Re: [TMIC] I haven't been here for a long time
Hi! From what all I have heard from you all about the TM Facebook, I have decided not to use it. You just can’t beat this group of TM’ers. I do wish more of you would join in more often. We need all opinions and concerns. Janice From: j.d...@shaw.ca Sent: Sunday, October 02, 2011 12:34 AM To: pjv1...@chartermi.net ; tmic Subject: Re: [TMIC] I haven't been here for a long time I am in on the facebook groups, but I don't like it. I much prefer to hear from everyone on the tmic list. It is much more personal and a lot more information is shared. Facebook is simply something for people to do while they are not doing anything. If that makes sense. I am glad you heard from Jude. She is such a special lady. Janet Dunn - Original Message - From: pjv1...@chartermi.net To: tmic Sent: Saturday, October 01, 2011 6:34 PM Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
John I am glad you are getting some relief from your pain. I also stopped Neuronton (gabapentin) as it was doing absolutely nothing for me except cause me to gain some unwanted and unneeded pounds. I can't see putting stuff in your body if it doesn't help. I will hope you continue to feel better. Patti - Wisconsin On Mon, Oct 3, 2011 at 6:37 PM, john snodgrass jcs...@yahoo.com wrote: I have been through several days that were not as bad as normal. i am glad for the relief. learned not to hold my breath but to take one moment at a time. i stopped taking one of my meds. it stopped being useful. Neuronton. seamed i was hurting in areas that it use to help with so i started down dosing untill i just quit. i dont feel any worse for the lack of it so why bother. I am almost off of the backlofin also. feel the same as i did taking max + dosage. I dont jerk as much this year as i did last year. who knows. still taking the liver killers though. -- *From:* Jeron Rampersad rumc...@hotmail.com *To:* em...@telephonelady.com; pjv1...@chartermi.net; tmic-list@eskimo.com *Sent:* Sunday, October 2, 2011 9:03 AM *Subject:* RE: [TMIC] I haven't been here for a long time Indeed! where is Dalton? I haven't heard from him in a long while. John has also disappeared. Hope these guys are ok. I wonder why it's always so quiet here. Please be well my friends! Jeron -- From: em...@telephonelady.com To: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: RE: [TMIC] I haven't been here for a long time Date: Sat, 1 Oct 2011 21:43:19 -0400 I am here…..and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John….where has he been lately? Maybe this is a good thing….everyone is without pain, spasms, banding, etc…..so no one is talking….LOL OH…..I did forget one thing….my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms…it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn’t work in all spinal cord injury patients but so far it is working with my husband…praise the Lord!!! Emily -- *From:* pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] *Sent:* Saturday, October 01, 2011 9:35 PM *To:* tmic *Subject:* [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
PregabelinLyrica; That what's works for me. And I did put on the poundsabout 20 of them. But I sleep better and can forget about the pain for hours on end. It is harder getting up from sitting, and walking is a bit harder; but with the pain down, I can actually think and do things with my mind, impossible before since it took an act of great will to push the pain down enough to do anything useful. Dalton From: Patricia Cooley patticoole...@gmail.com Date: Tue, 4 Oct 2011 08:54:37 -0500 To: john snodgrass jcs...@yahoo.com Cc: Jeron Rampersad rumc...@hotmail.com, Emily em...@telephonelady.com, pjv1...@chartermi.net pjv1...@chartermi.net, tmic-list@eskimo.com tmic-list@eskimo.com Subject: Re: [TMIC] I haven't been here for a long time Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 4 Oct 2011 06:56:45 -0700 John I am glad you are getting some relief from your pain. I also stopped Neuronton (gabapentin) as it was doing absolutely nothing for me except cause me to gain some unwanted and unneeded pounds. I can't see putting stuff in your body if it doesn't help. I will hope you continue to feel better. Patti - Wisconsin On Mon, Oct 3, 2011 at 6:37 PM, john snodgrass jcs...@yahoo.com wrote: I have been through several days that were not as bad as normal. i am glad for the relief. learned not to hold my breath but to take one moment at a time. i stopped taking one of my meds. it stopped being useful. Neuronton. seamed i was hurting in areas that it use to help with so i started down dosing untill i just quit. i dont feel any worse for the lack of it so why bother. I am almost off of the backlofin also. feel the same as i did taking max + dosage. I dont jerk as much this year as i did last year. who knows. still taking the liver killers though. From: Jeron Rampersad rumc...