[TMIC] Help
I know there's a ton of you that don't know about my twin Granddaughters. now I'm gonna swallow my pride and ask for your help. The twins, Yesenia and Jessica both have Rett Syndrome. The best way to explain this disorder is to say that all these girls can do physically is smile. All other voluntary body functions are non existent. Be that as it may, Yesnia and Jessica both have, over the years, developed Scoliosis. That a deformity of the spine. As it is, Yesenia's scoliosis have put so much pressure on her little lungs, that they had to remove a rib to keep from puncturing her lung. Right now she has a Halo screwed into her head with some sort of contraption connecting the halo to her knees to keep her spine straight. You see, she also had titanium rods put in her spine to keep everything aligned. My Daughter Julie is in bad shape financially as the twins Father decided to leave right after they were born stating, He doesn't produce idiots! Julie needs help with paying bills, diapers, and the like, and I can't do it alone. I'm asking you people to help me out. Any little amount you can afford will be appreciated. Do what you can if you can. The IDC will make a donation of course, but we don't have a ton of finances in the account, and I wont deplete it just because it hit home with me. If and when Yesenia recovers from this surgery, then Jessica has to have it done. They never did anything, and they don't deserve this, but things being as they are, I wont watch my girls suffer. Can I count on you?
Re: [TMIC] HELP- I don't know how to get off this website
It ain't no secret. y'all just need to know how to word your request and where to post it. BobbyJim - Original Message - From: fr...@franksheldon.com To: Jill Posner Cc: tmic-list@eskimo.com Sent: Saturday, May 28, 2011 3:46 PM Subject: [TMIC] HELP- I don't know how to get off this website Jill, I've been on this so long that I don't know what I'd do without this group, so have forgotten the secret code to leave. But as with all Questions, Ask the group ! Good Luck in all your adventures. Send Money when you get a job. pH
Re: [TMIC] HELP- I don't know how to get off this website
sorry about all of this BJ,,sometimes the pills talk more than normal! my bad! --- On Sat, 5/28/11, bobberino elbobber...@earthlink.net wrote: From: bobberino elbobber...@earthlink.net Subject: Re: [TMIC] HELP- I don't know how to get off this website To: fr...@franksheldon.com, Jill Posner posnerj...@yahoo.com Cc: tmic-list@eskimo.com Date: Saturday, May 28, 2011, 5:02 PM It ain't no secret. y'all just need to know how to word your request and where to post it. BobbyJim - Original Message - From: fr...@franksheldon.com To: Jill Posner Cc: tmic-list@eskimo.com Sent: Saturday, May 28, 2011 3:46 PM Subject: [TMIC] HELP- I don't know how to get off this website Jill, I've been on this so long that I don't know what I'd do without this group, so have forgotten the secret code to leave. But as with all Questions, Ask the group ! Good Luck in all your adventures. Send Money when you get a job. pH
[TMIC] HELP- I don't know how to get off this website
Jill, I've been on this so long that I don't know what I'd do without this group, so have forgotten the secret code to leave. But as with all Questions, Ask the group ! Good Luck in all your adventures. Send Money when you get a job. pH
Re: [TMIC] HELP- I don't know how to get off this website
Go on here and click on the unsubscribe link _Transverse Myelitis Internet Club_ (http://www.myelitis.org/tmic/)
[TMIC] Help .....Elizabeth Clark
I'm writing this with tears in my eyes,my family and I came over here to London,United Kingdom for a short vacation. unfortunately,we were mugged at the park of the hotel where we stayed,all cash and credit card were stolen off us but luckily for us we still have our passports with us. We've been to the Embassy and the Police here but they're not helping issues at all and our flight leaves in few hours from now but we're having problems settling the hotel bills and the hotel manager won't let us leave until we settle the bills. Well I really need your financial assistance..Please, Let me know if you can help us out? Am freaked out at the moment!! Elizabeth Clark...
Re: [TMIC] Help .....Elizabeth Clark
This is bullshit--my wife and I were contacted with a similar scam that our friend was roobed and needed money and after investigation we found our friend well and happy. Don't fall for it. On Mon, Apr 4, 2011 at 6:29 AM, beecl...@aol.com wrote: I'm writing this with tears in my eyes,my family and I came over here to London,United Kingdom for a short vacation. unfortunately,we were mugged at the park of the hotel where we stayed,all cash and credit card were stolen off us but luckily for us we still have our passports with us. We've been to the Embassy and the Police here but they're not helping issues at all and our flight leaves in few hours from now but we're having problems settling the hotel bills and the hotel manager won't let us leave until we settle the bills. Well I really need your financial assistance..Please, Let me know if you can help us out? Am freaked out at the moment!! Elizabeth Clark...
