Sue Mattis - Harborcreek, PA (near Erie)
Co-chair of the PA support group with Pam Hoge
We are always open to getting together with folks from other states as
well. In fact
the first time I ever met with anyone with TM was back in 2001 in
Youngstown, Ohio
with some of the OHIO group. The
Kim, - Atlanta, GA
From: jrushton jrush...@columbiaenergyllc.com
To: Jill Z jillybean60...@yahoo..com; tmic tmic-list@eskimo.com
Sent: Monday, September 14, 2009 9:01:14 PM
Subject: Re: [TMIC] Looking for TMr's for support groups
Jeanne R from Dayton, WA
The day I started to take Omega3 capsules of 1000mg my bowl is more compact,
darker en the use of toilet paper went down a lot. Almost clean after the bowl.
Normaly to keep the bowl smooth going I use lactulose. that combination worked
for me the best.
Wim.
Date: Sat, 12 Sep 2009
JANE IN SPLENDORA TX
Hi all..
Haven't written in much but as of yesterday I have been very scared and nervous
because of a weird sensation I have been getting.. I was on Face Book (my usual
haunt) between 2 and 3 pm when my body began to vibrate. I was shaking from
head to toe. Not a big shake but a very small one
Yes please.. this is really starting to bug me.. can't even trust myself to get
into the shower even though I have a shower seat..
Thanks
- Original Message -
From: bgunny7...@aol.com
To: k...@frontiernet.net
Sent: Monday, September 14, 2009 8:58 AM
Subject: Re: [TMIC] weird
Kathy - It might take several days or longer for the Lyrica to get out of
your body, since you have been taking it for awhile. I know I was taking a
supplement I found on the internet for people with TM and it did a number on
my liver. My doctor agreed I should stop and it may take several
HI WIM. I DON'T TAKE JUST OMEGA 3, BUT I TAKE FLAX SEED OIL CAPSULES THAT
HAS OMEGA 3 IN IT. EVERYONES BODY WORKS DIFFERENTLY, SO THE SAME IS NOT
GOOD FOR EVERYONE. ALSO, I TAKE ONE ACIDOLPHILUS CAPSULE EACH DAY AND IT
WORKS TO PREVENT DIARRHEA AND HELPS TO STAY REGULAR. IT WORKS BOTH WAYS.
Jill,
So glad that Mike's treatment has begun!! Also super that it went
smoothly...so now you know what's going on and next week you'll get the
second part under your belt. I'm not making light of what Mike has to face,
but in my opinion the unknown is most often more frightning than
*I do, too, but I thought the link to already established support groups
might be helpful for some -- saves the time and effort of starting one.
Barbara H.*
On Mon, Sep 14, 2009 at 11:32 AM, Patricia Cooley patticoo...@wi.rr.comwrote:
I think letting people know where you re from is an
I did not take my lyrica this morning and body has already started reacting ...
I really hate this.. feels like I am going to bounce right out of my chair..
Kathy
- Original Message -
From: roseofr...@aol.com
To: k...@frontiernet.net ; tmic-list@eskimo.com
Sent: Monday,
Another Shocking Warning About Swine Flu Vaccine
_http://articles.mercola.com/sites/articles/archive/2009/09/08/Another-Shock
ing-Warning-About-Swine-Flu-Vaccine.aspx_
(http://articles.mercola.com/sites/articles/archive/2009/09/08/Another-Shocking-Warning-About-Swine-Flu-Vaccin
e.aspx)
Kathleen ~
I had the same reaction when I was taking Topamax.
Felt like I was going to vibrate right off my bed and out the
window. :-) I would just stay in bed until it passed.
When I stopped taking the Topamax the vibrating stopped
also.
Gunny is probably right...it's probably your
I think letting people know where you re from is an excellent idea. I also
sign off with my name and location, since my name is so common.
