Re: [CMLHope] Questions,

['Jeanie' via CMLHope]

Oh yes, I'm thankful for those things too. 

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Dec 22, 2017, at 5:19 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Hi Jeanie!
> 
> Was wondering if you are on a statin drug for high cholesterol. Every statin 
> drug causes achy joints in varying degrees for people. This is the biggest 
> side effect of statin drugs. I refuse to go on them.  Was on lipitor for 
> awhile until I did some research. But of course everyone can do their own 
> thing.
> 
> I also take turmeric (a simple spice) with pepper combined to keep my 
> inflammation in general down. It is very effective. Without something in 
> pepper that helps the turmeric digest, you are wasting your turmeric. It does 
> not absorb into your body without it. Everyone fights inflammation for one 
> reason or another. Just a tip.
> 
> Also fighting essential tremors and other things, besides the cml. Beginning 
> another new drug today to help tremors. In reference to Marty saying we can 
> all feed ourselves, pee, etc. Funny, but I am trying to learn to eat with my 
> other hand because I shake too bad with the usual hand. S thankful I am 
> somewhat ambidextrous! But typing has become a problem. Did I mention I am so 
> thankful I can pee, sleep, chew food, walk, talk and especially laugh?  My 
> husband makes sure of that.
> 
> Have wonderful holidays and enjoy every day!!!
> Thanks Marty for making us all laugh!!!
> 18's,
> Love and prayers,
> Susan Z.
> 
> 
> 
> 
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Friday, December 22, 2017 'Jeanie' via CMLHope  
> wrote:
> 
> Hi all,
> Have you considered Moffitt cancer center. I go there and like it. You go to 
> the blood center and get your blood checked and then in about an hour they 
> are faxed over to doctor and you see him. I go every three months. 
> I was wonder if any of you have your bones aching?  My right little finger 
> and hand ache and legs hurt sometimes at night. I've been fighting cml for 
> almost 14 years and never had this. Blood counts are all good. Thanks all.  
> 
> My Motto:
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center 
> 
> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
> 
> Listen Greenie,
> 
> This is what i do because of a promise that i once made to GOD. Let me tell 
> you about this.
> When i was about to receive my total body radiation almost 30 years ago,
> 
>  just before they were about to close and lock that radiation chamber door i 
> got down on my knees clasped my hands in front of me and prayed to GOD asking 
> HIM if he would spare me i would help people that were in my situation that i 
> would try to help them. So far i have helped 1,286 people in the past 30 
> years, and wrote my journal about each and every one of them. This will never 
> be published because of confidentiality reasons, but on occasion i will send 
> some of them parts of my book in order to try and help them.
> 
> Listen i am no saint just a plain human being but someone that once made a 
> promise to GOD and i am still here after many many death defying things that 
> i have gone trough. And that is why i do what i promised to do. I hope that 
> you understand why i do what i do...
> 
> There is also why i write 18's when ever i end any posts that i make, because 
> that is what i believe. 18's to me represents LIFE.
> 
> If you care to send me your personal email address i would like to send you 
> something. Mine is wa2yyx@gmail,com
> 
> 18's,
> 
> Marty 
> 
>> On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope 
>>  wrote:
>> Marty, I want to thank you for your fast reply, I hear you.  I do have a 
>> Nephrologist and he had me get some blood work last month and he seems to be 
>> O.K. with the results.  I do have the paper work and will scan it and send 
>> it out so you can check it out.  I want to thank you so much, you have made 
>> me feel so much better and I will listen to what you wrote me.  Again I want 
>> to thank you.
>>  
>> Greenie
>>  
>> In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, 
>> wa2...@gmail.com writes:
>> Hi Greenie,
>> 
>> First of all, you mention that you are worried. Why may i ask are you so 
>> worried? When people worry about things that they have little or no control 
>> over then it not only effects your mind but also your body. I know all about 
>> this because that is exactly what i used to do and i learned to direct my 
>> mind in more productive 

Re: [CMLHope] Questions,

[Marty Gartenberg]

Hi Jeanie,

First thing, don't be concerned with changing you'r doctor. Moffitt is a
big place and I am sure that this new new doctor will take good care of
you. just give him or her the chance to know you, and may i suggest having
your current doctor get in touch with your new doctor and let them acquaint
each other.

Our friends and family's are what keeps us going because they care about
us, well mostly anyway.

Now do i take any Opiates? Well there was a time that i had to, but let me
explain: When i was in that plastic bubble for many months receiving my BMT
i had so much pain caused by *mucocytes from the Chemotherapy and
Radiation.*

Similar to terrible mouth sores that go to most of the mucus membranes from
your lips through your entire digestive track including my "solid waste
excretion point", causing extreme uncontrolled pain.
Worse yet was that i was not allowed to eat any solid food but kept me on
IV nutrition called TPN which caused me diarrhea.

It was so bad that at first they would try and have me gargle with Viscos
Lidacaine but it did absolutely nothing for me. They then tried Mycostatin.
Just made me throw up. Then they brought a Morphine drip and there was a
button on it so i could press it whenever i needed it. All that did was to
make my hallucinate and caused little or no relief but they kept on on me
because i would eventually go to sleep, but once i got up the pain was also
back again. So much to the point i became addicted  to it.

It took me by my own will and couple of months to end my addiction but the
pain was still there so i decided to not use any types of Opiates again.

I once helped a young woman about thirteen years ago who was about to go
through a BMT and advised her of what mat happen to her after she started
her BMT which was in the same environment that i went through and mentioned
about the *mucocytes* and she paid attention to what i said. Yes she did
get *mucocytes and suffered through all of that pain but she knew how to
handle it, and ended up dealing with it. Mind **controlling** her body*

You may always hear me say that your mind also can control your body, and i
learned that it did. I want to let anyone know that if you ever need to
take any opiates then only in most cases you may need to but you also have
to try some other things if you ever have to.

I learned from my nurse that came into the bubble that i had to live in.
First she had to gown up and come into that bubble completely serial,
surgical gown,  hat, booties, mask actually two sets, and had to stay down
wind of me because it was actually a laminar air flow chamber which
filtered air through a heppa filtration chamber behind me blowing the air
from the back of me through a special vent at the end of the chamber.

She stood next to me and whispered three words into my left ear "it's only
temporary". She then walked out and i was left with those three words which
i took advantage of. I immediately stopped that Morphine drip and put my
mind in another place, as much exercise that i did within that bubble and
waited until my white blood cell counts went to beyond 1,000. That was the
magic number. After all of those months i was finally released.

I want to tell you something: Remember that was almost 30 years ago and
things have been so much better then it was then.

Now the point is that if you were to ask me would i do all of this again
but back in that time, my answer is YES because of what i learned and have
the ability of passing it on to others.

You now know some personal things about me but if it can help someone else
then it is well worth it. Learn something new every day.

Life is a very delicate thing and never sell yourself short even by one day
of it.

18's,

Marty

On Sat, Dec 23, 2017 at 2:28 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi Marty
> Love the way you expressed that. Yes we can still do so much and we are
> here still to live our friends and family.
> Do any of you take opiates for pain or if you did and quit I would like to
> hear your experience with it.
> Weather mild in Florida for Christmas.
> My doctor, that I have been under for 7 years is retiring and I won't see
> him anymore. I've got to make a decision on what to do in Moffitt.  I think
> they have given my care to another doctor but a little nervous changing
> doctors after so many years.
> It will ok no matter what. Meet the New Year with all it brings with your
> Warrior gear on and ready to fight.
> Merry Christmas to all.
>
> My Motto:
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center
>
> On Dec 23, 2017, at 7:32 AM, Myvety2k via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
> Mary, you got that right.
>
> greenie
>
> In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time,
> wa2...@gmail.com writes:
>
> Hey, we got a 

Re: [CMLHope] Questions,

['Jeanie' via CMLHope]

Hi Marty
Love the way you expressed that. Yes we can still do so much and we are here 
still to live our friends and family.  
Do any of you take opiates for pain or if you did and quit I would like to hear 
your experience with it.  
Weather mild in Florida for Christmas. 
My doctor, that I have been under for 7 years is retiring and I won't see him 
anymore. I've got to make a decision on what to do in Moffitt.  I think they 
have given my care to another doctor but a little nervous changing doctors 
after so many years.  
It will ok no matter what. Meet the New Year with all it brings with your 
Warrior gear on and ready to fight. 
Merry Christmas to all.  

