Re: [TMIC] December Birthdays
HAPPY BIRTHDAY to all those born in December. Cheryl On Monday, December 2, 2013 8:59 AM, Barbara H. barbara...@gmail.com wrote: Happy birthday to those celebrating in December! 12-2 Meghan (bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.com) 12/3 Janice (jannic...@gmail.com) 12-3 Wim from Holland (wim_from_holl...@hotmail.com) 12- 4 Jan Burgess (ja...@rogers.com) 12-7 Patti in Wisconsin (patticoole...@gmail.com) 12-8 Lori Malloy (jorlcummi...@earthlink.net) 12-15 Alton Ryder(a-ry...@comcast.net) 12-18 Rod Jenke (rktje...@chariot.com.au) 12/23 Roger Pratt (r.c.pr...@frontier.com) 12-25 Gilly (Also gillycl...@yahoo.com.au, and trinketgi...@gmail.com), (mingalett...@activ8.net.au) 12-27 (subers...@msn.com) 12/31 Janet (j.d...@shaw.ca)
[TMIC] birthdays
HAPPY BIRTHDAY to all those born in August! Cheryl
[TMIC] July
HAPPY BIRTHDAY to all those members born in July! Cheryl
[TMIC] birthdays
HAPPY BIRTHDAY to all those born in June. Cheryl
[TMIC] getting emails
Hi, I have 8 emails in my inbox and 7 in my spam folder! This makes no sense to me. Cheryl
[TMIC] birthdays
HAPPY BIRTHDAY to all those born in May. Cheryl
Re: [TMIC] Shingles vaccination
Hi Dalton, I don't like to think of you being a test or guinea pig to see what happens. Especially since you have had so many problems with seizures, etc. Plus, everyone reacts differently. I chose not to get the vaccine. Who knows how it will work with the meds I take for various conditions. I have enough on my plate with tm, cancer, and other health concerns. Cheryl From: Dalton Garis malugss...@me.com To: I.WHIDDETT i.whidd...@sky.com; tmic-list@eskimo.com tmic-list@eskimo.com Sent: Tuesday, April 30, 2013 5:35 AM Subject: Re: [TMIC] Shingles vaccination It might be that, A better question is whether having TM and taking all these medications actually suppresses or even eliminates the threat from Shingles. Because on this side of the Pond we also are getting bombarded with advertisements advising seniors to get the inoculation. Shingles is another auto-immune disease in the Herpes-Simplex family, is that right? And TM is also an auto-immune disease similar to MS, correct? Then, accordingly, perhaps getting the Shingles vaccine might even suppress some TM symptoms, rather than risking an aggravation of symptoms. That would depend, of course, on how the vaccine actually worked to achieve the desired result. I will use myself as a test, if you all would like, and see what happens, if you can wait a month or so for any possible developments. I am retired and spend my days writing and some lecturing and have only domestic-type chores, so the risk of a life-degrading event, even were a flair-up to occur, is rather limited. Dalton Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: I.WHIDDETT i.whidd...@sky.com Date: Tuesday, 30 January 2013 2:52 AM To: tmic-list@eskimo.com tmic-list@eskimo.com Subject: [TMIC] Shingles vaccination Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 29 Apr 2013 23:52:16 -0700 (PDT) From September this year, UK over 70s are to be offered shingles vaccination. Does anyone have an opinion as to safety or otherwise, please? Past experience tells me my neurologist will give his usual helpful 'your choice' advice! Iris Sent from my iPad
Re: [TMIC]
My brother often travelled to Nashville when he was a coach bus driver. He always said it's a great place to go; glad you had a good time. Cheryl From: Janice Nichols jan...@centurytel.net To: tmic-list@eskimo.com Sent: Monday, March 25, 2013 11:17 PM Subject: [TMIC] Hi!! Just letting you know that we just got back from a vacation in Nashville, Tennessee. What a great time! I want to thank you, Rick, for the suggestions to see in Nashville. It is quite a city! Things seem pretty quiet on our website. Everybody doing okay? How about you Jude? Doing better? How about you Mary Jaschob – does your husband have the implant in yet? How is it going? I feel like I have been going a really long time from you guys. Hope all are doing well. Janice
[TMIC] question for Jude
Hi, Just checking to see if you got the TMA address book. Cheryl
Re: [TMIC] RE: TMIC Membership Directory
Jude, You can have mine from 2011. Just let me know your address and I'll send it. Cheryl From: heyjude48...@aol.com heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, March 5, 2013 11:09 PM Subject: [TMIC] RE: TMIC Membership Directory Hi Gang, If there is anyone out there who happens to have an extra TMIC Directory may I please have it? I don't care if it's a few years old. If you could see it in your heart to send it to me I will surely appreciate it. I called sandy Siegel and asked him to send me one but he said that the board asked him not to send them out anymore so I am left without one. I can't seem to access the TMA site. So if you would help me I will be a happy camper. Thank you, Jude Michigan
[TMIC] birthdays
HAPPY BIRTHDAY to all those born in March. Cheryl
Re: [TMIC] Hi group.
Hi Dennis, Welcome to the group no one wants to join. If you have any questions, just ask. This is a great bunch of people of all ages. Cheryl From: dennis rabalais dennis_rabalais20...@yahoo.com To: LIST tmic-list@eskimo.com Sent: Thursday, February 14, 2013 1:54 AM Subject: [TMIC] Hi group. Hi group. My name is Dennis Rabalais. I am 39 years old and I have TM. I was paralyzed at 29 years old. It started out with West Nile virus and inturn started the onset of TM. I 've lived in nursing homes since then. It's been very troubling, something I cannot understand why it happened, or even how. I've gone through major depression and still going through it. Well, that's my story. Nice to meet all y'all. God bless and have a great night! Sent from Yahoo! Mail on Android
Re: [TMIC] February birthdays
HAPPY BIRTHDAY to all those born in February! Cheryl From: Barbara H. barbara...@gmail.com To: tmic tmic-list@eskimo.com Sent: Friday, February 1, 2013 1:49 AM Subject: [TMIC] February birthdays Happy Birthday to those born in February! Please send any additions or corrections to tmic-list@eskimo.com. 2-1 Jeanne Rushton (jrush...@columbiaenergyllc.com) 2/2 Ursula (uma...@t-online.de) 2/2 Lisa in TN (lsim...@aol.com) 2-5 Tita in Delaware (t-...@usa.com) 2-6 Barbara Alma (balmat...@aol.com) 2-7 Barbara in Texas (babbsie1...@yahoo.com) 2/11 Mary (mster...@yahoo.com ) 2-11 Deb Casey (casey...@myway.com) 2/15 Jill (jillybean60...@yahoo.com) 2-17 Joan Fink (2-17 mafi...@yahoo.com) 2/26 Patti - Michigan (pjv1...@chartermi.net) 2/27 Cindy (rdavi...@san.rr.com)
[TMIC] Re: [TM-HA] Where is everyone? There used to be a lot of...
I never left the tmic site but most moved to facebook. I hate facebook and wish everyone would come back. I miss them. Cheryl From: Judith Gail Hoops notification+zrdooofho...@facebookmail.com To: TM-HA tmh...@groups.facebook.com Sent: Tuesday, January 22, 2013 2:32 PM Subject: [TM-HA] Where is everyone? There used to be a lot of... Facebook Judith Gail Hoops posted in TM-HA Judith Gail Hoops 2:32pm Jan 22 Where is everyone? There used to be a lot of people here every day. Are we so jaded that we have nothing to talk about? Would you mind dropping in at TMIC? We are down to 13 members and need more input on the topics we are talking about. The address is: tmic-list@eskimo.com and to sign up you need to first send an email to tmic-list-requ...@eskimo.com, with the word Subscribe in the space under the address in the topic line. I love you. ♥ View Post on Facebook · Edit Email Settings · Reply to this email to add a comment.
