RE: [TMIC] Magnets
Gunny I am not familiar with how they work. Can you enlighten me. How do you use them, etc. Patti From: bgunny7...@aol.com [mailto:bgunny7...@aol.com] Sent: Saturday, June 25, 2011 9:50 AM To: Tmic-list@eskimo.com Subject: [TMIC] Magnets It seems people are beginning to understand the magnet benefits. Ok, I'm, still dealing them, so, if anybody's interested, lemme know, and I'll get em for you. I mentioned this 15 years ago, and nobody got on board, but I'm tellin ya, they work.
RE: [TMIC] Fwd: What year were you born OT
Gunny, that was fun reading everything that happened during the year of my birth. Thanks again for posting. Patti From: bgunny7...@aol.com [mailto:bgunny7...@aol.com] Sent: Thursday, June 23, 2011 9:51 AM To: Tmic-list@eskimo.com Subject: [TMIC] Fwd: What year were you born OT
RE: [TMIC] Hello
It sounds as though you have come to terms with your loss. I wish you all the luck in the world with your manuscripts. Maybe one day when you are a famous author, we can say we know him he is a friend. Keep our spirits up and good luck with your upcoming move back to the States. Keep in touch. From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Thursday, June 09, 2011 10:57 PM To: Akua Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Hello YOU ARE ALL SO KIND; actually, my wife is very happy i will be coming home. says i have been away too long. and now, with not having to pepare for class every day, i can go back to writing. i have one book out there, and i almost have a finished manuscript for another.. gotta go right now though, miuscle cramps-spasms coming on. will write later. love, dalton On 10 Jun 2011, at 2:37 AM, Akua wrote: Sorry to read this, Dalton! Hi Carol; This is Dalton. I just got terminated today. It seems I couldn't overcome the pull of TM, and my classroom work-that of which I was most proud-suffered. I have three months' notice. Last year they lightened the load and I did OK, but they said I worked too little. This year I taught three courses, teaching every day, and the pain, fatigue and med-head just made every day agony. It showed and the students complained. So, that's it. Up till now they have been very nice. But they don't keep persons around who can't pull the whole load. Not the way I wanted to go out. Thanks, Dalton From: Carol E snow121...@hotmail.com Date: Tue, 7 Jun 2011 09:43:34 -0500 To: tmic-list@eskimo.com Subject: [TMIC] Hello Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700 Just testing to see if I am still on the list. I'm not receiving messages. Carol Worrying does not empty tomorrow of its troubles; It empties today of its strengths. --
RE: [TMIC] Re:OT Fwd: Barbara Walters comments on Jane Fonda OT
It was agreed sometime ago, that when we are sending something other than TM info, we put OT in the subject line, which I believe was done. In that case you can just delete before opening it. From: Susan Ebling [mailto:slebl...@gmail.com] Sent: Thursday, June 02, 2011 9:43 AM To: john snodgrass Cc: transverse myelitis Subject: Re: [TMIC] Re:OT Fwd: Barbara Walters comments on Jane Fonda OT with all due respect, THIS is not the forum for this email. . . I need information on TM and look forward to it. On Thu, Jun 2, 2011 at 9:34 AM, john snodgrass jcs...@yahoo.com wrote: sad part is many many many dont know and dont care these days --- On Thu, 6/2/11, celr...@aol.com celr...@aol.com wrote: From: celr...@aol.com celr...@aol.com Subject: [TMIC] Fwd: Barbara Walters comments on Jane Fonda OT To: TMIC-LIST@eskimo.com Date: Thursday, June 2, 2011, 12:09 AM _ From: lgvbabyg...@aol.com BCC: celr...@aol.com Sent: 6/1/2011 11:49:31 A.M. Central Daylight Time Subj: Barbara Walters comments on Jane Fonda comments on Jane Fonda Please take time to at least read this the first hand accounts, than let your heart do what you will. She can lead her present life the way she wants and perhaps SHE can forget the past, but we DO NOT have to stand by without comment to see that she is honored as a Woman of the Century. Never Forgive A Traitor For those of you too young to remember Hanoi Jane is a bad person and did some terrible things during the Vietnam war. Things that can not be forgiven For those who served and/or died. . . NEVER FORGIVE A TRAITOR. SHE REALLY WAS A TRAITOR!! and now OBAMA wants to honor her.. In Memory of LT. C.Thomsen Wieland who spent 100 days at the Hanoi Hilton IF YOU NEVER FORWARDED ANYTHING IN YOUR LIFE FORWARD THIS SO THAT EVERYONE WILL KNOW!! She really is a traitor. A TRAITOR IS ABOUT TO BE HONORED KEEP THIS MOVING ACROSS AMERICA This is for all the kids born in the 70's and after who do not remember, and didn't have to bear the burden that our fathers, mothers and older brothers and sisters had to bear.. Jane Fonda is being honored as one of the '100 Women of the Century.' BARBRA WALTERS WRITES: Unfortunately, many have forgotten and still countless others have never known how Ms. Fonda betrayed not only the idea of our country, but specific men who served and sacrificed during Vietnam The first part of this is from an F-4E pilot. The pilot's name is Jerry Driscoll, a River Rat. In 1968, the former Commandant of the USAF Survival School was a POW in Ho Lo Prison the ' Hanoi Hilton.' Dragged from a stinking cesspit of a cell, cleaned, fed, and dressed in clean PJ's, he was ordered to describe for a visiting American 'Peace Activist' the 'lenient and humane treatment' he'd received. He spat at Ms. Fonda, was clubbed, and was dragged away. During the subsequent beating, he fell forward on to the camp Commandant 's feet, which sent that officer berserk. In 1978, the Air Force Colonel still suffered from double vision (which permanently ended his flying career) from the Commandant's frenzied application of a wooden baton. From 1963-65, Col. Larry Carrigan was in the 47FW/DO (F-4E's). He spent 6 years in the ' Hanoi Hilton',,, the first three of which his family only knew he was 'missing in action'. His wife lived on faith that he was still alive. His group, too, got the cleaned-up, fed and clothed routine in preparation for a 'peace delegation' visit. They, however, had time and devised a plan to get word to the world that they were alive and still survived. Each man secreted a tiny piece of paper, with his Social Security Number on it , in the palm of his hand. When paraded before Ms. Fonda and a cameraman, she walked the line, shaking each man's hand and asking little encouraging snippets like: 'Aren't you sorry you bombed babies?' and 'Are you grateful for the humane treatment from your benevolent captors?' Believing this HAD to be an act, they each palmed her their sliver of paper. She took them all without missing a beat.. At the end of the line and once the camera stopped rolling, to the shocked disbelief of the POWs, she turned to the officer in charge and handed him all the little pieces of paper.. Three men died from the subsequent beatings. Colonel Carrigan was almost number four but he survived, which is the only reason we know of her actions that day. I was a civilian economic development advisor in Vietnam , and was captured by the North Vietnamese communists in South Vietnam in 1968, and held prisoner for over 5 years. I spent 27 months in solitary confinement; one year in a cage in Cambodia ; and one year in a 'black box' in Hanoi . My North Vietnamese captors deliberately poisoned and murdered a female missionary, a nurse in a leprosarium in
RE: [TMIC] OT - Marine Speaks Reply
Bernie I second that sentiment. Bless all our service people and keep them safe, and Gunny please keep up with the posts. Patti From: Bernie [mailto:bpe...@austin.rr.com] Sent: Thursday, May 26, 2011 5:47 PM To: Bernard Pelow; Sarge; TMIC Subject: [TMIC] OT - Marine Speaks Reply In a message dated 5/26/2011 3:26:59 P.M. Eastern Daylight Time, bpe...@austin.rr.com writes: Hey Sarge, Very true; and those Navy Seals have balls that clank and hearts as big as this country! God bless them all and pray this crap comes to an end soon. Peace, Bernie Your right Bernie. You might wanna let the unbelievers know this. I've seen only one complaint about your post Gunny, and I agree with you. Even though this is a TM list, we also talk about many other things besides that topic, and it may be that someone is just having a bad day. We all know what that is like! Regardless of that one negative response, keep on being Gunny, the true Marine! Semper Fi, Bernie
RE: [TMIC] OT - Asking for prayers
Bernie I will most definitely add your wife, Sally and your whole family in my prayers. Bless you all. Patti From: Bernie [mailto:bpe...@austin.rr.com] Sent: Thursday, May 26, 2011 5:57 PM To: Bernard Pelow; TMIC Subject: [TMIC] OT - Asking for prayers To All TMIC family; I need all the prayers for my childrens mother, my ex-wife Sally. We are very good friends and have a better relationship than when we were married. Here is a short version she wrote explaining what has been happening to her. many of you know she was diagnosed with Stage IV breast cancer years ago: here is her latest condition. She needs all our prayers to survive this for any length of time. Thank you and Sincerely, Bernie Have been on a couple of different oral chemotherapies since first discovering the cancer in 2005 - Arimidex for a long time, 'til it apparently stopped working (when I had the double mastectomy in late 2008), and Xeloda, which also did not work. This week I'll have my second round of Taxotere. Couple of weeks after the first round, my hair started falling out, so now I'm shaved bald! I've lost about 80 pounds, which is skinniest Ive been in about 30 years! I look normal to myself because spent greater portion of my life closer to this weight, but my appearance is apparently shocking to those who haven't seen me in awhile. I get short of breath easily and my voice is hoarse most of the time. I've already outlived the median life expectancy of 3 years for my diagnosis (stage 4 breast cancer), so plan to keep it up as long as I can! Chemo makes me tired, so I sleep a lot. It's a funny kind of limbo... Now I see why didn't want to write this - it's depressing! How does one write about cancer in an upbeat way? Anyway, I don't spend time wringing my hands moaning. Enjoy myself doing what I want each day and I get lots of rest! That's all for now.. Pray for me and keep my in your happy thoughts.
RE: [TMIC] Fwd: Marine Speaks
I have no objection to his post. If you don't agree - just DELETE! From: Jill Posner [mailto:posnerj...@yahoo.com] Sent: Thursday, May 26, 2011 11:17 AM To: bgunny7...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Marine Speaks I don't think this sort of polemic is appropriate on this list serve. It should not be disseminated further! We are supposed to be about communication on TM not on Bin Laden or Obama or political issues that are not related to health. DESIST! --- On Thu, 5/26/11, bgunny7...@aol.com bgunny7...@aol.com wrote: From: bgunny7...@aol.com bgunny7...@aol.com Subject: [TMIC] Fwd: Marine Speaks To: Tmic-list@eskimo.com Date: Thursday, May 26, 2011, 9:35 AM
RE: [TMIC] Fwd: Marine Speaks
Dalton, I too do a certain amount of deleting, but the subject line on this e-mail told me actually what it was about since Gunny has been on this site for some time, and I am familiar with him. I am sorry you weren't aware of him. Patti From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Thursday, May 26, 2011 11:45 AM To: Patricia Cooley; 'Jill Posner'; bgunny7...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Marine Speaks I spend my day deleting, Patricia; As a working economist, I get about 75 emails per day. And I look forward to opening TM emails. Also, this one required that I open it and preview it before even finding out what it is. I respect any Marine's or other service person's unparalleled sacrifice for our freedom. There are plenty enough places to take such discussions, but let's not mess up what we have in our TM list. Dalton From: Patricia Cooley patticoole...@gmail.com Date: Thu, 26 May 2011 11:27:36 -0500 To: 'Jill Posner' posnerj...@yahoo.com, bgunny7...@aol.com Cc: tmic-list@eskimo.com Subject: RE: [TMIC] Fwd: Marine Speaks Resent-From: tmic-list@eskimo.com Resent-Date: Thu, 26 May 2011 09:28:55 -0700 I have no objection to his post. If you don't agree - just DELETE! From: Jill Posner [mailto:posnerj...@yahoo.com] Sent: Thursday, May 26, 2011 11:17 AM To: bgunny7...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Marine Speaks I don't think this sort of polemic is appropriate on this list serve. It should not be disseminated further! We are supposed to be about communication on TM not on Bin Laden or Obama or political issues that are not related to health. DESIST! --- On Thu, 5/26/11, bgunny7...@aol.com bgunny7...@aol.com wrote: From: bgunny7...@aol.com bgunny7...@aol.com Subject: [TMIC] Fwd: Marine Speaks To: Tmic-list@eskimo.com Date: Thursday, May 26, 2011, 9:35 AM
RE: [TMIC] Bladder/Spasms
Janice I don’t have leg spasms but if I am sitting or it has been a while since I made a trip to the bathroom, I get a pain in the area just above the pubic bone. That tells me it has been sometime since I went potty. The pain also wakes me at night so again I go. I have noticed that when I am going the pain slowly goes away, and by the time I have emptied my bladder the pain is gone. That has been happening for about the past year, and my urologist is aware of it and is not concerned. I believe that maybe some nerves are now coming alive, and least I hope so. Patti From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Sunday, May 22, 2011 5:21 PM To: TMIC-LIST Subject: [TMIC] Bladder/Spasms Got a quick question - Have any of you noticed that when you are sitting for a while and your legs start spasming, if you go to the bathroom, it settles down? I don’t know if it is my imagination or if that is something to this. Haven’t heard from anyone for a while – everything okay? Take care, Janice
RE: [TMIC] May Birthdays
HAVE A GREAT BIRTHDAY ALL THE MAY BABIES! From: Barbara H. [mailto:barbara...@gmail.com] Sent: Sunday, May 01, 2011 5:38 AM To: TMIC Subject: [TMIC] May Birthdays Happy Birthday to all those celebrating in May! And we remember Jim Belz, who passed away a couple of years ago, I think, whose birthday was May 11. Please send any additions or corrections to 5/5 Linda Garrett (limoga43...@yahoo.com) 5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.com) 5-11 Lynn (roseofr...@aol.com) 5-12 mother...@msn.com 5-19 Maureen Wroblewski Hallagan (walterhalla...@msn.com) 5/31 Wendy Wood (ww...@optonline.net)
RE: [TMIC] OT
THANK YOU JANE. HAPPY EASTER TO EVERYONE From: celr...@aol.com [mailto:celr...@aol.com] Sent: Saturday, April 23, 2011 3:25 PM To: tmic-l...@eskimo.net Subject: [TMIC] OT HAPPY EASTER EVERYONE JANE/SPLENDORA
RE: [TMIC] Hello, from Jude
Jude I am sorry you had been in the hospital with another UTI infection, but it is so good to hear from you. I hope all is well now for a long, long time. In early February, I too was in the hospital. It started with a BAD ear infection and went into a bad UTI. In fact, my doctor said she had never seen such a severe UTI. I understand that when you are older they can be very, very serious. I lost all the strength and mobility I had achieved after getting TM, so I spent another week in rehab and then 5 weeks with PT at home. You take care and I hope to see more posts from you in the future, even just to say “III” Patti - Wisconsin From: Jude Hoops [mailto:heyjude48...@aol.com] Sent: Monday, April 04, 2011 3:26 AM To: tmic-list@eskimo.com Subject: [TMIC] Hello, from Jude Hey friends, Home from the hospital again, treated for another bad UTI and blood infection. I am feeling well tonight and cannot sleep, so here I am saying “Hi” to everyone out there who is checking in to see what’s going on. I hope all has been well with everyone and hope to hear from some of you soon. Love ya, Jude
[TMIC] Bee Clark
I just received an e-mail from Elizabeth Clark (beecl...@aol.com) saying that they were vacationing in London and were mugged losing all their credit cards, cash, etc. The Embassy won't help and they can't leave their hotel until their bill is paid and is asking for financial help. I received another e-mail like this last year so I am very unsure if this is for real. Is she a member of our TM e-mail group or is this a scam? Patti - Wisconsin
RE: [TMIC] Bee Clark -This is a SCAM! do not send anything !
That is what I thought. I DO NOT intend to send anything. I just wonder how they can get into the TMIC list? Patti From: kimharrison...@comcast.net [mailto:kimharrison...@comcast.net] Sent: Monday, April 04, 2011 11:54 AM To: tmic-list@eskimo.com Cc: tmic-list@eskimo.com Subject: [TMIC] Bee Clark -This is a SCAM! do not send anything ! This is a SCAM do NOT send anything.. in the last 3 years I have seen 4 of the same requist from the TMIC email list ... same name, same seniro... DO NOT SEND ANYTHING to this request Elizabeth Clark (beecl...@aol.com) - Original Message - From: Patricia Cooley patticoole...@gmail.com To: tmic-list@eskimo.com Sent: Monday, April 4, 2011 12:39:46 PM Subject: [TMIC] Bee Clark I just received an e-mail from Elizabeth Clark (beecl...@aol.com) saying that they were vacationing in London and were mugged losing all their credit cards, cash, etc. The Embassy won’t help and they can’t leave their hotel until their bill is paid and is asking for financial help. I received another e-mail like this last year so I am very unsure if this is for real. Is she a member of our TM e-mail group or is this a scam? Patti - Wisconsin
RE: [TMIC] Bee Clark
The real Bee Clark is part of the TM list, but her e-mail has been hacked. She is changing her e-mail address. She responded immediately to my question. I also know the American Embassy is there to help American with a problem. Patti From: Deborah Nord Capen [mailto:dca...@earthlink.net] Sent: Monday, April 04, 2011 1:07 PM To: Patricia Cooley; tmic-list@eskimo.com Cc: Jim Lubin Subject: Re: [TMIC] Bee Clark I know that she has to be subscribed to the tmic list in order to post a message; however, nobody should reply to an email such as this without verifying the validity of the request. Do you know of any hotels that require you to stay UNTIL the bill is paid? Most hotels require you to pay BEFORE you check in. That is suspicious right there. If Bee is legitimate, she would be contacting her credit card companies to stop payment on her cards, have new ones issued and then making payment that way. My instinct is to ignore this plea for financial help. Take care, Debbie P.S. Jim, do you think you should block her from posting to the list? -Original Message- From: Patricia Cooley Sent: Apr 4, 2011 9:39 AM To: tmic-list@eskimo.com Subject: [TMIC] Bee Clark I just received an e-mail from Elizabeth Clark (beecl...@aol.com) saying that they were vacationing in London and were mugged losing all their credit cards, cash, etc. The Embassy won’t help and they can’t leave their hotel until their bill is paid and is asking for financial help. I received another e-mail like this last year so I am very unsure if this is for real. Is she a member of our TM e-mail group or is this a scam? Patti - Wisconsin Debbie dca...@earthlink.net
RE: [TMIC] April Birthdays
I WANT TO WISH ALL THE APRIL BABIES A VERY, VERY HAPPY BIRTHDAY. From: Barbara H. [mailto:barbara...@gmail.com] Sent: Friday, April 01, 2011 5:05 AM To: TMIC Subject: [TMIC] April Birthdays A short birthday list this month! That just means more cake for all of you. :-) Please send any additions or corrections to tmic-list@eskimo.com. ***Also, this month held the birthdays of two former TMIC members who have passed on: Ken Oliver (4/1), who just passed away a short time ago, and Doc (4/24). If any of you know their loved ones, I'm sure they'd appreciate thoughts, prayers, and maybe even a little note on this day when remembering the loss of their loved ones is particularly hard.*** 04/03 Jeron Rampersad (rumc...@hotmail.com) 4/10 Marie Dipietro deer...@aol.com 4/18 Bernard Butcher (bernie.butc...@honeywell.com) 4/20 Dianna (carg...@cs.com) 04/20 Todd Tarno (toddtm2...@sbcglobal.net) 4/21 Robert Diehl (sawmil...@verizon.net) 4-25 Shelia (sc...@aol.com)
[TMIC] March Birthdays
I WANT TO YOU ALL THE MARCH BABIES A VERY, VERY HAPPY BIRTHDAY!
