[TMIC] RE: tmic-digest Digest V2010 #173
I was raised in the U.P. of Mich. and was living in northern Mich in 1981 when got TM. at age 55. Thirty years ago many believed that living in the north was a contributing factor for TM. Ken in NM Date: Fri, 7 May 2010 11:03:55 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2010 #173 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2010 : Issue 173 Today's Topics: Re: [TMIC] TM [ CANDIS KALLEY ] [TMIC] Correction Christopher REEVE [ Akua ] RE: [TMIC] TM [ "Patricia Cooley" To: tmic-list@eskimo.com Sent: Thursday, May 6, 2010 10:55:00 PM GMT -05:00 US/Canada Eastern Subject: [TMIC] TM After the awful news Janet Dunn has given us, I am wondering if where we live in the US has any relevance. I realize that there are those in our group that are from other countries and I am asking them along with our US citizens to just send me your name and the city and state you were living in when TM attacked you. I hope you don't mind my asking you to do this, but I think it would be very interesting if we found a certain area that was heavy with TM or very light with TM. Thank you, Janice --Forwarded Message Attachment-- Date: Fri, 7 May 2010 00:41:05 -0400 From: a...@artfarm.com To: tmic-list@eskimo.com Subject: Re: [TMIC] just wondering According to my booklet from the Reed foundation, it is well within the realm of possibility. It seems to depend on the level and type/span of your injury. You should contact the Reed foundation and get that booklet-- it was incredibly helpful to me while i was in the nursing home being mistreated. And I shared it with the other oppressed prisoners-- a couple of guys who told me it was VERY helpful. -- --Forwarded Message Attachment-- Date: Fri, 7 May 2010 02:01:02 -0400 From: a...@artfarm.com To: tmic-list@eskimo.com Subject: [TMIC] Correction Christopher REEVE Foundation http://www.christopherreeve.org/ -- --Forwarded Message Attachment-- Date: Fri, 7 May 2010 09:25:40 -0500 From: patticoo...@wi.rr.com To: jan...@centurytel.net; tmic-list@eskimo.com Subject: RE: [TMIC] TM Janice - I am and was living in S.E. Wisconsin when I got TM. I have heard that our northern states i.e., Wisconsin, Minnesota, etc. have more cases of TM & MS. They believe it may be due to the long winters and lack of Vitamin D during our long and dark winters. I have been taking 2,000 IU 3 times a day. It is worth a try. Patti - Wisconsin From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Thursday, May 06, 2010 9:55 PM To: tmic-list@eskimo.com Subject: [TMIC] TM After the awful news Janet Dunn has given us, I am wondering if where we live in the US has any relevance. I realize that there are those in our group that are from other countries and I am asking them along with our US citizens to just send me your name and the city and state you were living in when TM attacked you. I hope you don't mind my asking you to do this, but I think it would be very interesting if we found a certain area that was heavy with TM or very light with TM. Thank you, Janice --Forwarded Message Attachment-- Date: Fri, 7 May 2010 10:53:25 -0500 From: jan...@centurytel.net To: cakal...@embarqmail.com; TMIC-LIST@eskimo.com Subject: Re: [TMIC] TM Thanks for your response.It will be interesting to see what others say. Janice From: CANDIS KALLEY Sent: Thursday, May 06, 2010 11:35 PM To: TMIC-LIST Subject: Re: [TMIC] TM I don't think that where we lived when TM struck is the only underlying factor. I was watching CNN and the doctor, Dr. Grupa?, said that they have studied the cord blood of newborns and they have found that the cord blood contained over 200 chemicals, not body chemials but harmful chemicals - "contaminated newborns" is what they called the newborns. The Dr. also said that there are thousands of chemicals that are in our food, air, clothing, cleaning supplies, etc. that have NOT been studied to make sure that they are not harmful. A Congressman has submitted a bill that will not allow any chemical to be used until the chemical is proven not harmful - as it stands now, a chemical is put into use and used until it is proven to be harmful! So we are all guinea pigs for the industries. For myself I believe that I had the "bad genes" for my auoimmune sstem but also just 75 days before TM struc me, I had a "botched" surgery then a follow-up "successful" surgery 30 days later. In between the surgeries, I had an allergy reaction to the meds that they gave me. After the "successful" sugery, I went back to work early - due to deadlines which resulted in stress! Added to that were the holidays stress - Thanksgiving and Christmas. I think another factor was that the hospital where I had the "botched" & "successful" surgery was
[TMIC] RE: tmic-digest Digest V2009 #1019
Hi Linda, Thanks for your incouraging post, it is indeed great to be home. I am feeling so much better. At least about 90% of the tm pain has been gone for two weeks. I still have to go to the gym at least twice a week and get my strength built up. Ken in Los Lunas, NM Date: Wed, 25 Nov 2009 21:57:43 -0800 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #1019 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 1019 Today's Topics: Re: [TMIC] RE: tmic-digest Digest V2 [ "L T CHERPESKI" ] --Forwarded Message Attachment-- Date: Wed, 25 Nov 2009 22:54:54 -0700 From: cherp...@msn.com To: tmic-list@eskimo.com; kenoliver...@hotmail.com Subject: Re: [TMIC] RE: tmic-digest Digest V2009 #1016 Hi Ken - welcome home! What a blessing it is that you are home and recovering - and an added bonus that that old TM pain is on vacation. So happy to see you back here. Happy Thanksgiving to you and your family, Linda in Eagle, Idaho - Original Message - From: Kenneth Oliver To: tmic-list@eskimo.com Sent: Wednesday, November 25, 2009 9:49 PM Subject: [TMIC] RE: tmic-digest Digest V2009 #1016 HAPPY tHANKSGIVING to all of you, I have just come on line after two month away from the list. I am recoverying from cancer surgery with three weeks in the hospital and nearly seven weeks in rehab. I am thanking God for His great love and mercy in the healing and renewed strength. I am feeling great in all ways even the tm pain has taken a rest. I feel better than I have in two years. Ken in New Mexico Date: Wed, 25 Nov 2009 19:15:22 -0800 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #1016 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 1016 Today's Topics: [TMIC] Re: [TMIC - Happy Thanksgivin [ Barbara Alma ] Re: [TMIC][ "Janice Nichols" );>);>) BobbyJim From: Janice Nichols To: bobby jim ; Barbara H. ; Alton Ryder ; jrushton Cc: TMIC Sent: Tuesday, November 24, 2009 23:02 Subject: Re: [TMIC] Why aren't you helping her cook too? Janice From: bobby jim Sent: Tuesday, November 24, 2009 10:53 PM To: Janice Nichols ; Barbara H. ; Alton Ryder ; jrushton Cc: TMIC Subject: Re: [TMIC] And me missus, the one with MS, is in the middle of making spinach pâté also to be sent out as Xmas presents. What a chore.!! And I get to wash all of them dishes ;>) BobbyJim From: Janice NicholsTo: Barbara H. ; Alton Ryder ; jrushtonCc: TMIC Sent: Tuesday, November 24, 2009 22:28 Subject: Re: [TMIC] Barbara, You must be in pretty good shape to accomplish all that.What problems did TM leave you with? I just finished baking 16 loaves of strawberry bread that I make for friends for Christmas. Was really glad to have that done! Janice From: Barbara H. Sent: Tuesday, November 24, 2009 4:21 PM To: Alton Ryder Cc: TMIC Subject: Re: [TMIC] Today -- buying Thanksgiving groceries. Tomorrow: baking and cleaning (though I am passing off much of the latter to the kids, Bwahahaha). Barbara H. http://barbara...@gmail.com On Tue, Nov 24, 2009 at 5:17 PM, Alton Ryder wrote: Some of us are quietly reading with not much to say. Alton, who thinks FaceBook is a time sucker On Nov 24, 2009, at 2:08 PM, jrushton wrote: Where is everyone? --Forwarded Message Attachment-- Date: Wed, 25 Nov 2009 21:06:35 -0600 From: elbobber...@earthlink.net To: jan...@centurytel.net; cherp...@msn.com; tmic-list@eskimo.com Subject: Re: [TMIC] She likes to play Sims games on da puter, so she selected what kinda machine she wanted, ordered the parts and I put it together.It runs so hot it needs ten, yes ten, fans all over the place to keep it cool. It has 4 GB RAM memory, a SATA 350GB hard drive, and so forth and so on (if all this means anything to y'all). Even tho I put it together, it wasn't all that cheap. ;>) BobbyJim From: Janice Nichols To: bobby jim ; L T CHERPESKI ; tmic Sent: Tuesday, November 24, 2009 23:03 Subject: Re: [TMIC] What kind of machine did you make and how did it help her? Janice From: bobby jim Sent: Tuesday, November 24, 2009 10:50 PM To: Janice Nichols ; L T CHERPESKI ; tmic Subject: Re: [TMIC] Hey, am six years older than you and last year I built me missus a brand spankin' new monster machine, and it's still running unimpededly. So there.;>);>);>)BobbyJim in Elvisland From: Janice Nichols To: L T CHERPESKI ; tmic Sent: Tuesday, November 24, 2009 19:25Subject: Re: [TMIC] Yes, but it is an adjustment for an old woman - 63 next week! Janice From: L T CHERPESKI Sent: Mond
[TMIC] RE: tmic-digest Digest V2009 #1016