Fw: [TMIC] Re: Need your input
I have had a flu shot every year for over 25 years. Also had a pneumonia shot. See my PCP every 3 months; he takes care of my meds. I am having a lot of bone pain from my metastatic breast cancer that I will speak with my oncologist about when I see her in February. Trouble is the treatment also causes bone pain. I hate facebook! Miss the old TMIC group. Cheryl - Forwarded Message - From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; snow121...@hotmail.com Cc: tmic-list@eskimo.com Sent: Monday, January 21, 2013 6:52 PM Subject: Re: [TMIC] Re: Need your input I have taken the flushot for the past 15+ yearsnever got the flu.and I do not believe getting TM had anything to do with any kind of immunizations. I also see my regular MD twice a year minimum and he does prescribe most of my meds. However I see my neurologist at least once per year to insure that I am up to date with the best pain killers and meds available This year he is doing a baclofen injection into my spine to see if a baclofen pump will be beneficial and he also prescribed 2 oz per month of marijuana which I know is beneficial Finally I would love to see thislist get busy again.I hate going on facebook! Rob in New Jersey.. -Original Message- From: Heyjude48458 heyjude48...@aol.com To: snow121100 snow121...@hotmail.com Cc: tmic-list tmic-list@eskimo.com Sent: Mon, Jan 21, 2013 3:03 pm Subject: [TMIC] Re: Need your input Hi Carol, Thank you for answering me...I'm trying to rev up the TMIC list again. Anything you want to know or questions you need answered please email me. It's important that you write in from time to time. Love you, Jude Michigan Learn from yesterday, Live for today, Hope for tomorrow. Albert Einstein In a message dated 1/21/2013 12:42:34 P.M. Eastern Standard Time, snow121...@hotmail.com writes: Hey Jude! I have received a flu shot every year, except the first year, after the onset of TM. I became sick in June 2005. I have not noticed any complications. I think we all have to figure out the pros and cons. I have Type 2 Diabetis, heart disease (I had 6 bypasses when I was 49 years old). Yes, 6! I had 2 bypasses in 2 of the arteries. I don't know about now, but then I was told it would be better to make 2 shorter graphs than 1 longer one. Anyway, along with my doctors, my daughter an RN and my son-in-law a doctor, I have made the decision to get flu shots annually and pneumonia vaccine every 5-7 years as recommended. When I lived near Chicago, my neurologist was Dr. Joy Derwenskus at Northwestern where she was also an associate professor. Now that I live closer to Indianapolis, I see Dr. Margaret Frazer, in Carmel. She is with JWM Neurology and also works in research. As much as you can enjoy a doctor, I have enjoyed seeing both of them. I see no fault with them just get exasperated with all the unknowns of TM. Carol Worrying does not empty tomorrow of its troubles; It empties today of its strengths. From: heyjude48...@aol.com Date: Mon, 21 Jan 2013 11:53:38 -0500 Subject: Need your input To: samm...@fidmail.com; ginnahamil...@yahoo.com; k...@col.gen.nz; xring...@mwt.net; snow121...@hotmail.com; grace...@gmail.com; w2sm...@aol.com; r...@aol.com; thenavigato...@aol.com CC: tmic-list@eskimo.com; heyjude48...@aol.com Hi ladies and gentleman, This is Jude from TMIC. We are having two discussions and need your input. First, we are talking about the need for a neurologist when someone has TM, and the other topic is the need for flu shots, have you had them and what does your Dr. say about them. There has been quite a bit of activity lately, but we need more. Will be happy to answer any questions you have or talk about any topics you can think of. I miss hearing from you and hope you write in soon. In case you have forgotten the site it is: tmic-list@eskimo.com . If you need to receive the emails the address is: tmic-list-requ...@eskimo.com I love you all, Jude Michigan, USA =
[TMIC] neurologist
I haven't seen a neurologist in over 15 years. What's the point? My PCP orders my baclofen. Cheryl
Re: [TMIC] neurologist
My neurologist saw me less than 24 hrs after my tm attack; he quickly diagnosed me, gave me IV steroids for 7 days, saw me every day in rehab. I saw him every 3 months for over a year. Then I spoke with PCP about baclofen, and never went back.He was charging $300 per office visit to my insurance, plus my $15 co-pay.From: Tracey L. Black tracey.bl...@hnoins.com To: "rn11...@yahoo.com" rn11...@yahoo.com; tmic tmic-list@eskimo.com Sent: Thursday, January 17, 2013 10:20 AM Subject: RE: [TMIC] neurologist I agree Cheryl. My daughter, Ashlee, hasn’t been to a neuro since she was at KKI in Baltimore in 2006 and even then, they didn’t do any testing or anything on her. He never really even checked in on her while she was there for the 8 week program. Her PCP orders her Oxybutnin and if she gets a sinus infection or something along those lines, she goes to the PCP or Ready Care. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency PO Box 3039, 132 Buford Avenue Gettysburg, PA 17325 Phone: 717-334-6741, x 29 Fax: 717-334-3414 Office hours: 8:00 a.m. - 5:00 p.m. My hours: 9:00 a.m. - 5:00 p.m. P Please consider the environment before printing Insurance coverage cannot be bound or altered without confirmation from a licensed agent.If you do not hear from us within 1 business day, please re-contact us in case your information has not be retained. This message contains confidential information for use only by its intended recipients and may contain information that is proprietary, privileged, and protected under the law (including Gramm-Leach-Bliley and HIPAA/HITECH). If you are not the named addressee, you are hereby notified that any use of, distribution of, copying, or reliance upon the contents of this e-mail is strictly prohibited and may result in criminal or civil penalties. Please notify the sender immediately by e-mail if you have received this by mistake and delete this e-mail from your system. Thank you. From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: Thursday, January 17, 2013 10:07 AM To: tmic Subject: [TMIC] neurologist I haven't seen a neurologist in over 15 years. What's the point? My PCP orders my baclofen. Cheryl
Re: [TMIC] Seeing a Neurologist
Your case is totally different from mine. Other than having increased burning, I have remained the same since onset 8/13/95. It is just a complete waste of my insurance and the co-pay for me. Obviously, if I should experience changes, I would go to the neurologist. From: Roger Terese Pratt r.c.pr...@frontier.com To: tmic-list tmic-list@eskimo.com Sent: Thursday, January 17, 2013 1:48 PM Subject: [TMIC] Seeing a Neurologist I strongly suggest that it is beneficial to being under the care of a KNOWLEDGABLE neurologist even if you only see them once of twice a year. To give a reason for my suggestion, I include some of my personal history. Seizure disorder, complex partial first appeared on 10/2/92 diagnosed by Dr. Sconzert on 10/20/92 On 10/2/92 I passed out in a barber’s chair while getting my hair cut. I was transported to the hospital by ambulance and was later referred to a neurologist, Dr. Sconzert, by my primary care physician. He diagnosed me as having a seizure disorder and started me on a regiment of anti-seizure medication. I began at that time to have mild seizures quite frequently. These seizures were major muscle spasms, but without passing out. I went through about several medications until one was found that I wasn't allergic to and that would control my seizures (Felbatol, Tegretol, Dilantin, Depakote, Trileptal. All caused rash). In May of 1994 I had to go to the hospital emergency room three times in close succession for very severe seizures (whole body muscle spasms) that just wouldn’t quit. When I finally was able to get in to see Dr. Sconzert, my wife, Terese, indicated that she didn’t think that he was taking good care of me and he asked her to leave his office. He finally agreed that an MRI might be useful in determining what was going on with me. He later apologized to Terese when my diagnosis was changed to transverse myelitis. Transverse myelitis, C2-C3-C4 A lesion was detected on my spine at C2-C3-C4 by MRI on 6/10/94 (Dr. Sconzert). He referred me to Dr. Sen, a neurosurgeon, as he thought this might be cancer. A follow-up MRI was done on 6/13/94 and a lumbar puncture 6/16/94 (Dr. Sconzert). When my left arm became paralyzed and I became unable to get out of bed and walk, I was transferred to Harborview Medical Center 6/20/94 where Dr. Winn diagnosis me with having MS or TM. I underwent three days of steroid IV therapy and was sent home to Dr. Sconzert where he gave a final diagnosis of transverse myelitis. Multiple MRIs were done after that for several years. My symptoms include: · Nerve pain, most pronounced on entire right side and left arm and hand, with decreased sensation of hot and cold on right side · Decreased motility in hands · Fatigue · Occasional muscle spasms, cramping · Erectile dysfunction, decreased bladder sensation, constipation · Major affective disorder, depression, recurrent I have tried multiple medications for pain. Most didn’t work to well. They include: Neurontin, Ultram, Zonegran, Lamictal, Keppra, , Lortab (Hydrocodone, caused severe anger when tried a second time, did not help pain). Darvecet-n was the only pain medication that seemed to work but it was taken off the market as it seemed to cause increased tendencies toward suicide in young men. I now take Lyrica (which helps somewhat), Cymbalta (and anti-depressant that is supposed to help with nerve pain, and Zanaflex, a muscle relaxant. Dr. Sconzert left the Tri-Cities after I had seen him for about 2 years or so. Now began my search for a new neurologist. After going and talking to many of the neurologists in the Tri-Cities, most who had never even heard of transverse myelitis, I found Dr. Zhang, a Chinese lady who specialized in MS. Mononeuritis multiplex(2010) by Dr. Chapin In mid-February 2010 while on vacation in Mexico , my right foot started hurting. “More fun and after-effects from my Transverse Myelitis,” I thought, and I resolved to see my neurologist when we got home. I had recently stopped a medication she had put me on for nerve pain that had horrible side effects and also had what seemed to be a spider bite on my right leg. “Something minor,” I thought. By the time I got to the doctor, my right foot started to swell. She had an ultrasound done of the blood vessels in my legs to check for blood clots, and then my left foot and ankle started to swell. Then my right hand went numb and I lost use of two of my fingers. As pain and swelling increased, I went through five MRIs of my spine and brain, a spinal tap, other miscellaneous tests, and handfuls of pills (mainly pain pills that just made me sicker). After much delay, my doctor sent me to an MS specialist in Seattle , who confirmed that my doctor was, as she had said before sending me “clueless”, and that she (the doctor in Seattle ) didn’t know what it was either. By this time I started having
[TMIC] January birthdays
HAPPY BIRTHDAY to all those born in January! I hope you have a great year. Cheryl
[TMIC] holidays
Merry Christmas and a Happy New Year to all! Cheryl
[TMIC] Dec birthdays
HAPPY BIRTHDAY to all those born in December. Cheryl
[TMIC] OT suspicious email
Hi Everyone I got an email from Kevin Weilacher at 10:30 pm 11/12. There was a link in it to an msnbc job.com local I received a similar letter from my brother this summer,didn't open the link. When I contacted him ,he said he never sent it. Turns out his computer was hacked. I tried to email Kevin,and my email was blocked from being sent, saying there was suspicious activity on that account. Kevin,let me and the group know if this is from you. Cheryl
[TMIC] O.T. November birthdays
HAPPY BIRTHDAY to all those born in November! Cheryl
[TMIC] Birthdays
HAPPY BIRTHDAY to all those born in October!
Re: [TMIC] September Birthdays
HAPPY BIRTHDAY to all those born in September! Cheryl From: Barbara H. barbara...@gmail.com To: tmic tmic-list@eskimo.com Sent: Friday, August 31, 2012 11:50 PM Subject: [TMIC] September Birthdays Happy Birthday to those born in September! Please send any additions or corrections to tmic-list@eskimo.com/ This month we also remember Pam (montzma...@aol.com), who passed away a few years ago, She was a friend to many. Her birthday was 9/9. 9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.com ) 09-06 Jake DeGrand (judidegra...@yahoo.com) 9-8 Mary Davidson (keebe...@aol.com) 9/8 Terry Parker (parkersw...@aol.com) 9/12 R. J. Rankin (rj_ran...@yahoo.com) 9-16 Mary Eden Cochran (coch6...@bellsouth.net) 9-17 Bill Wimberly- (bwimbe...@bellsouth.net) 09/20 Rob Pall (robthe...@aol.com) 9-23 Karen (Mushroo) (mush...@juno.com)(mushr...@hotmail.com) 9-24 Suzi in Seattle (ss1...@aol.com) 9/26 Allen Rucker a...@allenrucker.com 9/30 Patti Enstrom (pge...@aol.com )
[TMIC] OFF TOPIC-health message
HEALTH MESSAGE As I was lying in bed pondering the problems of the world, I rapidly realized that I don't really give a rat's hiney. It's the tortoise life for me! 1. If walking is good for your health, the postman would be immortal. 2. A whale swims all day, only eats fish, drinks water, and is fat. 3. A rabbit runs and hops and only lives 15 years. 4. A tortoise doesn't run and does nothing, yet it lives for 450 years. And you tell me to exercise?? I don't think so. I'm retired. Go around me.