Re: [TMIC] Help .....Elizabeth Clark
There are a gazillion scammers out there I get them as well now and then, but they don't get past my spaminator. We all need to stay alert while on-line. (and that isn't easy) BobbyJim From: James Berg To: beecl...@aol.com Cc: transverse myelitis Sent: Monday, April 04, 2011 15:21 Subject: Re: [TMIC] Help .Elizabeth Clark This is bullshit--my wife and I were contacted with a similar scam that our friend was roobed and needed money and after investigation we found our friend well and happy. Don't fall for it. On Mon, Apr 4, 2011 at 6:29 AM, beecl...@aol.com wrote: I'm writing this with tears in my eyes,my family and I came over here to London,United Kingdom for a short vacation. unfortunately,we were mugged at the park of the hotel where we stayed,all cash and credit card were stolen off us but luckily for us we still have our passports with us. We've been to the Embassy and the Police here but they're not helping issues at all and our flight leaves in few hours from now but we're having problems settling the hotel bills and the hotel manager won't let us leave until we settle the bills. Well I really need your financial assistance..Please, Let me know if you can help us out? Am freaked out at the moment!! Elizabeth Clark...
Re: [TMIC] help
Hi Barb: It has been a crazy couple of months...at the end of january my company closed so i am currently on unemploymentnot the end of the world...i am 63 so I am not far from retirement age. Last week i had arthroscopic surgery on my knee to repair a tear so I have been back in rehab and suffering the exercisesI am starting to see an improvement and still have a couple of weeks until my sons wedding...in which I fully expect to dance and party.in my next email I will tell you about my med changes which screwed me up as well. All the best! Rob in New Jersey -Original Message- From: Barbara Alma balmat...@aol.com To: robthecfo robthe...@aol.com Sent: Fri, Feb 25, 2011 7:33 pm Subject: Re: [TMIC] help Hi Rob, Sorry to hear about the job, and the company. It may be a good time to just enjoy getting unemployment for a little bit and take a vacation for yourself, whether it's being home or not. Doesn't mean that you can't be job hunting at the same time, but try not to stress over not working and do your exercise program and take it easy on your body by doing what you enjoy. I know that you deserve this break for YOU, you've really been pushing yourself. Hugs, Barbara -Original Message- From: robthecfo robthe...@aol.com To: balmatmic balmat...@aol.com Sent: Fri, Feb 25, 2011 5:18 am Subject: Re: [TMIC] help NOPE THE COMPANY WENT OUT OF BUSINESS...I AM STILL IN THE JOB MARKET! THX rOB -Original Message- From: Barbara Alma balmat...@aol.com To: robthecfo robthe...@aol.com Sent: Thu, Feb 24, 2011 7:00 pm Subject: Re: [TMIC] help Hi Rob, I hope that you haven't stopped working due to health reasons. Hugs, Barbara A in Auburn CA -Original Message- From: robthecfo robthe...@aol.com To: balmatmic balmat...@aol.com Sent: Thu, Feb 24, 2011 7:14 am Subject: Re: [TMIC] help temporarily ...yes -Original Message- From: Barbara Alma balmat...@aol.com To: robthecfo robthe...@aol.com Sent: Wed, Feb 23, 2011 9:35 pm Subject: Re: [TMIC] help Hi rob, just unsubscribe. Does this mean that you aren't working anymore? Hugs, Barbara A in Auburn CA -Original Message- From: robthecfo robthe...@aol.com To: tmic-list tmic-list@eskimo.com Sent: Wed, Feb 23, 2011 10:54 am Subject: [TMIC] help I no longer have access to my work email which was rp...@neillsupply.com. I just subscribed using my home email address robthe...@aol.com Question...how do I get rid of the old address? Rob in New Jersey
[TMIC] help
I no longer have access to my work email which was rp...@neillsupply.com. I just subscribed using my home email address robthe...@aol.com Question...how do I get rid of the old address? Rob in New Jersey
Re: [TMIC] help
I think you have to unsubscribe and then subscribe under the new email. Lori From: robthe...@aol.com Sent: Wednesday, February 23, 2011 1:53 PM To: tmic-list@eskimo.com Subject: [TMIC] help I no longer have access to my work email which was rp...@neillsupply.com. I just subscribed using my home email address robthe...@aol.com Question...how do I get rid of the old address? Rob in New Jersey
[TMIC] Help for Ashley with ADEM
Here is an article from the South Bend (Indiana)Tribune about help for a young lady with ADEM I thought might be interesting for some or all. Gary (Niles, MI near South Bend)
[TMIC] Help for Ashley
I make dolls (mainly to sell my doll patterns) and would send her one, if you p-mail me her address. There's an organization that organizes mail and goodies for sick kids. http://www.hugsandhope.org/ you might want to use http://www.caringbridge.org --
Re: [TMIC] Help getting in touch with Todd Tarno
