Re: RE: [TMIC] ot

[cakalley]

I have multiple levels.  One at C4 to T2 the other at T10 to T12.  The T10 - T12 leison made me paralyzed from bra line down.  I went thru PT/OT and walked with a walker and was "hell on wheels" in a wheel chair.  The C4 - T2 made me a quad.  With Plasma Exchange (PLEX) and starting at square one with PT/OT after 6 months I walk with a walker but have no strength for the wheelchair.  I can walk 25 - 30 feet but need to stop and rest before going on.  I have an electric scooter for those times I need to go out and about.  The 2nd episode really zapped me of my strength, stamini and durance.  I work in burst of 10 - 15 min. before I need to rest which maybe from 20 min to hours or days depending on what I have been doing.  Shopping for groceries is usually a day and half R&R.

 

Candy K.  

-----Original Message-----
From: Diane <[EMAIL PROTECTED]>
Sent: Jun 10, 2007 1:46 PM
To: natalie mizenko <[EMAIL PROTECTED]>, Transverse Myellitis
Subject: Re: RE: [TMIC] ot

This interesting.  Wonder how many of us are affected in multiple levels ???

TM hit me at L-1/L-2 and I was paralyzed from the waist down.  I learned to walk again for short distances 25-30 ft. with a cane or walker.  However, I had other symptoms above the waist and my neuro has confirmed that there are minute lesions the whole length of my spine.  None of these symptoms cause disability - they're just annoying.

All in all, I am thankful TM was caught early before severe damage occurred.

Diane in Canada 

----- Original Message -----

From: natalie mizenko

To: Transverse Myellitis

Sent: Sunday, June 10, 2007 10:32 AM

Subject: Re: RE: [TMIC] ot

Sally, I was wondering what type of affect you have on your body in T6-T8?  Numbness, pain?  Are you able to walk.  I've always wondered when folks get TM in 2 or 3 levels of the spine how it is.  If you don't mind, I'm just trying to educate myself on TM.  I have it from T12 down and in a w/c.  Did you have Rehab in your state?  I had to go from Arkansas to Texas for 7 weeks total.  Thanks, Natalie

"[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:

I live in Hawaii where it's usually in the 80's - or in cool weather, in the 70's (I know, spoiled, aren't I!)  The only weather that bothers me is when it's cold - like when I went to California when it was in the 50's at night.  I wore 3 pair of socks and 2 pair of sweat pants to bed.  Even in Hawaii, I often wear socks around the house in the cool weather (we don't normally wear shoes in the house here, but leaves our shoes at the door).

Sally (T6 - T8, 2005)

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