[TMIC] TV show
My friends I am sorry for posting about the show; usually I respond only to the letter writer, not the tmic group. I'm sorry,and now I'll drop it and move on,as I hope everyone else will. Cheryl
Re: [TMIC] Push Girls
Hi Akua, Angela's husband (Dustin Nguyen)went back to Viet Nam where he was born,mostly to do martial arts films She went with him,but decided to leave because anyone with a disability is treated poorly and looked down on. She left him by choice,then seemed upset when he visited and said he is seeing someone. They were married over 10 years,and are getting divorced.She as well as Tiphany were models,so that's how she probably paid for the stem cell treatment. I noticed they are all attractive,drive new cars,etc. They don't need public transportation. None of them seem to really worry about money,although Angela is trying to get back into modeling. Where did you see that Auti sold her body? From what I've read she was a dancer with several famous hip hop stars in the early 90's.She had just performed with LLCoolJ at the Grammy awards show in 1992 when she had her car accident. As most reality shows are far from realistic,this one fits right in with the genre. Cheryl From: a...@artfarm.com a...@artfarm.com To: tmic-list@eskimo.com Sent: Thursday, August 9, 2012 10:42 AM Subject: Re: [TMIC] Push Girls Auti is the former dancer who crashed after selling her body for money. She's a paraplegic. Angela, the quadriplegic, a former model, had those stem cell treatments in Panama ( I think) which restored she said lots of function. She had the money to undergo this back then -- about a decade ago. I sure wish I could afford it! Getting the able bodied population to look at the population that uses w/c is extremely important in order to further the cause of things we need, ie public transportation, support, access to jobs, good medical care, etc. I agree, but this show doesn't help do that. No one is shown trying to get on a bus, (or any public transportation for that matter) or having/trying to roll down unshoveled streets or getting to a corner where the snow and slush is piled high so you can't cross the street -- even if there are curb cuts. Or getting on or off a sidewalk without curb cuts….. Angela (the quad) did say a bit about the cost of her care in one episode and how that was driving her to try and find a way to make money and re-enter modeling-- not a pragmatic option for 99.9% of the general population, never mind the disabled. And it seems her husband, an actor, left her I'm glad your daughter found something in it. Even waste can be used as fertilizer. Doesn't mean it isn't dreck. But since I've never heard of ( nor probably will I ever hear) push boys , i chafe against the nomenclature push girls -- which, despite their affirmations, belittles and diminishes. Girlification doesn't make decision makers take your needs or your situation seriously. Akua On Aug 9, 2012, at 9:50 AM, Mary Anne Egan wrote: You raise some valid pointsmy daughter is ten she has been paralyzed since she was an infant. We met the youngest member of this cast and she was so excited. I appreciate that being on TV affords liberties the rest of us do not have. But to my daughter the name girls softens it for her to appreciate more than woman and I would normally be the first to argue about calling a woman a girl. In her case it is useful. As for the ability of Auti the quad, what I saw was that she has help that gets her dressed and that she also had some stem cell treatments in South America(?), nonetheless to me this is all about baby steps. Getting the able bodied population to look at the population that uses w/c is extremely important in order to further the cause of things we need, ie public transportation, support, access to jobs, good medical care, etc. No one would put on a show about quads who were totally dependent for care because people would not want to watch it. In doing it this way, many folks, who are otherwise not exposed, are getting to see how people who use chairs, are in fact people first. The logistics of how they present this is always going to be hollwood-ized it is no different than any other show/reality show. I am sorry it upsets you but I do see the benefit of raising awareness and the ability for my child to see an adult female who is happy, and enjoying life despite the obstacles she faces, it is incredibly empowering. My daughter has not seen the show it is too grown up, but when she met the youngest member of the cast, she felt empowered and we watched some bios on line. The woman talked about what a push girl is and how it means to push through when things are tough, we have used that many times and she gets empowered by it. My daughter only crosses her legs by accident when her legs spasm, in the night mostly and she is all tangled up in her cath/drainage bag...not exactly the hollywood moment for the show! who knows this show may enable adults in our community to be willing to have my daughter over for a play date without being afraid. That
Re: [TMIC] August Birthdays
HAPPY BIRTHDAY TO ALL THOSE BORN IN AUGUST! Cheryl From: Barbara H. barbara...@gmail.com To: tmic tmic-list@eskimo.com Sent: Wednesday, August 1, 2012 12:35 AM Subject: [TMIC] August Birthdays August is one of the biggest birthday months for TMers! Happy Birthday to my fellow August birthday celebrants! Please send any additions or corrections to tmic-list@eskimo.com. 8/1 Peachi (pkeene2...@aol.com) 8/1 Cindy McLeroy (cindymcle...@socal.rr.com) 8- 1 Stacy Firth (safi...@dow.com ) 8-3 Larry Throne (lbthr...@hotmail.com ) 8-10 Sean Indiveri (sindiv...@hotmail.com) 8-11 Raylene Gökeri (mrs_gok...@yahoo.com) 8-11 Michelle Maricic (mmari...@aol.com) 8-11 Dalida S. Ortiz de Garcia (py...@yahoo.com) 08/17 Sandra (Harth) Brassil (sbras...@aol.com) 8-17 Kim (jnks...@huntel.net) 8-19 Saroj (sarojkumar...@gmail.com) 8-21 Barbara H. (barbara...@gmail.com) 8-23 Cole (neilandwe...@rogers.com) 8-29 Kathleen (kathleen.kar...@gmail.com) 8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com )
[TMIC] reply to emails
Hi, I want to thank Dalton,Iris,and Pat for their replies. It's hard to believe I welcome this pain,but it shows that changes can occur after a long,long time with tm. Today my sister and brother in law took me grocery shopping. I sit in the back seat on the driver's side. I can't lift my left leg into the car,and when my bro in law lifted it,it hurt! The places that my cat scratched ache,but look clean. It still amazes me that feeling has returned. Never give up my fellow tmer's! Cheryl
[TMIC] UNBELIEVEABLE
Hello my friends, On 8/13 I will have my 17th anniversary of having tm. I have been numb from T4 to toes since that time, except for a small area on my left thigh. On the 3rd of July,my cat ran toward me to jump into my lap. She missed, and in the process gave me 2 fairly deep scratches in my lower left leg. After being numb for all this time, I felt the pain of the scratches,and I can actually tell what is touching my entire left leg! I am amazed at this. It is something I never expected. I have an ulcer on the bottom of my right heel,and went to a wound clinic; doc ordered VNA for dressing changes. After being evaluated by nurse, she had PT and OT see me.I don't know if this is related or not. I never thought I'd be happy to have pain! I hope you are all doing well. Cheryl
[TMIC] June birthdays
HAPPY BIRTHDAY TO ALL THOSE BORN IN JUNE Cheryl
Re: [TMIC] Is anyone here?
Hi Rob, I'm still here,but seldom get posts from the tmic site. Sadly,it seems almost everyone has moved to facebook. I'm not a fan of that site,so I just don't post much anymore. If I post on tmic, I get few replies. I do wish facebook would go away (fat chance of that) so we could have our group back. I miss everyone! There was a nice feel to our tmic group. I hope you are doing okay. Cheryl From: Robert Pall robthe...@aol.com To: tmic-list@eskimo.com Sent: Thursday, May 17, 2012 8:33 AM Subject: [TMIC] Is anyone here? Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
Re: [TMIC] Is anyone here?
Hi Frank, Wish I could do any of those. Can't even sit outside for more than 10 minutes since any changes in type of chair causes increased spasms and even tighter banding. I'm happy for those that can go out and enjoy themselves. Cheryl From: fr...@franksheldon.com fr...@franksheldon.com To: Butcher, Bernie (SFS) bernie.butc...@honeywell.com; Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com; Robert Pall robthe...@aol.com Sent: Thursday, May 17, 2012 9:25 AM Subject: Re: [TMIC] Is anyone here? Is anyone here? Actually, some people are outside gardening, some people are working on their boats(getting them ready to be launched for the season), some people have been traveling to and from a graduation, some have been just sitting outside listening to the birds, grass and trees singing songs of spring.. I could go on, and on. pH
[TMIC] cancer vs tm
Hi, As many of you know I was diagnosed with stage IV breast cancer last year (spread to bones). No surgery,radiation,or chemo.Just an anti hormonal pill daily.Just had a PET/cat scan and it is markedly improved. I possibly can survive for years this way. So,I was thinking. If I could have a choice,what would I choose? I would keep the cancer. I have such terrible burning in my legs,the banding around my trunk is awful,and I'm just so sick of this crap. I hate having no real life anymore;wake up with pain,suffer all day,and go to sleep in pain. Nothing helps. I know that those of you with tm will understand this; I think if I posted this at the breast cancer sites I belong to,they would think I'm crazy. Thanks for listening. Hope you are all doing well. Cheryl
[TMIC] MAY
HAPPY BIRTHDAY to all those born in May! Cheryl
[TMIC] O T April birthdays
HAPPY BIRTHDAY to all those born in April! Cheryl
[TMIC] March birthdays
HAPPY BIRTHDAY TO ALL THOSE BORN IN MARCH! CHERYL
[TMIC] February Birthdays!