The email address I have for him is:todd+m2...@sbcglobal.net Hope this is right and it helps.It is unusual for him not to respond, but I have not seen him replying for a while.janice From: kevin weilacher Sent: Wednesday, December 30, 2009 9:02 PM To: TMIC Subject: [TMIC] Help getting in touch with Todd Tarno Can I get the groups assistance getting Todd Tarno to get in touch with me. This is concerning the raffle that we had and he was the winner of. I've sent him multiple emails to the email address that shows up here on the group and I've also sent him a note on the TM Network and Facebook too. He has not responded to me yet and I need him to contact me so that I can get the correct measurements from him for the cane that he won in the raffle. I need to get it cut to the correct length and install the rubber tip on it and then get it shipped out to him. I'm obviously available here on the group, on Facebook and also on the TM Network too. Todd, if you're out there send me a note. Please. Kevin Weilacher N.E. Ohio (Canton)
Re: [TMIC] Help getting in touch with Todd Tarno
I don't have any other addresses for him. It's possible he's away for the holidays. Barbara H. http://barabarah.wordpress.com On Wed, Dec 30, 2009 at 10:02 PM, kevin weilacher hwyfli...@yahoo.comwrote: Can I get the groups assistance getting Todd Tarno to get in touch with me. This is concerning the raffle that we had and he was the winner of. I've sent him multiple emails to the email address that shows up here on the group and I've also sent him a note on the TM Network and Facebook too. He has not responded to me yet and I need him to contact me so that I can get the correct measurements from him for the cane that he won in the raffle. I need to get it cut to the correct length and install the rubber tip on it and then get it shipped out to him. I'm obviously available here on the group, on Facebook and also on the TM Network too. Todd, if you're out there send me a note. Please. Kevin Weilacher N.E. Ohio (Canton)
[TMIC] Help getting in touch with Todd Tarno
Can I get the groups assistance getting Todd Tarno to get in touch with me. This is concerning the raffle that we had and he was the winner of. I've sent him multiple emails to the email address that shows up here on the group and I've also sent him a note on the TM Network and Facebook too. He has not responded to me yet and I need him to contact me so that I can get the correct measurements from him for the cane that he won in the raffle. I need to get it cut to the correct length and install the rubber tip on it and then get it shipped out to him. I'm obviously available here on the group, on Facebook and also on the TM Network too. Todd, if you're out there send me a note. Please. Kevin Weilacher N.E. Ohio (Canton)
Re: [TMIC] Help, Advise please
Better Safe Than Sorry!! I would go to the ER. Just my opinion. Subject: [TMIC] Help, Advise please Have had TM since 04 this is a first and need advise had relapse last april 08.. legs were more numb than ususal today legs are more numb but arms have little to no strenght, hand hurt.. no strenght can't grip anything, hurt to straighten out (feel like when you have raked a yard all day and later there stiff) Think there is any reason for concern/trip to ER?
Re: [TMIC] Help, Advise please
Kim, I think you should be seeing your neuro right away. Thinking of you, Heather in Calgary - Original Message - From: kimr1...@bellsouth.net Date: Wednesday, January 21, 2009 4:40 pm Subject: [TMIC] Help, Advise please To: TMIC tmic-list@eskimo.com Have had TM since 04 this is a first and need advise had relapse last april 08.. legs were more numb than ususal today legs are more numb but arms have little to no strenght, hand hurt.. no strenght can't grip anything, hurt to straighten out (feel like when you have raked a yard all day and later there stiff) Think there is any reason for concern/trip to ER?
Re: [TMIC] Help, Advise please
I talked to Kim. She called the Dr. on call at The MS Center of Atlanta. He suggested that she rest for the night unless there was a major change and call her Dr. at the MS Center in the morning. So that is an update. I know she appreciates all of the advise and help from the list! Jenna From: HEATHER FRASER pieterheat...@shaw.ca To: kimr1...@bellsouth.net Cc: TMIC tmic-list@eskimo.com Sent: Wednesday, January 21, 2009 9:21:22 PM Subject: Re: [TMIC] Help, Advise please Kim, I think you should be seeing your neuro right away. Thinking of you, Heather in Calgary - Original Message - From: kimr1...@bellsouth.net Date: Wednesday, January 21, 2009 4:40 pm Subject: [TMIC] Help, Advise please To: TMIC tmic-list@eskimo.com Have had TM since 04 this is a first and need advise had relapse last april 08.. legs were more numb than ususal today legs are more numb but arms have little to no strenght, hand hurt.. no strenght can't grip anything, hurt to straighten out (feel like when you have raked a yard all day and later there stiff) Think there is any reason for concern/trip to ER?