HAPPY tHANKSGIVING to all of you, I have just come on line after two month away from the list. I am recoverying from cancer surgery with three weeks in the hospital and nearly seven weeks in rehab. I am thanking God for His great love and mercy in the healing and renewed strength. I am feeling great in all ways even the tm pain has taken a rest. I feel better than I have in two years. Ken in New Mexico Date: Wed, 25 Nov 2009 19:15:22 -0800 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #1016 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 1016 Today's Topics: [TMIC] Re: [TMIC - Happy Thanksgivin [ Barbara Alma ] Re: [TMIC][ "Janice Nichols" );>);>) BobbyJim From: Janice Nichols To: bobby jim ; Barbara H. ; Alton Ryder ; jrushton Cc: TMIC Sent: Tuesday, November 24, 2009 23:02 Subject: Re: [TMIC] Why aren't you helping her cook too? Janice From: bobby jim Sent: Tuesday, November 24, 2009 10:53 PM To: Janice Nichols ; Barbara H. ; Alton Ryder ; jrushton Cc: TMIC Subject: Re: [TMIC] And me missus, the one with MS, is in the middle of making spinach pâté also to be sent out as Xmas presents. What a chore.!! And I get to wash all of them dishes ;>) BobbyJim From: Janice NicholsTo: Barbara H. ; Alton Ryder ; jrushtonCc: TMIC Sent: Tuesday, November 24, 2009 22:28 Subject: Re: [TMIC] Barbara, You must be in pretty good shape to accomplish all that.What problems did TM leave you with? I just finished baking 16 loaves of strawberry bread that I make for friends for Christmas. Was really glad to have that done! Janice From: Barbara H. Sent: Tuesday, November 24, 2009 4:21 PM To: Alton Ryder Cc: TMIC Subject: Re: [TMIC] Today -- buying Thanksgiving groceries. Tomorrow: baking and cleaning (though I am passing off much of the latter to the kids, Bwahahaha). Barbara H. http://barbara...@gmail.com On Tue, Nov 24, 2009 at 5:17 PM, Alton Ryder wrote: Some of us are quietly reading with not much to say. Alton, who thinks FaceBook is a time sucker On Nov 24, 2009, at 2:08 PM, jrushton wrote: Where is everyone? --Forwarded Message Attachment-- Date: Wed, 25 Nov 2009 21:06:35 -0600 From: elbobber...@earthlink.net To: jan...@centurytel.net; cherp...@msn.com; tmic-list@eskimo.com Subject: Re: [TMIC] She likes to play Sims games on da puter, so she selected what kinda machine she wanted, ordered the parts and I put it together.It runs so hot it needs ten, yes ten, fans all over the place to keep it cool. It has 4 GB RAM memory, a SATA 350GB hard drive, and so forth and so on (if all this means anything to y'all). Even tho I put it together, it wasn't all that cheap. ;>) BobbyJim From: Janice Nichols To: bobby jim ; L T CHERPESKI ; tmic Sent: Tuesday, November 24, 2009 23:03 Subject: Re: [TMIC] What kind of machine did you make and how did it help her? Janice From: bobby jim Sent: Tuesday, November 24, 2009 10:50 PM To: Janice Nichols ; L T CHERPESKI ; tmic Subject: Re: [TMIC] Hey, am six years older than you and last year I built me missus a brand spankin' new monster machine, and it's still running unimpededly. So there.;>);>);>)BobbyJim in Elvisland From: Janice Nichols To: L T CHERPESKI ; tmic Sent: Tuesday, November 24, 2009 19:25Subject: Re: [TMIC] Yes, but it is an adjustment for an old woman - 63 next week! Janice From: L T CHERPESKI Sent: Monday, November 23, 2009 11:28 PM To: tmic ; Janice Nichols Subject: Re: [TMIC] Hi Janice - we missed you too. You're coming through just fine. Isn't it nice to have a new computer... Linda - Original Message - From: Janice Nichols To: tmic Sent: Monday, November 23, 2009 9:15 PM Subject: [TMIC] Hey Guys! We got a new computer and am not sure I am reaching you again. Would you mind sending me an email letting me know I am on with you all again? Sure missed you! Janice _ Hotmail: Trusted email with powerful SPAM protection. http://clk.atdmt.com/GBL/go/177141665/direct/01/
[TMIC] Re. The banding
Those of you who have questions about the banding of Tm.. I was in the hospital for nine weeks during this time The band around my belly felt like a band of steel holding me down. At the same my belly went fro 36 to 55 inches even though I lost 30 lbs. It was 1981 that got this, for several years I had a band of pain that got worse if I tried to lay on my back. At times my waist could swell up in a matter of minutes, this was always when I had a nervous reaction. The constant pain lasted for ten years plus. Even now after 29 yrs I still have it once in awhile, and my belly swells up at the same time. Many times it may only take an hour after some nervous reaction, I have never been able to get any medical relief.. Ken
[TMIC] Re. Powerchair
I have a Hoveround for ten years, it has been completely rebuilt twice at no cast to me . Medicare & my secondary have covered all expence. I can not use a regular chair and this has been the best for me. I wore out two Rascals and one Pride Dynamo scooters. This is front wheel drive, it can get stuck fairly easy when one of the rear wheels gets stuck in loose sand.. I have a rear carrier on the car to transport it. Good Luck. Ken
[TMIC] RE: tmic-digest Digest V2009 #710
I am vsorry to hear of this little girl. Being on a respirator does not sound good. My prayers are with all the rest. How long has she been paralyzed? I was told if had not any movement with in a week I would have died. I moved one toe. Ken Date: Sun, 19 Jul 2009 09:03:52 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #710 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 710 Today's Topics: Re: [TMIC] A little update on the li [ "jrushton" --Forwarded Message Attachment-- Date: Sat, 18 Jul 2009 22:18:52 -0500 From: jrush...@columbiaenergyllc.com To: roseofr...@aol.com Subject: Re: [TMIC] A little update on the little girl I have good news that she is off of the respirator and has a trach and they are starting her on PT. She has moved her toe which is encouraging (I remember that part, too!). They also did the plasma exchange so that is good, too. Prayers are like wildfire which is wonderful. Thank you all. Love you so very much and am so glad you are all a part of my life! Jeanne ---Original Message--- From: roseofr...@aol.com Date: 7/18/2009 11:35:28 PM To: jrush...@columbiaenergyllc.com Subject: Re: [TMIC] A little update on the little girl Oh myI didn't know she was on a respirator. That poor child. I will keep praying for her Sweetie...and will watch for updates from you whenever I'm on the computer. I'm not on here every day because of the darn pain... but will look for you whenever I am on here. Love ya, Lynn Jeanne..I'm on a prayer team.. if you can just write me a paragraph or so about her situation... I will send it to my circle of angels. An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! _ NEW mobile Hotmail. Optimized for YOUR phone. Click here. http://windowslive.com/Mobile?ocid=TXT_TAGLM_WL_CS_MB_new_hotmail_072009<><>
[TMIC] RE: tmic-digest Digest V2009 #688
I had blurred vsion after taking neurotin for about three years. I stopped taking it for other reasons and went an othamoligist and had catarack surgery and the new glasses cleared it all up. That was abou ten yrs ago, I am now 84. Have had tm since 1981. Ken Date: Sat, 11 Jul 2009 21:34:33 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #688 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 688 Today's Topics: Re: [TMIC] Blured vision [ rj_ran...@yahoo.com ] Re: [TMIC] Nerve Pain [ "Janice" ] Re: [TMIC] Nerve Pain [ "L T CHERPESKI" ] --Forwarded Message Attachment-- Date: Sun, 12 Jul 2009 02:21:58 + From: rj_ran...@yahoo.com To: heyjude48...@aol.com; wim_from_holl...@hotmail.com; ladyno...@aol.com; tmic-list@eskimo.com; quad-l...@eskimo.com Subject: Re: [TMIC] Blured vision When u all talk about blurred vision are u talking mild blurriness or where you can't tell where the door knob is or the location of a table. I was nearsighted and got laxic (sp) and vision was blurred but this is different. Things can be superimpossed images or ghost like. Sent from my Verizon Wireless BlackBerry From: heyjude48...@aol.com Date: Sat, 11 Jul 2009 20:25:54 EDT To: ; ; ; ; Subject: Re: [TMIC] Blured vision I too have blurred vision since the onset of TM. I am on all of the meds and have no idea which came first, the blurred vision or the meds... (There might have been a joke in there somewhere) Anyway, a lot of us TM'ers are over the age of 40, so blurred vision might be a combination of the disease and/or our turning "middle-aged". May the Lord to whom you look up to, with grateful eyes, be with you, and keep you safe . I love you, Jude In a message dated 7/11/2009 12:25:04 P.M. Eastern Daylight Time, rj_ran...@yahoo.com writes: My neuro also said that the blurred vision was neurlogical in nature and the result of demyelination n brain stem. But I have experienced double vision just after taking ambien once. On the other times I was not on any meds Sent from my Verizon Wireless BlackBerry From: wim from holland Date: Sat, 11 Jul 2009 12:46:30 +0200 To: ; TMIC; Subject: RE: [TMIC] Blured vision I got my blured vision in the time the first signs were there month for TM. Only I did not know what was happening to me. Around a few month before. Meds did not make the difference. It got worse after the TM. I only take Baclofen, no pain meds. The most logical explenation for the eye-site problem was the age, around 43. But just a year before my eyes were checked by the medical serveces of my company. This discussion has come by every few years, look into the archives and you will see, that what we has found out. Blured vion is TM related, and medication has very little to do with that. Some meds will make a little difference, the mail course is TM. Also the age. Most of us are in the 40's or older. Yes guys, you are getting old. So it is a difficult discussion with the doctors, they simply keep it on the age, while we know, compairing this problem with eachother that it is also TM related. Wim from Holland From: ladyno...@aol.com Date: Tue, 7 Jul 2009 21:46:22 -0400 To: tmic-list@eskimo.com; quad-l...@eskimo.com Subject: [TMIC] Blured vision During the course of my medication regimen, I had taken medication that has caused me to have blurred vision. I know there has been others who have complained about having their vision impaired due to medication. My question is this: has anyone stopped taking the medication and have their vision improve or return to normal? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis Looking for love this summer? Find it now on AOL Personals. Deel je favoriete foto's online met Windows Live Photos A Good Credit Score is 700 or Above. See yours in just 2 easy steps! --Forwarded Message Attachment-- Date: Sat, 11 Jul 2009 22:26:50 -0500 From: jan...@centurytel.net To: cherp...@msn.com; alle...@aol.com; tmic-list@eskimo.com Subject: Re: [TMIC] Nerve Pain Linda, mine are steroids - different kinds. It helps the sharp nerve pain going down my legs.The doc gives it to me in my lower back and it goes down to lower calf.They use different things on me depending on where the pain is. I know you were asking Ella, but I jumped in too. It is my pain management doc who does this. Janice - Original Message - From: L T CHERPESKI To: alle...@aol.com ; tmic-list@eskimo.com ; Janice Sent: Saturday, July 11, 2009 9:01 PM Subject: Re: [TMIC] Nerve Pain I think I may have missed a post so sorry if this has already been answered. Ella, what "medicine" is in the shots? I've never heard of getting shots for the pain. I might want some of that! Linda - Original M
