About the banding. I actually had banding pains as early as age 19. 5 years
later I got left foot drop. 10 more years I got right drop followed by lose of
right leg. The banding that came after tm was far more painful. Took sleep and
energy and seemed to never end.
--Original Message--
Hi Laura - I was diagnosed with TM in 2002, then MS in 2008. I never
experienced any banding (?)
Bernie
From: laura.eich...@gmail.com [mailto:laura.eich...@gmail.com]
Sent: Monday, August 10, 2009 11:56 PM
To: tmic-list@eskimo.com
Subject: [TMIC] That
*Subject:* [TMIC] That banding feeling
Thank you everyone for your replies. I recently got to thinking about that
banding feeling that I had experienced early on (for me it was completely
around the bra line and felt as if I had a belt on way too tight there)
and wondered if there was a
It is something we all have to live with; something we al l have to work out
with pain and suffering. Lol. When my bowel is full, I can't empty my
bladder either! Learned a long time ago what Dr. Kerr meant by digital
disimpaction!
I find mineral oil, one Tbs., taken orally along with
Me too! Cindy, I was told I would be in the position you are now.Catherine
From: Cindy McLeroy cindymcle...@socal.rr.com
To: bobby jim elbobber...@earthlink.net; lynnemye...@yahoo.com;
tmic-list@eskimo.com; balmat...@aol.com
Sent: Saturday, August 8, 2009
Date changed SUNDAY August 16th 2:30
SOUTHwest Virginia TMA Support Group (Transverse Myelitis,Devics, MS, Optic
Neuritis etc. welcome)
SUNDAY August 16 2:30 p.m.
Shoney's Restaurant
Dublin, Va
just of I 81 exit 98
Holiday Inn Express, Hampton Inn, Comfort Inn next door if
The banding came on immediately with the TM and has never left. Without
the meds, it is excruciatingly painful and just heads south to my toes.
Funny how you can hurt so bad and 'not feel'??? Explain that to someone??
::)) Gosh, I'm so happy you all are in my life..Jeanne
---Original
If you never look at another email, check this out! Amazing for sure!!!
Highlanders get bored with their sheep!
No, this is not dirty. your kids, wife, girlfriend, grandmother,
grandfather, or whatever can view this.
p.s. These guys are not retired electricians either!
I know we've gone over this before but I sure could use some help. Jack and
I are on Medicare (me, Disability but I have my Medicare card) with AARP,
Part L, and we really need some help with our prescriptions. I've read a
lot of what has been written and don't understand some of it.
What I
Hey Kevin,
Just think about the extra weight you're caring around when you're
constipated. LOL
Also, remember that it's help to drink a lot of water and to be able to do
standing exercises. I understand this is harder for most of us, but any
exercises is better than none. I have found that
Loved it!!! Always send stuff like that - we can use a lift!!!
janice
- Original Message -
From: jrushton
To: tmic
Sent: Tuesday, August 11, 2009 11:42 PM
Subject: [TMIC] When Highlanders get bored with their sheep - AMAZING! NOT
TMIC BUT WORTH WATCHING!
Jeanne,
I am so happy you are in my life too. The rest of our group included! I care
so much about you all.
Catherine
From: jrushton jrush...@columbiaenergyllc.com
To: laura.eich...@gmail.com; tmic tmic-list@eskimo.com
Sent: Tuesday, August 11, 2009
I've had TM for five years and don't expect an MS diagnosis. I've had the
banding trom the beginning. During one of my steroid IV's (first five days) I
rang for help and told the nurse I couldn't breath and something was squeezing
my chest. It was painful and I asked her if I could be having
Wish I had something more definite to tell but this is what I know for
sure. Jim is still in the Select Speciality hospital in Pontiac,Mi. They are
telling me he is almost definitely going to be transferred to Marlette
Hospital which is only 22 miles from home instead of about 65. He has an
I can't figure out why I only get some of the TMIC notes??? Anyone else
have the same problem? Jeanne
---Original Message---
From: pjv1...@chartermi.net
Date: 8/11/2009 6:38:33 PM
To: laura.eich...@gmail.com; tmic-list@eskimo.com
Subject: Re: [TMIC] That banding feeling
I've had
Oh, that would be so good, Gunny! We have them for our supplemental but
how and what do I do to sign up for what you have???