RE: [TMIC] Catching up
Dalton I am so sorry to hear you suffered another attack. Be sure to rest and take care of yourself. I just spent 2 weeks in the hospital and came home this Thursday. I am trying to catch up with all the e-mails. It may take me awhile. Patti - Wisconsin From: L T CHERPESKI [mailto:cherp...@msn.com] Sent: Sunday, February 13, 2011 6:49 PM To: john snodgrass; transverse myelitis; Dalton Garis Subject: Re: [TMIC] Catching up Aww, Dalton, I'm so sorry to hear about another attack. Don't worry about doing anything; just take care of yourself. It helps to know that you're keeping in contact by reading all the posts. I've done the same thing. Please allow yourself to rest so we can see your smiling face on here again soon. Take care, Linda - Original Message - From: Dalton Garis mailto:malugss...@gmail.com To: john snodgrass mailto:jcs...@yahoo.com ; transverse myelitis mailto:tmic-list@eskimo.com Sent: Sunday, February 13, 2011 9:37 AM Subject: Re: [TMIC] Catching up Hey, folks; I haven't writing because I got another attack and have been unable to do much. But I have been reading all the posts just the same. Thanks, Dalton
RE: [TMIC] February Birthdays
I WANT TO WISH ALL THE FEBRUARY BABIES AVERY, VERY HAPPY BIRTHDAY. PATTI - WISCONSIN From: Barbara H. [mailto:barbara...@gmail.com] Sent: Monday, January 31, 2011 10:52 PM To: TMIC; jharpe...@aol.com Subject: [TMIC] February Birthdays Happy Birthday to the February kids! Please send any additions or corrections to: 2-1 Jeanne Rushton (jrush...@columbiaenergyllc.com) 2/2 Ursula (uma...@t-online.de) 2/2 Lisa in TN (lsim...@aol.com) 2-5 Tita in Delaware (te...@flash.net ) 2-6 Barbara Alma (balmat...@aol.com) 2-7 Barbara in Texas (babbsie1...@yahoo.com) 2-9 Frank (ftrascr...@aol.com) 2/11 Mary (mster...@yahoo.com ) 2-11 Deb Casey (casey...@myway.com) 2/15 Jill (jillybean60...@yahoo.com) 2-17 JOAN FINK (2-17 mafi...@yahoo.com) 2-20 Norma (dgti...@aol.com) 2/26 Patti - Michigan (pjv1...@chartermi.net) 2/27 Cindy (rdavi...@san.rr.com)
RE: [TMIC] (OT) My skydiving adventrue
From: john snodgrass [mailto:jcs...@yahoo.com] Sent: Sunday, January 30, 2011 1:50 PM To: transverse myelitis Subject: Re: [TMIC] (OT) My skydiving adventrue that was awsome! thanks for sharing! --- On Sun, 1/30/11, Janice Nichols jan...@centurytel.net wrote: KIM YOU ARE ABSOLUTELY AWSOME. I COULDN'T DO THAT IF I WERE YOUNGER AND FULLY MOBILE. THAT JUST SHOW YOU CAN DO ANYTHING WHEN YOU PUT YOUR MIND TO IT. KEEP IT UP - ENJOY LIFE TO THE FULLEST. KEEP US INFORMED FOR ALL YOUR DAREDEVIL STUNTS. PATTI From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] (OT) My skydiving adventrue To: kimharrison...@comcast.net, tmic-list@eskimo.com Cc: tmic-list@eskimo.com Date: Sunday, January 30, 2011, 2:16 PM Kim - you were great Thank you sooo much for the fun watch. Janice From: kimharrison...@comcast.net http://us.mc658.mail.yahoo.com/mc/compose?to=kimharrison...@comcast.net Sent: Sunday, January 30, 2011 12:27 PM To: tmic-list@eskimo.com http://us.mc658.mail.yahoo.com/mc/compose?to=tmic-list@eskimo.com Cc: tmic-list@eskimo.com http://us.mc658.mail.yahoo.com/mc/compose?to=tmic-list@eskimo.com Subject: [TMIC] (OT) My skydiving adventrue TM dg.. 10/06/02 T-10 tm will not stop me I did it... went Skydiving yesterday 14,000feet.. 2.7 miles high... 120 MPH!! what a rush.. words can not explain the feeing http://www.youtube.com/watch?v=KASBV8qxfUk http://www.youtube.com/watch?v=KASBV8qxfUk
RE: [TMIC] not testing not resting
Hey Dalton, I am so sorry you had to suffer so much pain again. I guess that told you that you still need pregabalin. I want to say Welcome back as you haven't posted for some time. I know you were going to New You for several weeks. Anyway it is good to see you on the e-mails. Hope your trip went well. Patti - Wisconsin From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Friday, January 28, 2011 10:11 PM To: john snodgrass; transverse myelitis Subject: Re: [TMIC] not testing not resting I have to share with you my attempt at cutting back on my high intake of pregabalin. I thought I was going great guns for about two days, then I awoke with my skin on fire and electrical shock torture in limbs, torso and neck. I didn't even know what was going on. Then, I gobbled a couple of pregabalin and waited. In a couple of hours the pains subsided. Hooked for life, I guess. No way to get off any of it. Dalton From: john snodgrass jcs...@yahoo.com Date: Wed, 26 Jan 2011 19:43:57 -0800 (PST) To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] not testing not resting Resent-From: tmic-list@eskimo.com Resent-Date: Wed, 26 Jan 2011 19:43:55 -0800 this weather has taken a toll on me. im ready to just be frozen into a block of ice and forgottenthe pain is over riding all my meds,maxed out on baclofin,maxed out on neurontin, dr getting on my case over the no good narcotics,,nerve pills not worth a hoot... but the elders in this list,,which may not be older,just tmr's longer than me know this and they are still here so i must go on. Wim from holland,,nmo offense at all,,I am what is considered a Red-neck I really am. born that way. so dont take any offense to any of this,dont take it personlally. I love you man and i mean it so that means it would just get worse. just ask Bobby ;) sometimes the foolishness takes the edge off sometimes it dont. we all hurt,,serriously
RE: [TMIC] Returns
I am so happy for you I could cry - I think I am. It sounds as though your PT lady is an answer to all your prayers. After 5 years of no help, I know it will time for you to really see any significant improvement, but I know it will come. It will mean a LOT of hard work, but I know you are up to it. Keep up the hard work and try not to get discouraged. Please keep us informed so we can celebrate with you any improvements. Patti - Wisconsin From: Akua [mailto:a...@artfarm.com] Sent: Wednesday, January 26, 2011 7:50 PM To: James Berg; tmic-list@eskimo.com Subject: Re: [TMIC] Returns WOW! wow wow! So so similar. Thank you ever so very much for sharing these insights!!! It is so affirming to hear my symptoms described--- yes humming and thrumming! GReat solutions! What is the name of your pedal machine? My PT came today and brought a walker. She wanted me to try to stand. I am near tears of joy to recount this --- there's no way I could do this, but it just meant SO MUCH to be seen as a person who could be assisted and improved vs. being denied, derided or dismissed. I pulled it close and talked about how the farme need to fit around me, vs be in fonr of me. You can't stand on jello, she mused. So we talked about isometrics--- she asked me to push my extended leg ( that she held) down against her hand. I tried and saw nothing... but she said she felt flutterings. So i did these several times on each leg --she felt flutterings. BUT I FELT THE PULSE MOVE FROM MY THIGH TO THE BACK OF MY CALF. I offer up prayers and praise. She is going to give me another series of exercises that i can do in bed to reawaken these connections. She talked about a stimulation machine that makes the muscles contract. Again these are things that were never done for me in the five years of TM paralysis. Thanks again, for chiming in! That we heal and that all be well, Akua So familiar--my wife does my pt because I cannot afford $1600/day for a live in PT facility that was prescribed for me. I know all about the buzzing--I call it humming in my feet and the stronger thrumming in my legs. But my wife found a solution for feet jumping off the wheel chair. I use a regular chair in the house and she uses a velcro back brace (the kind with no shoulder straps) and wraps it around the legs of the wheel chair and my legs. Works! I also have a Jazzy electric wheel chair that we bought second hand from Craigs List for a $1000 that I use for outdoor activities like my grandsons ball games and trips to Cost Co. Here's the neat part. She screwed a pair of sandals onto foot rest of the Jazzy and straps my feet in so they can't jump out. We also bought a pedal machine and she put sandals on that as well because my feet wouldn't stay on it. $100 for the pedal machine 25 for the slippers. It moves my legs for me and I am now doing 30 minutes at top speed twice a day. It will keep your legs from shrinking. I also contacted Redman about a standup electric wheel chair and found it cost $28,000. I passed. Jim -- --
RE: [TMIC] your private info
I FOUND MYSELF, HUBBY AND DAUGHTER ON SPOKEO BUT ALL THE INFO IS OLD. IT DOES NOT HAVE CURRENT ADDRESS ON EITHER OF US. IT LOOKS AS THOUGH YOU HAVE TO PAY TO JOIN TO GET MORE PERSONAL INFO, WHICH I DON'T CARE TO DO. PATTI - WISCONSIN -Original Message- From: Akua [mailto:a...@artfarm.com] Sent: Thursday, January 13, 2011 2:50 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] your private info They had a ton of information A friend told me about this last month. And i saw my name in several locations -- which made me wary! Check out the following info. I did and they have a lot of personal info but also a lot of misinformation. You might want to try to remove your name. See below - someone had posted this on facebook: There's a site called Spokeo.com that's an online USA phone book w/personal information: everything from pics you've posted on FB or web, your approx credit score, home value, income, age, etc. You can remove yourself by searching for yourself on their site, copying the URL of your page, then go to the bottom of the page and click on ...Privacy button to remove yourself. Copy repost so your FB friends are aware When I tried, it asked for my email, then didn't take me off! It said to check my email for further instructions. I haven't gotten the 'instructions' yet! Good luck. Sally --
RE: [TMIC] OT-New Granddaughter
CONGRATULATIONS TO ALL YOU NEW GRANDPARENTS. THEY ARE LIFE'S REWARD FOR GETTING OLDER. YOU WILL ALL HAVE SO MUCH FUN AND JOY IN THE YEARS TO COME. THERE IS NOTHING MORE BEAUTIFUL WHEN YOUR GRANDBABY PUTS THEIR ARM AROUND YOUR NECK AND SAYS I LOVE YOU. OF COURSE FOR OU BRAND NEW GRANDPARTENTS THAT MAY BE A WHILE YET, BUT IT IS COMING. ENJOY THEM AND REMEMBER ONE OF THE MAIN RESPONSIBILITIES YOU HAVE IS TOLOVE THEM AND SPOIL THEM ROTTEN. PATTI - WISCONSIN From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Wednesday, January 12, 2011 12:22 PM To: j.d...@shaw.ca; Butcher, Bernie (SFS); Cody; TMIC Subject: Re: [TMIC] OT-New Granddaughter My grandson is 6 years old and we have an absolute ball with him! He is into all sports and loves to have fun. Congratulations to all of you grandparents. Janice From: j.d...@shaw.ca Sent: Wednesday, January 12, 2011 12:29 AM To: Butcher, Bernie (S mailto:bernie.butc...@honeywell.com FS) ; Cody mailto:c...@austin.rr.com ; TMIC mailto:tmic-list@eskimo.com Subject: Re: [TMIC] OT-New Granddaughter Congratulations to all of you. I got to join the club on November 24 2010 My first grandbaby - a boy - Quentin. Stole my heart, he did! Janet - Original Message - From: Butcher, Bernie (S mailto:bernie.butc...@honeywell.com FS) To: Cody mailto:c...@austin.rr.com ; TMIC mailto:tmic-list@eskimo.com Sent: Tuesday, January 11, 2011 2:03 PM Subject: RE: [TMIC] OT-New Granddaughter I too am now a grandfather! 8/19/10 Colin Bernard BERNARD BUTCHER Honeywell Engineering 516-577-5868 _ From: Cody [mailto:c...@austin.rr.com] Sent: Tuesday, January 11, 2011 3:42 PM To: TMIC Subject: [TMIC] OT-New Granddaughter Holding my hand is my new Granddaughter Kaylee Rayann born 12-30-2010 6.1lbs.Cody in Austin
RE: [TMIC] question - knee replacement
I AM SO GLAD FOR YOU. A LITLE SQUEEK IS A GOOD EXCHANGE FOR ALL THE PAIN AND LACK OF MOBIIITY YOU HAD BEFORE. I KNOW MY HUSBAND'S DOUBLE KNEE REPLAEMENT IN 2006 WAS THE BEST THING HE COULD HAVE DONE. KEEP UP THE GOOD WORK AND LET US NOW HOW YOU CONTINUE TO DO. PATTI - WISCONSIN From: Maggie [mailto:magiema...@hotmail.com] Sent: Monday, January 10, 2011 2:00 PM To: balmat...@aol.com; patticoole...@gmail.com; rp...@neillsupply.com; tmic-list@eskimo.com Subject: RE: [TMIC] question - knee replacement I know this is a very late reply, but for what it is worth . . . I had a partial knee replacement - Avon - on my right knee on March 26, 2009. It was the best thing I did! I had severe arthritis and bone on bone. So at 47 years of age, my doctor suggested the Avon partial replacement. Before my surgery I was very limited to what I could do. I was to minimize the amount of walking and avoid stairs. The only exercise I was permitted was swimming and golf if I took a cart. I was in constant pain. When I woke from surgery, my knee ached. But within a few hours after the surgery, I literally had no pain at all. The nurses would not believe me so I had to lie and tell them that my pain level was around 3 on a scale of 1 to 10. That seemed to make them happy and they would leave me alone and not try to force pain meds on me. My surgery was at 1:00 PM on Thursday and I spent the day in bed. On friday morning, they removed my catheter and I used the walker twice, once to get to washroom to wash up and the second time to actually use the washroom. After that I was on crutches. Because of the 14 surgeries I had on my right knee prior to the partial replacement, I had a great deal of scar tissue which hampered my mobility. I relied on my crutches for 10 weeks and then went to a cane for almost 4 weeks. I have full mobility and aside from a squeek I have absolutely no pain. Best thing I ever did. Margaret _ To: patticoole...@gmail.com; rp...@neillsupply.com; tmic-list@eskimo.com Subject: Re: [TMIC] question - knee replacement From: balmat...@aol.com Date: Wed, 8 Dec 2010 18:16:19 -0500 Hi Patti, I'm not sure if he is right or wrong, but my physical therapist told me that I probably have hypersensitivity. I am not sure if that had anything to do with the pain issue, but I don't think so. I think it's due to the fact that I don't walk well and that I wouldn't be able to do the rehab as well or in the same manner as somebody who is walking much better. I know that they keep you comfortable with pain meds, but I went through plenty with my shoulder, needing to put pressure on it just to be able to ambulate about a little. I still needed to get back and forth to the bathroom, on and off a toilet, etc and that's just the minimum. Wow, it seems like a double replacement is rather common. Although I cannot imagine doing 2 at once, it may be nice if you need to do them. to get the pain and rehab over with all at once. And.then on with your life! Hugs, Barbara A in Auburn CA -Original Message- From: Patricia Cooley patticoole...@gmail.com To: 'Barbara Alma' balmat...@aol.com; RPall rp...@neillsupply.com; tmic-list tmic-list@eskimo.com Sent: Wed, Dec 8, 2010 7:04 am Subject: RE: [TMIC] question Barbara my husband had double knee replacement in 2006. Whatever pain he had must not have been too bad as he didn't complain. I think the one thing that made it easier for him is doing your pre-surgery exercised to strengthen leg muscles. A month before surgery he a given a 3-ring binder with all the excises listed. He did them faithfully all day so his body was ready for the demand surgery would put on his legs. In fact, he only went to P.T. for about 3-4 weeks, as they said they couldn't do any more for him and Medicare wouldn't pay for it any more. He was driving again in less than 4 weeks. Of course, he didn't have any other health problems, which might make a big difference. Good luck with whatever you decide to do. Patti - Wisconsin From: Barbara Alma [mailto:balmat...@aol.com mailto:balmat...@aol.com? ] Sent: Wednesday, December 08, 2010 2:04 AM To: rp...@neillsupply.com; tmic-list@eskimo.com Subject: Re: [TMIC] question Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As much as I walk, I'll probably never wear it out. I was actually on schedule for a knee replacement last year when I asked to see a physical therapist in order to best improve the strength in my body so I could get through the rehab in the best way possible. The therapist told me that the knee is no walk in the park. It is extremely painful, after the surgery, but especially the rehab. I don't understand
RE: [TMIC] Careful OT
Gunny I am so sorry to hear about your heart attack. Does this mean you have to have by-pass surgery? You are right, we all should do the things that are good for us, but it is hard at times. You take care of yourself and follow the doctor advice. Patti - Wisconsin From: Barbara H. [mailto:barbara...@gmail.com] Sent: Thursday, January 06, 2011 3:33 PM To: bgunny7...@aol.com Cc: Tmic-list@eskimo.com Subject: Re: [TMIC] Careful OT Wow -- that's scary. I am glad they were able to help you before it got worse. Good advice!! Take care. Barbara H. http://barbarah.wordpress.com On Thu, Jan 6, 2011 at 4:09 PM, bgunny7...@aol.com wrote: Monday night around 11:30 I had a horrendous Heart attack. Went to North Side Hospital by ambulance where they put a stent in on a 95% clogged artery. Gotta go back on the 28th for them to do an 80% clogged one. So, if you smoke, STOP. If you eat fatty foods, STOP. If your messin up your life, STOP. This ain't no game. Felt like mule kicked me in the chest.
RE: [TMIC] Re: January Birthdays (1/8)
I WISH ALL THE JANURY BABIES A VERY, VERY HAPPY BIRTHDAY ! PATTI - WISCONSIN From: Barbara H. [mailto:barbara...@gmail.com] Sent: Thursday, January 06, 2011 11:15 PM To: TMIC; jharpe...@aol.com Subject: [TMIC] Re: January Birthdays (1/8) On Sat, Jan 1, 2011 at 1:41 AM, Barbara H. barbara...@gmail.com wrote: 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1/9 Julienne (julesin...@aol.com) 1/13 Debi (brade...@hotmail.com) 1-17 Jenna Stentz (jkste...@yahoo.com ) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
RE: [TMIC] meds from Canada
Cheryl my husband always got his meds from Canada before we had prescription coverage with Medicare. We were always satisfied with the quality and speed of delivery. The price was about ½ of the cost here in the USA. I have recommended Canada drugs to anyone who hits the donut hole or is close to it. Patti From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: Friday, January 07, 2011 10:48 AM To: tmic-list@eskimo.com Subject: [TMIC] meds from Canada I just got my first med from Canada. It's a generic form of Diovan called valsartan,for high blood pressure. It also helps protect the kidneys (important because I'm also diabetic). It costs $70+14 for shipping for a 3 month supply. The first order has a $10 off coupon. The best part is by not using my insurance,I will save and not hit the 'donut hole' this year.The co-pay is the same that my insurance charges for a tier 1 drug. The drug is made in India. I just read the info on 2 other meds I get and 1 is made in India,and 1 in Israel. All the other meds I take are generic,except insulin. Cheryl
RE: [TMIC] REHAB
Dalton, you are so right. I am older than most of the TMers, and I remember most of my friends had a grandma and/or grandpa as part of the family. My grandparents were gone before I was born, but my husband's family took care of the grandparents until the end. My husband and I moved to Waupaca, WI so we could be near my daughter and her family. We live separately but together. We live in a house where an apartment is joined by a breeze way to the main house where my husband and I live. I get to see my beautiful granddaughters each day, my daughter is nearby in case of an emergency. So far no emergencies, thank God. I agree that this country has lost its way over the years. I think part of it is the fact that families don't live in the same community, but are all over the country so family is unable to give help when needed. Also, the fact that both husband and wife must work and are stretched so thin as far as time is concerned. I don't know the answer to this problem. It has been going on for so many years our current generations are conditioned to think only of themselves. I can only pray for the future of this nation. Patti - Wisconsin From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Wednesday, January 05, 2011 1:36 PM To: Janice Nichols; Kevin Wolfthal; Akua; tmic-list@eskimo.com Cc: Brooks Garis Subject: Re: [TMIC] REHAB In response to our discussion of American nursing homes and rehab centers: I remember going to the nursing home to say good-bye to my grandmother of 103 years of age. I had to move to Texas for work. She was very sharp while she could still read, until at aged 102, the cataract pealing surgery changed her nervous system and did not improve her vision. After that, she couldn't read about Nixon and his cronies and she lost interest in things. When I saw her the staff had shifted treatment for her from some level of respect to simply tying her in a wheelchair with a crapper pan under it, keeping her doped up all day, nodding her head this way and that, so she wouldn't be any trouble for maybe eight hours. My grandmother, who used to be so fierce well into her 90's she had us all scared and paying attention, now like a baby with grey hair, on the nod from the dope they gave her. I put my hand on her dear head and said some prayers. Then I had to go; our mother would see her during the months to follow. She died at 105. That was in 1989. I can't adjust to the disrespect they show to the old and disabled in America. Some of it America brought on itself, with all those notions of the nuclear family and labor mobility. Like most of my friends when I was a kid, we lived in a house with three generations in it, the grandparents in their rooms on the second floor, my parents down the hall, and we kids in another room. Back then people were able to hang on to jobs, or if not jobs, at least stay with the same company. The company had a personal relationship with the worker if he or she was lucky and the company was good. But there were good companies then, who tried to keep things going and all their labor force in work as long as possible. But my wife and our daughter lived in Florida after moving from Texas; and our mother was in Massachusetts, my sister and her family were in New York, and my brother's family lived in Connecticut. My cousins' families were in Colorado. My wife's parents were in Vermont. Now I live in Abu Dhabi. My present and future wife, Qian-her parents are in Chengdu, central China. When did America stop being a family and start being a team? Teams are different than families. Teams bench the weak ones, and when they don't improve, or are no longer capable of playing the game up to snuff, they are let go. Families, on the other hand, nurse the weak back to health and business, raise the little ones, and take care of their old, who have now become unable to compete as before. Nursing homes would be staffed by our own neighbors, who take care of Mrs. Johnson because she taught some of the staff in fifth grade; and Stan Kopek mowed our lawns and was a vet of the Pacific Theater in World War II. Any complaints would arouse the interest of the Congregational Church's Reverend, the Baptist Church's pastor, the synagogue's Rabbi, or St. Bridges' Catholic priest maybe. They'd have a few words with the nursing home's management and that would take care of it. American management and our government now think of themselves as a team, with the people representing an inexhaustible source of interchangeable workers that can be added or subtracted at will, who do not represent any responsibility for the firm in terms of the workers' family needs. I don't have a warm and fuzzy feeling for Team America. Sounds too much like living as the people in that old movie, Metropolis, had to live. That's why our nursing homes pay staff starvation wages a lot of the time, who don't generally have the interest of the patient on
RE: [TMIC] REHAB
