Hi Regina,
NMO is often referred to as Devic's Disease. It is extremely rare, though
in the last years I have heard that the number of documented cases has
climbed to around 1000-1500 here in the States. LETM lesions are : Long
extensive transverse myelitis, usually covering at least three se
February 15, 2006 7:01 PM
Subject: Re: Re: [TMIC] TM or MS
I had my first TM attack in 98 and my second in 01. All my
lesions are in the cord. My second opinion doctor gave me the DX of
recurrent TM and probable RR MS. Those two little letters M and S made me
eligible for MS drugs. I have
et along well.
Take care,
Sandy in Wisconsin where snow is promised but rarely delivered!
- Original Message -
From: <[EMAIL PROTECTED]>
To: "Sue Zieke" <[EMAIL PROTECTED]>; <[EMAIL PROTECTED]>
Cc:
Sent: Wednesday, February 15, 2006 6:44 PM
Subject: Re:
My injury was at the C7-C11 on the
spine. Thanks so much for getting back to me and I will let you know what the
next neurologist has to say.
Marie
>From: Sue Zieke <[EMAIL PROTECTED]>
>Date: Wed Feb 15 10:27:39 CST 2006
>To: [EMAIL PROTECTED]
>Cc: tmic-list@eskimo.com
>Subject
;
Cc:
Sent: Wednesday, February 15, 2006 9:27 AM
Subject: Re: [TMIC] TM or MS
marie, your story certainly struck a chord with me. i was dx with tm in
may 2000. one lesion c2-c6. none in my brain. sept 2005 my neuro repeated
brain mri, i have 10 plus lesions in my brain, she tells me absolutely i
marie, your story certainly struck a chord with me. i was dx with tm in
may 2000. one lesion c2-c6. none in my brain. sept 2005 my neuro
repeated brain mri, i have 10 plus lesions in my brain, she tells me
absolutely i now have ms. then 2 weeks later as we talk again she
changes her tune afte
ng to your Johns Hopkins diagnosis, one can have brain lesions WITHOUT MS. ??Gary in Michigan- Original Message - From: <[EMAIL PROTECTED]>To: Sent: Sunday, February 12, 2006 11:50 PMSubject: [Re: [TMIC] TM or MS]> From: [EMAIL PROTECTED]> Date: Sun Feb 12 22:34:43 CST 2006>
> Date: 2/13/2006 10:57:01 PM
> Subject: Re: [TMIC] TM or MS]
>
>
> Marie,
> I guess this is something new to me. I was under the impression that
with
> TM the brain had no lesions, just the spinal cord. But if you had
lesions
> on the brain while at Johns Hopkins
Johns
Hopkins diagnosis, one can have brain lesions WITHOUT MS. ??
Gary in Michigan
- Original Message -
From: <[EMAIL PROTECTED]>
To:
Sent: Sunday, February 12, 2006 11:50 PM
Subject: [Re: [TMIC] TM or MS]
From: [EMAIL PROTECTED]
Date: Sun Feb 12 22:34:43 CST 2006
To: Deborah
Marie,
When I was diagnosed with TM almost two years ago, the final test was a
brain MRI (they had already done an MRI on my spinal area and found the
lesion). So, at first they said it was TM, and THEN said I would have the
brain MRI because I could have MS. The brain MRI showed no lesions,
From: [EMAIL PROTECTED]
Date: Sun Feb 12 22:34:43 CST 2006
To: Deborah Nord Capen <[EMAIL PROTECTED]>
Subject: Re: Re: [TMIC] TM or MS
Yes, the lesions were there and I have had no real changes in four years?? Dr.
Pardo saw me four years ago and his diagnosis was TM.
Thanks for your reply!
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