@hotmail.com To: em...@telephonelady.com; pjv1...@chartermi.net; tmic-list@eskimo.com Sent: Sunday, October 2, 2011 9:03 AM Subject: RE: [TMIC] I haven't been here for a long time Indeed! where is Dalton? I haven't heard from him in a long while. John has also disappeared. Hope these guys are ok. I wonder why it's always so quiet here. Please be well my friends! Jeron From: em...@telephonelady.com To: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: RE: [TMIC] I haven't been here for a long time Date: Sat, 1 Oct 2011 21:43:19 -0400 I am here..and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John.where has he been lately? Maybe this is a good thing.everyone is without pain, spasms, banding, etc..so no one is talking.LOL OH..I did forget one thing.my husband is on a vitamin B complex with folic acid and it has helped with banding and spasmsit is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn¹t work in all spinal cord injury patients but so far it is working with my husbandpraise the Lord!!! Emily From:pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
oh well. a good day is a relief but not this day. where i use to work when things went askew one would reply i am having another first day i am having another first day. beyond pushing it out of my mind to just not losing my mind. it's like computers memory running at full capacity dont say anything ~~ From: Dalton Garis malugss...@gmail.com To: pat cooley patticoole...@gmail.com; john snodgrass jcs...@yahoo.com Cc: Jeron Rampersad rumc...@hotmail.com; Emily em...@telephonelady.com; pjv1...@chartermi.net pjv1...@chartermi.net; tmic-list@eskimo.com tmic-list@eskimo.com Sent: Tuesday, October 4, 2011 10:01 AM Subject: Re: [TMIC] I haven't been here for a long time Pregabelin—Lyrica; That what's works for me. And I did put on the pounds—about 20 of them. But I sleep better and can forget about the pain for hours on end. It is harder getting up from sitting, and walking is a bit harder; but with the pain down, I can actually think and do things with my mind, impossible before since it took an act of great will to push the pain down enough to do anything useful. Dalton From: Patricia Cooley patticoole...@gmail.com Date: Tue, 4 Oct 2011 08:54:37 -0500 To: john snodgrass jcs...@yahoo.com Cc: Jeron Rampersad rumc...@hotmail.com, Emily em...@telephonelady.com, pjv1...@chartermi.net pjv1...@chartermi.net, tmic-list@eskimo.com tmic-list@eskimo.com Subject: Re: [TMIC] I haven't been here for a long time Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 4 Oct 2011 06:56:45 -0700 John I am glad you are getting some relief from your pain. I also stopped Neuronton (gabapentin) as it was doing absolutely nothing for me except cause me to gain some unwanted and unneeded pounds. I can't see putting stuff in your body if it doesn't help. I will hope you continue to feel better. Patti - Wisconsin On Mon, Oct 3, 2011 at 6:37 PM, john snodgrass jcs...@yahoo.com wrote: I have been through several days that were not as bad as normal. i am glad for the relief. learned not to hold my breath but to take one moment at a time. i stopped taking one of my meds. it stopped being useful. Neuronton. seamed i was hurting in areas that it use to help with so i started down dosing untill i just quit. i dont feel any worse for the lack of it so why bother. I am almost off of the backlofin also. feel the same as i did taking max + dosage. I dont jerk as much this year as i did last year. who knows. still taking the liver killers though. From: Jeron Rampersad rumc...@hotmail.com To: em...@telephonelady.com; pjv1...@chartermi.net; tmic-list@eskimo.com Sent: Sunday, October 2, 2011 9:03 AM Subject: RE: [TMIC] I haven't been here for a long time Indeed! where is Dalton? I haven't heard from him in a long while. John has also disappeared. Hope these guys are ok. I wonder why it's always so quiet here. Please be well my friends! Jeron From: em...@telephonelady.com To: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: RE: [TMIC] I haven't been here for a long time Date: Sat, 1 Oct 2011 21:43:19 -0400 I am here…..and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John….where has he been lately? Maybe this is a good thing….everyone is without pain, spasms, banding, etc…..so no one is talking….LOL OH…..I did forget one thing….my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms…it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn’t work in all spinal cord injury patients but so far it is working with my husband…praise the Lord!!! Emily From:pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for variousreasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like
Re: [TMIC] I haven't been here for a long time