Re: [TMIC] Help, Advise please
I agree. Worrying about it will be a detriment, also. It could be something very innocent but just not worth taking the chance on. Jeanne in Dayton ---Original Message--- From: Catherine Date: 1/21/2009 6:32:03 PM To: kimr1...@bellsouth.net Cc: Transverse Mylitis Group Subject: Re: [TMIC] Help, Advise please Better Safe Than Sorry!! I would go to the ER. Just my opinion. Subject: [TMIC] Help, Advise please Have had TM since 04 this is a first and need advise had relapse last april 08.. legs were more numb than ususal today legs are more numb but arms have little to no strenght, hand hurt.. no strenght can't grip anything, hurt to straighten out (feel like when you have raked a yard all day and later there stiff) Think there is any reason for concern/trip to ER? Untitled-1.jpg
[TMIC] Help
I am getting the digest but am not getting the individual postings. Up until this past week I have been getting the posting for all of you. Any suggestions? Ann in Virginia **Get the Moviefone Toolbar. Showtimes, theaters, movie news more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
Re: [TMIC] Help
Did you get this, Ann?? Jeanne in Dayton
[TMIC] help plz...need a educated Neuro
Does anyone know of a Neurologist that has experience with TM in Sacramento, Ca? I have not seen a right neuro for 2 and half years. Please help. __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [TMIC] help plz...need a educated Neuro
*Sal,* ** *Honey, I'll start looking for you right now. Not to worry, I'm very good at this.* ** *Chin up!* *Gracie*
[TMIC] HElp
How do I get off the email list? I am getting so emails I can not keep up. Please remove me from the list or let me know how I can get the emails to stop! Thanks, Colleen Shaw Colleen LET'S FIND A CURE FOR CROHN'S DISEASE - Looking for last minute shopping deals? Find them fast with Yahoo! Search.
[TMIC] Help us put an end to whaling.
Hi, www.whalesrevenge.com is trying to get a million people to sign a petition to stop whaling. If you could tell as many people as you can about our website, that would be a great help. Thanks for your support and remember to sign the petition.
Re: [TMIC] Help
Tonya, Thanks for the info. Fort Smith is like 3 hrs. from us. Perhaps my back surgeon I am soon going to will help me find a good neurologist or other pain dr. I think I need a pain dr. because I am on fentanyl patches and I don't think neuros. can prescribe them regularly; but not for sure if they can. I thought you always had to go to pain drs. when you were on #2 narcotics. Thanks again, Natalie [EMAIL PROTECTED] wrote: Natalie: I am in far eastern Oklahoma and my neurologist is at Ft. Smith at the Cooper Clinic. She has been good with me, though I've not had much pain to deal with. I was referred to her at onset by my pcp, and she came up with the TM diagnosis very quickly. I still see her every six months. Tonya Phillips. Cora Hi to all, Does anyone in the group live in Arkansas and go to a pain dr. in North Little Rock, or Little Rock? I am on the search of a pain dr. for my pain meds. I don't have much luck w/ them in my experience they are becoming here more more like Gods. My pcp dr. faxed info about me having a stimulator a morphine pump etc. to a new pain dr. in our little town (Hot Springs, AR). The nurse called and asked me about the stim. and pump. I told her the stim. had been removed so I could have MRI's this past year and the morphine pump went dry while I was at Baylor and I planned to have it removed. I told her I was on patcvhes at the present. I NEVER was even given a consultation appt. w/ this dr. and he turned me down said I needed to go to a neurologist. I've been in the same pain clinic for 15 years til this month since my pump is empty, the pain dr. I was using canceled me out. He also got mad at me when a back dr. in the hospital gave me a pca pump to control my pain it made him furious last year. It's a mess. Natalie - We won't tell. Get more on shows you hate to love (and love to hate): Yahoo! TV's Guilty Pleasures list. - Ahhh...imagining that irresistible new car smell? Check outnew cars at Yahoo! Autos.
[TMIC] Help
Hi to all, Does anyone in the group live in Arkansas and go to a pain dr. in North Little Rock, or Little Rock? I am on the search of a pain dr. for my pain meds. I don't have much luck w/ them in my experience they are becoming here more more like Gods. My pcp dr. faxed info about me having a stimulator a morphine pump etc. to a new pain dr. in our little town (Hot Springs, AR). The nurse called and asked me about the stim. and pump. I told her the stim. had been removed so I could have MRI's this past year and the morphine pump went dry while I was at Baylor and I planned to have it removed. I told her I was on patcvhes at the present. I NEVER was even given a consultation appt. w/ this dr. and he turned me down said I needed to go to a neurologist. I've been in the same pain clinic for 15 years til this month since my pump is empty, the pain dr. I was using canceled me out. He also got mad at me when a back dr. in the hospital gave me a pca pump to control my pain it made him furious last year. It's a mess. Natalie - We won't tell. Get more on shows you hate to love (and love to hate): Yahoo! TV's Guilty Pleasures list.
Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES A QUESTION
Title: AOL Email Hi Lynn, my dear friend... When I first switched to Lyrica it took me about three times before I was able to make it through the whole regime of titering off of the Neurontin while getting onto the Lyrica. The pain was bad, real bad at times and all I could do was to take enough pain pills to knock myself out and slept for a week or so. Now, after almost a month, I am glad that I stuck with it because I feel ever so much better. Most of the banding sensation that caused the majority of my pain is gone, or so much more relaxed, that I barely notice it. The burning pain is gone unless I push myself during rehab. Then it comes back with a vengeance, but only for a minute or so. Now, I am happy to be on Lyrica and know that you will be too, if you can only find a way to get through the adjustment period of only a few days. (Although at the time, it feels like it is going to last forever!) Good Luck, keep on trying and know that I am with you in heart... Peace and Prayers, Jude
Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES A QUESTION
Mornin' Jude ~ Thank you honey for letting me know your experience with the Lyrica. I started keeping a file on Lyrica emails and they are running about 80% for and 20% against it.. I'm leaning toward trying it my banding has been so much worse lately. It used to just come and go for a day at a time.now when it hits it will last sometimes 3 or 4 days. My pet boa constrictor never used to squeeze me this hard...! I don't know why you're having trouble getting emails through to me. it's probably AOL again..! When they come back to you, just keepresending themthey should eventually get through to me. I wish I could get high speed internet access but it isn't available out here in the "boonies" of Reno beneath the mountains yet. Bill isn't ready to switch ISP's yetso, for now, I'm stuck with AOL dial-up. Yuck..! Love ya, Lynn
Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES A QUESTION
Hi Jude ~ Please don't feel badlyI think we all feel "twitchy" at times and sometimes wish we could take back something we said. I know I have...! We all just need to forgive each otherand ourselveson those days. I so hope things will improve for you Jude.. you are a good person and you don't deserve what you are going through right now. If you are new here..welcome to our family!! You have come to the right place. Ask anything you like.someone will be more than happy to answer any of your questions. As Bob Cook said, "Come on in...the water is fine." Bob, I loved your dinner table analogy...that was great! :-) Sometimes when I read your letters to the list I think you missed your calling.you should have been a writer. Some of your letters are amazing...! Sandy.I have a paraplegic friend that went through the shoulder surgery a while back and he is doing great. Once again he is able to wheel his wheelchair down his boat ramp and go fishing. Make sure Terry keeps his shoulder immobilized just like his doc says...that's the really important part. Bring warm clothes when you visit the Sierraswe have been getting snow on the mountain tops! I have a question about pain meds while I'm here. have any of you regretted switching from Neurontin to Lyrica...? Does the Lyrica help you with the burning pain...? Every time I try to decrease my Neurontin the burning pain gets so bad I have to keep on taking it. Thanks. Love to all, Lynn
[TMIC] hELP WITH UNSUBSCRIBING
Title: AOL Email I feel like I am acting like a big bitch (sorry if I offended anyone) . How do people find their way onto the TMIC List? Don't they know where to go to find out how to unsubscribe? I am so tired of emailing people to help them find their way off of the List! Is anyone else answering these cries for help besides me? Because if you are, that means that I can ignore them. There can't be too many people out there who are more computer ignorant than I, but I found out how to unsub when I needed to. It wasn't that difficult... I'm sorry to be so horrendous. It's very late or early, 3:33 a.m., I'm in a bunch of pain, and my sense of humor is about done in. I will take all of the chastisement I deserve in the morning. Love you all ~ Jude
Re: [TMIC] hELP WITH UNSUBSCRIBING
I feel like I am acting like a big bitch (sorry if I offended anyone) . How do people find their way onto the TMIC List? Jude, This is one of the mytsteries of the internet. I think that people are generally lazy. They are motivated when searching for us, then unmotivated (satiated) when leaving. We used to have an official Un-Greeter, but I believe they either died, retired, or Un-subscribed. Frank
Re: [TMIC] hELP WITH UNSUBSCRIBING
