Re: [TMIC] HELP- I don't know how to get off this website

2011-05-29 Thread john snodgrass
sorry about all of this BJ,,sometimes the pills talk more than normal! my bad! --- On Sat, 5/28/11, bobberino wrote: From: bobberino Subject: Re: [TMIC] HELP- I don't know how to get off this website To: fr...@franksheldon.com, "Jill Posner" Cc: tmic-list@eskimo.com Date: S

Re: [TMIC] HELP- I don't know how to get off this website

2011-05-29 Thread Alle111
Hello Jude, It's Ella (Alle) and I'm not the one wanting to leave, someone else asked and I gave them the link.

Re: [TMIC] HELP- I don't know how to get off this website

2011-05-29 Thread bobberino
It ain't no secret. y'all just need to know how to word your request and where to post it. BobbyJim - Original Message - From: fr...@franksheldon.com To: Jill Posner Cc: tmic-list@eskimo.com Sent: Saturday, May 28, 2011 3:46 PM Subject: [TMIC] HELP- I don't know how to

Re: [TMIC] HELP- I don't know how to get off this website

2011-05-28 Thread Alle111
Go on here and click on the unsubscribe link _Transverse Myelitis Internet Club_ (http://www.myelitis.org/tmic/)

Re: [TMIC] Help .....Elizabeth Clark

2011-04-04 Thread bobby jim
nt: Monday, April 04, 2011 15:21 Subject: Re: [TMIC] Help .Elizabeth Clark This is bullshit--my wife and I were contacted with a similar scam that our friend was roobed and needed money and after investigation we found our friend well and happy. Don't fall for it. On Mon, Apr

Re: [TMIC] Help .....Elizabeth Clark

2011-04-04 Thread James Berg
This is bullshit--my wife and I were contacted with a similar scam that our friend was roobed and needed money and after investigation we found our friend well and happy. Don't fall for it. On Mon, Apr 4, 2011 at 6:29 AM, wrote: > > I'm writing this with tears in my eyes,my family and I came ov

Re: [TMIC] help

2011-02-27 Thread Janice Nichols
Sent: Saturday, February 26, 2011 9:44 AM To: balmat...@aol.com ; tmic-list@eskimo.com Subject: Re: [TMIC] help Hi Barb: It has been a crazy couple of months...at the end of january my company closed so i am currently on unemploymentnot the end of the world...i am 63 so I am not far from

Re: [TMIC] help

2011-02-26 Thread robthecfo
-Original Message- From: Barbara Alma To: robthecfo Sent: Fri, Feb 25, 2011 7:33 pm Subject: Re: [TMIC] help Hi Rob, Sorry to hear about the job, and the company. It may be a good time to just enjoy getting unemployment for a little bit and take a vacation for yourself, whether it&#

Re: [TMIC] help

2011-02-23 Thread Lori Biehler
I think you have to unsubscribe and then subscribe under the new email. Lori From: robthe...@aol.com Sent: Wednesday, February 23, 2011 1:53 PM To: tmic-list@eskimo.com Subject: [TMIC] help I no longer have access to my work email which was "rp...@neillsupply.com. I just subscribed using my hom

Re: [TMIC] Help getting in touch with Todd Tarno

2010-01-01 Thread Janice Nichols
The email address I have for him is:todd+m2...@sbcglobal.net Hope this is right and it helps.It is unusual for him not to respond, but I have not seen him replying for a while.janice From: kevin weilacher Sent: Wednesday, December 30, 2009

Re: [TMIC] Help getting in touch with Todd Tarno

2009-12-31 Thread Barbara H.
I don't have any other addresses for him. It's possible he's away for the holidays. Barbara H. http://barabarah.wordpress.com On Wed, Dec 30, 2009 at 10:02 PM, kevin weilacher wrote: > Can I get the groups assistance getting Todd Tarno to get in touch with me. > This is concerning the raffle tha

Re: [TMIC] Help, Advise please

2009-01-21 Thread jrushton
: [TMIC] Help, Advise please Better Safe Than Sorry!! I would go to the ER. Just my opinion. Subject: [TMIC] Help, Advise please Have had TM since 04 this is a first and need advise had relapse last april 08.. legs were more numb than ususal today legs are more numb but arms have little

