Re: [CMLHope] Not getting any mail

Hi, I’m not seeing too many emails lately either. I think a lot of us have migrated to the Facebook groups! Tony Sent from my iPhone On Sep 16, 2019, at 11:10 PM, bkbarney via CMLHope mailto:cmlhope@googlegroups.com>> wrote: -Original Message- From: Joyce Mesnarich

Re: [CMLHope] Hello All!

Hi Richard, glad to hear you’re on the mend. Try to walk a little bit, need to keep that blood pumping! Tony Sent from my iPhone On Sep 29, 2018, at 11:29 PM, Richard H mailto:rbhuffm...@gmail.com>> wrote: I am sorry I have not posted in a while. I have been rather busy taking care of

Re: [CMLHope] Hey there

Hi Marty! Sent from my iPhone On Feb 21, 2018, at 12:11 AM, Joyce Mesnarich > wrote: Jeanie, I am doing very well since I got home from the double surgery and dealing with the blood clots. I am not bedridden. I get around pretty well but have trouble

Re: [CMLHope] 3 months off Gleevec

ting another PCR test this month! Keeping fingers crossed! Hugs, Susan Rosenthal On Sep 2, 2017, at 11:45 PM, Tony Lanoue <tonylan...@hotmail.com<mailto:tonylan...@hotmail.com>> wrote: I just read last week on one of the Facebook groups that somebody has been off G

Re: [CMLHope] 3 months off Gleevec

month would show undetectable again. Been undetectable since just like he said Had my last PCR test in June at his office. I live in Miami and will be getting another PCR test this month! Keeping fingers crossed! Hugs, Susan Rosenthal On Sep 2, 2017, at 11:45 PM, Tony Lanoue <tonylan

Re: [CMLHope] 3 months off Gleevec

I just read last week on one of the Facebook groups that somebody has been off Gleevec for two years now and their counter remain stable. I am your other hand tried going off last year and my counts started coming back up. So this year I switched to Sprycel, going to stay on the Sprycel for one

Re: [CMLHope] New Facebook Group - ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU

Hello, if anybody has a copy of Zavie's zero club list, could they tell me what my zero number is please? Hope everyone is well! Tony Sent from my iPhone On Jun 5, 2017, at 11:43 AM, Robert W Neill Jr > wrote: A new Facebook reunion group has

[CMLHope] Very interesting dr Oz

http://youtu.be/4lnpjVLI2fU Sent from my iPhone -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to

RE: [CMLHope] Chat Reminder - Tuesday September 21, 2010 - 9:30 PM

Zavie I finally have time to join you, do I just skype you at zavie.miller at 930PM -Original Message- From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of Zavie Miller Sent: September-21-10 3:02 PM To: c...@yahoogroups.com; CMLHope@googlegroups.com Subject:

RE: [CMLHope] EYE BLEEDS

I've 2 in 5 years. _ From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of ANGELYN ESDERS Sent: September-15-10 8:00 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] EYE BLEEDS I've been on 300 mg Gleevec since Jan. 2001 and have never yet had an eye

RE: [CMLHope] Seattle supportive doctors for CML and pregnancy?

I know there are several women who have had children and had no problem. I'm not sure if they are part of this group or not, good luck with whatever you choose. Tony -Original Message- From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of sweetbluemusic2002 Sent:

RE: [CMLHope] Genetics Blood Test Results

Congrats! -Original Message- From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of C.M. Houtz Sent: September-02-10 5:58 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Genetics Blood Test Results I'm so happy for you...Hope it will continue...Millie -

RE: [CMLHope] Re: Millie if it ain't broke don't fix it

I take fish oil everyday it has an anti-inflammatory effect _ From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of kary...@comcast.net Sent: August-24-10 12:12 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Re: Millie if it ain't broke don't fix it Hi,

RE: [CMLHope] Changing to Tasigna

I have a friend who switched and said she has virtually has no side effects on Tasigna, she's not on this group good luck with the switch. Tony -Original Message- From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of peg Sent: August-13-10 6:58 PM To: CMLHope

RE: [CMLHope] Re: Harley Ride For Leukemia

Pretty cool will check out the photos Thanks -Original Message- From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of kda...@cin.com Sent: July-31-10 8:37 AM To: CMLHope Subject: [CMLHope] Re: Harley Ride For Leukemia Update on my husband's Harley ride for

RE: [CMLHope] Shingles

I thought the standard treatment now was Valtrex. -Original Message- From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of pat2202...@yahoo.com Sent: May-08-10 1:26 AM To: CMLHope Subject: [CMLHope] Shingles Greetings Everyone, I'm writing in regard to shinges. I

