Re: [TMIC] tmic-list group

2015-07-04 Thread Pat Voorheis
Hi Jim, There was a little bit of activity a few months ago between a few of us. I am on Face Book also. It was good to see your name today, because I was thinking about you this morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM and thank you for its availability.

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

2014-03-12 Thread Pat Voorheis
James, Please tell me why you want to reduce to 50mg twice daily after consulting with Sandy. I was taking 100mg 3 times daily for about a year, but reduced to twice daily due to cost, not due to medical reasons. Is there something about Lyrica Sandy made you aware of that I should be concerne

Re: [TMIC] SSDI - Doc

2014-01-04 Thread Pat Voorheis
The link Barbara gave is the one I was thinking of. I even had a copy of it in my 5 to 10 year old notebook. The highlighted info is what gave me hope when I applied. It also has a statement about two extremities being impaired. Patti > On Jan 4, 2014, at 6:06 PM, "Barbara H." wrote: > >

Re: [TMIC] SSDI - Doc

2014-01-04 Thread Pat Voorheis
Was It available on Jim Lubin's site? I read the FBk post of the lady who can't get qualified and didn't feel that I had anything to add. It seems like there was something about having two limbs that are effected. I'll look too, however, I know you have so better chance of finding it than I

Re: [TMIC] Re: Getting a flu shot

2013-10-05 Thread Pat Voorheis
Dalton, I hope this is a short-term problem for you and the pain subsides soon. Thanks for the info and keep us informed. I was planning on getting one this year, because I had no adverse reaction to the shot last year. It was my first shot since TM. We had five deaths in our area last year a

Re: [TMIC] A 'sore' subject

2013-08-12 Thread Pat Voorheis
Nikki, I also take Baclofen for spasms. I take 3 or 4 daily (10mg each). In the state we have an over the counter cream/ ointment called Neosporin. The tube I have states +pain relief ointment. The print is too small to read, however, you can find it on line. It is a rather small mount for th

Re: [TMIC] Baclofin Pump

2013-07-11 Thread Pat Voorheis
Rob, I'm sorry you had the headache after your procedure. I remember the four days of "migraines" I had after my lumbar puncture. I don't get headaches and wonder how people survive who have them regularly. Please keep us posted. I think I would have to pay out of pocket, but not having mus

Re: [TMIC] Friends

2013-07-11 Thread Pat Voorheis
I also answer "fine" when asked how I am and I gave up explaining much about TM. I've told people it's a interesting illness that's impossible to understand, I have said that I'm in constant pain that I take meds for, but I try hard not to dwell on it. I might say there is a lot of info that th

Re: [TMIC] Baclofin Pump

2013-06-23 Thread Pat Voorheis
Rob, I hope the use of the pump is perfect for you and that the correct dosage is found fast. Thanks for the updates. I'm praying that you have complete success with all aspects of the surgery. Patti - Michigan On Jun 19, 2013, at 9:28 PM, Robert Pall wrote: > Well I am finally going to do

Re: [TMIC] Re: Transverse Myelitis

2013-05-23 Thread Pat Voorheis
Hi Amy, Thanks for sharing your TM story. It's stories like yours that make me furious with how TM so drastically changes lives. I like your last line. You rock! Patti - Michigan On May 23, 2013, at 8:40 PM, amy shultz wrote: > My TM story began in March of 96. I was 19 yrs old and had grad

Re: [TMIC] Fwd: Quote of the Day Judith

2013-05-17 Thread Pat Voorheis
It might be true from the writers perspective, however, I didn't find it to be inspiring? Patti. - Michigan On May 16, 2013, at 2:13 PM, "Janice Nichols" wrote: > Well said! > Janice > > > From: heyjude48...@aol.com > Sent: Thursday, May 16, 2013 10:37 AM > To: tmic-list@eskimo.com >

Re: [TMIC] CONCUSSION

2013-05-12 Thread Pat Voorheis
My hair stylist h vertigo due these "crystals" getting jarred during a car accident. She also had hers manipulated back into place and has returned twice in four years for the procedure. Patti On May 11, 2013, at 3:00 PM, "Janice Nichols" wrote: > Sure, it can happen again.But, I am on t

Re: [TMIC] Re: Our Buddy Lists

2013-05-09 Thread Pat Voorheis
Yes, AOL has a buddy list. Two people agree to be buddies so you can live chat back and forth when you are both on line. It was quite the rage when it was first implemented. However, it can be time consuming when you are trying to read and answer emails and are interrupted by someone who want

Re: [TMIC] Fw: Juggler This is hilarious!!!!

2013-05-04 Thread Pat Voorheis
Janice, That was great. My husband is a huge Reagan fan and we just watched it together. Patti - Michigan On May 4, 2013, at 10:52 AM, "Janice Nichols" wrote: > Guys, I really enjoyed this and hope you will too.A good laugh is always > good for us. > Janice > > > > This is abou

Re: [TMIC] Fw: Juggler This is hilarious!!!!