I think the reason I was very happy with my care when I was in rehab was because I was at a hospital Not Nursing Home/Rehab facility. We all know that nursing home care sucks big time. There was always enough equipment and tables to work on. My P.T. was scheduled at a hour at a time twice a day, and I always had the same therapist except for weekends. Even the weekend people were wonderful. It sounds as though it depends are where you live and what is available to you. I was fortunate that I lived near large hospitals. Patti From: Akua [mailto:a...@artfarm.com] Sent: Tuesday, January 04, 2011 4:07 PM To: tmic-list@eskimo.com Subject: [TMIC] REHAB As some of the other TM'ers have found out when being in a skilled nursing/rehab facility and required more care than others - you don't always get it. Another thing that makes me angry on reflection is that , though i was paralyzed and had TM, I was a lot less work than a lot of other patients. I was younger than 95% of the other residents, I could communicate. I was easy to contain and maintain from a nursing standpoint. They only had to help me move from place to place and teach me how to move. Having upper body meant that no one had to feed me or dress me or wash me -- they just had to get me to the food or the shower. If they were better resourced, my falling in the shower wouldn't have happened-- that happened with an unassisted transfer from a wet shower bench into a sliding wheel chair (I'm falling i said as the aide stood and watched me fall) at home as in the hospital -- i don't do wet transfers-- I use a shower wheelchair so no more going from wet to wet. One of the things I would love to fix is nursing homes think tank? Lobby? there's a guy who has developed new kind of community for nursing homes, healthy... but they are few and far between and require $. for me the prison analogy holds --- people are supposed to be rehabilitated, but they are most often warehoused. -- When I despair, I remember that all through history the way of truth and love has always won. There have been tyrants and murderers and for a time they seem invincible but in the end, they always fall - think of it, always. Mohandas Gandhi
RE: [TMIC] REHAB
Your experience sounds like a time spent in HELL. It is unfortunate that there are so many places like that in this country. People who have family or friends that can monitor their care are the lucky ones. Even hospitals lack proper care at times. I remember when my husband was in the hospital for colon surgery and when I was walking down the hall to the restroom, I noticed a patient in bed completely naked and no curtain was closed. They were trying to reach behind them to pull up a sheet. I complained to my husband's doctor but was afraid that if I complained to the nursing staff my husband's care would suffer. I now realize that I should have said something more. But when you are dealing with cancer surgery you aren't thinking right. Patti - Wisconsin From: Akua [mailto:a...@artfarm.com] Sent: Monday, January 03, 2011 6:50 PM To: tmic-list@eskimo.com Subject: [TMIC] REHAB The closest I came to hell on earth was in rehab. I was allowed to fall twice. I was given the wrong meds daily for nearly two months, I was insulted and demeaned. I remember the nurse entering my room and finding me crying -- I was in awful electric pain --- and she told me I shouldn't be crying. She often brought he son to work. I wrote her about her gross insensitivity and she apologized. I worked hard to learn how to use the sliding board to get in and out of bed-- it was so so hard, and frightening, because an idiot had let me fall, but this mainly because if you couldn't get up, you wouldn't be attended to. Now that I'm home, I understand one of the basic challenges the idiot didn't address-- the wheelchair slides on a polished, linoleum floor. I have a bathmat with grips by my bed now, so my wheelchair, doesn't slide. this is just one of a zillion things they could have taught or worked on or shared or presented to or for me and didn't. And this was rehab, to ready me for life on my own as a paraplegic: worthless. One of the friends I made there was immobile without assistance, although unlike me, she was not paralyzed. She was left on her bedpan for an hour. I had passed aides chatting at the station, ignoring her buzzer, as i wheeled down the hall to see her. I wrote the board and management and met with management. I met with the dietitian twice, who quit about a month after i left. She told me that she was unable to get me the food that with restore my health ( fresh fruit and vegtables, fish, whole grain breads, baked potatoes). I kept in touch with several friends I made there who were still there when I left, because we all knew the importance of having people call. Only the cleaning staff helped. They advocated and interceded. I'll never forget one man who came and prayed for and over me. An investigation began when I and several other patients lost over 50 pounds. The few visits I had, folks brought food. Staff ate or discarded my (good) food. So, while I don't know about the hip pain, I can relate to the soul pain of being in a nursing home. It was like being in prison. There was a courtyard allegedly for getting air--- the door was always locked. I was awakened, whenever they felt like it, seldom consistently. Hellish to be awakened at 5 a.m. to have blood drawn by unskilled phlebotomists. Privacy was seldom observed I remember always asking for doors or curtains to be closed. If Cindy needs calls, I'm more than willing. all other things being equal, being in a nursing home is awful. Akua -- http://www.healrecover.blogspot.com http://www.akualezli.blogspot.com When I despair, I remember that all through history the way of truth and love has always won. There have been tyrants and murderers and for a time they seem invincible but in the end, they always fall - think of it, always. Mohandas Gandhi
RE: [TMIC] REHAB
When I was first dx with TM, the first hospital was a pit. The people were nice enough, but the food I won't feed to a dog. After a week, I was transferred to their larger hospital that had a rehab floor, mostly for people who had knee and hip replacement. My nurses and P.T. people couldn't have been nicer or more capable. Even the people who came in to clean were all so caring. I was there for over 4 weeks, and my room was the place they all spent their breaks. I was so glad to go home, but in one way I hated leaving all the wonderful care givers I had. I wish all could have that kind of care, especially when you consider what we pay for it. Patti - Wisconsin From: James Berg [mailto:molokai...@gmail.com] Sent: Tuesday, January 04, 2011 2:28 PM To: Akua Cc: tmic-list@eskimo.com Subject: Re: [TMIC] REHAB Are all rehabs the same? I was charged $1600/day and treated like cattle. On Mon, Jan 3, 2011 at 2:49 PM, Akua a...@artfarm.com wrote: The closest I came to hell on earth was in rehab. I was allowed to fall twice. I was given the wrong meds daily for nearly two months, I was insulted and demeaned. I remember the nurse entering my room and finding me crying -- I was in awful electric pain --- and she told me I shouldn't be crying. She often brought he son to work. I wrote her about her gross insensitivity and she apologized. I worked hard to learn how to use the sliding board to get in and out of bed-- it was so so hard, and frightening, because an idiot had let me fall, but this mainly because if you couldn't get up, you wouldn't be attended to. Now that I'm home, I understand one of the basic challenges the idiot didn't address-- the wheelchair slides on a polished, linoleum floor. I have a bathmat with grips by my bed now, so my wheelchair, doesn't slide. this is just one of a zillion things they could have taught or worked on or shared or presented to or for me and didn't. And this was rehab, to ready me for life on my own as a paraplegic: worthless. One of the friends I made there was immobile without assistance, although unlike me, she was not paralyzed. She was left on her bedpan for an hour. I had passed aides chatting at the station, ignoring her buzzer, as i wheeled down the hall to see her. I wrote the board and management and met with management. I met with the dietitian twice, who quit about a month after i left. She told me that she was unable to get me the food that with restore my health ( fresh fruit and vegtables, fish, whole grain breads, baked potatoes). I kept in touch with several friends I made there who were still there when I left, because we all knew the importance of having people call. Only the cleaning staff helped. They advocated and interceded. I'll never forget one man who came and prayed for and over me. An investigation began when I and several other patients lost over 50 pounds. The few visits I had, folks brought food. Staff ate or discarded my (good) food. So, while I don't know about the hip pain, I can relate to the soul pain of being in a nursing home. It was like being in prison. There was a courtyard allegedly for getting air--- the door was always locked. I was awakened, whenever they felt like it, seldom consistently. Hellish to be awakened at 5 a.m. to have blood drawn by unskilled phlebotomists. Privacy was seldom observed I remember always asking for doors or curtains to be closed. If Cindy needs calls, I'm more than willing. all other things being equal, being in a nursing home is awful. Akua -- http://www.healrecover.blogspot.com http://www.healrecover.blogspot.com/ http://www.akualezli.blogspot.com http://www.akualezli.blogspot.com/ When I despair, I remember that all through history the way of truth and love has always won. There have been tyrants and murderers and for a time they seem invincible but in the end, they always fall - think of it, always. Mohandas Gandhi
RE: [TMIC] January Birthdays
I WISH ALL YOU WINTER JANUARY BABIES A VERY HAPPY BIRTHDAY. ALSO I WISH ALL OF US A VERY HAPPY NEW YEAR!! PATTI - WISCONSIN From: Barbara H. [mailto:barbara...@gmail.com] Sent: Saturday, January 01, 2011 12:41 AM To: TMIC; jharpe...@aol.com Subject: [TMIC] January Birthdays Happy Birthday and Best wishes for the New Year! Please send any additions or corrections to tmic-l...@eskimo.com. 1- 7 Lauren (sugal...@adelphia.net) 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1/9 Julienne (julesin...@aol.com) 1/13 Debi (brade...@hotmail.com) 1-17 Jenna Stentz (jkste...@yahoo.com ) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
RE: [TMIC] A Bad Fall
Yes I do use a cane when I go out, but in the house I get along without one. Each time I fell, it was through stupidity. Once I stepped on my shoe lace and went down. All I got were rug burns on my knees. It has been a long time since then and I am much more careful. Patti From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Saturday, January 01, 2011 1:20 PM To: Patricia Cooley; 'Todd Tarno'; 'TMIC' Subject: Re: [TMIC] A Bad Fall Good Grief, Patti!! You better stop falling – next one could really be bad. Do you use a cane? Janice From: Patricia Cooley mailto:patticoole...@gmail.com Sent: Friday, December 31, 2010 2:54 PM To: 'Todd Tarno' mailto:toddtm2...@sbcglobal.net ; 'TMIC' mailto:tmic-list@eskimo.com Subject: RE: RE: [TMIC] A Bad Fall Todd I did the same thing about 6 weeks after I got home from the hospital. I was at the computer paying some bills. When I finished, I got up to go to the bathroom and completely forgot that I couldn’t walk. Needless to say, I landed flat on my face. Fortunately, I didn’t hurt myself, but I thought okay how do I get up since my hubby was outside cutting the grass. I was lucky that my P.T. therapist showed me what to do in case I would fall. As I was going down all I could think was oh s__t! Well, what she showed me worked. I have gone down at least 2 more times, but I have been lucky that all I bruised was my self esteem. We all must remember to be very careful. I hope you didn’t hurt yourself. Patti - Wisconsin From: Todd Tarno [mailto:toddtm2...@sbcglobal.net] Sent: Friday, December 31, 2010 2:09 PM To: TMIC Subject: Fw: RE: [TMIC] A Bad Fall I need to be more careful. When I was getting of the computer yesterday headed to the bathroom, I turned back around to see the computer was having trouble turning off, that is when BACK on the fall again. I almost made it another year without falls, maybe next year. Happy New Year everyone, Todd --- On Fri, 12/31/10, PAMELA S subers...@msn.com wrote: From: PAMELA S subers...@msn.com Subject: RE: [TMIC] A Bad Fall To: toddtm2...@sbcglobal.net, TMC Group tmic-list@eskimo.com Date: Friday, December 31, 2010, 1:38 AM I've fallen down the stairs several times these past few years. But, I count my blessings I'm able to go down the stairs. My hips are constantly bruised where I fall into things, but I am so lucky I am walking there in the first place. My PT gets aggrevated at me for doing too much, and my insurance company thinks I should do more. I'm not to good at decisions, friends. Chiropractors have been the ones who have given me the most relief, too. _ Date: Thu, 30 Dec 2010 11:01:06 -0800 From: toddtm2...@sbcglobal.net Subject: Fw: RE: [TMIC] A Bad Fall To: tmic-list@eskimo.com I too had a bad fall, when I was trying to sit on the floor. I was trying a new short cut, going from standing with my walker to straight to the floor without sitting in a chair first then going down to the floor. So don't try this at home or anywhere else. lol I let my chiropractor know that my left shoulder blade was hurting, so he followed that point to my spine and snapped back in one of my ribs. This was a week before Christmas, so it did make for a great Christmas gift. So please be very safe everyone, Todd in CC,TX --- On Thu, 12/30/10, wim from holland wim_from_holl...@hotmail.com wrote: From: wim from holland wim_from_holl...@hotmail.com Subject: RE: [TMIC] To: jan...@centurytel.net, TMIC tmic-list@eskimo.com Date: Thursday, December 30, 2010, 7:31 AM Janice Normaly I could say, just fine, not better or worse. After all this time it was very study. But last summer I overstreched my hamstrings by a fall. A very stupid one, sitting on the bed I reached too far for clothes on the floor and slide from the bed. I jused after that time my wheelchair all the day, because standing and walking with crutches was too painfull. Now after recovering, it is hard to get back to what I could do before. I hope in summer when we go to Spain I can get it back in the warm sun and dayly in the swimming pool. Wim _ From: jan...@centurytel.net To: wim_from_holl...@hotmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Date: Mon, 27 Dec 2010 10:31:41 -0600 Wim, it is great hearing from you again!How are you doing – besides learning to be grandparents. Janice From: wim from holland http://us.mc822.mail.yahoo.com/mc/compose?to=wim_from_holl...@hotmail.com Sent: Monday, December 27, 2010 9:03 AM To: TMIC http://us.mc822.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com Subject: [TMIC] Gelukkig Nieuwjaar!! Happy new year everybody, hopefully this will be the year that makes an end to TM, and if not, don't give up hope and keep the head up. Last two years were very strange. We become grandparents, but we also became orphans this year. Next year our second grand child
RE: RE: [TMIC] A Bad Fall
Todd I did the same thing about 6 weeks after I got home from the hospital. I was at the computer paying some bills. When I finished, I got up to go to the bathroom and completely forgot that I couldn’t walk. Needless to say, I landed flat on my face. Fortunately, I didn’t hurt myself, but I thought okay how do I get up since my hubby was outside cutting the grass. I was lucky that my P.T. therapist showed me what to do in case I would fall. As I was going down all I could think was oh s__t! Well, what she showed me worked. I have gone down at least 2 more times, but I have been lucky that all I bruised was my self esteem. We all must remember to be very careful. I hope you didn’t hurt yourself. Patti - Wisconsin From: Todd Tarno [mailto:toddtm2...@sbcglobal.net] Sent: Friday, December 31, 2010 2:09 PM To: TMIC Subject: Fw: RE: [TMIC] A Bad Fall I need to be more careful. When I was getting of the computer yesterday headed to the bathroom, I turned back around to see the computer was having trouble turning off, that is when BACK on the fall again. I almost made it another year without falls, maybe next year. Happy New Year everyone, Todd --- On Fri, 12/31/10, PAMELA S subers...@msn.com wrote: From: PAMELA S subers...@msn.com Subject: RE: [TMIC] A Bad Fall To: toddtm2...@sbcglobal.net, TMC Group tmic-list@eskimo.com Date: Friday, December 31, 2010, 1:38 AM I've fallen down the stairs several times these past few years. But, I count my blessings I'm able to go down the stairs. My hips are constantly bruised where I fall into things, but I am so lucky I am walking there in the first place. My PT gets aggrevated at me for doing too much, and my insurance company thinks I should do more. I'm not to good at decisions, friends. Chiropractors have been the ones who have given me the most relief, too. _ Date: Thu, 30 Dec 2010 11:01:06 -0800 From: toddtm2...@sbcglobal.net Subject: Fw: RE: [TMIC] A Bad Fall To: tmic-list@eskimo.com I too had a bad fall, when I was trying to sit on the floor. I was trying a new short cut, going from standing with my walker to straight to the floor without sitting in a chair first then going down to the floor. So don't try this at home or anywhere else. lol I let my chiropractor know that my left shoulder blade was hurting, so he followed that point to my spine and snapped back in one of my ribs. This was a week before Christmas, so it did make for a great Christmas gift. So please be very safe everyone, Todd in CC,TX --- On Thu, 12/30/10, wim from holland wim_from_holl...@hotmail.com wrote: From: wim from holland wim_from_holl...@hotmail.com Subject: RE: [TMIC] To: jan...@centurytel.net, TMIC tmic-list@eskimo.com Date: Thursday, December 30, 2010, 7:31 AM Janice Normaly I could say, just fine, not better or worse. After all this time it was very study. But last summer I overstreched my hamstrings by a fall. A very stupid one, sitting on the bed I reached too far for clothes on the floor and slide from the bed. I jused after that time my wheelchair all the day, because standing and walking with crutches was too painfull. Now after recovering, it is hard to get back to what I could do before. I hope in summer when we go to Spain I can get it back in the warm sun and dayly in the swimming pool. Wim _ From: jan...@centurytel.net To: wim_from_holl...@hotmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Date: Mon, 27 Dec 2010 10:31:41 -0600 Wim, it is great hearing from you again!How are you doing – besides learning to be grandparents. Janice From: wim from holland http://us.mc822.mail.yahoo.com/mc/compose?to=wim_from_holl...@hotmail.com Sent: Monday, December 27, 2010 9:03 AM To: TMIC http://us.mc822.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com Subject: [TMIC] Gelukkig Nieuwjaar!! Happy new year everybody, hopefully this will be the year that makes an end to TM, and if not, don't give up hope and keep the head up. Last two years were very strange. We become grandparents, but we also became orphans this year. Next year our second grand child will be born. Wim from Holland.
RE: [TMIC] WARNING - don't overstretch
Thanks for the worming, Sally. I have a habit of thinking if a little is good a lot is even better. I will certainly watch it from now on. Patti -Original Message- From: kale...@sfcn.org [mailto:kale...@sfcn.org] Sent: Thursday, December 30, 2010 1:14 PM To: Janice Nichols Cc: wim from holland; TMIC Subject: Re: [TMIC] WARNING - don't overstretch Interesting to read these last two emails, as it reminded me of how I injured myself last summer by overstretching, but not by the same kind of accident as did Wim! I didn't even know I'd done it! We stretch to help manage the spacticity, right. Well, I finally went to a podiatrist when my left ankle had been hurting worse and worse. He told me I had TORN my Achilles tendon! Apparently, I had gradually stretched it too much and it had torn 33%! It healed in a few months, but still hurts almost as much as before it healed. Now they tell me I have Sural Nerve Neuritis - apparently from scar tissue pressing on the nerve??? Good news is that the Podiatrist recommended Lyrica, which just happens to also be good for spacticity, too. I've only been on it a couple of weeks but it seems to be helping. Bottom line is, PLEASE BE CAREFUL NOT TO OVERSTRETCH! Apparently, b/c of the spacticity, there's not as much give as there normally would be, and it facilitated the tear. And even more, it's the exact pain I've had in my hip (thigh) for 4 years, which they decided was from overcompensating for my right leg which was the one most affected by the TM. But the podiatrist agreed that if I could tear at the ankle, I could well have torn a tendon in my thigh/hip. It all makes sense b/c someone had talked me into doing some extreme stretches shortly after the initial TM, thinking that would help me. At the time I didn't have too much feeling in that leg and didn't notice how bad it was until my feeling improved! But I'm pretty sure, now, that that was what caused this sciatica-like pain, too. I've been wanting to post about this to warn others about overstretching. (I tend to easily go to extremes! It's keeping that balance; being 'moderate' that I have a problem with. And now I'm paying for it! :) Happy New Year, Sally I had a hamstring problem too. Therapists had me doing lots of stretching and I am back to normal (if you can call TM normal) now. Good luck with it.Spain sounds like a great cure!Tell us about the trip when you get back. Janice From: wim from holland Sent: Thursday, December 30, 2010 7:31 AM To: jan...@centurytel.net ; TMIC Subject: RE: [TMIC] Janice Normaly I could say, just fine, not better or worse. After all this time it was very study. But last summer I overstreched my hamstrings by a fall. A very stupid one, sitting on the bed I reached too far for clothes on the floor and slide from the bed. I jused after that time my wheelchair all the day, because standing and walking with crutches was too painfull. Now after recovering, it is hard to get back to what I could do before. I hope in summer when we go to Spain I can get it back in the warm sun and dayly in the swimming pool. Wim From: jan...@centurytel.net To: wim_from_holl...@hotmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Date: Mon, 27 Dec 2010 10:31:41 -0600 Wim, it is great hearing from you again!How are you doing - besides learning to be grandparents. Janice From: wim from holland Sent: Monday, December 27, 2010 9:03 AM To: TMIC Subject: [TMIC] Gelukkig Nieuwjaar!! Happy new year everybody, hopefully this will be the year that makes an end to TM, and if not, don't give up hope and keep the head up. Last two years were very strange. We become grandparents, but we also became orphans this year. Next year our second grand child will be born. Wim from Holland.
RE: [TMIC]
Wim HAPPY NEW YEAR to you. I agree let's hope this year brings some cure or improved treatments for all TMers. Congratulations on becoming grandparents. They bring so much joy to our lives. I have two beautiful granddaughters that I love to pieces. You have my sympathy in becoming orphans. For me, it was 25 years ago but seems like yesterday. Patti - Wisconsin From: wim from holland [mailto:wim_from_holl...@hotmail.com] Sent: Monday, December 27, 2010 9:04 AM To: TMIC Subject: [TMIC] Gelukkig Nieuwjaar!! Happy new year everybody, hopefully this will be the year that makes an end to TM, and if not, don't give up hope and keep the head up. Last two years were very strange. We become grandparents, but we also became orphans this year. Next year our second grand child will be born. Wim from Holland.
