and not worked for them.
Rob in New Jersey
-
From: sal r [mailto:[EMAIL PROTECTED]
Sent: Friday, May 16, 2008 9:46 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Neurontin Pain
i dont know if people know but they recalled neurontin at certain doses
To Jeanne and all the new comers, yiou guys can post whatever you guys want
because whats in the archives can be old and someone may have a new
development. There is no rule about posting the same question or subject
twice. I may want to ask a question again that i already just to see if
1) as a child
2) yes the time of my TM
Jan Hargrove [EMAIL PROTECTED] wrote:
1) Light case as a child.
2) Yes, soon after i had tm..within 6 months. Didn't suffer because I
was still numb.
3) No
janh
jrushton [EMAIL PROTECTED] wrote:
v\:* { BEHAVIOR: url (#default#vml)
) }
FLAVOR00-NONE--- 0.00 ; Thanks, Sal! j
---Original Message---
From: sal r
Date: 4/19/2008 3:47:47 PM
To: Jan Hargrove; jrushton; tmic-list
Subject: Re: [TMIC] Questions
1) as a child
2) yes the time of my TM
Jan
Is it possible to get foot drop if i have function of my foot?
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Does anyone know of a Neurologist that has experience with TM in Sacramento,
Ca? I have not seen a right neuro for 2 and half years. Please help.
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WELL, WHEN I PRACTICE WALKING WITH A WALKER MY LEFT FOOT TENDS TO OUT TO THE
SIDE ALMOST LIKE WALKING LIKE A PENGUIN...LOL...WHY AND HOW CAN I STOP THIS?
WEAK MUSCLES? SORRY FOR ALL CAPS I JUST THOUGHT MAYBE ITS EASIER FOR PEOPLE TO
READ...
-
You rock.
Does anybody recall being premature when they were born? I was 6 weeks
premature.
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users and friends.
need to watch..good motivation...proves anyone can get better only if they try
no matter how long it takes
jrushton [EMAIL PROTECTED] wrote: P.MsoNormal { MARGIN: 0cm 0cm 0pt }
LI.MsoNormal { MARGIN: 0cm 0cm 0pt } DIV.MsoNormal { MARGIN: 0cm 0cm 0pt
}v\:* { BEHAVIOR:
the doctors told my parents my heart was gonna stop when that didnt happen they
said i will never be able to move my arms and legs again once i moved my arms
then they said i will never be able to breathe on my again when i strarted
breathing on my own they said i wouldnt be able to move my
I dont know about you guys but I was treated with IVIGi think 2 or 3
different times...
[EMAIL PROTECTED] wrote: Rob
I hope you are keeping tabs on this. Looks like a whole lo of
people,myself included had some type of viral infection plus stress just prior
to TM. I am no
I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so
on...but have we ever figured what happened? I know that we all have adapted
to it and forgot about it but instead of having doctors and researchers find
the reason why, whats a better source then the person who
be interested to know if other TM'rs had a similar stressful
period prior or during the onset.
Rob in New Jersey
-
From: sal r [mailto:[EMAIL PROTECTED]
Sent: Tuesday, March 25, 2008 2:51 PM
To: tm
Subject: [TMIC] time has passed butthis is for Every1
i undertstand there is probably tons of research and foums out there but im
pretty sure that people would like to share their own stories and we can
compare between ourselves and conduct our own research...SaL
wim from holland [EMAIL PROTECTED] wrote: .hmmessage P { margin:0px;
you can say whatever you want and im sorry to hear that but you know i am
pretty sure everyone hs lost someone or something bcause of TM but you know
whats great is that maybe it wasnt meant to be...everything happens for a
reason...i always think that i got sick becuase i was very immature and
Have you ever just felt that no matter how positive you are, it just doesnt
help? this may sound funny but at this point in my life, before i keep going i
am very thankful for the recovery i have made so farbut like i was saying
have u ever seen those cartoons where they put a carrot in
hi, ive had tm for almost 3 yrs now...the reason behind the carrot comment i
made was because i have made alot of recovery like i said im very thankful but
i have downbeat nystagmus, which is a very annoying condition so besides
getting a rare condition like ADEM i also get DBN on top of
Can someone please explain what the splotches are?
jrushton [EMAIL PROTECTED] wrote: v\:* { BEHAVIOR: url (#default#vml)
} v\:* { BEHAVIOR: url (#default#vml) }
FLAVOR00-NONE--- 0.00 ; Hi, Ella! The
banding sure isn't much fun, is
Barbara has a pointI remember when i was in CCU, during the night hours
when no family was allowedthat was the most scariest for me...I remember
crying for hours cuz i needed my trache (sp?) suctioned cuz i was having a
difficult time taking air in but the nurses would just stare and
i think what we should do is make sure a democrat wins so we can finally
legalize stemcell and get funding for it so we all can finally be free from the
condition we are all in
wim from holland [EMAIL PROTECTED] wrote: .hmmessage P { margin:0px;
padding:0px } body.hmmessage {
is there a problem even if he is muslim or not? because obviously a white
president couldnt do it as you all can tell...
