Dan,
Bless you for your kind words.
May you find the strength to get through this difficult time.
You and your family remain in my thoughts and prayers.
Kevin
montzma...@aol.com wrote:
oh kevin. i can not think of the words to speak to you.
that's terrible.
may god bless you to find
When TM hit me, I kept working until I no longer could. In fact I pushed
myself even harder than before..probably a mistake. My boss said once,
what's with all the sick, never asking what was my DX. He subsequently
found out what sick was when he lost his only two sons, one to cancer
and the
Akua,
I am sorry that you are going through these difficulties.
I had to get my state involved to get a wheelchair curb cut
put in front of my condo complex. The building resents me
because it cost money, even though they were breaking the law.
Kevin
Akua wrote:
My relationships, most
TM HIT ME ON OUR 45TH WEDDING ANNIVERSARY. THAT IS A DATE NEIGHER OF US
WILL FORGET. MY HUSBAND WHO NEVER DID ANY COOKING, LAUNDRY, ETC., HAD TO
TAKE OVER ALL THE HOUSE WORK AND THE OUTSIDE WORK. WHEN I FIRST CAME HOME
FROM THE HOPITAL AFTER 6 WEEKS, I WAS FORTUNATE THAT MY SISTER, NIECES, AND
Jim noticed the Banding around his upper stomach even before he was
diagnosed, and mentioned it to me several times. His discription was a tight
belt. I was sitting in his room at Henry Ford hosp. and when the head neuro
and several interns were discussing him out in the hall, I picked up on
Frank does so much..he makes certain I don't overdo, he's kinda like my
conscience, cause I think I can do more than I'm really capable
of.Patti,
you mention your walker with a seatI use mine for carrying stuff, i.e.
laundry,
dishes etc, Frank says it's been worth much
Dan,
I thank you so much for being encouraging to me. It is exactly what Pam
would have done. She always had an encouraging word for me. We would talk
on the phone, and she would uplift my spirits. It means so much to me to
have you do the same thing while still mourning her.
JAN
I USE MINE TO CARRY ALSO. BUT, I ALSO HAVE A TRAY THAT I CAN PUT ON MY REGULAR
WALKER TO CARRY STUFF. IN THE BEGINNING, I HAD TO SIT ON THE SEAT IF I WANTED
TO DO ANY COOKING. NOW SINCE I AM ABLE TO WALK WITHOUT A WALKER OR CANE (I
SHOULD SAY WADDLE LIKE A DUCK) I DON’T USE THE SEAT
Akua,
The laws regarding handicapped parking don't go far enough imo, and
there should be state inspections of buidings like mine, (a high-rise
condo complex),
to make sure they are meeting code. There is exactly ONE handicapped
parking
space on my street for approx. 200 condominiums. I
Ok not the same issue but here one of my gripes
I am in a wheel chair on a business trip in LA, the hotel puts me on the 16th floor in a ‘wheel char accessible room” ok now tell me how am I to get to the ground floor if something were to happen? Can’t use the elevator, hum am I supposed
Kim, what would happen, if anything, if we all bombarded the senator in your
state complaining about that hotel and the probable
others that treat handicapped people the same way? That is an awful position
to put anyone in - where they do not feel safe.
Janice
- Original Message -
To date hotel has yet to make any kind of
change in wheel chair accessible rooms I wrote
a letter to the corporate office but never heard
back from them.
This sounds like a good one for the Disablity
Coalition or Reeves Foundation to take on...
Ok not the same issue but here one of my
My relationship with my husband is a cross between you two, Jan and Patti.
We celebrated our 39th wedding anniversary while
I was still in the hospital and now it is 41 years. He is truly my hero.
Life-changing illnesses really seem to be able to make or break a
marriage/relationship
Todd,
Sounds like you are in a strong relationship. It will help to only make you
better to withstand TM's damages.
Janice
- Original Message -
From: Patricia Cooley
To: 'Jan Hargrove' ; 'transverse myelitis'
Sent: Saturday, June 13, 2009 2:04 PM
Subject: RE: [TMIC]
You are right. Those of us who have not had to fight society and family
are extremely fortunate. Couldn't help but notice
that the people causing you two so much grief ended up with worse problems.
Wonder where that came from?!Janice
- Original Message -
From: Kevin Wolfthal
Karma, Karma, Karma gets um back!
-- Original message from "Janice" jan...@centurytel.net: -- You are right. Those of us who have not had to fight society and family are extremely fortunate. Couldn't help but notice that the people causing you two so much grief
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