RE: [TMIC] Happy New Year to All at TMIC
JUDE IT IS SOO GOOD TO HEAR FROM YOU. YOU HAVE NOTHING TO FORGIVE. WE ALL KNOW HOW IT IS WHEN WE ARE GOING THROUGH BAD TIMES. I AM GLAD YOU ARE SEEING FRIENDS FOR NEW YEARS EVE, AND HOPE THAT YOU CONTINUE TO BE STRONG AND CAN GET TOGETHER WITH FRIENDS. I AM GOING OUT IN A FEW SO HAVE TO KEEP THIS SHORT. WILL WRITE MORE LATER. PATTI - WISCONSIN From: Jude Hoops [mailto:heyjude48...@aol.com] Sent: Sunday, December 26, 2010 5:02 PM To: tmic-list@eskimo.com Subject: [TMIC] Happy New Year to All at TMIC Importance: High Hi, It is Jude, bet you thought you would never hear from me again. I was down for a while, but never “out”. Please forgive me for not keeping up and I continue to blame my computer for the difficulties. What has been going on with everyone? Dave and I live quietly and only go out to Dr.’s offices, etc. We are seeing friends for New Years Eve, with hopes that I will remain up to it. Love to all of you, Jude Peace Cat face Dog face Email image001.pngimage002.pngimage003.pngimage004.png
RE: [TMIC] Is anybody there? I;m trying to find someone who remembers meeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee
Hey Jude there are many of us who remember and love you. I am so happy to just see your name in my in mail list. I know you have great difficulty in posting. We just got another 3-4 inches of snow over night. I suppose you have a lot of snow too. I hope you and Dave and your little puppy (who is probably not so little anymore) A VERY MERRY CHRISTMAS. Please post when you can, we love to hear from you. Take care, God Bless and TIAD Patti - Wisconsin From: Jude Hoops [mailto:heyjude48...@aol.com] Sent: Tuesday, December 21, 2010 3:45 AM To: tmic-list@eskimo.com Subject: [TMIC] Is anybody there? I;m trying to find someone who remembers meee
RE: [TMIC] Gabapentin
I never heard that you get into trouble with too much calcium. I take over 1200 mg a day, but I don't take them all at once. I take one at lunch and one at dinner, plus my multi which has calcium in the a.m. I also take one magnesium tablet in the a.m. It helps to absorb the calcium, but you don't take it at the same time as your calcium. I was under the impression if you take more than you need, you just pee it out which is a waste since they aren't cheap. Plus I drink milk and have milk on my cereal in the a.m. Patti - Wisconsin -Original Message- From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Sunday, December 19, 2010 12:32 PM To: kale...@sfcn.org; john snodgrass Cc: Dalton Garis; transverse myelitis Subject: Re: [TMIC] Gabapentin Sally, what would be too much calcium? I know that if you take too much you get into trouble for other things. Janice -Original Message- From: kale...@sfcn.org Sent: Saturday, December 18, 2010 10:09 AM To: john snodgrass Cc: Dalton Garis ; transverse myelitis Subject: Re: [TMIC] Gabapentin John, I'm not sure what your spasms are like - maybe yours are much worse than mine, but I've found that if I take sufficient calcium supplements, I don't have them. (What I refer to as 'spasms', for me, is when nerves in my legs actually cause my legs to jerk around when I'm still. It makes it hard to go to sleep.) I take maybe 800 mg to 1200 mg/day, depending on how much calcium foods I've eaten. If my legs start to spasm, I know I didn't take enough and get up and take some. (Calcium is more effective if taken in smaller doses - i.e. 400mg - throughout the day, rather than all at once.) My calcium levels were good before I was given the 5000 mg methyl-prednisone to zap the myelitis, but that zapped the calcium, too. So this is likely to be true for all of us who were given steroids to treat the TM. It might be worth it to give it a try. Sally realy bad spasms. it helps some. i thought this stuff made you sleepy. i reckon i am immune. --- On Sat, 12/18/10, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Gabapentin To: john snodgrass jcs...@yahoo.com Date: Saturday, December 18, 2010, 9:33 AM That is 4x what I am taking! John, do you have paralysis and spasms? And is that why the neuro has you on such a high dose? Because I would love to be more medicated if I could. Dalton Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: john snodgrass jcs...@yahoo.com Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) To: Kevin Wolfthal wolft...@optonline.net Cc: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] Gabapentin Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 i am taking 2400 mg a day. it helps but it doesn't heal me --- On Sat, 12/18/10, Kevin Wolfthal wolft...@optonline.net wrote: From: Kevin Wolfthal wolft...@optonline.net Subject: [TMIC] Gabapentin To: tmic-list@eskimo.com Date: Saturday, December 18, 2010, 6:12 AM My new doctor visited me today. I asked him again about Gabapentin and he is going to start me on 100mg 3 times a day. For those who take this, I would like to hear how you did on it. I realize it's a low dosage. Thanks, Kevin
RE: [TMIC] Walking assistance
You are so right, Akua. Winning the lottery would solve a lot of our problems. Financial ones at least. Patti - Wisconsin From: Akua [mailto:a...@artfarm.com] Sent: Tuesday, December 14, 2010 6:53 PM To: tmic-list@eskimo.com Subject: [TMIC] Walking assistance Honda's Asimo robot was taught how to walk like a human, and now its technology is returning the favor. The Japanese mega-corp has two walking exoskeletons based on Asimo research that assist humans in walking. The Bodyweight Support Assist exoskeleton is a set of thin legs attached to a seat. Users sit on the seat and slip their feet into shoes on the robotic legs. This system supports bodyweight to assist people in walking and moving up and down steps. The other, Stride Management Assist, is a brace worn around the hips and thighs that provides added strength when flexing that joint. It has been shown to increase efficiency in walking and other daily activities. It's currently under development and being tested by 130 patients in the field. Both devices may prove to be valuable tools in helping the elderly maintain their mobility, assisting the disabled, and easing the stress on physical laborers. Check out the Honda exoskeletons in the video clips below. Walking like a robot looks pretty natural. It's unclear how quickly Honda will be able to bring these exoskeletons to market. The http://singularityhub.com/2010/09/13/hondas-exoskeletons-help-you-walk-like- asimo-video/ So now there are 5! Walk aides. If you have $20,000 grand you're set. I however, need to win the lottery. --
RE: [TMIC] Fwd: Merry Christmas to all
Jim, Merry Christmas to you and all of the TMers, and I also hope and pray that we all experience a better and healthier 2011 for us all. I am also lucky that I am able to walk after a fashion with a cane or walker. My level of pain is nowhere near so many of the TMers. I appreciate the fact that you are all there and can answer our various questions and help to cheer us up when we need it. This group makes a big difference in my life and I am so very grateful for all of you. Merry Christmas and Bless all of you. Patti - Wisconsin From: James Berg [mailto:molokai...@gmail.com] Sent: Monday, December 13, 2010 5:21 PM To: tmic-list@eskimo.com Subject: [TMIC] Fwd: Merry Christmas to all -- Forwarded message -- From: James Berg molokai...@gmail.com Date: Mon, Dec 13, 2010 at 12:49 PM Subject: Merry Christmas to all To: tmic-list-requ...@eskimo.com I want to wish everyone a Merry Christmas and I pray there is some improvement in your lives during the next year. I am thankful that I have my upperbody not affected by TM and look forward to medical science finding a way to regrow the Mylan sheath. Even though I cannot walk I can use my hands and arms and brain and my laptop to communicate with my friends across the country. Each of you and your strength provides a reason for us to go on and without contact with you all life would be much harder indeed. It seems that all of us have different restrictions from TM and while I get very depressed about not being able to use my legs, I have the good forture not to have the severe pain many of you experience. The level of pain I do have is mostly manageable and so I consider myself very lucky. I think that each of us must look at the positive abilities we have that others may not have to help us gather the strength and will to continue. May God bless you all. Jim
RE: [TMIC] Amtriptyline
I have never taken Amtriptyline, but some years ago my husband was prescribed it. It was a time he was under a lot of stress and was having trouble sleeping. He had a terrible reaction to it. Instead of helping him sleep he had hallucinations. Needless to say, he stopped taking them. However, my oldest daughter has taken it at various times, and had no problem. I guess we are all different and the only thing you can do is give it a try. Patt From: Regina Rummel [mailto:regina...@sbcglobal.net] Sent: Monday, December 13, 2010 8:30 AM To: tmic-list@eskimo.com Subject: [TMIC] Amtriptyline I met a woman at the gym also afflicted with TM. The pain she suffers is close to a ten and yet, she walks with a cane and can do Tai Chi (sp?). I tried, but my balance is so bad, I just cannot do it, and dropped out of that class. The point I'm making is how differently TMers function. My pain is a five and I seem to handle it without pain meds, just Neurontin. And I'm not even sure Neurontin really helps. But I need a walker when I'm out. Sometimes I wonder if I would be willing to trade her pain with going shopping without needing a walker, or holding on to somebody's arm. Maybe. Maybe not. She swears by this Amtriptyline. She says that she takes it at bedtime and has no problem sleeping. Her brother who is a orthopedic surgeon gives it to his patients for sleeping. Are you familiar with this medication? Wishing you well. R
RE: [TMIC] Knee Replacement
Linda, my husband went through the same in 2006. His recovery mirrors your husband. He did so well that he was released from P.T. as he recovered so rapidly that Medicare said he was 100% and would not pay for any more P.T. He was driving in about 6 weeks. He now wishes he had done it 5-10 years before and he lived with such pain for years. I am glad your husband's recovery is going so well. I will also be happy to answer any questions. Patti - Wisconsin From: Linda Egli [mailto:le...@sbcglobal.net] Sent: Wednesday, December 08, 2010 11:38 AM To: tmic-list@eskimo.com Subject: [TMIC] Knee Replacement My husband had both knees replaced 6 weeks ago. He spent 3 weeks in the hospital with the last 2 weeks on an Acute Rehab Unit that was wonderful. The first week he had a constant motion machine on his knees to keep the muscles limber to bend his knees. About every 2 days they increased the angle of the machine to bend the knees a little more. His pain was controlled with oral pain meds ice packs. Physical Therapy was started the second day post-op he was up in a chair. In the rehab unit the 2nd 3rd weeks, he had 3 hours of PT in the AM another 3 hours in the afternoon. After the 2nd week, he was walking with a walker, showering with assistance, taking meals in a common dining room. This rehab was very intense, but really helped. At home now he recieves PT three times a week. After 1 week home he is now walking with a cane even by himself. The first 2 weeks were the hardest, but once he was home improvement has really been fast and home health will probably only come another 2-4 weeks. Hope this answers some of your questions. My husband has COPD has done well. He was in such pain before the surgery (bone on bone in both knees) he is very glad he had the surgery. Any questions I would try to answer. Linda E. East Texas _
RE: [TMIC] question
Barbara my husband had double knee replacement in 2006. Whatever pain he had must not have been too bad as he didn’t complain. I think the one thing that made it easier for him is doing your pre-surgery exercised to strengthen leg muscles. A month before surgery he a given a 3-ring binder with all the excises listed. He did them faithfully all day so his body was ready for the demand surgery would put on his legs. In fact, he only went to P.T. for about 3-4 weeks, as they said they couldn’t do any more for him and Medicare wouldn’t pay for it any more. He was driving again in less than 4 weeks. Of course, he didn’t have any other health problems, which might make a big difference. Good luck with whatever you decide to do. Patti - Wisconsin From: Barbara Alma [mailto:balmat...@aol.com] Sent: Wednesday, December 08, 2010 2:04 AM To: rp...@neillsupply.com; tmic-list@eskimo.com Subject: Re: [TMIC] question Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As much as I walk, I'll probably never wear it out. I was actually on schedule for a knee replacement last year when I asked to see a physical therapist in order to best improve the strength in my body so I could get through the rehab in the best way possible. The therapist told me that the knee is no walk in the park. It is extremely painful, after the surgery, but especially the rehab. I don't understand what you mean about rehab differently. From what I understand, and I really didn't go into it all the way, you have exercises and walking. He told me that a very painful part is straightening the knee, as it will want to be bent to be in less pain, but not good since you develop scar tissue very quickly and if not careful, you will not be able to straighten it fully. I had a couple of visits and from the exercises that I was doing for my legs I no longer had the pain that I was having. At the time I also was having a lot of pain with my shoulder over for a year and a half at that point, so knew it would be extra painful on the shoulder. I use canadian crutches or a rolling walker to get around, and the orthopedic surgeon says that I walk on my shoulders, lol. I had rotator cuff surgery and a bone spur removed two months ago and am no longer in pain there, so when I really need the knee, I'll hopefully be in better shape. Good luck Rob, just thought I'd share my small bit of knowledge. Hugs, Barbara A in Auburn CA -Original Message- From: Robert Pall rp...@neillsupply.com To: tmic-list tmic-list@eskimo.com Sent: Tue, Dec 7, 2010 8:43 am Subject: [TMIC] question Have any of you gotten replacement hips or knees…..I think I may need a new knee and I was wondering….. if you have no feeling (other than pain) how do you rehab…surely you cannot do it the normal rehab way? Thanks Rob in New Jersey
RE: [TMIC] more studies with stuff
I sure hope your right, John. My heart breaks when I hear that a child or young person has TM. At my age, I have lived a good life but I hate to think of a young person suffering for years and years with all our problems. A cure can't some soon enough. Patti- Wisconsin -Original Message- From: john snodgrass [mailto:jcs...@yahoo.com] Sent: Sunday, December 05, 2010 11:27 AM To: transverse myelitis Subject: [TMIC] more studies with stuff I just wish things didnt take so long. perhaps our children(which are grown) or even our grandchildren will benefit greatly from things like this. SCIENTISTS TURN SKIN CELLS DIRECTLY INTO BLOOD CELLS - WITHOUT USING EMBRYOS - Step aside stem-cell research. Step aside Dr. Connors and his use of lizard DNA to regrow human tissue (a Spiderman thing). A group of Canadian researchers have successfully produced red blood cells straight from adult skin cells. Not only did these scientists trick human skin cells into becoming blood cells, but no stem cells were harmed in the making of the experiment. Stem cell research has long held hope for those suffering from major degenerative diseases. By infusing healthy stem cells into the pancreas of diabetics or the heart muscle of heart-attack victims or the brains of people with Parkinson's disease, researchers have hoped to replace degenerating tissue with healthy tissue that can grow and regenerate patients back to health. Now, researchers have found a method to completely skip the stem cell stage through a process called direct conversion and turn one kind of adult cell into another. Stem-cell researchers at McMaster University in Hamilton, Canada, published their findings in the November 25, 2010 edition of Nature, describing their success in taking fibroblast cells from human skin and converting them into the progenitors for red blood cells. Mickie Bhatia and his fellow researchers faced the same problem many researchers face when working with stem cells; the cells want to act like embryonic cells. Those cells, because they think they're embryonic, make embryonic and fetal blood, Bhatia said. Adults do not need embryonic hemoglobin in their blood. They need grown-up hemoglobin. Bhatia and his team decided that they therefore needed to find a method of taking adult cells and converting them into the adult red blood cells they wanted. The researchers infected the fibroblast cells with a virus that inserts OCT4 gene into them. This would normally transform the fibroblasts into induced pluripotent stem cells (IPS) – cells able to turn into anything. However, after encouraging the cells to grow and reproduce in a cocktail of regulatory proteins, researchers found that the cells developed into blood progenitor cells without first turning into IPS intermediate cells. IPS cells tend to cause tumors, which means there's an advantage in avoiding IPS cells as the middle man. The team had success; the blood progenitor cells produced functioning white blood cells, red blood cells, and platelets – of the adult variety. Direct conversion researcher John Gearhart of the University of Pennsylvania told the Associated Press, This is something that's really caught fire because it's an easy strategy to use. Everyone's out there trying their different combinations (of chemical signals) to see if they can succeed. Still, Gearhart cautioned the public to not get too excited too fast. The direct conversion technology is new and requires a great deal more research before it can be ready for testing on human patients. There are many unknowns regarding how these cells will actually act in the human body. We do not want to put red blood cells in a human being and find that those cells want to act like skin cells after all. We're a long way from showing safety and efficacy for any of these things, Gearhart said. This stuff is all so new that we have a lot of work to do. There is great hope that new techniques like this will provide the field of regenerative medicine with options that avoid the moral and ethical (and medical) problems associated with embryonic stem cell research. Dr. David Prentice, a former Indiana State University biology professor who is now a fellow at the Family Research Council said the success of the technique exposes the failure of unethical, unsafe embryonic stem cell research, rather than the usual hype associated with embryo research. Direct conversion offers an ethical way forward, and may even be one mechanism by which adult stem cells are producing current successes in patients.
[TMIC] Med Question
On Thursday I saw a new doctor, a physiatrist (sp), that my neuro recommended. I am very impressed with him and his care which was very thorough. When I mentioned my freezing/burning and pain n my feet, he gave me a script for gabapentin. My previous neuro always said there was nothing I could take. I know many of who have mentioned it previously. I took my first capsule last night when I went to bed. This morning I feel so groggy, like I had a night on the town last night. Is that common? Will it go away after I am on it for a while? Maybe I should take it earlier in the evening so the affect wears off by morning. He has also recommend that I saw a ortho who will evaluate me to see if a brace on my bad leg would help with my balance and walking. If it helps, I am game for anything. Thank you in advance for any advice you can give me. Patti - Wisconsin
RE: [TMIC] December Birthdays
HAPPY BIRTHDAY TO ALL MY FELLOW DECEMBER BABIES. I HOPE YOU ALL HAVE A GREAT BIRTHDAY AND A BETTER YEAR NEXT YEAR. MERRY CHRISTMAS PATTI - WISCONSIN From: Barbara H. [mailto:barbara...@gmail.com] Sent: Thursday, December 02, 2010 7:11 AM To: TMIC Subject: [TMIC] December Birthdays Happy Birthday to the December kids! Please send any additions or corrections to tmic-list@eskimo.com 12-2 Meghan (bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.com) 12/3 Janice (jan...@centurytel.net) 12-3 Wim from Holland (wim_from_holl...@hotmail.com) 12- 4 Jan Burgess (ja...@rogers.com) 12-7 Patti in Wisconsin (patticoole...@gmail.com) 12-8 Lori Malloy (jorlcummi...@earthlink.net) 12-10 Shirley from UK (shirley.up...@dsl.pipex.com) 12-15 Alton Ryder(a-ry...@comcast.net) 12-15 CarolAnn B.L. from South Carolina, USA (ladycame...@aol.com) 12-18 Rod Jenke (rktje...@chariot.com.au) 12/23 Roger Pratt (r.c.pr...@verizon.net ) 12-25 Gilly (gilly...@y7mail.com) 12/31 Janet (j.d...@shaw.ca)
RE: [TMIC] off topic
NO FORGIVENESS IS NEEDED JANE. I CAN'T IMAGINE WHAT YOU ARE GOING THROUGH AND WON'T BEGIN TO TRY. MY HEART GOES OUT TO YOU AND YOUR FAMILY. I WILL PRAY FOR YOU, YOUR FAMILY, AND YOU DEAR SWEET DAUGHTER WHO I KNOW YOU LOVED. AS YOU SAID, PAM IS NOW WITH OUR LORD AND NO LONGER SUFFERS ANY PAIN. REMEMBER WE ARE ALL HERE FOR YOU. PATTI - WISCONSIN From: celr...@aol.com [mailto:celr...@aol.com] Sent: Thursday, December 02, 2010 11:11 AM To: TMIC-LIST@eskimo.com Subject: [TMIC] off topic Since you are all part of my cyber family I wanted to ask for prayer for my family and me. My daughter died yesterday. She was 41 and diabetic, on dialysis, poor health. Her daughter was with her and it was sudden. She didn't say anything just collapsed and that was it. She had been through s much all her life and now she is at rest with the Lord. Her name is Pamela Caldwell. No more needles and hospitals. Please forgive me if I offend anyone but I needed to talk. Jane/Splendora Tx
RE: [TMIC]
Thank you, Jude. Your post is my first Christmas present of the year. We have all been missing you and praying that you will be up to posting again very soon. I miss Pam so much like you. In fact, I have saved; many of the jokes she sent shorting before her death. I go back and read them whenever I need a lift. While doing so, I can almost hear her laugh Like you a lot of our everyday living falls on my husband. I am able to get around the house o.k., and I am able to do things like the laundry, cooking, some cleaning, but all the rest falls on my husband. We are both lucky to have such wonderful men in our lives. I will be looking forward to hearing from you more often. I hope you have a very Merry Christmas! Patti Wisconsin From: Jude Hoops [mailto:heyjude48...@aol.com] Sent: Tuesday, November 30, 2010 2:11 AM To: tmic-list@eskimo.com Subject: [TMIC] Hello Group, This is Judy Hoops (Jude) and it has been quite a while since I have written to the site. No reason why, except that maybe I needed a break from all of the talk of the “blusey” side of the disease. I try to maintain a positive attitude, but since the death of my best TM friend, Pam Montz, I needed a long break before I could once more become an active participant of the group like I used to be. For new members, I have had TM for somewhat more than eight years, can’t recall due to memory dysfunction, and other related symptoms of TM, for one being a difficulty in typing, where I used to be a whiz...maybe just a matter of continuing to do it on a regular basis. I am paralyzed from T3 (breast level with the use of my arms, Thank God.) I have horrible continuous pain from T3 on the Spinal Column to the tips of my toes. I am not able to walk, use a wheelchair to get around and spend a lot of time in bed just because of laziness. We have no children and do not have a large social group and no family to speak of. My husband wanted property so we moved out of our living area where we had resided forever, to a small, and I mean “small” village where we have 5 acres and a nice two story home, which we bought before I became ill. Now, the house makes no sense whatsoever and I am able to use only a small portion of it; my bedroom, which used to be the den, the kitchen/dining area and living room. I have spent so long in my bedroom that I have forgotten what the rest of the house looks like. It’s either that or the memory difficulties which I just two days ago began taking meds to, hopefully, reverse the dysfunction. OK, that’s all I can muster for my first time back. What’s going on with all of my old friends? Let me know. I love you all, Jude Anyway, I make use of the three rooms, but my husband does all of the cooking and eats in my room with me, and he takes care of all of the remaining household chores that I cannot do because of the constant intense pain I experience 24/7. I have pain meds, but hate to take them because they turn me into a “zombie” and it affects most of my “normal” human existence, as it is. Most of you know what I mean, the rest of you will catch on the longer you have TM and continue to read these excerpts.
RE: [TMIC] ot THANKS GIVING
Thank you Jane. I wish all a very Happy Thanksgiving too. I know most of us are suffering pain, etc., but I speak for myself, I am blessed with a wonderful family for which is give THANKS. Patti - Wisconsin From: celr...@aol.com [mailto:celr...@aol.com] Sent: Wednesday, November 24, 2010 9:51 AM To: tmic-l...@eskimo.net Subject: [TMIC] ot THANKS GIVING HOPE EVERYONE HAS A BLESSED AND HAPPY THANKSGIVING. JANE/SPLENDORA
RE: [TMIC] Unidentified subject!
