I went last week to a new Neuro recommended to me by Dr. Kerr. Besides
having me take new MRI's including the brain (never had this one before)
he is taking me off Cymbalta and starting me up on Neurontin ( 100 mg
per day). He saw no reason to be taking Cymbalta as I am already taking
Lyrica and
NeurontinRobert
That seems a bit odd.
Lyrica and Neurontin are about the same. Usually when you are taken off
Neurontin you are put on Lyrica (which has only been on the market for about
the last 3 years).
Patti in Michigan takes Lyrica and Cymbalta. They work well for her. I know
she
Heather...I am just so confused.I am starting to believe that the
best combinatuion I have used up to now has been Lyrica and 4-
Aminopyridine (now AMPYRA). Dr Kerr was going to put me back on these 2
but he first wanted to see how Cymbalta instead of Aminopyridine agreed
with me...to cut to
Robert...I was suprised as well. I am one of those that switched from Neurontin
to Lyrica. It is my understanding that Lyrica is a drug that was developed just
for nerve pain. Neurontin is a drug de veloped for seizures that also happens
to work well for nerve pain. I still have pain so I will
I tried the cymbalta with the Lyrica but I couldn't tolerate the cymbalta. Have
not tried the Ampra...Cody in Austin
Sent from my BlackBerry® wireless device
-Original Message-
From: Robert Pall rp...@neillsupply.com
Date: Mon, 17 May 2010 10:24:37
To: Pieter and
NeurontinRobert,
I can see why you would be confused too. Is he having you take Lyrica AND the
Neurontin together? Hmmm
I am not familiar with the AMPYRA.
I know that some people have had problems with the side effects of the Cymbalta
too.
Keep us all posted on how things go with you.
Is
Jill, I have taken neurontin for over 3 years and have never had tongue
numbness.Janice
--
From: Kevin Wolfthal wolft...@optonline.net
Sent: Sunday, May 16, 2010 10:07 PM
To: Jill Posner posnerj...@yahoo.com; tmic-list@eskimo.com
Subject: Re:
NeurontinI have been on neurontin for over 3 years and have no side effects.
Switched to Lyrica when it came out, and I too became swollen and miserable.
Went right off
of that! I do not have a severe banding, so not sure if meds take care of
it or I was just lucky.
I am going to talk to my doc about taking Ampyra. Are any of you on it?
If so, what do you think of it? I have a friend with MS who is starting
to take it.
Janice
Good luck and don't end up too worn out.
Janice
From: Patricia Cooley
Sent: Sunday, May 16, 2010 10:09 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Moving
Hi Everyone:
This has been in the works for many months, but next Saturday, May 22nd, we are
moving to Waupaca in Central Wisconsin.
Hi Rob,
I was on neurontin when I got out of rehab in 1995. It helped relieve the
banding and nerve pain. However,it was still a name brand,not generic,so it
was too expensive for me to continue. When it became a generic,I tried it
again,but it just made my legs weak. I fell several times
Rob,
I am taking 300mg of Neurontin four times a day. I am allright more or less in
the mornings but exhausted by about 4 PM. I have a full time job but work from
home. It never takes the pain away completely but when I tried to lower the
dose to 200 mg 4 times a day, I couldn't bear the
Hi Rob.
I couldn't take neurontin. I am on Lyrica, have been for four years now.
75 mg a.m. and 150 mg p.m. It has virtually stopped the banding, and the
burning in the feet. I am actually going to lower the dosage to 75 twice a
day. However, that has been delayed because of my inability
Ampyra is the same drug that I was on...that drug was a compound drug
called 4-Amenopyridine which is a potassium channel blockerthe
Ampyra is the same drug but it is not componded and you can get it thru
any pharmacy. It should help the banding feeling as well as the pins
and needles. After
Thank all of you for your help with Neurontin...last question...what
dosages are you all taking
Finally I welcome the fact that New Jersey has adopted Medical
Marijuanaon a personal level no drug has ever taken away the
discomfort of TM more than Pot. I woukldn't work,or drive on itbut
Thank youI need to check this out for Missouri! I take 1800 mgs of
neurontin - was taking 2100, but was sleeping too hard at nite. I take
1 with breakfast, 2 at
lunch, and 2 at dinner. Then at 8:30, I take 2 baclofen for leg spasms when
I go to bed. Works pretty well.
