had TM for 7 years now and have had to cath from the beginning. I
couldn't feel that I had to go so I needed to put myself on a pee schedule
Then my doctor sent me to a
Delete from mailing list
Dee
--- On Fri, 5/1/09, tmic-digest-requ...@eskimo.com
tmic-digest-requ...@eskimo.com wrote:
From: tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #383
To: tmic-dig...@eskimo.com
Date: Friday, May 1, 2009, 8:32 PM
I guess I really don't need Zanaflex - I fall asleep instantly and stay asleep
until I have to go to the bathroom (sometimes too
late), sometimes not. I have been given a 3' by 3' quilted pad that
absolutely keeps my sheet dry. I was told it was very
expensive to buy and works great. I
In my case, I got the first one in rehab when my Heparin dosage wasn't strong
enough and I wasn't moving at all.? Other than my PT, or if I moved my legs by
picking them up and putting them where I wanted them, or if?the nurses did
it?to do a cath.? I kept telling the doctor/Physiatrist and
Barbara,
Haven't tried a diuretic, but I still cath twice a day so I know I am not
retaining any urine.Do you cath?
Janice
- Original Message -
From: jharpe...@aol.com
To: tmic-list@eskimo.com
Sent: Friday, May 01, 2009 7:48 PM
Subject: [TMIC] Spironolactone -- diuretics
Congratulations Akua! What a huge accomplishment. I can relate to the
neurologist challenges, and am very happy that you found a good one. It makes
all the difference in the world.
hugs,
Linda (Eagle, ID)
- Original Message -
From: Akuamailto:a...@artfarm.com
To:
Linda,
I know what you mean about shutting your eyes in the shower. It was well after
the 2 yr mark that one day I got out of the shower and it hit me. I had shut
my eyes to wash my hair and I didn't have to touch the wall. From time to time
I still just touch the shower wall or glass door
No, I don't cath. I haven't really needed to since the first few days of
TM.
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/)
In a message dated 5/1/2009 11:42:41 P.M. Eastern Daylight Time,
jan...@centurytel.net writes:
Barbara,
Haven't tried a diuretic,
thanks Linda, and the neurologist is a she!
Akua
Congratulations Akua! What a huge accomplishment. I can relate to
the neurologist challenges, and am very happy that you found a good
one. It makes all the difference in the world.
hugs,
Linda (Eagle, ID)
--
--
Hi Jude,
I guess that this is just one of my experiences that could be considered one of
The Good, Bad and Ugly of experiences of TM.? Some of these experiences are
not very funny when they happen to you.? They can be very embarrassing too, but
then when you look back, they aren't so
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