Re: [TMIC] sympom check question
Linda, Isn't it amazing that a matter as simple as emptying your bladder can go haywire..we are so unaware of the functions of our bodiesthat we do automatically, until we can't do them! What a learning curve tm has given us!Glad for you that you have some returning feeling/ability to go on your own. I remember how frustrated I was during the time I had to self cath, no feeling and no way to tell where the catheter should go..Looking back, I have so many stories to tell that today are really! funny .but, definitely weren't then!!! I guess I should tell that I was a complete to the t8, paralyzed from breast level down...with pt and no knowledge that I might not get back my ability to walk, etc, I was walking within 4 months with a walker. Today with residuals that others can't see, (except in this bitter cold,) I'm one of the walking wounded. Hugs, janh Stillwater, OK A lot of us have bladder issues with TM. When TM hit me, it took me a full day and a half to realizethat I hadn't gone. I just didn't have any feeling. So I put myself on a "potty" schedule. My doc sent me to a Urologist in Seattle who was very familiar with TM. I had the neurogenic bladder test (not that pleasant), but really glad I had it. I was told that my bladder was not emptying completely - in fact, hardly at all, but since I couldn't feel it, how would I know. So I was taught to self-cath. I have done this for almost 8 years now. However, by some miracle, in the last year I have gotten some feeling back and find I only have to cath maybe twice a day. The rest of the time I can just go on my own. I know it is said for the most part after 2 years whatever we're left with is what it is. But I really have not found that to be completely true. Many areas of my body have improved, a wonderful surprise, and then some things have pretty much been the same. It sounds like you may not have all your feeling back yet. And read any of the posts on the Message Forum - the bladder is usually the slowest to come back. But never give up. It sounds like your bladder may be doing a variety of things?? Did you have any tests when you saw the urologist? Are you on bladder meds? Ok - got some questions for you to answerThis is great - it's how we can help each other. Linda
Re: [TMIC] sympom check question
Patti, We are pretty similar in bladder and leg feeling.I use a 4-prong cane and probably always will, but I have gone from paralyzed to walking. Can't complain, but sometimes my mind goes on overdrive and I sure wish for the old days. But, at least, we all have each other. It was really rough going before I found you guys. Janice From: Patricia Cooley Sent: Sunday, January 10, 2010 11:38 AM To: 'Alton Ryder' ; 'L T CHERPESKI' Cc: 'randy rankin' ; 'Janice Nichols' ; 'tmic list' Subject: RE: [TMIC] sympom check question According to my neurologist, mine is at T-10. At first, my legs were useless. After about 2-3 days they got me up and sort of walking. After 4 weeks in P.T., I was doing pretty good in a walker so they discharged me. I went for P.T. for about 5 months and improved so very much. They were trying to get me to use a cane, which scared me to death since I have a problem with my balance. I am sure I almost broke bones in my therapist's hands while she was helping me. I also have bladder and bowel problems. I don't have the feeling when I have to urinate, but put myself on a potty schedule which works pretty well. I have noticed that when my bladder has become full, and I haven't gone for a while, I get a sensation that I have come to recognize as a need to go. I take acidophilus once a day and that helps keep me regular. My good leg is my left one. I don't have any feeling in parts of my feet (toes and top of my feet) so I have to be careful if I walk without shoes. My legs feel as they I have a bag of cement in my calves, but I do have some feeling in the skin. I went back to work part time a year ago, and since then I have been able to walk in the house without a walker or cane. Never thought I would ever get to that point. The worse thing is the neuropathy in my feet. They feel so cold they burn. All in all, I feel pretty lucky or I should say blessed that it isn't worse or that my pain so far is manageable. I hope this helps others who were affect in the T-spine. Patti - Wisconsin From: Alton Ryder [mailto:a-ry...@comcast.net] Sent: Sunday, January 10, 2010 8:48 AM To: L T CHERPESKI Cc: randy rankin; Janice Nichols; tmic list Subject: Re: [TMIC] sympom check question My damage was at T9-T10. All symptoms were below, none above. Bowels recovered immediately. Bladder also then it failed; I've had a Foley indwelling catheter for years Left leg control and sensation have recovered completely. Right leg sensations below mid-calf are, after a decade, still screwed up. Right foot/ankle spasticity was so severely and apparently permanently out of control that surgery was required to restore utility by cutting all tendons and using a foot/ankle brace. Alton On Jan 9, 2010, at 10:54 PM, L T CHERPESKI wrote: ask those who were hit in the T-spine
Re: [TMIC] sympom check question
I think you have to unsubscribe yourself, we can't do it for you. -- From: M Davis mdavis...@cox.net Sent: Sunday, January 10, 2010 10:25 PM To: pjv1...@chartermi.net; randy rankin rj_ran...@yahoo.com; Barbara H. barbara...@gmail.com; Janice Nichols jan...@centurytel.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question please take my name off your list. unsubscribe me, PLEASE - Original Message - From: pjv1...@chartermi.net To: randy rankin rj_ran...@yahoo.com; Barbara H. barbara...@gmail.com; Janice Nichols jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Saturday, January 09, 2010 12:20 PM Subject: Re: [TMIC] sympom check question Janice Nichols jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
I need to join in on this conversation. Linda, I am where you are at with cathing twice a day, morning and night, and pretty well empting out during the day. You really give me hope that I will do even better. I started out cathing 4 times a day and then setting the alarm at nite to get up every few hours to go again. So I have graduated somewhat.I don't set the alarm anymore, but sometimes my bladder doesn't seem to need me to be awake to do it's thing.Always wear protection! I go in a couple of weeks for my 3-year urology checkup. I could tell you a few good stories to on learning to cath! Janice From: Jan Hargrove Sent: Monday, January 11, 2010 10:58 AM To: L T CHERPESKI ; Gary Thomas ; pjv1...