I PERSONALLY THINK A LOT OF THE 'NEWBIES TO THE LIST ARE DESPERATELY SEARCHING FOR ANSWERS IN A FORMAT OR PRESENTATION THEY CAN EASILY ABSORB WITHOUT INTERACTION ON A PERSONAL BASIS, AND WHEN THEY SEE E-MAIL FROM THE LIST THAT IS NOT CONDUCIVE TO AN IMMEDIATE INFORMATION SOURCE REGARDING THEIR REASONS FOR JOINING IN THE FIRST PLACE, THEY GET FRUSTRATED [WHICH, AS YOU ALL WELL KNOW, IS EASILY DONE IF YOU HAVE TM, DEVICS OR OTHER RELATED PROBLEMS] AND GIVE UP AND UNSUBSCRIBE. LIKE I SAID BEFORE, WE ARE LIKE A FAMILY SITTING DOWN FOR DINNER CONVERSING ABOUT WHATEVER ENTERS OUR MIND, AND NOT NECESSARILY WHAT EFFECTS THE 'FAMILY' AS A WHOLE. NEWBIES ARE AFRAID TO INITIATE SUBJECTS FOR CONVERSATION, BUT ARE JUST AT THE TABLE TO LISTEN FIRST AND SEE WHAT IS BEING SERVED UP. IF THEY DO NOT LIKE THE MENU, THEY LEAVE BEFORE DESERT IS SERVED, OR BETTER YET, THEY WAIT IN THE FOYER AND LISTEN TO WHAT IS GOING ON [EVES DROPPING] , AND IF THE MENU DOES NOT SOUND INTERESTING, THEY LEAVE WITHOUT SEEING WHAT IS FOR DESERT. SAID SIMPLY, WE POST LOTS OF E-MAIL THAT IS NOT ALL TOGETHER THAT INFORMATIVE OR INTERESTING TO NEWBIES AND THEY PACK UP AND LEAVE, MANY DO SO WITHOUT US EVEN KNOWING THEY WERE SUBSCRIBED. IT WOULD BE GREAT IF WE WERE INFORMED WHEN A NEWBIE JOINS, AND THEN THEY CAN BE SENT A FORM OR 'PAT' E-MAIL INFORMING THEM THEY ARE WELCOME AND TO BENEFIT FROM THE TMIC, THEY SHOULD INTRODUCE THEMSELVES AND POST THEIR INQUIRIES FOR RESPONSES, OTHERWISE, THEY WILL BE COMING IN ON A CONVERSATION OF E-MAILS THAT MAY WELL NOT MAKE SENSE TO THEM, THEY GET BORED TO A FEELING OF THE LIST NOT BEING WHAT THEY MIGHT HAVE THOUGHT IT WAS, AND LEAVE, WITHOUT SO MUCH AS A HOWDY-DO. IF LUBIN CAN'T HAVE THE SYSTEM MAKE AN ANNOUNCEMENT OF A NEWBIE JOINING FOR US TO WELCOME THEM TO THE DINNER TABLE AND TO JOIN IN, THEN MAYBE A SHORT SENTENCE AT THE BOTTOM OF OUR E-MAIL COULD WELCOME NEWBIES AND ASK THEM TO JOIN IN THE CONVERSATION OR POSE THEIR INQUIRIES AT ANY TIME, KINDA LIKE A SIGN AT THE DOORWAY SAYING, 'COMMON IN, THE WATER'S FINE' AND JOIN IN' , OR SOME SUCH. JMTCW. BOB FROM SPRING, TEXAS TM CLASS OF ' 94 T-1 PARA A DES This electronic message is confidential and is intended only for the use of the individual to whom it is addressed. The information may also be legally privileged. This transmission is sent in trust, for the sole purpose of delivery to the intended recipient. If you have received this transmission in error, you are hereby notified, that any use, dissemination, distribution or reproduction of this, transmission is strictly prohibited. If you are not the intended, recipient, please immediately notify me by reply electronic message and delete the message from your system. IRS Circular 230 Notice: Any advice contained in this message was not written and is not intended to be used, and cannot be used, by any taxpayer for the purpose of avoiding penalties with respect to taxes that may be imposed upon the taxpayer. [Original Message] From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; TMIC-LIST@eskimo.com Date: 10/10/2006 9:04:50 AM Subject: Re: [TMIC] hELP WITH UNSUBSCRIBING I feel like I am acting like a big bitch (sorry if I offended anyone) . How do people find their way onto the TMIC List? Jude, This is one of the mytsteries of the internet. I think that people are generally lazy. They are motivated when searching for us, then unmotivated (satiated) when leaving. We used to have an official Un-Greeter, but I believe they either died, retired, or Un-subscribed. Frank
Re: [TMIC] HELP WITH UNSUBSCRIBING
Hi Bob and All ~ Excellent letter Bobgreat ideas..! Thought I should pop in here and let everyone know that I have been handling the "unsubscribers" for many months now. I write to them off list as soon as I see their email. There are many reasons why they have unsubscribed...some of these people are still writing to me off list the main reasons are 1) Too many emails for me to handle right now 2) I'm only unsubscribing for a while (many reasons on this...vacations, etc)...3) I can't subscribe from my work computer any more..fortunately I have rarely had anyone unsubscribe because of any of our unsavory dinner table conversations. :-) Many of these people have subscribed again and are "up in the rafters" just "listening." I can totally understand why people just simply send an email to the list wanting to unsubscribe. It's so much easier than figuring out where the home page is that they subscribed from in the first place.. and they just KNOW that someone on the list will help them out. They are right! :-) That's what we are here for! :-) So. if you see someone wanting to unsubscribe just delete the message and know I will take care of them. If the day ever comes that I can't ...I will email the list and let someone else take over the job. Love to all, Lynn
Re: [TMIC] hELP WITH UNSUBSCRIBING
Bob, Excellent idea. My second most favorite site dealing with immuno- diseases is Brain Talk at Harvard Neurology, Multiple Sclerosis. BrainTalk does have a group for T.M., they try to welcome people but again it'x just sort of left up to the group. T,M, and M.S. have many similar symptoms and problems. F
Re: [TMIC] HELP WITH UNSUBSCRIBING
Title: AOL Email Lynn, You are so kind. I have made myself feel like an ass, again. I was feeling "twitchy" and took it out on "unsubs." Thanks for doing a job that no one thanks you for. Peace, Jude
[TMIC] Help with meds and copays
Do you know about these? They both have programs for many different disorders or diseases and will provide meds at no cost and will also pay co-pays or will pay during the "gap" period with Medicare Part D. National Organization for Rare Disorders, Inc (NORD) in Danbury CT. 1 866-924-0100Patient Access Network Foundation in Charlotte, NC 1 866-316-7263Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/
