Hey Betsy:
I do not envy your weather (LOL), but you did give me 'food for
thought'
about the Atkin's shake or one of the other protein shakes, though. I
might try that. I've often wondered
about whether it would work or not. I have eaten stuff like Peanut
Butter
crackers as a snack and then t
You have to take Gleevec with a mild meal--Breakfast worked for me.
No tomato products or spicy foods at all.
In a message dated 11/21/2009 12:51:05 P.M. Pacific Standard Time,
jodyca...@cox.net writes:
Hi Joan...I've been on gleevec since April 01 and finally figured out
what works for me
I take it with a protein shake as well, and no nausea. ;) Just Chocolate
Whey from SAMS and skim milk.
-Original Message-
From: skree [mailto:skreelan...@gmail.com]
Sent: Friday, November 20, 2009 12:16 PM
To: CMLHope
Subject: [CMLHope] Re: Nausea and exercise
Hi Joan...I've be
Hi Joan...I've been on gleevec since April 01 and finally figured out
what works for me. Often, after what I believed was a "good meal", I
couldn't keep the drug down and would loose the whole meal and feel
pretty bad. Now I take the pills in the middle of a Dr Atkins
chocolate shake. And it works
Joan,
I am sorry that you've been plagued with this "wonderful" side
affect of Gleevec. I, too, have suffered from time to time, but
I've learned to split my dosage and take half with a good meal
and then the other after the next meal or a snack. No problems
if I do it this way. Sometimes, if
Thank you Kelly.. Wish my Doctor could respond that quick.
Greenie
**Looking for a car that's sporty, fun and fits in your budget?
Read reviews on AOL Autos.
(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut000517
)
--~--~-~--~~
Hi Greenie:
I checked my list of "do not take" drugs and it did not list Xanax.
Xanax and Klonopin are benzodiazepines (so are Ativan and Valium -
same drug class), so I am pretty sure you can take the Xanax with the
Wellbutrin.
Good luck!
Kelly
On Aug 6, 1:30 pm, [EMAIL PROTECTED] wrote:
> Kel
Ibuprofen because of kidney trouble. You
just get fed up after awhile.
Suzzie
--- On Tue, 8/5/08, kellyelise <[EMAIL PROTECTED]> wrote:
From: kellyelise <[EMAIL PROTECTED]>
Subject: [CMLHope] Re: NAUSEA
To: &qu
Kelly,
I talked to my cancer Doctor here in Springfield, or I should say his nurse
and she said to take the Wellbutrin XL. My next question is can you take
xanax along with it need be? I'll have to talk to him about that when he
calls
back tonight.
Greenie
**Looking fo
Hi Greenie and yes, I think that is the problem.
I got to where I didn't really want to tell him about my side effects
because he never did anything anyway.
I'm happy to say my rash went away before I even got to the Dr. I double up
the yogurt and acidoflus and I think it helped. Those Gleev
Hi Greenie:
In response to your question about Zoloft - it is an antidepressant -
an SSRI. I was told by Cleveland Clinic that while taking Gleevec I
cannot take any SSRIs as the Gleevec will increase the "dosage" of the
drug at least by two-fold. In other words, you could potentially
"overdose"
Hi Jeanie
What I think is that the Doctors don't want to hear from us about the nausea
problems that we are having this late in the game. Most people get the
nausea at the beginning when taking Gleevec. I still think they don't want to
hear it from us. Two many people are having nausea p
Hi Greenie, So sorry to hear about the nausea. I never had it much, but I
noticed I am getting it now.
I've been on Gleevec for over 4 1/2 years and have gotten a few side-effects
I never had before; eye bleed, nausea, rash, more leg cramps and am just now
having backaches; so they can't s
You could try taking Gleevec at a different time of the day. Another
thought is that I split the dosage and take half at each of two
different meals, which helps reduce the side effects.
Do you think the Metamucil (fiber as a natural laxative) is a good idea
with the diarrhea effects of Gleevec?
One other thing, I took compazine at first. That did'nt cut it. Try the
other first.
Greenie
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[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are
Greetings
I started taking Gleevec in Feb 2000, never had nausea problem until a few
months ago. The Doctors in Chicago said, can't be, you should have gotten it
when you first started, WRONG. Their have been a few others with the same
problem. My Doctor here in Springfield gave me a s
Hi Mike --
I have been on Gleevec for three years and I also had nausea at first some
bouts of it off and on. In the past two to three months, however, I have had a
major problem with nausea and am constantly taking anti emetics such as
compazine. I have come to the conclusion, though, that co
Hi Mike, I've been on Gleevec since 2001 and have have very few bouts with
nausea. At the most 10 times and none in the last 2 years. Hope you do better
in the near future!
Jim Rodeghier
mburwen <[EMAIL PROTECTED]> wrote:
I've been on Gleevec for 2 years. I had nausea for the first
Sorry folks I sent a blank e-mail
Greenie
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A support group of http://cmlhope.com
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You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To pos
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[CMLHope]
A support group of http://cmlhope.com
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"CMLHope" group.
To post to this group, send email to CMLHope@google
Hi Mike,
I started Gleevec Feb. of 2000, never had any nausea until sometime in Aug.
They have tested me from top to bottom here in Springfield, MO. and can't
find anything wrong. I've been scoped, scanned, and poked. I take half of a
Phenergan 25mg pill before bed time, that seemed
If I eat a solid breakfast containing PROTEIN I am never nauseousafter
almost 6 years. It helps to be up and active after that breakfast and the
pills...take a walk or something to shake them down. This also dispels the
brain fog that can follow.
Angie in Canada
Pete pabon <[EMAIL PROTEC
I have been on Gleevec for 5yrs and still experience nausea once in awhile. It comes and goes.
Everyone has beauty but not everyone sees it.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
---
yes, my mother has been on gleevec for almost 4 years and she has nausea very
often
http://webs.ono.com/usr019/FOTORETOQUE/
- Original Message -
From: mburwen
To: CMLHope
Sent: Tuesday, December 12, 2006 9:30 PM
Subject: [CMLHope] Nausea returns?
I've been on Gle
I take my gleevec in the evening also, with a big dinner. I find that
taking it with pasta or rice helps also. Anytime i have a light dinner
it bothers me more.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
---
Hi all,
I have to agree with you Dan about Xanax, I take it before bed with my Gleevec and it helps me sleep through the night.
Terry
On 10/25/06, MrIntegrity79 <[EMAIL PROTECTED]> wrote:
Try some valume/zanex for the panic attacks it works much better thanzoloft. I've been on Gleevec for 4 yea
Try some valume/zanex for the panic attacks it works much better than
zoloft. I've been on Gleevec for 4 years+ and haven't had too many
complaints other than nausia. About a year ago I took it upon myself
to lower my dosage to 300mg from 400mg because my body was having
trouble digesting the m
HI all,
Trust me on this. Sometimes the side effects can play with you. I have been on 400mg's of Gleevec since April of 04. Granted I have allot more problems with side effects then some, but at one point they all nearly vanished, but as of now the only side effect that has pretty much stopped is
Grennie,mine started every morning then went away and now I feel it every once in awhile
Everyone has beauty but not everyone sees it.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
Y
Hi Dave It's probably not this but my dad had inner ear problems for
a while and it was causing him to be nauseous.
- Original Message -
From:
[EMAIL PROTECTED]
To: CMLHope@googlegroups.com
Sent: Monday, October 23, 2006 3:26
PM
Subject: [CMLHope] Re: (N
Mike and all others
My question is for those folks that get nausea in the mornings do you
get every day, or X number of days each week. I'll get it maybe one to two
day's in a row, then go for 3 to 4 days without a problem. Just
wondering.
Dave Greenberg or just call me Greenie, everyo
Dave, thanks for the input I was beginning to think I was the only one feeling these changes.