@chartermi.net ; randy rankin ; Barbara H. ; Janice Nichols Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Linda, Isn't it amazing that a matter as simple as emptying your bladder can go haywire..we are so unaware of the functions of our bodies that we do automatically, until we can't do them! What a learning curve tm has given us! Glad for you that you have some returning feeling/ability to go on your own. I remember how frustrated I was during the time I had to self cath, no feeling and no way to tell where the catheter should go.. Looking back, I have so many stories to tell that today are really! funny .but, definitely weren't then!!! I guess I should tell that I was a complete to the t8, paralyzed from breast level down...with pt and no knowledge that I might not get back my ability to walk, etc, I was walking within 4 months with a walker. Today with residuals that others can't see, (except in this bitter cold,) I'm one of the walking wounded. Hugs, janh Stillwater, OK A lot of us have bladder issues with TM. When TM hit me, it took me a full day and a half to realize that I hadn't gone. I just didn't have any feeling. So I put myself on a potty schedule. My doc sent me to a Urologist in Seattle who was very familiar with TM. I had the neurogenic bladder test (not that pleasant), but really glad I had it. I was told that my bladder was not emptying completely - in fact, hardly at all, but since I couldn't feel it, how would I know. So I was taught to self-cath. I have done this for almost 8 years now. However, by some miracle, in the last year I have gotten some feeling back and find I only have to cath maybe twice a day. The rest of the time I can just go on my own. I know it is said for the most part after 2 years whatever we're left with is what it is. But I really have not found that to be completely true. Many areas of my body have improved, a wonderful surprise, and then some things have pretty much been the same. It sounds like you may not have all your feeling back yet. And read any of the posts on the Message Forum - the bladder is usually the slowest to come back. But never give up. It sounds like your bladder may be doing a variety of things?? Did you have any tests when you saw the urologist? Are you on bladder meds? Ok - got some questions for you to answer This is great - it's how we can help each other. Linda Emoticon1.gif
Re: [TMIC] sympom check question
Well, first of all I am really amazed by your progress Jan, and so very happy for you. I've got some pretty funny stories about learning to cath that were NOT funny at the time. At the time, I thought boy you've really sunk to the lowest point now! Then it didn't take too long to realize that all of that stuff was old hat to these gals. They dealt with it every day. I actually told the learning to cath story to my mom and sisters - oh my gosh, we all laughed so hard we had to mop the tears off our faces. Janice, you definitely have improved if you're down to cathing twice a day. That is really great to hear. Cathing had just become a new normal part of my life. And then in the last year something just changed - and this is after 7 years of not feeling anything. There is always room for hope. That goes for all of us, whatever our challenges are. Be sure to ask your urologist a lot of questions and let him know exactly what your bladder had been and how it is now. These urologists have a lot of info up their sleeves. I'm looking forward to hearing what he has to say. Oh by the way, I can remember at night dreaming that I was wetting the bed. The next thing I knew I was sitting up in bed, startled - not realizing why until the very last second - if you get my drift. But that doesn't happen anymore, and that's what I'm hoping for you. That it just gets better over time. It's really quite amazing to think back to the beginning and see how far we've come. I know some days don't feel that way - I've had many and I'm sure most of us have. I know one thing for sure, I wouldn't want to go through the horrible shock of what happened in the beginning. For sure it's a day that none of us will ever forget. Linda - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: Jan Hargrovemailto:jmh1...@sbcglobal.net ; L T CHERPESKImailto:cherp...@msn.com ; Gary Thomasmailto:gbthomas8...@sbcglobal.net ; pjv1...@chartermi.netmailto:pjv1...@chartermi.net ; randy rankinmailto:rj_ran...@yahoo.com ; Barbara H.mailto:barbara...@gmail.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, January 11, 2010 8:24 PM Subject: Re: [TMIC] sympom check question I need to join in on this conversation. Linda, I am where you are at with cathing twice a day, morning and night, and pretty well empting out during the day. You really give me hope that I will do even better. I started out cathing 4 times a day and then setting the alarm at nite to get up every few hours to go again.So I have graduated somewhat.I don't set the alarm anymore, but sometimes my bladder doesn't seem to need me to be awake to do it's thing.Always wear protection! I go in a couple of weeks for my 3-year urology checkup. I could tell you a few good stories to on learning to cath! Janice From: Jan Hargrovemailto:jmh1...@sbcglobal.net Sent: Monday, January 11, 2010 10:58 AM To: L T CHERPESKImailto:cherp...@msn.com ; Gary Thomasmailto:gbthomas8...@sbcglobal.net ; pjv1...@chartermi.netmailto:pjv1...@chartermi.net ; randy rankinmailto:rj_ran...@yahoo.com ; Barbara H.mailto:barbara...@gmail.com ; Janice Nicholsmailto:jan...@centurytel.net Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Linda, Isn't it amazing that a matter as simple as emptying your bladder can go haywire..we are so unaware of the functions of our bodies that we do automatically, until we can't do them! What a learning curve tm has given us! Glad for you that you have some returning feeling/ability to go on your own. I remember how frustrated I was during the time I had to self cath, no feeling and no way to tell where the catheter should go.. Looking back, I have so many stories to tell that today are really! funny .but, definitely weren't then!!! I guess I should tell that I was a complete to the t8, paralyzed from breast level down...with pt and no knowledge that I might not get back my ability to walk, etc, I was walking within 4 months with a walker. Today with residuals that others can't see, (except in this bitter cold,) I'm one of the walking wounded. Hugs, janh Stillwater, OK -- A lot of us have bladder issues with TM. When TM hit me, it took me a full day and a half to realize that I hadn't gone. I just didn't have any feeling. So I put myself on a potty schedule. My doc sent me to a Urologist in Seattle who was very familiar with TM. I had the neurogenic bladder test (not that pleasant), but really glad I had it. I was told that my bladder was not emptying completely - in fact, hardly at all, but since I couldn't feel it, how would I know. So I was taught to self-cath. I have done this for almost 8 years now
Re: [TMIC] sympom check question
My damage was at T9-T10. All symptoms were below, none above. Bowels recovered immediately. Bladder also then it failed; I've had a Foley indwelling catheter for years Left leg control and sensation have recovered completely. Right leg sensations below mid-calf are, after a decade, still screwed up. Right foot/ankle spasticity was so severely and apparently permanently out of control that surgery was required to restore utility by cutting all tendons and using a foot/ankle brace. Alton On Jan 9, 2010, at 10:54 PM, L T CHERPESKI wrote: ask those who were hit in the T-spine