Cammy [EMAIL PROTECTED] wrote:v\:* {behavior:url(#default#VML);}
o\:* {behavior:url(#default#VML);} w\:* {behavior:url(#default#VML);} .shape
thankyou very much Cossy...i liked your comment because this article made me
very offended because i am muslim and people on tmic i thought suppose to be a
family.i am very bothered now
Cossy Hough [EMAIL PROTECTED] wrote: With the separation of church and state
it shouldn't
matter. I
thankyou i agree
Neil McNeil [EMAIL PROTECTED] wrote: .hmmessage P { margin:0px;
padding:0px } body.hmmessage { FONT-SIZE: 10pt; FONT-FAMILY:Tahoma }I
wouldn't care if he took the oath on a Victoria's Secret catalogueas long
as Bush is out of the way the chances for stem
, etc. are what
our country is about.
Lori
-
From: sal r [mailto:[EMAIL PROTECTED]
Sent: Tuesday, February 19, 2008 4:15 PM
To: Cossy Hough; [EMAIL PROTECTED]; Tmic-list@eskimo.com
Subject: Re: OT Re: [TMIC] Obama
thankyou very much Cossy...i
you know, it doesn't have to always be western medicine that cures
illnesses...it fixes one thing and messes up another...what jude should try is
to put pure raw honey on the sores since honey has anti bacterial anti septic
properties...its worked for centuries for sores they finally admitted
Raihana S Rasouli [EMAIL PROTECTED] wrote: Subject: Fw: yes we can
From: Raihana S Rasouli [EMAIL PROTECTED]
Date: Tue, 5 Feb 2008 06:51:26 -0800
http://www.dipdive.com/ (pass it on)
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Please check my new blog...To all caregivers and family members of people who
have a life alternating disability/illness...it;s called thankyou Uncle jawid
and auntie oma...my blog not only thanks my aunt and uncle for everything but
also shows how much a little extra love and care could help
hi michelle here is a website you can go to and get more information about a
experimental therapy going on in Florida.
http://locomotor.phhp.ufl.edu/contactus.htm
CANDIS KALLEY [EMAIL PROTECTED] wrote:
body { font-family: 'Times New Roman'; font-size: 12pt; color: #00}
Well my little nephew is going to be in a radio contest. His photo has to be
voted the most cutest. Trust me he's adoarable You can vote for him on
jan. 18, 2008 which is Friday. The place you can go and vote is
i ran across this article which i think will be of help to everyone. From
sicknessess of MS- all the way to Optic Nueritis.
http://www.hoangacupuncture.com/article.html
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has anyone ever thought about it for treatment?
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anyone else having this problem?
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-
From: sal r
To: tm
Sent: Wednesday, December 26, 2007 1:57 PM
Subject: [TMIC] leg stiffness
anyone else having this problem?
-
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-
Looking for last minute shopping
everyone needs to check this out...3,4 diaminopyrdine...how do i sign up for
clinical trials?
-
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has anyone tried it? does anyone have any information on it?
-
Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
yes i am taking supplements right now...i have jus started so i cant tll u much
yet
[EMAIL PROTECTED] wrote: HAVE YOU HEARD OF GABA? PLEASE LET ME KNOW ,
ANYONE
Marie
-
See AOL's top rated recipes and easy ways to stay in shape for winter.
care...SaL
Todd Tarno [EMAIL PROTECTED] wrote:Congratulation to you, Sal. That is
wonderful news.
I have a question to the group:
Is Benfotiamine better than or the same as taking B Complex vitamin?
Thanks, Peace Hugs,
Todd in CC, TX
sal r [EMAIL PROTECTED] wrote:
I am
and how much -- thanks!!
- Original Message -
From: sal r
To: Todd Tarno ; tm
Sent: Wednesday, December 12, 2007 2:03 PM
Subject: Re: [TMIC] FINALLY AFTER 2 YRS!!!
hey todsd i was on b complex but had no effect on my pain...so i tried this
special brand of benfothiamine
i think for fatigue you can try GABA the supplement and also 5-HTP...those can
help...will take a week or two to kick in but it will help
Alton Ryder [EMAIL PROTECTED] wrote: I dunno. I'm on 200 mg of Zoloft per
day, and I'm fatigued most of the time. I hadn't thought there was a
i had a bad experience with zoloft. It made me really tired and i did not feel
like myself. i was totally out of it...what do you want to use it for maybe i
can advice you on something...