Re: [TMIC] Help, Advise please

2009-01-21 Thread Jenna
From: HEATHER FRASER To: kimr1...@bellsouth.net Cc: TMIC Sent: Wednesday, January 21, 2009 9:21:22 PM Subject: Re: [TMIC] Help, Advise please Kim, I think you should be seeing your neuro right away. Thinking of you, Heather in Calgary - Original

Re: [TMIC] Help, Advise please

2009-01-21 Thread HEATHER FRASER
Kim, I think you should be seeing your neuro right away. Thinking of you, Heather in Calgary - Original Message - From: kimr1...@bellsouth.net Date: Wednesday, January 21, 2009 4:40 pm Subject: [TMIC] Help, Advise please To: TMIC > Have had TM since 04 this is a first and need advise >

Re: [TMIC] Help, Advise please

2009-01-21 Thread Catherine
Better Safe Than Sorry!! I would go to the ER. Just my opinion. Subject: [TMIC] Help, Advise please Have had TM since 04 this is a first and need advise had relapse last april 08.. legs were more numb than ususal today legs are more numb but arms have little to no strenght, hand hurt..

Re: [TMIC] Help

2008-11-18 Thread jrushton
Did you get this, Ann?? Jeanne in Dayton

Re: [TMIC] help plz...need a educated Neuro

2008-04-11 Thread Grace M.
*Sal,* ** *Honey, I'll start looking for you right now. Not to worry, I'm very good at this.* ** *Chin up!* *Gracie*

Re: [TMIC] Help

2007-05-09 Thread natalie mizenko
Tonya, Thanks for the info. Fort Smith is like 3 hrs. from us. Perhaps my back surgeon I am soon going to will help me find a good neurologist or other pain dr. I think I need a pain dr. because I am on fentanyl patches and I don't think neuros. can prescribe them regularly; but not for sur

Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES & A QUESTION

2006-10-13 Thread ROSEOFRENO
Mornin' Jude ~    Thank you honey for letting me know your experience with the Lyrica. I started keeping a file on Lyrica emails and they are running about 80% for and 20% against it.. I'm leaning toward trying it my banding has been so much worse lately.  It used to just come and go

Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES & A QUESTION

2006-10-13 Thread HeyJude48506
Title: AOL Email Hey Lynn,   Sorry to make this "public" but when I send  you email now, it comes back as "no such address/member.'   What's going on?  Let me know, OK?  I cannot go too long without you!   Love Ya,

Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES & A QUESTION

2006-10-13 Thread HeyJude48506
Title: AOL Email Hi Lynn, my dear friend...   When I first switched to Lyrica it took me about three times before I was able to make it through the whole regime of titering off of the Neurontin while getting onto the Lyrica.  The pain wa

Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES & A QUESTION

2006-10-11 Thread Todd Tarno
I'm glad I changed to the Lyrica.  It was so hard to remember to take the Neurontin 3 times a day.  The 2nd was the hardest to remember, but then I would start feeling the pain and know that I had forgotten my 2nd dose.  I only take 75 mg Lyrica twice a day and it is wonderful. Todd in CC, TX 

Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES & A QUESTION

2006-10-11 Thread ROSEOFRENO
Hi Jude ~    Please don't feel badlyI think we all feel "twitchy" at times and sometimes wish we could take back something we said.  I know I have...! We all just need to forgive each otherand ourselveson those days. I so hope things will improve for you Jude.. you are a good

Re: [TMIC] hELP WITH UNSUBSCRIBING

2006-10-10 Thread EnMChavez
Very well said Bob.  Thank you so much! Michelle - (NEWBIE) Bothell, WA TM2000 to MS2006

Re: [TMIC] HELP WITH UNSUBSCRIBING

2006-10-10 Thread HeyJude48506
Title: AOL Email Lynn,   You are so kind.  I have made myself feel like an ass, again.  I was feeling "twitchy" and took it out on "unsubs."   Thanks for doing a job that no one thanks you for.   Peace, Jude