RE: [TMIC] sympom check question
According to my neurologist, mine is at T-10. At first, my legs were useless. After about 2-3 days they got me up and sort of walking. After 4 weeks in P.T., I was doing pretty good in a walker so they discharged me. I went for P.T. for about 5 months and improved so very much. They were trying to get me to use a cane, which scared me to death since I have a problem with my balance. I am sure I almost broke bones in my therapist's hands while she was helping me. I also have bladder and bowel problems. I don't have the feeling when I have to urinate, but put myself on a potty schedule which works pretty well. I have noticed that when my bladder has become full, and I haven't gone for a while, I get a sensation that I have come to recognize as a need to go. I take acidophilus once a day and that helps keep me regular. My good leg is my left one. I don't have any feeling in parts of my feet (toes and top of my feet) so I have to be careful if I walk without shoes. My legs feel as they I have a bag of cement in my calves, but I do have some feeling in the skin. I went back to work part time a year ago, and since then I have been able to walk in the house without a walker or cane. Never thought I would ever get to that point. The worse thing is the neuropathy in my feet. They feel so cold they burn. All in all, I feel pretty lucky or I should say blessed that it isn't worse or that my pain so far is manageable. I hope this helps others who were affect in the T-spine. Patti - Wisconsin From: Alton Ryder [mailto:a-ry...@comcast.net] Sent: Sunday, January 10, 2010 8:48 AM To: L T CHERPESKI Cc: randy rankin; Janice Nichols; tmic list Subject: Re: [TMIC] sympom check question My damage was at T9-T10. All symptoms were below, none above. Bowels recovered immediately. Bladder also then it failed; I've had a Foley indwelling catheter for years Left leg control and sensation have recovered completely. Right leg sensations below mid-calf are, after a decade, still screwed up. Right foot/ankle spasticity was so severely and apparently permanently out of control that surgery was required to restore utility by cutting all tendons and using a foot/ankle brace. Alton On Jan 9, 2010, at 10:54 PM, L T CHERPESKI wrote: ask those who were hit in the T-spine
Re: [TMIC] sympom check question
Tx for sharing. Its always useful to hear. It probably is theraputic for us to share. Sent from my Verizon Wireless BlackBerry -Original Message- From: Patricia Cooley patticoo...@wi.rr.com Date: Sun, 10 Jan 2010 11:38:23 To: 'Alton Ryder'a-ry...@comcast.net; 'L T CHERPESKI'cherp...@msn.com Cc: 'randy rankin'rj_ran...@yahoo.com; 'Janice Nichols'jan...@centurytel.net; 'tmic list'tmic-list@eskimo.com Subject: RE: [TMIC] sympom check question According to my neurologist, mine is at T-10. At first, my legs were useless. After about 2-3 days they got me up and sort of walking. After 4 weeks in P.T., I was doing pretty good in a walker so they discharged me. I went for P.T. for about 5 months and improved so very much. They were trying to get me to use a cane, which scared me to death since I have a problem with my balance. I am sure I almost broke bones in my therapist's hands while she was helping me. I also have bladder and bowel problems. I don't have the feeling when I have to urinate, but put myself on a potty schedule which works pretty well. I have noticed that when my bladder has become full, and I haven't gone for a while, I get a sensation that I have come to recognize as a need to go. I take acidophilus once a day and that helps keep me regular. My good leg is my left one. I don't have any feeling in parts of my feet (toes and top of my feet) so I have to be careful if I walk without shoes. My legs feel as they I have a bag of cement in my calves, but I do have some feeling in the skin. I went back to work part time a year ago, and since then I have been able to walk in the house without a walker or cane. Never thought I would ever get to that point. The worse thing is the neuropathy in my feet. They feel so cold they burn. All in all, I feel pretty lucky or I should say blessed that it isn't worse or that my pain so far is manageable. I hope this helps others who were affect in the T-spine. Patti - Wisconsin From: Alton Ryder [mailto:a-ry...@comcast.net] Sent: Sunday, January 10, 2010 8:48 AM To: L T CHERPESKI Cc: randy rankin; Janice Nichols; tmic list Subject: Re: [TMIC] sympom check question My damage was at T9-T10. All symptoms were below, none above. Bowels recovered immediately. Bladder also then it failed; I've had a Foley indwelling catheter for years Left leg control and sensation have recovered completely. Right leg sensations below mid-calf are, after a decade, still screwed up. Right foot/ankle spasticity was so severely and apparently permanently out of control that surgery was required to restore utility by cutting all tendons and using a foot/ankle brace. Alton On Jan 9, 2010, at 10:54 PM, L T CHERPESKI wrote: ask those who were hit in the T-spine
Re: [TMIC] sympom check question
Randy, this sounds like the nerves exiting the spine for the arms are getting abused, perhaps by a cervical disk. Get thee to a neurologist pronto. Alton On Jan 8, 2010, at 3:39 PM, randy rankin wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
I don't if this questions was directed at me or Barbara or both. I would be, interested barbara, in knowing your area of attack. As for me, Dr. H. was more concerned with getting me walking again than giving me answers to a lot of questions. He is a GOOD man. He stayed at the hosiptal throughout the night monitoring my progress (and others under his care of course). I do believe that I am walking because of him. Nevertheless, I have either never thought to ask or he hasn't told me. he said at first m.s. then said that the test ruled it out and said multiple myelopothy. Another doc said that multiple myelopothy and m.s. were the same thing - just the m.s. had legions and myelopothy didn't (that was my non-medical comprehension of all the jargon.) My neurologist finally concluded it was multiple myelopothy with transverse mylities because the symptoms and test results lead to that conclusion and also because he predicted that i would start having bladder problems with six to nine months. In Feb the next year I did indeed stop peeing and had problems. He speculated strong that it was TM. Last fall, I suddenly had vertigo, balance problems, heavy fatigue, tingling in face and pain in face. The MRI (2 separate ones from 2 places) showed increased signature (whatever that means) in two facial nerves coming from the brain stem. I was told it was trigeninal neurologia. Pain meds didn't touch it but neurotin and tegretal helped. I had wierdness from October 08 until about mid Feb 09 and then everything was gone. I grew better and like a brand new person until the first 3 days of June when the facial pain came back with