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Dec 23, 2017, at 7:32 AM, Myvety2k via CMLHope  
> wrote:
> 
> Mary, you got that right.
>  
> greenie
>  
> In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time, 
> wa2...@gmail.com writes:
> Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. 
> 
> So Jeanie, you have this pain in you right little finger (we used to call it 
> our (pinkey) Hum right little finger? Well so do i. But not my legs, hands 
> and most of my bones BUT my left elbow and my neck really hurt but especially 
> my left elbow but they have a right to. All of them except my left little 
> finger. Do you know why? Well the little finger has my friend living inside 
> of it. His name is Author Right-es   But the rest were severely broken when i 
> broke my neck in three places along with my left elbow and had these metal 
> plates, screws, nuts and matching bolt put inside of me. Can you imagine that 
> nuts and bolts? Oh at times i have a pain in my butt but that doesn't really 
> count.
> 
> So maybe we should consider that we are getting older or you on TKI's or both 
> of us having Arthritis? 
>  
> Who knows, but the fact that we are still alive are all migrating 
> circumstances, 
> don't you think... We can see we can pee we can hear, well for the most part 
> for me anyway.
> 
> We can walk we can talk can do most everything that we can do. Oh yea I 
> almost forgot we can eat and drink. So let this be a lesson for us, right...
> 
> 18's,
> 
> Marty
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 9
> 
>> On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope 
>>  wrote:
>> Hi all,
>> Have you considered Moffitt cancer center. I go there and like it. You go to 
>> the blood center and get your blood checked and then in about an hour they 
>> are faxed over to doctor and you see him. I go every three months. 
>> I was wonder if any of you have your bones aching?  My right little finger 
>> and hand ache and legs hurt sometimes at night. I've been fighting cml for 
>> almost 14 years and never had this. Blood counts are all good. Thanks all.  
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> 18's
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/2015
>> Doctor Balducci Moffitt Cancer Center 
>> 
>>> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
>>> 
>>> Listen Greenie,
>>> 
>>> This is what i do because of a promise that i once made to GOD. Let me tell 
>>> you about this.
>>> When i was about to receive my total body radiation almost 30 years ago,
>>> 
>>>  just before they were about to close and lock that radiation chamber door 
>>> i got down on my knees clasped my hands in front of me and prayed to GOD 
>>> asking HIM if he would spare me i would help people that were in my 
>>> situation that i would try to help them. So far i have helped 1,286 people 
>>> in the past 30 years, and wrote my journal about each and every one of 
>>> them. This will never be published because of confidentiality reasons, but 
>>> on occasion i will send some of them parts of my book in order to try and 
>>> help them.
>>> 
>>> Listen i am no saint just a plain human being but someone that once made a 
>>> promise to GOD and i am still here after many many death defying things 
>>> that i have gone trough. And that is why i do what i promised to do. I hope 
>>> that you understand why i do what i do...
>>> 
>>> There is also why i write 18's when ever i end any posts that i make, 
>>> because that is what i believe. 18's to me represents LIFE.
>>> 
>>> If you care to send me your personal email address i would like to send you 
>>> something. Mine is wa2yyx@gmail,com
>>> 
>>> 18's,
>>> 
>>> Marty 
>>> 
 On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope 
  wrote:
 Marty, I want to thank you for your fast reply, I hear you.  I do have a 
 Nephrologist and he had me get some blood work last month and he seems to 
 be O.K. with the results.  I do have the 

Re: [CMLHope] Questions,

[Marty Gartenberg]

Don't be silly Greenie,

Besides, my wife may have the last say if the toilet seat stays up or down

On Sat, Dec 23, 2017 at 11:15 AM, Myvety2k via CMLHope <
cmlhope@googlegroups.com> wrote:

> Sorry Marty, I guess my fingers are just to fast for my keyboard.  I can't
> see what I'm saying cuss my eye's are in the way.
>
> greenie
>
> In a message dated 12/23/2017 10:55:28 A.M. Eastern Standard Time,
> wa2...@gmail.com writes:
>
> Mary, you got that right.
>
> greenie
>
> Oh Greenie,
>
> Now look at what a day difference makes? All of a sudden you changed my
> "orientation" from Marty which i always thought that i had and now to Mary?
> I am kind of confused because I still pee the same. Did you leave out the T
> on purpose or are you trying to tell me something?
>
> Now a lesson for everyone to learn... Did you know that the woman is the
> stronger of our spices? For one, and I know this for a fact because their
> Bone Marrow is usually stronger then the male's is? Take for example a Cord
> Blood Transplant is taken from the woman's umbilical cord right after the
> fetus is born then cryogenic-ally frozen for future use, and can last up to
> 40 years while it is frozen. I happen to know Stephan Sprauge who had one
> and wrote a book on it including the benefits.  https://www.youtube
> .com/watch?v=TEPzUdeS7gM
>
> This is a changing world and it will be changing even more when people
> become aware of the different things that will come up in the near future.
> I happen to know Steve and he has done something extraordinary...
>
> 18's,
>
> Marty
> Attachments area
> Preview YouTube video Stephen Sprague
> [image: https://www.youtube.com/watch?v=TEPzUdeS7gM=0]
> [image: https://www.youtube.com/watch?v=TEPzUdeS7gM=0]
> Stephen Sprague
> 
>
> On Sat, Dec 23, 2017 at 10:25 AM, Marty Gartenberg 
> wrote:
>
>>
>>
>>
>> Mary, you got that right.
>>
>> greenie
>>
>> Oh Greenie,
>>
>> Now look at what a day difference makes? All of a sudden you changed my
>> "orientation" from Marty which i always thought that i had and now to Mary?
>> I am kind of confused because I still pee the same. Did you leave out the T
>> on purpose or are you trying to tell me something?
>>
>> Now a lesson for everyone to learn... Did you know that the woman is the
>> stronger of our spices? For one, and I know this for a fact because their
>> Bone Marrow is usually stronger then the male's is? Take for example a Cord
>> Blood Transplant is taken from the woman's umbilical cord right after the
>> fetus is born then cryogenic-ally frozen for future use, and can last up to
>> 40 years while it is frozen. I happen to know Stephan Sprauge who had one
>> and wrote a book on it including the benefits.  https://www.youtube
>> .com/watch?v=TEPzUdeS7gM
>>
>> This is a changing world and it will be changing even more when people
>> become aware of the different things that will come up in the near future.
>> I happen to know Steve and he has done something extraordinary...
>>
>> 18's,
>>
>> Marty
>>
>> On Sat, Dec 23, 2017 at 7:32 AM, Myvety2k via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>> Mary, you got that right.
>>>
>>> greenie
>>>
>>> In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time,
>>> wa2...@gmail.com writes:
>>>
>>> Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get
>>> better.
>>>
>>> So Jeanie, you have this pain in you right little finger (we used to
>>> call it our (pinkey) Hum right little finger? Well so do i. But not my
>>> legs, hands and most of my bones BUT my left elbow and my neck really hurt
>>> but especially my left elbow but they have a right to. All of them except
>>> my left little finger. Do you know why? Well the little finger has my
>>> friend living inside of it. His name is Author Right-es   But the rest were
>>> severely broken when i broke my neck in three places along with my left
>>> elbow and had these metal plates, screws, nuts and matching bolt put inside
>>> of me. Can you imagine that nuts and bolts? Oh at times i have a pain in my
>>> butt but that doesn't really count.
>>>
>>> So maybe we should consider that we are getting older or you on TKI's or
>>> both of us having Arthritis?
>>>
>>> Who knows, but the fact that we are still alive are all migrating
>>> circumstances,
>>> don't you think... We can see we can pee we can hear, well for the
>>> most part for me anyway.
>>>
>>> We can walk we can talk can do most everything that we can do. Oh yea I
>>> almost forgot we can eat and drink. So let this be a lesson for us, right...
>>>
>>> 18's,
>>>
>>> Marty
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>> 9
>>>
>>> On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope <
>>> cmlhope@googlegroups.com> wrote:
>>>
 Hi all,
 Have you considered Moffitt cancer center. I go there and like it. You
 go to the blood center and get your blood checked and then in about an hour
 they are faxed 

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

Sorry Marty, I guess my fingers are just to fast for my  keyboard.  I can't 
see what I'm saying cuss my eye's are in the  way.
 
greenie
 
 
In a message dated 12/23/2017 10:55:28 A.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 
 
 
 
 
 
Mary, you got  that right.
 

greenie




Oh Greenie,   


Now look at what a day difference makes? All of a sudden you changed my  
"orientation" from Marty which i always thought that i had and now to Mary? I  
am kind of confused because I still pee the same. Did you leave out the T 
on  purpose or are you trying to tell me something?


Now a lesson for everyone to learn... Did you know that the woman is the  
stronger of our spices? For one, and I know this for a fact because their 
Bone  Marrow is usually stronger then the male's is? Take for example a Cord 
Blood  Transplant is taken from the woman's umbilical cord right after the 
fetus is  born then cryogenic-ally frozen for future use, and can last up to 40 
years  while it is frozen. I happen to know Stephan Sprauge who had one and 
wrote a  book on it including the benefits.  
_https://www.youtubehttps://www.youtube_ 
(https://www.youtube.com/watch?v=TEPzUdeS7gM)  


This is a changing world and it will be changing even more when people  
become aware of the different things that will come up in the near future. I  
happen to know Steve and he has done something extraordinary...


18's,


Marty

 




 

Attachments area

_Preview YouTube video  Stephen Sprague  
 

 


 
 

 
 
Stephen  Sprague




 



_ (https://www.youtube.com/watch?v=TEPzUdeS7gM=0) 






 
 





On Sat, Dec 23, 2017 at 10:25 AM, Marty Gartenberg   
wrote:









Mary, you  got that right.
 

greenie




Oh Greenie,   


Now look at what a day difference makes? All of a sudden you changed my  
"orientation" from Marty which i always thought that i had and now to Mary?  I 
am kind of confused because I still pee the same. Did you leave out the T  
on purpose or are you trying to tell me something?


Now a lesson for everyone to learn... Did you know that the woman is  the 
stronger of our spices? For one, and I know this for a fact because  their 
Bone Marrow is usually stronger then the male's is? Take for example a  Cord 
Blood Transplant is taken from the woman's umbilical cord right after  the 
fetus is born then cryogenic-ally frozen for future use, and can last up  to 
40 years while it is frozen. I happen to know Stephan Sprauge who had one  
and wrote a book on it including the benefits.  
_https://www.youtubehttps://www.youtube_ 
(https://www.youtube.com/watch?v=TEPzUdeS7gM)  


This is a changing world and it will be changing even more when people  
become aware of the different things that will come up in the near future. I  
happen to know Steve and he has done something extraordinary...


18's,


Marty

 
 

On Sat, Dec 23, 2017 at 7:32 AM, Myvety2k via CMLHope  
 wrote:


Mary, you got that right.
 
greenie
 
 

 
In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Hey, we got a Jeanie, and we got a Greenie in here. Life  doesn't get 
better.   