[TMIC]
I have had tm since 1981. In the hospital itt felt like a steel band around my waist. After leaving the hospital it became a band of pain, this lasted for 25 yrs then became intermintent. It always returns if I try to lay on my stomach. Tm completely changed both my life, but also my wife who was my care given for 27yrs, we became very close in spite of lack of intermmacy. I could not bear to be touched from my shoulders down. I was C7. My wife died last June and was so concerned for me that she requested my son to take me home, she was dying and did not want me to see her. Both hot and cold bother me, my feet feel like they in hot water even in hot weather. They are usually cold to the touch. I only sweat from arm pits up. Ken _ Windows Live™: Keep your life in sync. http://windowslive.com/explore?ocid=TXT_TAGLM_WL_BR_life_in_synch_062009
[TMIC] RE: tmic-digest Digest V2009 #475
Jude, It is nearly 29 yrs since tm. There are still new things happening, some where we will have many of the same pains repeating themselves. A doctor told me years ago that I would have good days and bad and be thankful for good. That is how it has been for me. He also said what ever I had at two years would be what I would live with. That has been pretty much it has been for. May God's mercy and care be with you all. Ken Date: Sat, 30 May 2009 17:54:25 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #475 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 475 Today's Topics: Re: [TMIC] antidepressants[ heyjude48...@aol.com ] [TMIC] tm in june 8 People magazine [ "rn11...@yahoo.com" ] --Forwarded Message Attachment-- Date: Sat, 30 May 2009 09:59:00 -0400 From: heyjude48...@aol.com To: we4king...@verizon.net; tmic-list@eskimo.com Subject: Re: [TMIC] antidepressants Dearest Mindy, It has only been two years for you. That is not a long time and even though you may feel that you are emotionally healed and have accepted your life the way it is now, I doubt that you have. You would be exceptional if you were that stable. I'm not saying that you are not stable, but from experience, I know how big the losses are with TM and they sneak up on you years after you think you are finished with them. I would like others to comment on this one. It's very important and I am interested in what you have to say. Even with blessings from your doctor, Mindy, I would be very careful and think this through thoroughly. I love you so much and only want you to be safe, healthy and happy. Love and Prayers, Jude In a message dated 5/29/2009 2:45:06 P.M. Eastern Daylight Time, we4king...@verizon.net writes: Dear friends. I am continuing to feel better. Now that I look back I can see that I have been Improving for about a month even though I'm passed the 2 year mark. The hope it has given me above and beyond the general "coming to terms" and "acceptance" that one should reach by their 2 year mark, has made me decide that I am ready to get off my antidepressant. I have read that Cymbalta is very difficult to come off of and that other people have had good results opening the capsules and reducing the dose incrementally themselves every few days. I just spoke with my doctor and have her blessing in this endeavor as she has had other patients wean off successfully doing this. Cymbalta saved my life and helped with the nerve pain in ways that other antidepressants do not but I am ready to face the world again. Will keep you all informed of my progress! Mindy the Artist = We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com. --Forwarded Message Attachment-- Date: Sat, 30 May 2009 09:15:02 -0700 From: rn11...@yahoo.com To: tmic-list@eskimo.com Subject: [TMIC] tm in june 8 People magazine Hi, Page 76 in the June 8 issue of People magazine has a story of a teacher with tm.Talks about all the help she gets so she can still teach. Cheryl in sunny Easthampton,MA. --Forwarded Message Attachment-- Date: Sat, 30 May 2009 11:07:34 -0700 From: cindymcle...@socal.rr.com To: tmic-list@eskimo.com Subject: [TMIC] Jasc Paint Shop Photo Album 5 images I hope this comes through to everyone. This is the people article on the lady with TM that was mentioned by Cheryl.. - These photos were sent using Jasc Paint Shop Photo Album 5 software. Visit http://www.jasc.com for details. --Forwarded Message Attachment-- Date: Sat, 30 May 2009 13:30:07 -0500 From: patticoo...@wi.rr.com To: cindymcle...@socal.rr.com; tmic-list@eskimo.com Subject: RE: [TMIC] Jasc Paint Shop Photo Album 5 images THANKS SO MUCH FOR THE INFORMATION CINDY. I JUST REALIZED I HAVE THE MAGAZINE BUT HADN’T HAD A CHANCE TO READ THE ARTICLE BUT I WILL NOW. PATTI IN WISCONSIN From: Cindy McLeroy [mailto:cindymcle...@socal.rr.com] Sent: Saturday, May 30, 2009 1:08 PM To: tmic-list@eskimo.com Subject: [TMIC] Jasc Paint Shop Photo Album 5 images I hope this comes through to everyone. This is the people article on the lady with TM that was mentioned by Cheryl.. - These photos were sent using Jasc Paint Shop Photo Album 5 software. Visit http://www.jasc.com for details. --Forwarded Message Attachment-- Date: Sat, 30 May 2009 13:57:43 -0700 From: jlu...@eskimo.com To: we4king...@verizon.net; tmic-list@eskimo.com CC: we4king...@verizon.net Subject: Re: [TMIC] antidepressants Mindy, I say give it a try. I had been on 50mg of Amitriptyline daily when I was first in the hospital and just continued it when I came home. After being home almost a year I wanted to decrease or discontinue any unnecessary medication I was on. I was not depressed so didn't think I still nee
[TMIC] Re. Butting in Ladies
Hi to all, Just a suggestion, I have used a catheter only, using clean cath for over 25 yrs, as the result of a nurse suggesting it. I opted to use only that to avoid those embaressing moments. I have used detrol for control, it has worked all these years, when cathing on urge only. it is great to have control. Ask your dr's about it. I also have not had an uti for over ten yrs. Hope this may help someone. Ken in N.M. _ Hotmail® goes with you. http://windowslive.com/Tutorial/Hotmail/Mobile?ocid=TXT_TAGLM_WL_HM_Tutorial_Mobile1_052009
[TMIC] RE: tmic-digest Digest V2009 #237
None of you have mentioned what cold does. This evening I was waiting for my son to fix my Hoveround wheel and I had a window open and the door, here in NM when the sun goes down it cools off fast. I was stuck to the recliner until I got the chair fixed. in the mean time it cooled of and I got a chill that had me in a spasm from my neck to my feet. This is after 28yrs of TM. Ken In NM Date: Wed, 8 Apr 2009 18:53:46 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2009 #237 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 237 Today's Topics: Re: [TMIC] Re: over heating [ "Janice" ] --Forwarded Message Attachment-- Date: Wed, 8 Apr 2009 20:49:09 -0500 From: jan...@centurytel.net To: jrush...@columbiaenergyllc.com; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Re: over heating You all are describing more of a "painful" heat, but what I feel is more like a menopause heat flash - but it lasts longer, and it makes me very weak and light headed.Anyone else feel that way? Janice - Original Message - From: jrushton To: CANDIS KALLEY ; tmic Sent: Wednesday, April 08, 2009 8:57 AM Subject: Re: [TMIC] Re: over heating Your words, Candy, are an echo of mine!! You could not have said it better. I was going to send you a note, Lynne, but now there is no need!!Good to have us all start to come out of the woodwork, isn't it? :)) Jeanne in Dayton ---Original Message--- From: CANDIS KALLEY Date: 4/8/2009 10:39:53 AM To: tmic-list Subject: Re: [TMIC] Re: over heating Oh the joys of TM - yes I also have the same problem - our internal thermostats are also affected. Once you go either direction, hot or cold, it seems like forever before it evens out. I don't know how many times I've woke up sweating like a race horse and then the next minute I'm freezing and it takes forever to get back to sleep. I know it's not menopause because that happened many a year ago and quit long before TM. My legs burn like they have 2nd degree sunburn while my feet feel as if they are in an ice bucket! The burning, itchy, stingy occurs all over the body for whatever reason. It seems as if everyday its the same but different in different ways. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: "lynne myers" To: "tmic" Sent: Wednesday, April 8, 2009 8:45:37 AM GMT -05:00 US/Canada Eastern Subject: [TMIC] Re: over heating I don't know about anyone else but I have had problems with over heating since TM hit. Seems like I am constantly putting on and taking off clothes. Don't remember the last time I was able to crawl into bed and snuggle down under the covers without having to throw them off a couple of minutes later. Also have a problem with feeling like the top two thirds of my back are on fire. Lynne < Verdana Font-Size:> _ Quick access to your favorite MSN content and Windows Live with Internet Explorer 8. http://ie8.msn.com/microsoft/internet-explorer-8/en-us/ie8.aspx?ocid=B037MSN55C0701A<><>
[TMIC] FW: Hello my friend, I have been wonering if you were...