2013-05-04 Thread Pat Voorheis
Absolutely! This is another of several that you and I share. My husband's coughs or sneezes and even his goose-honking nose-blowing cause the electrical shock pain. I have never told him this. My body also responds with a giant jumping reflex that he has never mentioned. I think my reflex is

Re: [TMIC] Re: Attention -The TMIC List

2013-05-02 Thread Pat Voorheis
Yes, I read the emails Patti - Michigan On Apr 30, 2013, at 9:38 PM, heyjude48...@aol.com wrote: > Hi Everyone, > > How are you doing tonight? It's Jude Hoops and I am writing to let you know > that eskimo.com may be having a problem with our emails. It seems that some > of the people wh

Re: [TMIC] Shingles vaccination

2013-04-30 Thread Pat Voorheis
Please don't be a guinea pig for any of our sakes. I'm sure one doctor will say, of course, you should get the shingles shot. Another will say, absolutely not. I always ask my doctors if they and their families have had the vaccines. I spent nine years fearing the flu shot, but had one this ye

Re: [TMIC] Hello

2013-04-04 Thread Pat Voorheis
a complex person. I hope > you find some meds that help. > > Roger in Kennewick, WA > > From: Pat Voorheis > To: Janice Nichols > Cc: dee jay ; "" > > Sent: Wednesday, April 3, 2013 5:34 PM > Subject: Re: [TMIC] Hello > > Hi Anne, >

Re: [TMIC] Hello

2013-04-03 Thread Pat Voorheis
Hi Anne, I'm sorry to learn that you are experiencing difficulties after so many years away from TM's clutches. I take 10mg Baclofen every eight hours that almost stops the banding. The banding is around my mid-section - like a corset. I also take Lyrica which has some muscle relaxing effects

Re: [TMIC] Re: Lyrica, Psychiatric Evaluations

2013-02-16 Thread Pat Voorheis
I have been taking Lyrica for about four years for the burning/freezing pain, pins & needles and ice-pick stabbing pain. It takes the pin, needles, and stabbing away and makes the burning tolerable, but doesn't remove it. I take it every eight hours and know if I forgot it for some stupid reason

Re: [TMIC] 2 year anniversary

2013-02-15 Thread Pat Voorheis
Nikki It does get easier. The first two years can be the hardest, because you are still learning about TM and waiting to see how much recovery you will have. The more you learn, the more you will feel in control. The more you reach out to others you learn you're not alone in overcoming what TM d

Re: [TMIC] Traveling with TM

2013-01-28 Thread Pat Voorheis
Still > with some reservations, really looking forward to it. > Janice > > > -----Original Message- From: Pat Voorheis > Sent: Monday, January 28, 2013 7:53 AM > To: tmic > Subject: [TMIC] Traveling with TM > > My husband and I have taken several trips since TM hit me nin

[TMIC] Traveling with TM

2013-01-28 Thread Pat Voorheis
My husband and I have taken several trips since TM hit me nine years ago. Traveling started after I read a proverb. "Hope deferred makes the heart sick." I wrote in the margin of my Bible, It's time to say yes to Jim's Pacific Ocean Highway 101 trip. The whole idea petrified me and the bigge

Re: [TMIC] Facebook

2013-01-25 Thread Pat Voorheis
It could be the medications. I blamed mine on the steroids. I thought they fried my brain. Although I was an avid reader before TM, it was four months before I could pick up a book. Like Cindy I had to reread over and over to comprehend the story. Reading TM Forum, writing to tmic, working pu

Re: [TMIC] Facebook

2013-01-25 Thread Pat Voorheis
Ahhh Dalton, now I feel young as I like FB. Although, it's the pictures of my grandchildren and all the positive comments that I like the most! Not too old for FB. Patti -Michigan On Jan 23, 2013, at 11:09 AM, Dalton Garis wrote: > For my situation, I don't need Facebook; > > But i see

Re: [TMIC] Re: Subscribe

2013-01-25 Thread Pat Voorheis
I have the burning and/or freezing problem so sometimes I play mind games. When my feet burn so bad I want to cry, die, say good-bye to them, I try to convince myself they're freezing . When they are freezing, I ask myself if they are really burning. Either way they hurt, but it gives me a fee

[TMIC] Pain management doctor

2013-01-18 Thread Pat Voorheis
Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Pat Voorheis
Yes, the torso banding is usually control. Sent from my iPad On Jan 16, 2013, at 9:38 PM, heyjude48...@aol.com wrote: > So is your banding gone? > > In a message dated 1/16/2013 8:41:50 P.M. Eastern Standard Time, > pjv1...@chartermi.net writes: > I know that Baclofen helps with my banding

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Pat Voorheis
I know that Baclofen helps with my banding. I take 10mg 3 x daily. My neuro wrote the rx for 4x in case I want to take an extra one. I also take 100mg Lyrica 3x daily. An RN on this site told me Lyrica also helps with banding so I guess I'm getting double the help. Patti V - Michigan Sent

Re: [TMIC] need for a neuroloist

2013-01-16 Thread Pat Voorheis
The description you gave sounds familiar. I didn't and could not have gone back to my banking job. My biggest anxiety in the early days of TM was my inability to think. It took four months before i could read And longer to comprehend. I got stuck or stumbled on words when trying to talk and lit