Re: [TMIC] hELP WITH UNSUBSCRIBING

2006-10-10 Thread [EMAIL PROTECTED]
OOPS > My second most favorite site dealing with immuno- diseases is Brain Talk at > Harvard Neurology, Multiple Sclerosis. BrainTalk does NOT have a group for T.M., they try to welcome people but again it'x just sort of left up to the group. F

Re: [TMIC] hELP WITH UNSUBSCRIBING

2006-10-10 Thread [EMAIL PROTECTED]
Bob, Excellent idea. My second most favorite site dealing with immuno- diseases is Brain Talk at Harvard Neurology, Multiple Sclerosis. BrainTalk does have a group for T.M., they try to welcome people but again it'x just sort of left up to the group. T,M, and M.S. have many similar symptoms a

Re: [TMIC] HELP WITH UNSUBSCRIBING

2006-10-10 Thread ROBERT COOK
MY APOLOGY IF ANYONE THOUGHT MY E-MAIL INTIMATED OUR TABLE CONVERSATIONS WERE UNSAVORY.  THAT WAS NOT MY INTENT.  I LIKE TOD'S REPRINT OF SANDY'S E-MAIL WELCOMING MARIE.  MAYBE WE, OR SOMEONE, COULD SEE THAT NEWBIES ALSO GET IT WHEN THEY JOIN OR WHEN WE SEE ONE.   IT IS A GREAT INTRO AS WELL AS

Re: [TMIC] HELP WITH UNSUBSCRIBING

2006-10-10 Thread ROSEOFRENO
Hi Bob and All ~    Excellent letter Bobgreat ideas..!    Thought I should pop in here and let everyone know that I have been handling the "unsubscribers" for many months now.  I write to them off list as soon as I see their email.  There are many reasons why they have unsubscribed...

Re: [TMIC] hELP WITH UNSUBSCRIBING

2006-10-10 Thread ROBERT COOK
mposed upon the taxpayer. > [Original Message] > From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> > To: <[EMAIL PROTECTED]>; > Date: 10/10/2006 9:04:50 AM > Subject: Re: [TMIC] hELP WITH UNSUBSCRIBING > > > > I feel like I am acting like a big bitch (sorry if I off

Re: [TMIC] hELP WITH UNSUBSCRIBING

2006-10-10 Thread [EMAIL PROTECTED]
> I feel like I am acting like a big bitch (sorry if I offended anyone) . How > do people find their way onto the TMIC List? Jude, This is one of the mytsteries of the internet. I think that people are generally lazy. They are motivated when searching for us, then unmotivated (satiated) w

Re: [TMIC] help with questions

2006-05-19 Thread Grace
In my case, the lesions showed up very clearly on the initial MRI.  With each new attack (I have  relapsing Devic's.) both old and new lesions are always visible.   Grace

Re: [TMIC] help with questions

2006-05-19 Thread Lynn Pouliot
I know that with my diagnosis of TM the mri showed a clear lesion in the t4-5 area of the spinal cord.  My first mri was in 1993.  Since then I have had 5 flare ups and now have a diagnosis of recurrent TM.  Each mri shows that same lesion and inflammation in the spinal cord.  Although ther

Re: [TMIC] help with questions

2006-05-18 Thread [EMAIL PROTECTED]
> The abnormalities seen in your spinal fluid are consistant with those I > see > in MS patients, so lets wait and see. > MRI. This one showed white matter suspious of MS. sounds like MS to me. I'd like to see MRI's of Brain over the next few years. Do you have a lesion in your spinal cord?

Re: [TMIC] Help TMA

2005-11-19 Thread cindymcleroy
Folks should designate the Transverse Myelitis Association, not the IDC for the IGive bonus dollars.  The TMIC is supported by the TMA, not the IDC, which is Gunny's organization.  Gets confusing doesn't it?   - Original Message - From: Mary Eden Cochran To: tmic-list@e

Re: [TMIC] Help TMA

2005-11-19 Thread Mary Eden Cochran
Subject: Re: [TMIC] Help TMA In a message dated 11/19/2005 5:03:05 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I have the Transerve Myelitis Association listed there as my charity of choice. I don't know if I've ever heard of the International Disability Association -- I

