I have idiopathic TM. No known cause except that I did have singles ober 20 yrs ago, and I also had chicken pox as a child.TM came over a 2 day period - on saturday I noticed my balance wasn't right, and later in the day I felt I had an UTI and went to urgent care and was given drugs. The next morning during my shower I noticed I had trouble lifting my right leg over the tub. After the shower while trying to put on my underwear, I wet my pants twice. Then all of a sudden my legs went out and down on the floor I went. I was rushed to the ER, and after about 8 hrs and a spinal tap and MRI was diagnosed with TM. Spent 4 weeks in rehab and finally was able to walk with a walker, then a cane. I still have bladder/bowel problems like most of us. The only drugs I am on are oxyticbutin for my bladder and a low dose of a sulfer drug 50 mg at night. I don't have the severe pain like so many of us; just burning/freezing and bee stings in my feet. It will be 5 yrs for me in June. I hope this is what you need.
On Fri, Apr 26, 2013 at 10:09 PM, <heyjude48...@aol.com> wrote: > ** > Hi Everyone! > > It's Jude Hoops. I was just reading the quad list and they are talking > about their injuries at what level they are injured, how it happened and > when it happened. Do you think that that would be something we could do > too? > > I think it might be interesting to know how we were all injured or got > sick and how long ago it was. We've all been on this list for a long time > now and I was wondering whether any of us had gotten any better over the > years. > > Let me know what you think. Just write a small paragraph about how you > came to have TM, what level your injury is at and if you have seen any > improvement over the years. > > I love you all so much and have been thinking of you. > > Hugs, > Jude (TIAD) >
