Re: [TMIC] Swine flu vaccine
Frankhad to tell you thisBill and I were discussing the viruses in a flu vaccine this morning and I repeated the half dead virus to him and he said, I meant to say weakened virus. SoI guess I stand corrected. :-) Love, Lynn In a message dated 9/3/2009 1:23:07 P.M. Pacific Daylight Time, fr...@franksheldon.com writes: is there a half dead virus in the swine flu vaccine..? Lynn, I've never thought of IT that way...a half dead virus. Something like a Zombi movie, night of the LIVING DEAD. What does a Half dead virus look like ? Is it like being Partially Pregnant?? I think it's against the law to have vaccines made from a Half dead virus. I wouldn't worry. Try hard not to have bad dreams tonight. I will pray for you, as I always do. pH
RE: [TMIC] Swine flu vaccine
Same with my family. Daughter works in a hospital, her husband in a clinic and grandson goes to pre-school. All three get flu shots, she gets the pneumonia shot. Patti - Michigan Patricia Cooley patticoo...@wi.rr.com wrote: JUDE I THINK EVERYONE, WITH THEIR DOCTOR, WILL HAVE TO MAKE THEIR OWN DECISION ON FLU SHOTS. IT’S TOO BAD WE CAN’T GET DEFINITE INFORMATION, BUT THEN AGAIN EVERYONE IS DIFFERENT AND HAS DIFFERENT PROBLEMS WITH TM. I BELIEVE MY DAUGHTER WILL HAVE HER TWO GIRLS GET THE SHOT AFTER SHE TALKS TO THEIR DOCTOR. AGAIN, THAT IS HER DECISION BUT I THINK I WOULD TOO. PATTI - WISCONSIN From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Wednesday, September 02, 2009 11:06 PM To: tracey.bl...@hnoins.com; TMIC-LIST@eskimo.com Subject: Re: [TMIC] Swine flu vaccine You find yourself in a confusing situation with regard to your children with and without TM and whether or not they ought to get the flu shot, and which ones? I, personally, with only my not well researched opinion, would not have my children not get the flu shot, only because I would be afraid that they would get the flu...let alone anything else. Love to you all, Jude In a message dated 9/2/2009 1:26:17 P.M. Eastern Daylight Time, tracey.bl...@hnoins.com writes: Has anyone talked with Dr. Kerr to see how he feels about the Flu Vaccine and the Swine Flu Vaccine? I am just curious to see if he would tell everyone to get it or if he would tell everyone with TM to stay away from it……. I really don’t want to have my daughter, Ashlee, get either vaccine b/c of her having TM. I don’t want my other children to get the shots either b/c I don’t want to chance another child with TM. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained From: roseofr...@aol.com [mailto:roseofr...@aol.com] Sent: Wednesday, September 02, 2009 1:21 PM To: jan...@centurytel.net; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Swine flu vaccine I am totally convinced it was the preservative (Thimerosol) in the vaccine that caused my TMand my neuro concurs. It's a very difficult thing to actually prove since there are so many things that can cause TM. I remember the day I got the shotthe nurse was extolling the virtues of that vaccine...telling me how it was going to prevent me from getting ALL of the strains of flu viruses out there . After I got the shot she handed me a copy of the paperwork I had signed..when I got home I read it and one of the side effects listed was Transverse Myelitis. That day I didn't know what TM was so didn't think much of it until I was hit, paralyzed and diagnosed. Wish I'd read the paperwork FIRST but we tend to believe whatever our health care providers tell us. My suggestion to anyone considering getting the swine flu vaccine or the seasonal flu vaccine is this: insist on a preservative-free vaccine. ~ Lynn In a message dated 9/1/2009 7:46:33 P.M. Pacific Daylight Time, jan...@centurytel.net writes: Lyn, Are you saying that your flu shot gave you TM?Have they proven that? Janice - Original Message - From: roseofr...@aol.com To: cakal...@embarqmail.com ; tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 11:40 AM Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn _ _ _
Re: [TMIC] Swine flu vaccine
Oh Frank...you cracked me up with that noteand believe me, I needed that today. I've been curled up in a ball of pain since 3:00 this morning. I prayed for you this morningthat you would get relief from the pain in your hands. Thank you...for praying for me also and for writing this delightful note. Love, Lynn In a message dated 9/3/2009 1:23:07 P.M. Pacific Daylight Time, fr...@franksheldon.com writes: is there a half dead virus in the swine flu vaccine..? Lynn, I've never thought of IT that way...a half dead virus. Something like a Zombi movie, night of the LIVING DEAD. What does a Half dead virus look like ? Is it like being Partially Pregnant?? I think it's against the law to have vaccines made from a Half dead virus. I wouldn't worry. Try hard not to have bad dreams tonight. I will pray for you, as I always do. pH