From: eamjwh...@bigpond.comto: kenoliver...@hotmail.comsubject: RE: Hello my friend, I have been wonering if you were...Date: Wed, 11 Feb 2009 14:44:09 +1000 Hello Ken, Thanks for your prayers and thoughts, ours are with all the victims of this disaster. It will take a long time for those folk to recover, some will return others won’t as the pain will be just too much. This I can understand. But we do have to move on, and I feel we all will after a period of mourning and reflecting on the unfortunate events.We may travel down there again a little later this year, if I could be of active support, we would be on the way down now, however in our position that is not viable. I know Mavis’s cousin and her husband are just devistated as Nicole was an only child, as was her husband, both Mavis’s cousin and her husband are also only children. So fortunately, Mavis’s larger family are of good support. Yes, Ken, society has gone into too much evil and “I’m all right” and forget the rest, however this disaster has brought our country togather.Again there is too much evil and take and not enough give in this world today, nowdays young ones don’t want to start with a modest home, they must have th best castle and all trimmings and new cars and the like, and a few months later, it is all on the market again and families breaking up. Not enough of us take time to pray for guidance, and reflect on what our forebears did for us. Too many TV shows are crime and more crime, they don’t rate in our house. Any way Ken, good to hear from you, you look after yourself now. I often wonder how you are going over there. Take care and God Bless. Kindest Regards from Errol, South East Queensland, Australia…… From: Kenneth Oliver [mailto:kenoliver...@hotmail.com] Sent: Wednesday, 11 February 2009 1:55 PMTo: Errol WhiteSubject: RE: Hello my friend, I have been wonering if you were... _ Windows Live™: E-mail. Chat. Share. Get more ways to connect. http://windowslive.com/howitworks?ocid=TXT_TAGLM_WL_t2_allup_howitworks_022009
[TMIC] RE: tmic-digest Digest V2008 #489
Hello Frank, I don't know if have ever contacted each other before, It really caught my eye about the hippo belly. I only had prednisone for ten days, but swelled up and I still have a big gut after 29 yrs. I wish I could do some traveling, but am now a widower in assisted living, just me and my dog. Ken Date: Sat, 6 Dec 2008 08:28:48 -0800From: [EMAIL PROTECTED]: tmic-digest Digest V2008 #489To: [EMAIL PROTECTED] Message Attachment--tmic-digest Digest Volume 2008 : Issue 489 Today's Topics: Re: [TMIC] Re: tmic-digest Digest V2 [ Jenna <[EMAIL PROTECTED]> ] Re: [TMIC] Re: tmic-digest Digest V2 [ Jenna <[EMAIL PROTECTED]> ] Re: [TMIC] Re: tmic-digest Digest V2 [ "L T CHERPESKI" <[EMAIL PROTECTED]> ] [TMIC] survey - American Autoimmune [ Bernard Pelow <[EMAIL PROTECTED] ] RE: [TMIC] Hello i need your urgent [ "Patricia Cooley" <[EMAIL PROTECTED] ] Re: [TMIC] Re: tmic-digest Digest V2 [ CANDIS KALLEY <[EMAIL PROTECTED] ]--Forwarded Message Attachment--Date: Fri, 5 Dec 2008 20:23:11 -0800From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Re: tmic-digest Digest V2008 #478 But honey I know you do it and do it over and over again!!! You are so amazing as are so many on this list!!! Jenna From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>To: jrushton <[EMAIL PROTECTED]>; TMIC Sent: Thursday, December 4, 2008 11:02:21 PMSubject: Re: [TMIC] Re: tmic-digest Digest V2008 #478 Hear ya!!! the fatigue is hard to deal with working full time and hard to explain to others somedays it hurts just to get out of bed but we do... then to go and work out! please workout anymore is just getting off the couch and being able to balance with my walker without falling on my face.. -- Original message from "jrushton" <[EMAIL PROTECTED]>: -- In response to: Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it, Kim, it's not like we can go out and run around the block or through the woods, right??? Heck, we can't even tell if we're holding our tummy in or not! We could try some of that stuff that Oprah is advertising so much now (Acai?) except I saw a picture of it in a bowl and it looks like a bowl of purple intestines!! Jeanne--Forwarded Message Attachment--Date: Fri, 5 Dec 2008 20:24:13 -0800From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Re: tmic-digest Digest V2008 #478 I know I just keep gaining...it is freaking me out!!! Jenna From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>To: jrushton <[EMAIL PROTECTED]>; Kenneth Oliver <[EMAIL PROTECTED]>; TMIC Sent: Thursday, December 4, 2008 10:19:15 PMSubject: Re: [TMIC] Re: tmic-digest Digest V2008 #478 Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it, -- Original message from "jrushton" <[EMAIL PROTECTED]>: -- In response to: I spent nine weeks in the hospital from Jan. to April in 1981. I haven't heard anyonetalking about a swollen belly. I was 235 with 42 waist when I got this. When inthe hospital I swelled so when discharged I was 205 with 60 inch waist. It stayed like thatfor many weeks, and when it finally went down any nervous excitement would make it blow up,this went on for over 20 yrs. When it blew up the band of pain was sometimes nearlyunbearable.Ken in N.M. Ken, to this day I still have a poofy tummy that I did not have before TM and sometimes it is worse than others. Each doctor I mentioned it to just shrugged their shoulders so I didn't give it any more thought. I'm glad you mentioned it...Jeanne--Forwarded Message Attachment--Date: Fri, 5 Dec 2008 23:46:36 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com; [EMAIL PROTECTED]: Re: [TMIC] Re: tmic-digest Digest V2008 #478 oh F, I so totally agree! Linda - Original Message - From: [EMAIL PROTECTED] To: jrushton ; [EMAIL PROTECTED] ; TMIC Sent: Friday, December 05, 2008 2:27 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478 > Talking about looking pregnant and I'm a male. My belly bloated > up > so bad, that people said I looked like I was pregnant with twins. Many gain > abdominal girth while on cortisone/prednisone, or soon after. The bloat is > secondary to the cortisone which causes increases in the lipoid cells. This > results in weight gain, increase in blood pressure, borderline diabetes, and > hyperlipidemia ( increased cholesterol or triglycerides). This group ha
[TMIC] RE: tmic-digest Digest V2008 #478
Jeanne, when I was the hospital I had a band around my waist like a steel band. After some time out of the hospital and for many years it has been a band of pain. No medication relieved it. It was especially bad when i laid on my back. Ken in N.M. Date: Wed, 3 Dec 2008 18:18:58 -0800From: [EMAIL PROTECTED]: tmic-digest Digest V2008 #478To: [EMAIL PROTECTED] Message Attachment--tmic-digest Digest Volume 2008 : Issue 478 Today's Topics: [TMIC] memory, cognitive function, h [ Sharon M <[EMAIL PROTECTED]> ] Re: [TMIC] Too Cold [ "jrushton" <[EMAIL PROTECTED] ] [TMIC] RE: tmic-digest Digest V2008 [ marieke dufresne <[EMAIL PROTECTED] ] Re: [TMIC] memory, cognitive functio [ "jrushton" <[EMAIL PROTECTED] ] [TMIC] Adjustable Ankle Stabilizer f [ Todd Tarno <[EMAIL PROTECTED] ] Re: [TMIC] Adjustable Ankle Stabiliz [ "jrushton" <[EMAIL PROTECTED] ] Re: [TMIC] Too Cold [ "jrushton" <[EMAIL PROTECTED] ] Re: [TMIC] House [ "Grace M." <[EMAIL PROTECTED]> ] Re: [TMIC] Too Cold [ CANDIS KALLEY <[EMAIL PROTECTED] ]--Forwarded Message Attachment--Date: Wed, 3 Dec 2008 12:34:07 -0800From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] memory, cognitive function, helps I have memory loss along with cognitive dysfunction. It is better since I am currently able to be on much lower doses of my meds. (I am not anti-meds and will go back up when I must)The suggestion on group about doing crossword puzzles, etc. is excellent. My neuro told me that years ago. It's good to keep those brain cells working!I also have a really bad time with MS fatigue. My neuro has given me Ritalin to help with that fatigue and it helps me focus mentally.love you allSharon--Forwarded Message Attachment--Date: Thu, 4 Dec 2008 00:36:32 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Too Cold In response to: like acid on my skin These words are excite as it really feels. Todd in CC, TX Todd, those were the exact words I've used, also! The 'band' around my chest is like a piece of metal being squeezed tighter and tighter. I do have to say the new meds have really helped and the pain has decreased tremendously, thank God!! Jeanne in Dayton--Forwarded Message Attachment--Date: Wed, 3 Dec 2008 20:39:57 +From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] RE: tmic-digest Digest V2008 #477 Patti, I have it up on YouTube. It's Grace, who posts on this site. It's in 3 parts.http://www.youtube.com/watch?v=1QFmF6Bh1gghttp://www.youtube.com/watch?v=k1wdFSx_LOwhttp://www.youtube.com/watch?v=KA-tDVzp5QI --Forwarded Message Attachment--Date: Wed, 3 Dec 2008 12:57:59 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: RE: [TMIC] House Darn I missed it. There was a program on Discovery Health several months ago ( I think it was called Mystery Diagnosis) that featured a women who could not get out of bed. After many doctors and tests , they said it was TM, but this woman sometime later had Devics. Patti in Wisconsin From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, December 03, 2008 12:12 PMTo: tmicSubject: [TMIC] House Once again on "House" last night Transverse Myelitis was mentioned….even though House quickly ruled it out! Rob in New Jersey --Forwarded Message Attachment--Date: Wed, 3 Dec 2008 12:21:21 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] House Patti in Wisconsin That was our friend Grace in the Mystery Diagnosis. Heather in Calgary - Original Message - From: Patricia Cooley To: 'Robert Pall' ; 'tmic' Sent: Wednesday, December 03, 2008 11:57 AM Subject: RE: [TMIC] House Darn I missed it. There was a program on Discovery Health several months ago ( I think it was called Mystery Diagnosis) that featured a women who could not get out of bed. After many doctors and tests , they said it was TM, but this woman sometime later had Devics. Patti in Wisconsin From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, December 03, 2008 12:12 PMTo: tmicSubject: [TMIC] House Once again on "House" last night Transverse Myelitis was mentioned….even though House quickly ruled it out! Rob in New Jersey --Forwarded Message Attachment--Date: Thu, 4 Dec 2008 00:41:03 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] memory, cognitive function, helps In response to: I have memory loss along with cognitive dysfunction. It is better since I am currently able to be on much lower doses of my meds. (I am not anti-meds and will go back up when I must)The suggestion on group about doing crossword puzzles, etc. is excellent. My neuro told me that years ago. It's good to keep those brain cells working!I also have a really bad time with MS fatigue. My neuro has given me Ritalin to help with that fatigue and