Everyone has beauty but not everyone sees it.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
---
Greetings,
I was reading your E-mail about nausea, I've been on Gleevec for almost 7
years without never having a problem. I called my Doctors in Chicago, they
told me no one has gotten nausea so late in the game, you get it when you first
start Gleevec. I think they are wrong. Yesterd
Greetings,
For those of you having nausea when up wake up in the
morning, try sleeping in a recliner upright at night just to see if it
helps when you wake up. I tried it last night and woke up with no
nausea. I'm going to try it again tonight. It would be interesting
to see if this wor
Dave, I commiserate. I haven't had your specific syndrome, but at our
age it's tough to sort out the results of aging from Gleevec side
effects or from something new neing wrong. All I can suggest is to get
every test covered by Medicare, and, if they don't find anything
specific, blame it on ag
I usually get it in the morning. Sometimes it goes away right away and other times I feel it all day. I'm beginning to realize that if I eat a lot the day before it's not so bad. I have been waiting for my next appointment with my Onc. to ask him to give me medication for the nausea.Diag 7/99 majo
Hi fellow CML'er
I started Gleevec in Feburary of 2000, never had nausea until the last
month or so. But I get it in the Morning after waking up, 1/2 hour to
an hour. May I ask when do you get yours? And what do you
do for it.
Thank you,
Dave Greenberg
--~--~-~--~~--
Hi Pete,
As someone who lived in LA for 24 years all I can
say is "Ain't THAT the truth!
Susan L
- Original Message -
From:
Pete pabon
To: CMLHope@googlegroups.com
Sent: Friday, October 20, 2006 6:20
PM
Subject: [CMLHope] Re: (Nausea)
I ha
I have been on gleevec 5 yrs and all of a sudden am experiencing nausea. Never had problems before
Everyone has beauty but not everyone sees it.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
---
Hi Group,
Question, for those of you that wake up with nausea. Do you also get
an anxiety attack with it? I sure do. I'm going to have to
go back to sleeping in a recliner so that I can
sleep upright, instead of sleeping level on my
stomach. My Internist put me on zoloft yesterday, he
Hi Mike,
Our doctor told me long ago that BMS would have a trial for Gleevec
patients in CCR but who were not going down in PCR values anymore. I
don't see those trials being done by BMS, seems to me it would be good
if Gleevec patients with good responses could take Sprycel in a trial
setting
Hey Dave,
Promethazine is the same thing as phenergen just remember it will make you sleepy, usually I can break them in half and 12 1/2 mg will settle my stomach and doesnt make me too sleepy.
Medrol dose pack is prednisone a steriod they give it to you for bronchitis, infection and oth
Thanks Anjana, I knew you would be as on top of this issue as anyone.
In one of the study abstracts you cited it says, "Preliminary data
suggest that D is more effective and better tolerated than high dose
IM." I think that was written quite a while ago during an early phase
of testing Sprycel.
Hi Katy,
Well, this morning I awoke and had no nausea, what a great
feeling. I'm going to stay off Gleevec one more day to see what happens,
Saturday will be the 6th day. My Doctor here called in a prescription for
Promethazine, but I haven't taken any yet. This way if the nausea comes
Well I for one am sticking to Gleevec until if and when it stops working. Even with though Sprycel may have less side effects, at least for now I know the Gleevec is keeping me in remission, so I would rather deal with the side effects then switch to something else. That is just my two cents worth.
Hi Mike,
I think doctors want to be safe. It is what Rosemary said. Gleevec
has been around for 7 years, there is lots of data, so doctors may feel
they may want to see more data on the new drugs before switching.
However, it may boil down to what individual patients want. I have
been in con
Mike,
Maybe the reason Dr.'s are not in a hurry to switch people over is because one of the major side effects of Sprycell is Internal bleeding? Another reason my doc gave me was "you ride a horse till it drops" why mess with something that is working and take a chance that Sprycell would let
Dave,
Something I forgot to mention in my other reply was that gleevec completely changed my appetite also. I completely lost it. I didnt want to eat either and between that the nausea and the diarrhea I lost 85 pounds the first two years after dx, Three months ago I took a round of Medrol Do
Dave,
It is the gleevec. I have had trouble with nausea ever since I started it in 2003. Phenergen works better then compazine. Also try taking your gleevec at bedtime, it works better for me that way and I have noticed a couple of others on here saying the same thing. Good luck!