RE: [TMIC] Swine flu vaccine
JUDE I THINK EVERYONE, WITH THEIR DOCTOR, WILL HAVE TO MAKE THEIR OWN DECISION ON FLU SHOTS. IT’S TOO BAD WE CAN’T GET DEFINITE INFORMATION, BUT THEN AGAIN EVERYONE IS DIFFERENT AND HAS DIFFERENT PROBLEMS WITH TM. I BELIEVE MY DAUGHTER WILL HAVE HER TWO GIRLS GET THE SHOT AFTER SHE TALKS TO THEIR DOCTOR. AGAIN, THAT IS HER DECISION BUT I THINK I WOULD TOO. PATTI - WISCONSIN From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Wednesday, September 02, 2009 11:06 PM To: tracey.bl...@hnoins.com; TMIC-LIST@eskimo.com Subject: Re: [TMIC] Swine flu vaccine You find yourself in a confusing situation with regard to your children with and without TM and whether or not they ought to get the flu shot, and which ones? I, personally, with only my not well researched opinion, would not have my children not get the flu shot, only because I would be afraid that they would get the flu...let alone anything else. Love to you all, Jude In a message dated 9/2/2009 1:26:17 P.M. Eastern Daylight Time, tracey.bl...@hnoins.com writes: Has anyone talked with Dr. Kerr to see how he feels about the Flu Vaccine and the Swine Flu Vaccine? I am just curious to see if he would tell everyone to get it or if he would tell everyone with TM to stay away from it……. I really don’t want to have my daughter, Ashlee, get either vaccine b/c of her having TM. I don’t want my other children to get the shots either b/c I don’t want to chance another child with TM. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained From: roseofr...@aol.com [mailto:roseofr...@aol.com] Sent: Wednesday, September 02, 2009 1:21 PM To: jan...@centurytel.net; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Swine flu vaccine I am totally convinced it was the preservative (Thimerosol) in the vaccine that caused my TMand my neuro concurs. It's a very difficult thing to actually prove since there are so many things that can cause TM. I remember the day I got the shotthe nurse was extolling the virtues of that vaccine...telling me how it was going to prevent me from getting ALL of the strains of flu viruses out there . After I got the shot she handed me a copy of the paperwork I had signed..when I got home I read it and one of the side effects listed was Transverse Myelitis. That day I didn't know what TM was so didn't think much of it until I was hit, paralyzed and diagnosed. Wish I'd read the paperwork FIRST but we tend to believe whatever our health care providers tell us. My suggestion to anyone considering getting the swine flu vaccine or the seasonal flu vaccine is this: insist on a preservative-free vaccine. ~ Lynn In a message dated 9/1/2009 7:46:33 P.M. Pacific Daylight Time, jan...@centurytel.net writes: Lyn, Are you saying that your flu shot gave you TM?Have they proven that? Janice - Original Message - From: roseofr...@aol.com To: cakal...@embarqmail.com ; tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 11:40 AM Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn _ _ _
Re: [TMIC] Swine flu vaccine
Hi Cheryl ~ To answer your question.I would have asked that nurse what TM was I guess it would have depended on her answer at the time. If she had told me it was a paralyzing eventthen my answer would be, No way do I want the shot. Bill and I were discussing all of these emails this morning regarding whether or not to get these shots (Bill is my significant other of 20 years and has been through it all with me). anywayhe said, Honey, I don't think it was the Thimerosol that caused your TM. it was the half dead virus in that shot that caused your TM. Your immune system went crazy trying to erradicate that virus and attacked your spine and killed nerves and caused your lesion. So now I'm wondering. is there a half dead virus in the swine flu vaccine..? I'm scared for my five grandbabies. ~ Lynn In a message dated 9/2/2009 2:56:02 P.M. Pacific Daylight Time, rn11...