Jan I am so very glad the healing has started. I hope it continues until you are ALL healed. HAPPY THANKSGIVING TO YOU AND ALL. Patti - Wisconsin From: Jan Hargrove [mailto:jmh1...@sbcglobal.net] Sent: Wednesday, November 24, 2010 4:34 PM To: Tina Ahern; Sherry Gillick; Paula Glanzner 61; billy joe; Darlene Bilyeu; Pat Buchanan; Nancy Patton; Suz (at home) Carpenter; Bev Tully; joann/jack; tmic-l...@eskimo.net Subject: [TMIC] Unidentified subject! Here's what I learned today.my Thanksgiving prayer has been granted!! The surgeon at the Wound Clinic let me know that I didn't qualify for Hyperbaric Chamber, but that my healing is beginning to move along at better clip! How many blessings can one 'girl' have? Family and Friends who care and health returning!! Here's hoping you all have a wonderful Thanksgiving!! and thanks for being there for me! Love, jan
RE: [TMIC] Final diagnosis: Transverse idiopathic
Dalton I am so glad for you that you now have a definitive diagnosis. You have had so many problems and complications and you now know the causes. It seems as though your previous accident and spinal surgery is what is complicating things for you. I only hope that your doctors will be able to figure out how to treat and lessen all your problems I am happy to know you will be able to continue working and do your job, which is important in maintaining your health coverage. Now I hope you will be able to deal with the stress and try not to over exert yourself. I know it is easier said than done. I always tell myself, just take one day at a time. No need to thanks us for our patience and love, as that is why we are here as one family. Patti - Wisconsin From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Tuesday, November 23, 2010 1:33 PM To: tmic-list@eskimo.com Subject: [TMIC] Final diagnosis: Transverse idiopathic Well folks; The doctor's final diagnosis, of which I am in possession, affirms the earlier diagnosis and in full regard to the New York work-up, that I had Transverse Myelitis, idiopathic, which means, cause unknown. He also said that the anomalies in the brainstem the New York drs noted was also caused by Transverse Myelitis and is affecting my arms, hands and everything below. He also said that I did indeed have Transverse Myelitis, and that it affected my upper spine and everything below. Now, the goal is management, because it has affected things so that the fusions and metal, which have always affected the circulatory system in the spine, can make the TM act up. Any change causes the spinal cord and associated nerves to swell up hours later and give me problems for days. This is the TM effect; and I will need to deal with it from now on. I am very happy since the pain is mostly easy except for days following any stress or exertion, I can walk and go to work and do my job. So, I am very satisfied with the results. No more guesswork, no more speculation. I have a confirmed diagnosis of TM that explains all this stuff. Thanks for your patience and love, Dalton Dalton H. Garis, Ph.D. Associate Professor of Economics And Petroleum Market Behavior The Petroleum Institute P.O. Box 2533, Umm al Nar Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760--
RE: [TMIC] Peddle Machine
I am sure not an expert, but after getting TM I went to rehab for several months. The therapists always put me on several different peddle bikes at each session. At the time it seemed like I was on each one for quite a while. As far as how long and how fast should be checked out with your doc or P.T. person. Patti - Wisconsin From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Monday, November 15, 2010 10:32 PM To: James Berg; transverse myelitis Subject: Re: [TMIC] Peddle Machine How about contacting a rehab center?They may help you, or even your neuro. Janice From: James Berg mailto:molokai...@gmail.com Sent: Monday, November 15, 2010 4:22 PM To: transverse myelitis mailto:tmic-list@eskimo.com Subject: [TMIC] Peddle Machine Has anyone used a peddle machine to work their legs? I am using one now with the idea of keeping my legs from atrophy. My questions are how long should I run my legs at one session and is it adviseable to do more than one session a day. I am currently doing 20 minutes and one session a day at full speed--about 1350 revolutions in 20 minutes. Any thoughts on this?
RE: [TMIC] Save the last dance
Gunny - I grew up with the music of the Drifters, etc. I sure do miss hearing it on any radio station now days. The stuff they have now that they call music is a shame. Save the last dance for me, was and is one of my favorites. Thanks for the memories you brought to my mind. Thanks again, Gunny, and I hope you have a Happy Thanksgiving! Patti - Wisconsin From: bgunny7...@aol.com [mailto:bgunny7...@aol.com] Sent: Tuesday, November 16, 2010 4:22 PM To: Tmic-list@eskimo.com Subject: [TMIC] Save the last dance Some of you may recall that I was the drummer with a group called the Edsels in the late 50's. We recorded a song called Rama Lama Ding Dong. Anyway, I was talkin with Harry Green (2nd Tenor), and Marshall Sewel (Bass) the other night, and we discussed George (Wydell) Jones who passed away two years ago. George was the lead singer with us. Marshall asked what was wrong with me using a cane, so I told him. He asked if that was anything like Polio and I told him the difference, and started complaining. He said, Ya know, Doc Had Polio. Doc who I asked. He said Doc Pomus who's real name was Jerome Felder. I never met him but Marshall had so he related this story. Doc contracted Polio as a child way back and in his early years, and was confined to a wheel chair. It seems he and his wife were at an awards ceremony where Doc was watching his wife dance with other guys that they of course knew, so Doc penned a song for her as he watched called Save the last dance for me. If anyone here is old enough, the Drifters recorded that back in the early 60's. Check out the Drifters on You Tube, click on save the last dance for me, and listen to the words. Just goes to show what you can do if you set your mind to it. He wrote a ton of other hits also, but this one especially hit home with me. Something I never knew before. I guess we never stop learning.
RE: [TMIC] off topic but inspiring reading Fwd: Fw: The Cab Ride....worth reading again
Thank you for forwarding this to us. It is very inspiring and we all hope we can meet people as caring as that cab driver. I know I had read this before, but it is well worth reading again and again. Patti - Wisconsin From: celr...@aol.com [mailto:celr...@aol.com] Sent: Monday, November 15, 2010 9:56 AM To: tmic-l...@eskimo.net Subject: [TMIC] off topic but inspiring reading Fwd: Fw: The Cab Rideworth reading again _ AWESOME! I think this one will stick with you awhile :) The Cab Ride I arrived at the address and honked the horn. after waiting a few minutes I walked to the door and knocked.. 'Just a minute', answered a frail, elderly voice. I could hear something being dragged across the floor. After a long pause, the door opened. A small woman in her 90's stood before me. She was wearing a print dress and a pillbox hat with a veil pinned on it, like somebody out of a 1940's movie. By her side was a small nylon suitcase. The apartment looked as if no one had lived in it for years. All the furniture was covered with sheets. There were no clocks on the walls, no knickknacks or utensils on the counters. In the corner was a cardboard box filled with photos and glassware. 'Would you carry my bag out to the car?' she said. I took the suitcase to the cab, then returned to assist the woman. She took my arm and we walked slowly toward the curb. She kept thanking me for my kindness. 'It's nothing', I told her.. 'I just try to treat my passengers the way I would want my mother to be treated.' 'Oh, you're such a good boy, she said. When we got in the cab, she gave me an address and then asked, 'Could you drive through downtown?' 'It's not the shortest way ma'am,' I answered quickly.. 'Oh, I don't mind,' she said. 'I'm in no hurry. I'm on my way to a hospice. I looked in the rear-view mirror. Her eyes were glistening. 'I don't have any family left,' she continued in a soft voice.. 'The doctor says I don't have very long.' I quietly reached over and shut off the meter. 'What route would you like me to take?' I asked. For the next two hours, we drove through the city. She showed me the building where she had once worked as an elevator operator. We drove through the neighborhood where she and her husband had lived when they were newlyweds She had me pull up in front of a furniture warehouse that had once been a ballroom where she had gone dancing as a girl. Sometimes she'd ask me to slow in front of a particular building or corner and would sit staring into the darkness, saying nothing. As the first hint of sun was creasing the horizon, she suddenly said, 'I'm tired. Let's go now'. We drove in silence to the address she had given me. It was a low building, like a small convalescent home, with a driveway that passed under a portico. Two orderlies came out to the cab as soon as we pulled up. They were solicitous and intent, watching her every move. They must have been expecting her. I opened the trunk and took the small suitcase to the door. The woman was already seated in a wheelchair. 'How much do I owe you?' She asked, reaching into her purse. 'Nothing,' I said 'You have to make a living,' she answered. 'There are other passengers,' I responded. Almost without thinking, I bent and gave her a hug. She held onto me tightly. 'You gave an old woman wonderful moments of joy,' she said. 'Thank you.' I squeezed her hand, then walked into the dim morning light.. Behind me, a door shut. It was the sound of the closing of a life.. I didn't pick up any more passengers that shift. I drove aimlessly lost in thought. For the rest of that day, I could hardly talk. What if that woman had gotten an angry driver, or one who was impatient to end his shift? What if I had refused to take the run, or had honked once, then driven away? On a quick review, I don't think that I have done anything more important in my life. We're conditioned to think that our lives revolve around great moments. But great moments often catch us unaware-beautifully wrapped in what others may consider a small one. PEOPLE MAY NOT REMEMBER EXACTLY WHAT YOU DID, OR WHAT YOU SAID ~BUT~THEY WILL ALWAYS REMEMBER HOW YOU MADE THEM FEEL. You won't get any big surprise in 10 days if you send this to ten people. But, you might help make the world a little kinder and more compassionate by sending. it on and reminding us that often it is the random acts of kindness that most benefit all of us. Life may not be the party we hoped for, but while we are here we might as well dance.
RE: [TMIC] stem cell treatment for spinal cord lesions
Emily we will pray that he is able to be included. Patti - Wisconsin From: Emily [mailto:em...@telephonelady.com] Sent: Monday, November 15, 2010 1:11 PM To: tmic-list@eskimo.com Subject: RE: [TMIC] stem cell treatment for spinal cord lesions My husband is currently in the 3-12 month window..he was diagnosed on September 2nd with TM T-7-11. We have contacted my husband's neurologist to see if they could get him in this trial in Switzerland. We are awaiting a reply. _ From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Monday, November 15, 2010 1:39 PM To: fr...@franksheldon.com; tmic-list@eskimo.com; Garis, Brooks (Darien, CT) Subject: Re: [TMIC] stem cell treatment for spinal cord lesions Could it be the miracle mankind has been waiting for? Just imagine if this thing works! Dalton _ From: fr...@franksheldon.com Date: Mon, 15 Nov 2010 14:10:01 + To: tmic-list@eskimo.com Subject: [TMIC] stem cell treatment for spinal cord lesions Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 15 Nov 2010 06:10:06 -0800 News release: StemCells, Inc. Files to Conduct Neural Stem Cell Trial in Chronic Spinal Cord Injury PALO ALTO, Calif., Nov 15, 2010 (GlobeNewswire via COMTEX) --StemCells, Inc. (Nasdaq:STEM) announced today that is has filed an application with Swissmedic, the Swiss regulatory agency for therapeutic products, to conduct a clinical trial in Switzerland of the Company's HuCNS-SC(R) purified human neural stem cells in chronic spinal cord injury patients. If authorized, the study would enroll patients who are three to 12 months post-injury.With this filing we have taken a tangible step to broaden the clinical development of our HuCNS-SC product candidate beyond the brain and into the spinal cord, said Martin McGlynn, President and CEO of StemCells, Inc. This exciting initiative is supported by extensive preclinical research demonstrating the ability of our proprietary cells to restore lost motor function when transplanted in the chronic spinal cord injury setting. The prospect of extending the treatment window to months or longer following injury would mean that a much larger population of injured patients could potentially benefit from such an approach.
RE: [TMIC] this is for the rest of my life
Betty there should be no shame in taking anti-depressant meds. I needed them when I first came home from the hospital. I don’t think I currently need them. I have times when I have a pity party, but it doesn’t last long. I think having my family and 2 granddaughters so near helps tremendously. How can you stay depressed when my little sweeties stop in after school for cookies and give grandma a big hug and kiss. Patti From: Beeclark [mailto:beecl...@aol.com] Sent: Thursday, November 11, 2010 2:04 AM To: tmic-list@eskimo.com Subject: [TMIC] this is for the rest of my life Janice, I think I've said this before... but I thank God every day that I was already taking an anti-depressant before TM hit me. I believe it made (and still makes) all the difference in my attitude towards TM. In fact, many of my friends and family have remarked about it. I have always been one to not look back. I take what I have and go forward and been very good at adapting to my situation. You're right about it being a constant battle. I think we can't disregard the severity of what has happened to us by wishing too hard that we'll recover. I have yet to read from anyone who posts regularly that they've 'miraculously' been cured. There are obviously too few qualified doctors to treat TMers that are unwilling to network with those few who are working hard to find a cure and treatment. If they would all work together and take advantage of our inputs, maybe we could one day see a light at the end of this very long tunnel... what a concept! Unfortunately, when dealing with damaged nerves and the seemingly infinite number of symptoms, it's hard to pinpoint any one treatment - especially when no one remedy works for everyone. They're trying to hit a moving target that's always changing. I share your feelings about your tolerance for others, but I find I'm very touchy now with people who abuse handicapped parking, are impatient with my slowness and difficulty getting my hands to work just to get the right amount of change out of my purse, or not controlling their children or teaching them to give me a little extra berth so they don't kick my cane or cause me to trip. Besides dealing with all the physical TM issues, it's immensely more frustrating once we step outside the 'safety' of our own front door. I figure if I use medication to help treat my physical issues, why wouldn't I use it to help treat my mental/emotional ones? Betty (in Northern California)
RE: [TMIC] hello out there
I also have a big problem staying dry during the night. Even though I do wake at least once during the night, and sometimes twice to go potty. I am on oxybutynin and it works pretty well during the day, but night is another story. I thought it was just me, but I guess it is a problem with TM. I don’t nap during the day, but always seem to doze off after supper while watching TV for maybe a half an hour or so. I wear heavy duty overnite pads that seem to work most of the time. I agree that it is the PITS!!! Patti - Wisconsin From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Wednesday, November 10, 2010 10:43 AM To: john snodgrass; transverse myelitis Subject: Re: [TMIC] hello out there Carol, how are you at staying dry during the nite? I have a real problem with that and always have to wear protection and sometimes that doesn't always work. Can't seem to feel enough yet to wake up in time. I can go 2-3 weeks and have a real wetting problem and then I can go for a couple of weeks and stay fairly dry. We can't seem to pin down the reason for this. I am beginning to think on the days that I don't take a nap (45min to hour) that I sleep too hard and don't feel the urge until it is too late.Time will tell. It is the pits! Janice From: john snodgrass mailto:jcs...@yahoo.com Sent: Wednesday, November 10, 2010 10:15 AM To: transverse myelitis mailto:tmic-list@eskimo.com Subject: RE: [TMIC] hello out there Carol E, your sunday to present condition sounds almost exactly like mine. heavy sigh. --- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote: From: Carol E snow121...@hotmail.com Subject: RE: [TMIC] hello out there To: malugss...@gmail.com, tmic-list@eskimo.com Date: Wednesday, November 10, 2010, 11:06 AM I also have the residuals as Linda mentioned...burning, banding, weakness, bladder control. Sometimes I can void normally (pre TM) and other times I have to sit on the pot for 5 minutes to void. I feel like I am about to burst, but nothing comes out. I wiggle and wiggle and finally a slow trickle that takes maybe another 3 minutes. I would say about half the time I void normally and half of the time, I don't. This week, my back is killing me. It started Saturday with a burning itching sensation and then Sunday immense pain began about 3 inches lower, about waist level and lower. My hips hurt and painful when I stand and bear weight. I was taking Aleve for my discomfort and this week I graduated to Vicodin and Flexeril. I'm not sure, but I think my pain is from spinal stenosis and bulging disks instead of the TM. I have scheduled my 2nd Lumbar Epidural for next week, if I still need it. Would have gone this week, but I have to discontinue Plavix, aspirin and Aleve before I can get the epidural. What a zoo! Carol Worrying does not empty tomorrow of its troubles; It empties today of its strengths. _ From: cherp...@msn.com To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com Subject: Re: [TMIC] hello out there Date: Tue, 9 Nov 2010 21:16:00 -0700 This is what I have been told also. My lesions can still be seen but they are inactive (C4,5,6). I was told they are like a scar. However, I've seen posts where others have been told something different. Dalton, I still have all the residuals - burning, banding, weakness - it's just that some days are better than others. It's going on 9 years for me. Hope you get to feeling better! Linda in Eagle, ID - Original Message - From: Carol E To: malugss...@gmail.com ; tmic-list@eskimo.com Sent: Tuesday, November 09, 2010 9:04 PM Subject: RE: [TMIC] hello out there Hi Dalton and all, I was 1st diagnosed with TM June 2005. I had lesions from T7-T10. Every time I have new MRI's, I am always told that I have no new lesions, but they can still see the old ones which are inactive. So I would say the lesions do not go away, they are there like a scar. Carol in Addison, IL _ Date: Wed, 10 Nov 2010 07:50:59 +0400 Subject: Re: [TMIC] hello out there From: malugss...@gmail.com To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com Hey, Janice! We missed you. And I missed you. Glad to have you back with us. I have a question for everyone. A recent set of MRIs showed that my spine in the thoracic was clear with no lesions or swellings. It has been one year since the diagnosis for TM. Do these lesions clear up later on, or did somebody make a mistake somewhere? Because my everyday symptoms are still weakness and pain from fingers to just above the elbow, and from toes to above the knees with banding and burning in the torso and back. And if I exercise at all, the next day I am in for day-long spasms that leave me housebound and often unable to get around without assistance of my dear part-time maid and helper. Could someone
RE: [TMIC] {TMIC}sweating
I have been reading all your posts about sweating, and I guess I am an odd
case. I don't have any problems with hot weather. I have always sweat more
in my hair than anywhere else, even before TM. My problem is the cold. I
am always cold so I guess that is why the hot weather doesn't affect me too
much. I do like sleeping in a cool room and like lots of blankets. I was
told with TM your internal thermostat is not working properly.
Patti - Wisconsin
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: Wednesday, November 10, 2010 12:09 PM
To: kevin weilacher; rn11...@yahoo.com; tmic-list@eskimo.com
Subject: Re: [TMIC] {TMIC}sweating
Ditto! Janice
From: kevin weilacher mailto:hwyfli...@yahoo.com
Sent: Wednesday, November 10, 2010 11:42 AM
To: rn11...@yahoo.com ; tmic-list@eskimo.com
Subject: Re: [TMIC] {TMIC}sweating
I have been totally confused about the sweating issue ever since TM hit
me
My lesions are L4, L5 and S1 and now since TM, the only place I sweat is my
head and when I sweat, I sweat profusely, I mean to the point that it drips
off my nose and down the sides of my head...
I sweat no other place on my body, even during the summer on hot days
outside. I get warm, but I do not sweat. No underarm sweat, nothing.
_
From: rn11...@yahoo.com rn11...@yahoo.com
To: tmic-list@eskimo.com
Sent: Wed, November 10, 2010 9:30:57 AM
Subject: [TMIC] {TMIC}sweating
Hi Everyone,
I got tm at the thoracic level (T4-5),but when I perspire on my face,one
side gets red and moist,the other stays pale and dry. No one has ever had an
explanation for this.A couple of docs even suggested that maybe I always had
this and just noticed it after tm!