So Jeanie, you have this pain in you right little finger (we used  to call 
it our (pinkey) Hum right little finger? Well so do i. But not  my legs, 
hands and most of my bones BUT my left elbow and my neck really  hurt but 
especially my left elbow but they have a right to. All of them  except my left 
little finger. Do you know why? Well the little finger  has my friend living 
inside of it. His name is Author Right-es   But the rest were severely broken 
when i broke my neck in three  places along with my left elbow and had 
these metal plates, screws, nuts  and matching bolt put inside of me. Can you 
imagine that nuts and bolts?  Oh at times i have a pain in my butt but that 
doesn't really  count.


So maybe we should consider that we are getting older or you on  TKI's or 
both of us having Arthritis? 
 
Who knows, but the fact that we are still alive are all migrating  
circumstances, 
don't you think... We can see we can pee we can hear, well  for the most 
part for me anyway.


We can walk we can talk can do most everything that we can do. Oh  yea I 
almost forgot we can eat and drink. So let this be a lesson for  us, right...


18's,


Marty
























9


On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via  CMLHope 
  wrote:


Hi all,
Have  you considered Moffitt cancer center. I go there and like it. You go  
to the blood center and get your blood checked and then in about an  hour 
they are faxed over to doctor and you see him. I go every three  months. 
I  was wonder if any of you have your bones aching?  My right little  
finger and hand ache and legs hurt sometimes at night. I've been  fighting cml 
for almost 14 years and never had this. Blood counts are  all good. Thanks 
all.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

Sorry, Marty.  My fingers are just to fast for my  keyboard.
 
greenie
 
 
In a message dated 12/23/2017 10:55:28 A.M. Eastern Standard Time,  
wa2...@gmail.com writes:

 
 
 
 
 
 
 
Mary, you got  that right.
 

greenie




Oh Greenie,   


Now look at what a day difference makes? All of a sudden you changed my  
"orientation" from Marty which i always thought that i had and now to Mary? I  
am kind of confused because I still pee the same. Did you leave out the T 
on  purpose or are you trying to tell me something?


Now a lesson for everyone to learn... Did you know that the woman is the  
stronger of our spices? For one, and I know this for a fact because their 
Bone  Marrow is usually stronger then the male's is? Take for example a Cord 
Blood  Transplant is taken from the woman's umbilical cord right after the 
fetus is  born then cryogenic-ally frozen for future use, and can last up to 40 
years  while it is frozen. I happen to know Stephan Sprauge who had one and 
wrote a  book on it including the benefits.  
_https://www.youtubehttps://www.youtube_ 
(https://www.youtube.com/watch?v=TEPzUdeS7gM)  


This is a changing world and it will be changing even more when people  
become aware of the different things that will come up in the near future. I  
happen to know Steve and he has done something extraordinary...


18's,


Marty

 




 

Attachments area

_Preview YouTube video  Stephen Sprague  
 

 


 
 

 
 
Stephen  Sprague




 



_ (https://www.youtube.com/watch?v=TEPzUdeS7gM=0) 






 
 





On Sat, Dec 23, 2017 at 10:25 AM, Marty Gartenberg   
wrote:









Mary, you  got that right.
 

greenie




Oh Greenie,   


Now look at what a day difference makes? All of a sudden you changed my  
"orientation" from Marty which i always thought that i had and now to Mary?  I 
am kind of confused because I still pee the same. Did you leave out the T  
on purpose or are you trying to tell me something?


Now a lesson for everyone to learn... Did you know that the woman is  the 
stronger of our spices? For one, and I know this for a fact because  their 
Bone Marrow is usually stronger then the male's is? Take for example a  Cord 
Blood Transplant is taken from the woman's umbilical cord right after  the 
fetus is born then cryogenic-ally frozen for future use, and can last up  to 
40 years while it is frozen. I happen to know Stephan Sprauge who had one  
and wrote a book on it including the benefits.  
_https://www.youtubehttps://www.youtube_ 
(https://www.youtube.com/watch?v=TEPzUdeS7gM)  


This is a changing world and it will be changing even more when people  
become aware of the different things that will come up in the near future. I  
happen to know Steve and he has done something extraordinary...


18's,


Marty

 
 

On Sat, Dec 23, 2017 at 7:32 AM, Myvety2k via CMLHope  
 wrote:


Mary, you got that right.
 
greenie
 
 

 
In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Hey, we got a Jeanie, and we got a Greenie in here. Life  doesn't get 
better.   


So Jeanie, you have this pain in you right little finger (we used  to call 
it our (pinkey) Hum right little finger? Well so do i. But not  my legs, 
hands and most of my bones BUT my left elbow and my neck really  hurt but 
especially my left elbow but they have a right to. All of them  except my left 
little finger. Do you know why? Well the little finger  has my friend living 
inside of it. His name is Author Right-es   But the rest were severely broken 
when i broke my neck in three  places along with my left elbow and had 
these metal plates, screws, nuts  and matching bolt put inside of me. Can you 
imagine that nuts and bolts?  Oh at times i have a pain in my butt but that 
doesn't really  count.


So maybe we should consider that we are getting older or you on  TKI's or 
both of us having Arthritis? 
 
Who knows, but the fact that we are still alive are all migrating  
circumstances, 
don't you think... We can see we can pee we can hear, well  for the most 
part for me anyway.


We can walk we can talk can do most everything that we can do. Oh  yea I 
almost forgot we can eat and drink. So let this be a lesson for  us, right...


18's,


Marty
























9


On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via  CMLHope 
  wrote:


Hi all,
Have  you considered Moffitt cancer center. I go there and like it. You go  
to the blood center and get your blood checked and then in about an  hour 
they are faxed over to doctor and you see him. I go every three  months. 
I  was wonder if any of you have your bones aching?  My right little  
finger and hand ache and legs hurt sometimes at night. I've been  fighting cml 
for almost 14 years and never had this. Blood counts are  all good. Thanks 
all.  

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started 

Re: [CMLHope] Questions,

[Marty Gartenberg]

Mary, you got that right.

greenie

Oh Greenie,

Now look at what a day difference makes? All of a sudden you changed my
"orientation" from Marty which i always thought that i had and now to Mary?
I am kind of confused because I still pee the same. Did you leave out the T
on purpose or are you trying to tell me something?

Now a lesson for everyone to learn... Did you know that the woman is the
stronger of our spices? For one, and I know this for a fact because their
Bone Marrow is usually stronger then the male's is? Take for example a Cord
Blood Transplant is taken from the woman's umbilical cord right after the
fetus is born then cryogenic-ally frozen for future use, and can last up to
40 years while it is frozen. I happen to know Stephan Sprauge who had one
and wrote a book on it including the benefits.  https://www.youtube
.com/watch?v=TEPzUdeS7gM

This is a changing world and it will be changing even more when people
become aware of the different things that will come up in the near future.
I happen to know Steve and he has done something extraordinary...

18's,

Marty
Attachments area
Preview YouTube video Stephen Sprague
Stephen Sprague


On Sat, Dec 23, 2017 at 10:25 AM, Marty Gartenberg  wrote:

>
>
>
> Mary, you got that right.
>
> greenie
>
> Oh Greenie,
>
> Now look at what a day difference makes? All of a sudden you changed my
> "orientation" from Marty which i always thought that i had and now to Mary?
> I am kind of confused because I still pee the same. Did you leave out the T
> on purpose or are you trying to tell me something?
>
> Now a lesson for everyone to learn... Did you know that the woman is the
> stronger of our spices? For one, and I know this for a fact because their
> Bone Marrow is usually stronger then the male's is? Take for example a Cord
> Blood Transplant is taken from the woman's umbilical cord right after the
> fetus is born then cryogenic-ally frozen for future use, and can last up to
> 40 years while it is frozen. I happen to know Stephan Sprauge who had one
> and wrote a book on it including the benefits.  https://www.youtube
> .com/watch?v=TEPzUdeS7gM
>
> This is a changing world and it will be changing even more when people
> become aware of the different things that will come up in the near future.
> I happen to know Steve and he has done something extraordinary...
>
> 18's,
>
> Marty
>
> On Sat, Dec 23, 2017 at 7:32 AM, Myvety2k via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Mary, you got that right.
>>
>> greenie
>>
>> In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time,
>> wa2...@gmail.com writes:
>>
>> Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get
>> better.
>>
>> So Jeanie, you have this pain in you right little finger (we used to call
>> it our (pinkey) Hum right little finger? Well so do i. But not my legs,
>> hands and most of my bones BUT my left elbow and my neck really hurt but
>> especially my left elbow but they have a right to. All of them except my
>> left little finger. Do you know why? Well the little finger has my friend
>> living inside of it. His name is Author Right-es   But the rest were
>> severely broken when i broke my neck in three places along with my left
>> elbow and had these metal plates, screws, nuts and matching bolt put inside
>> of me. Can you imagine that nuts and bolts? Oh at times i have a pain in my
>> butt but that doesn't really count.
>>
>> So maybe we should consider that we are getting older or you on TKI's or
>> both of us having Arthritis?
>>
>> Who knows, but the fact that we are still alive are all migrating
>> circumstances,
>> don't you think... We can see we can pee we can hear, well for the most
>> part for me anyway.
>>
>> We can walk we can talk can do most everything that we can do. Oh yea I
>> almost forgot we can eat and drink. So let this be a lesson for us, right...
>>
>> 18's,
>>
>> Marty
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> 9
>>
>> On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>> Hi all,
>>> Have you considered Moffitt cancer center. I go there and like it. You
>>> go to the blood center and get your blood checked and then in about an hour
>>> they are faxed over to doctor and you see him. I go every three months.
>>> I was wonder if any of you have your bones aching?  My right little
>>> finger and hand ache and legs hurt sometimes at night. I've been fighting
>>> cml for almost 14 years and never had this. Blood counts are all good.
>>> Thanks all.
>>>
>>> My Motto:
>>> Faith and Pills
>>> With Love
>>> 18's
>>> Dx 1/2004 CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna 9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib 1/2015
>>> Doctor Balducci Moffitt Cancer Center
>>>
>>> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
>>>
>>> Listen Greenie,
>>>
>>> This is what i do because of a promise that i 

Re: [CMLHope] Questions,

[Marty Gartenberg]

Mary, you got that right.

greenie

Oh Greenie,

Now look at what a day difference makes? All of a sudden you changed my
"orientation" from Marty which i always thought that i had and now to Mary?
I am kind of confused because I still pee the same. Did you leave out the T
on purpose or are you trying to tell me something?