an alarming strength and after taking the meds for 3 days it finally went away. I could not function mentally those 3 days - I stayed on the couch. NO one has really given me direct answers to anything except that I have textbook m.s. symptoms but no supporting test results except for the TM and the TN. As to YOUR QUESTION lol I do not know where the damaged area was at. I don't know if it was right on the spine or on the transverse nerves coming off the spine. I've read a lot in the literature on the subject and seem confussed with the definition of TM. Most conclude that TM HAS to be directly on the cord itself. Some suggest that the tranverse nerves coming off the spine can be damaged and TM can be diagnosed. I wonder if that is just for the anatomical terminology - transverse - for the direction and mylitise (myelopothy) for the action that happened. The doc says that my present symtoms are coming from my neck and even though he did acknowledge that a damaged disk could cause it, my examing primary care doc said 'no', he said that the fact that I am having this shocks without touching an item and then simply touching an item sounded troublesome. So far, the only symptom that I am having is that my right hand hurts deeply - it is not like extremly painful but there is a deep brusing feeling. There is also one around c6 and in my right shoulder blade - just one spot. I'm not in extreem pain at all. It only hurts when i bend my neck down and I get this funny bone feeling in my elbows and my right arm starts feeling like I've been working on - also my right shoulder and right flank beneath my arm - ONLY when I put my head to my chest. The main pain is in my right elbow and muscles in my arm. The only other thing is that 2 days before the shocks, all my muscles, except my left chest, back and gut, seemed to be tightening all at once. Even in my arms back, stomack and ESPECIALLY the back of my legs and even in my feet. I woke Thursday and all my muscles were pulled together. I was in such pain. I wanted to jump up like I had had a charlie horse and pull those d*() muscles back in shape! But i could NOT jump up. I had to roll off the bed. Then for a good while I could not get my arms to do what I wanted them to do and I was like frankenstein's monster - stiff as a plank in my legs and my arms seem to do the opposite to what I wanted them to do. Afterwards I was sore as if I'd been in the gym for the past three days. I'm trying to think that it is because I've been sitting way to much because all I ever do is work on this dissertation paper - write and research write and write - and sit sit sit. I am hoping that sitting too much is the cause because then I can just get off my fat butt and walk lol. --- On Sat, 1/9/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] sympom check question To: Barbara H. barbara...@gmail.com, randy rankin rj_ran...@yahoo.com Cc: tmic-list@eskimo.com Date: Saturday, January 9, 2010, 11:31 AM How high up did you all get hit by TM? Give me the part of the body, not the #. Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com
Re: [TMIC] sympom check question
Janice Nichols jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
ok - reread the question - 2005 I lost the use of my right leg. The right toe went first, then foot (couldn't put socks on), then couldn't cross leg, then could not sit or stand, then could not walk. My butt hurt like I had slipt on ice. My leg hurt like I'd been ice skating for 3 days. --- On Sat, 1/9/10, pjv1...@chartermi.net pjv1...@chartermi.net wrote: From: pjv1...@chartermi.net pjv1...@chartermi.net Subject: Re: [TMIC] sympom check question To: randy rankin rj_ran...@yahoo.com, Barbara H. barbara...@gmail.com, Janice Nichols jan...@centurytel.net Cc: tmic-list@eskimo.com Date: Saturday, January 9, 2010, 12:20 PM Janice Nichols jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #. Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
Hi Janice I was hit at C4-C6 - just above the bend when I tilt my head backwards. Grace sent a good spine map that I'll try to forward Patti - Michigan Janice Nichols jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
My firm belief is that once the spine is involved, everything else goes haywire.I am so sorry you have to deal with this. Sure hope the doc's get their acts together and get you cured with that situation. Janice From: randy rankin Sent: Saturday, January 09, 2010 12:08 PM To: Barbara H. ; Janice Nichols Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question I don't if this questions was directed at me or Barbara or both. I would be, interested barbara, in knowing your area of attack. As for me, Dr. H. was more concerned with getting me walking again than giving me answers to a lot of questions. He is a GOOD man. He stayed at the hosiptal throughout the night monitoring my progress (and others under his care of course). I do believe that I am walking because of him. Nevertheless, I have either never thought to ask or he hasn't told me. he said at first m.s. then said that the test ruled it out and said multiple myelopothy. Another doc said that multiple myelopothy and m.s. were the same thing - just the m.s. had legions and myelopothy didn't (that was my non-medical comprehension of all the jargon.) My neurologist finally concluded it was multiple myelopothy with transverse mylities because the symptoms and test results lead to that conclusion and also because he predicted that i would start having bladder problems with six to nine months. In Feb the next year I did indeed stop peeing and had problems. He speculated strong that it was TM. Last fall, I suddenly had vertigo, balance problems, heavy fatigue, tingling in face and pain in face. The MRI (2 separate ones from 2 places) showed increased signature (whatever that means) in two facial nerves coming from the brain stem. I was told it was trigeninal neurologia. Pain meds didn't touch it but neurotin and tegretal helped. I had wierdness from October 08 until about mid Feb 09 and then everything was gone. I grew better and like a brand new person until the first 3 days of June when the facial pain came back with an alarming strength and after taking the meds for 3 days it finally went away. I could not function mentally those 3 days - I stayed on the couch. NO one has really given me direct answers to anything except that I have textbook m.s. symptoms but no supporting test results except for the TM and the TN. As to YOUR QUESTION lol I do not know where the damaged area was at. I don't know if it was right on the spine or on the transverse nerves coming off the spine. I've read a lot in the literature on the subject and seem confussed with the definition of TM. Most conclude that TM HAS to be directly on the cord itself. Some suggest that the tranverse nerves coming off the spine can be damaged and TM can be diagnosed. I wonder if that is just for the anatomical terminology - transverse - for the direction and mylitise (myelopothy) for the action that happened. The doc says