From: Dalton Garis malugss...@gmail.com To: Jeron Rampersad rumc...@hotmail.com Cc: em...@telephonelady.com em...@telephonelady.com; pjv1...@chartermi.net pjv1...@chartermi.net; tmic-list@eskimo.com tmic-list@eskimo.com Sent: Sunday, October 2, 2011 10:30 AM Subject: Re: [TMIC] I haven't been here for a long time In the USA Right now visiting my mother in Mass. Day by day two or three good and one bad but no seizures thank God so no complaints. Thanks for asking. Dalton Garis New York, New York On Oct 2, 2011, at 9:03 AM, Jeron Rampersad rumc...@hotmail.com wrote: Indeed! where is Dalton? I haven't heard from him in a long while. John has also disappeared. Hope these guys are ok. I wonder why it's always so quiet here. Please be well my friends! Jeron From: em...@telephonelady.com To: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: RE: [TMIC] I haven't been here for a long time Date: Sat, 1 Oct 2011 21:43:19 -0400 I am here…..and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John….where has he been lately? Maybe this is a good thing….everyone is without pain, spasms, banding, etc…..so no one is talking….LOL OH…..I did forget one thing….my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms…it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn’t work in all spinal cord injury patients but so far it is working with my husband…praise the Lord!!! Emily From:pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
I have been through several days that were not as bad as normal. i am glad for the relief. learned not to hold my breath but to take one moment at a time. i stopped taking one of my meds. it stopped being useful. Neuronton. seamed i was hurting in areas that it use to help with so i started down dosing untill i just quit. i dont feel any worse for the lack of it so why bother. I am almost off of the backlofin also. feel the same as i did taking max + dosage. I dont jerk as much this year as i did last year. who knows. still taking the liver killers though. From: Jeron Rampersad rumc...@hotmail.com To: em...@telephonelady.com; pjv1...@chartermi.net; tmic-list@eskimo.com Sent: Sunday, October 2, 2011 9:03 AM Subject: RE: [TMIC] I haven't been here for a long time Indeed! where is Dalton? I haven't heard from him in a long while. John has also disappeared. Hope these guys are ok. I wonder why it's always so quiet here. Please be well my friends! Jeron From: em...@telephonelady.com To: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: RE: [TMIC] I haven't been here for a long time Date: Sat, 1 Oct 2011 21:43:19 -0400 I am here…..and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John….where has he been lately? Maybe this is a good thing….everyone is without pain, spasms, banding, etc…..so no one is talking….LOL OH…..I did forget one thing….my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms…it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn’t work in all spinal cord injury patients but so far it is working with my husband…praise the Lord!!! Emily From:pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
Well Emily as the song goes, I've always been crazy but it's kept me from going insane. it sure has helped a lot with this mess i am in now too! From: Emily em...@telephonelady.com To: pjv1...@chartermi.net; 'tmic' tmic-list@eskimo.com Sent: Saturday, October 1, 2011 9:43 PM Subject: RE: [TMIC] I haven't been here for a long time I am here…..and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA . Has anyone heard? And what about our dear friend and crazy West VA buddy John….where has he been lately? Maybe this is a good thing….everyone is without pain, spasms, banding, etc…..so no one is talking….LOL OH…..I did forget one thing….my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms…it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn’t work in all spinal cord injury patients but so far it is working with my husband…praise the Lord!!! Emily From:pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
RE: [TMIC] I haven't been here for a long time
Indeed! where is Dalton? I haven't heard from him in a long while. John has also disappeared. Hope these guys are ok. I wonder why it's always so quiet here. Please be well my friends! Jeron From: em...@telephonelady.com To: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: RE: [TMIC] I haven't been here for a long time Date: Sat, 1 Oct 2011 21:43:19 -0400 I am here…..and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John….where has he been lately? Maybe this is a good thing….everyone is without pain, spasms, banding, etc…..so no one is talking….LOL OH…..I did forget one thing….my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms…it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn’t work in all spinal cord injury patients but so far it is working with my husband…praise the Lord!!! Emily From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
