Could you all talk a little bit about the "2nd episodes?"  I haven't had
a second episode.  I'm wondering how far it was between the first one
and second one.  I understood from researching TM that 2nd episodes were
relatively rare.  But, it seems quite a few of you have had more than
one.  Maybe I should get my house really cleaned up...just in case.  You
are all so inspirational to me.  I know that my symptoms are nothing
compared to what many of you experience.  So, I'm not going to complain
about my minor aches and pains.  

 

Tim

 

Tim Holder

Worship Leader for 

Celebrate Recovery

[EMAIL PROTECTED]

(501)224-7171 ext. 1454

Fellowship Bible Church

1901 Napa Valley Drive

Little Rock, AR 72212-3913

 

 

 

 

________________________________

From: cakalley [mailto:[EMAIL PROTECTED] 
Sent: Monday, June 11, 2007 8:28 AM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com; [EMAIL PROTECTED]
Subject: Re: [TMIC] ot

 

When I asked my neuro, he said that (I'm paravasing) it depends on how
deep the attack on the myeli, the shaft surrounding the spinal cord, and
the degree of scar.  My C4 - T2 was on my second episode and had already
been treated with steriods.  All of my leisions were difficult to see on
MRI and overlooked on the first couple.  Thats why I had 4 MRI's before
finding.  Maybe that's the difference?  Everyone is differant even with
other diseases - some people have worst attacks of some disesase, some
people react to different meds than others.  

 

God has made each and everyone of us similiar but DIFFERENT - we are
like snowflakes - unique and beautiful in our differances.

 

Candy K.



        -----Original Message----- 
        From: [EMAIL PROTECTED] 
        Sent: Jun 10, 2007 10:30 PM 
        To: [EMAIL PROTECTED], [EMAIL PROTECTED] 
        Cc: tmic-list@eskimo.com 
        Subject: Re: [TMIC] ot 
        
        
        

        In a message dated 6/10/2007 4:32:37 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:

                I have multiple levels.  One at C4 to T2 the other at
T10 to T12.  The T10 - T12 leison made me paralyzed from bra line down.
I went thru PT/OT and walked with a walker and was "hell on wheels" in a
wheel chair.  The C4 - T2 made me a quad.  With Plasma Exchange (PLEX)
and starting at square one with PT/OT after 6 months I walk with a
walker but have no strength for the wheelchair.  I can walk 25 - 30 feet
but need to stop and rest before going on.  I have an electric scooter
for those times I need to go out and about.  The 2nd episode really
zapped me of my strength, stamini and durance.  I work in burst of 10 -
15 min. before I need to rest which maybe from 20 min to hours or days
depending on what I have been doing.  Shopping for groceries is usually
a day and half R&R.

        I just can't get my mind around the fact that there are
paraplegics who are truly paralyzed and those that can walk.  There are
quadraplegics who are also the same.  It seems as though TM ought to
stay the same all of the time...meaning I ought to be able to walk a bit
like some of you.  I don't know if it is better to be one of the
"walking wounded" or not.  I don't mean it to sound like I think any of
you have it easier than those of us in wheelchairs 24/7.  I just don't
understand the various ways the same disease can affect us.

         

        Is there anyone out there who can explain it better to me?

         

        Love you,

        Jude

         

         

        2 Corinthians 4:17
        NLT

        
        
        

        
________________________________


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