HAPPY BIRTHDAY to all those born in February Cheryl
Re: [TMIC] 35 Things you probably don't know about TM
Thanks John. This is a great list for newbies. Maybe because I've had tm for almost 17 yrs,I knew these facts. I'm just sad that I do know these,and that a lot of them pertain to me. Cheryl From: john snodgrass jcs...@yahoo.com To: transverse myelitis tmic-list@eskimo.com Sent: Tuesday, January 24, 2012 10:47 PM Subject: [TMIC] 35 Things you probably don't know about TM seen this on facebook and didnt know if it was passed to this group or not. A list to share with Dr's and family to help inform them about our condition. john 35 Things you probably don't know about TM 1. It is a cousin disorder to Multiple Sclerosis. http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/project_restore/conditions/ 2. Fairly rare disorder, only 2-5 people per million get it. 3. Approx. 1400 new cases a year in the U.S. http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm 4. Roughly 33,000 people with TM in U.S. http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm 5. Transverse myelitis occurs in adults and children, in both genders, and in all races. http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm 6. Can be Acute (happening within hours) or Subacute (happening within days or weeks) 7. The inflammation that causes such extensive damage to nerve fibers of the spinal cord may result from viral infections, abnormal immune reactions, or insufficient blood flow through the blood vessels located in the spinal cord. Transverse myelitis also may occur as a complication of syphilis, measles, Lyme disease, and some vaccinations, including those for chickenpox and rabies. 8. Can be Idiopathic (no known cause) 9. Typically a one time occurrence but there are some that have recurrent TM. 10. 10% or better possibility of developing Multiple Sclerosis but the possibility is fairly low if there is a normal brain MRI at TM onset...http://www.ncbi.nlm.nih.gov/pubmed/18080852 11.Most symptoms of TM are identical to MS 12.Prevailing difference between TM and MS is that lesions are on spinal nerve in TM and on Brain in MS. 13.Transverse myelitis is a neurological disorder caused by inflammation across both sides of one level, or segment, of the spinal cord. This damage causes nervous system scars that interrupt communications between the nerves in the spinal cord and the rest of the body. 14. The inflammation and lesion created, is caused by the bodies own immune system attacking the myelin coating of the spinal nerve. 15.The segment of the spinal cord at which the damage occurs determines which parts of the body are affected. Nerves in the cervical (neck) region control signals to the neck, arms, hands, and muscles of breathing (the diaphragm). Nerves in the thoracic (upper back) region relay signals to the torso and some parts of the arms. Nerves at the lumbar (mid-back) level control signals to the hips and legs. Finally, sacral nerves, located within the lowest segment of the spinal cord, relay signals to the groin, toes, and some parts of the legs. Damage at one segment will affect function at that segment and segments below it. In patients with transverse myelitis, demyelination usually occurs at the thoracic level, causing problems with leg movement and bowel and bladder control, which require signals from the lower segments of the spinal cord. http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm 16.About one-third of people affected with transverse myelitis experience good or full recovery from their symptoms; they regain the ability to walk normally and experience minimal urinary or bowel effects and paresthesias. Another one-third show only fair recovery and are left with significant deficits such as spastic gait, sensory dysfunction, and prominent urinary urgency or incontinence. The remaining one-third show no recovery at all, remaining wheelchair-bound or bedridden with marked dependence on others for basic functions of daily living. http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm 17. Four classic features of transverse myelitis emerge: (1) weakness of the legs and arms, (2) pain, (3) sensory alteration, and (4) bowel and bladder dysfunction. http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm 18. Pain is the primary presenting symptom of transverse myelitis in approximately one-third to one-half of all patients. The pain may be localized in the lower back or may consist of sharp, shooting sensations that radiate down the legs or arms or around the torso. http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm 19. Patients who experience sensory disturbances often use terms such as numbness, tingling, coldness, or burning to describe their symptoms. 20. Up to 80 percent of
Re: [TMIC] January Birthdays
HAPPY BIRTHDAY to all those born in January!!\ Cheryl From: Barbara H. barbara...@gmail.com To: tmic tmic-list@eskimo.com Sent: Sunday, January 1, 2012 12:50 AM Subject: [TMIC] January Birthdays Happy Birthday to the New Year's kids from January! Please send any additions or corrections to tmic-list@eskimo.com. 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1-17 Ginna Hamilton (ginnahamil...@yahoo.com) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
[TMIC] meds made in foreign countries
Patti,, I take several meds for high BP and diabetes. One is made in India,and one in Bangladesh. Check your script labels-you might be surprised. Cheryl
[TMIC] ? time for scooter
Hi, Today I went to my granddaughters' school for a Christmas lunch,then to my oncologist for bone strengthening infusion. I'm wiped out and my back is going crazy with spasms. I've decided to try and get a scooter;I just can't walk very much now. The walker just isn't enough now. It's been over 16 yrs with tm,and now I'm fighting the cancer too,and I'm just exhausted. I'll contact my pcp after the holidays,and see if I can get one. Cheryl
[TMIC] December birthdays
Happy Birthday to all born in December! Cheryl
Re: [TMIC] quiet ot
Hi Dalton, I'm so happy the ritalin is helping. The tmic site has been so quiet for a long time; I miss everyone a lot. But,as the saying goes, no news is good news. Cheryl From: Dalton Garis malugss...@gmail.com To: celr...@aol.com; TMIC-LIST@eskimo.com Sent: Monday, November 28, 2011 9:27 AM Subject: Re: [TMIC] quiet ot It has indeed been very quiet. So: Has anyone used Ritalin for seizure control? I get what must be called Brain-lock seizures, where my brain just locks up and I become stiff from head to toe, lose speech and coordination, for some spell of time. That is because the lesion was on the brainstem, the pons, whatever that is. I am trying this Ritalin, and so far the results are good. Dalton From: celr...@aol.com Date: Mon, 28 Nov 2011 09:10:18 -0500 (EST) To: TMIC-LIST@eskimo.com Subject: [TMIC] quiet ot Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 28 Nov 2011 06:13:04 -0800 I hope everyone is ok. It has been very quiet on this site since before Thanksgiving or maybe I am kicked off again. Missing you. Jane/Splendora Tx
[TMIC] OFF TOPIC:Veterans
I salute you for your service to this country. My thanks to each of you, as well as to the brave and dedicated men and women who are still on active duty. You are the personification of patriotism and self-sacrifice for your dedication to this country. This is from today's Dear Abby and expresses my sentiments exactly. Cheryl
[TMIC] OT I'm Home!!
Hi Everyone, I just got home a few minutes ago. Boy it's great to be here! Had to throw out some food,but all in all not too much loss. Mitzi is walking around meowing and sniffing everything. The power box coming down was a true blessing;electrician said the circuit breakers were so bad they could have caused a fire. The house is 43 yrs old. I've had the circuit breakers replaced when needed over the years. Just want to thank everyone for the nice letters sent. Now I'm off to do some laundry. Cheryl
[TMIC] shingles shot
I had shingles over 30 years ago. I know I can get it again,but I won't get the shot. I figure my odds of getting shingles aren't that high. My doc said he'll give it if I want it. As for the flu shot,I've had one every year for as far back as I can remember. Due to tm,I have a very weak cough and I fear even a regular cold. Plus I have diabetes,and now also the Stage IV breast cancer. So,as usual,I'll be getting my flu shot. I've had 2 pneumonia shots over the years,and will get another if my doc thinks I need it. BTW,my tm was probably caused by cat scratch fever. Cheryl,an RN for 21 yrs before getting tm
[TMIC] OFF TOPIC;when in doubt
When in doubt eat cake. When you haven't a clue,add ice cream. Cheryl
[TMIC] spouting off
Hi, I hope no one is offended by the comments I am about to make. Why isn't there housing for handicapped people who are not low income? All the handicapped housing is federally subsidized and there are limits to what you can have for an income.My income is too high for one person and leaves me unable to live in any of these types of housing. Why can't there be a set number of apartments that I could pay the full rent myself to live there? Once my house is ready to sell,I don't know where I'll find an apartment to move to with minimal stairs. I know many of you are having a hard time due to lack of money and help,and that I am very lucky,but it is so frustrating. Cheryl
Re: [TMIC] spouting off
Candy, I can do laundry since I have a laundry room right off my kitchen. My ex husband mows my lawn and plows the snow. My oldest daughter and her husband are doing my house over so I can sell it;they come here on Sat. or Sun. ,and do some cleaning too.. I just feel that I shouldn't be punished for having a good income from my pension and SS. Housing should be available for me. Cheryl From: CANDISKALLEY cakal...@embarqmail.com To: rn11...@yahoo.com Sent: Tuesday, October 4, 2011 11:44 AM Subject: Re: [TMIC] spouting off Cheryl, I'm not offended at all!! I believe that the lmits are WAY TOO LOW! Also, when filing taxes - we are not allowed a special deduction!! Blind people are BUT we have as many, if not more, expenses as a disabled person! I know that financially, I am better off than most disabled BUT I still have a difficult time making ends meet! I need help in doing heavy housekeeping - laundry, cleaning, yard, maintenance - stuff that 5 years ago wasn't a problem but now any one of the chores is a MAJOR undertaking - just 1 load of laundry can take me 3 days! Help doesn't come cheap!! Once again the GREED of the 1% of population is down trotting the other 99%!! SUPPORT THE WALL STREET PROTESTORS!! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. From: rn11...@yahoo.com To: tmic tmic-list@eskimo.com Sent: Tuesday, October 4, 2011 11:31:33 AM Subject: [TMIC] spouting off Hi, I hope no one is offended by the comments I am about to make. Why isn't there housing for handicapped people who are not low income? All the handicapped housing is federally subsidized and there are limits to what you can have for an income.My income is too high for one person and leaves me unable to live in any of these types of housing. Why can't there be a set number of apartments that I could pay the full rent myself to live there? Once my house is ready to sell,I don't know where I'll find an apartment to move to with minimal stairs. I know many of you are having a hard time due to lack of money and help,and that I am very lucky,but it is so frustrating. Cheryl
Re: [TMIC] I haven't been here for a long time
Hi, I've had tm since 8/13/95 and have tight banding all the time. It does get even tighter during stressful times,and I almost can't breathe. It's been awful the past few months. It's the worst part of tm for me,along with the nerve pain. Cheryl in gloomy Easthampton,MA. From: Gary Thomas gbthomas8...@sbcglobal.net To: pjv1...@chartermi.net; tmic tmic-list@eskimo.com Sent: Saturday, October 1, 2011 11:10 PM Subject: Re: [TMIC] I haven't been here for a long time Hi, Patti--I hope you do stay on TMIC for a a long time! You are one of the earliest ones I remember when I first got on (I remember since you are also in Michigan) along with Jude and others. I look on Facebook once in a while but am not on it much and did not even include my picture in my profile section (probably to the relief of Facebook friends). It seems like it can take up a lot of time yet I understand how it can help people connect but I do prefer this method of TM'ers communicating with each other. I haven't written much about my TM but the fatigue is the most annoying. I have been under stress with my mom in a nursing home with Alzheimer's and my dad having had a stroke last fall and living alone )but fortunately nearby). My two siblings live out of town so I keep track of both parents although my brother and sister do real well in coming as often as they can and giving me a break now and again. Applying for Medicaid a year ago and still not getting everything finalized yet has been almost a nightmare. This past week some news (or lack of it) regarding our Medicaid application set my banding off and I felt like I was being squeezed to death until I talked with our Elder Law attorney and it started ease off a bit. Does anyone else experience this increased banding or squeezed feeling in times of stress? I have appreciated over the years, on the list, the bits of advice given and the sharing of symptom experiences. Once in a while I have a slipper come off my foot and I don't know it until I see the slipper or my bare foot because I really don't feel anything much different whether the slippers are off or on. When this happens I remember the story I probably read on this list: a lady with TM was walking up church steps and didn't realize her shoes had come off until she heard people behind her laughing (may not be the exact story, but close, as I remember it). Anyway, I hope this list continues. Even with Facebook as an alternative. - Original Message - From: pjv1...@chartermi.net To: tmic Sent: Saturday, October 01, 2011 9:34 PM Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
[TMIC] October birthdays
HAPPY BIRTHDAY to all those born in October Cheryl
[TMIC] OFF TOPIC Thank you
Hello, I just want to thank everyone who wrote to me about my test results. I seem to have many friends,none of whom I've met. What a blessing you all are! Cheryl
[TMIC] OFF TOPIC; my cancer marker results
Hi Everyone, Got my blood work results today. My CA2729 (a cancer marker) has gone from 112 down to 53.8 . The letrozole seems to be working! Thank you for the prayers,I really appreciate it. Cheryl
[TMIC] letter to Pam's address.