Re: [TMIC] help with questions
I know that with my diagnosis of TM the mri showed a clear lesion in the t4-5 area of the spinal cord. My first mri was in 1993. Since then I have had 5 flare ups and now have a diagnosis of recurrent TM. Each mri shows that same lesion and inflammation in the spinal cord. Although there are people given a diagnosis of TM when nothing shows up on the mri. This is just my experience with mri's and I have now had more than I can count. Lynn in RI - Original Message - From: rdbfeb To: tmic-list@eskimo.com Sent: Wednesday, May 17, 2006 6:52 PM Subject: [TMIC] help with questions I have been subscribed to the site for a while now and have searched archive records for assistance to my problem. February 1999 I woke up one Monday morning with a strange feeling from my waistdown. Over the next three weeks i steadily got worse and had to use a cane for walking. At the time I had Brain MRI's with and without contrast, evoked potentials and spinal tap. The only test that showed any problems was the spinal tap. The Nuro's exact words were The abnormalities seen in your spinal fluid are consistant with those I see in MS patients, so lets wait and see. He also said he was beginning to wonder if it was all in my head. In the mean time lets call it Transverse Myletitis. For the next 7 years the only problem I had was weekness in left leg and numbness in feet. During this episode I took no medicine of any Kind. I did not go back to that Nuro. December 2 of 2005 my left side went numb(still is) and my left leg got worse. I saw my primary care physician. He put me on Lyrica and recommended I see a Nuro. My old one was no longer seeing patients, it would be 4 months before I could get an appointment with a new one. Three weeks later I had fallen 3 times. This time primary ordered brain MRI. This one showed white matter suspious of MS. March I get to see a Nurologist. He orders two more MRI's. These of Thorasic and neck level. I take another fall. I see the Nurologist. He says new MRI's look could and he's leaning toward leaving the Diagnosis as Transverse Myletitis. I said I thought TM was single occurance. He said he thought it was just a flair up. I asked why new areas involved? He said we could call it clinical MS but lets do another brain MRI with and without contrast and see if any change since January. So, Exactly what , in most of your cases, have show up on your MRI's to constitute the diagnosis of TM. I know what lesions are so is that what is expected. If so, and I have not had any why TM. Should I force the MS diagnosis ? Should I just wait and see again? So many questions, so few answers..
Re: [TMIC] help with questions
The abnormalities seen in your spinal fluid are consistant with those I see in MS patients, so lets wait and see. MRI. This one showed white matter suspious of MS. sounds like MS to me. I'd like to see MRI's of Brain over the next few years. Do you have a lesion in your spinal cord? Good Luck F
[TMIC] help with questions
I have been subscribed to the site for a while now and have searched archive records for assistance to my problem. February 1999 I woke up one Monday morning with a strange feeling from my waistdown. Over the next three weeks i steadily got worse and had to use a cane for walking. At the time I had Brain MRI's with and without contrast, evoked potentials and spinal tap. The only test that showed any problems was the spinal tap. The Nuro's exact words were The abnormalities seen in your spinal fluid are consistant with those I see in MS patients, so lets wait and see. He also said he was beginning to wonder if it was all in my head. In the mean time lets call it Transverse Myletitis. For the next 7 years the only problem I had was weekness in left leg and numbness in feet. During this episode I took no medicine of any Kind. I did not go back to that Nuro. December 2 of 2005 my left side went numb(still is) and my left leg got worse. I saw my primary care physician. He put me on Lyrica and recommended I see a Nuro. My old one was no longer seeing patients, it would be 4 months before I could get an appointment with a new one. Three weeks later I had fallen 3 times. This time primary ordered brain MRI. This one showed white matter suspious of MS. March I get to see a Nurologist. He orders two more MRI's. These of Thorasic and neck level. I take another fall. I see the Nurologist. He says new MRI's look could and he's leaning toward leaving the Diagnosis as Transverse Myletitis. I said I thought TM was single occurance. He said he thought it was just a flair up. I asked why new areas involved? He said we could call it clinical MS but lets do another brain MRI with and without contrast and see if any change since January. So, Exactly what , in most of your cases, have show up on your MRI's to constitute the diagnosis of TM. I know what lesions are so is that what is expected. If so, and I have not had any why TM. Should I force the MS diagnosis ? Should I just wait and see again? So many questions, so few answers..