Cheryl in Easthampton,MA
RE: [TMIC] Vit. D article
Very interesting. My neurologist suggested I take Vit. D supplements and have been doing so for over 2 years. Patti - Wisconsin From: CANDIS KALLEY [mailto:cakal...@embarqmail.com] Sent: Monday, November 08, 2010 10:24 AM To: tmic-list Subject: [TMIC] Vit. D article This is an interesting article on Vit. D that I believe we all should we and even pass on to family and friends. http://www.oprah.com/health/Why-Knowing-Your-Vitamin-D-Levels-Might-Save-Your-Life http://www.oprah.com/health/Why-Knowing-Your-Vitamin-D-Levels-Might-Save-Your-Life Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
RE: [TMIC] hello out there
Barb I guess everyone is busy with the weekend. No news is good news. Hopefully, everyone is doing as well as can be expected with TM. I know I always look forward to all the posts. Take care all. Patti - Wisconsin From: Barbara Alma [mailto:balmat...@aol.com] Sent: Saturday, November 06, 2010 11:48 PM To: tmic-list@eskimo.com Subject: [TMIC] hello out there Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
RE: [TMIC] November Birthdays
I wish all the November babies a very happy birthday, and hope you all have a wonderful Thanksgiving. Patti - Wisconsin From: Barbara H. [mailto:barbara...@gmail.com] Sent: Sunday, October 31, 2010 10:34 PM To: TMIC Subject: [TMIC] November Birthdays Happy Birthday to the November kids! Please send any additions or corrections to tmic-l...@eskimo.com. 11-01 Ella (elbanks...@aol.com) 11-2 Jeff (jeffsmokeea...@yahoo.com) 11-03 Gina (gina1103c...@aol.com) 11-6 Margaret Monson (mag...@telus.net) 11-8 Diane (mon...@sympatico.ca) 11-12 Marie (chestnutr...@gtcom.net) 11/13 Kevin (wolft...@optonline.net) 11-17 Becky opi...@bellsouth.net 11/18 Drema (dho.d...@comcast.net) 11/20 Cossy (cos...@yahoo.com) 11-21 Pearl Bernocchi (bernoc...@aol.com) 11/22 Judy Hoops (heyjude48...@aol.com) 11-25 Gunny (bgunny7...@aol.com) 11-27 Jack McMillan at rebarj...@aol.com 11-30 Louise Flagg (fla...@webtv.net)
RE: [TMIC] please put something in subject line
Barbara I have sendt several e-mails with the same request in the past week or so. Not only should there be a subject, but if you are forwarding a website give some information as to its contents. With my internet provider, I am only allowed a certain number of downloads in a 24 hour period, and if I exceed that my internet slows down to a crawl. You haven't offended me and hopefully no one else. Patti - Wisconsin From: Barbara Alma [mailto:balmat...@aol.com] Sent: Friday, October 15, 2010 5:12 PM To: tmic-list@eskimo.com Subject: [TMIC] please put something in subject line I just want to let everyone know that since we've been getting all of the spam emails I have not been opening any emails that just say TMIC on the subject line. This is what the spam emails looked like. The TMIC automatically appears with all email here. So, at this time, if you want your emails read, please put something on the subject line that reflects what your message is in regards to. I may not be alone in this matter. I'm very sorry if this offends anyone. Hugs, Barbara A in Auburn CA
RE: [TMIC]
John she is legit. I have seen her postings for some time. I would just like to remind TMers to always put a subject in the subject line, and always type a short description about the website they are forwarding. Patti- Wisconsin -Original Message- From: john snodgrass [mailto:jcs...@yahoo.com] Sent: Wednesday, October 13, 2010 6:32 AM To: transverse myelitis Subject: Fw: [TMIC] who is this one? ladyno...@aol.com ? --- On Tue, 10/12/10, ladyno...@aol.com ladyno...@aol.com wrote: From: ladyno...@aol.com ladyno...@aol.com Subject: [TMIC] To: tag...@taggedmail.com, tamishabes...@yahoo.com, tanyatell2...@yahoo.com, tlhaug...@comcast.net, therr...@comcast.net, tmic-list@eskimo.com, tommie_hi...@hotmail.com, rev.br...@gods-storehouse.org, toys...@em.toysrus.com, tp...@med.umich.edu, tregir...@aol.com, tracy.co...@tirecenters.com Date: Tuesday, October 12, 2010, 10:35 AM http://lfa.nitroserv.net/com.php
RE: [TMIC] spam emails
Cheryl I have not received any spam from you, nor have I received any spam from any other TMers. Maybe it is my anti virus software. Patti - Wisconsin From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: Monday, October 11, 2010 3:00 PM To: tmic-list@eskimo.com Subject: [TMIC] spam emails Has anyone else been receiving spam emails from me? When? What were they? I'm upset thinking that somehow I've passed along spam. Cheryl Cheryl, I wonder if someone has hacked into your account. I have been getting spam e-mails from you both personally and through TMIC. Barbara H. http://barbara.wordpress.com/ http://barbara.wordpress.com
RE: [TMIC] ? spam
Cheryl I have been wondering the same thing. I got 2 e-mails from celrods today and have in the past. There is no description as to what the sites are and I have not opened them either. Neither have a I-mailed celrods back not knowing who it is. If they are legit, I wish they would include a description or comment about the web site. If not, then don't bother to pass it on. I don't remember getting anything from pkene2002 but I will keep my eyes peeled for it. Patti - Wisconsin From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: Sunday, October 10, 2010 11:36 AM To: tmic-list@eskimo.com Subject: [TMIC] ? spam Hi, Does anyone know who pkeene2...@aol.com http://us.mc581.mail.yahoo.com/mc/compose?to=wpkeene2...@aol.com and celr...@aol.com http://us.mc581.mail.yahoo.com/mc/compose?to=celr...@aol.com are? Are they legit? I've been getting emails from both of them that have addresses in the body of the letter,but no explanation of what they're about. I have never opened one. I just delete them. In the subject line it says either no subject or [TMIC]. If you look at who else gets it,there are insurance companies,pet care ,etc. Must be one of those that sends to everyone in their address book. Cheryl in Easthampton,MA
RE: [TMIC] handicapped placard
I agree with you what a shame that people act that way. All they would have to do is spend a few days in our condition, then they would realize what having handicapped parking close by means to us. I also have another gripe. In public restrooms, people who use the handicap stall when they don't have to. When out, I use a walker or cane, and cannot use the regular size stall as there isn't enough room to turn your walker around. Patti - Wisconsin From: aca...@aol.com [mailto:aca...@aol.com] Sent: Friday, October 08, 2010 4:15 PM To: rn11...@yahoo.com; tmic-list@eskimo.com Subject: Re: [TMIC] handicapped placard Parking is my biggest gripe. I use an accessible van and need to get out using the ramp on the passenger side. 3 times this month someone was parked on the stripes adjacent to the parking spot. One time I called the police and he didn't even know how to write a ticket and for what amount ( this is in New York). Ended up they got a tkt for $250. Once was at the library and we found the person. This week in the rain I was at the mall. I had to ask a stranger to pull my car out so I could get into my car. I didn't have time to wait for the police and security at the mall is never there when you need them. In Florida where I go for the winter there is always someone in the handicapped spot at the tennis complex and then they go to play tennis. I used to be a tennis player and am always at the courts watching or helping the captain on my former team and I dont have a spot to park in. Cant do anything about it because there is a placard. Usually I leave a note to say if you are playing tennis then you shouldn't be in this spot.I feel like the parking spot commando. Such is life,Rosalie In a message dated 10/8/2010 4:59:35 P.M. Eastern Daylight Time, rn11...@yahoo.com writes: Hi, I got my new placard in the mail today. They are reissued every 5 yrs. At one time,you had to sign a paper that you were still disabled and return it to the DMV,and a few weeks later you got the placard. Now they're just mailed,without knowing if you are even alive. Cheryl in Easthampton,MA
RE: [TMIC] Dr. Visit Brings Hope
AKUA - WHAT WONDERFUL NEWS FOR YOU. AT LAST SOMEONE IS LISTENING TO YOU AND YOUR PROBLEMS. THAT SHOWS THERE ARE GOOD MEDICAL PEOPLE OUT THERE, WE JUST HAVE TO BE ABLE TO FIND THEM. PLEASE KEEP US POSTED . IT WOULD BE GREAT IF YOU COULD GET TO A POINT THAT YOU COULD DRIVE YOURSELF. THAT IS COMPLETE FREEDOM. PATTI - WISCONSIN From: Jan Hargrove [mailto:jmh1...@sbcglobal.net] Sent: Wednesday, October 06, 2010 5:18 PM To: Akua; tmic-list@eskimo.com Subject: Re: [TMIC] Dr. Visit Brings Hope Akua, What a great turn of events for you!! and to see you so happy and pleased with your doctor made! my day!!! Hugs, janh _ From: Akua a...@artfarm.com To: tmic-list@eskimo.com Sent: Wed, October 6, 2010 2:17:54 PM Subject: [TMIC] Dr. Visit Brings Hope This is the first time in 4 years that I have spoken to a medical professional who understood everything, it seemed. Let's begin with access: his nursed pushed me along the carpet --- carpet is a shoulder buster and most folks just watch me ache and struggle. His office had a table that i could transfer to. First one I've seen in four years. He ordered tests no one had suggested: bone density pulmonary function ultrasound of kidneys because sitting in a char affects all of these He's WORKING ON GETTING ME AN IN HOME THERAPIST When i pulled out the STANDER literature he praised me-- yes that was something he envisioned me using to prevent osteo_ something. I told him about the Flexiciser, he waited for me to follow him (uber points for that, too, treating me like I am a grown up who can go from point a to b) and showed me something VERY similar, a leg moving machine. Then show me the heated hydro therapy pool that i could lowered into--- if i could get transport there, which i can't with regularity SO he said our goal is to get me driving and help me transfer into my car Why don't all doctors have dentist chair type tables? In that they go low enough for someone from a wheelchair could possibly get on. He said where we are is backwards and that he had brought that table with him. I think i love this guy-- who SHOOK MY HAND. which just reminded me how i have not been treated well at all, but maybe this time I can really be on the road to help and healing. He praised me and celebrated me saying he was delighted to have a patient who was motivated. He had read my file and knew i was a vegetarian and fodd conscious and so understood my desire to lose weight was about raising metabolism, not telling me about not eating stuff that hasn't touched my lips for 40 years. I left with 3 appointments already set up for me--- this has never happened before my last blood test was at my OWN insistence. I think I've found a REAL DOCTOR. My bus driver, who I like a lot (but hadn't been getting because his firm declined medical rides for a time) knew this doctor and also praised him. Akua --
RE: [TMIC] Fwd: Good Idea!
ME TOO, JANICE. I GUESS I AM JUST TOO NOSEY. ALSO, SINCE I AM NOT ABLE TO GET OUT AS MUCH, I NEED CONTACT WITH OTHER PEOPLE, REGARDLESS OF THE TOPIC. PATTI From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, October 05, 2010 5:47 PM To: Patricia Cooley; em...@telephonelady.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! With my curiosity, I will always open it! Janice From: Patricia mailto:patticoole...@gmail.com Cooley Sent: Tuesday, October 05, 2010 9:28 AM To: 'Janice mailto:jan...@centurytel.net Nichols' ; em...@telephonelady.com ; Tmic-list@eskimo.com Subject: RE: [TMIC] Fwd: Good Idea! ONE OTHER THOUGHT. I REMEMBER THAT IN THE PAST, IT WAS DECIDED THAT IF YOU WERE GOING TO SEND A POST OFF TOPIC THAT YOU PUT IN THE SUBJECT O.T. TO INDICATE THAT IT WAS NOT ABOUT TM. I THINK THAT IS STILL A GOOD IDEA. THAT WAY YOU CAN DECIDE TO EITHER OPEN IT OR DELETE IT. PATTI - WISCONSIN From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, October 05, 2010 8:34 AM To: em...@telephonelady.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! It is about TM - 95% of the time.But, as we get to know each other, these discussions, I feel, add to the interest of the website. Many with TM are closed in much of the time and would like to be able to discuss different topics as an outlet. We are all friends here, and friends do not always talk about 1 topic, they vary the topics.If you wish to, you can just delete these few discussions. But, remember, it is also an emotional/mental outlet for us all and that is also why the website is here. It is good for us to have other things on our minds besides TM, although that is the main topic here. We hope you will contribute to all discussions. Janice From: Emily mailto:em...@telephonelady.com Sent: Tuesday, October 05, 2010 2:50 AM To: Tmic-list@eskimo.com Subject: RE: [TMIC] Fwd: Good Idea! Is this the right forum for this discussion? If it is, how do I remove myself from the TMIC list? I get enough of this kind of email from other sources and really don't want to see it here when this is a Transverse Myletis discussion list. I'm new here and I'm sorry for feeling this way but I thought it was going to be about TM. _ From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Tuesday, October 05, 2010 12:42 AM To: bgunny7...@aol.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! Let's be clear: Those persons who destroyed the Twin Towers in my City while I watched, were NOT MUSLIMS. They had twisted things like a New York Pretzel to have it do what they wanted of it-taking things out of context and making a god out of an evil and corrupt leader who signed off on killing the innocent. Their motto was Kill them all and let the Lord sort them out. Shall we ban Christian churches all over Europe because the Germans were Christian? Shall we ban temples in the Far East because the Japanese were Shinto Buddhists? There have been 13 years of war for every year of Peace since the Advent of His Holiness Jesus. Shall we ban Christian worship? Let's sort it out in our minds! Forever man has committed the most atrocious of acts in the name of their religion. But we see that it is because there is too little true religion today, not too much, which is the root cause of so many of our problems, in our streets and in our skies. No: It is because those murderers knew too little of the Qur'an that they committed such evil, not too much. They knew nothing of the Qur'an or Islam in the Name of which they killed so many. I say, if people want to sincerely worship God, let them. There is too little of this, not too much. Dalton _ From: bgunny7...@aol.com Date: Mon, 4 Oct 2010 16:04:09 EDT To: Tmic-list@eskimo.com Subject: [TMIC] Fwd: Good Idea! Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 4 Oct 2010 13:04:45 -0700
FW: [TMIC] Fwd: Good Idea!
I THINK THAT ANY THOUGHT THAT KEEPS OUR MINDS ACTIVE AND ALERT WORKS FOR ME. FOR MY SELF, I DON'T JUST WANT TO DWELL ON MY TM AND APPRECIATE THE DISCUSSION OF OTHER TOPICS. SINCE MOST OF US CAN'T GET OUT VERY MUCH, IT IS NICE TO HAVE CONVERSATIONS OF OTHER THINGS WITH EACH OTHER. MANY HAVE SAID, IF YOU DON'T LIKE THE TOPIC, JUST HIT THE DELETE KEY, AND I AGREE. I HOPE YOU DECIDE TO STAY WITH THE SITE, EMILY AS YOU WILL FIND A TREMENDOUS AMOUNT ABOUT TM. PATTI - WISCONSIN From: Emily [mailto:em...@telephonelady.com] Sent: Tuesday, October 05, 2010 2:50 AM To: Tmic-list@eskimo.com Subject: RE: [TMIC] Fwd: Good Idea! Is this the right forum for this discussion? If it is, how do I remove myself from the TMIC list? I get enough of this kind of email from other sources and really don't want to see it here when this is a Transverse Myletis discussion list. I'm new here and I'm sorry for feeling this way but I thought it was going to be about TM. _ From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Tuesday, October 05, 2010 12:42 AM To: bgunny7...@aol.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! Let's be clear: Those persons who destroyed the Twin Towers in my City while I watched, were NOT MUSLIMS. They had twisted things like a New York Pretzel to have it do what they wanted of it-taking things out of context and making a god out of an evil and corrupt leader who signed off on killing the innocent. Their motto was Kill them all and let the Lord sort them out. Shall we ban Christian churches all over Europe because the Germans were Christian? Shall we ban temples in the Far East because the Japanese were Shinto Buddhists? There have been 13 years of war for every year of Peace since the Advent of His Holiness Jesus. Shall we ban Christian worship? Let's sort it out in our minds! Forever man has committed the most atrocious of acts in the name of their religion. But we see that it is because there is too little true religion today, not too much, which is the root cause of so many of our problems, in our streets and in our skies. No: It is because those murderers knew too little of the Qur'an that they committed such evil, not too much. They knew nothing of the Qur'an or Islam in the Name of which they killed so many. I say, if people want to sincerely worship God, let them. There is too little of this, not too much. Dalton _ From: bgunny7...@aol.com Date: Mon, 4 Oct 2010 16:04:09 EDT To: Tmic-list@eskimo.com Subject: [TMIC] Fwd: Good Idea! Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 4 Oct 2010 13:04:45 -0700
RE: [TMIC] Fwd: Good Idea!
I COULDN'T AGREE WITH YOU MORE, JANICE. MOST OF OUR POSTS ARE ALL ABOUT TM, BUT I PERSONALLY ENJOY THE BREAK TO DISCUSS OR READ ABOUT OTHER TOPICS. PATTI From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, October 05, 2010 8:34 AM To: em...@telephonelady.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! It is about TM - 95% of the time.But, as we get to know each other, these discussions, I feel, add to the interest of the website. Many with TM are closed in much of the time and would like to be able to discuss different topics as an outlet. We are all friends here, and friends do not always talk about 1 topic, they vary the topics.If you wish to, you can just delete these few discussions. But, remember, it is also an emotional/mental outlet for us all and that is also why the website is here. It is good for us to have other things on our minds besides TM, although that is the main topic here. We hope you will contribute to all discussions. Janice From: Emily mailto:em...@telephonelady.com Sent: Tuesday, October 05, 2010 2:50 AM To: Tmic-list@eskimo.com Subject: RE: [TMIC] Fwd: Good Idea! Is this the right forum for this discussion? If it is, how do I remove myself from the TMIC list? I get enough of this kind of email from other sources and really don't want to see it here when this is a Transverse Myletis discussion list. I'm new here and I'm sorry for feeling this way but I thought it was going to be about TM. _ From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Tuesday, October 05, 2010 12:42 AM To: bgunny7...@aol.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! Let's be clear: Those persons who destroyed the Twin Towers in my City while I watched, were NOT MUSLIMS. They had twisted things like a New York Pretzel to have it do what they wanted of it-taking things out of context and making a god out of an evil and corrupt leader who signed off on killing the innocent. Their motto was Kill them all and let the Lord sort them out. Shall we ban Christian churches all over Europe because the Germans were Christian? Shall we ban temples in the Far East because the Japanese were Shinto Buddhists? There have been 13 years of war for every year of Peace since the Advent of His Holiness Jesus. Shall we ban Christian worship? Let's sort it out in our minds! Forever man has committed the most atrocious of acts in the name of their religion. But we see that it is because there is too little true religion today, not too much, which is the root cause of so many of our problems, in our streets and in our skies. No: It is because those murderers knew too little of the Qur'an that they committed such evil, not too much. They knew nothing of the Qur'an or Islam in the Name of which they killed so many. I say, if people want to sincerely worship God, let them. There is too little of this, not too much. Dalton _ From: bgunny7...@aol.com Date: Mon, 4 Oct 2010 16:04:09 EDT To: Tmic-list@eskimo.com Subject: [TMIC] Fwd: Good Idea! Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 4 Oct 2010 13:04:45 -0700
RE: [TMIC] Fwd: Good Idea!
ONE OTHER THOUGHT. I REMEMBER THAT IN THE PAST, IT WAS DECIDED THAT IF YOU WERE GOING TO SEND A POST OFF TOPIC THAT YOU PUT IN THE SUBJECT O.T. TO INDICATE THAT IT WAS NOT ABOUT TM. I THINK THAT IS STILL A GOOD IDEA. THAT WAY YOU CAN DECIDE TO EITHER OPEN IT OR DELETE IT. PATTI - WISCONSIN From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, October 05, 2010 8:34 AM To: em...@telephonelady.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! It is about TM - 95% of the time.But, as we get to know each other, these discussions, I feel, add to the interest of the website. Many with TM are closed in much of the time and would like to be able to discuss different topics as an outlet. We are all friends here, and friends do not always talk about 1 topic, they vary the topics.If you wish to, you can just delete these few discussions. But, remember, it is also an emotional/mental outlet for us all and that is also why the website is here. It is good for us to have other things on our minds besides TM, although that is the main topic here. We hope you will contribute to all discussions. Janice From: Emily mailto:em...@telephonelady.com Sent: Tuesday, October 05, 2010 2:50 AM To: Tmic-list@eskimo.com Subject: RE: [TMIC] Fwd: Good Idea! Is this the right forum for this discussion? If it is, how do I remove myself from the TMIC list? I get enough of this kind of email from other sources and really don't want to see it here when this is a Transverse Myletis discussion list. I'm new here and I'm sorry for feeling this way but I thought it was going to be about TM. _ From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Tuesday, October 05, 2010 12:42 AM To: bgunny7...@aol.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! Let's be clear: Those persons who destroyed the Twin Towers in my City while I watched, were NOT MUSLIMS. They had twisted things like a New York Pretzel to have it do what they wanted of it-taking things out of context and making a god out of an evil and corrupt leader who signed off on killing the innocent. Their motto was Kill them all and let the Lord sort them out. Shall we ban Christian churches all over Europe because the Germans were Christian? Shall we ban temples in the Far East because the Japanese were Shinto Buddhists? There have been 13 years of war for every year of Peace since the Advent of His Holiness Jesus. Shall we ban Christian worship? Let's sort it out in our minds! Forever man has committed the most atrocious of acts in the name of their religion. But we see that it is because there is too little true religion today, not too much, which is the root cause of so many of our problems, in our streets and in our skies. No: It is because those murderers knew too little of the Qur'an that they committed such evil, not too much. They knew nothing of the Qur'an or Islam in the Name of which they killed so many. I say, if people want to sincerely worship God, let them. There is too little of this, not too much. Dalton _ From: bgunny7...@aol.com Date: Mon, 4 Oct 2010 16:04:09 EDT To: Tmic-list@eskimo.com Subject: [TMIC] Fwd: Good Idea! Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 4 Oct 2010 13:04:45 -0700
RE: [TMIC] AOL........