Now a lesson for everyone to learn... Did you know that the woman is the
stronger of our spices? For one, and I know this for a fact because their
Bone Marrow is usually stronger then the male's is? Take for example a Cord
Blood Transplant is taken from the woman's umbilical cord right after the
fetus is born then cryogenic-ally frozen for future use, and can last up to
40 years while it is frozen. I happen to know Stephan Sprauge who had one
and wrote a book on it including the benefits.  https://www.
youtube.com/watch?v=TEPzUdeS7gM

This is a changing world and it will be changing even more when people
become aware of the different things that will come up in the near future.
I happen to know Steve and he has done something extraordinary...

18's,

Marty

On Sat, Dec 23, 2017 at 7:32 AM, Myvety2k via CMLHope <
cmlhope@googlegroups.com> wrote:

> Mary, you got that right.
>
> greenie
>
> In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time,
> wa2...@gmail.com writes:
>
> Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get
> better.
>
> So Jeanie, you have this pain in you right little finger (we used to call
> it our (pinkey) Hum right little finger? Well so do i. But not my legs,
> hands and most of my bones BUT my left elbow and my neck really hurt but
> especially my left elbow but they have a right to. All of them except my
> left little finger. Do you know why? Well the little finger has my friend
> living inside of it. His name is Author Right-es   But the rest were
> severely broken when i broke my neck in three places along with my left
> elbow and had these metal plates, screws, nuts and matching bolt put inside
> of me. Can you imagine that nuts and bolts? Oh at times i have a pain in my
> butt but that doesn't really count.
>
> So maybe we should consider that we are getting older or you on TKI's or
> both of us having Arthritis?
>
> Who knows, but the fact that we are still alive are all migrating
> circumstances,
> don't you think... We can see we can pee we can hear, well for the most
> part for me anyway.
>
> We can walk we can talk can do most everything that we can do. Oh yea I
> almost forgot we can eat and drink. So let this be a lesson for us, right...
>
> 18's,
>
> Marty
>
>
>
>
>
>
>
>
>
>
>
>
> 9
>
> On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Hi all,
>> Have you considered Moffitt cancer center. I go there and like it. You go
>> to the blood center and get your blood checked and then in about an hour
>> they are faxed over to doctor and you see him. I go every three months.
>> I was wonder if any of you have your bones aching?  My right little
>> finger and hand ache and legs hurt sometimes at night. I've been fighting
>> cml for almost 14 years and never had this. Blood counts are all good.
>> Thanks all.
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> 18's
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/2015
>> Doctor Balducci Moffitt Cancer Center
>>
>> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
>>
>> Listen Greenie,
>>
>> This is what i do because of a promise that i once made to GOD. Let me
>> tell you about this.
>> When i was about to receive my total body radiation almost 30 years ago,
>>
>>  just before they were about to close and lock that radiation chamber
>> door i got down on my knees clasped my hands in front of me and prayed to
>> GOD asking HIM if he would spare me i would help people that were in my
>> situation that i would try to help them. So far i have helped 1,286 people
>> in the past 30 years, and wrote my journal about each and every one of
>> them. This will never be published because of confidentiality reasons, but
>> on occasion i will send some of them parts of my book in order to try and
>> help them.
>>
>> Listen i am no saint just a plain human being but someone that once made
>> a promise to GOD and i am still here after many many death defying things
>> that i have gone trough. And that is why i do what i promised to do. I hope
>> that you understand why i do what i do...
>>
>> There is also why i write 18's when ever i end any posts that i make,
>> because that is what i believe. 18's to me represents LIFE.
>>
>> If you care to send me your personal email address i would like to send
>> you something. Mine is wa2yyx@gmail,com
>>
>> 18's,
>>
>> Marty
>>
>> On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>> Marty, I want to thank you for your fast reply, I hear you.  I do have a
>>> 

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

Mary, you got that right.
 
greenie
 
 
In a message dated 12/22/2017 4:47:42 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't  get 
better.   


So Jeanie, you have this pain in you right little finger (we used to call  
it our (pinkey) Hum right little finger? Well so do i. But not my legs, 
hands  and most of my bones BUT my left elbow and my neck really hurt but 
especially  my left elbow but they have a right to. All of them except my left 
little  finger. Do you know why? Well the little finger has my friend living 
inside of  it. His name is Author Right-es   But the rest were severely broken 
 when i broke my neck in three places along with my left elbow and had 
these  metal plates, screws, nuts and matching bolt put inside of me. Can you 
imagine  that nuts and bolts? Oh at times i have a pain in my butt but that 
doesn't  really count.


So maybe we should consider that we are getting older or you on TKI's or  
both of us having Arthritis? 
 
Who knows, but the fact that we are still alive are all migrating  
circumstances, 
don't you think... We can see we can pee we can hear, well for the  most 
part for me anyway.


We can walk we can talk can do most everything that we can do. Oh yea I  
almost forgot we can eat and drink. So let this be a lesson for us,  right...


18's,


Marty
























9


On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope  
 wrote:


Hi all,
Have you considered Moffitt  cancer center. I go there and like it. You go 
to the blood center and get  your blood checked and then in about an hour 
they are faxed over to doctor  and you see him. I go every three months. 
I was wonder if any of you  have your bones aching?  My right little finger 
and hand ache and legs  hurt sometimes at night. I've been fighting cml for 
almost 14 years and  never had this. Blood counts are all good. Thanks all. 
 

My  Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Dec 21, 2017, at 6:56 PM, Marty Gartenberg   wrote:




Listen Greenie,  


This is what i do because of a promise that i once made to GOD. Let  me 
tell you about this.
When i was about to receive my total body radiation almost 30 years  ago,


just before they were about to close and lock that radiation  chamber door 
i got down on my knees clasped my hands in front of me and  prayed to GOD 
asking HIM if he would spare me i would help people that  were in my situation 
that i would try to help them. So far i have helped  1,286 people in the 
past 30 years, and wrote my journal about each and  every one of them. This 
will never be published because of confidentiality  reasons, but on occasion i 
will send some of them parts of my book in  order to try and help them.


Listen i am no saint just a plain human being but someone that once  made a 
promise to GOD and i am still here after many many death defying  things 
that i have gone trough. And that is why i do what i promised to  do. I hope 
that you understand why i do what i do...


There is also why i write 18's when ever i end any posts that i make,  
because that is what i believe. 18's to me represents LIFE.


If you care to send me your personal email address i would like to  send 
you something. Mine is wa2yyx@gmail,com


18's,


Marty 


On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via  CMLHope 
 wrote:


Marty, I want to thank you for your fast reply, I hear  you.  I do have a 
Nephrologist and he had me get some blood work  last month and he seems to be 
O.K. with the results.  I do have the  paper work and will scan it and send 
it out so you can check it  out.  I want to thank you so much, you have 
made me feel so much  better and I will listen to what you wrote me.  Again I 
want to  thank you.
 
Greenie
 
 

 
In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time,  
wa2...@gmail.com  writes:

Hi Greenie,  


First of all, you mention that you are worried. Why may i ask are  you so 
worried? When people worry about things that they have little  or no control 
over then it not only effects your mind but also your  body. I know all 
about this because that is exactly what i used to do  and i learned to direct 
my 
mind in more productive ways. Now just try  to relax and get yourself going 
in the right direction. 


Now you mention about CRI so read this..


CRI (color  rendering index) is a measure of how accurately a light source  
illuminates objects' true colors. Our LED lights have CRI values  of up to 
98, indicating that our LED lights are able to produce white  light that 
approximates halogen or incandescent lighting and natural  daylight.



It however has some effect on your kidneys  because if they are having 
problems than it is a 

Re: [CMLHope] Questions,

['Jeanie' via CMLHope]

Thanks Marty
Do you take anything for or ointments for rubs?   Thanks. 