[TMIC] Help
I am looking for the following people. If you know how I can contact them, please let me know, or if you are one of these people, please send me a private reply. Neil and Wendy Ross (Cole's Mom and Dad) Larry Throne from Oklahoma Glen Winkel If any of you know how to contact them, please let me know. Thanks! Debbie[EMAIL PROTECTED]
[TMIC] Help TMA
If any of our folks are thinking about shopping on line for Christmas presents, I would like to suggest finding a place to shop that supports our own organization. That would be the iGive mall where they have everything from cloths toxylophones to well...what ever you can think of. If you go to the site here and sign in, http://www.iGive.com/html/refer.cfm?causeid=19323 and please designate the International Disability Coalition as the placeyou choose to have your bonusdollars sent. This amount is based on what you buy and later on they will send you a notice of how much you have had them donate to this IDC. This is the organization that Jim Lubin started and that helps us TMers raise funds to support the organization so they don't have to take as much money out of their own pockets to keep it going. It won't cost you a penny to do this and it sure will help. Thanks, Mary Eden
Re: [TMIC] Help TMA
I have the Transerve Myelitis Association listed there as my charity of choice. I don't know if I've ever heard of the International Disability Association -- It sounds a little like Gunny's orgnaization, but I can't remember for sure. Barbara H. In a message dated 11/19/2005 4:54:03 PM Eastern Standard Time, [EMAIL PROTECTED] writes: If any of our folks are thinking about shopping on line for Christmas presents, I would like to suggest finding a place to shop that supports our own organization. That would be the iGive mall where they have everything from cloths toxylophones to well...what ever you can think of. If you go to the site here and sign in, http://www.iGive.com/html/refer.cfm?causeid=19323 and please designate the International Disability Coalition as the placeyou choose to have your bonusdollars sent. This amount is based on what you buy and later on they will send you a notice of how much you have had them donate to this IDC. This is the organization that Jim Lubin started and that helps us TMers raise funds to support the organization so they don't have to take as much money out of their own pockets to keep it going. It won't cost you a penny to do this and it sure will help. Thanks, Mary Eden
Re: [TMIC] Help TMA
In a message dated 11/19/2005 5:03:05 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I have the Transerve Myelitis Association listed there as my charity of choice. I don't know if I've ever heard of the International Disability Association -- It sounds a little like Gunny's orgnaization, but I can't remember for sure. Barbara H. Oops -- that was International Disability Coalition, as Mary Eden said, not Association. I just googled it, and I think that is Gunny's organization -- another worthy charity. Barbara H.
Re: [TMIC] Help TMA
Folks should designate the Transverse Myelitis Association, not the IDC for the IGive bonus dollars. The TMIC is supported by the TMA, not the IDC, which is Gunny's organization. Gets confusing doesn't it? - Original Message - From: Mary Eden Cochran To: tmic-list@eskimo.com Sent: Saturday, November 19, 2005 1:51 PM Subject: [TMIC] Help TMA If any of our folks are thinking about shopping on line for Christmas presents, I would like to suggest finding a place to shop that supports our own organization. That would be the iGive mall where they have everything from cloths toxylophones to well...what ever you can think of. If you go to the site here and sign in, http://www.iGive.com/html/refer.cfm?causeid=19323 and please designate the International Disability Coalition as the placeyou choose to have your bonusdollars sent. This amount is based on what you buy and later on they will send you a notice of how much you have had them donate to this IDC. This is the organization that Jim Lubin started and that helps us TMers raise funds to support the organization so they don't have to take as much money out of their own pockets to keep it going. It won't cost you a penny to do this and it sure will help. Thanks, Mary Eden
Re: [TMIC] Help!! (Showers)
Frank ~ Bob Patti gave you the right advice on hand held shower heads. I'm with you...I can't stand under a shower either with this hypersensitive skin! One thing I would suggest is a padded bath bench. I have tried both and the padded one works best for mehowever..make sure you sit on a washcloth or hand towel or something because once it gets all wet and soapy it gets slippery and we don't want you to wind up sitting in the tub! Hugs, Lynn