[TMIC] RE: tmic-digest Digest V2008 #478
Jeanne, when I was the hospital I had a band around my waist like a steel band. After some time out of the hospital and for many years it has been a band of pain. No medication relieved it. It was especially bad when i laid on my back. Ken in N.M. Date: Wed, 3 Dec 2008 18:18:58 -0800From: [EMAIL PROTECTED]: tmic-digest Digest V2008 #478To: [EMAIL PROTECTED] Message Attachment--tmic-digest Digest Volume 2008 : Issue 478 Today's Topics: [TMIC] memory, cognitive function, h [ Sharon M <[EMAIL PROTECTED]> ] Re: [TMIC] Too Cold [ "jrushton" <[EMAIL PROTECTED] ] [TMIC] RE: tmic-digest Digest V2008 [ marieke dufresne <[EMAIL PROTECTED] ] Re: [TMIC] memory, cognitive functio [ "jrushton" <[EMAIL PROTECTED] ] [TMIC] Adjustable Ankle Stabilizer f [ Todd Tarno <[EMAIL PROTECTED] ] Re: [TMIC] Adjustable Ankle Stabiliz [ "jrushton" <[EMAIL PROTECTED] ] Re: [TMIC] Too Cold [ "jrushton" <[EMAIL PROTECTED] ] Re: [TMIC] House [ "Grace M." <[EMAIL PROTECTED]> ] Re: [TMIC] Too Cold [ CANDIS KALLEY <[EMAIL PROTECTED] ]--Forwarded Message Attachment--Date: Wed, 3 Dec 2008 12:34:07 -0800From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] memory, cognitive function, helps I have memory loss along with cognitive dysfunction. It is better since I am currently able to be on much lower doses of my meds. (I am not anti-meds and will go back up when I must)The suggestion on group about doing crossword puzzles, etc. is excellent. My neuro told me that years ago. It's good to keep those brain cells working!I also have a really bad time with MS fatigue. My neuro has given me Ritalin to help with that fatigue and it helps me focus mentally.love you allSharon--Forwarded Message Attachment--Date: Thu, 4 Dec 2008 00:36:32 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Too Cold In response to: like acid on my skin These words are excite as it really feels. Todd in CC, TX Todd, those were the exact words I've used, also! The 'band' around my chest is like a piece of metal being squeezed tighter and tighter. I do have to say the new meds have really helped and the pain has decreased tremendously, thank God!! Jeanne in Dayton--Forwarded Message Attachment--Date: Wed, 3 Dec 2008 20:39:57 +From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] RE: tmic-digest Digest V2008 #477 Patti, I have it up on YouTube. It's Grace, who posts on this site. It's in 3 parts.http://www.youtube.com/watch?v=1QFmF6Bh1gghttp://www.youtube.com/watch?v=k1wdFSx_LOwhttp://www.youtube.com/watch?v=KA-tDVzp5QI --Forwarded Message Attachment--Date: Wed, 3 Dec 2008 12:57:59 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: RE: [TMIC] House Darn I missed it. There was a program on Discovery Health several months ago ( I think it was called Mystery Diagnosis) that featured a women who could not get out of bed. After many doctors and tests , they said it was TM, but this woman sometime later had Devics. Patti in Wisconsin From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, December 03, 2008 12:12 PMTo: tmicSubject: [TMIC] House Once again on "House" last night Transverse Myelitis was mentioned….even though House quickly ruled it out! Rob in New Jersey --Forwarded Message Attachment--Date: Wed, 3 Dec 2008 12:21:21 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] House Patti in Wisconsin That was our friend Grace in the Mystery Diagnosis. Heather in Calgary - Original Message - From: Patricia Cooley To: 'Robert Pall' ; 'tmic' Sent: Wednesday, December 03, 2008 11:57 AM Subject: RE: [TMIC] House Darn I missed it. There was a program on Discovery Health several months ago ( I think it was called Mystery Diagnosis) that featured a women who could not get out of bed. After many doctors and tests , they said it was TM, but this woman sometime later had Devics. Patti in Wisconsin From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, December 03, 2008 12:12 PMTo: tmicSubject: [TMIC] House Once again on "House" last night Transverse Myelitis was mentioned….even though House quickly ruled it out! Rob in New Jersey --Forwarded Message Attachment--Date: Thu, 4 Dec 2008 00:41:03 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] memory, cognitive function, helps In response to: I have memory loss along with cognitive dysfunction. It is better since I am currently able to be on much lower doses of my meds. (I am not anti-meds and will go back up when I must)The suggestion on group about doing crossword puzzles, etc. is excellent. My neuro told me that years ago. It's good to keep those brain cells working!I also have a really bad time with MS fatigue. My neuro has given me Ritalin to help with that fatigue and
[TMIC] Re. Thanks
Thank you all for the many notes of support and sympathy that was sent at the death of my wife. I received well over 100 of them. You will understand if I answer them as a group. I am having a hard time with just a few. It is a difficult time for after being married for 62 yrs as of June 2. Janet died June 16th from a massive heart attack and the liver, kidneys, lungs, and heart gave out along with pneumonia. Again Thanks. Ken in NM _ Need to know now? Get instant answers with Windows Live Messenger. http://www.windowslive.com/messenger/connect_your_way.html?ocid=TXT_TAGLM_WL_Refresh_messenger_062008
[TMIC] Re. The latest
Dear Friends, Sorry to tell you but Janet will not be coming home. Her whole body has worn out, at 81 she has lived a good life and we have had a happy 62 yrs together. I am going to miss her very much, but I would not wish her back to this sin sick world. This the hardest thing to happen in my 83 yrs, She was my main stay for the last 27 yrs of TM. Ken in NM _ Enjoy 5 GB of free, password-protected online storage. http://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_skydrive_062008
[TMIC] FW: Re Janet
From: [EMAIL PROTECTED]: Re JanetDate: Sun, 15 Jun 2008 12:39:31 -0600 Yesterday was not a good one, Janet had run a temperature of 104 early inthe morning Friday, yesterday heart was kept going only by her pacemaker. They tried to lower the breathing tube, but she could not breathe for herself. All bodily function were shutting down. She is very very sick with pneumonia also compounding her condition. A phone call this morning told of her oxegen level was up and the kidney funcitions were improved. Bruce went early to talk to the doctor, he is not back so i don't know the news for now. He insisted I stay home as I did sleep after two am. . As soon as I know more I will post. Thank you for all your well wishes and especially your prayers. I believe this will be God's will, so I have commited her to Gods care and He does not make mistakes. Thanks again and over look the spelling, I can not remember how to spell. Ken Search that pays you back! Introducing Live Search cashback. Search Now! _ Enjoy 5 GB of free, password-protected online storage. http://www.windowslive.com/skydrive/overview.html?ocid=TXT_TAGLM_WL_Refresh_skydrive_062008
[TMIC] RE: tmic-digest Digest V2008 #245
Update on Janet. I am sorry to not have sent an address. Yesterday it was not good news, she cannot breath alone so the so still has breathing tube, and heart is working only the pacemaker. She is kept in a sedated sleep to promote healing of lungs and heart. The last word I had this morning was that oxegen level was up and the kidneys were doing better. I wish I had a more positive report. She is in an icu , and she is not awake enough to read cards or appreciate flowers. She is the Heart Hospital of NM. Our home address is, Kenneth Oliver 10 Thomas Rd apt 5 Los Lunas, NM 87031 Thank you all for your love and prayers. Ken Ps. Any further news will be on the tmic list. Date: Sat, 14 Jun 2008 15:14:19 -0700From: [EMAIL PROTECTED]: tmic-digest Digest V2008 #245To: [EMAIL PROTECTED] --Forwarded Message Attachment--tmic-digest Digest Volume 2008 : Issue 245 Today's Topics: [TMIC] Re. Update for Janet [ Jan Hargrove <[EMAIL PROTECTED] ] Re: [TMIC] Re. Update for Janet [ "Trudy Ogilvie" <[EMAIL PROTECTED] ] Re: [TMIC] Re. Update for Janet [ Jan Hargrove <[EMAIL PROTECTED] ] Re: [TMIC] Re. Update for Janet [ Jan Hargrove <[EMAIL PROTECTED] ] --Forwarded Message Attachment--Date: Sat, 14 Jun 2008 08:07:36 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] Re. Update for Janet -Here's my message from Ken..let's keep up our prayers going up for Janet (and) KEN!! janh Dear Friends, Thank all of you who sent e-mail with prayers for Janet. Tonight I believe that our prayers are being answered in a way that gives all joy. All week since Tue. she was kept asleep to rest heart and lungs. This morning about 4am she began to have tempeture I had a call from the nurse telling that she had 104 temp.. When Bruce and I reached the hospital we were pleasantly surprised to find her awake and responding with the tempeture normal. If this continues as is they will remove the breathing tube. She was breathing on her own today, Hopefully she will continue to improve so they can put stents in Monday if that is successful she will make a good recovery. I feel quite optomistic tonight. Your prayers and words of comfort have meant a lot to us. God be praised for all His wonderful love to us poor sinners who saved by His Grace. May God draw very near to each of you. My Thought for Today will be continued next week. Until then I pray each of will blessed by our wonderful Friend and Saviour Jesus Christ. Ken Search