@yahoo.com writes: Hi Lynn, I have a question.Since you had never heard of tm at the time of the flu shot,do you think you would have refused the shot? ( By the way,that nurse was an idiot; NO vaccine prevents all flu strains.) I was an RN for 22 yrs before getting tm,and I had never heard of it.I worked in a hospital respiratory care unit and got a flu shot every yr.I always read the paper they give me prior to getting the shot.Mine had never mentioned tm,just Guillain-Barre syndrome. I got a pneumonia vaccine several yrs ago,and a repeat about 3 yrs ago.I also get a flu shot every year.Since I have diabetes as well as tm,I'm at higher risk of complications if I get the flu.Plus,the tight banding around my trunk makes it very difficult to deep breathe or cough. I'm terrified of getting a simple cold,nevermind the flu. Cheryl in Easthampton,MA. --- On Wed, 9/2/09, roseofr...@aol.com roseofr...@aol.com wrote: From: roseofr...@aol.com roseofr...@aol.com Subject: Re: [TMIC] Swine flu vaccine To: jan...@centurytel.net, cakal...@embarqmail.com, tmic-list@eskimo.com Date: Wednesday, September 2, 2009, 1:21 PM I am totally convinced it was the preservative (Thimerosol) in the vaccine that caused my TMand my neuro concurs. It's a very difficult thing to actually prove since there are so many things that can cause TM. I remember the day I got the shotthe nurse was extolling the virtues of that vaccine...telling me how it was going to prevent me from getting ALL of the strains of flu viruses out there . After I got the shot she handed me a copy of the paperwork I had signed..when I got home I read it and one of the side effects listed was Transverse Myelitis. That day I didn't know what TM was so didn't think much of it until I was hit, paralyzed and diagnosed. Wish I'd read the paperwork FIRST but we tend to believe whatever our health care providers tell us. My suggestion to anyone considering getting the swine flu vaccine or the seasonal flu vaccine is this: insist on a preservative-free vaccine. ~ Lynn In a message dated 9/1/2009 7:46:33 P.M. Pacific Daylight Time, jan...@centurytel.net writes: Lyn, Are you saying that your flu shot gave you TM?Have they proven that? Janice - Original Message - From: _roseofr...@aol.com_ (http://us.mc581.mail.yahoo.com/mc/compose?to=roseofr...@aol.com) To: _cakal...@embarqmail.com_ (http://us.mc581.mail.yahoo.com/mc/compose?to=cakal...@embarqmail.com) ; _tmic-l...@eskimo.com_ (http://us.mc581.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com) Sent: Tuesday, September 01, 2009 11:40 AM Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn
Re: [TMIC] Swine flu vaccine
I was hit by the episode of TM in October 2005 Me too--- and then again in December leaving me paralyzed the FIRST question they asked was if I had a flu shot. The only repeated questions were about the flu shot. I too, was deemed idiopathic but I too am nervous about getting a flu shot because of those questions. I have gotten a pneumonia shot in the intervening years with no observable ill effect. Akua --
Re: [TMIC] Swine flu vaccine
is there a half dead virus in the swine flu vaccine..? Lynn, I've never thought of IT that way...a half dead virus. Something like a Zombi movie, night of the LIVING DEAD. What does a Half dead virus look like ? Is it like being Partially Pregnant?? I think it's against the law to have vaccines made from a Half dead virus. I wouldn't worry. Try hard not to have bad dreams tonight. I will pray for you, as I always do. pH
Re: [TMIC] Swine flu vaccine
I believe the recommendation is for all of us to get the flu shots. There will be at least two: One or two shots separated by three weeks for H1N1, Then another for the regular flu. This is what I'v read, but this may not be the final recommendation F
RE: [TMIC] Swine flu vaccine
With regard to Flu shots, Swine Flu shots, and Pneumonia shots, I personally believe in taking all 3. The people or persons on the list that have pointed to these shots as the cause of TM is totally unsubstantiated. There is no link as of now between these shots and TM. We all may have some guess as to the cause of our individual occurrence but no one really knows for sure. I welcome a dialogue with the list as to the cause of the occurance of TM. Who among you really know for sure what caused the condition? Lastly the taking of the shots is a personal decision. Personally I never had a Flu shot prior to coming down with TM 12 years ago.and I have had one for each of the 12 years since...never with a bad reaction. Your decision is your own! Just my 2 cents! Rob in New Jersey -Original Message- From: fr...@franksheldon.com [mailto:fr...@franksheldon.com] Sent: Wednesday, September 02, 2009 9:15 AM To: laura.beau...@gmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Swine flu vaccine I believe the recommendation is for all of us to get the flu shots. There will be at least two: One or two shots separated by three weeks for H1N1, Then another for the regular flu. This is what I'v read, but this may not be the final recommendation F