[EMAIL PROTECTED] wrote: Hello. I was wondering--- has anyone ever
been prescribed Zoloft for
I am off pain killers. i never thought i could of but did. i started with
2400mg of neurontin with 25 mg elavil. Then slowly took it down to 75 mg
lyrica no elavil. Now i am just taking Benfothiamine which is just a bunch of
b vitamins in a pill. hopefully my eyes go back to normal. has
i will be praying for jude, please let her know
Grace M. [EMAIL PROTECTED] wrote:I phoned Jude at the hospital this
evening. She's in good spirits, but very anxious to have her medical probelms
resolved. She asked me to let you all know where she is, and that she is
thinking of all
when i first got hit with TM, i was introduced to alot of alternative medicines
and therapies. for those you have become paraplegic there are a feww different
things you can do to help get sensation and movemen faster but onlky if you
believe in yourself and not what doctors tell you. for
I am so frustrated! i can not find 1 doctor who knows whats wrong with my
eyes. ive been to an ENT, i sent my records to an nuero-opth and also
neurologists no ones. i need HELP! its keeping me from walking...PLEASE
HELP ME!!! I DONT KNO WAT TO DO.
The problem ls that my
when they do an MRI of thge brain does that include the brain stem and
cerebellum?
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I always wondered what the difference between an MRI with contrast and w/o
contrast is...why do they do both? please explain...
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to try actually. Wonder what the hopping
is to help with?
I did do that grapevine exercise you are talking about though Grace.
Heather in Calgary
- Original Message -
From: Grace M.
To: Todd Tarno
Cc: sal r ; tm
Sent: Thursday, November 08, 2007 2:20 PM
Subject: Re
can it be treated? i think i got it. how can i fix it?
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has anybody tried a wobble board to help with their balance?
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It is better to not have then to have and get it taken away...~SaL
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how do i know if my calf muscle is active or not
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does anyone have a email or phone number that i can get a hold of Dr. kerr?
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is there anyone or know of anyone who got control of there legs back and
strength but never started walking? is that possible?
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Ok so i have been talking to many others and also been reading posts about
people on heavy medication for pain. As we all know, that a lot of you or most
people in this situation are saying they have problems with walking and so on.
Honestly anybody on that amount of medication would be in
okay so ive been wanting to post this but i kept forgetting but now finally i
have remembered. so people with nerve pain, banding pain, and so on this for
you...i had the worst banding pain on my chest but now its not completely gone
but enough to where i can tolerate having a shirt on. I was
i have so many questions and also knowledge i would like to spread but dont
know where to start...well i have another question that i need help with...i
am in a wheelchair right now...and relearning how to walk...its been about 2
and half yrs since the last time i walked. i am strength
i have a new blog out...go to my profile and check it out...its called WHY?
the link is www.myspace.com/srasuli916 take care...SaL
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I just wanted to thank everyone for taking there time checking out ny profile
and blogs. i am sorry if i could niot get to everyones emails individually or
on myspace. my arms and fingers get tired really fast so please do not get
mad. i also dont want anyone to think that i am trying to
ive been doing this for a lonng timebut it started after i got sick...
so like 2 yrs...i constantly think 16 hours a day...the other 8 im
sleeping...but during that time i like just hear voices in my head i dont know
its hard to explain but i hope u understand...is this normal if not
for you that know me and have always wondered what i look like here is my
myspace link...this pic was before i gor Dx with Tm... also check out my blogs
i think they would be of help to people who just need some inspiration or just
guidance.
www.myspace.com/srasuli916
thank you everyone for helpinf me so far. i love this list its so helpful. so
now i am having anoither problem. my balance (proprioception) is off. is there
any exercises i can do to make it better?
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i think i have it. I have vertical nystagmus and also double vision
and one eye see's dimmer then the other. does this sound like optic
neuritis? ive been to docs. including neuro, opthp, ent, u name it even
mri scan everything was clean. i am thinking that they failed to check
for this
ok well i have another problem...2 yrs was the last time i was on steroids...i
have seen side effects...how long does the effects of steroids last? how long
until its out of my body?
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does anyone know where i can find exercise equip intended for people with a
wheelchairs. The equipment to not come with a bench or seat so i can roll up
with my wheelchair like the leg exercises.
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hello my name is Sal. i dont know if anyone remembers me but mu aunt Oma was
on here about 2 yrs regarding my onset of ADEM. i would like to thank each of
you for all the help you provided to get me where i am right now. I am still
in the recovery stage and still relearning how to walk. one
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