In the USA Right now visiting my mother in Mass. Day by day two or three good and one bad but no seizures thank God so no complaints. Thanks for asking. Dalton Garis New York, New York On Oct 2, 2011, at 9:03 AM, Jeron Rampersad rumc...@hotmail.com wrote: Indeed! where is Dalton? I haven't heard from him in a long while. John has also disappeared. Hope these guys are ok. I wonder why it's always so quiet here. Please be well my friends! Jeron From: em...@telephonelady.com To: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: RE: [TMIC] I haven't been here for a long time Date: Sat, 1 Oct 2011 21:43:19 -0400 I am here…..and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John….where has he been lately? Maybe this is a good thing….everyone is without pain, spasms, banding, etc…..so no one is talking….LOL OH…..I did forget one thing….my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms…it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn’t work in all spinal cord injury patients but so far it is working with my husband…praise the Lord!!! Emily From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. What tests? I'm fond of Jude, and I've been following her travails for a long, long time. Alton
Fwd: [TMIC] I haven't been here for a long time
Patti it was good to see your post and get the latest update on Jude. I miss all the regulars on TMIC but it seems we have all gone on to FB. I have met a lot of new people which I enjoy and I still get the posts from TMIC but it looks as though it is very quiet. I do contact Jude every few weeks but never get a response from her. I can see why if she has been in and out of the hospital. FB is really very easy. I know Jude is signed up on the 2 private TM groups. All she or Dave have to do is look on the left side of the screen and they will see the 2 groups listed. One is Transverse Myelitis Folks which is for everyone, and the other is TM-HA which is only for us gals so we can discuss girl things in private. Once you decide which group you want to go into you just click on it, and you can bounce from one to the other. If you are on FB I would be happy to sign you up or if you have any questions let me know. Again, it is good to get your post. Patti - Wisconsin P.S. It seems I was booted off too and that is probably why i haven't seen much activity here. I just signed up again On Sat, Oct 1, 2011 at 8:34 PM, pjv1...@chartermi.net wrote: Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
Hi, I've had tm since 8/13/95 and have tight banding all the time. It does get even tighter during stressful times,and I almost can't breathe. It's been awful the past few months. It's the worst part of tm for me,along with the nerve pain. Cheryl in gloomy Easthampton,MA. From: Gary Thomas gbthomas8...@sbcglobal.net To: pjv1...@chartermi.net; tmic tmic-list@eskimo.com Sent: Saturday, October 1, 2011 11:10 PM Subject: Re: [TMIC] I haven't been here for a long time Hi, Patti--I hope you do stay on TMIC for a a long time! You are one of the earliest ones I remember when I first got on (I remember since you are also in Michigan) along with Jude and others. I look on Facebook once in a while but am not on it much and did not even include my picture in my profile section (probably to the relief of Facebook friends). It seems like it can take up a lot of time yet I understand how it can help people connect but I do prefer this method of TM'ers communicating with each other. I haven't written much about my TM but the fatigue is the most annoying. I have been under stress with my mom in a nursing home with Alzheimer's and my dad having had a stroke last fall and living alone )but fortunately nearby). My two siblings live out of town so I keep track of both parents although my brother and sister do real well in coming as often as they can and giving me a break now and again. Applying for Medicaid a year ago and still not getting everything finalized yet has been almost a nightmare. This past week some news (or lack of it) regarding our Medicaid application set my banding off and I felt like I was being squeezed to death until I talked with our Elder Law attorney and it started ease off a bit. Does anyone else experience this increased banding or squeezed feeling in times of stress? I have appreciated over the years, on the list, the bits of advice given and the sharing of symptom experiences. Once in a while I have a slipper come off my foot and I don't know it until I see the slipper or my bare foot because I really don't feel anything much different whether the slippers are off or on. When this happens I remember the story I probably read on this list: a lady with TM was walking up church steps and didn't realize her shoes had come off until she heard people behind her laughing (may not be the exact story, but close, as I remember it). Anyway, I hope this list continues. Even with Facebook as an alternative. - Original Message - From: pjv1...@chartermi.net To: tmic Sent: Saturday, October 01, 2011 9:34 PM Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