Hi All
I am not sure about the States, but here in BC the Medical Marijuana that I
was on was in pill form. Did nothing. Cranked up the dose, did nothing.
Cost me a darn pretty penny too - $700.00 for a one month supply. I would
have been better off to talk to my son's friends, paid my
Janice:
I assume you are referring to Marinol...which I was on for a
couple of yearsnever made me highalways made me hungry...never
made my body feel better!
Rob in New Jersey
PS: And I too tried increasing the dosage big time and it still just
made me hungry!
Marinol didn't work,
Then I travelled to Montreal, to the McGill University Health Center within the
Montreal General Hospital to Dr. Ware on the 19th floor where he tried me on
sativex.
One spray under my tongue decreased my pain by 75% within ten minutes. SATIVEX
lasts longer than
You don't have to stick with this Dr. just because Dr. Kerr
recommended him. the advantage of taking Lyrica over Neurontin if
you don't have side effects is that it is more effective at vastly
smaller dosages : 75 mg rather than 300 mg several times a day.
I have taken the combination of
Today, May 17th, makes 21 years since I became a ventilator dependent
quadriplegic due to acute transverse myelitis. I was 21 when it happened
so it has now been half my life. I woke up that morning with a sore
shoulder. Thinking I just slept in a wrong position I went to work. After
about 30
Hi Jim,
If you don't mind, I'm going to post this at the NMO site also. We have a
lot of TMA members there and I'm sure that there are some who would
definitely like to donate.
Yer a peach!
Gracie
I was on cesamet.
Janet
From: fr...@franksheldon.com [mailto:fr...@franksheldon.com]
Sent: May 17, 2010 1:07 PM
To: Janet Dunn; 'Janice Nichols'; 'Robert Pall'; tmic-l...@eskimo.net
Subject: Re: [TMIC]I tried Marinol too
Marinol didn't work,
Then I travelled to Montreal,
My pins and needles feeling has settled down quite a bit.Don't know if
that is because of neurontin since the beginning of TM or it just faded with
time.
I am curious about the pro's and con's with Ampyra.
Janice
From: Robert Pall
Sent: Monday, May 17, 2010 12:08 PM
To: Janice Nichols ;
Thank youIt is really strange the way meds affect us all differently. What
works for one, won't work for another. All we can do is try.
Janice
From: Janet Dunn
Sent: Monday, May 17, 2010 1:46 PM
To: 'Janice Nichols' ; 'Robert Pall' ; tmic-l...@eskimo.net
Subject: RE: [TMIC] Thank
How expensive was it? Janice
From: fr...@franksheldon.com
Sent: Monday, May 17, 2010 3:07 PM
To: Janet Dunn ; 'Janice Nichols' ; 'Robert Pall' ; tmic-l...@eskimo.net
Subject: Re: [TMIC]I tried Marinol too
Marinol didn't work,
Then I travelled to Montreal, to the McGill
What is cesamet and what does it do for you?
Janice
From: Janet Dunn
Sent: Monday, May 17, 2010 9:52 PM
To: fr...@franksheldon.com ; 'Robert Pall' ; tmic-l...@eskimo.net
Subject: RE: [TMIC]I tried Marinol too
I was on cesamet.
Janet
From: fr...@franksheldon.com
I did not get many replies to my asking where people were living when TM struck
them. Actually, it was really scattered. Sorry.
Janice
Cesamet was the medical marijuana that I was on - and it did nothing.
Except cost me money.
Janet
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: May 17, 2010 8:55 PM
To: Janet Dunn; fr...@franksheldon.com; 'Robert Pall'; tmic-l...@eskimo.net
Subject: Re: [TMIC]I tried Marinol
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