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Dec 22, 2017, at 4:47 PM, Marty Gartenberg  wrote:
> 
> Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get better. 
> 
> So Jeanie, you have this pain in you right little finger (we used to call it 
> our (pinkey) Hum right little finger? Well so do i. But not my legs, hands 
> and most of my bones BUT my left elbow and my neck really hurt but especially 
> my left elbow but they have a right to. All of them except my left little 
> finger. Do you know why? Well the little finger has my friend living inside 
> of it. His name is Author Right-es   But the rest were severely broken when i 
> broke my neck in three places along with my left elbow and had these metal 
> plates, screws, nuts and matching bolt put inside of me. Can you imagine that 
> nuts and bolts? Oh at times i have a pain in my butt but that doesn't really 
> count.
> 
> So maybe we should consider that we are getting older or you on TKI's or both 
> of us having Arthritis? 
>  
> Who knows, but the fact that we are still alive are all migrating 
> circumstances, 
> don't you think... We can see we can pee we can hear, well for the most part 
> for me anyway.
> 
> We can walk we can talk can do most everything that we can do. Oh yea I 
> almost forgot we can eat and drink. So let this be a lesson for us, right...
> 
> 18's,
> 
> Marty
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 
> 9
> 
>> On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope 
>>  wrote:
>> Hi all,
>> Have you considered Moffitt cancer center. I go there and like it. You go to 
>> the blood center and get your blood checked and then in about an hour they 
>> are faxed over to doctor and you see him. I go every three months. 
>> I was wonder if any of you have your bones aching?  My right little finger 
>> and hand ache and legs hurt sometimes at night. I've been fighting cml for 
>> almost 14 years and never had this. Blood counts are all good. Thanks all.  
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> 18's
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/2015
>> Doctor Balducci Moffitt Cancer Center 
>> 
>>> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
>>> 
>>> Listen Greenie,
>>> 
>>> This is what i do because of a promise that i once made to GOD. Let me tell 
>>> you about this.
>>> When i was about to receive my total body radiation almost 30 years ago,
>>> 
>>>  just before they were about to close and lock that radiation chamber door 
>>> i got down on my knees clasped my hands in front of me and prayed to GOD 
>>> asking HIM if he would spare me i would help people that were in my 
>>> situation that i would try to help them. So far i have helped 1,286 people 
>>> in the past 30 years, and wrote my journal about each and every one of 
>>> them. This will never be published because of confidentiality reasons, but 
>>> on occasion i will send some of them parts of my book in order to try and 
>>> help them.
>>> 
>>> Listen i am no saint just a plain human being but someone that once made a 
>>> promise to GOD and i am still here after many many death defying things 
>>> that i have gone trough. And that is why i do what i promised to do. I hope 
>>> that you understand why i do what i do...
>>> 
>>> There is also why i write 18's when ever i end any posts that i make, 
>>> because that is what i believe. 18's to me represents LIFE.
>>> 
>>> If you care to send me your personal email address i would like to send you 
>>> something. Mine is wa2yyx@gmail,com
>>> 
>>> 18's,
>>> 
>>> Marty 
>>> 
 On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope 
  wrote:
 Marty, I want to thank you for your fast reply, I hear you.  I do have a 
 Nephrologist and he had me get some blood work last month and he seems to 
 be O.K. with the results.  I do have the paper work and will scan it and 
 send it out so you can check it out.  I want to thank you so much, you 
 have made me feel so much better and I will listen to what you wrote me.  
 Again I want to thank you.
  
 Greenie
  
 In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, 
 wa2...@gmail.com writes:
 Hi Greenie,
 
 First of all, you mention that you are worried. Why may i ask are you so 
 worried? When people worry about things that they have little or no 
 control over then it not only effects your mind but also your body. I know 
 all about this because that is exactly what i used to do and i learned to 
 direct my mind in more productive ways. Now just try to relax 

Re: [CMLHope] Questions,

[Marty Gartenberg]

Hey, we got a Jeanie, and we got a Greenie in here. Life doesn't get
better.

So Jeanie, you have this pain in you right little finger (we used to call
it our (pinkey) Hum right little finger? Well so do i. But not my legs,
hands and most of my bones BUT my left elbow and my neck really hurt but
especially my left elbow but they have a right to. All of them except my
left little finger. Do you know why? Well the little finger has my friend
living inside of it. His name is Author Right-es   But the rest were
severely broken when i broke my neck in three places along with my left
elbow and had these metal plates, screws, nuts and matching bolt put inside
of me. Can you imagine that nuts and bolts? Oh at times i have a pain in my
butt but that doesn't really count.

So maybe we should consider that we are getting older or you on TKI's or
both of us having Arthritis?

Who knows, but the fact that we are still alive are all migrating
circumstances,
don't you think... We can see we can pee we can hear, well for the most
part for me anyway.

We can walk we can talk can do most everything that we can do. Oh yea I
almost forgot we can eat and drink. So let this be a lesson for us, right...

18's,

Marty












9

On Fri, Dec 22, 2017 at 3:18 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi all,
> Have you considered Moffitt cancer center. I go there and like it. You go
> to the blood center and get your blood checked and then in about an hour
> they are faxed over to doctor and you see him. I go every three months.
> I was wonder if any of you have your bones aching?  My right little finger
> and hand ache and legs hurt sometimes at night. I've been fighting cml for
> almost 14 years and never had this. Blood counts are all good. Thanks all.
>
> My Motto:
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center
>
> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
>
> Listen Greenie,
>
> This is what i do because of a promise that i once made to GOD. Let me
> tell you about this.
> When i was about to receive my total body radiation almost 30 years ago,
>
>  just before they were about to close and lock that radiation chamber door
> i got down on my knees clasped my hands in front of me and prayed to GOD
> asking HIM if he would spare me i would help people that were in my
> situation that i would try to help them. So far i have helped 1,286 people
> in the past 30 years, and wrote my journal about each and every one of
> them. This will never be published because of confidentiality reasons, but
> on occasion i will send some of them parts of my book in order to try and
> help them.
>
> Listen i am no saint just a plain human being but someone that once made a
> promise to GOD and i am still here after many many death defying things
> that i have gone trough. And that is why i do what i promised to do. I hope
> that you understand why i do what i do...
>
> There is also why i write 18's when ever i end any posts that i make,
> because that is what i believe. 18's to me represents LIFE.
>
> If you care to send me your personal email address i would like to send
> you something. Mine is wa2yyx@gmail,com
>
> 18's,
>
> Marty
>
> On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Marty, I want to thank you for your fast reply, I hear you.  I do have a
>> Nephrologist and he had me get some blood work last month and he seems to
>> be O.K. with the results.  I do have the paper work and will scan it and
>> send it out so you can check it out.  I want to thank you so much, you have
>> made me feel so much better and I will listen to what you wrote me.  Again
>> I want to thank you.
>>
>> Greenie
>>
>> In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time,
>> wa2...@gmail.com writes:
>>
>> Hi Greenie,
>>
>> First of all, you mention that you are worried. Why may i ask are you so
>> worried? When people worry about things that they have little or no control
>> over then it not only effects your mind but also your body. I know all
>> about this because that is exactly what i used to do and i learned to
>> direct my mind in more productive ways. Now just try to relax and get
>> yourself going in the right direction.
>>
>> Now you mention about CRI so read this..
>>
>> *CRI* (color rendering index) is a measure of how accurately a light
>> source illuminates objects' true colors. Our LED lights have *CRI* values
>> of up to 98, indicating that our LED lights are able to produce white light
>> that approximates halogen or incandescent lighting and natural daylight.
>>
>> It however has some effect on your kidneys because if they are having
>> problems than it is a very simple thing to just go to a Nephrologist and
>> see what is happening and why.
>>
>> As you mentioned the normal 

Re: [CMLHope] Questions,

['Jeanie' via CMLHope]

Hi all,
Have you considered Moffitt cancer center. I go there and like it. You go to 
the blood center and get your blood checked and then in about an hour they are 
faxed over to doctor and you see him. I go every three months. 
I was wonder if any of you have your bones aching?  My right little finger and 
hand ache and legs hurt sometimes at night. I've been fighting cml for almost 
14 years and never had this. Blood counts are all good. Thanks all.  

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Dec 21, 2017, at 6:56 PM, Marty Gartenberg  wrote:
> 
> Listen Greenie,
> 
> This is what i do because of a promise that i once made to GOD. Let me tell 
> you about this.
> When i was about to receive my total body radiation almost 30 years ago,
> 
>  just before they were about to close and lock that radiation chamber door i 
> got down on my knees clasped my hands in front of me and prayed to GOD asking 
> HIM if he would spare me i would help people that were in my situation that i 
> would try to help them. So far i have helped 1,286 people in the past 30 
> years, and wrote my journal about each and every one of them. This will never 
> be published because of confidentiality reasons, but on occasion i will send 
> some of them parts of my book in order to try and help them.
> 
> Listen i am no saint just a plain human being but someone that once made a 
> promise to GOD and i am still here after many many death defying things that 
> i have gone trough. And that is why i do what i promised to do. I hope that 
> you understand why i do what i do...
> 
> There is also why i write 18's when ever i end any posts that i make, because 
> that is what i believe. 18's to me represents LIFE.
> 
> If you care to send me your personal email address i would like to send you 
> something. Mine is wa2yyx@gmail,com
> 
> 18's,
> 
> Marty 
> 
>> On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope 
>>  wrote:
>> Marty, I want to thank you for your fast reply, I hear you.  I do have a 
>> Nephrologist and he had me get some blood work last month and he seems to be 
>> O.K. with the results.  I do have the paper work and will scan it and send 
>> it out so you can check it out.  I want to thank you so much, you have made 
>> me feel so much better and I will listen to what you wrote me.  Again I want 
>> to thank you.
>>  
>> Greenie
>>  
>> In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, 
>> wa2...@gmail.com writes:
>> Hi Greenie,
>> 
>> First of all, you mention that you are worried. Why may i ask are you so 
>> worried? When people worry about things that they have little or no control 
>> over then it not only effects your mind but also your body. I know all about 
>> this because that is exactly what i used to do and i learned to direct my 
>> mind in more productive ways. Now just try to relax and get yourself going 
>> in the right direction. 
>> 
>> Now you mention about CRI so read this..
>> 
>> CRI (color rendering index) is a measure of how accurately a light source 
>> illuminates objects' true colors. Our LED lights have CRI values of up to 
>> 98, indicating that our LED lights are able to produce white light that 
>> approximates halogen or incandescent lighting and natural daylight.
>> 
>> It however has some effect on your kidneys because if they are having 
>> problems than it is a very simple thing to just go to a Nephrologist and see 
>> what is happening and why.
>> 
>> As you mentioned the normal Hemoglobin count for women should be from around 
>> 13 to 17 however not necessarily for men because men don't have their time 
>> of the month as woman do, so men require a bit less of Hemoglobin.  
>> 
>> Now a count of 10.7 shows that you are enemic and that can from a verity of 
>> different things. One being the effects from your TKI being Gleevic which i 
>> think may be the cause, now mind you I am not a doctor but someone that does 
>> a lot of research into things that i have already been through.
>> 
>> Another thing would be kidney problems which i kind of doubt because your 
>> doctors haven't mentioned it. Do you know what your 
>> 
>> Levels of creatinine in the blood reflect both the amount of muscle a person 
>> has and their amount of kidney function. Most men with normal kidney 
>> function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of 
>> creatinine. Most women with normal kidney function have between 0.5 to 1.1 
>> mg/dL of creatinine..
>> 
>> My Creatinine level was 8.2 before i started on my dialysis and i had to go 
>> onto dialysis which lasted for four years. Then i was able to get a kidney 
>> transplant from a 20 year old deceased  man who was anonymous, and about two 
>> weeks later it dropped down to 4.1 and kept dropping to where it is now 

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

myvet...@comcast.net   Cell phone 219-973-8717
 
greenie
 
 
 
In a message dated 12/21/2017 6:56:37 P.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Listen Greenie,  


This is what i do because of a promise that i once made to GOD. Let me  
tell you about this.
When i was about to receive my total body radiation almost 30 years  ago,


just before they were about to close and lock that radiation  chamber door 
i got down on my knees clasped my hands in front of me and prayed  to GOD 
asking HIM if he would spare me i would help people that were in my  situation 
that i would try to help them. So far i have helped 1,286 people in  the 
past 30 years, and wrote my journal about each and every one of them. This  
will never be published because of confidentiality reasons, but on occasion i  
will send some of them parts of my book in order to try and help them.