Also, my sis-in-law works at a clinic and they are saving the printer
cartridges for me. She said she has a lot and I'll be seeing her this next
weekend so you'll be
I am wondering who uses Power Wheelchairs on the TMIC?
I cannot use a manual wheelchair because my hands are bad.
Would you mind posting which chair you use, what you like or
don't like about it, is it good for indoor or outdoor use or both?
I am considering a Pride Go-Chair mainly because it
Invacare Ranger II - rear wheel, loved this chair and I was more mobile then
so I ran that thing all over and at 6-7mph.
Quickie S-525 - rear wheel, okay, goes as fast as I do now anyway
- Original Message -
From: Kevin Wolfthal wolft...@optonline.net
To: tmic-list@eskimo.com
Sent:
Hi Carol,
Late last night when I was reading the posts I was just about to ask if anybody
had heard from Carol regarding Jim's current condition. You must have known we
were thinking of you. Carol, is this infection the same one he has had for a
while, or is this one new? You and Jim are in
I had that banding feeling when I first got diagnosed 5 years ago also. But
with my second attack in January I didn't have it thank God!
--- On Tue, 8/11/09, pjv1...@chartermi.net pjv1...@chartermi.net wrote:
From: pjv1...@chartermi.net pjv1...@chartermi.net
Subject: Re: [TMIC] That banding
Rebecca, this is such great news. Please let Dennis know that he is in our
thoughts and prayers daily. Keep us updated as you are able. (and thank you
for praying for all of us - we'll take all the prayers we can get
Linda
- Original Message -
From:
Hi Jill, just curious. You had TM for 5 years and then had a second attack in
January? Do you have another autoimmune disease too?
Glad to hear you didn't have the banding with the 2nd attack - not too happy
that you HAD a 2nd attack, though
Linda
- Original
Janet,
I only have TM too - thank goodnessNo problems. I think
what you are talking about with the razor-sharp
pain is nerve pain. There is stuff out there that your doc's can help you
with - you just have to bug them with it.Hope
things get a lot better for you.
Okay, I have decided that I don't really have any banding. I have a
pressure feeling about my waist, but no pain.
I am really for you all that have the pain - surely there is something a doc
can do to help relieve this.Does anyone
out there get relief from the banding pain - any meds?
How do you know that you only get some of the messages? Maybe I don't get all
of mine either.
Janice
- Original Message -
From: jrushton
To: pjv1...@chartermi.net ; tmic
Sent: Wednesday, August 12, 2009 5:56 AM
Subject: Re: [TMIC] That banding feeling
I
Jeanne,
I have had an awful time trying to answer questions about how TM makes me feel
- inside and out. I feel pain in
the inside of my legs, but can't feel hot or cold on the outside! I also
spasm when I have to lay back in a chair
or - worse yet - when I go to the dentist, etc., and
Our thoughts and prayers are with both of you.You two have been through
so much - please take care of
yourself.Jim will need you to be strong when you get him home.
Janice
- Original Message -
From: cjb...@aol.com
To: tmic-list@eskimo.com
Sent: Tuesday, August 11,
Oh, Linda,
What a spot you are in, dear one. There has got to be a doctor out there
that can and will help you with your knees. The PT certainly won't hurt you
and I've really raved about water therapy but when you have bone on bone,
especially your knees, I just can't see that taking away the
Thanks Jeanne. Don't worry - I'm a survivor and never give up! Love that
Prayer Pot of yours.
Hugs,
Linda
- Original Message -
From: jrushtonmailto:jrush...@columbiaenergyllc.com
To: L T CHERPESKImailto:cherp...@msn.com ;
tmicmailto:tmic-list@eskimo.com
Sent: Wednesday,
Hi Kevin,
Just an fyi, not sure if you are getting any help from insurance, medicare,
etc. or not on this power chair.? If you are not, you may want to consider
purchasing one second hand.? I've bought 2 second hand, the second only because
the first one didn't have the power to pull the
Hi Linda,
I'm so sorry that your trip to the out of state surgeon proved to be a
disappointment.
Interesting you should ask about knee surgery and options.? I am possibly
looking at a knee replacement as well.? I see the orthopedist on Friday,
referred by my primary.? He said it was the
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