that my present symtoms are coming from my neck and even though he did acknowledge that a damaged disk could cause it, my examing primary care doc said 'no', he said that the fact that I am having this shocks without touching an item and then simply touching an item sounded troublesome. So far, the only symptom that I am having is that my right hand hurts deeply - it is not like extremly painful but there is a deep brusing feeling. There is also one around c6 and in my right shoulder blade - just one spot. I'm not in extreem pain at all. It only hurts when i bend my neck down and I get this funny bone feeling in my elbows and my right arm starts feeling like I've been working on - also my right shoulder and right flank beneath my arm - ONLY when I put my head to my chest. The main pain is in my right elbow and muscles in my arm. The only other thing is that 2 days before the shocks, all my muscles, except my left chest, back and gut, seemed to be tightening all at once. Even in my arms back, stomack and ESPECIALLY the back of my legs and even in my feet. I woke Thursday and all my muscles were pulled together. I was in such pain. I wanted to jump up like I had had a charlie horse and pull those d*() muscles back in shape! But i could NOT jump up. I had to roll off the bed. Then for a good while I could not get my arms to do what I wanted them to do and I was like frankenstein's monster - stiff as a plank in my legs and my arms seem to do the opposite to what I wanted them to do. Afterwards I was sore as if I'd been in the gym for the past three days. I'm trying to think that it is because I've been sitting way to much because all I ever do is work on this dissertation paper - write and research write and write - and sit sit sit. I am hoping that sitting too much is the cause because then I can just get off my fat butt and walk lol. --- On Sat, 1/9/10
Re: [TMIC] sympom check question
I get those electrical shock feelings. My first attack in Jan. 2006 was T10 - T12 and the second attack really got me at C4 - T1. If I reach for something either up or down, I experience shocks and drawing up of muscles in legs and arms. I also gets shocks just sitting in my recliner usually in my L leg which is my better leg. I also have shocks if I'm holding utinsels and trying to cut something or if I concentrate on doing something with my hands. My hands cramp up while the shocking feelng runs up from my hands thru my arms and back again. I've actually pulled forks and knives out of my hands with my mouth because I can't release whatever I've been holding and then I sit on my hands to warm them along with the pressure, my hands will start to relax and uncurl - all this within a couple of minutes but while its going on, it feels like hours. Right now its very cold and humid here in FL and all my symptoms are worse - so much worse. I can hardly move. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: pjv1...@chartermi.net To: randy rankin rj_ran...@yahoo.com, Barbara H. barbara...@gmail.com, Janice Nichols jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Saturday, January 9, 2010 1:28:12 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] sympom check question Hi Janice I was hit at C4-C6 - just above the bend when I tilt my head backwards. Grace sent a good spine map that I'll try to forward Patti - Michigan Janice Nichols jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
My MRI report says the lesion, if I understand it, is at C 5,6. Janice, you said not the # but that is what the report says and according to the map that looks to be about where I had the excruciating pain on 4/28/2004--a pain in the neck, literally! Gary in snowy, cold Michigan - Original Message - From: pjv1...@chartermi.net To: randy rankin rj_ran...@yahoo.com; Barbara H. barbara...@gmail.com; Janice Nichols jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Saturday, January 09, 2010 1:20 PM Subject: Re: [TMIC] sympom check question Janice Nichols jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
Gary, Thanks, but now I know, thanks to Gracie, about the spine map and I can refer to it any time you guys talk about your pain sites. Feels so good to be so smart! Janice -- From: Gary Thomas gbthomas8...@sbcglobal.net Sent: Saturday, January 09, 2010 7:43 PM To: pjv1...@chartermi.net; randy rankin rj_ran...@yahoo.com; Barbara H. barbara...@gmail.com; Janice Nichols jan...@centurytel.net Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question My MRI report says the lesion, if I understand it, is at C 5,6. Janice, you said not the # but that is what the report says and according to the map that looks to be about where I had the excruciating pain on 4/28/2004--a pain in the neck, literally! Gary in snowy, cold Michigan - Original Message - From: pjv1...@chartermi.net To: randy rankin rj_ran...@yahoo.com; Barbara H. barbara...@gmail.com; Janice Nichols jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Saturday, January 09, 2010 1:20 PM Subject: Re: [TMIC] sympom check question Janice Nichols jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
Janice,
The spine map is great. But there is one thing to remember. My doctors
explained this to me and I have seen it here in the literature that the TMA
provides - anything from your lesion and BELOW is/can be affected. For
instance, my lesions are up high in the cervical area, near my neck. Anything
below my neck is affected - arms, hands, bladder (neurogenic bladder), spasms,
balance, one leg can be worse than the other - true of so many of us TMers here
on the site.
You might ask those who were hit in the T-spine if this is true with their
challenges. For the most part, are they ok ABOVE the T area? Good topic.
Hopefully some will drop in and share their experiences.
Linda
- Original Message -
From: Janice Nicholsmailto:jan...@centurytel.net
To: Gary Thomasmailto:gbthomas8...@sbcglobal.net ;
pjv1...@chartermi.netmailto:pjv1...@chartermi.net ; randy
rankinmailto:rj_ran...@yahoo.com ; Barbara H.mailto:barbara...@gmail.com
Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Saturday, January 09, 2010 8:21 PM
Subject: Re: [TMIC] sympom check question
Gary,
Thanks, but now I know, thanks to Gracie, about the spine map and I can
refer to it any time you guys talk about your pain sites.
Feels so good to be so smart!
Janice
--
From: Gary Thomas
gbthomas8...@sbcglobal.netmailto:gbthomas8...@sbcglobal.net
Sent: Saturday, January 09, 2010 7:43 PM
To: pjv1...@chartermi.netmailto:pjv1...@chartermi.net; randy rankin
rj_ran...@yahoo.commailto:rj_ran...@yahoo.com; Barbara
H. barbara...@gmail.commailto:barbara...@gmail.com; Janice Nichols
jan...@centurytel.netmailto:jan...@centurytel.net
Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Subject: Re: [TMIC] sympom check question
My MRI report says the lesion, if I understand it, is at C 5,6. Janice,
you said not the # but that is what the report says and according to the
map that looks to be about where I had the excruciating pain on
4/28/2004--a pain in the neck, literally!