Listen i am no saint just a plain human being but someone that once made  a 
promise to GOD and i am still here after many many death defying things 
that  i have gone trough. And that is why i do what i promised to do. I hope 
that  you understand why i do what i do...


There is also why i write 18's when ever i end any posts that i make,  
because that is what i believe. 18's to me represents LIFE.


If you care to send me your personal email address i would like to send  
you something. Mine is wa2yyx@gmail,com


18's,


Marty 


On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope  
 wrote:


Marty, I want to thank you for your fast reply, I hear  you.  I do have a 
Nephrologist and he had me get some blood work last  month and he seems to be 
O.K. with the results.  I do have the paper  work and will scan it and send 
it out so you can check it out.  I want  to thank you so much, you have 
made me feel so much better and I will listen  to what you wrote me.  Again I 
want to thank you.
 
Greenie
 
 

 
In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time, 
wa2...@gmail.com  writes:

Hi Greenie,  


First of all, you mention that you are worried. Why may i ask are you  so 
worried? When people worry about things that they have little or no  control 
over then it not only effects your mind but also your body. I know  all 
about this because that is exactly what i used to do and i learned to  direct 
my 
mind in more productive ways. Now just try to relax and get  yourself going 
in the right direction. 


Now you mention about CRI so read this..


CRI (color  rendering index) is a measure of how accurately a light source 
illuminates  objects' true colors. Our LED lights have CRI values  of up to 
98, indicating that our LED lights are able to produce white  light that 
approximates halogen or incandescent lighting and natural  daylight.



It however has some effect on your kidneys because  if they are having 
problems than it is a very simple thing to just go to a  Nephrologist and  see 
what is happening and why.


As you mentioned the normal Hemoglobin count for  women should be from 
around 13 to 17 however not necessarily for men  because men don't have their 
time of the month as woman do, so men require  a bit less of Hemoglobin.  


Now a count of 10.7 shows that you are enemic and  that can from a verity 
of different things. One being the effects from  your TKI being Gleevic which 
i think may be the cause, now mind you I am  not a doctor but someone that 
does a lot of research into things that i  have already been through.


Another thing would be kidney problems which i  kind of doubt because your 
doctors haven't mentioned it. Do you know what  your 


Levels of creatinine in the  blood reflect both the amount of muscle a 
person has and their amount of  kidney function. Most men with normal kidney 
function have approximately  0.6 to 1.2 milligrams/deciliters (mg/dL) of 
creatinine. Most women  with normal kidney function have between 0.5 to 1.1 
mg/dL  
of creatinine..


My Creatinine level was 8.2 before i started on my  dialysis and i had to 
go onto dialysis which lasted for four years. Then i  was able to get a 
kidney transplant from a 20 year old  deceased  man who was anonymous, and 
about 
two weeks later  it dropped down to 4.1 and kept dropping to where it is now 
at .8 and it  now stays there. Remember, i have only one kidney while  most 
other  people have two kidneys so i know that having only one kidney is 
doing  very well for me, and no more dialysis for me anymore.


What you did mention is that your counts are now  at   "My white  count is 
find  at 5.8).  Iron was 88 (50-212), Iron binding capacity was 281 (250 -  
450)". Which are  quite acceptable and very good for you.


And speaking about your kidneys let me give you  some information. When my 
kidneys started to fail i noticed that my  Hemoglobin also was dropping 
especially after i began to receive dialysis.  They were at 14 then would 
gradually drop to being 9.9 and that was the  magic bullet that 

Re: [CMLHope] Questions,

[Marty Gartenberg]

Listen Greenie,

This is what i do because of a promise that i once made to GOD. Let me tell
you about this.
When i was about to receive my total body radiation almost 30 years ago,

 just before they were about to close and lock that radiation chamber door
i got down on my knees clasped my hands in front of me and prayed to GOD
asking HIM if he would spare me i would help people that were in my
situation that i would try to help them. So far i have helped 1,286 people
in the past 30 years, and wrote my journal about each and every one of
them. This will never be published because of confidentiality reasons, but
on occasion i will send some of them parts of my book in order to try and
help them.

Listen i am no saint just a plain human being but someone that once made a
promise to GOD and i am still here after many many death defying things
that i have gone trough. And that is why i do what i promised to do. I hope
that you understand why i do what i do...

There is also why i write 18's when ever i end any posts that i make,
because that is what i believe. 18's to me represents LIFE.

If you care to send me your personal email address i would like to send you
something. Mine is wa2yyx@gmail,com

18's,

Marty

On Thu, Dec 21, 2017 at 4:28 PM, Myvety2k via CMLHope <
cmlhope@googlegroups.com> wrote:

> Marty, I want to thank you for your fast reply, I hear you.  I do have a
> Nephrologist and he had me get some blood work last month and he seems to
> be O.K. with the results.  I do have the paper work and will scan it and
> send it out so you can check it out.  I want to thank you so much, you have
> made me feel so much better and I will listen to what you wrote me.  Again
> I want to thank you.
>
> Greenie
>
> In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time,
> wa2...@gmail.com writes:
>
> Hi Greenie,
>
> First of all, you mention that you are worried. Why may i ask are you so
> worried? When people worry about things that they have little or no control
> over then it not only effects your mind but also your body. I know all
> about this because that is exactly what i used to do and i learned to
> direct my mind in more productive ways. Now just try to relax and get
> yourself going in the right direction.
>
> Now you mention about CRI so read this..
>
> *CRI* (color rendering index) is a measure of how accurately a light
> source illuminates objects' true colors. Our LED lights have *CRI* values
> of up to 98, indicating that our LED lights are able to produce white light
> that approximates halogen or incandescent lighting and natural daylight.
>
> It however has some effect on your kidneys because if they are having
> problems than it is a very simple thing to just go to a Nephrologist and
> see what is happening and why.
>
> As you mentioned the normal Hemoglobin count for women should be from
> around 13 to 17 however not necessarily for men because men don't have
> their time of the month as woman do, so men require a bit less of
> Hemoglobin.
>
> Now a count of 10.7 shows that you are enemic and that can from a verity
> of different things. One being the effects from your TKI being Gleevic
> which i think may be the cause, now mind you I am not a doctor but someone
> that does a lot of research into things that i have already been through.
>
> Another thing would be kidney problems which i kind of doubt because your
> doctors haven't mentioned it. Do you know what your
>
> *Levels* of *creatinine* in the blood reflect both the amount of muscle a
> person has and their amount of kidney function. Most men with normal kidney
> function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of
> *creatinine*. Most women with normal kidney function have between 0.5 to
> 1.1 mg/dL of *creatinine*..
>
> My Creatinine level was 8.2 before i started on my dialysis and i had to
> go onto dialysis which lasted for four years. Then i was able to get a
> kidney transplant from a 20 year old deceased  man who was anonymous, and
> about two weeks later it dropped down to 4.1 and kept dropping to where it
> is now at .8 and it now stays there. Remember, i have only one kidney
> while  most other people have two kidneys so i know that having only one
> kidney is doing very well for me, and no more dialysis for me anymore.
>
> What you did mention is that your counts are now at   "My white count is find
> at 5.8).  Iron was 88 (50-212), Iron binding capacity was 281 (250 - 450)". 
> Which
> are quite acceptable and very good for you.
>
> And speaking about your kidneys let me give you some information. When my
> kidneys started to fail i noticed that my Hemoglobin also was dropping
> especially after i began to receive dialysis. They were at 14 then would
> gradually drop to being 9.9 and that was the magic bullet that triggered
> that i would be able to start receiving Procrit or Epogin injections which
> brought my Hemoglobin to usually 11 and it would take about a week. Then a
> few weeks 

Re: [CMLHope] Questions,

[Myvety2k via CMLHope]

Marty, I want to thank you for your fast reply, I hear  you.  I do have a 
Nephrologist and he had me get some blood work last month  and he seems to be 
O.K. with the results.  I do have the paper work and  will scan it and send 
it out so you can check it out.  I want to thank you  so much, you have 
made me feel so much better and I will listen to what you  wrote me.  Again I 
want to thank you.
 
Greenie
 
 
In a message dated 12/21/2017 11:31:29 A.M. Eastern Standard Time,  
wa2...@gmail.com writes:

Hi Greenie,  


First of all, you mention that you are worried. Why may i ask are you so  
worried? When people worry about things that they have little or no control  
over then it not only effects your mind but also your body. I know all about 
 this because that is exactly what i used to do and i learned to direct my 
mind  in more productive ways. Now just try to relax and get yourself going 
in the  right direction. 