As I've mentioned before, most of us have gravitated to the Facebook page because we can post fotos, articles, etc.. but am using both as well. BobbyJim in cooler Elvisland - Original Message - From: Emily To: pjv1...@chartermi.net ; 'tmic' Sent: Saturday, October 01, 2011 8:43 PM Subject: RE: [TMIC] I haven't been here for a long time I am here…..and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John….where has he been lately? Maybe this is a good thing….everyone is without pain, spasms, banding, etc…..so no one is talking….LOL OH…..I did forget one thing….my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms…it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn’t work in all spinal cord injury patients but so far it is working with my husband…praise the Lord!!! Emily -- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
There is no reason why we can't use Facebook to connect with new names, obtain e-addies and carry on separately; I do it all the time. BobbyJim, on the TMIC since Sept 97 - Original Message - From: Gary Thomas To: pjv1...@chartermi.net ; tmic Sent: Saturday, October 01, 2011 10:10 PM Subject: Re: [TMIC] I haven't been here for a long time Hi, Patti--I hope you do stay on TMIC for a a long time! You are one of the earliest ones I remember when I first got on (I remember since you are also in Michigan) along with Jude and others. I look on Facebook once in a while but am not on it much and did not even include my picture in my profile section (probably to the relief of Facebook friends). It seems like it can take up a lot of time yet I understand how it can help people connect but I do prefer this method of TM'ers communicating with each other. I haven't written much about my TM but the fatigue is the most annoying. I have been under stress with my mom in a nursing home with Alzheimer's and my dad having had a stroke last fall and living alone )but fortunately nearby). My two siblings live out of town so I keep track of both parents although my brother and sister do real well in coming as often as they can and giving me a break now and again. Applying for Medicaid a year ago and still not getting everything finalized yet has been almost a nightmare. This past week some news (or lack of it) regarding our Medicaid application set my banding off and I felt like I was being squeezed to death until I talked with our Elder Law attorney and it started ease off a bit. Does anyone else experience this increased banding or squeezed feeling in times of stress? I have appreciated over the years, on the list, the bits of advice given and the sharing of symptom experiences. Once in a while I have a slipper come off my foot and I don't know it until I see the slipper or my bare foot because I really don't feel anything much different whether the slippers are off or on. When this happens I remember the story I probably read on this list: a lady with TM was walking up church steps and didn't realize her shoes had come off until she heard people behind her laughing (may not be the exact story, but close, as I remember it). Anyway, I hope this list continues. Even with Facebook as an alternative. - Original Message - From: pjv1...@chartermi.net To: tmic Sent: Saturday, October 01, 2011 9:34 PM Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
Well, yes and no. Either page can be as personal as we want to make it. I dedicate a specific amount of time to FB and that's it, till the next day. However, my time there has increased a bit because most of my e-pals, on or off the TMIC have gravitated to FB as well. Some folks I haven't heard from in months, even years, now reply right away on FB. Go figger. From the few diehards not on FB, I hear less and less unless I write separately first. Does any one remember when I used to send news articles to y'all... Not anymore. Now, all I do is hit that page's FB link and it does all that work for me. tee hee BobbyJim in Elvisland - Original Message - From: j.d...@shaw.ca To: pjv1...@chartermi.net ; tmic Sent: Sunday, October 02, 2011 12:34 AM Subject: Re: [TMIC] I haven't been here for a long time I am in on the facebook groups, but I don't like it. I much prefer to hear from everyone on the tmic list. It is much more personal and a lot more information is shared. Facebook is simply something for people to do while they are not doing anything. If that makes sense. I am glad you heard from Jude. She is such a special lady. Janet Dunn - Original Message - From: pjv1...@chartermi.net To: tmic Sent: Saturday, October 01, 2011 6:34 PM Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
[TMIC] I haven't been here for a long time
Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
RE: [TMIC] I haven't been here for a long time