Hugs,
Katy
to think about.
>From: "mburwen" <[EMAIL PROTECTED]>
>Reply-To: CMLHope@googlegroups.com
>To: "CMLHope"
>Subject: [CMLHope] Re: Nausea & Diarreah
>Date: Fri, 06 Oct 2006 11:31:00 -0700
>
>
>This thread highlights the fact that Drs. aren&
ehalf Of
[EMAIL PROTECTED]Sent: Friday, October 06, 2006 1:16
PMTo: CMLHope@googlegroups.comSubject: [CMLHope] Re:
Nausea & Diarreah
Hi Larry,
One thing I forgot to add. I don't know if this means anything at all
but I'm 67 years old and the color of my urine has changed
This thread highlights the fact that Drs. aren't in any hurry to move
their patients from Gleevec to Sprycel. That includes my Doctor. Yet
Sprycel has an anecdotal reputation for far fewer and less intense side
effects than Gleevec (with a few relatively rare exceptions), and there
isn't any sta
Hi Larry,
One thing I forgot to add. I don't know if this means anything at all
but I'm 67 years old and the color of my urine has changed about the same time
that the nausea started.. Let's say that the color rating is from 1 to 8 and (1)
being the light side and (8) the darkest. Most
difference and i thank you all and send blessing to all .
Larry
lex, ky .
From: CMLHope@googlegroups.com
[mailto:[EMAIL PROTECTED] On Behalf Of
[EMAIL PROTECTED]Sent: Thursday, October 05, 2006 6:16
PMTo: CMLHope@googlegroups.comSubject: [CMLHope] Re:
Nausea & Diarreah
Hey Ever
Hey Everyone,
This nausea thing that you all have been writing about, I wonder if this is
the same thing I am having. It's been going on for about a month.
Mostly in the morning. Been to the Doctor did some test and can't find
anything wrong, and the other thing is I don't feel like ea
Hey Guys,
Well after two weeks off of gleevec the pain in my arms, legs and even the neuropathy in my left ankle and toes left! I was sleeping good for the first time in a while. But then I had to go and start taking gleevec again! I started back on it about a week ago and the pain in my arms
Thanks for your response, Terry. It's uncanny, the similarities
between our side effects, as well as the feelings of guilt and
self-criticism about being out of work. Like you, I had an office job
(I'm a lawyer -- same law firm for 15 years), where my most important
assets were (1) my ability to
Hi David,
I am sorry you were dxed, I wish you all the best. Your situation though sounds exactly like mine, down to nearly every side effect. For a while I had thought it was just me, I mean I know of the listed side effects, and that some people cannot even take Gleevec, but in the back of my m
Hi, Terry. Like you, I have a lot of side effects that have basically
sidelined me and put me on a disability leave from my job (e.g., memory
loss, difficulty focusing, concentrating and comprehending, extreme
fatigue, and a bunch of less important but annoying physical side
effects). I've also
> Mike , is there a certain amount of mg of ginger one should take to help
> with the nausea , have read 250-500mg is good
If you buy tablets they are usually 500 mg, but I'll bet that there is
nowhere near that amount in ginger ale, and a lot more than that in a
piece of candied ginger. I do
Suzie,
I had a simliar experience with Gleevec. I have been on it since April 04 and around late June nearly all of my side effects had leveled off, and I tried to go back to my job. Well to make a long story short, they came back. The nausea, diarreah(in my house the bath room doors are vaccumed s
thanks for the info .
larry
From: CMLHope@googlegroups.com
[mailto:[EMAIL PROTECTED] On Behalf Of
[EMAIL PROTECTED]Sent: Monday, October 02, 2006 11:47
AMTo: CMLHope@googlegroups.comSubject: [CMLHope] Re:
Nausea & Diarreah
It's funny about ginger'
I has a different tast
I like Steak and Shake's chili mac.
Ever had that?
It's pasta with chili on top.
yummy,
JEANIE<3
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you
It's funny about ginger'
I has a different taste and I use it in everything,
I buy the ground but the fresh is wonderful.