RE: [CMLHope] Brittle Bones

My brother had that but he does not have CML. I use to get very sore feet from walking around the house I found slippers were the worse because they offer no support, I solved my sore feet problem by wearing Crocs around the house the are quite supportive. Tony -Original Message- From:

RE: [CMLHope] muscle mass loss

I have not lost any been on Gleevec for 5 years now. Tony -Original Message- From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of Ana Sent: April-11-10 5:42 AM To: cmlhope@googlegroups.com Subject: [CMLHope] muscle mass loss I would like to know if you have

RE: [Possible Spam][CMLHope] Eye bleeds

2 1/2 years on nothing are your counts stable or are they slowly rising, because maybe the Gleevec did cure you, it has in some.Please keep us posted. Tony _ From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of rszim0...@aol.com Sent: December-09-09 8:49 PM To:

RE: [CMLHope] Merry Christmas

Great news. Thanks for the update. _ From: trim...@aol.com [mailto:trim...@aol.com] Sent: December-01-09 12:33 PM To: CMLHope@googlegroups.com Subject: [CMLHope] Merry Christmas Hey group, I do hope that this will go through It has been awhile since I have posted and forgot my

[CMLHope] Re: Chat Reminder - Tuesday November 3, 2009 9:00 PM Eastern

Zavie is the chat done on skype video now ? _ From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of Zavie Miller Sent: November-03-09 10:39 AM To: zmil...@sympatico.ca Subject: [CMLHope] Chat Reminder - Tuesday November 3, 2009 9:00 PM Eastern Chat Reminder -

[CMLHope] Re: Gleevec Im on Sprycel also

Kelly I have a glass of wine a few times a week.Ive been on gleevec almost 5 years now, I do notice I can not tolerate more than 2 or 3 drinks. Tony -Original Message- From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of kellyelise Sent: November-03-09 9:24 AM

[CMLHope] Re: [CMLHope]

to stay away from Tylenol products as Gleevec is hard on the liver and so is Tylenol. I was prescribed vicoprofen. Instead of Tylenol and codeine, it contains ibuprofen. It worked well for me with all my major pain issues. Hope that helps. Lenda - Original Message - From: Tony Lanoue t

[CMLHope]

Hi group I never paid much attention to which pain meds are ok with gleevec but due to my mountain biking accident this summer I am needing surgery this Wednesday and will require some meds hopefully only for a short time anyways if anyone could help I would really appreciate it thanks. Tony

[CMLHope] Re: Bone pain on Gleevec...

Greenie Glad to here your doing better. Tony _ From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of myvet...@aol.com Sent: August-28-09 8:43 PM To: cmlhope@googlegroups.com Subject: [CMLHope] Re: Bone pain on Gleevec... I just got back from Dawson Springs, KY.

[CMLHope]

not the news I was expecting today it apers the fracture has spread open a bit and is not healing my surgeon wants to do a spinal fusion I'm not trilled about that anyways I'm going to ask for a second opinion at a clinic in Toronto that specializes in spinal cord injuries. I kind of believe I've

[CMLHope] Re: depressed

Thanks Marty. Ps if anyone from the group would like to join me on facebook just make a friends request and mention Cml so that I know its not spam Tony Lanoue _ From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of Martin Gartenberg Sent: August-25-09 11:54 PM

[CMLHope] Re: depressed

17, 2009 at 4:00 PM, Tony Lanoue t...@cybertrainer.biz wrote: Just need to vent.Wow not used to feeling this way I'm starting to feel depressed since my accident keep wondering if my life is going to be a life filled with pain and numbness the DR is going to run some more scans he believes that I

RE: [Possible Spam][CMLHope] Re: depressed

Thanks Jeanie I need to here the success story's I'm feeling better today and I'm glad to here your grandson is doing better to. Tony _ From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of icandoall...@aol.com Sent: August-18-09 9:05 AM To:

[CMLHope] depressed

Just need to vent.Wow not used to feeling this way I'm starting to feel depressed since my accident keep wondering if my life is going to be a life filled with pain and numbness the DR is going to run some more scans he believes that I also have a collapsed vertebra in my mid spine as well as the

[CMLHope] Re: TATTOO/Marty

lives strong was started by Lance Armstrong it raises money to help people adjust to life after recovering from cancer. Lance talks about it in his book the name of the book is Not about the bike the book is awesome I highly recommend it it really helped me when I was first diagnosed with CML.

[CMLHope] Re: broken bones

Thanks Jeanie yes mountain biking I guess I'm one of the lucky one's, I virtually have no side effects from the gleevec and I love mountain biking and plan on getting back to it asap however July 16 I had momentary lap of judgment went over a jump way to fast at the bottom of a large hill and

[CMLHope] broken bones

anyone know how well are bones heal I fractued two vertaba in my neck mountain biking I'm on 400 mg gleevec.Tony --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message

[CMLHope] Re: CML and elevated PSA?