Gary in snowy, cold Michigan
- Original Message -
From: pjv1...@chartermi.netmailto:pjv1...@chartermi.net
To: randy rankin rj_ran...@yahoo.commailto:rj_ran...@yahoo.com;
Barbara H.
barbara...@gmail.commailto:barbara...@gmail.com; Janice Nichols
jan...@centurytel.netmailto:jan...@centurytel.net
Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Sent: Saturday, January 09, 2010 1:20 PM
Subject: Re: [TMIC] sympom check question
Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net
wrote:
How high up did you all get hit by TM? Give me the part of the body,
not the #.Thanks, Janice
From: Barbara H.
Sent: Saturday, January 09, 2010 10:40 AM
To: randy rankin
Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Subject: Re: [TMIC] sympom check question
Yes, I have experienced electric shock symptoms in different places.
It was most disturbing on the back of my head -- I really thought
something was going wrong inside. But it was just a nerve in the muscles
misfiring and setting off that jolt.
Barbara H.
http://barbarah.wordpress.comhttp://barbarah.wordpress.com/
On Fri, Jan 8, 2010 at 3:39 PM, randy rankin
rj_ran...@yahoo.commailto:rj_ran...@yahoo.com
wrote:
I would like to know if any of you have had the following
symptom(s)
I try to read everything people write and this might have
already been addressed
Yesterday, I had a power electric shock to my entire right arm
to the tip of my fingers. It wasn't a moving sensation. The entire arm
just felt like I just grabed an electric wire.
The only motion that I made before it happened was to raise my
RIGHT arm up to write on a board. I think I raised my head upwards to
look at the board.
less than two hours later the same even happened to my RIGHT
arm except I looked down, from a seated position, and reach to get my
cell phone. The second that I touched the phone and just started to
curl my fingers around it a more powerful electrical shock hit my entire
right arm. It hurt and frightened me.
Has anyone exprienced this?
The back of my neck has been hurting. It does NOT hurt to
move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
Right.Mine is the mid thoracic and down to my toes. I also have one leg
better than the other.Now, what is a neurogenic bladder - one affected by
TM and either slow to wake up or just doing odd things at
odd times?I don't think I quite have all my feeling back yet or maybe it is
damaged from TM.I go back to my urologist this month for my first yearly
check. Do I have questions for this man!!! For those of you
who have had TM longer than 3 years, how much change to your bladder have you
noticed?Any improvement?
Janice
From: L T CHERPESKI
Sent: Saturday, January 09, 2010 9:54 PM
To: Gary Thomas ; pjv1...@chartermi.net ; randy rankin ; Barbara H. ; Janice
Nichols
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] sympom check question
Janice,
The spine map is great. But there is one thing to remember. My doctors
explained this to me and I have seen it here in the literature that the TMA
provides - anything from your lesion and BELOW is/can be affected. For
instance, my lesions are up high in the cervical area, near my neck. Anything
below my neck is affected - arms, hands, bladder (neurogenic bladder), spasms,
balance, one leg can be worse than the other - true of so many of us TMers here
on the site.
You might ask those who were hit in the T-spine if this is true with their
challenges. For the most part, are they ok ABOVE the T area? Good topic.
Hopefully some will drop in and share their experiences.
Linda
- Original Message -
From: Janice Nichols
To: Gary Thomas ; pjv1...@chartermi.net ; randy rankin ; Barbara H.
Cc: tmic-list@eskimo.com
Sent: Saturday, January 09, 2010 8:21 PM
Subject: Re: [TMIC] sympom check question
Gary,
Thanks, but now I know, thanks to Gracie, about the spine map and I can
refer to it any time you guys talk about your pain sites.
Feels so good to be so smart!
Janice
--
From: Gary Thomas gbthomas8...@sbcglobal.net
Sent: Saturday, January 09, 2010 7:43 PM
To: pjv1...@chartermi.net; randy rankin rj_ran...@yahoo.com; Barbara
H. barbara...@gmail.com; Janice Nichols jan...@centurytel.net
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] sympom check question
My MRI report says the lesion, if I understand it, is at C 5,6. Janice,
you said not the # but that is what the report says and according to the
map that looks to be about where I had the excruciating pain on
4/28/2004--a pain in the neck, literally!
Gary in snowy, cold Michigan
- Original Message -
From: pjv1...@chartermi.net
To: randy rankin rj_ran...@yahoo.com; Barbara H.
barbara...@gmail.com; Janice Nichols jan...@centurytel.net
Cc: tmic-list@eskimo.com
Sent: Saturday, January 09, 2010 1:20 PM
Subject: Re: [TMIC] sympom check question
Janice Nichols jan...@centurytel.net wrote:
How high up did you all get hit by TM? Give me the part of the body,
not the #.Thanks, Janice
From: Barbara H.
Sent: Saturday, January 09, 2010 10:40 AM
To: randy rankin
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] sympom check question
Yes, I have experienced electric shock symptoms in different places.
It was most disturbing on the back of my head -- I really thought
something was going wrong inside. But it was just a nerve in the muscles
misfiring and setting off that jolt.
Barbara H.
http://barbarah.wordpress.com
On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com
wrote:
I would like to know if any of you have had the following
symptom(s)
I try to read everything people write and this might have
already been addressed
Yesterday, I had a power electric shock to my entire right arm
to the tip of my fingers. It wasn't a moving sensation. The entire arm
just felt like I just grabed an electric wire.
The only motion that I made before it happened was to raise my
RIGHT arm up to write on a board. I think I raised my head upwards to
look at the board.
less than two hours later the same even happened to my RIGHT
arm except I looked down, from a seated position, and reach to get my
cell phone. The second that I touched the phone and just started to
curl my fingers around it a more powerful electrical shock hit my entire
right arm. It hurt and frightened me.
Has anyone exprienced this?