Now you mention about CRI so read this..


CRI (color  rendering index) is a measure of how accurately a light source 
illuminates  objects' true colors. Our LED lights have CRI values of  up to 
98, indicating that our LED lights are able to produce white light that  
approximates halogen or incandescent lighting and natural  daylight.



It  however has some effect on your kidneys because if they are having 
problems  than it is a very simple thing to just go to a Nephrologist and see  
what is happening and why.


As  you mentioned the normal Hemoglobin count for women should be from 
around 13  to 17 however not necessarily for men because men don't have their 
time  of the month as woman do, so men require a bit less of  Hemoglobin.  


Now  a count of 10.7 shows that you are enemic and that can from a verity 
of  different things. One being the effects from your TKI being Gleevic which 
i  think may be the cause, now mind you I am not a doctor but someone that 
does a  lot of research into things that i have already been  through.


Another thing would be kidney problems which i kind of  doubt because your 
doctors haven't mentioned it. Do you know what  your 


Levels of creatinine in the  blood reflect both the amount of muscle a 
person has and their amount of  kidney function. Most men with normal kidney 
function have approximately 0.6  to 1.2 milligrams/deciliters (mg/dL) of 
creatinine. Most women  with normal kidney function have between 0.5 to 1.1 
mg/dL 
of creatinine..


My  Creatinine level was 8.2 before i started on my dialysis and i had to 
go onto  dialysis which lasted for four years. Then i was able to get a 
kidney  transplant from a 20 year old deceased  man who was  anonymous, and 
about 
two weeks later it dropped down to 4.1 and kept  dropping to where it is 
now at .8 and it now stays there. Remember, i have  only one kidney while  
most other people have two kidneys so i know that  having only one kidney is 
doing very well for me, and no more dialysis for me  anymore.


What  you did mention is that your counts are now at   "My white  count is 
find at  5.8).  Iron was 88 (50-212), Iron binding capacity was 281 (250 -  
450)". Which are quite  acceptable and very good for you.


And  speaking about your kidneys let me give you some information. When my 
kidneys  started to fail i noticed that my Hemoglobin also was dropping 
especially  after i began to receive dialysis. They were at 14 then would 
gradually drop  to being 9.9 and that was the magic bullet that triggered that 
i 
would be able  to start receiving Procrit or Epogin injections which brought 
my Hemoglobin to  usually 11 and it would take about a week. Then a few 
weeks later another shot  and so on. The reason why is that your kidneys 
produce 
a *hormone that is sent  to your bone marrow that stimulates Red Blood 
cells into your bone  marrow.
*Erythropoietin (EPO) is a hormone  produced by the kidney that promotes 
the formation of red blood cells by the  bone marrow. The kidney cells that 
make erythropoietin are  sensitive to low oxygen levels in the blood that 
travels through the  kidney.


This  is what happened to me so i know what i am talking about. Ever since 
i  received my kidney transplant about two and a half years ago my 
Hemoglobin has  gotten to be around 14


Now  i am not saying that you have any problems with your kidneys but i am 
puzzled  why did your doctor mention about CRI?  As I mentioned why not go 
to see  a Nephrologist .  Couldn't hurt. 


Another suggestion that you have already mentioned,  and because you have a 
smart doctor looking after you why spend over $600 to  fly to Chicago when 
you have loads of very fine doctors in Florida especially  in your area?


Now  I have given you a lot of useful information and hopefully it will 
help you  and do you know why? It's because i was there and had to go through 
all of  this and i learned what i had to do, and besides your worth it! Yes 
you are.  Just as was my friend Lottie. She did a lot of research as 

Re: [CMLHope] Questions,

[Marty Gartenberg]

Hi Greenie,

First of all, you mention that you are worried. Why may i ask are you so
worried? When people worry about things that they have little or no control
over then it not only effects your mind but also your body. I know all
about this because that is exactly what i used to do and i learned to
direct my mind in more productive ways. Now just try to relax and get
yourself going in the right direction.

Now you mention about CRI so read this..

*CRI* (color rendering index) is a measure of how accurately a light source
illuminates objects' true colors. Our LED lights have *CRI* values of up to
98, indicating that our LED lights are able to produce white light that
approximates halogen or incandescent lighting and natural daylight.

It however has some effect on your kidneys because if they are having
problems than it is a very simple thing to just go to a Nephrologist and
see what is happening and why.

As you mentioned the normal Hemoglobin count for women should be from
around 13 to 17 however not necessarily for men because men don't have
their time of the month as woman do, so men require a bit less of
Hemoglobin.

Now a count of 10.7 shows that you are enemic and that can from a verity of
different things. One being the effects from your TKI being Gleevic which i
think may be the cause, now mind you I am not a doctor but someone that
does a lot of research into things that i have already been through.

Another thing would be kidney problems which i kind of doubt because your
doctors haven't mentioned it. Do you know what your

*Levels* of *creatinine* in the blood reflect both the amount of muscle a
person has and their amount of kidney function. Most men with normal kidney
function have approximately 0.6 to 1.2 milligrams/deciliters (mg/dL) of
*creatinine*. Most women with normal kidney function have between 0.5 to
1.1 mg/dL of *creatinine*..

My Creatinine level was 8.2 before i started on my dialysis and i had to go
onto dialysis which lasted for four years. Then i was able to get a kidney
transplant from a 20 year old deceased  man who was anonymous, and about
two weeks later it dropped down to 4.1 and kept dropping to where it is now
at .8 and it now stays there. Remember, i have only one kidney while  most
other people have two kidneys so i know that having only one kidney is
doing very well for me, and no more dialysis for me anymore.

What you did mention is that your counts are now at   "My white count is find
at 5.8).  Iron was 88 (50-212), Iron binding capacity was 281 (250 -
450)". Which
are quite acceptable and very good for you.

And speaking about your kidneys let me give you some information. When my
kidneys started to fail i noticed that my Hemoglobin also was dropping
especially after i began to receive dialysis. They were at 14 then would
gradually drop to being 9.9 and that was the magic bullet that triggered
that i would be able to start receiving Procrit or Epogin injections which
brought my Hemoglobin to usually 11 and it would take about a week. Then a
few weeks later another shot and so on. The reason why is that your kidneys
produce a *hormone that is sent to your bone marrow that stimulates Red
Blood cells into your bone marrow.
**Erythropoietin* (*EPO*) is a hormone produced by the kidney that promotes
the formation of red blood cells by the bone marrow. The kidney cells that
make *erythropoietin* are sensitive to low oxygen levels in the blood that
travels through the kidney.

This is what happened to me so i know what i am talking about. Ever since i
received my kidney transplant about two and a half years ago my Hemoglobin
has gotten to be around 14

Now i am not saying that you have any problems with your kidneys but i am
puzzled why did your doctor mention about CRI?  As I mentioned why not go
to see a Nephrologist . Couldn't hurt.

Another suggestion that you have already mentioned, and because you have a
smart doctor looking after you why spend over $600 to fly to Chicago when
you have loads of very fine doctors in Florida especially in your area?

Now I have given you a lot of useful information and hopefully it will help
you and do you know why? It's because i was there and had to go through all
of this and i learned what i had to do, and besides your worth it! Yes you
are. Just as was my friend Lottie. She did a lot of research as well in her
time which i never forgot... In fact so did Zavie,

Now finally, since AOL is going out then you already did the right thing by
switching over to another (FREE, I love that four letter F letter word)
internet provider. You also may want to get another F word like gmail just
in case as a backup.

Please, please Greenie try to stop worrying, just take it one day at a
time. You know it will all work out.

18's,

Marty

On Thu, Dec 21, 2017 at 7:10 AM, Myvety2k via CMLHope <
cmlhope@googlegroups.com> wrote:

> To all of my CML friends and care givers.
>
> I took a flight to Chicago Dec. 6th to see my cancer Doctor get 

Re: [CMLHope] Questions

['Marcie Goodman' via CMLHope]

Marty, sorry you've been through such a painful time but so glad you are doing 
better. Thoughts and prayers are with you. 

18s

Marcie

Sent from my iPhone

 On May 5, 2015, at 2:51 PM, Marty Gartenberg wa2...@gmail.com wrote:
 
 HI Suzieq
 
 From my understanding The first patent for Gleevec expires in July 2015. This 
 is the earliest predictable date that a generic version could become 
 available. However this will probably be something that Novartis will fight 
 and make some minor changes to it and maybe refilled it again. They will 
 loose a lot of money so you can bet they intend to do something about it, or 
 maybe they will give everyone a break with the cost of it. Only the future 
 will tell.
 
   I read your post and I would like to comment on the second statement that 
 you made.
 First some people just don't know how to speak to people. Even this doctor 
 that you mentioned. They give false and stupid advice especially to the newly 
 diagnosed. By saying that she will be cured in one year is observed and gives 
 false hope. 
 
 You are correct about her looking for a new onc that specializes in CML. 
 However as I have said many times it is my feeling that CML will be cured in 
 the near future. If so I would love to say, I told you so, and I will!.
 
 Then you made a comment that goes against my grain, and that was that you 
 thought that you were going to die because of all the side effects. I hope 
 that you remember me saying that CML poisons your body as well as your mind. 
 
 Your mind is a very powerful tool to be able to help yourself. I would like 
 for you and everyone to read this.
 
  
 EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. 
 TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF 
 YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER 
 MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.
 
 WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF 
 MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING 
 INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU 
 THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.
 
 EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE 
 BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE 
 SUCCESSFUL OUTCOME...
 
 FOCUS...
 
 How do you think that I was able to have a bone marrow transplant and living 
 in a small plastic bubble that was in the hospital for seven months? It is 
 because I was able to use my mind to focus...
 
 Why do you think that I always end any of my posts with 18's? Well, it is 
 because it means life, and that is positive thinking.
 
 18's,
 
 Marty
 
 On Tue, May 5, 2015 at 11:35 AM, Suzieq sheila.a.wat...@gmail.com wrote:
 Hello there fellow CML Survivors:   
 
  My 1st question: Does anyone know about the patent on Gleevec and if it's 
 about to expire?  I was thinking it had up till this month,  or the last 
 time I saw the information on it, I thought their extension ended sometime 
 in May of 2015.  I don't remember where it was that we could go and look at 
 that information.   I told my husband that I thought for sure the price 
 would drop on Gleevec by now,  but from what I've seen from some new cases,  
 it looks as if it's increased in price.  Course,  I didn't see the quantity 
 that the price was for,  that could make a difference, I'm sure. 
 
 2nd question: How many TKI's are there now for CML (approved and also those 
 in trials)?  There are two groups I am in on Facebook and so many new cases 
 being dx'ed every day that it's just unreal.  I get upset with some of the 
 CML Survivors in these groups and what they will tell these newly dx'ed 
 people who seem scared to death  looking for good information.  I even 
 talked to my doctor about some of this stuff that they are saying.  One told 
 a new dx'ed person that his doctor told him when he was first dx'ed,  well, 
 will put you on this drug (didn't specify which one) and you will take it 
 every day. This and this will happen and you'll be cured within a year.  I 
 about came unglued when I read that.  And,  I made sure in my comment to 
 this newly dx'ed person when I was trying to uplift her and give her advice 
 of what I went through and what helped me over the past 11 years that I 
 would be very leary of any doctor who told me that I would be cured in a 
 year!  Infact, I would be finding another Hem./Onc quickly.  I told her that 
 as far as I knew,  there still is no cure for CML that they know of. That 
 these drugs are too new and not enough research to let them know if it might 
 be a cure one day.  I told her that you can become undetected or non 
 detected after being on the TKI's after some time.  I told her that I call 
 it a drug induced remission (those are my words, not a doctors, lol).  
 There are these so called experts who have CML and looked 

Re: [CMLHope] Questions

['Icandoallttc' via CMLHope]

Hi susieq. I think John and I are on the latest approved tki--ponatinib.  If 
you look at the end of my post you will see what I have taken and where I'm at 
today.  It seems we were dx the same year.  I started gleevec in feb.that year. 
 Well we are both still here. Thanks to faith and pills. 
I am interested in your initial treatment if you don't mind before you started 
gleevec. God bless all 

Prayers  Blessings Jeanie 18,s
Dx 1/2004
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015

 On May 5, 2015, at 2:51 PM, Marty Gartenberg wa2...@gmail.com wrote:
 
 HI Suzieq
 
 From my understanding The first patent for Gleevec expires in July 2015. This 
 is the earliest predictable date that a generic version could become 
 available. However this will probably be something that Novartis will fight 
 and make some minor changes to it and maybe refilled it again. They will 
 loose a lot of money so you can bet they intend to do something about it, or 
 maybe they will give everyone a break with the cost of it. Only the future 
 will tell.
 
   I read your post and I would like to comment on the second statement that 
 you made.
 First some people just don't know how to speak to people. Even this doctor 
 that you mentioned. They give false and stupid advice especially to the newly 
 diagnosed. By saying that she will be cured in one year is observed and gives 
 false hope. 
 
 You are correct about her looking for a new onc that specializes in CML. 
 However as I have said many times it is my feeling that CML will be cured in 
 the near future. If so I would love to say, I told you so, and I will!.
 
 Then you made a comment that goes against my grain, and that was that you 
 thought that you were going to die because of all the side effects. I hope 
 that you remember me saying that CML poisons your body as well as your mind. 
 
 Your mind is a very powerful tool to be able to help yourself. I would like 
 for you and everyone to read this.
 
  
 EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. 
 TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF 
 YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER 
 MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.
 
 WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF 
 MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING 
 INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU 
 THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.
 
 EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE 
 BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE 
 SUCCESSFUL OUTCOME...
 
 FOCUS...
 
 How do you think that I was able to have a bone marrow transplant and living 
 in a small plastic bubble that was in the hospital for seven months? It is 
 because I was able to use my mind to focus...
 
 Why do you think that I always end any of my posts with 18's? Well, it is 
 because it means life, and that is positive thinking.
 
 18's,
 
 Marty
 
 On Tue, May 5, 2015 at 11:35 AM, Suzieq sheila.a.wat...@gmail.com wrote:
 Hello there fellow CML Survivors:   
 
  My 1st question: Does anyone know about the patent on Gleevec and if it's 
 about to expire?  I was thinking it had up till this month,  or the last 
 time I saw the information on it, I thought their extension ended sometime 
 in May of 2015.  I don't remember where it was that we could go and look at 
 that information.   I told my husband that I thought for sure the price 
 would drop on Gleevec by now,  but from what I've seen from some new cases,  
 it looks as if it's increased in price.  Course,  I didn't see the quantity 
 that the price was for,  that could make a difference, I'm sure. 
 
 2nd question: How many TKI's are there now for CML (approved and also those 
 in trials)?  There are two groups I am in on Facebook and so many new cases 
 being dx'ed every day that it's just unreal.  I get upset with some of the 
 CML Survivors in these groups and what they will tell these newly dx'ed 
 people who seem scared to death  looking for good information.  I even 
 talked to my doctor about some of this stuff that they are saying.  One told 
 a new dx'ed person that his doctor told him when he was first dx'ed,  well, 
 will put you on this drug (didn't specify which one) and you will take it 
 every day. This and this will happen and you'll be cured within a year.  I 
 about came unglued when I read that.  And,  I made sure in my comment to 
 this newly dx'ed person when I was trying to uplift her and give her advice 
 of what I went through and what helped me over the past 11 years that I 
 would be very leary of any doctor who told me that I would be cured in a 
 year!  Infact, I would be finding another Hem./Onc quickly.  I told her that 
 as far as I knew,  there still is no cure 

Re: [CMLHope] Questions

[Marty Gartenberg]

HI Suzieq

From my understanding The first patent for Gleevec expires in July 2015.
This is the earliest predictable date that a generic version could become
available. However this will probably be something that Novartis will fight
and make some minor changes to it and maybe refilled it again. They will
loose a lot of money so you can bet they intend to do something about it,
or maybe they will give everyone a break with the cost of it. Only the
future will tell.

  I read your post and I would like to comment on the second statement that
you made.
First some people just don't know how to speak to people. Even this doctor
that you mentioned. They give false and stupid advice especially to the
newly diagnosed. By saying that she will be cured in one year is observed
and gives false hope.

You are correct about her looking for a new onc that specializes in CML.
However as I have said many times it is my feeling that CML will be cured
in the near future. If so I would love to say, I told you so, and I will!.

Then you made a comment that goes against my grain, and that was that you
thought that you were going to die because of all the side effects. I hope
that you remember me saying that CML poisons your body as well as your
mind.

Your mind is a very powerful tool to be able to help yourself. I would like
for you and everyone to read this.



EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF
CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN
YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET
(MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.

WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF
MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING
INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU
THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.

EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE
BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE
SUCCESSFUL OUTCOME...

FOCUS...
How do you think that I was able to have a bone marrow transplant and
living in a small plastic bubble that was in the hospital for seven months?
It is because I was able to use my mind to focus...

Why do you think that I always end any of my posts with 18's? Well, it is
because it means life, and that is positive thinking.

18's,

Marty

On Tue, May 5, 2015 at 11:35 AM, Suzieq sheila.a.wat...@gmail.com wrote:

 Hello there fellow CML Survivors:

  My 1st question: Does anyone know about the patent on Gleevec and if
 it's about to expire?  I was thinking it had up till this month,  or the
 last time I saw the information on it, I thought their extension ended
 sometime in May of 2015.  I don't remember where it was that we could go
 and look at that information.   I told my husband that I thought for sure
 the price would drop on Gleevec by now,  but from what I've seen from some
 new cases,  it looks as if it's increased in price.  Course,  I didn't see
 the quantity that the price was for,  that could make a difference, I'm
 sure.

 2nd question: How many TKI's are there now for CML (approved and also
 those in trials)?  There are two groups I am in on Facebook and so many new
 cases being dx'ed every day that it's just unreal.  I get upset with some
 of the CML Survivors in these groups and what they will tell these newly
 dx'ed people who seem scared to death  looking for good information.  I
 even talked to my doctor about some of this stuff that they are saying.
 One told a new dx'ed person that his doctor told him when he was first
 dx'ed,  well, will put you on this drug (didn't specify which one) and you
 will take it every day. This and this will happen and you'll be cured
 within a year.  I about came unglued when I read that.  And,  I made sure
 in my comment to this newly dx'ed person when I was trying to uplift her
 and give her advice of what I went through and what helped me over the past
 11 years that I would be very leary of any doctor who told me that I would
 be cured in a year!  Infact, I would be finding another Hem./Onc
 quickly.  I told her that as far as I knew,  there still is no cure for CML
 that they know of. That these drugs are too new and not enough research to
 let them know if it might be a cure one day.  I told her that you can
 become undetected or non detected after being on the TKI's after some
 time.  I told her that I call it a drug induced remission (those are my
 words, not a doctors, lol).  There are these so called experts who have
 CML and looked at all the info and try and tell the new ones that there's
 studies going on and some seemed to be cured. (that's false information)
  My doctor told me (and I have read the info, too) that the one study that
 was done in England, I believe it was, had several go off their Gleevec.
 Within a year's time, 50% had their CML return.  I'm thinking