Just grate some and smell it.
It is very refreshing and good for you.
Jeanie<3
In a message dated 10/2/2006 10:51:38 A.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:
Suzanne:
I thought of Peppermint Tea. I think I remember reading somewhere that
it was good for upset stomach & I think I bought some. So, will try
that next time I begin feeling nauseous. So far, eating the yogurt
afterwards seems to be helping a lot..and also, I was taking all
my vitamen
. Lexington , ky .
[EMAIL PROTECTED]
-Original Message-
From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On
Behalf Of mburwen
Sent: Saturday, September 30, 2006 3:30 PM
To: CMLHope
Subject: [CMLHope] Re: Nausea & Diarreah
I agree that Zofran is magic. Unfortunately, i
Jeanie:
I remember about six months ago, I had gone out to eat at Steak &
Shake. I love their Chili 5-Way, and that's what I had. As I was
checking out, some man had a mix-up on his order of two coffees to
go.instead they had made him two chocolate shakes and he didn't
want both, so I told t
Hi all,
Make sure you eat a very mild diet when you take your Gleevec.
I take mine with breakfast as this is always a mild meal and not
spicy.
Early on I took it with a chili meal and was very nauseous.
Also stay upright and it helps me to do something like walking and etc
after taking it.
Go
For those of you with slight nausea, especially in the mornings, and
don't want to take another pill, try putting a few drops of pepperment
oil on a face cloth and putting it inside your pillowcase. We checked
with Adam's oncologist first and he was fine with it.
Suzanne V.
--~--~-~--~
LIVE STONG.Tony.
- Original Message -
From: "Mary K" <[EMAIL PROTECTED]>
To: "CMLHope"
Sent: Friday, September 29, 2006 11:08 PM
Subject: [CMLHope] Re: Nausea & Diarreah
>
> I have had diarrhea and nausea since I started taking Gleevec - 400 mgs
&g
Katy & others:
Well, I'm feeling some better today. I have decided that it's
definitly the Gleevec.not a flu bug or virus. And, for the record,
Katy, I believe the first dr. I had prescribed the drug you mentioned.
I'm not sure, but I remember it beginning with a P. His idea was for
me to t
I Group,
For the last 4 to 5 weeks I have been having nausea in the early morning
which ends up going to the lower intestine. I've been on Gleevec starting
on Feb. 2000. I have never had a problem at all with Gleevec before.
I don't have it every morning but at lease 2 to 3 times a we
I agree that Zofran is magic. Unfortunately, it is prescription, and
it is expensive if you do not have drug insurance. I recommend that
you try ginger first, as it has no known drug interactions or side
effects that I know of. You can take it in any form: ginger tablets
(health food store), dr
My vote is for Zofran. It is great! you only have to take it when you
feel nausea. It is what all the doctors at MDAnderson scribe too and
even it the emgergency room. I'm on SKI-606 now and Zofran was on my
list of drugs that I can't have. So Dr. Cortez had me do a special test
of the drug compan
I have had diarrhea and nausea since I started taking Gleevec - 400 mgs
over 4 years ago. It comes and goes. I take Immodium for the diarrhea
and Compazine (a prescription drug) for the nausea. Sometimes it gets
worse and I will have a week where I am so sick and nothing seems to
help. I worry
Suzie,
ONE word..PHENERGEN! (yes I know it is prescription sorry) It works better then anything. If your doc gives you 25 mg tabs you can break them in half and just take 12 1/2 mg (childs dose) and it will settle your stomach without knocking you out as bad. Good luck. Oh yeah you could also
I've been having a lot more nausea and diarrhea lately, too. I have
also been on Gleevec (400Mgs) for 21/2-3/4 years, now(Dec 3 03) I take
stuff for it at night, sometimes, but mostly I've been riding it out.
Thought I had the flue the other day, too, but it was just another 'Gleevec
day
HI suzieq , funny you bring this up I have been on gleevec about 3.5
years and never had much nausea at the beginning , just some from time
to time . But the past week and a half I have had it eveyday and into
the night , seems strange out of the blue like that . Hope someone in
the group may ha
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