RE: [TMIC] Swine flu vaccine
BOY BUT THE DECISION WHETHER OR NOT TO HAVE THE FLUE SHOT IS GOING TO BE DIFFICULT. I HAVE ALWLAYS HAD THE FLU SHOT FOR THE PAST 10 OR 12 YEARS, BUT I DIDN'T THIS LAST YEAR. I TALKED TO MY NEURO AND HE JUST SAID HE HAS NEVER HAD A FLU SHOT AND PROBABLY WOULDN'T, SO I SKIPPED IT LAST YEAR WITH NO PROBLEM. I DO TAKE 2 VIT. D TWICE A DAY, PLUS GET VIT D IN MY VITAMIN PILL AND THE CALCIUM PILLS I TAKE. I WILL BE SEENING MY NEURO NEXT WEEK AND WILL TALK TO HIM ABOUT IT, BUT I GUESS THE FINAL DECISION WILL BE UP TO BE. I ALSO DON'T THINK THE FLU SHOT CAUSED MY TM. FROM WHAT I HAVE READ PEOPLE WHO HAVE HAD SHINGLES COULD HAVE GOTTEN TM AS A RESULT. I DID HAVE A BAD CASE OF SHINGLES BACK IN 1992 AND THE PAIN WAS WORSE THAN HAVING MY TWO DAUGHTERS. IT TOOK ME ALMOST A YEAR TO COMPLETELY RECOVER. DECISIONS - DECISIONS. PATTI - WISCONSIN -Original Message- From: fr...@franksheldon.com [mailto:fr...@franksheldon.com] Sent: Wednesday, September 02, 2009 8:15 AM To: laura.beau...@gmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Swine flu vaccine I believe the recommendation is for all of us to get the flu shots. There will be at least two: One or two shots separated by three weeks for H1N1, Then another for the regular flu. This is what I'v read, but this may not be the final recommendation F
Re: [TMIC] Swine flu vaccine
I am totally convinced it was the preservative (Thimerosol) in the vaccine that caused my TMand my neuro concurs. It's a very difficult thing to actually prove since there are so many things that can cause TM. I remember the day I got the shotthe nurse was extolling the virtues of that vaccine...telling me how it was going to prevent me from getting ALL of the strains of flu viruses out there . After I got the shot she handed me a copy of the paperwork I had signed..when I got home I read it and one of the side effects listed was Transverse Myelitis. That day I didn't know what TM was so didn't think much of it until I was hit, paralyzed and diagnosed. Wish I'd read the paperwork FIRST but we tend to believe whatever our health care providers tell us. My suggestion to anyone considering getting the swine flu vaccine or the seasonal flu vaccine is this: insist on a preservative-free vaccine. ~ Lynn In a message dated 9/1/2009 7:46:33 P.M. Pacific Daylight Time, jan...@centurytel.net writes: Lyn, Are you saying that your flu shot gave you TM?Have they proven that? Janice - Original Message - From: _roseofr...@aol.com_ (mailto:roseofr...@aol.com) To: _cakal...@embarqmail.com_ (mailto:cakal...@embarqmail.com) ; _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, September 01, 2009 11:40 AM Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn
RE: [TMIC] Swine flu vaccine
Has anyone talked with Dr. Kerr to see how he feels about the Flu Vaccine and the Swine Flu Vaccine? I am just curious to see if he would tell everyone to get it or if he would tell everyone with TM to stay away from it... I really don't want to have my daughter, Ashlee, get either vaccine b/c of her having TM. I don't want my other children to get the shots either b/c I don't want to chance another child with TM. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained From: roseofr...@aol.com [mailto:roseofr...@aol.com] Sent: Wednesday, September 02, 2009 1:21 PM To: jan...@centurytel.net; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Swine flu vaccine I am totally convinced it was the preservative (Thimerosol) in the vaccine that caused my TMand my neuro concurs. It's a very difficult thing to actually prove since there are so many things that can cause TM. I remember the day I got the shotthe nurse was extolling the virtues of that vaccine...telling me how it was going to prevent me from getting ALL of the strains of flu viruses out there . After I got the shot she handed me a copy of the paperwork I had signed..when I got home I read it and one of the side effects listed was Transverse Myelitis. That day I didn't know what TM was so didn't think much of it until I was hit, paralyzed and diagnosed. Wish I'd read the paperwork FIRST but we tend to believe whatever our health care providers tell us. My suggestion to anyone considering getting the swine flu vaccine or the seasonal flu vaccine is this: insist on a preservative-free vaccine. ~ Lynn In a message dated 9/1/2009 7:46:33 P.M. Pacific Daylight Time, jan...@centurytel.net writes: Lyn, Are you saying that your flu shot gave you TM?Have they proven that? Janice - Original Message - From: roseofr...@aol.com To: cakal...@embarqmail.com ; tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 11:40 AM Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn
Re: [TMIC] Swine flu vaccine
I totally agree with LynMy TM was a result of after-effects of pneumonia, but when I drove my hubby thru the Drive-BY Shots offered free from our medical center they made two stipulations...one was allergies to eggs and the other was if you'd had GBS. I couldn't take shots due to allergies anyway, but asked my doc if TM would fit the GBS reason not to take the shot. His response was Definitely! My 2¢ janh --- On Wed, 9/2/09, roseofr...@aol.com roseofr...@aol.com wrote: I am totally convinced it was the preservative (Thimerosol) in the vaccine that caused my TMand my neuro concurs. It's a very difficult thing to actually prove since there are so many things that can cause TM. I remember the day I got the shotthe nurse was extolling the virtues of that vaccine...telling me how it was going to prevent me from getting ALL of the strains of flu viruses out there . After I got the shot she handed me a copy of the paperwork I had signed..when I got home I read it and one of the side effects listed was Transverse Myelitis. That day I didn't know what TM was so didn't think much of it until I was hit, paralyzed and diagnosed. Wish I'd read the paperwork FIRST but we tend to believe whatever our health care providers tell us. My suggestion to anyone considering getting the swine flu vaccine or the seasonal flu vaccine is this: insist on a preservative-free vaccine. ~ Lynn In a message dated 9/1/2009 7:46:33 P.M. Pacific Daylight Time, jan...@centurytel.net writes: Lyn, Are you saying that your flu shot gave you TM? Have they proven that? Janice - Original Message - From: roseofr...@aol.com To: cakal...@embarqmail.com ; tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 11:40 AM Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn
RE: [TMIC] Swine flu vaccine
Funny, but I had shingles after my paralysis, and being numb, there was no pain!! Isn't this a weird world with so many differences,still we all have TM.. janh --- On Wed, 9/2/09, Patricia Cooley patticoo...@wi.rr.com wrote: BOY BUT THE DECISION WHETHER OR NOT TO HAVE THE FLUE SHOT IS GOING TO BE DIFFICULT. I HAVE ALWLAYS HAD THE FLU SHOT FOR THE PAST 10 OR 12 YEARS, BUT I DIDN'T THIS LAST YEAR. I TALKED TO MY NEURO AND HE JUST SAID HE HAS NEVER HAD A FLU SHOT AND PROBABLY WOULDN'T, SO I SKIPPED IT LAST YEAR WITH NO PROBLEM. I DO TAKE 2 VIT. D TWICE A DAY, PLUS GET VIT D IN MY VITAMIN PILL AND THE CALCIUM PILLS I TAKE. I WILL BE SEENING MY NEURO NEXT WEEK AND WILL TALK TO HIM ABOUT IT, BUT I GUESS THE FINAL DECISION WILL BE UP TO BE. I ALSO DON'T THINK THE FLU SHOT CAUSED MY TM. FROM WHAT I HAVE READ PEOPLE WHO HAVE HAD SHINGLES COULD HAVE GOTTEN TM AS A RESULT. I DID HAVE A BAD CASE OF SHINGLES BACK IN 1992 AND THE PAIN WAS WORSE THAN HAVING MY TWO DAUGHTERS. IT TOOK ME ALMOST A YEAR TO COMPLETELY RECOVER. DECISIONS - DECISIONS. PATTI - WISCONSIN
Re: [TMIC] Swine flu vaccine
That's kind of my question also, Traceyhas this ever been addressed to Dr. Kerr to get any feedback from him..? My neuro told me to go ahead and get the flu shot last year, which I did with no ill effects. I have talked with others with TM though and they have said that their neuro's were adamant to NOT get the flu shot. Now with this swine flu thing going around I'm really questioning what we should do. I have a new neuro now and I'll be asking him to see what he says, but why all the conflicting answers..? This is so ridiculous in this day and age to not be able to get a simple, straight answer to this question. Kevin Weilacher From: Tracey L. Black tracey.bl...@hnoins.com To: roseofr...@aol.com; jan...@centurytel.net; cakal...@embarqmail.com; tmic-list@eskimo.com Sent: Wednesday, September 2, 2009 1:25:38 PM Subject: RE: [TMIC] Swine flu vaccine Has anyone talked with Dr. Kerr to see how he feels about the Flu Vaccine and the Swine Flu Vaccine? I am just curious to see if he would tell everyone to get it or if he would tell everyone with TM to stay away from it……. I really don’t want to have my daughter, Ashlee, get either vaccine b/c of her having TM. I don’t want my other children to get the shots either b/c I don’t want to chance another child with TM. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m.
Re: [TMIC] Swine flu vaccine
TM is a chronic debilitating process, because of this we should all get Flu shots and pneumonia shots. Believe me, I'm your President, I would never lie to anyone... pH
RE: [TMIC] Swine flu vaccine
Hi all, I saw Dr. Kerr for years and I think I recall at the second symposium, one of the doctors stating that he would never take the flu shots, nor would have his children get them. Dr. Kerr never advised me to have the flu shot, nor did he advise against it. I don't think it is something he can discuss because of where he works and how he gets paid. I did have a pneumonia shot this year because of my heart surgery, yet was advised by my neuro here and my internist to inform them immediately of any neurological symptoms. I will not have the flu shot, and especially not the swine flu shot. I have been advised against them both by my current team of doctors and I do believe they have my interests at heart, not any drug company. Once again, every person is different and what my doctors advise me, is not necessarily true for anyone else. Everyone should ask their doctors and then make their own decision for their health. I do believe that there are some that get TM from vaccines, it is one of the risk factors stated. Luck of the draw, 1 in every 100, 000 is pretty good odds, though it sucks if you are the one! Lori From: Tracey L. Black [mailto:tracey.bl...@hnoins.com] Sent: Wednesday, September 02, 2009 1:26 PM To: roseofr...@aol.com; jan...@centurytel.net; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: RE: [TMIC] Swine flu vaccine Has anyone talked with Dr. Kerr to see how he feels about the Flu Vaccine and the Swine Flu Vaccine? I am just curious to see if he would tell everyone to get it or if he would tell everyone with TM to stay away from it... I really don't want to have my daughter, Ashlee, get either vaccine b/c of her having TM. I don't want my other children to get the shots either b/c I don't want to chance another child with TM. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained From: roseofr...@aol.com [mailto:roseofr...@aol.com] Sent: Wednesday, September 02, 2009 1:21 PM To: jan...@centurytel.net; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Swine flu vaccine I am totally convinced it was the preservative (Thimerosol) in the vaccine that caused my TMand my neuro concurs. It's a very difficult thing to actually prove since there are so many things that can cause TM. I remember the day I got the shotthe nurse was extolling the virtues of that vaccine...telling me how it was going to prevent me from getting ALL of the strains of flu viruses out there . After I got the shot she handed me a copy of the paperwork I had signed..when I got home I read it and one of the side effects listed was Transverse Myelitis. That day I didn't know what TM was so didn't think much of it until I was hit, paralyzed and diagnosed. Wish I'd read the paperwork FIRST but we tend to believe whatever our health care providers tell us. My suggestion to anyone considering getting the swine flu vaccine or the seasonal flu vaccine is this: insist on a preservative-free vaccine. ~ Lynn In a message dated 9/1/2009 7:46:33 P.M. Pacific Daylight Time, jan...@centurytel.net writes: Lyn, Are you saying that your flu shot gave you TM?Have they proven that? Janice - Original Message - From: roseofr...@aol.com To: cakal...@embarqmail.com ; tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 11:40 AM Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn _ _
Re: [TMIC] Swine flu vaccine
My neurologist is very adamant that I never receive vaccines of any kind. He will not approve the pneumonia shot. My last tetanus shot was 11 years ago he does not want me taking a booster of that shot either. He thinks my last flu shot caused my TM. My PCP follows whatever guidelines the neurologist says. Linda E.
Re: [TMIC] Swine flu vaccine
I was hit by the episode of TM in October 2005 and my Neurologist has not allowed me to have the regular flu shot since. My TM was labelled ideopathic so, not knowing what the cause was, I believe they are erring on the side of caution in case the reaction of my immune system to the vaccine may cause another episode. I recently called my Neurologist to ask if I should take the H1N1 flu vaccine when it comes out. The secretary called back to say the doctor said no because it is too new and the possible side-effects are unknown. She doesn't want to take the chance of me ending up back in hospital. I'm in Canada where they are going to add an adjuvant to the vaccine. According to what I've read, adjuvants are chemical boosters used to elicit an early, high and long-lasting immune response. It appears they do not feel the non-adjuvant vaccine has been working well enough in tests. I can see why my Neuro doesn't want to take the chance of upsetting my immune system too much. I gather a rush to get a vaccine out happened in the 90s because of a flu epidemic that started in the U.S. military. They were hurrying to get people vaccinated and there many became ill (died?) and some were paralyzed by the vaccine. The man in charge lost his job over this debacle. Sorry I don't have the exact figures, names, etc. I heard the man in question being interviewed a few months ago but didn't document the facts. Anyway, it comes down to the fact we each have to do what is comfortable for ourselves but I think everyone should look into the situation very carefully before deciding. Regards. Louise - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 10:30 AM Subject: [TMIC] Swine flu vaccine Good morning everybody, There was a lot of discussion in our group regarding vaccines a couple of years ago. It had been suggested that among other things, TM could be caused by the flu, a virus, whatever. Some of us were convinced of that and refused to take the vaccine. I haven't had one in four years. Others felt having checked with their doctors that we should have it and continued to get it. Question: What's going to happen now with the flu vaccine? Will some of us still be ambivalent? R
Re: [TMIC] Swine flu vaccine
Dear All..., My doctor has recommended the same approach regarding vaccines of any kind. When I was so sick, there was even question about antibiotics and they were given with only the greatest of care. Love you, Jude In a message dated 9/2/2009 7:00:04 P.M. Eastern Daylight Time, le...@sbcglobal.net writes: My neurologist is very adamant that I never receive vaccines of any kind. He will not approve the pneumonia shot. My last tetanus shot was 11 years ago he does not want me taking a booster of that shot either. He thinks my last flu shot caused my TM. My PCP follows whatever guidelines the neurologist says. Linda E.