that pays you back! Introducing Live Search cashback. Search Now! = Get the Moviefone Toolbar. Showtimes, theaters, movie news, & more! --Forwarded Message Attachment--Date: Sat, 14 Jun 2008 12:29:00 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Re: [TMIC] Re. Update for JanetWondering if there is an address where we could send cards etc... to Ken at home or to Janet in the hospital.. Trudy On Sat, Jun 14, 2008 at 11:07 AM, Jan Hargrove <[EMAIL PROTECTED]> wrote: -Here's my message from Ken..let's keep up our prayers going up for Janet (and) KEN!! janh Dear Friends, Thank all of you who sent e-mail with prayers for Janet. Tonight I believe that our prayers are being answered in a way that gives all joy. All week since Tue. she was kept asleep to rest heart and lungs. This morning about 4am she began to have tempeture I had a call from the nurse telling that she had 104 temp.. When Bruce and I reached the hospital we were pleasantly surprised to find her awake and responding with the tempeture normal. If this continues as is they will remove the breathing tube. She was breathing on her own today, Hopefully she will continue to improve so they can put stents in Monday if that is successful she will make a good recovery. I feel quite optomistic tonight. Your prayers and words of comfort have meant a lot to us. God be praised for all His wonderful love to us poor sinners who saved by His Grace. May God draw very near to each of you. My Thought for Today will be continued next week. Until then I pray each of will blessed by our wonderful Friend and Saviour Jesus Christ. Ken Search that pays you back! Introducing Live Search cashback. Search Now! = Get the Moviefone Toolbar. Showtimes, theaters, movie news, & more! --Forwarded Message Attachment--Date: Sat, 14 Jun
[TMIC] RE: tmic-digest Digest V2008 #240
I did not send these, it is a scam and it looks like virus. I have Two of these that came as from a man I trust. I made the mistake looking at them. I am sorry that my name has been used. Delete as possible or your name be used next. Ken Date: Mon, 9 Jun 2008 20:00:47 -0700From: [EMAIL PROTECTED]: tmic-digest Digest V2008 #240To: [EMAIL PROTECTED] --Forwarded Message Attachment--tmic-digest Digest Volume 2008 : Issue 240 Today's Topics: [TMIC] You have a gift from ken oliv [ "ken oliver" <[EMAIL PROTECTED] ] [TMIC] You have a gift from ken oliv [ "ken oliver" <[EMAIL PROTECTED] ] [TMIC] OT - 60 minutes - Howard Hugh [ CANDIS KALLEY <[EMAIL PROTECTED] ] Re: [TMIC] OT - 60 minutes - Howard [ "jrushton" <[EMAIL PROTECTED] ] Re: [TMIC] age related tm [ Krissy Z <[EMAIL PROTECTED]> ] Re: [TMIC] age related tm [ [EMAIL PROTECTED] ] RE: [TMIC] age at incident[ Neil McNeil <[EMAIL PROTECTED]> ] --Forwarded Message Attachment--Date: Sun, 8 Jun 2008 16:30:06 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] You have a gift from ken oliver ([EMAIL PROTECTED]) You got a gift from ken oliver Find out what you got by clicking the button. Come check out the shows I love and see if we have any in common. Or just get the latest inside scoop on your own favorite shows. This email was sent to tmic-list@eskimo.com at the request of ken oliver . If you would rather not receive emails from us, please cick here. © 2008 BuddyTV.com, inc.BuddyTV, 190 Queen Anne Avenue, Suite 280, Seattle, WA 98119. Tel. 206.859.4180 See you soon at BuddyTV!-The BuddyTV Team --Forwarded Message Attachment--Date: Sun, 8 Jun 2008 16:30:00 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] You have a gift from ken oliver ([EMAIL PROTECTED]) You got a gift from ken oliver Find out what you got by clicking the button. Come check out the shows I love and see if we have any in common. Or just get the latest inside scoop on your own favorite shows. This email was sent to tmic-list@eskimo.com at the request of ken oliver . If you would rather not receive emails from us, please cick here. © 2008 BuddyTV.com, inc.BuddyTV, 190 Queen Anne Avenue, Suite 280, Seattle, WA 98119. Tel. 206.859.4180 See you soon at BuddyTV!-The BuddyTV Team --Forwarded Message Attachment--Date: Sun, 8 Jun 2008 19:49:31 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] OT - 60 minutes - Howard Hughes Medical Institute, one of the richest and quietest charities ever created Did anyone see 60 Minutes tonight regarding the "Howard Hughes Medical Institute, one of the richest and quietest charities ever created"? If not, here's the web address for the segment. http://www.cbsnews.com/stories/2003/11/21/60minutes/main584945.shtml I found it very interesting in the research on stem cell research, MS, and SCI research. The Howard Hughes Medical Institute has something like $450M a year for research. Maybe we ought to make ourselves available to them. Candy K. --Forwarded Message Attachment--Date: Sun, 8 Jun 2008 19:18:04 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] OT - 60 minutes - Howard Hughes Medical Institute, one of the richest and quietest charities ever created I'm all for it!! Jeanne in Dayton ---Original Message--- From: CANDIS KALLEY Date: 6/8/2008 6:49:48 PM To: tmic-list Subject: [TMIC] OT - 60 minutes - Howard Hughes Medical Institute, one of the richest and quietest charities ever created Did anyone see 60 Minutes tonight regarding the "Howard Hughes Medical Institute, one of the richest and quietest charities ever created"? If not, here's the web address for the segment. http://www.cbsnews.com/stories/2003/11/21/60minutes/main584945.shtml I found it very interesting in the research on stem cell research, MS, and SCI research. The Howard Hughes Medical Institute has something like $450M a year for research. Maybe we ought to make ourselves available to them. Candy K. --Forwarded Message Attachment--Date: Sun, 8 Jun 2008 20:59:02 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Re: [TMIC] age related tm I had a virus prior to getting it as well, one that just would not go awaytook a few months on meds then when I thought I was ok, like 1 or 2 mos later TM hit me.~Krissy~We are all in this together, by ourselves.- Lily Tomlin~I'm In pretty Good Shape For the Shape I am in~--- On Sun, 6/8/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>Subject: Re: [TMIC] age related tmTo: [EMAIL PROTECTED]: Sunday, June 8, 2008, 5:57 PM A few months before I got hit with tm I had a bad virus or something in my sinuses. After that I had a tingling in the left side of my back that would not g
[TMIC] RE: tmic-digest Digest V2008 #230
I was 55 when it hit me. It is now 271/2 yrs. I Look at the list every day. We all have so much in common, I don't reply very often. Happy Birthday to all you June babies. Ken Date: Thu, 5 Jun 2008 07:21:31 -0700From: [EMAIL PROTECTED]: tmic-digest Digest V2008 #230To: [EMAIL PROTECTED] --Forwarded Message Attachment--tmic-digest Digest Volume 2008 : Issue 230 Today's Topics: Re: [TMIC] Cataracts and STeroids [ "jrushton" <[EMAIL PROTECTED] ] [TMIC] age at incident[ Alton Ryder <[EMAIL PROTECTED]> ] Re: [TMIC] age at incident[ [EMAIL PROTECTED] ] RE: [TMIC] age at incident[ "Tracey L. Black" <[EMAIL PROTECTED] ] Re: [TMIC] age at incident[ "LadyOwl1961" <[EMAIL PROTECTED] ] --Forwarded Message Attachment--Date: Wed, 4 Jun 2008 21:32:57 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Cataracts and STeroids Believe it or not, there has been so many wonderful things that have come out of my getting TM. I certainly can't say I would miss any of the pain and handicapped part of it miraculously disappeared but like you say, Barbara, I would never have met any of you, either. For that, I am so very blessed. Jeanne in Dayton ---Original Message--- From: [EMAIL PROTECTED] Date: 6/4/2008 11:08:08 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] Cataracts and STeroids I agree about age category, I turned 57 in February, and just had my 9 yr TM anniversary on June 1. No, I didn't celebrate. But, funny thing bout June 1. It was my mom's birthday, I got engaged on June 1, and then TM. And, I missed the celebration for my mom's 70th bithday party. Not fair really since I had done almost all the planning. I could have done without the TM, but then I would not have met all of you wonderful folks. Have a good day and hugs to all. Barbara A in Auburn, CA Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. --Forwarded Message Attachment--Date: Thu, 5 Jun 2008 08:05:18 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] age at incidentI was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton --Forwarded Message Attachment--Date: Thu, 5 Jun 2008 09:50:27 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. --Forwarded Message Attachment--Date: Thu, 5 Jun 2008 09:55:56 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]: RE: [TMIC] age at incident Ashlee was 11 Tracey L. Black Certified Insurance Service Representative Hockley & O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 9:50 AMTo: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. --Forwarded Message Attachment--Date: Thu, 5 Jun 2008 09:15:43 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Re: [TMIC] age at incident I was 26 this past Feb. it was 20 years for me.. Although I did not find out what I had till 1994. Till then they said I was in the beginning stages of MS.. Kathy - Original Message - From: Tracey L. Black To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, June 05, 2008 8:55 AM Subject: RE: [TMIC] age at incident Ashlee was 11 Tracey L. Black Certified Insurance Service Representative Hockley & O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717
[TMIC] RE: tmic-digest Digest V2008 #67
Hello Steven, Welcome to our world such as it is. Tm never lets go as far as I am concerned, I went into the hospital Jan.31, 1981. So I have lived with this for 27 yrs. I am now coming up to my 83 rd birthday and it seems that with each year it gets a little worse. I have had bladder & bowel problem all these years and until two months ago the burning stinging pain, & low back and other pain to numerous to mention. The first year I regained most my mobility for walking even with a cane. I was in Northern Mich. that winter it snowed about 100 inches and I went back to crutches needed help with support for walking. I have been in a power chair since 2000. I hope you can keep what you have. My lesion was at C7 and I do not feel normal pain from my chest down, but oh the nerve pain, thankfully it has let up about 90% in the last two months. Keep fighting to maintain the mobility you have, and whatever else you know that seems to get better this takes a lot of stick to it attitude and being thankful for any positive changes. Ken in N.M. , : _ Need to know the score, the latest news, or you need your Hotmail®-get your "fix". http://www.msnmobilefix.com/Default.aspx
[TMIC] Re. The Thought for Jan. 20, 2008
Jesus precious Saviour, was homeless and often hungry. He had not a where to lay His head. He was wearied oft. Humanity is honored because Jesus assumed humanity to reveal to the world what humanity may become. He came to bring life and immortality to light, to to fill the commonplace, homeliest pursuits of life with brightness. Jesus is bending over us, searching into our characters to see if His own character is reflected in us. That I May Know Him P. 47
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RE: [TMIC] Pain vs No pain
Hi Bernie I am C7 and have normal feelings from just above the upper shoulder blade, but the burning stinging pain is from there down, with my feet and lower legs are nearly always burning like being in hot water. My left arm and right side from the waist down is where the most pain is. I only take anacin when I get a headache, I have not had anything take away the pain for all these years. Ken From: "Butcher, Bernie [S&FS]" <[EMAIL PROTECTED]>To: <[EMAIL PROTECTED]>, <[EMAIL PROTECTED]>, Subject: RE: [TMIC] Pain vs No painDate: Tue, 13 Mar 2007 09:19:57 -0400 My ankles swell also (I am a C4, left side affected - arm & leg) - I get around slowly with a walker. My PT told me it's from spinal cord. I wear compression socks & take Triamterine, which help, but still swell. BERNARD BUTCHER From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 13, 2007 9:11 AMTo: [EMAIL PROTECTED]; Tmic-list@eskimo.comSubject: Re: [TMIC] Pain vs No pain Hi Ken, My left hand and right calf and ankle (which were the limbs worst affected by TM) have been a little swollen ever since onset -- no idea why. Barbara H. http://barbarah.wordpress.com/ In a message dated 3/13/2007 1:01:50 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I have question, have you or anyone else on the list, had any trouble with feet and legs swelling? If so have you found any help for this. Ken in Central Tx AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
Re: [TMIC] Pain vs No pain
Hi Barbara, thanks for the reply, we have some of the same results of tm. My left hand and right leg are the most affected. My right leg has always been undependable. The last five years both hips and knees have let me down quite often. I guess I can't complain too much, I'll be 82 April first. Just hope I can hang in there for awhile longer. Ken in rain soaked Central Tx. From: [EMAIL PROTECTED]To: [EMAIL PROTECTED], Tmic-list@eskimo.comSubject: Re: [TMIC] Pain vs No painDate: Tue, 13 Mar 2007 09:11:20 EDT Hi Ken, My left hand and right calf and ankle (which were the limbs worst affected by TM) have been a little swollen ever since onset -- no idea why. Barbara H. http://barbarah.wordpress.com/ In a message dated 3/13/2007 1:01:50 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I have question, have you or anyone else on the list, had any trouble with feet and legs swelling? If so have you found any help for this. Ken in Central Tx AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
RE: [TMIC] Fwd: HELLO EVERYONE
Rick welcome back, I am sorry to hear of your hospital stay, and I hope they found the help you need. TM is bad enough, and any of these other ailments are some times hard to understand. You are in my prayers. Ken in rainy central TX From: [EMAIL PROTECTED]To: [EMAIL PROTECTED]CC: TMIC-list@eskimo.comSubject: [TMIC] Fwd: HELLO EVERYONEDate: Sat, 10 Mar 2007 14:21:56 EST AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. From: [EMAIL PROTECTED]To: Tmiclist@ eskimo.comCC: [EMAIL PROTECTED]Subject: HELLO EVERYONEDate: Sat, 10 Mar 2007 14:14:45 EST Its Rick back on the line. I hope all of you are doing well. I've had a few setbacks but all and all I'm in fairly good shape. Just last week I was in the hospital after having a seizure at home and another in the emergency room, quite scary. Any I just wanted to post a line to you all and see if I can still remember how to operate my new computer. I've really been missing all the great people at Tmic. Glad to be back. Rick AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.
Re: [TMIC] Pain vs No pain
Hi Kevin, I have had TM since 1981 and in that time I haven't had a dozen days without pain. Sometimes days it gets hard to bear, but I gave up the so called pain relievers, all I take now is a couple of anacin for headaches. My pain is from the waist, where I still have banding , to my feet. All these years I have felt like my feet were in a pan of hot water, yet I have had a toe nail removed with no pain from that. I attribute all of my pain to nerves redirecting the signals. I'm a C7 , limited to a power chair. I have question, have you or anyone else on the list, had any trouble with feet and legs swelling? If so have you found any help for this. Ken in Central Tx From: Kevin Wolfthal <[EMAIL PROTECTED]>To: [EMAIL PROTECTED], Tmic-list@eskimo.comSubject: Re: [TMIC] Pain vs No painDate: Fri, 09 Mar 2007 19:01:10 -0500>Hi Patty,>>I think I understand what you mean. Are you saying that at least >those>of us with TM feel *something* and you have no sensation at all?>>As one of those who has had pain since the onset of TM in 1988, >that's>almost 20 years, I can tell you it is nothing to be envious of. It >makes>me pray many nights that I pass in my sleep. But I don't envy those>who have no feeling at all. I am one of the 'walking wounded', so>I guess I am one of the lucky ones. Just doesn't feel lucky though.>>Take care,>Kevin>>>[EMAIL PROTECTED] wrote:>>I am always surprised and admittably envious to hear of a TMer who >>does have pain. I always ask myself how this is can be possible. >> I know we are all different, but this is one difference I >>really don't understand.Patti - Michigan>
[TMIC] RE. Handlying TM
Hi Larry, Nice to hear from you. How long have you had TM? Any time at all seems too long. This past year my wife fell and hurt her shoulder and had surgery four months after the fall she was having theapy before and after surgery. It gets a bit of problem some times to be both patient and care giver. We had a lot coming and going with nursing, pt, and home help. I'm glad you have a handle on the pain. I am thankful that I don't have the constant pain that I had for so many years. Now with spring here if I get hurting too much I wheel my self out to the yard and do everything from lawn mowing and gardening from power chair. The sunshine and fresh air helps relieve the pain. Where do you live in Oklahoma. We lived in Bristow for four years, and liked it very much except for being in tornado ally. Some have been talking about pain clinics, I tried one and all he was concerned about was treating mood swings. One month it was buspar and the next paxil, I got disgusted and dumped them down the toilet. Keep looking up there are a lot of sunny days ahead. Ken in Central Texas
Re: [TMIC] numb hand
Kevin, Larry & others, I have been reading your comments about pain. I am in my 27th year with TM and will turn 82 in another month. I have had intense pain for a lot of years until a year ago when I was haveing a lot pain while taking so called pain killers, I decided to see what would happen I quit taking these. I found that I really did not have as much pain when I got off everything but anacin. I now take it when I get a headache, otherwise I lay down till the pain lessens. I have lost a lot of mobilty the last five years and use a power chair as I can not stand but a few minutes. I guess some of this can be counted for old age. I have had bad experiences with pain clinics, one all he wanted to treat was his idea of what he wanted and that was anxity. Another put me on neaurontin and 2800 mgs. I ended up with losing a whole summer of memory loss and people thought I had had a stroke. It did not help my pain. When quit it about six weeks I was myself again. I have learned to do a lot of praying and that is where I go when become a 7-10. Ken In Central Tx. From: Kevin Wolfthal <[EMAIL PROTECTED]>To: Tmic-list@eskimo.comSubject: Re: [TMIC] numb handDate: Mon, 26 Feb 2007 21:55:20 -0500 Trudy,I live in CT. I've been to doctors and hospitalshere and in NYC. Every one said something different,but when I asked for a painkiller, they refused. UsuallyI hear: "you're already taking too many medications".I take 2 BP drugs Vasotec & Metoprolol, Xanax, 81mg Aspirin/day, Effexor XR,and Tylenol Rapid Release Gels.Thank you for your understanding. Yes it is a horrendous nightmare. I wascoping pretty well for years, even worked for the first 12 years of TM as thePhotographer for a University until I was in a car accident in 1998. Thingswent downhill from there.You are in my thoughts and prayers also.KevinTrudy wrote: Kevin, Where do you live??? Isnt there anyone to help you get some pain medication. Are you only on Xanax??? Twenty years of suffering, thats unreal. Its been five for me and I try to take it one day at a time as each day is different, such a weird, weird disease. Now theyve added MS to my condition! Im so sorry that you feel trapped in this horrendous nightmare. You are in my thoughts and my prayers! Trudy From: Kevin Wolfthal [mailto:[EMAIL PROTECTED]] Sent: Monday, February 26, 2007 3:16 PMTo: tmic-list@eskimo.comSubject: Re: [TMIC] numb hand Candy,Thank you for your reply. As I mentioned, I had 2 Mri's fairly recently. I've had about8 Mri's in the past 10 years, plus a full body bone scan, and several EMG's. I'm notsure what good another Mri would be.The problem is, there are no doctors in my area that properly understand TM, and Iam too sick to travel to John's Hopkins to Dr. Kerr's office. It took me 7 years toget a final diagnosis of TM, and that was at Yale Hospital, a supposedly reputablemedical facility.I have never even been able to get a doctor to give me any pain medication. I wasgiven Xanax to help me sleep, and told that it would help my pain. Today it feelslike my foot is being stabbed with a fork, and the fork is being twisted around.After almost 20 years of suffering, I pray every night that I pass in my sleep. Andanti-depressants don't help, I've tried.KevinCandis Kalley wrote: Kevin, For what it is worth, I was told by my Neuro, physcial therarpist, and Dr. Kerr at John Hopkins, that the lesions cause trouble from the point on. I was first dx with lesions from T1 and T2 and possibly some at C4 down. After 25 days, the lesions appeared from C4 down to T2 - This is when I had the shooting nerve "pain" tingling and then the next morning I woke up to be a complete quadaparaligic. After PLEX treatments, I regained most of the use of my hands and am able to walk with a cane or walker. But I was left with hardly any energy and strength. Have a MRI as soon as possible - insist on it. Candy K. - Original Message - From: Kevin Wolfthal To: Sandy Heidel;Tmic-list@eskimo.com Sent: 2/25/2007 10:29:34 PM Subject: Re: [TMIC] numb hand My hands started getting numb a few years ago. I've had an MRI of the thoracic spinewhich didn't show anything, another MRI of the cervical spine which showed "a lot of arthritis",in the words of the neurologist. That neurologist also said that the arthritis in my neck hasnothing to do with the numbness in my hands. She did an EMG and said it showed CarpalTunnel Syndrome in both hands, and Ulnar nerve damage in my right elbow. I've hadanother EMG recently and was told that there is poor conductivity not just in the nerves in my hands, but other nerves coming from my neck. The doctor doing that test saidif I had surgery for the CTS, it might not help. So I am supposed to get tests forhypothyroid, diabetes, and I don't know what else. I am fed up with doctors, their tests,and their guessing. Meanwhile I have trouble buttoning my shirt and tying my shoelaces.I was onc
Re: [TMIC] flu and pneumonia shots
Jan. 31 marks 27 yrs with Tm , I spent 9wks in the hospital. I have not had a flu or pneumonia shots since 1980. I have not had the flu or colds for all these years. I was told by my doctor back then not to have them. I am glad he so advised me. By the way I'll be 82 April 1st. Ken in the hill country of Tx. From: [EMAIL PROTECTED]To: [EMAIL PROTECTED], tmic-list@eskimo.comSubject: Re: [TMIC] flu and pneumonia shotsDate: Tue, 23 Jan 2007 11:56:38 EST I was perfectly healthy until the day I got the flu shot. After I got the shot the nurse handed me the paperwork that comes with the vaccination. When I got home I read it and one of the side effects listed was Transverse Myelitis. I didn't know what the heck that was..until I became paralyzed, was diagnosed and did an internet search. My suggestion? Read the paperwork BEFORE you get the vaccination and then make your decision as to whether or not you want that shot. Flu vaccines contain a full dose of mercury plus brain damaging aluminum. I think it was the mercury that did me in because I have no problem with my brain. Elderly who receive the shot for five years increase their risk of Alzheimers disease 10-fold (1,000 %). I got that paralyzing flu shot ten years ago and haven't had a flu shot since. And.I haven't had the flu for the past ten years. I boost the heck out of my immune system with vitamins/minerals and it works for me. also haven't had a cold, pneumonia, bronchiatis, etc. I used to get bronchiatis so bad every winter that I was down in bed for 2-3 weeks. I'm so glad those days are over.! Don't even get me started on infant vaccines and what they are doing to our children. ~ Lynn
Re: [TMIC] TM Banding
My lesion was at C7 and my band was just below my rib cage. In the hospital it felt an iron band without any pain. After a few months it was a band of pain that comes if I lay on my back. This has been for 26 years, I don't have it all the time only when I sit in with recliner too far back or try to sleep on my back. Ken in Marble Falls, TX From: Todd Tarno <[EMAIL PROTECTED]>To: [EMAIL PROTECTED], [EMAIL PROTECTED]CC: tmic-list@eskimo.comSubject: Re: [TMIC] TM BandingDate: Mon, 6 Feb 2006 13:11:31 -0800 (PST) Hi Sally, Yes, the doctor did tell me that my banding was probably at the location of the damage in my spinal cord. T4-T8 Todd TM/April, 2002 in Corpus Christi, Texas[EMAIL PROTECTED] wrote: I'm curious now. I'm learning that not everyone has this 'banding'. So does it depend on where the lesion is? Mine's at T6 - T8, and the tightness I feel is just below my rib cage. Do the locations of other TMer's banding depend on where their damage is on the spinal cord? Sally
Re: [TMIC] stiffness and regression? bladder infections, UTI's
Bob you have hit on the one thing that keeps UTIs going. I have self cathed since 1981. I use Dail soap and I have only had one uti in the last four years. I do not go by a set number of hours, but when I feel the urge it may only be two hours or so. I also have a RX for macrodanton ( misspelled) I take one a day and with the dail soap I am pretty much free of uti,s. I have used this combination for about 24 years. Ken in Mrble Falls, TX From: "ROBERT COOK" <[EMAIL PROTECTED]>Reply-To: [EMAIL PROTECTED]To: "Poonam Mahadev Thapa" <[EMAIL PROTECTED]>, "TM List" , "Alton Ryder" <[EMAIL PROTECTED]>Subject: Re: [TMIC] stiffness and regression? bladder infections, UTI'sDate: Fri, 3 Feb 2006 15:22:02 -0600 HE MIGHT TRY VITAMIN C, ORANGE JUICE AND CRANBERRY JUICE. IT BUILDS UP THE ACID LEVEL IN THE URINE AND HELPS PREVENT THE BACTERIA FROM COLONIZING AND SETTLING IN TO CREATE AN INFECTION. ANYTHING TO MAKE IT MORE ACIDIC, NOT ALKALINE. ALSO, THREE TIMES A DAY INTERMITTENT CATHING MAY NOT BE FREQUENT ENOUGH. IT ALLOWS THE URINE TO STAY IN THE BLADDER LONGER THAN IT SHOULD NORMALLY AND THAT ALSO ALLOWS THE BACTERIA TO GROW. I SEEM TO RECALL EVERY FOUR HOURS IS RECOMMENDED. BOB FROM HOUSTON-SPRING, TX T-1 PARA, CLASS OF 1994 - Original Message - From: Poonam Mahadev Thapa To: TM List;Alton Ryder Sent: 2/3/2006 2:54:53 PM Subject: Re: [TMIC] stiffness and regression? bladder infections, UTI's Hi He has been taking antibiotics. But the infection just comes back. He is on clean intermittent catheterization, three times a day. It is a procedure involving sterilised catheter, usedwith gloves, betadine and dettol cleansing. Still the bacteria find their way in somehow. He drinks a lot of water too but the big queston is should he have something to make his urine acidic or alkaline? Any idiea about that? wish you a bacteria free days. Nima - Original Message - From: Alton Ryder To: Poonam Mahadev Thapa Cc: TM List Sent: Friday, February 03, 2006 4:52 AM Subject: Re: [TMIC] stiffness and regression? bladder infections, UTI's > ... urine infection with fever and E. Coli stuck on to his bladder bringing in recurrent infection Zap that with antibiotics as soon as possible. Until it is cured he cannot progress very far. I have a relatively harmless resident colony of pseudonomas. My colony is resistent to antibiotics. Puts a bright blue-green coating where ever it lives. It starts growing on the inside of a new hose and can be seen after about ten days. By that time the rubber hose is starting to get a dull brown, so the combination is a dull olive-green. Yuck! After two weeks, when I change my Foley catheter, I see a pale [pleasant] color on the outside of the tip of the Foley, so I infer that the bladder wall is no worse. To keep the colony under control [Pseudonomas can be fatal.], I practice the following: Drink every day at least six to eight ounces of 27% cranberry juice,e.g., Northland 100% juice. And, to flush out the bladder continuously, Drink LOTS of water/milk/juice. I drink over two liters of water, spaced roughly equally over the 24 hours. > ... That made him very weak in the legs My legs become wimpy every time I have a non-local infection, whether UTI or upper respiratory or even repeated nights of too little sleep. Then, when I stand, I wilt like a candle near a hot stove. > ... a relapse of TM. Is that possible? Possible, but very unlikely unless MS is the underlying disease. > ... side effects? Are they compatible with ... Tizanidine I've been doing all this for years. I also take 16 oral medications daily, including a small amount of tizanidine (=Zanaflex,) PRN. Welcome aboard, Nima Alton, transverse mylopathy in 1997
Re: [TMIC] Muscle vibrations or tremors
Hi you all, I have not added my two cents in a long time, but I know something about vibrations.Yesterday was 26 yrs with TM and I have had these vibrations for longer than I can remember. When they come I feel them from the my chest to my feet. At times they get to be quite troublesome. When they are the worst I can lay my hand on my leg and feel them, usually along with them I hear a large motor running it gets loud. It feels like the whole house is vibrateing. I hope you are all off to good start in the new year. Ken in Central Texas From: "Debi" <[EMAIL PROTECTED]>To: Subject: Re: [TMIC] Muscle vibrations or tremorsDate: Mon, 30 Jan 2006 17:19:00 -0800 (Pacific Standard Time) Hi Barbara I believe I have had my TM from 1978 or 79..and I have had the same feelings in my legs from time to time..also my right foot has turned up at the big toe..I'm walking on the outer side of my foot..so I get that feeling usually after I am on my feet to long..the vibration feeling never leaves me tho. Debi ---Original Message--- From: [EMAIL PROTECTED] Date: 01/30/06 05:35:51 To: tmic-list@eskimo.com Subject: [TMIC] Muscle vibrations or tremors For the last few days I've been experiencing what feels like a sort of vibration or trembling feeling in some of my muscles. It seems to travel around between my chest, left forearm and thighs. I've experienced it to a smaller degree before, but never this much area at one time or for this length of time. It isn't painful or uncomfortable, and I'm not worried about it per se. It's just disconcerting. Ten years post-TM, I know that these kinds of things come and go. Anyone else experience this? Barbara H. ><< BackGrnd.gif >>