The following is from Barbara H. in her list of September birthdays. Most of you remember Pam Montz -- her birthday was 9/9, but she passed away not too long ago. I don't know if her husband kept her e-mail open (it was montzma...@aol.com), but you might keep her family in your thoughts and prayers and maybe even send a note if you feel led to do so. I did get a reply from someone at that email address,presume it was her husband. Cheryl
[TMIC] SEPT BIRTHDAYS
HAPPY BIRTHDAY TO ALL BORN IN SEPTEMBER CHERYL
[TMIC] Pam
I emailed the address for Pam and said how much she is missed and got a reply. Cheryl
[TMIC] this group
Hi Everyone, It was great to hear from so many who are still with this group. A while back,someone said something about going to facebook to post pictures,etc. Shortly after that the list had almost no postings,and I mistakenly thought you all had gone to facebook too. So glad you are still here. I guess it's just one of those slow times here. Cheryl
[TMIC] gone to facebook
Hi, Since it seems most of the tmic group has gone to facebook,could you cc copies of emails to me? I miss you! Cheryl
[TMIC] tm anniversary
Hi Everyone, Well,today was my 16th anniversary with tm. Had a short cry and then went on as usual.I'm just sick of this whole thing. Cheryl in humid Easthampton,MA
Re: [TMIC] August Birthdays
HAPPY BIRTHDAY TO ALL BORN IN AUGUST Cheryl in Easthampton,MA From: Barbara H. barbara...@gmail.com To: tmic tmic-list@eskimo.com Sent: Sunday, July 31, 2011 10:57 PM Subject: [TMIC] August Birthdays Happy Birthday to the many celebrating this month! Please send any additions or corrections to tmic-list@eskimo.com. 8/1 Peachi (pkeene2...@aol.com) 8/1/ Cindy McLeroy (cindymcle...@socal.rr.com) 8-1 Stacy Firth (safi...@dow.com ) 8-3 Larry Throne (lbthr...@hotmail.com ) 8-10 Sean Indiveri (sindiv...@hotmail.com) 8-11-69 Raylene Gökeri (mrs_gok...@yahoo.com) 8-11 Michelle Maricic (mmari...@aol.com) 8-11 Dalida S. Ortiz de Garcia (py...@yahoo.com) 8/14/58 Paula (gle...@fcgnetworks.net )(returned) 8-16-44 phyllisj...@webtv.net 08/17 Sandra (Harth) Brassil (sbras...@aol.com) 8-17 Kim (jnks...@huntel.net) 8-19 Saroj (sarojkumar...@gmail.com) 8-21 Barbara H. (barbara...@gmail.com) 8-23 Cole (neilandwe...@rogers.com) 8-29 Kathleen (kathleen.kar...@gmail.com) 8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com )
[TMIC] OFF TOPIC: my cancer
Hi Everyone, I went to Dana Farber today and got my shoulder biopsy results. It is positive for metastatic breast cancer. I was expecting it,so I'm not surprised. So it's hormone therapy and also a monthly IV therapy to strengthen my bones so they don't fracture,especially the humerus which is the one with the cancer. Also I need to take calcium and vitamin D3. I will also need monthly labs,and scans done periodically to see if the hormone is working. If it doesn't suppress the cancer,they will switch to another drug. I just hope that the med works and keeps working for a while;it does depend on how aggressive the cancer is. Since I've had it for years,I hope it's not aggressive. Apparently some of the hormones can work for a long time and when it stops working they just switch to another;you can be treated for years,and then eventually need chemotherapy;that happens when they run out of hormones that work. Unfortunately,I cannot have the treatment at Dana Farber since it is out of network and the same treatment is available locally. I want to thank everyone who has offered support,prayers,and concern. I truly appreciate it. Thanks for listening. Cheryl in hot humid Easthampton,MA
Re: [TMIC] Myelitis
Hi Janice, That is strange! One thing we all know;life is never dull with tm. Cheryl in Easthampton,MA.--- On Sat, 7/2/11, Janice Nichols jan...@centurytel.net wrote:From: Janice Nichols jan...@centurytel.netSubject: [TMIC] MyelitisTo: tmic-list@eskimo.comDate: Saturday, July 2, 2011, 11:38 PM Hello TM’ers Boy, have I got news! I am finally able to get back to my water aerobics, after 4 years, and who should I meet but another TM’er right here in my town. Was I shocked! Both of her legs were affected, but she walked better than I do. She also has colon and bladder problems like most of us. Now, the strange thing is that about a year after her myelitis attack, she fell and broke her hip on the right side. After the doctors did the surgery and she started to walk again, she noticed that the right leg was no longer affected by the myelitis. It is perfectly normal now. The neurologists and trying to figure it out. Kinda strange isn’t it? Janice from Missouri
[TMIC] OFF TOPIC{My visit to DFCI}
HI, I went to Dana Farber Cancer Institute on Wed. I was disappointed;my tissue from the biopsies had not even been looked at;they were sent by Fed-Ex last week.ilearned nothing new. I had seen my local oncologist on Tuesday,and she told me the MRI of my left shoulder needed to be biopsied. What I should have done was cancelled my appt.,and scheduled one with an orthopedic oncologist before seeing the medical oncologist and surgeon in Boston. The shoulder mass is about 1.3 cm (under 1/2 inch long) My insurance company only gave me 3 visits to DCFI, Used one on Wed. Will use another for the shoulder biopsy,and the oncologist wants to see me to discuss the results. I plan on telling her to call me with the results. The plan is if the shoulder is cancer,to treat with just hormone therapy.No surgery,radiation,or chemo.because it will be treatable,not curable.That's because to go to the shoulder,it travels through the blood system,and even though it hasn't gone anywhere else yet,it will probably turn up down the road. Depending on how well the hormone suppressant works ,I could live for yrs. If it is not cancer,they will give me chemo,radiation,a mastectomy,and pull out the big guns as they said,and try for a cure! Every test result I've had so far has been bad;I hope and pray this one is negative. Thanks for listening to me; I should go my the name long winded Cheryl aka LWC :). Cheryl in rainy Easthampton,MA
[TMIC] OFF TOPIC;FRUSTRATION
Hi, Why do insurance companies make you send in referrals for every separate thing? You'd think they would include recommended tests,surgery,etc all under the main referral. Plus,there is no local orthopedic oncologist for me to see. I just realized late last night I need my PCP to refer me for the shoulder biopsy,and for a pathologist to read the results. Good thing I thought of it,or I'd be paying out of pocket (and my pockets are pretty empty!). Called my PCP's office and I need the doctor's name address phone # and diagnosis before they can send it to Boston. Just added stress I don't need. I'm taking deep breaths and trying to relax. On top of everything,I have pinkeye in both eyes.An itchy, gunky mess. Things have got to get better! Cheryl
[TMIC] Off Topic:I had a new adventure!
Hi, Well,I had a new experience yesterday. Went to my pcp in the am for routine visit. I happened to have a sore throat,headache,and was very congested. He looked at my throat,and didn't say anything more. I figured he thought it was a virus,so he didn't give me an antibiotic. I went with my son-in-law and did some food shopping;when I got home had message to call dr's office. Spoke with the nurse who said the doc forgot to give me a script for amoxicillin and they would fax it to pharmacy. My daughter picked it up,and I took one at 3:10. The fun began at about 3:45. My hands were itchy,and no amount of scratching helped.Then my face started itching. Lips felt tingly;looked in the mirror and my face was getting very red,lips and tongue were puffy. Now I have taken amoxicillin numerous times,but knew this was an allergic reaction. Called 911 and the person had a hard time understanding me due to tongue swelling. Then called my daughter,and my sister. Daughter went to hospital,sister came to my house (she lives down the street from me). In the ambulance IV was started and benadryl given through it;that stops the reaction from getting worse. Got to hospital,had epinephrine SQ which reverses the reaction,and solu-medrol 125 mg IVP. Had to stay there for 5 hrs to be sure I didn't have a second reaction which is worse than the first. I didn't (Thank God). Came home with an epi pen in case of any further problems.a 4 day course of prednisone,and benadryl if needed for itching or rash. So,that was my adventure! I thought while in the ambulance,after all crap I've been through the past 2 months,wouldn't it be ironic to die from ONE PILL?? Because believe me,I thought I was dying. Now I await tomorrow to go to Dana Farber Cancer Institute for a second opinion on my breast cancer. It has spread to lymph nodes in the armpit and chest wall and into my shoulder;not in liver,lungs,brain,pancreas,or kidney. From what I understand,it is not curable,but treatable Please keep me in your prayers and wish me well. Sorry this was so long winded. Cheryl
[TMIC] O.T. June Birthdays
HAPPY BIRTHDAY AND MANY MORE TO ALL THOSE BORN IN JUNE. Cheryl Worry is as useless as a handle on a snowball. (A message sent to me by my 11 yr old granddaughter)
[TMIC] diagnosis
I just want to thank those of you who have written regarding my diagnosis. I wish it was the 20th,so I knew the results. Cheryl
[TMIC] O.T. cancer dx.