My psa was normal Tony -Original Message- From: CMLHope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of perk Sent: May-21-09 11:15 AM To: CMLHope Subject: [CMLHope] CML and elevated PSA? My urologist recently said he has noticed an elevation in PSA count in his

[CMLHope] Re: In the beginning

Kelly mine were not that high either, although I felt tired all the time that was what got me into the Dr Office. -Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of kellyelise Sent: Wednesday, August 20, 2008 9:15 AM To: CMLHope Subject: [CMLHope] In

[CMLHope] Re: hot granite - N.B. benzene

Excellent article thanks. Tony. _ From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of ANGELYN ESDERS Sent: Friday, July 25, 2008 7:25 AM To: CMLHope@googlegroups.com Subject: [CMLHope] Re: hot granite - N.B. benzene I think that we are all in contact with

[CMLHope] Re: hot granite - N.B. benzene

I did a lot of that stuff also and worked in auto factory using all kinds of chemicals. Tony _ From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of [EMAIL PROTECTED] Sent: Friday, July 25, 2008 8:03 AM To: CMLHope@googlegroups.com Subject: [CMLHope] Re: hot granite

[CMLHope] Re: Where there's life there's hope

Thanks.Tony. _ From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of Ricardo Gadelha Sent: Monday, June 09, 2008 1:05 AM To: CMLHope@googlegroups.com Subject: [CMLHope] Where there's life there's hope Hi my CML friends, So far all is life. Some gets

[CMLHope] Re: Chat Reminder - Tuesday June 3, 2008 Eastern

Happy birthday Zavie.Tony. -Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of Zavie miller Sent: Tuesday, June 03, 2008 2:17 PM To: [EMAIL PROTECTED]; CMLHope@googlegroups.com Subject: [CMLHope] Chat Reminder - Tuesday June 3, 2008 Eastern Chat

[CMLHope] Re: Chat Reminder - Tuesday 9:00 PM DST

What an amazing sunset we are so blessed thanks Zavie. Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of Zavie miller Sent: Monday, April 21, 2008 3:24 PM To: [EMAIL PROTECTED]; CMLHope@googlegroups.com Subject: [CMLHope] Chat Reminder - Tuesday 9:00

[CMLHope] Re: Chat Reminder - Tueday 9:00 PM

As usual thanks for the beautiful pictures just amazing . Thanks Tony. -Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of Zavie miller Sent: Tuesday, April 08, 2008 5:00 PM To: [EMAIL PROTECTED]; CMLHope@googlegroups.com Subject: [CMLHope] Chat

[CMLHope] Re: Chat Reminder - Tuesday 9:00 PM Eastern DST

Hi Zavie I wish I could come back for a visit again this year but I think it will have to wait till next year. -Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of Zavie miller Sent: Tuesday, March 25, 2008 2:53 PM To: [EMAIL PROTECTED];

[CMLHope] Re: Chat Reminder - Tonight - Tuesday March 21, 2008 - 9:00 PM

Zavie first you make me jealous with all the pictures of the snow now all the great looking food and now I see you even have an elf to cook it for you . Boy you sure have it made. -Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of Zavie miller Sent:

[CMLHope] Re: Chat Reminder - Tuesday 9:00 PM Eastern

I really need to move to Ottawa your so lucky. Tony. -Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of Zavie miller Sent: Tuesday, March 04, 2008 3:50 PM To: [EMAIL PROTECTED]; CMLHope@googlegroups.com Subject: [CMLHope] Chat Reminder - Tuesday 9:00

[CMLHope] Re: nose bleeds?

My two cents I put a little Neosporin or vaseline up my nose with a Q tip to keep it from drying out especially in the winter time that seems to work for me.Tony -Original Message- From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of zippimom Sent: Saturday, February 16,

[CMLHope] Re: Husband's Passing

Sandy I’m sorry for your loss Tony. _ From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of Sandy Johnson Sent: Friday, January 04, 2008 10:07 AM To: cmlhope@googlegroups.com Subject: [CMLHope] Husband's Passing Anjana,I have not posted for a very long time.My

[CMLHope] Re: sore hip and sore heel problem

The problem I had with wearing shoes is sometimes I would not put them on and that would always set me back. The crocs just slip on so I don’t have that problem. Hope they work for you Tony. _ From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf Of [EMAIL PROTECTED]

[CMLHope] Re: New website-CMLkids

Does anyone have Dr druker's E mail .Tony. - Original Message - From: spelland [EMAIL PROTECTED] To: CMLHope CMLHope@googlegroups.com Sent: Monday, September 03, 2007 9:48 PM Subject: [CMLHope] New website-CMLkids Hi All,. Timmy's mom here again. Nothing much has changed, but we