Re: [TMIC] Help TMA

2005-11-19 Thread JHarper33
In a message dated 11/19/2005 5:03:05 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I have the Transerve Myelitis Association listed there as my charity of choice. I don't know if I've ever heard of the International Disability Association -- It sounds a little like Gunny's orgn

Re: [TMIC] Help TMA

2005-11-19 Thread JHarper33
I have the Transerve Myelitis Association listed there as my charity of choice. I don't know if I've ever heard of the International Disability Association -- It sounds a little like Gunny's orgnaization, but I can't remember for sure.   Barbara H.   In a message dated 11/19/2005 4:54:03 PM

Re: [TMIC] Help!!

2005-11-19 Thread [EMAIL PROTECTED]
> This might sound silly but is there any way you can interrupt the flow of > water from the jets by fixing a hand towel to the nozzle, with a wide rubber > band or something? Jude, excellent idea, very inexpensi9ve too thanks f

Re: [TMIC] Help!!

2005-11-18 Thread Bernie
Hey Frank, What I have done with my problem is this: I got a hand held shower wand, opened the part where the water comes out, cut a slim slice of sponge and stuck it right inside the shower head. The water comes out very softly, kind of like a gentle stream. It takes a little longer to showe

Re: [TMIC] Help!!

2005-11-18 Thread HeyJude48506
In a message dated 11/18/2005 9:24:23 AM Central Standard Time, [EMAIL PROTECTED] writes: Dear People,I have run into a problem ande need your help, suggestions, support.I hate to have showers, and have major problems getting into and out of the tub.This has slowly come upon me over t

Re: [TMIC] Help!!

2005-11-18 Thread [EMAIL PROTECTED]
Grace and all, Thanks so much for all the advice and support. It good to know that I'm not in the shower, or tub, alone. I'll wash your back if you do mine!! pH

Re: [TMIC] Help!!

2005-11-18 Thread Elbanks111
Frank, I too have super sensitive skin but only on my legs. COLD/COOL water sends my pain through the roof and will cause a bad spasm. I have a roll in shower and go in backwards and let the water roll down from behind so it doesn't hit the legs directly. Also, could you "soap up" and then ju

Re: [TMIC] Help!!

2005-11-18 Thread Grace
I can't stand taking a shower either, so I've resorted to lukewarm tub baths---which bring along their own set of problems. I hate the feel of the washcloth on my skin, so use my hands to lather. Also, a tip from my doctor re: making things easier. A small squirt of no tears baby shampoo into

Re: [TMIC] Help!! (Showers)

2005-11-18 Thread ROSEOFRENO
Frank ~    Bob & Patti gave you the right advice on hand held shower heads. I'm with you...I can't stand under a shower either with this hypersensitive skin!     One thing I would suggest is a padded bath bench.  I have tried both and the padded one works best for mehowever..

Re: RE: [TMIC] Help!!

2005-11-18 Thread pjv1234
Hi! Great minds think alike! Patti - Michigan > > From: "ROBERT COOK" <[EMAIL PROTECTED]> > Date: 2005/11/18 Fri AM 09:34:06 CST > To: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>, tmIc-list@eskimo.com > Subject: RE: [TMIC] Help!! > > HYPER

Re: [TMIC] Help!!

2005-11-18 Thread pjv1234
F A must is a hand held shower head and a seat in your shower stall. Hold the shower head as close as you can against your body so you aren't getting jolts of spray on your delicate skin. The water will roll off your body instead of feeling like daggers. This works for me and while I'm tellin

RE: [TMIC] Help!!

2005-11-18 Thread ROBERT COOK
HYPER SENSITIVE DERMA, HAVE WE? THAT IS NOT UNUSUAL FOR TM 'ERS. TRY GETTING A SHOWER HEAD FIXTURE ON A HOSE AND TAKING THE SHOWER HEAD OFF, AND JUST USE THE HOSE OPEN ENDED WITH SLOW FLOW. OR JUST USE A GARDEN HOSE ADAPTED TO FIT. MAYBE THAT WILL WORK. WEEKS? OH, MY !!! GET SOME OF THAT D