Hi, I got my second biopsy report results today. It shows invasive ductal carcinoma in 2 separate areas,Grade 2,as well as the original 2 areas with the ductal carcinoma in situ. My surgeon says this is very uncommon to have . I'm having an MRI on the 16th and will see an oncologist on the 20th. I don't have any palpable swelling in the lymph nodes,but a tracking dye will be put in the morning of surgery to see if it's spread to the lymph system,with a node biopsy if necessary. The next step (after the 20th) is to discuss with the surgeon and oncologist which to have first;the mastectomy or the chemo. Will also have chest x-ray and labs. Scariest thing is the 2 invasive areas did not show on the mammograms! Cheryl
[TMIC] O.T. cancer diagnosis
Thank you to everyone who sent a reply to my previous post. I will be having 2 more biopsies on Monday,and will get results on Wed. I hope those are negative or the same low grade. Cheryl
[TMIC] O.T. cancer diagnosis
My Friends, Once again I am asking for your prayers and support. I had a biopsy done on Monday,and found out yesterday I have low grade ductal carcinoma in situ. The first in my family with a diagnosis of breast cancer. I go in tomorrow to discuss options with my surgeon. I'm scared,but hopeful. Please say a prayer for me. Thank you,Cheryl
[TMIC] {TMIC} Birthdays
HAPPY BIRTHDAY to all who were born in May! Cheryl
[TMIC] medicare/health insurance coverage
I wonder if the laws changed since I went on medicare in 1996? I was on COBRA insurance for 18 months ,( I had forgotten that) and then on medicare:I was never without health insurance coverage. I had been in an HMO for several years before tm,and have been with the same HMO since. Cheryl --- On Thu, 4/28/11, James Berg molokai...@gmail.com wrote: From: James Berg molokai...@gmail.com Subject: Re: [TMIC] revisiting an old issue To: Akua a...@artfarm.com Cc: tmic-list@eskimo.com Date: Thursday, April 28, 2011, 12:04 AM I checked out the web sites today and unless you have Lou Gherigs disease you have the two year wait from approval which takes 6 months if you are lucky. On Wed, Apr 27, 2011 at 11:04 AM, Akua a...@artfarm.com wrote: I too had to wait two years. I applied immediately, too. The wait for disability is 6 months, the wait for medicare is two years from onset (or approval). Myapproval was on the first application. I was still without money for six months and health care for two years while I was paralyzed and in a manual wheel chair. (I had started a new job two months before TM crippled me and there was no health insurance...) --
Re: [TMIC] revisiting an old issue
You should apply for medicare and see what happens;you should get it. I applied while still in rehab for ss disability and medicare.The physiatrist was well versed in how to word the form and I got approved on the 1st try for both. I elected to go with a medicare HMO from the beginning,and started out with Blue Cross/Blue Shield. I changed to Health New England starting in 2010 because BCBS raised their premiums so high. I now pay $142 a month and that includes the best drug plan available. I get one blood pressure med from Canada,because it's not generic in this country yet,and the cost makes me reach the donut hole in October. Don't wait;apply for medicare now. Good luck. Cheryl --- On Tue, 4/26/11, john snodgrass jcs...@yahoo.com wrote: From: john snodgrass jcs...@yahoo.com Subject: Re: [TMIC] revisiting an old issue To: rn11...@yahoo.com rn11...@yahoo.com Date: Tuesday, April 26, 2011, 3:05 PM thats what social security told me. beats me. --- On Tue, 4/26/11, rn11...@yahoo.com rn11...@yahoo.com wrote: From: rn11...@yahoo.com rn11...@yahoo.com Subject: Re: [TMIC] revisiting an old issue To: john snodgrass jcs...@yahoo.com Date: Tuesday, April 26, 2011, 2:47 PM Why do you have to wait 2 years to go on medicare? I've been on it since I got tm at age 49. --- On Tue, 4/26/11, john snodgrass jcs...@yahoo.com wrote: From: john snodgrass jcs...@yahoo.com Subject: Re: [TMIC] revisiting an old issue To: rn11...@yahoo.com rn11...@yahoo.com Date: Tuesday, April 26, 2011, 2:04 PM i was covered with insurance from my job for 6 months from my last work date. may 5th makes 6 months. I'm going to have to wing it for 2 years, then I will be elligable for medicare. I suppose the only place we can find fair is in the dictionary. --- On Tue, 4/26/11, rn11...@yahoo.com rn11...@yahoo.com wrote: From: rn11...@yahoo.com rn11...@yahoo.com Subject: Re: [TMIC] revisiting an old issue To: john snodgrass jcs...@yahoo.com Date: Tuesday, April 26, 2011, 1:48 PM John, I don't have the thrumming,just the burning pain;it is always there,and has been since onset of tm. It is mainly on my lower legs and feet.That and the tight banding around my trunk drive me crazy. Since the 11th,I've spent a lot of time in the radiology dept. and dr's offices. On the 11th I had my yearly mammogram,requiring standing for a while,the 13th had a tooth out,requiring lying back in one of those chairs,more views again on the mammogram on the 18th,a visit with a surgeon about getting a biopsy done on the 21st,and another dr visit on the 25th. All these have caused me to have a lot of spasms in my back and awfully painful burning and weakness in my legs. Why are you losing your insurance in May? Cheryl in warm (70!) Easthampton,MA --- On Tue, 4/26/11, john snodgrass jcs...@yahoo.com wrote: From: john snodgrass jcs...@yahoo.com Subject: [TMIC] revisiting an old issue To: transverse myelitis tmic-list@eskimo.com Date: Tuesday, April 26, 2011, 7:11 AM I remember hearing the concern of thrumming in the legs. You know,,like the sound that a power transformer makes except it's a feeling,a buzzing or even sometimes like energy going up and down your leg or legs. I gert this a lot and when it is real bad it is from the top of my head to the bottom of my feet. sometimes it even feels like something poking at the bottom of my feet from the inside trying to get out. perhaps i could harness it and drive a car with it! I am taking the maximum dosage of baclofen and neurontin and was wondering if anyone ever ran across something to either slow this part down or even stop it. sometimes it will last all day and can go from irritating to depressing. most of the time when this does stop that's when the burning begins. this on top of the wast banding and pain can drive me to thinking thoughts that are not normal for me. thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i should drink enough to pass out or maybe i should punch someone and they will knock me out! my Doc's know about it but have no answer. losing insurance on may 5th.
RE: [TMIC] enough!
Ever since tm hit,every few weeks I get the sensation of little ants
crawling on my left lower arm and hand. It doesn't last long. I rub it and it
soon goes away.
Cheryl
--- On Wed, 4/13/11, PAMELA S subers...@msn.com wrote:
From: PAMELA S subers...@msn.com
Subject: RE: [TMIC] enough!
To: jcs...@yahoo.com, TMC Group tmic-list@eskimo.com
Date: Wednesday, April 13, 2011, 12:09 AM
Okay, it's my hands and my feet and my legs!But, I got so sick of being
called crazy when I tried to describe it. 20 years later it still drives me
nuts, and I don't drink, I'm not using morphine etc. etc. etc. I Do wish
caregivers had to experience just one hour of it. FYI...if you ever have to
have a psych exam just to get a neurologist to take you seriouslymake sure
you keep the record, or 7 years later you'll see the shrink again just to get
the new resident whatever to take you seriously. I learned that the hard
way. Wasting hard earned money to get someone to sign a paper saying those
spiders ARE NOT in your head! Perhaps raid in the neurologist coffee:) (That
is a joke, not a threat just in case someone should think otherwise) But,
anyone who has lived with these sensations knows what I mean.
Date: Tue, 12 Apr 2011 14:13:56 -0700
From: jcs...@yahoo.com
Subject: RE: [TMIC] enough!
To: vgor...@twmi.rr.com
CC: tmic-list@eskimo.com
even knowing whats going on I'm always rubbing and looking.
--- On Tue, 4/12/11, vernon vgor...@twmi.rr.com wrote:
From: vernon vgor...@twmi.rr.com
Subject: RE: [TMIC] enough!
To: 'john snodgrass' jcs...@yahoo.com
Date: Tuesday, April 12, 2011, 5:10 PM
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That’s the way my hands feel
From: john snodgrass [mailto:jcs...@yahoo.com]
Sent: Tuesday, April 12, 2011 3:43 PM
To: transverse myelitis
Subject: [TMIC] enough!
my legs are creping me out today ,one feels like it has spider webs on it and
the other feels like bugs are crawling on it!
TM,gotta love it,,
NOT!
[TMIC] Re:getting worse
Dalton, You are in my prayers. Just don't go on working if you really aren't up to it.Getting on disability and back to the USA where you can find a good neurologist might be an option. Cheryl in sunny Easthampton,MA --- On Sat, 4/9/11, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Asking group experience To: jack...@att.blackberry.net jack...@att.blackberry.net, TMIC tmic-list@eskimo.com Date: Saturday, April 9, 2011, 11:08 PM Friends; I seem to be getting worse quite quickly. pain across the back and all the skin iom my arms and legs up to just above the elbows and knees. I am also having whole-body contractions, first on the back, then on the front. Unfortunately, the neuro service here is a joke. I could use some prayers, really. I hope I can still work, but if things continue this way it will be impossible. The pain and weakness is just too tough to overcome. Actually, I am now thinking I must shift to a wheelchair, one where I can use my feet to mve around in, since my arms are now too weak for much more than typing and dresing. Thanks, for keeping me in your tooughts and prayers, Dalton Dalton Garis Abu Dhabi, UAE Mobile: +971-55-800-6619 On 4/8/11 9:35 PM, jack...@att.blackberry.net jack...@att.blackberry.net wrote: Hi Everyone! I have been reading ,haven't posted in a while. I hope Spring time is helping everyone. I would like 2 know what tests - blood work etc your dr's order for you during the year. I am on baclofen ,topamax. Still with pain especially at night. as well as back pain and shrinking in right leg. Am wheelchair bound for most part with exception of toddler table walking (last few months) tm in july 07. I read most know where t this or t that. I didn't know that until I started this group as I was never told the area of where my tm hit. I do know I have to take responsibility for me. What do I need to ask for. In my area and now medical coverage I am limited. I have learned a lot from you guys. Never realized that tm causes clinical depression. Anyone know or have experience with hpt5. Or natural supplements for depression. I was on effexor then prozac now nothing. Feeling DOWN and don't want to spiral down again just as spring is here. May have rambled a bit - thanks 4 being out there!! Sent via BlackBerry by ATT
Re: [TMIC] disabled social security benefits
Hi John, I've been on SS disability since early 1996;got tm August 1995. Did it say in your acceptance letter you would not get retroactive 5 months?As far as I know,everyone gets a check (or direct deposit ) with 5 months benefit. I remember I had to send mine to the long term disability insurance company,because they had paid my full 60% from onset of my benefits. (Now I get half from each,until June when I turn 65 and my LTD ends and my pension starts.) Every January,I get a SS Benefit Statement.It shows: my net benefit medicare pat B deducted from my benefit adds the 2 and that is my total benefit On the other side there is Notice 703-Read this to see if your SS benefits may be taxable Line A enter total benefit Line B enter one half of line A Line C enter your total income that is taxable ,such as pensions,wages,etc. Line D enter any tax exempt interest Line E add lines B,C,and D and enter Then read below Part of your SS benefits may be taxable if for 2010 you were 1) single and line E is above $25,000 2) married ,file jointly and line E is above $32,000 OR you file separately and line E is more than zero(more than $25,000 if you lived apart from your spouse for all of 2010 I am divorced and have not filed any tax return since I became disabled,but I almost reached the $25,000 limit this year. I hope this helps;contact me with any questions,and I'll try to help. Cheryl in sunny Easthampton,MA --- On Fri, 4/8/11, john snodgrass jcs...@yahoo.com wrote: From: john snodgrass jcs...@yahoo.com Subject: [TMIC] disbaled social security benefits To: transverse myelitis tmic-list@eskimo.com Date: Friday, April 8, 2011, 5:07 PM to anyone receiving disabled social security monies. I received a letter today stating that I will receive my first check May 11th. signed up for it on Nov 5th. wont get any retro pay. is this money taxed?