Jan I am so sorry to hear of all the pain and suffering you have gone through since last Month. We will be looking forward to your gaining your strength and being able to get back to our so called normal. I know that P.T. is not easy, but something we need to do. Don't give up and remember we are all behind you and rooting for you to get better. Remember, don't overdo. Take care. Patti - Wisconsin From: Jan Hargrove [mailto:jmh1...@sbcglobal.net] Sent: Sunday, October 03, 2010 4:31 PM To: tmic-list Subject: [TMIC] AOL Dear tmfamily, I have deleted every piece of mail since 9/16, as I have spent the last 2 weeks in the hospital..I fell the night of 9/16, went to hospital 9/17 had surgery 9/18 and went to rehab 9/19. The surgery placed pins in my rigtht ankle which I broke on both sides. Am home as of Sat 10/2 and most happy to be hereI'm tired and only moving by wheelchair which will be replaced by scooter next week. I deleted more than 1700 emails, which included all from youall...I'll catch up with what's going on as I gain strength. This is not all bad news. I've not shared what's been happening to me since Feb...at that time I had an illness, not flu,but flu-like. My doc said it most likely was a virus that would wear out in time. I was down long enough that I began to lose some of my mobility. On the other hand I began to regain feelings that hadn't been there since tm came to stay (19996). I wondered if the pains I began to have were there all along, but I couldn't feel them. As I lost more mobility, I came to depend more and more on my 4 prong and my walker. My walker was part of reason I broke my anklethat and my clumsiness!! With rehab I have begun to regain the strength I'll need to become a member of walking wounded again. Home Care, esp.p.t., will continue for at least next 60 days. This is all for now, it's taken two sessions to get this written..later... janh
[TMIC] BIRTHDAYS
HAPPY BIRTHDAY TO ALL THOSE BORN IN OCTOBER. I HOPE YOU ALL HAVE A GREAT BIRTHDAY. PATTI - WISCONSIN
RE: Re: Fw: Re: [TMIC] Feet Burns
Todd that is very interesting. I also have the horrible freezing/burning in the feet all the time, plus the pins and needles. However, I have checked and my feet are not and do not get swollen. I have noticed that the pain is more severe when I am just sitting and resting. When I am up and about, there is no freezing/burning. At least it is so little, it doesn't bother me. Also, I have noticed that if I reach down and hold my feet tight, again no freezing/burning. But, I sure can't sit in that position for long. That does goes to show, we all have TM, but it affects all of us in a different way. Patti - Wisconsin From: Todd Tarno [mailto:toddtm2...@sbcglobal.net] Sent: Friday, September 17, 2010 2:28 PM To: TMIC Subject: Fw: Re: Fw: Re: [TMIC] Feet Burns I have been told by my doctor that, Our feet burns more when our feet are swollen, as the swelling goes down, our feet will not burn as much. I have notice that my feet are now only 50% swollen and I do believe the burning is 50% less. Todd --- On Thu, 9/16/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: Fw: Re: [TMIC] another wonderful night To: Janet Dunn j.d...@shaw.ca, 'Akua' a...@artfarm.com, tmic-list@eskimo.com Date: Thursday, September 16, 2010, 10:47 PM I have similar feelings too in my feet.A couple of weeks ago I spilt some juice on my foot and my neice grabbed a cloth and started washing it off. My foot really started spasming - scared us both. I hate it when I am walking and the bottom of my foot will start to spasm - it almost makes you fall. Janice From: Janet Dunn http://us.mc822.mail.yahoo.com/mc/compose?to=j.d...@shaw.ca Sent: Thursday, September 16, 2010 9:52 PM To: 'Akua' http://us.mc822.mail.yahoo.com/mc/compose?to=a...@artfarm.com ; tmic-list@eskimo.com http://us.mc822.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com Subject: RE: Fw: Re: [TMIC] another wonderful night My feet burn too, in fact, lately I cannot dry the bottoms of them with a towel as it causes a very uncomfortable feeling. I do know that since I have been taking 150mg of Lyrica 2x a day, the burning is not so bad. They are just cold all the time. Even when it is smokin hot outside, the feet, they stay cold! Janet From: Akua [mailto:a...@artfarm.com] Sent: September 16, 2010 5:45 PM To: tmic-list@eskimo.com http://us.mc822.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com Subject: Re: Fw: Re: [TMIC] another wonderful night . I do feel both of my feet feel like there should be flames coming off my feet. lol Hope this helps, Todd in CC, TX my feet BURN too! Akua in the southenr finger lakes, NY --
RE: [TMIC] New to TM
Welcome to our site. I am sorry it took TM to find us. I too have Idiopathic TM. I was DX in June of 2008. I was in the hospital for 5 weeks and was given Prednisone with there and was sent home with a script of oral prednisone to start weaning. The TM affected my legs and of course the bladder and bowels. I had PT while there and then continued when I got home. I have since progressed to where I am able to get around the house with walker/cane, but do need a walker to my electric scooter when I go to any activity that requires a lot of walking. This group is also for the spouses or care givers. There are no questions that you cannot ask. We are all here for you and your hubby. Take care and give our best to your hubby. Patti - Wisconsin From: Emily [mailto:em...@telephonelady.com] Sent: Thursday, September 16, 2010 11:11 AM To: tmic-list@eskimo.com Subject: [TMIC] New to TM Hi Everyone, My husband has recently (September 2nd) been diagnosed with Idiopathic TM. He was treated at Pennsylvania Hospital under the care of a team of Neurologists. He was given mega doses of Prednisone and is currently weaning with oral prednisone. He was discharged from the hospital last Thursday and he is now working hard at an acute rehabilitation center (3-5 hours each day). He has a very positive outlook and is taking it one day at a time. My question is this..is there a support group for spouses of TM? Emily Life is not measured by the number of breaths that we take but by the moments that take our breath away. image001.jpg
RE: [TMIC] Medications
Before the U.S. had prescription insurance for social security people, we always bought my husband's scripts from Canada with no problem. There are several internet sites for Canadian pharmacies. Just google Canada pharmacies. At that time, the prices we about half what we would have paid in the U.S. We also had a local office that you could place your scripts. It is worth a try. Patti -Wisconsin From: fr...@franksheldon.com [mailto:fr...@franksheldon.com] Sent: Tuesday, September 14, 2010 3:13 PM To: Jill Posner; fr...@franksheldon.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Medications Can a US doctor prescribe a drug only available in Canada and the UK? How does one buy it then (if not able to go to Canada to purchase it) Can it be obtained over the internet or some other way? I really don't know. My neurologist in Portland (Maine) says that he writes Rx to patients who then go to a pharmacy in Canada. My pain MD has no other US patients. Sorry F
RE: [TMIC] Medications
DALTON I HOPE AND PRAY THEY CAN FIND A SOLUTION TO YOUR SEIZURES. KEEP THE FAITH AND DON'T GIVE UP HOPE. PATTI - WISCONSIN From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Tuesday, September 14, 2010 11:02 AM To: Roger Terese Pratt Cc: L T CHERPESKI; Janice Nichols; j dunn; tmic-list@eskimo.com; Barbara Alma Subject: Re: [TMIC] Medications Thanks; But I am not hopeful. I seem to be like this washing machine model that none of the repairmen has ever seen before. Dalton _ From: Roger Terese Pratt r.c.pr...@frontier.com Date: Tue, 14 Sep 2010 02:46:17 + (UTC) To: Dalton Garis malugss...@gmail.com Cc: L T CHERPESKI cherp...@msn.com, Janice Nichols jan...@centurytel.net, j dunn j.d...@shaw.ca, tmic-list@eskimo.com, Barbara Alma balmat...@aol.com Subject: Re: [TMIC] Medications Best of luck, Dalton! - Roger in Kennewick, WA - Original Message - From: Dalton Garis malugss...@gmail.com To: L T CHERPESKI cherp...@msn.com, Janice Nichols jan...@centurytel.net, j dunn j.d...@shaw.ca, tmic-list@eskimo.com, Barbara Alma balmat...@aol.com Sent: Monday, September 13, 2010 6:08:32 AM Subject: Re: [TMIC] Medications I am now going to be tested for epilepsy, induced by the TM or something like it. I am on epilepsy anti-seizure drugs now. Dalton
RE: [TMIC] OT My first Grandchild
Lori - congratulations to you and your family. You are about to experience one of life's greatest joys. I am lucky to have 2 beautiful granddaughters, the oldest just turned 12 on Saturday. They are the reason we moved in May to be closer to them. I didn't want to miss any of their growing up years. All I can say is enjoy, love, and don't forget one of your main jobs as a grandmother is to spoil them. God Bless your family. Patti - Wisconsin From: Lori Biehler [mailto:lbieh...@earthlink.net] Sent: Sunday, September 12, 2010 8:25 PM To: TMIC Subject: [TMIC] OT My first Grandchild Hi everyone, I figured since most write to the list with problems, I would send along some really happy news in our family, I am to become a grandmother in February! My son and his wife are expecting their first child. I cannot tell you how happy we are, this is what my son has always wanted, a family. Lori
RE: [TMIC] OT My first Grandchild
Congratulations Bernie. They are such a joy. Did you get a grandson or granddaughter?. Remember your main job beside loving them to pieces, is to spoil them. Patti -- Wisconsin From: Butcher, Bernie (SFS) [mailto:bernie.butc...@honeywell.com] Sent: Monday, September 13, 2010 1:42 PM To: rn11...@yahoo.com; Lori Biehler Cc: tmic-list@eskimo.com Subject: RE: [TMIC] OT My first Grandchild I became a grandfather for the first time 8/19/10! BERNARD BUTCHER Honeywell Engineering 516-577-5868 _ From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: Monday, September 13, 2010 11:40 AM To: Lori Biehler Cc: tmic-list@eskimo.com Subject: Re: [TMIC] OT My first Grandchild Hi Lori, Congratulations! Whar wonderful news for your family. I became a grandmother over 30 yrs ago,at age 33. I have 4 grands ages 30,29,22,and 11. My 29 yr old granddaughter is expecting her 6th in December. Hers are 12,11,3,2,1. Grandchildren are great;spoil them and send them home. Cheryl in Easthampton,MA. --- On Sun, 9/12/10, Lori Biehler lbieh...@earthlink.net wrote: From: Lori Biehler lbieh...@earthlink.net Subject: [TMIC] OT My first Grandchild To: TMIC tmic-list@eskimo.com Date: Sunday, September 12, 2010, 9:24 PM Hi everyone, I figured since most write to the list with problems, I would send along some really happy news in our family, I am to become a grandmother in February! My son and his wife are expecting their first child. I cannot tell you how happy we are, this is what my son has always wanted, a family. Lori
RE: [TMIC] hello
YOU CAME THROUGH WITHOUT A PROBLEM. PATTI - WISCONSIN From: celr...@aol.com [mailto:celr...@aol.com] Sent: Monday, September 06, 2010 6:40 PM To: tmic-l...@eskimo.net Subject: [TMIC] hello Please let me know if this comes through. Some how I was kicked off the tmic website.
RE: [TMIC] Blessings
Rev. Craig: I am so happy for you and your wife. Finally things are working out for you. I know you will love working from home. A couple of years ago, I had an at home job working for a mortgage company until the market fell off. I sure do miss it since I love working on the computer, and let's face it, the extra money was most welcome. I was working part time at a medical clinic until I moved to be near family in May. I miss the interaction with people, and certainly miss the extra income. The Lord answered your prayers. We must keep our faith and know that He listens to our needs. God Bless! Patti - Wisconsin From: Rev. Craig Crossman [mailto:revcross...@gmail.com] Sent: Friday, September 03, 2010 10:37 AM To: tmic-list@eskimo.com Subject: [TMIC] Blessings You will have to forgive me for using religious language today, but we are experiencing a real blessing. First of all, the weather has broken and the days start at 45 degrees and go to the 80's, so I am not having as many symptom problems with my TM. Then, I got a phone call from a company I have done work for before and we (my wife and I) were offered a full-time job with benefits which will be doing audits for insurance policies. The best part is that it will all be done by phone and internet from home! And the starting pay of $30K/year will be a real blessing. That plus what I earn at the church means we can now get ourselves back out of debt and start saving money again. The company has been around for 80 years so they are stable. And the work is such that it will continue even in a bad economy. Hooray! Hope you all are having a great day as well. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
RE: [TMIC] September Birthdays
I WISH ALL THE SEPTEMBER BABIES A VERY HAPPY BIRTHDAY. I HOPE THIS NEXT YEAR WILL BE BETTER THAN THE LAST. PATTI - WISCONSIN From: Barbara H. [mailto:barbara...@gmail.com] Sent: Tuesday, August 31, 2010 10:43 PM To: TMIC Subject: [TMIC] September Birthdays Happy Birthday to the September kids! Hope you have a great day! Please send any additions or corrections to tmic-list@eskimo.com 9/3 Buddy Cohen (buddyco...@cs.com) 9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.com ) 09-06 Jake DeGrand (judidegra...@yahoo.com) 9-8 Mary Davidson (keebe...@aol.com) 9/8 Terry Parker (parkersw...@aol.com) 9-16 Mary Eden Cochran (coch6...@bellsouth.net) 9-17 Michael (mis...@austin.rr.com) 9-17 Bill Wimberly- (bwimbe...@bellsouth.net) 09/20 Rob Pall (robthe...@aol.com) 9-23 Karen (Mushroo) (mush...@juno.com)(mushr...@hotmail.com) 9-24 Suzi in Seattle (ss1...@aol.com) 9/26 Allen Rucker a...@allenrucker.com 9/30 Patti Enstrom (pge...@aol.com )
RE: [TMIC] Fw: Delivery Status Notification (Failure)
Jackie First of all I am so sorry that you had the misfortune to be struck with TM. But, I am so glad you found us. This site is a life line we all need very much. I have been here since the summer of 2008, and I think it saved my sanity. There are no off limit topics. We hope you join us whenever you have questions or comments. Take care. Patti - Wisconsin -Original Message- From: jack...@att.blackberry.net [mailto:jack...@att.blackberry.net] Sent: Tuesday, August 31, 2010 12:33 AM To: Transverse Subject: [TMIC] Fw: Delivery Status Notification (Failure) Sent via BlackBerry by ATT -Original Message- From: Mail Delivery System mailer-dae...@smtp17.bis.na.blackberry.com Date: 31 Aug 2010 04:22:07 To: srs0=flihoc=qe=att.blackberry.net=jack...@srs.bis.na.blackberry.com Subject: Delivery Status Notification (Failure) The following message to listrequ...@eskimo.com was undeliverable. The reason for the problem: 5.1.0 - Unknown address error 550-'5.1.1 listrequ...@eskimo.com... User unknown'
RE: [TMIC] Vit. D article
THANKS FOR FORWARDING THIS ARTICLE. I HAVE KNOWN THE BENEFITS OF VITAMIN D SINCE I WAS DIAGNOISED WITH TM 2 YEARS AGO. MY NEURO SUGGESTED IT. WITH I HAD KNOWN ABOUT IT BEFORE TM. I NOW TAKE 5,000 UI’S EACH DAY UNLESS I HAVE SPENT A GOOD PART OF THE DAY OUTSIDE. WITH FALL AND WINTER APPROACHING, I WILL BE TAKING IT EVERY DAY. TAKE CARE. PATTI - WISCONSIN From: CANDIS KALLEY [mailto:cakal...@embarqmail.com] Sent: Wednesday, August 25, 2010 8:15 AM To: TMIC-LIST Subject: [TMIC] Vit. D article I just received this and I think it is worth reading. http://www.lifescript.com/Health/News/Reuters/2010/08/24/Vitamin_D_tied_to_cancer_autoimmune_disease_genes.aspx?utm_campaign=2010-08-25-58859 http://www.lifescript.com/Health/News/Reuters/2010/08/24/Vitamin_D_tied_to_cancer_autoimmune_disease_genes.aspx?utm_campaign=2010-08-25-58859utm_source=healthy-advantageutm_medium=emailutm_content=healthy-news-bites_Vitamin%20D%20tied%20to%20canFromNL=1sc_date=20100825T00 utm_source=healthy-advantageutm_medium=emailutm_content=healthy-news-bites_Vitamin%20D%20tied%20to%20canFromNL=1sc_date=20100825T00 Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
RE: [TMIC] stem cell treatments- the next step
FRANK THIS IS VERY INTERESTING. MY QUESTION IS WHEN/IF IT IS PERFECTED, WOULD PEOPLE WHO ARE OLDER BE CONSIDERED. I AM AFRAID IT WOULD BE USED ONLY ON THE YOUNG PEOPLE WHO HAVE SPINAL CORD INJURY. PATTI - WISCONSIN From: fr...@franksheldon.com [mailto:fr...@franksheldon.com] Sent: Thursday, August 19, 2010 8:19 AM To: tmic-list@eskimo.com Subject: [TMIC] stem cell treatments- the next step StemCells, Inc. Reports Breakthrough Using Human Neural Stem Cells to Restore Motor Function in Chronic Spinal Cord Injury Newly Published Study Shows Long-Term Reversal of Hind Limb Paralysis in Spinal Cord Injured Mice PALO ALTO, Calif., Aug 19, 2010 (GlobeNewswire via COMTEX) -- StemCells, Inc. (Nasdaq:STEM) announced today the publication of new preclinical data demonstrating that the Company's proprietary human neural stem cells restore lost motor function in mice with chronic spinal cord injury. This is the first published study to show that human neural stem cells can restore mobility even when administered at time points beyond the acute phase of trauma, suggesting the prospect of treating a much broader population of injured patients than previously demonstrated. This groundbreaking study, entitled Human Neural Stem Cells Differentiate and Promote Locomotor Recovery in an Early Chronic Spinal Cord Injury NOD-scid Mouse Model, was led by Dr. Aileen Anderson of the Sue and Bill Gross Stem Cell Research Center at the University of California, Irvine (UCI). The paper was published yesterday in the international peer-reviewed journal PLoS ONE, and is available online at http://dx.plos.org/10.1371/journal.pone.0012272. In this latest study, StemCells' human neural stem cells were transplanted into mice 30 days after a spinal cord injury that results in hind limb paralysis. The transplanted mice demonstrated a significant and persistent recovery of walking ability in two separate tests of motor function when compared to control groups. These results are particularly significant because it is the first time that human neural stem cells have been shown to promote functional recovery in a chronic spinal cord injury setting, which is characterized as a point in time after injury in which inflammation has stabilized and behavioral recovery has reached a plateau. In humans, the chronic phase typically does not set in until several weeks or months following the injury. These exciting results demonstrate an expanded window of opportunity for human neural stem cell intervention in spinal cord injury, stated Stephen Huhn, MD, FACS, FAAP, Vice President and Head of the CNS Program at StemCells, Inc. 1.3 million individuals in the U.S. are living with chronic spinal cord injury, and this latest study provides additional evidence that the use of our human neural stem cells may be a viable treatment approach for them. The strong preclinical data we have accumulated to date will enable our transition to a clinical trial, which we plan to initiate in 2011. Aileen Anderson, Ph.D., Associate Professor in the Departments of Physical Medicine and Rehabilitation, and Anatomy and Neurobiology at UCI, added, Human neural stem cells are a novel therapeutic approach that holds much promise for spinal cord injury. However, published research to date has generally focused on the acute and sub-acute phases. As part of our long-standing collaboration with StemCells, we have pursued a thoughtful and deliberate research strategy to establish the groundwork necessary to advance this cell-based approach into the clinic. This latest study builds on the extensive work we had previously published in the sub-acute phase of injury, and offers additional hope to those who are paralyzed or have impaired motor function. About the Sue and Bill Gross Stem Cell Research Center The Sue and Bill Gross Stem Cell Research Center promotes basic and clinical research and training in the field of stem cell biology at the University of California, Irvine. The Center is a leading international institution in stem cell research and clinical applications, consolidating existing research strengths and clinical initiatives at UCI and serving as a nucleus for growth via collaboration and new recruits. The Center provides an organizational structure for all areas of stem cell research, contributes to premier graduate training, maintains a core stem cell facility and equipment resources, hosts guest researchers and annual meetings, and contributes to the research and dialogue on the policy and ethical issues related to stem cells. For more information, see http://stemcell.uci.edu/index.cfm. About StemCells, Inc. StemCells, Inc. is engaged in the research, development, and commercialization of stem cell therapeutics and tools for use in stem cell-based research and drug discovery. In its therapeutic product development programs, StemCells is targeting diseases of the central nervous system and
RE: [TMIC] Symposium/Dallas Sept 24-26
HI LINDA SINCE I AM NEW TO TM (2 YEARS), I WISH I COULD GO. BUT, WITH OUR BIG MOVE IN MAY, EXPENSES JUST WON'T ALLOW IT AT THIS TIME. ALSO, I DON'T THINK I COULD HANDLE A TRIP THIS SIZE. I TOO WILL BE WAITING TO HEAR ALL THE COMMENTS FROM THOSE WHO CAN DO. IT WOULD BE WONDERFUL TO MEET EVERYONE IN PERSON. PLEASE KEEP US INFORMED. TAKE CARE. PATTI - WISCONSIN From: L T CHERPESKI [mailto:cherp...@msn.com] Sent: Saturday, August 14, 2010 3:34 PM To: TMIC-LIST Subject: [TMIC] Symposium/Dallas Sept 24-26 I'm just throwing this out there. Are any of you planning to go to the upcoming Symposium in Dallas? I had a doctor appt yesterday and took a copy of the agenda to my doc. He actually sat there and read the info, smiled and was very impressed that this was being offered and that I plan to attend. I'm due for my Rituxan infusions and he said I could hold off having them, just in case some of the doctors have come up with a better/different plan. I realize how fortunate I am to have a doctor who listens and is open to new ideas. Re: the Symposium - I do know that Louise is coming clear from Australia! Looking forward to meeting as many of the TM family as possible. Linda (Eagle, ID)
RE: [TMIC] Fact Sheet on TM