Re: [TMIC] Swine flu vaccine
I'm confused. Some persons say take the vaccines and/or flu shots etc, and some say do not take the same shots. Why the conflicting answers, sometimes from the same people? Is this a manner of trying to keep everybody happy? Or, confused? Does anyone know the true answer? I'm on the confused end of things. Love to all, Jude In a message dated 9/2/2009 3:50:13 P.M. Eastern Daylight Time, fr...@franksheldon.com writes: With regard to Flu shots, Swine Flu shots, and Pneumonia shots, I personally believe in taking all 3. Robert, You are so right !! And thank you for mentioning the Pneumonia shot. I know because of blood work and spinal tap fluid tests that my TM was caused by an autoimmune reaction following a mild case of Coxackie (?sp) viral infection. F
Re: [TMIC] Swine flu vaccine
You find yourself in a confusing situation with regard to your children with and without TM and whether or not they ought to get the flu shot, and which ones? I, personally, with only my not well researched opinion, would not have my children not get the flu shot, only because I would be afraid that they would get the flu...let alone anything else. Love to you all, Jude In a message dated 9/2/2009 1:26:17 P.M. Eastern Daylight Time, tracey.bl...@hnoins.com writes: Has anyone talked with Dr. Kerr to see how he feels about the Flu Vaccine and the Swine Flu Vaccine? I am just curious to see if he would tell everyone to get it or if he would tell everyone with TM to stay away from it……. I really don’t want to have my daughter, Ashlee, get either vaccine b/c of her having TM. I don’t want my other children to get the shots either b/c I don’t want to chance another child with TM. Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained From: roseofr...@aol.com [mailto:roseofr...@aol.com] Sent: Wednesday, September 02, 2009 1:21 PM To: jan...@centurytel.net; cakal...@embarqmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Swine flu vaccine I am totally convinced it was the preservative (Thimerosol) in the vaccine that caused my TMand my neuro concurs. It's a very difficult thing to actually prove since there are so many things that can cause TM. I remember the day I got the shotthe nurse was extolling the virtues of that vaccine...telling me how it was going to prevent me from getting ALL of the strains of flu viruses out there . After I got the shot she handed me a copy of the paperwork I had signed..when I got home I read it and one of the side effects listed was Transverse Myelitis. That day I didn't know what TM was so didn't think much of it until I was hit, paralyzed and diagnosed. Wish I'd read the paperwork FIRST but we tend to believe whatever our health care providers tell us. My suggestion to anyone considering getting the swine flu vaccine or the seasonal flu vaccine is this: insist on a preservative-free vaccine. ~ Lynn In a message dated 9/1/2009 7:46:33 P.M. Pacific Daylight Time, jan...@centurytel.net writes: Lyn, Are you saying that your flu shot gave you TM?Have they proven that? Janice - Original Message - From: _roseofr...@aol.com_ (mailto:roseofr...@aol.com) To: _cakal...@embarqmail.com_ (mailto:cakal...@embarqmail.com) ; _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, September 01, 2009 11:40 AM Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn
RE: [TMIC] Swine flu vaccine
Personally I take a flu shot every year and a pneumonia shot every 3 years. I have been doing this every year I have had TM which in 3 weeks will be 12 years. I think it is a personal decision for each of us to make. I can tell you that both my regular Internist as well as Dr. Kerr have never had a problem with me getting the vaccinations. Lastly I cannot recall coming down with the flu ever since taking the vacine and I have never (other than a sore arm) had any side effects whatsoever. Rob in New Jersey From: Regina Rummel [mailto:regina...@sbcglobal.net] Sent: Tuesday, September 01, 2009 10:31 AM To: tmic-list@eskimo.com Subject: [TMIC] Swine flu vaccine Good morning everybody, There was a lot of discussion in our group regarding vaccines a couple of years ago. It had been suggested that among other things, TM could be caused by the flu, a virus, whatever. Some of us were convinced of that and refused to take the vaccine. I haven't had one in four years. Others felt having checked with their doctors that we should have it and continued to get it. Question: What's going to happen now with the flu vaccine? Will some of us still be ambivalent? R
Re: [TMIC] Swine flu vaccine
I'm in line with you Laura Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: laura eichler laura.eich...@gmail.com To: Regina Rummel regina...@sbcglobal.net, tmic-list@eskimo.com Sent: Tuesday, September 1, 2009 11:33:21 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Swine flu vaccine Personally I wouldn't touch the swine flu vaccine with a ten foot pole. To each his own though. :-) On Tue, Sep 1, 2009 at 10:30 AM, Regina Rummel regina...@sbcglobal.net wrote: Good morning everybody, There was a lot of discussion in our group regarding vaccines a couple of years ago. It had been suggested that among other things, TM could be caused by the flu, a virus, whatever. Some of us were convinced of that and refused to take the vaccine. I haven't had one in four years. Others felt having checked with their doctors that we should have it and continued to get it. Question: What's going to happen now with the flu vaccine? Will some of us still be ambivalent? R -- Laura www.photographybylauraann.com