Re: [TMIC] Chiropractic treatment
John, This happens to a lot of people.My son and son-in-law were both kicked out of the service (both honorable discharges. After a long fight my son-in-law finally got partial disability. My sister's son-in-law fought in Iraq and had a back injury;he gets 10% disability! He also has PTSD and would get 100% if he accepted that dx. Since it is a psych disorder,he won't do it. This country treats veterans shamefully. Cheryl in rainy Easthampton,MA --- On Wed, 4/6/11, john snodgrass jcs...@yahoo.com wrote: From: john snodgrass jcs...@yahoo.com Subject: Re: [TMIC] Chiropractic treatment To: Dalton Garis malugss...@gmail.com Cc: transverse myelitis tmic-list@eskimo.com Date: Wednesday, April 6, 2011, 1:23 PM I WAS KICKED OUT OF THE ARMY MED200 had an episode when i worked in a hospital and hurt my back and the army sent me home stating that once i finished AIT that i would fall back on uncle sam for the rest of my life so they dumped me. remember he is your uncle,,not your daddy! ;) --- On Wed, 4/6/11, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Chiropractic treatment To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Date: Wednesday, April 6, 2011, 10:54 AM . . . It wasn't needed to keep me out of the Army in 1967. My number was 186. Talk about lottery! From: john snodgrass jcs...@yahoo.com Date: Mon, 4 Apr 2011 08:04:21 -0700 (PDT) To: Dalton Garis malugss...@gmail.com Cc: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] Chiropractic treatment the odd's,,,the unwanted lotery --- On Mon, 4/4/11, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Chiropractic treatment To: beecl...@aol.com, tmic-list@eskimo.com Date: Monday, April 4, 2011, 10:50 AM Come to think of it; I was diagnosed with spondilolesthesis at aged 15 and had back problems from then on. It even kept me out of the Army in 1967. Then the 30' fall from a power poll in 1970 at aged 22, which smashed everything. Anyway, what we are NOT considering is how many others had all these problems and never went on to develop MS, TM, or any similar condition. Because I know of very few persons who do not have some sort of back condition—injury-situation-whatever. Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: beecl...@aol.com Date: Sun, 3 Apr 2011 21:45:29 EDT To: tmic-list@eskimo.com Subject: Re: [TMIC] Chiropractic treatment Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 3 Apr 2011 18:46:04 -0700 I've wondered about that too... I've had Scoliosis since I was 12, had 9 vertebrae fused together at 19 and now TM. Wish i could hit the Lottery with that much luck! Betty(in Northern Calicornia) In a message dated 4/3/2011 5:53:37 P.M. Pacific Daylight Time, em...@telephonelady.com writes: There is a good amount of people with TM that has had spine injuries prior to getting TM. Is there a connection to this or just coincidence? Does anyone know? Emily Meyers From: bobby jim [mailto:elbobber...@earthlink.net] Sent: Sunday, April 03, 2011 7:41 PM To: Bob and Sue Mattis; TMIC list Subject: Re: [TMIC] Chiropractic treatment Well, I have spondylolisthesys at L-2,3 which means that L-3 is out of place and pulled back from L-2. I got it in the mid 1980s when trying to lift a very heavy window without support. I felt a ping in my lower back, but that was all. I forgot about it till: after trying to move a crate weighing over 220 lbs, I pulled that old injury to my spine and a few dayze later, I had a bad case of sciatica and then lumbago. So I went to a chiropractor who took x-rays of my spine, pinpointed the troubling spot and proceeded to manipulate my back, pushing here, massaging there, etc My neck was also having a bout of crepitation so she worked on that one as well. Five years afterwards, I lost all discomfort in my back and neck. Yes, it took that longbut it was worth it. However, when I overdo it at work some 'pain' comes back so I do some exercises she also taught me, some involve stretching and bending; and when doing some of them I can 'hear' my spine shifting (crunch crunch) and the 'pain' is gone. Same with my neck. The noises have never bothered me, and have never been threatening to my back or neck. I've heard of some horror stories about chiropractors. But not me did I luck out... If I had to do it again, I'd jump right in. BobbyJim From: Bob and Sue Mattis To: TMIC list Sent: Friday, April 01, 2011 16:35 Subject: [TMIC] Chiropractic treatment Hey group!
[TMIC] April birthdays
Happy Birthday to all those born in April! Cheryl in snowy Easthampton,MA
Fw: Re: [TMIC] OT: the Garbage Story
--- On Fri, 4/1/11, rn11...@yahoo.com rn11...@yahoo.com wrote: From: rn11...@yahoo.com rn11...@yahoo.com Subject: Re: [TMIC] OT: the Garbage Story To: Akua a...@artfarm.com Date: Friday, April 1, 2011, 8:49 PM Hi, I agree with what you wrote. I wish some people could be in a wheelchair for just a month to see what you go through.(any shorter length of time wouldn't work) I pay $19.50 a month for trash collection;one week paper is collected,then bottles and cans the following week. There is talk of the city starting a trash collection;don't know if it's a good thing or not.Would have to pay for bags. My neighbor across the street takes my trash out for me every week.I'm truly blessed by good neighbors and relatives who do so much for me. Cheryl --- On Fri, 4/1/11, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] OT: the Garbage Story To: tmic-list@eskimo.com Date: Friday, April 1, 2011, 5:29 PM OT: the Garbage StoryAfter seeing how a show about the need for change ( environmental practices) I wrote my rep. We have to PAY to get recycling picked up and it only happens once every two weeks. I complained that i do not use the city garbage which means no recycling is picked up from me. I pay $24.79 to have garbage picked by another service, because they will come to my back door to get my can. The Tiny City won't. and the city won't collect my recycling unless I also buy a city garbage bag and have that next to the recycling. Here's what my rep wrote Yes you have to have a bag because the city has to pay for our city workers to pick up the recyclable in a special truck that had to be bought, gassed and maintained-nothing is free. Again the cost is in place for every city and either it is paid by the bag fee or by taxes that hide the cost. Ours is the best deal. You need to understand how it actually works and costs. As for your accessibility to the curb-that I can not help you with. If your home requires added expenses due to its location or layout- you can not ask the city tax payers to help you. Other ADA compliant housing is available within the city. my reply: I am bemused and insulted by your reply. I have owned my home for 17 years and pay taxes. My taxes have educated many children, none of whom were mine. Part of being a citizen includes paying for things that others need. So your remarks at the end are galling! How my concern about getting recycling picked up devolved into telling me I need to move, I don't know. I already told you that I PAY for my garbage. How does this translate into you can not ask the city tax payers to help you ?!!! That my concern about our lack of rigor in recycling and that we CHARGE for it ( other places collect multiple times a week whereas we do it just twice a month and have to pay for it) is met with such hostility, is untoward. You have indicated that you disagree. Fine. But disagreement does not beget insult. That is a trespass. I have always found our system of recycling wanting. When I was able-bodied, I drove my recycling to the recycling station, this was my committment to our planet. Why does the revenue from recycling not offset the cost of collection? Recycling is supported and encouraged all over the world -- it is seen as a revenue source for other municipalities. Here, we are charged for it. I can't see how this encourages people to recycle. Akua --
[TMIC] OT
I want to thank everyone for their warm thoughts and prayers. Cheryl
[TMIC] OT
My friends, My great-grandson Joshua James Bigelow (born 11/19/10) died of SIDS on 2/28. We are devastated. Cheryl
[TMIC] O.T. March Birthdays
HAPPY BIRTHDAY to all those born in March! Cheryl
[TMIC] (O.T.) AKUA-messages returned
Akua, I tried again to return the message and this is what I got back,followed by a long drawn out message. Messages to others are going through o.k.,so it doesn't seem to be a problem on my end. Cheryl Hi. This is the qmail-send program at yahoo.com. I'm afraid I wasn't able to deliver your message to the following addresses. This is a permanent error; I've given up. Sorry it didn't work out. a...@artfarm.com: 65.60.41.250 does not like recipient. Remote host said: 550-JunkMail rejected - web161808.mail.bf1.yahoo.com [98.139.210.117] is in an 550 RBL, see Blocked - see http://www.spamcop.net/bl.shtml?98.139.210.117; Giving up on 65.60.41.250.
Re: [TMIC] OT: No Help Update
Akua, I tried to reply to your last email to me and it was unable to be delivered. I got a message saying there was a permanent error. More snow-just what we don't need. Cheryl --- On Wed, 2/23/11, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: [TMIC] OT: No Help Update To: tmic-list@eskimo.com Date: Wednesday, February 23, 2011, 10:15 PM So a week and three snowfalls later, I've yet to get the list of possible providers. I've made a dozen phone calls based on phone book listings. As I've said before, everybody here must be fully employed, because i can never find any help to hire. No returned phone calls from people who list themselves as snow removal. I would be more surprised, but this is the same agita I went through to find yard help ( only to have an able bodied neighbor ask me who I used/ found (!!!) Today I get an email saying that delivery retries had failed. Though i hit reply in sending the signed form, the agency idiot used an address that won' accept mail, unless I am added to a list. Somehow she sees the second failed message and sends me a message telling me to I need to simply reply to be added. This is the same address to which I had sent the signed form. More snow is on the way. Akua --
[TMIC] Feb BD's
To all those born in February- HAPPY BIRTHDAY and many more!