Patti - S.E. Wisconsin
From: Barbara H. [mailto:barbara...@gmail.com]
Sent: Sunday, September 13, 2009 10:05 PM
To: tmic-list@eskimo.com
Subject: Re:
I'm Janet
Fort St John BC
Canada
-Original Message-
From: Laura Beaudin [mailto:laura.beau...@gmail.com]
Sent: September 13, 2009 6:30 PM
To: Catherine
Cc: kevin weilacher; Transverse Mylitis Group
Subject: Re: [TMIC] Looking for TMr's for support groups
...and I'm Laura from
I've experienced the vibrating as well when I have too much Lyrica.? In fact, I
can't even talk right as my bottom lip shakes and my tongue doesn't work
right.? It's almost like drinking too much caffien.? Very weird feeling.?
Perhaps its the combo of Lyrica and caffien.? Only time and
Kathy...do you take anything else other than the Lyrica...?
Such as over-the-counter meds of any kind...?
I'm just wondering if maybe the Lyrica could be reacting
with something else you are taking.
Apparently, since many of us have experienced this and
are on different meds, it must have
Laurie from Baltimore.??? FYI, I've found that some of the support group
data is dated or incorrect.? You might have better luck contacting the
National Org if you have a problem.?
-Original Message-
From: Barbara H. barbara...@gmail.com
To: tmic-list@eskimo.com
Sent: Sun, Sep
Lynn ~ Reno, NV
In a message dated 9/14/2009 5:22:05 A.M. Pacific Daylight Time,
kimr1...@bellsouth.net writes:
Kim, - Atlanta, GA
From: jrushton jrush...@columbiaenergyllc.com
To: Jill Z jillybean60...@yahoo.com; tmic tmic-list@eskimo.com
Sent:
Kathy,
Do you think your pharmacist might be able to answer a few of your questions.
I know that mine is very helpful.
Catherine
From: Patricia Cooley patticoo...@wi.rr.com
To: LadyOwl k...@frontiernet.net; tmic-list@eskimo.com
Sent: Monday, September 14,
Debi Wall--South Lake Tahoe California
---Original Message---
From: Barbara H.
Date: 9/13/2009 8:05:25 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Looking for TMr's for support groups
There is a list of established support groups for various states and
countries here:
Sandy Parker, Caregiver
Ventura County, CA
Candy K. - SW FL - Naples, FLPrayers and thoughts for you and yours,Candy K.- Original Message -From: "Debi" brad...@gmail.comTo: tmic-list@eskimo.com, "Barbara H." barbara...@gmail.comSent: Monday, September 14, 2009 3:11:43 PM GMT -05:00 US/Canada EasternSubject: Re: [TMIC] Looking for
Rosalie Green Delray Beach, Fla. from Oct. to May.
In a message dated 9/14/2009 6:49:16 P.M. Eastern Daylight Time,
cakal...@embarqmail.com writes:
Candy K. - SW FL - Naples, FL
Prayers and thoughts for you and yours,
Candy K.
- Original Message -
From: Debi
Janice - Columbia, Missouri
- Original Message -
From: Jill Z
To: Catherine ; Laura Beaudin
Cc: kevin weilacher ; Transverse Mylitis Group
Sent: Sunday, September 13, 2009 9:54 PM
Subject: Re: [TMIC] Looking for TMr's for support groups
Jill From Chicago
Just found out from my neuro today that he does not want me taking the swine
flu shot.
Janice
- Original Message -
From: roseofr...@aol.com
To: tmic-list@eskimo.com
Sent: Monday, September 14, 2009 11:15 AM
Subject: [TMIC] ANOTHER SHOCKING WARNING ABOUT SWINE FLU VACCINE
Gilly,
I think we are all a little unconventional and that is a good thing - we look
at life a little differently now.Don't be
shy with us.
Janice
- Original Message -
From: Gillian Clark
To: TM list
Sent: Sunday, September 13, 2009 1:55 AM
Subject: Re: [TMIC] I met
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