I am here...and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John..where has he been lately? Maybe this is a good thing..everyone is without pain, spasms, banding, etc...so no one is talking..LOL OH...I did forget one thing..my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms.it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn't work in all spinal cord injury patients but so far it is working with my husband.praise the Lord!!! Emily _ From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
RE: [TMIC] I haven't been here for a long time
Hi Emily. I tried Metanx for about three months at the suggestion of the podiatrist I've been seeing. I originally went to him for a toe fungus I had and after detailing my TM for him, he recommended a new extremely light-weight brace for my weak left leg to help with my balance issues. The brace works great whenever I have to do a lot of walking (grocery store, mall, etc.) but I don't wear it all the time because my leg then tends to depend too much on it and begins to weaken even more. Because of my neuropathy, he mentioned some success another patient of his had with Metanx and wanted me to try it. Unfortunately, I had no noticeable improvements of any sort and I decided to discontinue using it - especially considering it wasn't covered by my insurance and is somewhat costly. I'm glad to hear it is helping your husband, so it must be like everything else related to TM - what works for some doesn't necessarily work for all. It's a condition that requires trial-and-error for just about everything. The main thing is to stay on top of it - especially through forums such as this sight.since even the majority of doctors don't know enough about TM, it gives us the opportunity to see what's out there that others are using so we can take it back to our own physicians and make better-informed decisions on our treatment. No matter what. don't let TM get you down! If you do, it wins and that is the biggest tragedy of all! Betty (in Northern California) _ From: Emily [mailto:em...@telephonelady.com] Sent: Saturday, October 01, 2011 6:43 PM To: pjv1...@chartermi.net; 'tmic' Subject: RE: [TMIC] I haven't been here for a long time I am here...and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John..where has he been lately? Maybe this is a good thing..everyone is without pain, spasms, banding, etc...so no one is talking..LOL OH...I did forget one thing..my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms.it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn't work in all spinal cord injury patients but so far it is working with my husband.praise the Lord!!! Emily _ From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
RE: [TMIC] I haven't been here for a long time
Hi Betty, Weirdly, the Metanx prescription for my husband was also through his podiatrist. He was cutting his toenails and noticed the legs spasing. I just find it amazing that the podiatrist knew about Metanx but the Neurologist did not!! Emily _ From: Elizabeth Clark [mailto:xbeecla...@gmail.com] Sent: Saturday, October 01, 2011 10:17 PM To: em...@telephonelady.com; pjv1...@chartermi.net; 'tmic' Subject: RE: [TMIC] I haven't been here for a long time Hi Emily. I tried Metanx for about three months at the suggestion of the podiatrist I've been seeing. I originally went to him for a toe fungus I had and after detailing my TM for him, he recommended a new extremely light-weight brace for my weak left leg to help with my balance issues. The brace works great whenever I have to do a lot of walking (grocery store, mall, etc.) but I don't wear it all the time because my leg then tends to depend too much on it and begins to weaken even more. Because of my neuropathy, he mentioned some success another patient of his had with Metanx and wanted me to try it. Unfortunately, I had no noticeable improvements of any sort and I decided to discontinue using it - especially considering it wasn't covered by my insurance and is somewhat costly. I'm glad to hear it is helping your husband, so it must be like everything else related to TM - what works for some doesn't necessarily work for all. It's a condition that requires trial-and-error for just about everything. The main thing is to stay on top of it - especially through forums such as this sight.since even the majority of doctors don't know enough about TM, it gives us the opportunity to see what's out there that others are using so we can take it back to our own physicians and make better-informed decisions on our treatment. No matter what. don't let TM get you down! If you do, it wins and that is the biggest tragedy of all! Betty (in Northern California) _ From: Emily [mailto:em...@telephonelady.com] Sent: Saturday, October 01, 2011 6:43 PM To: pjv1...@chartermi.net; 'tmic' Subject: RE: [TMIC] I haven't been here for a long time I am here...and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John..where has he been lately? Maybe this is a good thing..everyone is without pain, spasms, banding, etc...so no one is talking..LOL OH...I did forget one thing..my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms.it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn't work in all spinal cord injury patients but so far it is working with my husband.praise the Lord!!! Emily _ From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
