HI Susan,
Thank you for the information. I smiled when I read your diagnosis of
Brown Sequard Syndrome, because it reminded me of the first time it was
used by a neuro in my presence. I was seeing the neuro who diagnosed me
in the hospotal with TM but his office was 70 miles away. I asked my PCP
for a referral to a neuro closer to home. The new neuro spoke into his
recorder during my visit and said, "Patient has Brown Sequard Syndrome.
I was stressed and said "No, I'm here for Transverse Myelitis". He was
annoyed with me for interrupting him. I asked the office manager to
find out what the new term was and looked it up when I got home. Duh!
They could have saved me a lot of worry if it had been explained it
wasn't yet another ugly illness and just the symptoms my body portrayed.
TM has been a learning experience regarding all the medical terminology.
Now I need to look up cranial sacral therapy. How has it helped you?
Patti - Michigan
On Mon, Oct 31, 2011 at 12:02 PM, Susan Kleinz wrote:
As "newbe" to this website, I'm Susan Kleinz
57, married, 3 children,
diagnosed 20 years ago with Brown Sequard Syndrome, probable MS after
becoming paralyzed on left side.
diagnosed Feb. of this year with Transverse Myeliltis. - can walk with a
brace on left leg.
thank you for all these wonderful websites!
my neurologist at Barrows Neurological Clinics in Phoenix AZ says - no
flu or shingles shots.
I've never had either.
Tried 10 sessions of acupuncture... no clue if it helped.
Many sessions of Cranial Sacral Therapy by RCST certified therapist -
phenomenal results - helped more than anything I have tried.
B 12 shots twice a week help also.
Susan
Phoenix, AZ
On Oct 28, 2011, at 7:32 PM, Elizabeth Clark wrote:
Wasn’t that a GREAT news bite? Cody Unser is an amazing girl (daughter
of race car driver, Al Unser, Jr.) and has several websites dedicated to
the fight against spinal cord injuries – and particularly TM – to help
educate others about our dreaded condition. Check out the following:
http://www.deepthrottle.com/Essays/cody_unser.shtml
<http://www.deepthrottle.com/Essays/cody_unser.shtml>
http://cufsf.org/ <http://cufsf.org/>
http://restorative-therapies.com/codyunser
<http://restorative-therapies.com/codyunser>
http://www.longislandpress.com/2009/08/08/cody-unser-new-documentary-candid-take-on-paralysis/
<http://www.longislandpress.com/2009/08/08/cody-unser-new-documentary-candid-take-on-paralysis/>
http://www.hopkinsmedicine.org/news/media/releases/film_chronicle_of_cody_unsers_9_year_struggle_with_paralyzing_transverse_myelitis_premieres_june_2
<http://www.hopkinsmedicine.org/news/media/releases/film_chronicle_of_cody_unsers_9_year_struggle_with_paralyzing_transverse_myelitis_premieres_june_2>
Betty
(in Northern California )
___________________________________
From: kimharrison...@comcast.net
<javascript:parent.wgMail.openComposeWindow('kimharrison...@comcast.net')>
[ mailto:kimharrison...@comcast.net
<javascript:parent.wgMail.openComposeWindow('kimharrison...@comcast.net')>
]
Sent: Friday, October 28, 2011 2:48 PM
To: tmic-list@eskimo.com
<javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')>
Cc: transverse myelitis
Subject: Re: [TMIC] CBS
Yes, here is the CBS link if anyone needs it
http://www.cbsnews.com/8301-18563_162-20126766/scuba-diving-could-raise-hope-for-the-paralyzed/
<http://www.cbsnews.com/8301-18563_162-20126766/scuba-diving-could-raise-hope-for-the-paralyzed/>
___________________________________
From: "James Berg" < molokai...@gmail.com
<javascript:parent.wgMail.openComposeWindow('molokai...@gmail.com')> >
To: "transverse myelitis" < tmic-list@eskimo.com
<javascript:parent.wgMail.openComposeWindow('tmic-list@eskimo.com')> >
Sent: Friday, October 28, 2011 5:39:19 PM
Subject: [TMIC] CBS
Did anyone see the CBS News piece on TM and Scuba diving? another
possibility.