The back of my neck has been hurting. It does NOT hurt to
move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
A lot of us have bladder issues with TM. When TM hit me, it took me a full day and a half to realize that I hadn't gone. I just didn't have any feeling. So I put myself on a potty schedule. My doc sent me to a Urologist in Seattle who was very familiar with TM. I had the neurogenic bladder test (not that pleasant), but really glad I had it. I was told that my bladder was not emptying completely - in fact, hardly at all, but since I couldn't feel it, how would I know. So I was taught to self-cath. I have done this for almost 8 years now. However, by some miracle, in the last year I have gotten some feeling back and find I only have to cath maybe twice a day. The rest of the time I can just go on my own. I know it is said for the most part after 2 years whatever we're left with is what it is. But I really have not found that to be completely true. Many areas of my body have improved, a wonderful surprise, and then some things have pretty much been the same. It sounds like you may not have all your feeling back yet. And read any of the posts on the Message Forum - the bladder is usually the slowest to come back. But never give up. It sounds like your bladder may be doing a variety of things?? Did you have any tests when you saw the urologist? Are you on bladder meds? Ok - got some questions for you to answer This is great - it's how we can help each other. Linda - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: L T CHERPESKImailto:cherp...@msn.com ; Gary Thomasmailto:gbthomas8...@sbcglobal.net ; pjv1...@chartermi.netmailto:pjv1...@chartermi.net ; randy rankinmailto:rj_ran...@yahoo.com ; Barbara H.mailto:barbara...@gmail.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, January 09, 2010 9:20 PM Subject: Re: [TMIC] sympom check question Right.Mine is the mid thoracic and down to my toes. I also have one leg better than the other.Now, what is a neurogenic bladder - one affected by TM and either slow to wake up or just doing odd things at odd times?I don't think I quite have all my feeling back yet or maybe it is damaged from TM.I go back to my urologist this month for my first yearly check. Do I have questions for this man!!! For those of you who have had TM longer than 3 years, how much change to your bladder have you noticed?Any improvement? Janice From: L T CHERPESKImailto:cherp...@msn.com Sent: Saturday, January 09, 2010 9:54 PM To: Gary Thomasmailto:gbthomas8...@sbcglobal.net ; pjv1...@chartermi.netmailto:pjv1...@chartermi.net ; randy rankinmailto:rj_ran...@yahoo.com ; Barbara H.mailto:barbara...@gmail.com ; Janice Nicholsmailto:jan...@centurytel.net Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Janice, The spine map is great. But there is one thing to remember. My doctors explained this to me and I have seen it here in the literature that the TMA provides - anything from your lesion and BELOW is/can be affected. For instance, my lesions are up high in the cervical area, near my neck. Anything below my neck is affected - arms, hands, bladder (neurogenic bladder), spasms, balance, one leg can be worse than the other - true of so many of us TMers here on the site. You might ask those who were hit in the T-spine if this is true with their challenges. For the most part, are they ok ABOVE the T area? Good topic. Hopefully some will drop in and share their experiences. Linda - Original Message - From: Janice Nicholsmailto:jan...@centurytel.net To: Gary Thomasmailto:gbthomas8...@sbcglobal.net ; pjv1...@chartermi.netmailto:pjv1...@chartermi.net ; randy rankinmailto:rj_ran...@yahoo.com ; Barbara H.mailto:barbara...@gmail.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, January 09, 2010 8:21 PM Subject: Re: [TMIC] sympom check question Gary, Thanks, but now I know, thanks to Gracie, about the spine map and I can refer to it any time you guys talk about your pain sites. Feels so good to be so smart! Janice -- From: Gary Thomas gbthomas8...@sbcglobal.netmailto:gbthomas8...@sbcglobal.net Sent: Saturday, January 09, 2010 7:43 PM To: pjv1...@chartermi.netmailto:pjv1...@chartermi.net; randy rankin rj_ran...@yahoo.commailto:rj_ran...@yahoo.com; Barbara H. barbara...@gmail.commailto:barbara...@gmail.com; Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question My MRI report says the lesion, if I understand it, is at C 5,6. Janice, you said not the # but that is what the report says and according to the map that looks to be about where I had the excruciating pain on 4/28/2004--a pain in the neck
Re: [TMIC] sympom check question
TM is essentially a spinal cord injury, except it didn't result from an accident. When you have a car crash and you inju a small part of the spical cord...everything below tends to be affected...TM is no different. A lesion means that the electric signals are cut off (to varying degrees) at that point. I know that in our rehab hospital, we are looked at, and treated no differently than the SCI patients, except that we have a greater chance of recovery. Laura On Practical-Homeschooling: Free Unit Studies About Canada and China. http://www.practical-homeschooling.org On 09/01/2010 8:54 PM, L T CHERPESKI wrote: Janice, The spine map is great. But there is one thing to remember. My doctors explained this to me and I have seen it here in the literature that the TMA provides - anything from your lesion and BELOW is/can be affected. For instance, my lesions are up high in the cervical area, near my neck. Anything below my neck is affected - arms, hands, bladder (neurogenic bladder), spasms, balance, one leg can be worse than the other - true of so many of us TMers here on the site. You might ask those who were hit in the T-spine if this is true with their challenges. For the most part, are they ok ABOVE the T area? Good topic. Hopefully some will drop in and share their experiences. Linda - Original Message - *From:* Janice Nichols mailto:jan...@centurytel.net *To:* Gary Thomas mailto:gbthomas8...@sbcglobal.net ; pjv1...@chartermi.net mailto:pjv1...@chartermi.net ; randy rankin mailto:rj_ran...@yahoo.com ; Barbara H. mailto:barbara...@gmail.com *Cc:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Sent:* Saturday, January 09, 2010 8:21 PM *Subject:* Re: [TMIC] sympom check question Gary, Thanks, but now I know, thanks to Gracie, about the spine map and I can refer to it any time you guys talk about your pain sites. Feels so good to be so smart! Janice -- From: Gary Thomas gbthomas8...