Hi, Patti--I hope you do stay on TMIC for a a long time! You are one of the earliest ones I remember when I first got on (I remember since you are also in Michigan) along with Jude and others. I look on Facebook once in a while but am not on it much and did not even include my picture in my profile section (probably to the relief of Facebook friends). It seems like it can take up a lot of time yet I understand how it can help people connect but I do prefer this method of TM'ers communicating with each other. I haven't written much about my TM but the fatigue is the most annoying. I have been under stress with my mom in a nursing home with Alzheimer's and my dad having had a stroke last fall and living alone )but fortunately nearby). My two siblings live out of town so I keep track of both parents although my brother and sister do real well in coming as often as they can and giving me a break now and again. Applying for Medicaid a year ago and still not getting everything finalized yet has been almost a nightmare. This past week some news (or lack of it) regarding our Medicaid application set my banding off and I felt like I was being squeezed to death until I talked with our Elder Law attorney and it started ease off a bit. Does anyone else experience this increased banding or squeezed feeling in times of stress? I have appreciated over the years, on the list, the bits of advice given and the sharing of symptom experiences. Once in a while I have a slipper come off my foot and I don't know it until I see the slipper or my bare foot because I really don't feel anything much different whether the slippers are off or on. When this happens I remember the story I probably read on this list: a lady with TM was walking up church steps and didn't realize her shoes had come off until she heard people behind her laughing (may not be the exact story, but close, as I remember it). Anyway, I hope this list continues. Even with Facebook as an alternative. - Original Message - From: pjv1...@chartermi.net To: tmic Sent: Saturday, October 01, 2011 9:34 PM Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] I haven't been here for a long time
Emily, Is the Metanx a prescription which is taken regularly to prevent spasms and banding, or just to take when syptoms occur? Right now I take valium but just when I have the spasms. I have not heard of this but may ask my doctor about it. I have tried Baclofen but it didn't seem to prevent spasms with me. Gary in Niles, MI - Original Message - From: Emily To: pjv1...@chartermi.net ; 'tmic' Sent: Saturday, October 01, 2011 9:43 PM Subject: RE: [TMIC] I haven't been here for a long time I am here...and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John..where has he been lately? Maybe this is a good thing..everyone is without pain, spasms, banding, etc...so no one is talking..LOL OH...I did forget one thing..my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms.it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn't work in all spinal cord injury patients but so far it is working with my husband.praise the Lord!!! Emily -- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
RE: [TMIC] I haven't been here for a long time
Hi Gary, My prescription for Metanx was one tablet twice a day (morning night). Don't know if it had any affect on my spasms as the Gabapentin (generic for Neurontin) and Hydrocodone (generic for Norco) I take four times a day takes care of the spasms. Betty (in Northern California) _ From: Gary Thomas [mailto:gbthomas8...@sbcglobal.net] Sent: Saturday, October 01, 2011 8:16 PM To: em...@telephonelady.com; pjv1...@chartermi.net; 'tmic' Subject: Re: [TMIC] I haven't been here for a long time Emily, Is the Metanx a prescription which is taken regularly to prevent spasms and banding, or just to take when syptoms occur? Right now I take valium but just when I have the spasms. I have not heard of this but may ask my doctor about it. I have tried Baclofen but it didn't seem to prevent spasms with me. Gary in Niles, MI - Original Message - From: Emily mailto:em...@telephonelady.com To: pjv1...@chartermi.net ; 'tmic' mailto:tmic-list@eskimo.com Sent: Saturday, October 01, 2011 9:43 PM Subject: RE: [TMIC] I haven't been here for a long time I am here...and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John..where has he been lately? Maybe this is a good thing..everyone is without pain, spasms, banding, etc...so no one is talking..LOL OH...I did forget one thing..my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms.it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn't work in all spinal cord injury patients but so far it is working with my husband.praise the Lord!!! Emily _ From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