Re: [TMIC] Swine flu vaccine
I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn
Re: [TMIC] Swine flu vaccine
*Hi Regina, * ** *I won't be getting it as I attempt to avoid anything that is invasive, even a simple shot. I've been kept in an immuno-compromised state for the last four and a half years. Luckily, I've only been really ill twice, both times with pneumonia that responded well to oral antibiotics. Knock wood that I'll continue to have good luck. * ** *Gracie*
Re: [TMIC] Swine flu vaccine
Lynn, you are so right on the Vit. D. I also take doses of Vit. D and calcium. I take unusually high doses of Vit. D daily and weekly because I only have 1/2 of the min. Vit. D in my blood test. But, since taking the high doses of Vit. D, my Lupus and Sjogren's hasn't acted up and the added bonus has been only 1 or 2 colds in the 3 years. I use to have at least 1 cold every 2 or 3 months - which Dr. said was allergies but now I wonder. I never once had the doctors request blood test for vit. levels. It is VERY important to also have bone scans done - both women and men. In 3 years with TM, I went from a low normal bone mass reading to a severe bone loss reading especially of the spine. Now I'm taking daily shots of Forteo to hopefully build the bones back up. During the whole time I was taking Boniva but still experienced the bone mass loss. Most of my problems stem from an ileostomy (complete removal of large intestine and rectum) and I don't absorb alot of the vit. and minerals from foods nor vitamins so I have to take high doses internally. Most vitamins are made to take internally and not by injection, I do wish there were more. I do have bladder issues but because of the ileostomy, no BM problems. I also don't have weight problems and eat just about anything in any quantities that I like. I can also lose 3 to 5 lbs. within a couple of days. However, I have to watch for diarrhea and becoming dehydrated. So in some ways the ileostomy is a blessing but in the vast majority it isn't. Oh well, you win some and lose some! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: roseofr...@aol.com To: cakal...@embarqmail.com, tmic-list@eskimo.com Sent: Tuesday, September 1, 2009 12:40:17 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn
Re: [TMIC] Swine flu vaccine
The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn The Government paid for a study of why the flu and other viruses are more prevalent in the winter. There was only a slight correlation with people indoors more. F
Re: [TMIC] Swine flu vaccine
I thought that they were encouraging those with autoimmune deficiencies to get the shot.I was not in on the discussions a few years ago.My doc made sure that I had my flu shots the last couple of years - he believes in them for TM. Janice - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 9:30 AM Subject: [TMIC] Swine flu vaccine Good morning everybody, There was a lot of discussion in our group regarding vaccines a couple of years ago. It had been suggested that among other things, TM could be caused by the flu, a virus, whatever. Some of us were convinced of that and refused to take the vaccine. I haven't had one in four years. Others felt having checked with their doctors that we should have it and continued to get it. Question: What's going to happen now with the flu vaccine? Will some of us still be ambivalent? R
Re: [TMIC] Swine flu vaccine
Lyn, Are you saying that your flu shot gave you TM?Have they proven that? Janice - Original Message - From: roseofr...@aol.com To: cakal...@embarqmail.com ; tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 11:40 AM Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn --
Re: [TMIC] Swine flu vaccine
...But TM and MS are not because of an immunodeficiency..the problem is that the immune system is TOO strong and attacking itself. I rarely get sick and even after 5 months of full-time cathing, I've yet to get a UTI-though I use the clean method, not sterile. Laura Sent on the TELUS Mobility network with BlackBerry -Original Message- From: Janice jan...@centurytel.net Date: Tue, 1 Sep 2009 21:43:46 To: Regina Rummelregina...@sbcglobal.net; tmic-list@eskimo.com Subject: Re: [TMIC] Swine flu vaccine I thought that they were encouraging those with autoimmune deficiencies to get the shot.I was not in on the discussions a few years ago.My doc made sure that I had my flu shots the last couple of years - he believes in them for TM. Janice - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 9:30 AM Subject: [TMIC] Swine flu vaccine Good morning everybody, There was a lot of discussion in our group regarding vaccines a couple of years ago. It had been suggested that among other things, TM could be caused by the flu, a virus, whatever. Some of us were convinced of that and refused to take the vaccine. I haven't had one in four years. Others felt having checked with their doctors that we should have it and continued to get it. Question: What's going to happen now with the flu vaccine? Will some of us still be ambivalent? R