I DON’T HAVE A SPREAD SHEET, BUT I DO HAVE A LIST OF ALL DRUGS AND SUPPLEMENTS THAT I TAKE , HOW MANY, AND WHEN. I AM FORTUNATE IN THAT I DO NOT HAVE TO TAKE MEDS FOR PAIN, ETC. THE ONLY SCRIP I TAKE IS THE GENERIC FOR DETROL. THAT MAY CHANGE WHEN I CONNECT WITH NEW DOCS. PATTI - WISCONSIN From: Todd Tarno [mailto:toddtm2...@sbcglobal.net] Sent: Saturday, August 07, 2010 1:50 PM To: TMIC Subject: Re: [TMIC] Fact Sheet on TM My medication speadsheet has the following: Medication, Date Started, Dose, Times of Day w/time of the day M, D, N ( Morning, Dinner Night), Type of Med. I believe this will cover everthing. lol Todd in CC, TX --- On Sat, 8/7/10, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: Re: [TMIC] Fact Sheet on TM To: tmic-list tmic-list@eskimo.com Date: Saturday, August 7, 2010, 10:40 AM Patti, you may also want to make a sheet on all the meds you are on. Also, the vitamins and supplements that you may be taking. I keep an Excel spreadsheet so that I can change dosages and add or delete meds as needed. I also list the dates of start/end, plus the Dr. info. This is much easier as I have found that on every visit, the questionaire asks for current meds. This way, I print the list before the visit and just say See attached. Much Much easier! Candy K. - Original Message - From: Patricia Cooley patticoole...@gmail.com To: Rev. Craig Crossman revcross...@gmail.com, tmic-list@eskimo.com Sent: Saturday, August 7, 2010 11:22:15 AM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] Fact Sheet on TM THANKS SO MUCH FOR THIS INFO. SINCE I MOVED SEVERAL MONTHS AGO, I WILL NEED TO CONNECT WITH A NEW PCP, NEUROLOGIST, AND UROLOGIST VERY SOON. SINCE THIS IS A SMALL TOWN, I WAS AFRAID THEY WOULD NOT BE AWARE OF TM. I PRINTED IT OFF AND WILL BE SURE TO TAKE WITH ME AT MY FIRST APPOINTMENT. THANKS AGAIN. PATTI - WISCONSIN From: Rev. Craig Crossman [mailto:revcross...@gmail.com] Sent: Friday, August 06, 2010 3:08 PM To: tmic-list@eskimo.com Subject: [TMIC] Fact Sheet on TM Many of you have probably already read this Fact Sheet. I find it helpful to give any physician or PA or NP that is my primary care provider since 90% of them have no idea what TM is, and it seems many don’t want to take the time to find out about it as well. What is even more aggravating is that my new neurologist (the only one within three hours travel) has no experience with it either. So she’ll get a copy as well. http://www.ninds.nih.gov/disorders/transversemyelitis Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
RE: [TMIC] Fact Sheet on TM
THANKS SO MUCH FOR THIS INFO. SINCE I MOVED SEVERAL MONTHS AGO, I WILL NEED TO CONNECT WITH A NEW PCP, NEUROLOGIST, AND UROLOGIST VERY SOON. SINCE THIS IS A SMALL TOWN, I WAS AFRAID THEY WOULD NOT BE AWARE OF TM. I PRINTED IT OFF AND WILL BE SURE TO TAKE WITH ME AT MY FIRST APPOINTMENT. THANKS AGAIN. PATTI - WISCONSIN From: Rev. Craig Crossman [mailto:revcross...@gmail.com] Sent: Friday, August 06, 2010 3:08 PM To: tmic-list@eskimo.com Subject: [TMIC] Fact Sheet on TM Many of you have probably already read this Fact Sheet. I find it helpful to give any physician or PA or NP that is my primary care provider since 90% of them have no idea what TM is, and it seems many don't want to take the time to find out about it as well. What is even more aggravating is that my new neurologist (the only one within three hours travel) has no experience with it either. So she'll get a copy as well. http://www.ninds.nih.gov/disorders/transversemyelitis Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
RE: [TMIC] pause from the cause
What would we do without our TM family. My problems are very much like everyone else's. I am also able to get along in the house with cane/walker, as long as I know I have a wall or furniture to touch on the way. Cheryl, I am so sorry to hear about your fall in WalMart. Besides painful, my first thought is always, I hope no one saw me, which is really stupid. I always use the store electric cart, especially at the big stores as I know I would be exhausted by the time I was through. The only good thing that came out of TM for me is that in the beginning when I was so very depressed and before I found you all, I lost over 50 pounds. I have been trying to lose the weight for as long as I can remember. I try very hard to keep it off, now that I am not depressed as much. It is so hard to lose weight when you can't do much in the way of exercise that would help to lose the weight. For me my left leg is the strongest, which doesn't say much. Take care all. Patti - Wisconsin From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Thursday, August 05, 2010 10:24 PM To: rn11...@yahoo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] pause from the cause This is the pits! Sure glad I have a lot of TM'ers to share it with. Janice From: rn11...@yahoo.com Sent: Thursday, August 05, 2010 6:17 AM To: Janice mailto:jan...@centurytel.net Nichols Cc: tmic-list@eskimo.com Subject: Re: [TMIC] pause from the cause Over the years,I've had times when things got a little better for a while,then got worse and stayed that way. For years I walked in the house without any devices,then went to a cane,and now a walker. I'm sure if I lost weight I'd be able to do better. My right leg is the strong one,and that isn't saying much these days. :) Cheryl --- On Wed, 8/4/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] pause from the cause To: rn11...@yahoo.com Date: Wednesday, August 4, 2010, 11:11 PM A month or so ago I had a span when I was pretty strong.I went to HyVee and walked the cart like you did. I was so proud. Now I am in a recession and not strong enough to do it again.My right leg has decided to weaken.We are not sure why - could be a ham string, but after a session of PT it was much better, then all of a sudden, it went weak. Anything like that happen to you - or any TM'ers? Janice From: rn11...@yahoo.com http://us.mc581.mail.yahoo.com/mc/compose?to=rn11...@yahoo.com Sent: Wednesday, August 04, 2010 8:07 PM To: Janice Nichols http://us.mc581.mail.yahoo.com/mc/compose?to=jan...@centurytel.net Subject: Re: [TMIC] pause from the cause I use a walker all the time,even walking in my house. I never know when my legs will fail me.At the store I put the walker in the cart.Today I just had 4 things to get,so I used the regular cart and kept it close to my body. Cheryl --- On Wed, 8/4/10, Janice Nichols jan...@centurytel.net http://us.mc581.mail.yahoo.com/mc/compose?to=jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net http://us.mc581.mail.yahoo.com/mc/compose?to=jan...@centurytel.net Subject: Re: [TMIC] pause from the cause To: rn11...@yahoo.com Date: Wednesday, August 4, 2010, 7:14 PM Good girl!! Do you do that with a cane or walker or wheelchair? Janice From: rn11...@yahoo.com http://us.mc581.mail.yahoo.com/mc/compose?to=rn11...@yahoo.com Sent: Wednesday, August 04, 2010 6:35 AM To: Janice Nichols http://us.mc581.mail.yahoo.com/mc/compose?to=jan...@centurytel.net Subject: Re: [TMIC] pause from the cause Hi Janice, I usually have my daughter Lynn do my grocery shopping since the store is so spread out.But I needed several items in Walmart and I wanted to get out of the house for a while. I just came back from the local grocery store;got all I needed at one end,was out in less than 10 min. Cheryl in hot,humid Easthampton,MA. --- On Tue, 8/3/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] pause from the cause To: rn11...@yahoo.com, john snodgrass jcs...@yahoo.com Cc: tmic-list@eskimo.com Date: Tuesday, August 3, 2010, 11:22 PM Cheryl, I am sure that those who saw you fall, or just afterward, thought that you had a lot of guts to get out and shop. I hope this doesn't keep you from going again.You go girl! Janice From: rn11...@yahoo.com http://us.mc581.mail.yahoo.com/mc/compose?to=rn11...@yahoo.com Sent: Monday, August 02, 2010 5:12 PM To: john snodgrass http://us.mc581.mail.yahoo.com/mc/compose?to=jcs...@yahoo.com Cc: tmic-list@eskimo.com http://us.mc581.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com Subject: Re: [TMIC] pause from the cause Hi John, I wish I could say I had no pain for even a few seconds. But,from the moment I open my eyes until I go to sleep the burning
RE: [TMIC] August Birthdays
I HOPE ALL THE AUGUST BABIES HAVE A VERY, VERY HAPPY BIRTHDAY! PATTI - WISCOSIN From: Barbara H. [mailto:barbara...@gmail.com] Sent: Saturday, July 31, 2010 11:22 PM To: TMIC Subject: [TMIC] August Birthdays Happy Birthday to the August kids! Please send any additions or corrections to tmic-l...@eskimo.com. 8/1 Peachi (pkeene2...@aol.com) 8/1 Cindy McLeroy (cindymcle...@socal.rr.com) 8- 1 Stacy Firth (safi...@dow.com ) 8-3 Larry Throne (lbthr...@hotmail.com ) 8-10 Sean Indiveri (sindiv...@hotmail.com) 8-11 Raylene Gökeri (mrs_gok...@yahoo.com 8-11 Michelle Maricic (mmari...@aol.com) 11th August 1950 Dalida S. Ortiz de Garcia (py...@yahoo.com) 8-16- phyllisj...@webtv.net 08/17 Sandra (Harth) Brassil (sbras...@aol.com) 8-17 Kim (jnks...@huntel.net) 08/18 Corinne Cookie Knox (horsecookies...@wmconnect.com) 8-19 Saroj (sarojkumar...@gmail.com) 8-21 Barbara H. (jbarbara...@gmail.com) 8/22 - Debi (debdo...@aol.com) 8-23 Cole (neilandwe...@rogers.com) 8-29 Lisa Baker (Judy's daughter) (judybak...@juno.com 8-29 Kathleen (kkar...@dacor.net ) 8/30 Lynn Pouliot (lpoul...@cox.net) 8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com )
RE: [TMIC] Fw: Clorox vs Peroxide.....this is good
I HAVE USED THE 3% MANY TIMES WHEN I HAVE HAD A CUT ON MY FINGER THAT WOULDN'T HEAL BECAUSE I KEPT REOPENING IT ALL THE TIME. IT WORKED EVERY TIME WITHOUT A PROBLEM. I DIDN'T EVEN KNOW THAT HAD A STRONGER SOLUTION. PATTI - WISCONSIN From: Janet Dunn [mailto:j.d...@shaw.ca] Sent: Wednesday, July 28, 2010 10:15 AM To: 'lynne myers'; 'tmic' Subject: RE: [TMIC] Fw: Clorox vs Peroxide.this is good One of the very important things to take note of is that often - for disinfecting purposes - it is not the 3 percent off the shelf H202 that is being used. It is the 35 percent food grade that is used for hot tubs, cutting boards etc. You dilute it down, but not to 3%. 35% burns burns burns! However, for mouth rinses, yes use 3%. We - at the health food store where I work - actually had to quit selling it to one woman because she would bathe in the 35% so much that her skin was turning white. (She was from Columbia) She was also drinking a very diluted amount. Moderation, Education, and above all Common Sense! Janet From: lynne myers [mailto:lynnemye...@yahoo.com] Sent: July 28, 2010 6:40 AM To: tmic Subject: Re: [TMIC] Fw: Clorox vs Peroxide.this is good Found most of the uses interesting, but as a nurse I have to tell you I would no sooner use peroxide on a wound than bleach. Peroxide can cause damage to surrounding healthy tissues and actually slow healing. For me good old soap and water work the best. --- On Tue, 7/27/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: [TMIC] Fw: Clorox vs Peroxide.this is good To: tmic-list@eskimo.com Date: Tuesday, July 27, 2010, 12:02 PM I found this very interesting - hope you do too. Janice - Original Message - Clorox vs Peroxide VERY interesting and inexpensive. This was written by Becky Ransey of Indiana (a doctor's Wife), and I want to share it with you. She was over recently for coffee and smelled the bleach I was using to clean my toilet and counter tops. This is what she told me. 'I would like to tell you of the benefits of that Plain little ole bottle of 3% peroxide you can get for under $1.00 at any drug store. What does bleach cost? My husband has been in the medical field for over 36 years, And most doctors don't tell you about peroxide. Have you Ever smelled bleach in a doctor's office? NO!!! Why? Because it smells, and it is not healthy! Ask the nurses who work in the doctor's offices, and ask them if they use bleach at home. They are wiser and know better! Did you also know bleach was invented in the late 40's? It's chlorine, folks! And it was used to kill our Troops. Peroxide was invented during WWI in the 20's. It was used to save and help cleanse the needs of our troops and hospitals. Please think about this: 1. Take one capful (the little white cap that comes with the bottle) and hold in your mouth for 10 minutes daily, then spit it out. (I do it when I bathe.) No more canker sores, and your teeth will be whiter without expensive pastes. Use it instead of mouthwash. 2. Let your toothbrushes soak in a cup of peroxide to keep them free of germs. 3. Clean your counters and table tops with peroxide to kill germs and leave a fresh smell. Simply put a little on your dishrag when you wipe, or spray it on the counters. 4. After rinsing off your wooden cutting board, pour peroxide on it to kill salmonella and other bacteria. 5. I had fungus on my feet for years until I sprayed a 50/50 mixture of peroxide and water on them (especially the toes) every night and let dry. 6. Soak any infections or cuts in 3% peroxide for five to ten minutes several times a day. My husband has seen gangrene that would not heal with any medicine but was healed by soaking in peroxide. 7. Fill a spray bottle with a 50/50 mixture of peroxide and Water and keep it in every bathroom to disinfect without Harming your septic system like bleach or most other Disinfectants will. 8. Tilt your head back and spray into nostrils with your 50/50 mixture whenever you have a cold, plugged sinus. It will bubble and help to kill the bacteria. Hold for a few minutes, and then blow your nose into a tissue. 9. If you have a terrible toothache and cannot get to a dentist right away, put a capful of 3% peroxide into your mouth and hold it for ten minutes several times a day. The pain will lessen greatly. 10. And of course, if you like a natural look to your hair, spray the 50/50 solution on your wet hair after a shower and comb it through. You will not have the peroxide-burnt blonde hair like the hair dye packages but more natural highlights if your hair is a light brown, reddish, or dirty blonde. It also lightens gradually, so it's not a drastic change. 11. Put half a bottle of peroxide in your bath to help get rid of boils, fungus, or other skin infections. 12. You can also add a cup of peroxide instead of bleach to a
RE: [TMIC] Fwd: Do I like getting old?
GUNNY I LOVED YOUR POEM. I GUESS I HAVE LIVED BY MANY OF THE THINGS MENTIONED. PATTI - WISCONSIN From: bgunny7...@aol.com [mailto:bgunny7...@aol.com] Sent: Wednesday, July 28, 2010 11:02 AM To: Tmic-list@eskimo.com Subject: [TMIC] Fwd: Do I like getting old?
RE: [TMIC] Jude (hey Jude) Better News
ALL OUR PRAYERS ARE DOING SOMETHING GOOD. I AM SO GLAD SHE IS RESPONDING. WE WILL KEEP THE PRAYERS COMING. I KNOW SHE DOESN'T HAVE STRENGTH TO READ AND RESPOND TO OUR GOOD WISHES, BUT PLEASE REMIND HER THAT SHE IS IN OUR THOUGHTS DAY AND NIGHT AND ARE WAITING FOR THE TIME WHEN SHE CAN POST TO US ALL. THANKS AGAIN. PATTI - WISCONSIN -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Sunday, July 25, 2010 8:43 PM To: tmic Subject: [TMIC] Jude (hey Jude) Better News Our prayers are being answered and Jude is responding. David said she has become more talkative and is eating better. He sent me a note on facebook that she requested a grilled cheese sandwich for breakfast this morning. Ahh. comfort food! I know I don't need to ask you to keep praying. What a family of believers we have here. Love to all Patti - Michigan
RE: [TMIC] short story
GUNNY YOUR SHORT STORY WAS VERY MUCH APPRECIATED. IT HAS GIVEN ME ANOTHER PERSPECTIVE ON MY ABILITIES (NOTE I DID NOT SAY DISABILITIES - NOT ANY MORE). I LOST MUCH, BUT I STILL HAVE MUCH. THE MOST IMPORTANT THING I HAVE IS MY FAMILY. I TOO WANT TO THANK YOU AND ALL VETS FOR THE SACRIFICE YOU ALL MADE TO SAVE THIS COUNTRY WE ALL LOVE SO MUCH. I LOST A VERY BELOVED UNCLE IN WWII. MY HUSBAND SERVED IN THE NAVY AND MY NEPHEW IS A RETIRED MARINE AND SERVED IN IRAQ. WITHOUT ALL THE MEN AND WOMEN WHO THEIR COUNTRY, WE MAY BE SPEAKING GERMAN OR ARABIC. THANKS AGAIN, GUNNY. From: bgunny7...@aol.com [mailto:bgunny7...@aol.com] Sent: Saturday, July 24, 2010 9:51 AM To: Tmic-list@eskimo.com Subject: [TMIC] short story I was just sttin here the other day lookin at something I got from another Marine. I had a though about lookin up my old DI's. I typed in thier names in my search engine, and came up with only one, Sgt. Levesque. It was a story about what happened to him in Viet Nam. I called John Brown who is the commander of the VA, who also worked with me at the Sheriff's dept. yes, he's from Youngstown. It seems Sgt. Levesque works with the blind veterans, as he lost his eye sight in Viet Nam. John told me how to get in touch with him, so I called. He answered, Don Levesque, how can I help you? Here's a man I haven't seen or talked to in forty eight years, and I got the feeling of needing to snap to, but I didn't . I said, Platton 289, F Co. Parris Island. He said, yeah, my platoon. I said Pvt. Boyle, Platoon Guide. He said, son of a bitch, how the hell are ya. I said, the question is, how are you, I read a story about you and losing your eye sight. He said, ya know Boyle, I remember you, you had your head and ass wired together..After exchanging pleasantries, we discussed disabilities, and I told him my story. He said, remember one thing Boyle, it's ability, not disability, if I taught you anything, remember that. We talked a couple more minutes then agreed to stay in contact. It got to me people, ability not disablilty. I had to hear that from an old DI of mine, so, I'm just passin it on. Semper Fi.
RE: [TMIC] about Jude (Hey Jude)
PATTI - BE SURE TO LET JUDE KNOW THAT WE ALL DO REMEMBER HER AND MISS HER TERRIBLY. WHEN I FIRST FOUND THE TM CLUB A LITTLE OVER 2 YEARS AGO, I KNOW IT SAVED MY SANITY. I FELT SO ALONE AND NO ONE KNEW WHAT MY BODY WAS GOING THROUGH. I WAS SO DEPRESSED, I WAS THINKING OF PAINLESS WAYS TO END IT ALL. WHEN I FOUND THIS SITE, BOTH JUDE AND PAM WERE POSTING QUITE OFTEN AND THEY RESPONDED TO MY NEEDS AND MADE ME FEEL THERE WAS HOPE. I FOUND PEOPLE WHO COULD ANSWER MY QUESTIONS AND MADE ME LAUGH, ESPECIALLY PAM AND HER EMAIL JOKES SHE SENT ME EACH DAY. OH, HOW I MISS HER AND JUDE. WE WENT THROUGH PAM'S FOOT SURGERY AND ALL OF JUDES PROBLEMS WITH HER DOCTOR AND HOSPITAL WITH HER. PLEASE LET JUDE AND DAVE KNOW WE ARE PRAYING FOR THEM BOTH, AND TELL JUDE WE WILL BE WAITING FOR HER TO BE ABLE TO SEND US A POST. TIAD (FOR PAM) PATTI - WISCONSIN -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Wednesday, July 21, 2010 8:23 PM To: tmic Subject: [TMIC] about Jude (Hey Jude) I talked with Jude's husband, David, this evening after receiving a message from him that she is in a hospice program. David said she went to a hospice camp for ten days and came home feeling better last week. Then she woke up during her first night home with a headache and has gone down hill from there. David said Jude has not been talkative lately, but I asked if I could visit with her tomorrow just to sit with her. I'm planning to visit in the afternoon. The last time I heard from Jude was the message that she sent Does anyone remember Jude? Patti - Michigan
RE: [TMIC] about Jude (Hey Jude)
PATTI THANKS FOR KEEPING US INFORMED. I HAVE BEEN SO WORRIED ABOUT JUDE. I HAVE BEEN SENDING HER E-MAILS BUT DON'T RECEIVE ANY REPLIES. I HAVE BEEN SO AFRAID EACH TIME I GET AN E-MAIL WITH JUDE IN THE SUBJECT. I HAVE BEEN AFRAID THAT THINGS ARE NOT GOING WELL FOR HER. SHE HAS BEEN THROUGH SO MUCH. I WILL KEEP PRAYING FOR HER AND DAVE, BUT IT DOESN'T LOOK GOOD FOR HER. WE CAN ALWAYS HOPE FOR A MIRACLE. SHE SURE DESERVES ONE. PATTI - WISCONSIN -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Wednesday, July 21, 2010 8:23 PM To: tmic Subject: [TMIC] about Jude (Hey Jude) I talked with Jude's husband, David, this evening after receiving a message from him that she is in a hospice program. David said she went to a hospice camp for ten days and came home feeling better last week. Then she woke up during her first night home with a headache and has gone down hill from there. David said Jude has not been talkative lately, but I asked if I could visit with her tomorrow just to sit with her. I'm planning to visit in the afternoon. The last time I heard from Jude was the message that she sent Does anyone remember Jude? Patti - Michigan
RE: [TMIC] OT - need prayers after seeing video will understand why
BERIE MY HEART GOES OUT TO YOU AND YOUR FAMILY. IT IS SO DEVESTATING TO LOSS EVERYTHING. THANKFULLY, THEY WERE NOT HURT. I ONLY HOPE THEY WERE COVERED BY INSURANCE. IF THEY HAD GOOD COVERAGE SOME INSURANCE COMPANIES PAY YOUR LIVING EXPENSES, ETC. I WILL PRAY FOR YOU AND YOUR FAMILY. PATTI - WISCONSIN From: Bernard Pelow [mailto:bpe...@austin.rr.com] Sent: Sunday, July 18, 2010 3:03 AM To: TMIC Subject: [TMIC] OT - need prayers after seeing video will understand why Yesterday my ex wife and daughters duplex went up in flames. It started in their neighbors part, unknown origin as of right now as to the cause. Please keep them in your prayers, Red Cross has them in a hotel for 5 days and then they are on their own. It was a total loss, and that was their car too that was melted to nothing. Both are disabled; Sara has auto immune like me, Sally my ex wife lost 2/3's of her right lung and both breasts to cancer and they are worried it is in her lymph glands. And now this... Life is cruel... http://www.youtube.com/watch?v=-N93sIqERB0
RE: [TMIC] Baclofen Dosage
AFTER 2 YEARS, I STILL HAVE BLADDER BOWEL PROBLEMS. I HAVE NOTICED A FEELING THAT I CAN'T DESCRIBE. IT IS NOT THE FEELING I HAD WHEN I HAD TO GO POTTY BEFORE TM, BUT A FEELING OF SLIGHT CRAMPING OR DISCOMFORT RIGHT WHERE THE BLADDER IS. THAT TELLS ME I HAVEN'T GONE POTTY FOR AWHILE, SO I BETTER DO IT NOW. IF I DON'T I AM SORRY. ALSO, I WAKE DURING THE NIGHT WITH THE SAME FEELING SO I HAVE TO GET UP TO GO. I HAVE TO GET UP AT LEAST ONCE DURING THE NIGHT, SOMETIMES TWICE. I STILL WEAR PADS DURING THE DAY AND NIGHT. I WEAR SPECIAL NIGHTIME PADS. AT TIMES I AM SOAKED AND TIMES I AM PRACTICALLY DRY. THE BLADDER PROBLEMS ARE WHAT REALLY GET ME DEPRESSED. I AM ALSO PRONE TO GET UTI'S A LOT. I AM LUCKY I HAVEN'T HAD ONE LATELY, AND WILL PROBABLY BE SORRY I JUST SAID THAT. HOPE THIS INFO HELPS. PATTI - WISCONSIN -Original Message- From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Sunday, July 11, 2010 5:23 PM To: Pieter and Heather; Patricia Cooley; pjv1...@chartermi.net; 'tmic' Subject: Re: [TMIC] Baclofen Dosage Heather, your comment about the bladder reminds me. I wanted to ask how many of us still have bladder problems after years of TM.I certainly do. Will you guys please comment? Janice -- From: Pieter and Heather pieterheat...@shaw.ca Sent: Saturday, July 10, 2010 12:23 PM To: Patricia Cooley patticoole...@gmail.com; pjv1...@chartermi.net; 'tmic' tmic-list@eskimo.com Subject: Re: [TMIC] Baclofen Dosage Patti - Wisconsin, I take it to help with the muscles spasms and it helps relax the muscles in my legs. Apparently it helps relax the bladder as well. Heather in Calgary - Original Message - From: Patricia Cooley patticoole...@gmail.com To: pjv1...@chartermi.net; 'tmic' tmic-list@eskimo.com Sent: Saturday, July 10, 2010 9:09 AM Subject: RE: [TMIC] Baclofen Dosage I HAVE A QUESTION TO ALL OF YOU TAKING BACLOFEN. WHY DO YOU TAKE IT AND WHAT DOES IT HELP. I MENTIONED TO MY NEURO AND HE SAID IT WOULDN'T BE OF ANY BENEFIT TO ME. SINCE I MOVED AND WILL HAVE TO CONNECT WITH A DIFFERENT NEURO, I WILL DISCUSS IT WITH HIM WHEN I DO. THANKS FOR YOUR HELP. PATTI - WISCONSIN -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, July 10, 2010 6:22 AM To: tmic Subject: [TMIC] Baclofen Dosage I take 10mg Baclofen every 8 hours. This amount causes the least amount of mental confusion and drowsiness. Patti - Michigan