RE: [TMIC] I haven't been here for a long time
Hi Emily, My neurologist probably knows about it, but I haven't seen him for about two years. My primary physician covers refilling my prescriptions and she's the one who referred me to the podiatrist. I was lucky enough when TM struck that the neuro on-call at my hospital ER was already familiar with TM and diagnosed me within an hour after my MRI. He's the one who prescribed the Neurontin Norco and since they've worked so far, I'm hesitant to try anything else - don't fix what isn't broke. Even though the podiatrist knew I was taking the other meds, he thought the Metanx might have some additional benefit. As long as I was able to continue taking my original meds along with the Metanx, I was willing to give it a try. Betty _ From: Emily [mailto:em...@telephonelady.com] Sent: Saturday, October 01, 2011 7:53 PM To: 'Elizabeth Clark'; pjv1...@chartermi.net; 'tmic' Subject: RE: [TMIC] I haven't been here for a long time Hi Betty, Weirdly, the Metanx prescription for my husband was also through his podiatrist. He was cutting his toenails and noticed the legs spasing. I just find it amazing that the podiatrist knew about Metanx but the Neurologist did not!! Emily _ From: Elizabeth Clark [mailto:xbeecla...@gmail.com] Sent: Saturday, October 01, 2011 10:17 PM To: em...@telephonelady.com; pjv1...@chartermi.net; 'tmic' Subject: RE: [TMIC] I haven't been here for a long time Hi Emily. I tried Metanx for about three months at the suggestion of the podiatrist I've been seeing. I originally went to him for a toe fungus I had and after detailing my TM for him, he recommended a new extremely light-weight brace for my weak left leg to help with my balance issues. The brace works great whenever I have to do a lot of walking (grocery store, mall, etc.) but I don't wear it all the time because my leg then tends to depend too much on it and begins to weaken even more. Because of my neuropathy, he mentioned some success another patient of his had with Metanx and wanted me to try it. Unfortunately, I had no noticeable improvements of any sort and I decided to discontinue using it - especially considering it wasn't covered by my insurance and is somewhat costly. I'm glad to hear it is helping your husband, so it must be like everything else related to TM - what works for some doesn't necessarily work for all. It's a condition that requires trial-and-error for just about everything. The main thing is to stay on top of it - especially through forums such as this sight.since even the majority of doctors don't know enough about TM, it gives us the opportunity to see what's out there that others are using so we can take it back to our own physicians and make better-informed decisions on our treatment. No matter what. don't let TM get you down! If you do, it wins and that is the biggest tragedy of all! Betty (in Northern California) _ From: Emily [mailto:em...@telephonelady.com] Sent: Saturday, October 01, 2011 6:43 PM To: pjv1...@chartermi.net; 'tmic' Subject: RE: [TMIC] I haven't been here for a long time I am here...and I am also on Facebook but I like this method MUCH better. I do agree, it has been very quiet here lately. I have been wondering how Dalton has been doing since he is back in the USA. Has anyone heard? And what about our dear friend and crazy West VA buddy John..where has he been lately? Maybe this is a good thing..everyone is without pain, spasms, banding, etc...so no one is talking..LOL OH...I did forget one thing..my husband is on a vitamin B complex with folic acid and it has helped with banding and spasms.it is a prescription only and it is called Metanx. Has anyone else ever heard of this? It doesn't work in all spinal cord injury patients but so far it is working with my husband.praise the Lord!!! Emily _ From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Saturday, October 01, 2011 9:35 PM To: tmic Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember
Re: [TMIC] I haven't been here for a long time
I am in on the facebook groups, but I don't like it. I much prefer to hear from everyone on the tmic list. It is much more personal and a lot more information is shared. Facebook is simply something for people to do while they are not doing anything. If that makes sense. I am glad you heard from Jude. She is such a special lady. Janet Dunn - Original Message - From: pjv1...@chartermi.net To: tmic Sent: Saturday, October 01, 2011 6:34 PM Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