Re: [TMIC] TM
Hi Janice, I may have written about that. My left leg is 1 inch longer than the right. While in rehab learning to walk again,I was very unsteady. Unfortunately,I locked my left knee,which stretched the tendon,making the leg lengthen. None of the P.T. staff realized what I was doing. Now my gait is off because of the difference in the length of my legs. Cheryl in snowy Easthampton,MA --- On Mon, 1/17/11, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: [TMIC] TM To: tmic-list@eskimo.com Date: Monday, January 17, 2011, 11:14 PM Dear Friends, Some months ago, one of you wrote in asking if anyone had a problem with maybe 1 leg being shorter than the other since having TM. At the time, I had not heard of that being a possibility. I now know what whoever was talking about. My legs are still the same length and my spine is straight, but I am walking now as though one leg is slightly longer than the other. It is caused by the myelitis and they tell me with therapy, they can fix it - I hope. So, to whoever wrote in asking about that, I hope they got help for it. Something happens in the upper back hip area. Anyway, I am working on fixing this and hope no one else has this problem. Janice
[TMIC] OT spokeo
I have been divorced for 27 yrs,my youngest daughter moved out over 10 yrs ago,yet they are still listed as living at my address! That's why I get phone calls looking for my ex. When I tell the caller he has been gone for 27 yrs,they don't believe me. Now I just say you have the wrong number and hang up. Cheryl in very cold Easthampton,MA
RE: [TMIC] re Jude
That's great Patti;hope to get news about Jude soon. Thanks,Cheryl --- On Sun, 1/9/11, Patricia Cooley patticoole...@gmail.com wrote: From: Patricia Cooley patticoole...@gmail.com Subject: RE: [TMIC] re Jude To: rn11...@yahoo.com, 'tmic' tmic-list@eskimo.com Date: Sunday, January 9, 2011, 2:52 PM I do have a directory, and I have also e-mailed a fellow TMer who I know is a close friend to Jude and doesn’t live far from her. I asked her to contact Jude to see what is going on. If I don’t hear from her I will write Jude. Patti – Wisconsin From: rn11...@yahoo.com [mailto:rn11...@yahoo.com] Sent: Saturday, January 08, 2011 4:25 PM To: tmic Subject: [TMIC] re Jude Does anyone have the tmic membership list that has our names,addresses,emails? If you do,could someone write to her by snail mail? As long as she hasn't moved,she will get it. Then maybe she can go in and fix whatever is blocking her getting our emails. I hate to think that she feels abandoned by the group. Cheryl
Re: Fw: [TMIC] I need help with member contacts. Will anybody help me?
Lori, I get the same. i thought maybe she had put some kind of block on her email. Maybe someone who has her phone number could call and let her know why she's not getting messages. Cheryl in Easthampton,MA --- On Sat, 1/8/11, Lori Biehler lbieh...@earthlink.net wrote: From: Lori Biehler lbieh...@earthlink.net Subject: Fw: [TMIC] I need help with member contacts. Will anybody help me? To: TMIC tmic-list@eskimo.com Date: Saturday, January 8, 2011, 8:49 AM This is the response I get when I email Jude, does anyone know why? -Original Message- From: heyjude48...@aol.com Sent: Saturday, January 08, 2011 8:47 AM To: lbieh...@earthlink.net Subject: Re: [TMIC] I need help with member contacts. Will anybody help me? Hello, I am unavailable to read your message at this time.
Re: [TMIC] I need help with member contacts. Will anybody help me?
Someone emailed earlier and said no one answered the phone either.
Cheryl
--- On Sat, 1/8/11, Barbara H. barbara...@gmail.com wrote:
From: Barbara H. barbara...@gmail.com
Subject: Re: [TMIC] I need help with member contacts. Will anybody help me?
To: Janice Nichols jan...@centurytel.net
Cc: Lori Biehler lbieh...@earthlink.net, TMIC tmic-list@eskimo.com
Date: Saturday, January 8, 2011, 5:17 PM
She must have some kind of automated response system set up without realizing
it. If someone who knows her could call her and help her figure out how to turn
that off, that would help immensely, I'm sure she's frustrated thinking nobody
is responding when it's just not getting through.
Barbara H.
http://barbara.wordpress.com
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On Sat, Jan 8, 2011 at 4:31 PM, Janice Nichols jan...@centurytel.net wrote:
That is the response I always get too. She just isn't getting anything from
us.
Janice
-Original Message- From: Lori Biehler
Sent: Saturday, January 08, 2011 7:49 AM
To: TMIC
Subject: Fw: [TMIC] I need help with member contacts. Will anybody help me?
This is the response I get when I email Jude, does anyone know why?
-Original Message- From: heyjude48...@aol.com
Sent: Saturday, January 08, 2011 8:47 AM
To: lbieh...@earthlink.net
Subject: Re: [TMIC] I need help with member contacts. Will anybody help me?
Hello, I am unavailable to read your message at this time.
[TMIC] re Jude
Does anyone have the tmic membership list that has our names,addresses,emails? If you do,could someone write to her by snail mail? As long as she hasn't moved,she will get it. Then maybe she can go in and fix whatever is blocking her getting our emails. I hate to think that she feels abandoned by the group. Cheryl
[TMIC] tmic list
Debbie Nord Capen told me that the tmic doesn't have a members list,it's the TMA that has a directory that lists members world wide. I know I had one,but my daughter and son in law are redoing my house and mine apparently got tossed out. Wasn't there someone here who visited with Jude? Maybe they could reach her personally. Cheryl
[TMIC] meds from Canada
I just got my first med from Canada. It's a generic form of Diovan called valsartan,for high blood pressure. It also helps protect the kidneys (important because I'm also diabetic). It costs $70+14 for shipping for a 3 month supply. The first order has a $10 off coupon. The best part is by not using my insurance,I will save and not hit the 'donut hole' this year.The co-pay is the same that my insurance charges for a tier 1 drug. The drug is made in India. I just read the info on 2 other meds I get and 1 is made in India,and 1 in Israel. All the other meds I take are generic,except insulin. Cheryl
[TMIC] Rehab
In the 22 yrs I worked as an RN,I floated for 2 of them on the day shift. I remember how uncomfortable I was going to ICU,CCU,and especially to rehab. It was totally foreign to me! Still,I treated everyone the way I would want to be treated,with respect and caring. Why else would I be a nurse? Believe me,at times it was very hard i.e. when I got things thrown at me (once by a doctor!!),when I was kicked,punched,etc. This was in an acute care hospital in Springfield MA,about 15 miles from my home. I can honestly say,I never disrespected anyone,but lots of the patients disrespected me;some were confused (totally not their fault) and some were just nasty,mean people. I say if you're a nurse or N.A and you can't treat people decently,get out of the profession. Unfortunately, a lot of people go into the nursing field because it pays well. Too bad they can't somehow screen that type out. I'm sorry for all who were mistreated ;it should never happen,ever. Cheryl
[TMIC] January birthdays
HAPPY BIRTHDAY TO ALL THE JANUARY TMERS CHERYL
[TMIC] O.T. Happy New Year
HAPPY NEW YEAR TO ALL THE TMERS AND THEIR FAMILIES MAY THE NEW YEAR SEE ALL YOUR WISHES COME TRUE CHERYL
[TMIC] RE:too much calcium
Hi, Too much calcium can cause constipation,kidney stones,gas,plaque in arteries,risk of prostate cancer,dry mouth,confusion,dizziness,and even seizures.Too much calcium in the blood can result in calcium toxicity,and can develop into abnormal deposits of calcium in the body's tissues. No vitamin or mineral is without complications if over used. Cheryl in Easthampton,MA --- On Sun, 12/19/10, Patricia Cooley patticoole...@gmail.com wrote: From: Patricia Cooley patticoole...@gmail.com Subject: RE: [TMIC] Gabapentin To: 'Janice Nichols' jan...@centurytel.net, kale...@sfcn.org, 'john snodgrass' jcs...@yahoo.com Cc: 'Dalton Garis' malugss...@gmail.com, 'transverse myelitis' tmic-list@eskimo.com Date: Sunday, December 19, 2010, 3:25 PM I never heard that you get into trouble with too much calcium. I take over 1200 mg a day, but I don't take them all at once. I take one at lunch and one at dinner, plus my multi which has calcium in the a.m. I also take one magnesium tablet in the a.m. It helps to absorb the calcium, but you don't take it at the same time as your calcium. I was under the impression if you take more than you need, you just pee it out which is a waste since they aren't cheap. Plus I drink milk and have milk on my cereal in the a.m. Patti - Wisconsin -Original Message- From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Sunday, December 19, 2010 12:32 PM To: kale...@sfcn.org; john snodgrass Cc: Dalton Garis; transverse myelitis Subject: Re: [TMIC] Gabapentin Sally, what would be too much calcium? I know that if you take too much you get into trouble for other things. Janice -Original Message- From: kale...@sfcn.org Sent: Saturday, December 18, 2010 10:09 AM To: john snodgrass Cc: Dalton Garis ; transverse myelitis Subject: Re: [TMIC] Gabapentin John, I'm not sure what your spasms are like - maybe yours are much worse than mine, but I've found that if I take sufficient calcium supplements, I don't have them. (What I refer to as 'spasms', for me, is when nerves in my legs actually cause my legs to jerk around when I'm still. It makes it hard to go to sleep.) I take maybe 800 mg to 1200 mg/day, depending on how much calcium foods I've eaten. If my legs start to spasm, I know I didn't take enough and get up and take some. (Calcium is more effective if taken in smaller doses - i.e. 400mg - throughout the day, rather than all at once.) My calcium levels were good before I was given the 5000 mg methyl-prednisone to zap the myelitis, but that zapped the calcium, too. So this is likely to be true for all of us who were given steroids to treat the TM. It might be worth it to give it a try. Sally realy bad spasms. it helps some. i thought this stuff made you sleepy. i reckon i am immune. --- On Sat, 12/18/10, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Gabapentin To: john snodgrass jcs...@yahoo.com Date: Saturday, December 18, 2010, 9:33 AM That is 4x what I am taking! John, do you have paralysis and spasms? And is that why the neuro has you on such a high dose? Because I would love to be more medicated if I could. Dalton Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: john snodgrass jcs...@yahoo.com Date: Sat, 18 Dec 2010 06:11:48 -0800 (PST) To: Kevin Wolfthal wolft...@optonline.net Cc: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] Gabapentin Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 18 Dec 2010 06:11:49 -0800 i am taking 2400 mg a day. it helps but it doesn't heal me --- On Sat, 12/18/10, Kevin Wolfthal wolft...@optonline.net wrote: From: Kevin Wolfthal wolft...@optonline.net Subject: [TMIC] Gabapentin To: tmic-list@eskimo.com Date: Saturday, December 18, 2010, 6:12 AM My new doctor visited me today. I asked him again about Gabapentin and he is going to start me on 100mg 3 times a day. For those who take this, I would like to hear how you did on it. I realize it's a low dosage. Thanks, Kevin
[TMIC] fatigue
Today I had a routine doctor's appt.@ 8:30. My sister and brother-in-law picked me up at 8. Rode 20 min. in car ;got in right away to office. Answered questions,vitals checked,etc. Waited a few min. for doc. He came in discussed my issues,showed him my right heel which split open a few days ago.Got scripts printed out for all my meds,a walker,and a shower chair. Had 3 vials of blood drawn,peed in a cup After that went to pharmacy for silver sulfadiazine cream for my foot.Finally got home at 10:15. Everything is sore and achy and the banding is super tight. I am exhausted and will suffer for days from 2 hrs and 15 minutes of walking and sitting. I seldom let tm get to me,but today is a bad day.How I hate this disease! Cheryl in Easthampton,MA