@sbcglobal.net mailto:gbthomas8...@sbcglobal.net Sent: Saturday, January 09, 2010 7:43 PM To: pjv1...@chartermi.net mailto:pjv1...@chartermi.net; randy rankin rj_ran...@yahoo.com mailto:rj_ran...@yahoo.com; Barbara H. barbara...@gmail.com mailto:barbara...@gmail.com; Janice Nichols jan...@centurytel.net mailto:jan...@centurytel.net Cc: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question My MRI report says the lesion, if I understand it, is at C 5,6. Janice, you said not the # but that is what the report says and according to the map that looks to be about where I had the excruciating pain on 4/28/2004--a pain in the neck, literally! Gary in snowy, cold Michigan - Original Message - From: pjv1...@chartermi.net mailto:pjv1...@chartermi.net To: randy rankin rj_ran...@yahoo.com mailto:rj_ran...@yahoo.com; Barbara H. barbara...@gmail.com mailto:barbara...@gmail.com; Janice Nichols jan...@centurytel.net mailto:jan...@centurytel.net Cc: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Sent: Saturday, January 09, 2010 1:20 PM Subject: Re: [TMIC] sympom check question Janice Nichols jan...@centurytel.net mailto:jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com mailto:rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone
Re: [TMIC] sympom check question
Thanks Laura, great way to explain it. - Original Message - From: Laura Beaudinmailto:laura.beau...@gmail.com To: L T CHERPESKImailto:cherp...@msn.com Cc: Gary Thomasmailto:gbthomas8...@sbcglobal.net ; pjv1...@chartermi.netmailto:pjv1...@chartermi.net ; randy rankinmailto:rj_ran...@yahoo.com ; Barbara H.mailto:barbara...@gmail.com ; Janice Nicholsmailto:jan...@centurytel.net ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, January 09, 2010 9:52 PM Subject: Re: [TMIC] sympom check question TM is essentially a spinal cord injury, except it didn't result from an accident. When you have a car crash and you inju a small part of the spical cord...everything below tends to be affected...TM is no different. A lesion means that the electric signals are cut off (to varying degrees) at that point. I know that in our rehab hospital, we are looked at, and treated no differently than the SCI patients, except that we have a greater chance of recovery. Laura On Practical-Homeschooling: Free Unit Studies About Canada and China. http://www.practical-homeschooling.orghttp://www.practical-homeschooling.org/ On 09/01/2010 8:54 PM, L T CHERPESKI wrote: Janice, The spine map is great. But there is one thing to remember. My doctors explained this to me and I have seen it here in the literature that the TMA provides - anything from your lesion and BELOW is/can be affected. For instance, my lesions are up high in the cervical area, near my neck. Anything below my neck is affected - arms, hands, bladder (neurogenic bladder), spasms, balance, one leg can be worse than the other - true of so many of us TMers here on the site. You might ask those who were hit in the T-spine if this is true with their challenges. For the most part, are they ok ABOVE the T area? Good topic. Hopefully some will drop in and share their experiences. Linda - Original Message - *From:* Janice Nichols mailto:jan...@centurytel.netmailto:jan...@centurytel.net *To:* Gary Thomas mailto:gbthomas8...@sbcglobal.netmailto:gbthomas8...@sbcglobal.net ; pjv1...@chartermi.netmailto:pjv1...@chartermi.net mailto:pjv1...@chartermi.netmailto:pjv1...@chartermi.net ; randy rankin mailto:rj_ran...@yahoo.commailto:rj_ran...@yahoo.com ; Barbara H. mailto:barbara...@gmail.commailto:barbara...@gmail.com *Cc:* tmic-list@eskimo.commailto:tmic-list@eskimo.com mailto:tmic-list@eskimo.commailto:tmic-list@eskimo.com *Sent:* Saturday, January 09, 2010 8:21 PM *Subject:* Re: [TMIC] sympom check question Gary, Thanks, but now I know, thanks to Gracie, about the spine map and I can refer to it any time you guys talk about your pain sites. Feels so good to be so smart! Janice -- From: Gary Thomas gbthomas8...@sbcglobal.netmailto:gbthomas8...@sbcglobal.net mailto:gbthomas8...@sbcglobal.netmailto:gbthomas8...@sbcglobal.net Sent: Saturday, January 09, 2010 7:43 PM To: pjv1...@chartermi.netmailto:pjv1...@chartermi.net mailto:pjv1...@chartermi.netmailto:pjv1...@chartermi.net; randy rankin rj_ran...@yahoo.commailto:rj_ran...@yahoo.com mailto:rj_ran...@yahoo.commailto:rj_ran...@yahoo.com; Barbara H. barbara...@gmail.commailto:barbara...@gmail.com mailto:barbara...@gmail.commailto:barbara...@gmail.com; Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net mailto:jan...@centurytel.netmailto:jan...@centurytel.net Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com mailto:tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question My MRI report says the lesion, if I understand it, is at C 5,6. Janice, you said not the # but that is what the report says and according to the map that looks to be about where I had the excruciating pain on 4/28/2004--a pain in the neck, literally! Gary in snowy, cold Michigan - Original Message - From: pjv1...@chartermi.netmailto:pjv1...@chartermi.net mailto:pjv1...@chartermi.netmailto:pjv1...@chartermi.net To: randy rankin rj_ran...@yahoo.commailto:rj_ran...@yahoo.com mailto:rj_ran...@yahoo.commailto:rj_ran...@yahoo.com; Barbara H. barbara...@gmail.commailto:barbara...@gmail.com mailto:barbara...@gmail.commailto:barbara...@gmail.com; Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net mailto:jan...@centurytel.netmailto:jan...@centurytel.net Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com mailto:tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, January 09, 2010 1:20 PM Subject: Re: [TMIC] sympom check question Janice Nichols jan
[TMIC] sympom check question
I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
Yes. My lesion was at C4-c6. I sometimes get exactly that feeling when I reach with my right hand. It feels like I have grasped a live wire and makes me think twice about what I had just done. (Did I just stick a fork in an electrical outlet?) I do not have (LeHermittes -sp?) tingling when I bend chin to chest. However, I get a shock feeling, tingling, or loss of balance if I bend my neck backwards. I had lots of muscle spasms in my neck prior to TM. Patti - Michigan randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
24/7 since March 1 2007 from the chest down and google Lhermittes sign, I have that too. Mindy the Artisan On Jan 8, 2010, at 3:39 PM, randy rankin wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