[CMLHope] Re: New website-CMLkids

Thanks Zavie. All well here it's for a frind who's having some issues.- Original Message - From: Zavie Miller To: CMLHope@googlegroups.com Cc: [EMAIL PROTECTED] Sent: Thursday, September 06, 2007 10:43 AM Subject: [CMLHope] Re: New website-CMLkids On 9/6/07, Tony

[CMLHope] Re: pain killers

: [CMLHope] Re: pain killers You should really discuss this with your doctor, as they can make the best recommendation based on what is causing you the pain and the other medications you are on. Lori On Jun 18, 8:08 pm, Tony Lanoue [EMAIL PROTECTED] wrote: Hi everyone I always here we

[CMLHope] pain killers

Hi everyone I always here we are not supposed to use Tylenol , what can we safely take for pain? ThanksTony. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message

[CMLHope] For Zavie

Go Ottawa --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to

[CMLHope] Re: CML newbie

I don't think it's weird I think we all appreciate the little things in life just a little more. - Original Message - From: brooklyn bruiser [EMAIL PROTECTED] To: CMLHope CMLHope@googlegroups.com Sent: Wednesday, May 30, 2007 7:28 AM Subject: [CMLHope] CML newbie Well, I've just

[CMLHope] Re: 3 Year Anniversary with CML Counting

Check your regular grocery store I found them near the pancake syrup. - Original Message - From: livia klescova To: CMLHope@googlegroups.com Sent: Tuesday, February 20, 2007 11:00 PM Subject: [CMLHope] Re: 3 Year Anniversary with CML Counting I will check for the store in

[CMLHope] PCR results

Hi I,m wondering does anyone have any thoughts on my PCR results. Last April it was at a 3.5 log reduction but the latest one has dropped to a 2.6 I have an appt on Monday with my ONC, I was wandering what kind of ? I should ask. Thanks Tony. PS Zavie if your out there send me an E mail I

[CMLHope] Re: Eye Stuff

Hi Bonnie about the preparation H it was me that saw something about that in our local news paper it was directly from the manufacture saying not to use it around the eyes.however some people swear by it ! Tony. - Original Message - From: Dov [EMAIL PROTECTED] To: CMLHope

[CMLHope] Re: Anybody decided Glivec not for them, gone all a 10% alternative therapies, dramatic diet change

Thanks for the inspirational E mail have a great day! You sure made mine. Tony L. - Original Message - From: [EMAIL PROTECTED] To: CMLHope CMLHope@googlegroups.com Sent: Friday, November 10, 2006 6:33 AM Subject: [CMLHope] Re: Anybody decided Glivec not for them, gone all a 10%

[CMLHope] Re: Education CML

Hi Tony the book I recommend is not about CML but it helped me tremendously was Lance Armstrong's book It's called Not about the bike I recommend it to everyone.You may have read it but I thought I would mention it because it was so darn inspiring .Have a great day Tony L - Original

[CMLHope] Re: Chat Reminder - Tuesday 9:00 PM

Zavie are there any good ski resorts around Ottawa? Maybe I could be persuaded to pay a visit to your beautiful city. PS if you ever happen to be traveling thru the Windsor/ Detroit area please let me know it would be an honor to buy you a coffee. Tony. - Original Message - From:

[CMLHope] Re: (Nausea)

Hi Dave It's probably not this but my dad had inner ear problems for a while and it was causing him to be nauseous. - Original Message - From: [EMAIL PROTECTED] To: CMLHope@googlegroups.com Sent: Monday, October 23, 2006 3:26 PM Subject: [CMLHope] Re: (Nausea)

[CMLHope] Re: CHF and Gleevec

Dear Ora and Scott please let me play devil advocate and please do not take offense. I just want to mention that I have a friend who had a similar diagnosis and has had a pace maker installed he is only 40 years old. He does not have CML I am not saying it is not the Gleevec I just thought

[CMLHope] Re: 9 new messages in 5 topics - digest

It's funny you should post that today I just was listening to the radio and they said the makers of preparation H have released a statement to not use there product on the face.However it is a morning comedy show so I don't know for sure if they were serious. - Original Message -

[CMLHope] Re: Nausea Diarreah

Hi Mary I would recommend you try a yogurt with live cultures in it like activa. Also cottage cheese has good bacteria or supplements like acidophilus are very popular these days.Also remember not to drink to much liquids while eating it dilutes the digestive juices. Hope everyone is well

[CMLHope] Re: Gleevec as Possible Cure

Hi Richard I have a few ? about your E mail . What is pulse therapy regimen, also are you now on gleevec or did the IFN cure you? Thanks Tony. DX Jan 2005 400mg gleevec.Zero #924. - Original Message - From: Richard R [EMAIL PROTECTED] To: CMLHope CMLHope@googlegroups.com Sent: