[CMLHope] Got a sore won’t heal ?
Hi all I pray everyone is good and having s wonderful spring. When my lilies start blooming I know we ate in for a great spring I have developed a sore on my tummy and I thought it must have been a big bite. It is very painful and developed a black scab and red rash. I never had anything like this before so was wondering if any sn this list had had this experience. Millie told me not to long before she died she developed a sore on the bottom of her foot that wouldn’t heal. I don’t have diabetes so if anyone has had this how did you treat it and etc. haven’t brought myself up to going to Dr. I still miss my dr from Moffitt who was Dr Balducci. They have turned my case over to a nurse. Let us hear from everyone. Love you so very much Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Hi Shaun question
Thank you Shaun I’ve been fighting leukemia for 15 years this month. My hubby passed away and I grieved hard for him as we were married 43 years before. I’ve always wondered if the grief damaged my immune system. When your dad told what he went through having his transplant I sure was happy we had the chemo tki’s to help us. I’m on my 4th tki having relapsed on the others. It’s called Ponatinib. It put me in remission in 3 months but it is a very dangerous drug. So far it’s been good to me. Thanks for thinking of me and all our group. ❤️❤️18s Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jan 6, 2019, at 11:06 PM, Marty Gartenberg wrote: > > Hi Jeanie - > > My heart goes out to you. I know my Dad would want you to keep fighting and > going on. I can tell from your posts that you have a wonderful positive > energy that keeps you going. Please hang there. > > Regards and 18s, > Shaun > > Virus-free. www.avast.com > >> On Mon, Dec 31, 2018 at 11:03 AM 'Jeanie' via CMLHope >> wrote: >> Thank you Shaun >> I miss him too so much. Sometimes I feel like giving up and going into >> hospice but his words keep whispering in my ear: fight on. >> I love the story about the shoes. No he told me he didn’t want the book >> published but I know it would help a lot of people. >> If you change your mind let me know. >> What a great family he had >> Keep in touch >> Happy New Year >> Love you so very much >> Jeanie 18 >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Christian >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> >>> On Dec 31, 2018, at 2:21 AM, Kathy Walls >>> wrote: >>> >>> Please remove my wife from your group Please, she too is gone. Our >>> daughter plays with her phone she does not to see these posts! I beg you >>> please remove her >>> >>> Sent from my iPhone >>> >>>> On Dec 31, 2018, at 12:23 AM, Marty Gartenberg wrote: >>>> >>>> Hi Jeanie - >>>> >>>> I miss him every day. I'm glad he was able to still help you while he was >>>> in rehab. He was going through a lot even then, and it just goes to show >>>> that he was a fighter even to the end. My thoughts and prayers are with >>>> you in beating your disease. >>>> >>>> I appreciate your feedback about his book and I agree with you. I know >>>> those stories well and I'm grateful to have his words and thoughts to hold >>>> on to. I'm not sure that he actually wanted the book published, though. >>>> I think it was something more personal that he just wanted to share with >>>> family and friends. I appreciate your offer. >>>> >>>> I wish everyone here a very healthy and happy holiday and New Year. Take >>>> care and be well! >>>> >>>> Regards and 18's >>>> Shaun >>>> >>>>Virus-free. www.avast.com >>>> >>>>> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope >>>>> wrote: >>>>> Thanks so much Shaun. I always knew he was suffering and he tick on our >>>>> sufferings too. I miss him so much. He was helping me with my new >>>>> thyroid disease while he was in rehab. >>>>> Have you given some thought to having his book published? If you decide >>>>> to have it published I could get my daughter to help you through amazon >>>>> kindle. He gave me parts of the book and it was so uplifting. You can >>>>> feel his love and care come through his pages >>>>> I especially loved the part about the pair of walking shoes. He left his >>>>> love on earth and I can still feel his spirit in my daily battle against >>>>> leukemia and other old age
Re: [CMLHope] Hi Shaun question
Thank you Shaun I miss him too so much. Sometimes I feel like giving up and going into hospice but his words keep whispering in my ear: fight on. I love the story about the shoes. No he told me he didn’t want the book published but I know it would help a lot of people. If you change your mind let me know. What a great family he had Keep in touch Happy New Year Love you so very much Jeanie 18 My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Dec 31, 2018, at 2:21 AM, Kathy Walls wrote: > > Please remove my wife from your group Please, she too is gone. Our > daughter plays with her phone she does not to see these posts! I beg you > please remove her > > Sent from my iPhone > >> On Dec 31, 2018, at 12:23 AM, Marty Gartenberg wrote: >> >> Hi Jeanie - >> >> I miss him every day. I'm glad he was able to still help you while he was >> in rehab. He was going through a lot even then, and it just goes to show >> that he was a fighter even to the end. My thoughts and prayers are with you >> in beating your disease. >> >> I appreciate your feedback about his book and I agree with you. I know >> those stories well and I'm grateful to have his words and thoughts to hold >> on to. I'm not sure that he actually wanted the book published, though. I >> think it was something more personal that he just wanted to share with >> family and friends. I appreciate your offer. >> >> I wish everyone here a very healthy and happy holiday and New Year. Take >> care and be well! >> >> Regards and 18's >> Shaun >> >> Virus-free. www.avast.com >> >>> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope >>> wrote: >>> Thanks so much Shaun. I always knew he was suffering and he tick on our >>> sufferings too. I miss him so much. He was helping me with my new thyroid >>> disease while he was in rehab. >>> Have you given some thought to having his book published? If you decide to >>> have it published I could get my daughter to help you through amazon >>> kindle. He gave me parts of the book and it was so uplifting. You can feel >>> his love and care come through his pages >>> I especially loved the part about the pair of walking shoes. He left his >>> love on earth and I can still feel his spirit in my daily battle against >>> leukemia and other old age problems he was helping us with. >>> Good luck and keep in touch. >>> Love ya! >>> Jeanie >>> >>>> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg wrote: >>>> >>>> Hi Jeanie - >>>> >>>> That's OK. My father was getting Tylenol for his pain and Ativan for his >>>> anxiety. He wasn't getting stronger pain medicines because it would give >>>> him hallucinations and confusion. I read to him several times the >>>> patient's prayer and the mind of matter mantra to try to help him focus on >>>> feeling better. I hope that brought him some comfort. >>>> >>>> To everyone in this group I wish a very happy and healthy (belated) >>>> Thanksgiving. I am so grateful to see what strong support group you all >>>> have with each other and glad that my Dad was able to be a part of it. I >>>> am so thankful and blessed to have had him as my father. >>>> >>>> Regards and 18's >>>> Shaun >>>> >>>> >>>> >>>>> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope >>>>> wrote: >>>>> >>>>> Hi Shaun >>>>> I know you are in a lot of grief and if you don’t feel like talking about >>>>> I will understand. >>>>> I have never feared death but always feared that I would be in a lot of >>>>> pain while dying. My question is did they give your dad pain meds before >>>>> he went into hospice? >>>>> I miss him so much as he was my advisor as well as my friend. >>>>> Prayers to you and yours >>>>> Jeanie >>>>> My Motto: >>>>> Faith and Pills >>>>> With Love >>>>> Jeanie >&g
Re: [CMLHope] Thyroid issues
Hi Beth and thanks Yes I started losing hair and weight. Felt tired and sleepy. Dr said tsh was high. But the Levo he gave me made me so nervous I thought I was having a panic attack. Also gave me chest pains. I think I have hyper not hypo. So wrong meds. Going soon to have it rechecked. Thanks again. Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Dec 28, 2018, at 7:18 PM, bkbarney via CMLHope > wrote: > > I do take the levothyroxine. It puts my numbers in order, at least on paper. > I hope you are seeing an endocrinologist. Yes? A thyroid specialist? I do not > know why it would make your numbers worse? it should not make it worse. It > might not work well...at first, until meds are adjusted if it's the right > medication at the right dose for you. If your numbers are worse and you are > not feeling well...definitely get to a specialist. They can physically check > your neck, perhaps do an ultrasound..other more advanced diagnostic thyroid > blood tests etc...maybe they need to rule out other issues.. > > Hope this is the year that you find some more answers and feel better!!! > Thinking of you... > > 18/s Beth > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Fri, Dec 28, 2018 9:45 am > Subject: [CMLHope] Thyroid issues > > Hi Beth > I didn’t know you had thyroid issues. > Maybe you can help me. My tsh was high and the dr gave me Levo meds but they > made it worse. How is yours being treated? Thanks Jeanie > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Dec 27, 2018, at 1:06 PM, rszim0702 via CMLHope > wrote: > >> Thanks Beth for your note to us. As we all are above ground today, it's a >> great day as Marty used to say. I hope everyone's holiday time was precious >> with family. The noise at our get-together was deafening! With 33 in >> attendance it was lots of fun. Our Secret Santa time was fantastic, too. I >> got an ab-worker which could help me exercise...if I pick it up. >> >> All is well if we don't talk about our ills! Be blessed and enjoy the New >> Year coming in...with new futures, new prosperity, and new fulfillment >> because we are looking to be kind instead of right, and joyous and >> light-hearted as we give of ourselves to others. >> >> And when we need to share about our recent physical problems, that's what we >> are here for, too! Beth, hang in there and Jeannie, and Greenie, too. Gotta >> go! >> >> 18's and love and hugs, >> Susan Z. >> >> >> On Dec 26, 2018 2:09 PM, bkbarney via CMLHope >> wrote: >> Hanging in there. Cancer showing ongoing but at low rates. Cannot take >> enough meds to get to PCRU but that's O.K.,Side effects still here, muscle >> and heart and my usual thyroid issues, but I stay positive and carry on. On >> vacation, made it this year, so enjoying shelling and the beach...windy but >> great shelling!! >> >> Love to all, and please, lets all stay together here this coming year. Zavie >> and Marty taught us well, along with Millie and many otherscommunity >> and shared experiences mean so much >> >> Love, and 18's to all >> >> Beth >> >> >> -Original Message- >> From: 'Jeanie' via CMLHope >> To: cmlhope >> Sent: Wed, Dec 26, 2018 2:02 pm >> Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all >> >> Thank you so much how are you? >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Christian >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> July 2018 dx
[CMLHope] Thyroid issues
Hi Beth I didn’t know you had thyroid issues. Maybe you can help me. My tsh was high and the dr gave me Levo meds but they made it worse. How is yours being treated? Thanks Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Dec 27, 2018, at 1:06 PM, rszim0702 via CMLHope > wrote: > > Thanks Beth for your note to us. As we all are above ground today, it's a > great day as Marty used to say. I hope everyone's holiday time was precious > with family. The noise at our get-together was deafening! With 33 in > attendance it was lots of fun. Our Secret Santa time was fantastic, too. I > got an ab-worker which could help me exercise...if I pick it up. > > All is well if we don't talk about our ills! Be blessed and enjoy the New > Year coming in...with new futures, new prosperity, and new fulfillment > because we are looking to be kind instead of right, and joyous and > light-hearted as we give of ourselves to others. > > And when we need to share about our recent physical problems, that's what we > are here for, too! Beth, hang in there and Jeannie, and Greenie, too. Gotta > go! > > 18's and love and hugs, > Susan Z. > > > On Dec 26, 2018 2:09 PM, bkbarney via CMLHope > wrote: > Hanging in there. Cancer showing ongoing but at low rates. Cannot take enough > meds to get to PCRU but that's O.K.,Side effects still here, muscle and heart > and my usual thyroid issues, but I stay positive and carry on. On vacation, > made it this year, so enjoying shelling and the beach...windy but great > shelling!! > > Love to all, and please, lets all stay together here this coming year. Zavie > and Marty taught us well, along with Millie and many otherscommunity and > shared experiences mean so much > > Love, and 18's to all > > Beth > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Wed, Dec 26, 2018 2:02 pm > Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all > > Thank you so much how are you? > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope > wrote: > > hi Jeanie and Susan Z, > > Wishing you both a happy and peaceful New Year filled with moments of joy and > sweetness amidst all the healthy struggles. You are both such strong woman > and I admire the courage you both show in navigating multiple health issues > at once. I feel for both you.. > > Stay positive and now that lots of us out here are thinking of you. > > Happy holidays!! > > 18's Beth > > > -Original Message- > From: rszim0702 via CMLHope > To: cmlhope > Sent: Sat, Dec 15, 2018 10:00 am > Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all > > Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia > myself. Along with IBS, I have to make myself go out of the house. All of you > keep warm and have a wonderful Merry Christmas!!! It is what you make it. > 18's and hugs,Susan Z > > > On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote: > Wishing the best to you in the New Year. > > Sent from my LG Mobile > > -- Original message-- > From: 'Icandoallttc' via CMLHope > Date: Sat, Dec 15, 2018 3:15 AM > To: cmlhope@googlegroups.com; > Cc: > Subject:[CMLHope] Merry Christmas and happy Holidays to all > > Hi allMerry Christmas and Happy Holidays to all. I am ending the year > fighting another disease: thyroid. At least that’s what they think it is. > Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t > take the meds as they make it worse. No matter what-fight on. -- -- > [CMLHope]A support group of > http://cmlhope.com-You > received this message because you are subscribed to the Google Groups > "CMLHope" group.To post to this group, send email to > CMLHope@googlegroups.comTo unsubscribe from this
Re: [CMLHope] Merry Christmas and happy Holidays to all
Thank you so much how are you? My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Dec 25, 2018, at 11:29 PM, bkbarney via CMLHope > wrote: > > hi Jeanie and Susan Z, > > Wishing you both a happy and peaceful New Year filled with moments of joy and > sweetness amidst all the healthy struggles. You are both such strong woman > and I admire the courage you both show in navigating multiple health issues > at once. I feel for both you.. > > Stay positive and now that lots of us out here are thinking of you. > > Happy holidays!! > > 18's Beth > > > -Original Message- > From: rszim0702 via CMLHope > To: cmlhope > Sent: Sat, Dec 15, 2018 10:00 am > Subject: Re: [CMLHope] Merry Christmas and happy Holidays to all > > Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia > myself. Along with IBS, I have to make myself go out of the house. All of you > keep warm and have a wonderful Merry Christmas!!! It is what you make it. > 18's and hugs,Susan Z > > > On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote: > Wishing the best to you in the New Year. > > Sent from my LG Mobile > > -- Original message-- > From: 'Icandoallttc' via CMLHope > Date: Sat, Dec 15, 2018 3:15 AM > To: cmlhope@googlegroups.com; > Cc: > Subject:[CMLHope] Merry Christmas and happy Holidays to all > > Hi allMerry Christmas and Happy Holidays to all. I am ending the year > fighting another disease: thyroid. At least that’s what they think it is. > Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t > take the meds as they make it worse. No matter what-fight on. -- -- > [CMLHope]A support group of > http://cmlhope.com-You > received this message because you are subscribed to the Google Groups > "CMLHope" group.To post to this group, send email to > CMLHope@googlegroups.comTo unsubscribe from this group, send email to > CMLHope-unsubscribe@googlegroups.comFor more options, visit this group at > http://groups.google.com/group/CMLHope--- You received this message because > you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from > this group and stop receiving emails from it, send an email to > cmlhope+unsubscr...@googlegroups.com.for more options, visit > https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, v
[CMLHope] Let us hear from everyone. Happy new year
As our new year approaches I thought it would be wonderful to hear from all of you In this amazing group with an update on your journey through cml. I am almost 15 years into fighting my battle. I found this group early on and it has been a tremendous help to me. If you will read to the end you will have my journey documented. Won’t you join me in a quiet moment for all the families who have lost loved ones in this group. Marty and Millie and many others fought long and hard and uplifted us too many times to count. They will never be forgotten. Let us know how you are. Thanks Love to all Jeanie and 18s for Marty My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
So glad Nick is doing good and fighting on. I have been fighting for 14 years and Gleevec was a real battle. After mutants for other tki I am now on Ponatinib. Those sweats are the worse. I guess we should just think of them as cleaning out those cancer cells. I had a wonderful Thanksgiving as my son cooked and cleaned for me. I live alone but he is right next door and I stay with him a lot. Christmas is my favorite time of the year and we filled 12 bags of gifts for family. Tree is glowing and I’m just happy to be here to enjoy it. I sure miss the ones we have lost. Thank you so much for your blessings and you guys sure are a blessing to this group. Have a beautiful time with the season ahead. Love you so very much Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Dec 18, 2018, at 9:45 AM, NICK WOODS wrote: > > Sending Merry Christmas and Happy Holidays to each of you. > Nick's at year 15 with CML. For each day together we thank God and > appreciate this time, this day. > He's had muscle shrinkage, and the pains which we guess go with CML in > muscle, joint, the spine. The hair loss. The sweating to the point of > soaking parts of T-shirt and flannel when he's working on tractor or moving > lumber and equipment. Sometimes being really chilly and layering clothes to > keep warm or wrapping up in a blanket as well. AH! The Gleevec "wonders" > years. > Every day someone does or says something kind or is there when we need help > even before we know we would need help, and we thank God for that person-for > that moment in time. We decided we must pass these moments of goodness on in > our way to othersnote, e-mail, phone call, smile, listening ear, praying > for others, opening a door, a nice comment to a stranger.you all do > these, too. > Blessings upon Blessings and Blessed to be a Blessing to others, > Elizabeth and Nick Woods > On Tuesday, December 18, 2018 04:17:18 AM CST, > wrote: > > > cmlhope@googlegroups.com Google Groups > Topic digest > View all topics > Merry Christmas and happy Holidays to all - 1 Update > Merry Christmas and happy Holidays to all > Jeanie : Dec 17 01:29PM -0500 > > Hi Susan > Thanks for the uplift and sorry for your problems. > Did you have your thyroid checked. > I first noticed my right pinkie was numb and then it went all the way to my > elbow. > Yes I too don’t want to leave the house. My daughters insist I do. > Have a wonderful holiday and keep warm. It’s even cold in fl > Love > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > Back to top > You received this digest because you're subscribed to updates for this group. > You can change your settings on the group membership page. > To unsubscribe from this group and stop receiving emails from it send an > email to cmlhope+unsubscr...@googlegroups.com. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Merry Christmas and happy Holidays to all
Hi Susan Thanks for the uplift and sorry for your problems. Did you have your thyroid checked. I first noticed my right pinkie was numb and then it went all the way to my elbow. Yes I too don’t want to leave the house. My daughters insist I do. Have a wonderful holiday and keep warm. It’s even cold in fl Love My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Dec 15, 2018, at 10:00 AM, rszim0702 via CMLHope > wrote: > > Sorry for the new diagnosis, Jeannie! I got news I now have fibromyalgia > myself. Along with IBS, I have to make myself go out of the house. All of you > keep warm and have a wonderful Merry Christmas!!! It is what you make it. > 18's and hugs,Susan Z > > > On Dec 15, 2018 9:10 AM, esd...@rogers.com wrote: > Wishing the best to you in the New Year. > > Sent from my LG Mobile > > -- Original message-- > From: 'Icandoallttc' via CMLHope > Date: Sat, Dec 15, 2018 3:15 AM > To: cmlhope@googlegroups.com; > Cc: > Subject:[CMLHope] Merry Christmas and happy Holidays to all > > Hi allMerry Christmas and Happy Holidays to all. I am ending the year > fighting another disease: thyroid. At least that’s what they think it is. > Lost about 30 pounds: losing hair-sweating for no reason and more. I can’t > take the meds as they make it worse. No matter what-fight on. -- -- > [CMLHope]A support group of > http://cmlhope.com-You > received this message because you are subscribed to the Google Groups > "CMLHope" group.To post to this group, send email to > CMLHope@googlegroups.comTo unsubscribe from this group, send email to > CMLHope-unsubscribe@googlegroups.comFor more options, visit this group at > http://groups.google.com/group/CMLHope--- You received this message because > you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from > this group and stop receiving emails from it, send an email to > cmlhope+unsubscr...@googlegroups.com.for more options, visit > https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Happy Thanksgiving
My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 22, 2018, at 7:03 AM, myvety2k via CMLHope > wrote: > > And the same to you also Beth and my other CML friends. > > greenie > > > -Original Message- > From: bkbarney via CMLHope > To: cmlhope > Sent: Wed, Nov 21, 2018 10:22 pm > Subject: Re: [CMLHope] Hi Shaun question > > Hi Shaun and all my CML buddies here... Just wanted to wish everyone a > peaceful and Joyful Thanksgiving. I know the holidays can be very grief > inspiring when we have lost those we love both recently and in the past.. As > I reflect upon the things I am most thankful for this holiday season, Marty > is one of them. So are each of you who read what I right and even if you do > not respond, say prayers for me and the rest of us. > > Wishing you all a happy holiday. > > !8's and love, > > Beth > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Wed, Nov 21, 2018 11:59 am > Subject: [CMLHope] Hi Shaun question > > > Hi Shaun > I know you are in a lot of grief and if you don’t feel like talking about I > will understand. > I have never feared death but always feared that I would be in a lot of pain > while dying. My question is did they give your dad pain meds before he went > into hospice? > I miss him so much as he was my advisor as well as my friend. > Prayers to you and yours > Jeanie > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Nov 19, 2018, at 9:52 PM, Marty Gartenberg wrote: > > Hi Sherri, > > This is Shaun. My family and I greatly appreciate your heartwarming gift. > Thank you so very much for that. My Mom (his wife, Rachelle) sends her > thanks, as well. > > Regards, > Shaun > > On Wed, Nov 14, 2018 at 8:27 PM sherri swanson > wrote: > Hello Shaun, > > I am so very sorry to hear about your dad. He was such a kind and gentile man > and he will be missed by many. I wanted to let you know that I have planted > a tree in his name in Israel. May this serve as a living tribute to his > memory. You and your family are in my thoughts and prayers. Marty will always > be in my heart and on my mind. My heart is broken knowing I will not receive > another message from Marty and we will no longer share share photos. > > > As long as we live, they too will live; for they are now are a part of us; as > we remember them. > > Regards, > > Sherri Swanson > > > > > > On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg wrote: > Hi everyone - > > This is Marty's son, Shaun, again. Thank-you all so much for all the > stories, kind thoughts, wishes, and prayers for my Dad and our family. We > are all so grateful to know how loved he was and how he was able to touch so > many lives in a profound way. > > Hi Wayne - please do not cancel this thread. I am still checking in on it > and relaying to rest of my family. Just as he helped others, you all are > helping us, and we appreciate that, so much. > > Regards, > Shaun > > On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken wrote: > Please cancel. Subscriber is deceased. > > > From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] > Sent: November-14-18 5:14 AM > To: Digest recipients > Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic > > cmlhope@googlegroups.com > Google Groups > > Topic digest > View all topics > · Update on Marty G - 1 Update > Update on Marty G > Tracie Camlin : Nov 13 06:50AM -0600 > > Dear Shaun and Family, > > I am so sorry for your loss. He was truly an amazing person who inspired > and supported so many of us. His strength and courage held me up at times > he didn't even know about. He will be missed. Blessings and much love to > you and your family. > > Best Regards > Tracie Mulvaney > > On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope < > Bac
[CMLHope] Hi Shaun question
Hi Shaun I know you are in a lot of grief and if you don’t feel like talking about I will understand. I have never feared death but always feared that I would be in a lot of pain while dying. My question is did they give your dad pain meds before he went into hospice? I miss him so much as he was my advisor as well as my friend. Prayers to you and yours Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 19, 2018, at 9:52 PM, Marty Gartenberg wrote: > > Hi Sherri, > > This is Shaun. My family and I greatly appreciate your heartwarming gift. > Thank you so very much for that. My Mom (his wife, Rachelle) sends her > thanks, as well. > > Regards, > Shaun > >> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson >> wrote: >> Hello Shaun, >> >> I am so very sorry to hear about your dad. He was such a kind and gentile >> man and he will be missed by many. I wanted to let you know that I have >> planted a tree in his name in Israel. May this serve as a living tribute to >> his memory. You and your family are in my thoughts and prayers. Marty will >> always be in my heart and on my mind. My heart is broken knowing I will not >> receive another message from Marty and we will no longer share share photos. >> >> >> As long as we live, they too will live; for they are now are a part of us; >> as we remember them. >> >> Regards, >> >> Sherri Swanson >> >> >> >> >> >>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg wrote: >>> Hi everyone - >>> >>> This is Marty's son, Shaun, again. Thank-you all so much for all the >>> stories, kind thoughts, wishes, and prayers for my Dad and our family. We >>> are all so grateful to know how loved he was and how he was able to touch >>> so many lives in a profound way. >>> >>> Hi Wayne - please do not cancel this thread. I am still checking in on it >>> and relaying to rest of my family. Just as he helped others, you all are >>> helping us, and we appreciate that, so much. >>> >>> Regards, >>> Shaun >>> >>>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken wrote: >>>> Please cancel. Subscriber is deceased. >>>> >>>> >>>> >>>> >>>> >>>> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] >>>> Sent: November-14-18 5:14 AM >>>> To: Digest recipients >>>> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 >>>> topic >>>> >>>> >>>> >>>> cmlhope@googlegroups.com >>>> >>>> Google Groups >>>> >>>> >>>> >>>> Topic digest >>>> View all topics >>>> >>>> · Update on Marty G - 1 Update >>>> >>>> Update on Marty G >>>> >>>> Tracie Camlin : Nov 13 06:50AM -0600 >>>> >>>> Dear Shaun and Family, >>>> >>>> I am so sorry for your loss. He was truly an amazing person who inspired >>>> and supported so many of us. His strength and courage held me up at times >>>> he didn't even know about. He will be missed. Blessings and much love to >>>> you and your family. >>>> >>>> Best Regards >>>> Tracie Mulvaney >>>> >>>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope < >>>> >>>> Back to top >>>> >>>> You received this digest because you're subscribed to updates for this >>>> group. You can change your settings on the group membership page. >>>> To unsubscribe from this group and stop receiving emails from it send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> >>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> - >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To po
Re: [CMLHope] Update on Marty G
You said it so well Beth. Thanks. Jeanie 😂 My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 12, 2018, at 11:36 PM, bkbarney via CMLHope > wrote: > > Dear Shelly and Shaun, > > When I read your email to all of us my heart broke. I thought of you today at > the funeral and said prayers for each of you as well as all the members of > our group here. We are all in shock. I share the sentiments of everyone who > has already written to you expressing their deep sadness and grief. > > To love and be loved by Marty was a gift I shall cherish all the days of my > life. He was always a ray of sunshine, in a sometimes very scary and dark > world. He pushed each of us to be our best selves, to fight a good fight, to > live life to the fullest. The packed he made with his God when he came out of > " the bubble" post his bone marrow transplant so many years ago...he > fulfilled a thousand times over. He helped anyone and everyone wherever and > whenever he could. His generosity of spirit, joy of life, good humor, > compassion and humor will never be forgotten. He grounded us, inspired us, > even scolded us when needed, He was our chief, our friend, our cheerleader > and our faithful companion in navigating CML. He was a lover and a fighter. > It is hard for me and others to comprehend what happened the last weeks of > his life. What made him surrender. I trust he knew when it was his time. > > He always spoke of his love for his family. May each of you find comfort in > knowing how loved he was and what a difference he made in the world. The > light in his light house went out, but his spirit will continue to light our > paths > > Love and a big hug to all of you... > > With tears and 18's, > > Beth > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Mon, Nov 12, 2018 8:26 am > Subject: Re: [CMLHope] Update on Marty G > > I am so shocked and upset as I read this. I have been waiting for an answer > to a question I had about my thyroid and since he didn’t answer I knew > something was wrong. > He was a true fighter and kept us going in our horrible journey with > leukemia. He must have been in a lot of pain to give up. > I am in pain daily so I know what’s it like to just want it to be over. > He was the leader of our pack and I’m > So sorry for your loss and ours. My prayers go out to you and family. > Our list will never be the same. > Love > Jeanie > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Nov 11, 2018, at 6:34 PM, 'Marcie Goodman' via CMLHope > wrote: > > Dear Shelly and Family, > > My deepest condolences on Marty’s passing. As so many of us in the group have > expressed, Marty was our head cheerleader, a constant source of inspiration, > support and love. He gave us a roadmap to navigate not only our illness but, > more importantly, our lives. And he shared his challenges with honesty, > facing each one with a strength of spirit that was unique. Marty let us know > how much he loved you and your children and I know you feel a huge void now > that he is gone. > > Please know that your family is in my thoughts and prayers. May warm memories > of happier times comfort you in the days ahead. And may you all be comforted > among the mourners of Zion and Jerusalem. > > Marcie Goodman > > Sent from my iPad > > On Nov 11, 2018, at 4:24 PM, rszim0702 via CMLHope > wrote: > > Dear Shaun and family, > > Would like to comfort you as your dad so often comforted each one of us. No > words except what a marvelous, godly and extravagant legacy he left for you. > He left it for the cml group as well! The time spent with each of us was his > ministry of joy over us all. He will surely be enjoying many rewards in the > afterlife. May each of us in this group strive to leave even a portion of > such a legacy at our passing. > > Our immediate reaction is to know what a huge hole will be
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
Thanks Shaun It’s wonderful to know you will be checking on us. Marty was much more than a advisor. We all loved him so much. His last email to me was he was in rehab and he would get with me as soon as he could. I always feel God puts us where he wants us. Prayers always Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 14, 2018, at 7:28 PM, Marty Gartenberg wrote: > > Hi everyone - > > This is Marty's son, Shaun, again. Thank-you all so much for all the > stories, kind thoughts, wishes, and prayers for my Dad and our family. We > are all so grateful to know how loved he was and how he was able to touch so > many lives in a profound way. > > Hi Wayne - please do not cancel this thread. I am still checking in on it > and relaying to rest of my family. Just as he helped others, you all are > helping us, and we appreciate that, so much. > > Regards, > Shaun > >> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken wrote: >> Please cancel. Subscriber is deceased. >> >> >> >> >> >> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] >> Sent: November-14-18 5:14 AM >> To: Digest recipients >> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic >> >> >> >> cmlhope@googlegroups.com >> >> Google Groups >> >> >> >> Topic digest >> View all topics >> >> · Update on Marty G - 1 Update >> >> Update on Marty G >> >> Tracie Camlin : Nov 13 06:50AM -0600 >> >> Dear Shaun and Family, >> >> I am so sorry for your loss. He was truly an amazing person who inspired >> and supported so many of us. His strength and courage held me up at times >> he didn't even know about. He will be missed. Blessings and much love to >> you and your family. >> >> Best Regards >> Tracie Mulvaney >> >> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope < >> >> Back to top >> >> You received this digest because you're subscribed to updates for this >> group. You can change your settings on the group membership page. >> To unsubscribe from this group and stop receiving emails from it send an >> email to cmlhope+unsubscr...@googlegroups.com. >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
So true Sherrie. Thanks for the tribute. I was waiting on him to answer a question I had asked him. When he didn’t answer I had a feeling something was very wrong. He fought so hard and helped so many. I’ll be thinking of the tree as I say my prayers. Love you all so very much Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 14, 2018, at 8:27 PM, sherri swanson > wrote: > > Hello Shaun, > > I am so very sorry to hear about your dad. He was such a kind and gentile man > and he will be missed by many. I wanted to let you know that I have planted > a tree in his name in Israel. May this serve as a living tribute to his > memory. You and your family are in my thoughts and prayers. Marty will always > be in my heart and on my mind. My heart is broken knowing I will not receive > another message from Marty and we will no longer share share photos. > > > As long as we live, they too will live; for they are now are a part of us; as > we remember them. > > Regards, > > Sherri Swanson > > > > > >> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg wrote: >> Hi everyone - >> >> This is Marty's son, Shaun, again. Thank-you all so much for all the >> stories, kind thoughts, wishes, and prayers for my Dad and our family. We >> are all so grateful to know how loved he was and how he was able to touch so >> many lives in a profound way. >> >> Hi Wayne - please do not cancel this thread. I am still checking in on it >> and relaying to rest of my family. Just as he helped others, you all are >> helping us, and we appreciate that, so much. >> >> Regards, >> Shaun >> >>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken wrote: >>> Please cancel. Subscriber is deceased. >>> >>> >>> >>> >>> >>> From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] >>> Sent: November-14-18 5:14 AM >>> To: Digest recipients >>> Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic >>> >>> >>> >>> cmlhope@googlegroups.com >>> >>> Google Groups >>> >>> >>> >>> Topic digest >>> View all topics >>> >>> · Update on Marty G - 1 Update >>> >>> Update on Marty G >>> >>> Tracie Camlin : Nov 13 06:50AM -0600 >>> >>> Dear Shaun and Family, >>> >>> I am so sorry for your loss. He was truly an amazing person who inspired >>> and supported so many of us. His strength and courage held me up at times >>> he didn't even know about. He will be missed. Blessings and much love to >>> you and your family. >>> >>> Best Regards >>> Tracie Mulvaney >>> >>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope < >>> >>> Back to top >>> >>> You received this digest because you're subscribed to updates for this >>> group. You can change your settings on the group membership page. >>> To unsubscribe from this group and stop receiving emails from it send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >
Re: [CMLHope] Update on Marty G
Thanks Susan Yes I am so sad. I was waiting for him to text me about my problem. He was so good to all. Love you so very much Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 12, 2018, at 10:38 AM, 'Susan Zimmerman' via CMLHope > wrote: > > Dear Jeanie, > > I had the same reaction about Marty's passing and was imagining how many > others reacted or acted to the news. My heart goes out > to you as you struggle with this pain and thyroid problem. You know Who is > in charge. Lean into Him and He will give you peace. > > We are all in the same group here to lift each other up and keep on fighting, > as Marty showed us so many times. Let's only get closer as those who feel a > nudge about sharing will give us an encouraging word. > > Blessings and 18's, > Susan Z > > > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Mon, Nov 12, 2018 9:26 am > Subject: Re: [CMLHope] Update on Marty G > > I am so shocked and upset as I read this. I have been waiting for an answer > to a question I had about my thyroid and since he didn’t answer I knew > something was wrong. > He was a true fighter and kept us going in our horrible journey with > leukemia. He must have been in a lot of pain to give up. > I am in pain daily so I know what’s it like to just want it to be over. > He was the leader of our pack and I’m > So sorry for your loss and ours. My prayers go out to you and family. > Our list will never be the same. > Love > Jeanie > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Nov 11, 2018, at 6:34 PM, 'Marcie Goodman' via CMLHope > wrote: > > Dear Shelly and Family, > > My deepest condolences on Marty’s passing. As so many of us in the group have > expressed, Marty was our head cheerleader, a constant source of inspiration, > support and love. He gave us a roadmap to navigate not only our illness but, > more importantly, our lives. And he shared his challenges with honesty, > facing each one with a strength of spirit that was unique. Marty let us know > how much he loved you and your children and I know you feel a huge void now > that he is gone. > > Please know that your family is in my thoughts and prayers. May warm memories > of happier times comfort you in the days ahead. And may you all be comforted > among the mourners of Zion and Jerusalem. > > Marcie Goodman > > Sent from my iPad > > On Nov 11, 2018, at 4:24 PM, rszim0702 via CMLHope > wrote: > > Dear Shaun and family, > > Would like to comfort you as your dad so often comforted each one of us. No > words except what a marvelous, godly and extravagant legacy he left for you. > He left it for the cml group as well! The time spent with each of us was his > ministry of joy over us all. He will surely be enjoying many rewards in the > afterlife. May each of us in this group strive to leave even a portion of > such a legacy at our passing. > > Our immediate reaction is to know what a huge hole will be left in the group > and in our hearts. We called him our leader. Please know you are in my > prayers. We will remember 18 stands for life and every day is a gift. Wish I > could attend his services. I will be thinking of you all. > > 18's, hugs, bigger hugs, > Susan Zimmerman > > On Nov 11, 2018 1:54 AM, Marty Gartenberg wrote: > Hello everyone - > > This is Marty Gartenberg's son, Shaun. It is with great sadness for me to > say that my father passed away this past week, on Wednesday, November 7th, > after having entered hospice care the previous Friday, November 2nd. I know > many of you were good friends with him and that he helped a lot of people > through this support group. > > This all started with a bad fall over 7 weeks ago on September 15 in his > garage where he fractured his left femur. He subsequently underwent surgery > to get a rod implanted in the bone to help it heal. Afte
[CMLHope] My last email from Marty
😂 My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Oct 1, 2018, at 6:20 AM, Marty Gartenberg wrote: > > Jeanie iam in rehab right now and need to have talk with you about YOU why in > haven don't you where a led lined neck brace the next time you get in touch > with me i will tell you. 18s Marty > >> On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope >> wrote: >> Hi all I got my thyroid test back. The counts err very high so went back to >> taking meds. Check it again in 6 weeks. >> I am sure it’s all these meds. Did you know even the X-rays from dentist >> can hurt thyroid. They say to asked for a protection mask. I have never >> heard about this in all my years at the dentist. You? >> They order mri like it’s a trip to the candy store I had 3 last year with no >> answers. >> If those tests are killing our thyroids then we need to be told. Right? >> Have s wonderful day. >> Love you so very much >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Please answer to see if I’m getting my mail
Great Greenie So happy for you but feel so sad over Marty’s passing. He was helping me with my thyroid problem and I thought so much of him. Good luck and happy fishing. Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 8, 2018, at 7:46 AM, myvety2k via CMLHope > wrote: > > Jeanie, That's a yes on Sebring. Slower way of life, to much crime, to many > hit and runs, to many people, can't drive anywhere without someone trying to > run you off the road, cutting in front of you, etc. The list is long. I have > nothing against snow birds but when they come down to Fort Myers and the > beach is near they just take over everything. A ride to Lowes in the summer > time takes 5 min. winter its takes 15 to 20 min. because of so many cars. It > was time to move and NOW I can go Bass Fishing. > > greenie > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Wed, Nov 7, 2018 1:18 pm > Subject: Re: [CMLHope] Please answer to see if I’m getting my mail > > Hi all > Good to hear from you. > Has anyone heard from Marty? > Do you like Sebring Greenie? > This thyroid disease is getting me down. I want to sleep all day and wake up > around midnight. It’s awful!!! > Pray that I will get it straightened out soon > Have a safe trip Greenie and I hope you can get together with Beth. > Love you so very much. > Jeanie > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > Christian > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Nov 6, 2018, at 3:29 PM, bkbarney via CMLHope > wrote: > > i Hi Greenie, Congrats on your new home! And the bass boat So good to > hear from you. Are you flying in on > Tuesday the 4th for your Wednesday the 5th appointment? Would you like to > have dinner together Tuesday evening? I could meet you near Northwestern? I > would love to meet you and Grace if she is coming. Let me know...you can > email at my email. bkbar...@aol.com > > Thanks! > > 18's Beth > > > -Original Message- > From: myvety2k via CMLHope > To: cmlhope > Sent: Tue, Nov 6, 2018 6:07 am > Subject: Re: [CMLHope] Please answer to see if I’m getting my mail > > Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, > FL. Purchased a home there, Grace purchased me a Tracker bass boat so that I > can go fishing, of course I'm making the payments.(smile). Will be flying > into Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most > loving thing (Blood Work). another smile. Will let you all know how things > turn out. Stay warm if you live North and Cool if you live South. Take care > everyone. > > Greenie > > > -Original Message- > From: bkbarney via CMLHope > To: cmlhope > Sent: Mon, Nov 5, 2018 12:06 pm > Subject: Re: [CMLHope] Please answer to see if I’m getting my mail > > Dear Jeanie, > > Just wanted to say I am here, thinking of you and everyone else... The year > is slipping by...and next week snow flurries in Chicago. Soon it will be > Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid > troubles.. Hopefully they can help you get with the right meds...Ggod > endocrinologist will guide you!!! You have had more than your share of health > problems.. You are a real trouper!! Love your positive attitude. Remember to > advocate for yourself. If you are not satisfied...or feel worse...keep asking > for help! Each of us needs to do this... > > I am doing O.K. Blood work for CML showing, but stable working on > decreasing the inflammation in my body in the hopes that it might help my > side effects and symptoms...still plugging along the stay positive > attitude...is still finding meeven in the dark sometimes :), seeing the > shadows so know the light is somewhere near by. > > Love to all.. and Marty, hope you are healing welland Richard, and Susan > and Suzie Q and Greenie and everyone reading.. Hope each of you has a lovely > and healthier holiday season!! > > 18's Beth
Re: [CMLHope] Update on Marty G
I am so shocked and upset as I read this. I have been waiting for an answer to a question I had about my thyroid and since he didn’t answer I knew something was wrong. He was a true fighter and kept us going in our horrible journey with leukemia. He must have been in a lot of pain to give up. I am in pain daily so I know what’s it like to just want it to be over. He was the leader of our pack and I’m So sorry for your loss and ours. My prayers go out to you and family. Our list will never be the same. Love Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 11, 2018, at 6:34 PM, 'Marcie Goodman' via CMLHope > wrote: > > Dear Shelly and Family, > > My deepest condolences on Marty’s passing. As so many of us in the group have > expressed, Marty was our head cheerleader, a constant source of inspiration, > support and love. He gave us a roadmap to navigate not only our illness but, > more importantly, our lives. And he shared his challenges with honesty, > facing each one with a strength of spirit that was unique. Marty let us know > how much he loved you and your children and I know you feel a huge void now > that he is gone. > > Please know that your family is in my thoughts and prayers. May warm memories > of happier times comfort you in the days ahead. And may you all be comforted > among the mourners of Zion and Jerusalem. > > Marcie Goodman > > Sent from my iPad > >> On Nov 11, 2018, at 4:24 PM, rszim0702 via CMLHope >> wrote: >> >> Dear Shaun and family, >> >> Would like to comfort you as your dad so often comforted each one of us. No >> words except what a marvelous, godly and extravagant legacy he left for you. >> He left it for the cml group as well! The time spent with each of us was his >> ministry of joy over us all. He will surely be enjoying many rewards in the >> afterlife. May each of us in this group strive to leave even a portion of >> such a legacy at our passing. >> >> Our immediate reaction is to know what a huge hole will be left in the group >> and in our hearts. We called him our leader. Please know you are in my >> prayers. We will remember 18 stands for life and every day is a gift. Wish >> I could attend his services. I will be thinking of you all. >> >> 18's, hugs, bigger hugs, >> Susan Zimmerman >> >> On Nov 11, 2018 1:54 AM, Marty Gartenberg wrote: >> Hello everyone - >> >> This is Marty Gartenberg's son, Shaun. It is with great sadness for me to >> say that my father passed away this past week, on Wednesday, November 7th, >> after having entered hospice care the previous Friday, November 2nd. I know >> many of you were good friends with him and that he helped a lot of people >> through this support group. >> >> This all started with a bad fall over 7 weeks ago on September 15 in his >> garage where he fractured his left femur. He subsequently underwent surgery >> to get a rod implanted in the bone to help it heal. After a few weeks of >> physical therapy, a checkup showed that one of the screws needed to be >> adjusted, so he had a second surgery for that to adjust the rod, and add a >> plate. After having more therapy, a MRSA infection was discovered in the >> incision wound. He also contracted pneumonia. In order to combat the >> infection, he had a third surgery on the incision to perform a debridement >> of the wound and was put on course of several antibiotics. He was admitted >> to the ICU to be treated for the complications of the infection. >> >> Unfortunately, all of this became just too much for him to take. While he >> did show improvement medically, and eventually went from the ICU into a >> regular hospital room, he was in a lot of pain, which got progressively >> worse each day all over his body, and discomfort from the effects of the >> antibiotics. Eventually, he began denying his food and medication and >> reached a point where he did not want to continue to fight. >> >> Moving to hospice was a painful decision to make, especially knowing how >> much of a fighter my Dad was through all of the struggles he's been through >> in his life. But, those were his wishes and we didn't want him to continue >> to suffer. The hospice care did make him comfortable
Re: [CMLHope] Please answer to see if I’m getting my mail
Hi all Good to hear from you. Has anyone heard from Marty? Do you like Sebring Greenie? This thyroid disease is getting me down. I want to sleep all day and wake up around midnight. It’s awful!!! Pray that I will get it straightened out soon Have a safe trip Greenie and I hope you can get together with Beth. Love you so very much. Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Christian Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 6, 2018, at 3:29 PM, bkbarney via CMLHope > wrote: > > i Hi Greenie, Congrats on your new home! And the bass boat So good to > hear from you. Are you flying in on > Tuesday the 4th for your Wednesday the 5th appointment? Would you like to > have dinner together Tuesday evening? I could meet you near Northwestern? I > would love to meet you and Grace if she is coming. Let me know...you can > email at my email. bkbar...@aol.com > > Thanks! > > 18's Beth > > > -Original Message- > From: myvety2k via CMLHope > To: cmlhope > Sent: Tue, Nov 6, 2018 6:07 am > Subject: Re: [CMLHope] Please answer to see if I’m getting my mail > > Hi Beth, doing O. K.. Moved from South Fort Myers 2 months ago to Sebring, > FL. Purchased a home there, Grace purchased me a Tracker bass boat so that I > can go fishing, of course I'm making the payments.(smile). Will be flying > into Chicago on Dec 5th, Northwestern Hosp. to see my Doctor and my most > loving thing (Blood Work). another smile. Will let you all know how things > turn out. Stay warm if you live North and Cool if you live South. Take care > everyone. > > Greenie > > > -Original Message- > From: bkbarney via CMLHope > To: cmlhope > Sent: Mon, Nov 5, 2018 12:06 pm > Subject: Re: [CMLHope] Please answer to see if I’m getting my mail > > Dear Jeanie, > > Just wanted to say I am here, thinking of you and everyone else... The year > is slipping by...and next week snow flurries in Chicago. Soon it will be > Thanksgiving, Christmas and the New Year!!! Sorry about all the thyroid > troubles.. Hopefully they can help you get with the right meds...Ggod > endocrinologist will guide you!!! You have had more than your share of health > problems.. You are a real trouper!! Love your positive attitude. Remember to > advocate for yourself. If you are not satisfied...or feel worse...keep asking > for help! Each of us needs to do this... > > I am doing O.K. Blood work for CML showing, but stable working on > decreasing the inflammation in my body in the hopes that it might help my > side effects and symptoms...still plugging along the stay positive > attitude...is still finding meeven in the dark sometimes :), seeing the > shadows so know the light is somewhere near by. > > Love to all.. and Marty, hope you are healing welland Richard, and Susan > and Suzie Q and Greenie and everyone reading.. Hope each of you has a lovely > and healthier holiday season!! > > 18's Beth > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Sun, Nov 4, 2018 11:14 am > Subject: [CMLHope] Please answer to see if I’m getting my mail > > > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > Taking 0.05mg 50 mcg levothyroxine > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Nov 3, 2018, at 11:09 AM, 'Jeanie' via CMLHope > wrote: > > Hi Marty my friend > What do you mean? > Thanks > 🌺🌺🌺 > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > Taking 0.05mg 50 mcg levothyroxine > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > > On Oct 1, 2018, at 6:20 AM, Marty Gartenberg wrote: > > Jeanie iam in rehab right now and need to have talk with you about YOU why in > haven don't you wh
[CMLHope] Please answer to see if I’m getting my mail
My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Nov 3, 2018, at 11:09 AM, 'Jeanie' via CMLHope > wrote: > > Hi Marty my friend > What do you mean? > Thanks > 🌺🌺🌺 > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > Taking 0.05mg 50 mcg levothyroxine > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > >> On Oct 1, 2018, at 6:20 AM, Marty Gartenberg wrote: >> >> Jeanie iam in rehab right now and need to have talk with you about YOU why >> in haven don't you where a led lined neck brace the next time you get in >> touch with me i will tell you. 18s Marty >> >>> On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope >>> wrote: >>> Hi all I got my thyroid test back. The counts err very high so went back to >>> taking meds. Check it again in 6 weeks. >>> I am sure it’s all these meds. Did you know even the X-rays from dentist >>> can hurt thyroid. They say to asked for a protection mask. I have never >>> heard about this in all my years at the dentist. You? >>> They order mri like it’s a trip to the candy store I had 3 last year with >>> no answers. >>> If those tests are killing our thyroids then we need to be told. Right? >>> Have s wonderful day. >>> Love you so very much >>> >>> My Motto: >>> Faith and Pills >>> With Love >>> Jeanie >>> 🐠free >>> 18’s to Marty >>> Dx 1/2004 CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib 1/ 2015 15 mg >>> New Doctor--Dr Martine Extermann >>> Moffitt Cancer center sept 2017 >>> Dr Balducci retired >>> Dr Gedia PCD >>> 0 CBL. ABL >>> Taking 0.05mg 50 mcg levothyroxine >>> July 2018 dx with thyroid disease tsh 13 >>> T4-normal t3-normal >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email t
[CMLHope] Marty
You kk Marty. Haven’t heard for a while. My mail might be messed up. Love you so very much My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Thyroid bad
Hi Marty my friend What do you mean? Thanks 🌺🌺🌺 My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Oct 1, 2018, at 6:20 AM, Marty Gartenberg wrote: > > Jeanie iam in rehab right now and need to have talk with you about YOU why in > haven don't you where a led lined neck brace the next time you get in touch > with me i will tell you. 18s Marty > >> On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope >> wrote: >> Hi all I got my thyroid test back. The counts err very high so went back to >> taking meds. Check it again in 6 weeks. >> I am sure it’s all these meds. Did you know even the X-rays from dentist >> can hurt thyroid. They say to asked for a protection mask. I have never >> heard about this in all my years at the dentist. You? >> They order mri like it’s a trip to the candy store I had 3 last year with no >> answers. >> If those tests are killing our thyroids then we need to be told. Right? >> Have s wonderful day. >> Love you so very much >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Hello All!
Check your thyroid. My hair was falling out and all I wanted to do was sleep. Very nervous all the time. ❤️ My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Oct 3, 2018, at 11:01 PM, bkbarney via CMLHope > wrote: > > Dear Richard, > > So sorry to hear about your struggles and hospitalizations. Sounds scary. So > glad to hear that you are on the mend and starting to feel better...I shall > keep you in my thoughts and prayers along will all of our community out > therestruggling together and those who are feeling well, arre beacons of > light for the rest of us, reminders that we can get through even the rough > times together because we have each other. > > HI Marty! > > 18's to all, > > Beth > > > -Original Message- > From: Tony Lanoue > To: cmlhope > Sent: Wed, Oct 3, 2018 4:49 am > Subject: Re: [CMLHope] Hello All! > > Hi Richard, glad to hear you’re on the mend. Try to walk a little bit, need > to keep that blood pumping! > Tony > > Sent from my iPhone > > On Sep 29, 2018, at 11:29 PM, Richard H wrote: > > I am sorry I have not posted in a while. I have been rather busy taking > care of this older model body I have. I been in and out of the hospital > about 4 times with low blood counts and fluid buildup in my lungs and legs. > I am recovering, and have started to increase my energy level. We (doctors > and me) are not sure what the causes are for sure. Heart, CML, or I just > was too tired . Recovery is underway so all is well. > I wish the best for those having problems. > > 18's > > Richard H. > Still going after 17 1/2 years on Gleevec. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Thyroid bad
Hi all I got my thyroid test back. The counts err very high so went back to taking meds. Check it again in 6 weeks. I am sure it’s all these meds. Did you know even the X-rays from dentist can hurt thyroid. They say to asked for a protection mask. I have never heard about this in all my years at the dentist. You? They order mri like it’s a trip to the candy store I had 3 last year with no answers. If those tests are killing our thyroids then we need to be told. Right? Have s wonderful day. Love you so very much My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Seeing a nurse at Moffitt
Hi lee I believe you are right and I might just do that. I don’t feel the nurse knows my case that much. I got nervous and my blood pressure went up. After my visit they had a social worker call me to see if I was alright. If it had been my dr that would never have happened as he knew me. Thanks again ❤️❤️ My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 25, 2018, at 8:01 AM, 'LadyRx' via CMLHope > wrote: > > Jeanie, > I would definitely ask to see the doctor and not the nurse for your next > appointment. Specify this when you make the appointment. Although they are > fine when you have a cold or some other minor issues, I don’t think it’s a > good idea for a CML patient. That’s just my preference and opinion. > Good luck and 18’s for you! > > Lee > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Blood work Moffitt perfect
Thanks Beth That’s what I think too. I guess because I’m in remission they don’t think I need a doctor but a good doctor one that you trust can help you so much. Just going with it now. Hope you are better. Love you so very much My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 25, 2018, at 12:58 PM, Marty Gartenberg wrote: > > Thanks beth 18s > >> On Tue, Sep 25, 2018, 10:22 AM bkbarney via CMLHope >> wrote: >> Marty,, so sorry to hear about your broken leg!! Oh my gosh! May you heal >> fast and well. Much love and 18's Beth >> And Jeannie- you have the right to see a doctor- just ask...sometimes we >> have to be very forth right about our needs. The system is very over >> crowded..those more acute often rise to the top of the lline. While this is >> sometimes appropriate, in many cases, I think we still deserve the right to >> have time with our doctors and get the support, guidance and reassurance we >> need. >> >> 18's to all, >> >> Beth >> >> >> -Original Message- >> From: Marty Gartenberg >> To: cmlhope >> Sent: Tue, Sep 25, 2018 3:43 am >> Subject: Re: [CMLHope] Blood work Moffitt perfect >> >> Jeanie you see you see you see what do i keep telling you change geers trust >> yourself now something else broke my leg had surgery in rehab talk later >> Marty 18s >> >> On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope >> wrote: >> >> Hi all >> My blood work at Moffitt today came back perfect! >> Praise the Lord!! >> God is so good to me. >> Love you so very much >> ❤️😄❤️🌺😀 >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.goog
Re: [CMLHope] Blood work Moffitt perfect
Thanks and I second that. ❤️❤️❤️❤️ My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 25, 2018, at 12:20 PM, rszim0702 via CMLHope > wrote: > > Marty, > That ole mean slewfoot keeps attacking you with broken leg, etc. Try to do > what you encourage all of uskeep smilin' and countin' your blessings! So > sorry that endurance comes into play again. > > All youze guys out therekeep smilin' and doin' what you can do! > > 18's and big hugs, > Sz > > On Sep 25, 2018 4:42 AM, Marty Gartenberg wrote: > Jeanie you see you see you see what do i keep telling you change geers trust > yourself now something else broke my leg had surgery in rehab talk later > Marty 18s > > On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope > wrote: > > Hi all > My blood work at Moffitt today came back perfect! > Praise the Lord!! > God is so good to me. > Love you so very much > ❤️😄❤️🌺😀 > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > Taking 0.05mg 50 mcg levothyroxine > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Blood work Moffitt perfect
Oh Marty so sorry Get better quick. You are my upper. Love you so very much 18s My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 25, 2018, at 4:42 AM, Marty Gartenberg wrote: > > Jeanie you see you see you see what do i keep telling you change geers trust > yourself now something else broke my leg had surgery in rehab talk later > Marty 18s > >> On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope >> wrote: >> >> Hi all >> My blood work at Moffitt today came back perfect! >> Praise the Lord!! >> God is so good to me. >> Love you so very much >> ❤️😄❤️🌺😀 >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Blood work Moffitt perfect
Hi all At Moffitt after Dr Balducci retired I have been turned over to a nurse. I was wondering how many of you have been turned over to a nurse and should I consider getting a dr. I have been with Moffitt for 7 years. I have always had a dr. It just seems strange not having one but I like Moffitt. Hope and pray all are good Marty did I miss your post on your cruise? I have been on many cruises but never to Alaska. I didn’t think I would like the cold. How was it! Thanks to all. ❤️❤️ My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 20, 2018, at 9:58 AM, 'Jeanie' via CMLHope > wrote: > > Hi Beth > Just wanted to let you know that Sprycel quit working for me after 4 years. > Dr found out I had a mutation. Have them check to see if you do. > This is when they put me on Ponatinib. I am doing good on it. > Been on it now for almost 4 years. > It’s a very dangerous drug if you have heart problems do you will have to see > Prayers > Jeanie❤️ > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > Taking 0.05mg 50 mcg levothyroxine > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > >> On Sep 18, 2018, at 2:06 PM, bkbarney via CMLHope >> wrote: >> >> So happy to hear this wonderful news. Thanks for sharing Jeanie. >> >> Happy and Healthy New Year to all who observe the Jewish Holidays. >> >> My update is that I continue to struggle, staying positive and trying to >> figure out what is going on with me. In the hospital for a few days a couple >> of weeks ago. Lots of tests..no answers...BCR last time was very different >> than it ever was before since on sprycel. 10x more bcrl abl cells but still >> a reasonably low ratio. So, I am praying that it will continue to work for >> me. The next blood test should tell us more. Will keep you all informed. >> Pray that it returns to my normal so I can focus on other related health >> issues. Happy fall to all... >> >> >> Much love, >> >> Beth >> >> >> -Original Message- >> From: 'Jeanie' via CMLHope >> To: cmlhope >> Sent: Tue, Sep 18, 2018 12:36 pm >> Subject: [CMLHope] Blood work Moffitt perfect >> >> >> Hi all >> My blood work at Moffitt today came back perfect! >> Praise the Lord!! >> God is so good to me. >> Love you so very much >> ❤️😄❤️🌺😀 >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >>
Re: [CMLHope] Blood work Moffitt perfect
Hi Beth Just wanted to let you know that Sprycel quit working for me after 4 years. Dr found out I had a mutation. Have them check to see if you do. This is when they put me on Ponatinib. I am doing good on it. Been on it now for almost 4 years. It’s a very dangerous drug if you have heart problems do you will have to see Prayers Jeanie❤️ My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 18, 2018, at 2:06 PM, bkbarney via CMLHope > wrote: > > So happy to hear this wonderful news. Thanks for sharing Jeanie. > > Happy and Healthy New Year to all who observe the Jewish Holidays. > > My update is that I continue to struggle, staying positive and trying to > figure out what is going on with me. In the hospital for a few days a couple > of weeks ago. Lots of tests..no answers...BCR last time was very different > than it ever was before since on sprycel. 10x more bcrl abl cells but still > a reasonably low ratio. So, I am praying that it will continue to work for > me. The next blood test should tell us more. Will keep you all informed. > Pray that it returns to my normal so I can focus on other related health > issues. Happy fall to all... > > > Much love, > > Beth > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Tue, Sep 18, 2018 12:36 pm > Subject: [CMLHope] Blood work Moffitt perfect > > > Hi all > My blood work at Moffitt today came back perfect! > Praise the Lord!! > God is so good to me. > Love you so very much > ❤️😄❤️🌺😀 > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > Taking 0.05mg 50 mcg levothyroxine > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Blood work Moffitt perfect
Hi Beth I know how this is. All these test and no answers. I too was in the hospital last May with every test you could think of. No answers to my side pain at all and Moffitt won’t agree that it’s cancer related so they won’t treat it. My dr had to retire and they turned me over to Martrine Extraman. I don’t even see her as she turned me over to a nurse. I don’t feel protected with no dr to see. Well I only have to go every three months so as long as the blood is good I’m kk. The senior oncology program has been moved to a new Moffitt cancer building and it looks more like an expensive hotel than a cancer center. It seems they are trying to use less employees and more machines to take care of you. I will get my bcr abl test back soon. Let you know how many cancers cells are lurking around ready to pounce. Hehe Prayers for all My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 20, 2018, at 4:13 AM, Marty Gartenberg wrote: > > >> On Wed, Sep 19, 2018, 10:12 PM rszim0702 via CMLHope >> wrote: >> Hooray Jeanie! I also learned this week that I have reached MMR again! Been >> about 4 yrs. since this has happened. Sooo happy! >> >> Dear Beth, >> >> Will intensify my prayers for you to get through this very serious state of >> affairs. Your positive attitude always does my heart good when I read your >> posts. I know those visits to hospital without any answers make it tough. >> Hopefully the cure is right around the corner. >> >> To all the rest of my blood brothers and sisters: may you have the greatest >> fall ever and enjoy the colors and weather. >> Love Beth's admonition...happy fall y'all! >> >> 18's, >> Susan z. >> >> >> On Sep 18, 2018 2:06 PM, bkbarney via CMLHope >> wrote: >> So happy to hear this wonderful news. Thanks for sharing Jeanie. >> >> Happy and Healthy New Year to all who observe the Jewish Holidays. >> >> My update is that I continue to struggle, staying positive and trying to >> figure out what is going on with me. In the hospital for a few days a couple >> of weeks ago. Lots of tests..no answers...BCR last time was very different >> than it ever was before since on sprycel. 10x more bcrl abl cells but still >> a reasonably low ratio. So, I am praying that it will continue to work for >> me. The next blood test should tell us more. Will keep you all informed. >> Pray that it returns to my normal so I can focus on other related health >> issues. Happy fall to all... >> >> >> Much love, >> >> Beth >> >> >> -Original Message- >> From: 'Jeanie' via CMLHope >> To: cmlhope >> Sent: Tue, Sep 18, 2018 12:36 pm >> Subject: [CMLHope] Blood work Moffitt perfect >> >> >> Hi all >> My blood work at Moffitt today came back perfect! >> Praise the Lord!! >> God is so good to me. >> Love you so very much >> ❤️😄❤️🌺😀 >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/
Re: [CMLHope] Blood work Moffitt perfect
Thanks so much. Still hanging in there with faith love and pills. You and everyone will always be in my prayers. Keep looking up. Lov ya My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 20, 2018, at 4:13 AM, Marty Gartenberg wrote: > > >> On Wed, Sep 19, 2018, 10:12 PM rszim0702 via CMLHope >> wrote: >> Hooray Jeanie! I also learned this week that I have reached MMR again! Been >> about 4 yrs. since this has happened. Sooo happy! >> >> Dear Beth, >> >> Will intensify my prayers for you to get through this very serious state of >> affairs. Your positive attitude always does my heart good when I read your >> posts. I know those visits to hospital without any answers make it tough. >> Hopefully the cure is right around the corner. >> >> To all the rest of my blood brothers and sisters: may you have the greatest >> fall ever and enjoy the colors and weather. >> Love Beth's admonition...happy fall y'all! >> >> 18's, >> Susan z. >> >> >> On Sep 18, 2018 2:06 PM, bkbarney via CMLHope >> wrote: >> So happy to hear this wonderful news. Thanks for sharing Jeanie. >> >> Happy and Healthy New Year to all who observe the Jewish Holidays. >> >> My update is that I continue to struggle, staying positive and trying to >> figure out what is going on with me. In the hospital for a few days a couple >> of weeks ago. Lots of tests..no answers...BCR last time was very different >> than it ever was before since on sprycel. 10x more bcrl abl cells but still >> a reasonably low ratio. So, I am praying that it will continue to work for >> me. The next blood test should tell us more. Will keep you all informed. >> Pray that it returns to my normal so I can focus on other related health >> issues. Happy fall to all... >> >> >> Much love, >> >> Beth >> >> >> -Original Message- >> From: 'Jeanie' via CMLHope >> To: cmlhope >> Sent: Tue, Sep 18, 2018 12:36 pm >> Subject: [CMLHope] Blood work Moffitt perfect >> >> >> Hi all >> My blood work at Moffitt today came back perfect! >> Praise the Lord!! >> God is so good to me. >> Love you so very much >> ❤️😄❤️🌺😀 >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from
[CMLHope] Blood work Moffitt perfect
Hi all My blood work at Moffitt today came back perfect! Praise the Lord!! God is so good to me. Love you so very much ❤️😄❤️🌺😀 My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Moffitt today
Hi all Moffitt appointment today. Blood work and visit with nurse. Pray for all in need. ❤️❤️❤️ My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: Breathing Difficulties [Dasatinib]
Hi Marty Thanks. How was your cruise? No I’m not afraid of meds. You know my motto is faith and pills. I have been putting a pill in my tummy that you are supposed to wash your hands after handling. Tki. These are miracle drugs for sure. They saved my life several times. I am thinking of going to a specialist at Moffitt. I never knew so many people were on thyroid meds. I always tell my kids I’m not afraid of dying just the pain that goes with it. I have seen people die in pain and some just pass peacefully. My hubby just went to sleep and never woke up. Poor baby he suffered enough while he was living. He gave himself a shot of insulin daily. He was brave and happy right until the end. Hope everyone is good tonight. ❤️ My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Aug 23, 2018, at 2:25 PM, Marty Gartenberg wrote: > > Jeanie, you listen to me! You are still alive and that is the way that it > will be. Why are you so afraid of the medication that helps keep you alive? > Please just don't you keep worring because what will that do? It will just > make you worry even more. > > Okay Jeanie I see that you may need a pep talk every once in a while. Well I > don't give any pep talks. You are the one that has to give yourself pep talks > every once in a while, And don't you worry I will still be here holding your > hand/s through our computer. Got it? Good, then stuff it under your belt and > keep it there. By the way I just got a brand new Dell computer and just > finished loading everything up on it. So it is a fresh computer with fresh > vibes. > > Now something I can help you do for yourself. > > I am ending this this with two (count them) 18's18's so when you read > this take both of your index fingers and touch one of your temples very > gently and a light message to your temple and do the same with your other > index finger on your other temple and just put your head back and relax. > > This is what I used to do after a Radiation treatment when I had a real bad > headache. > > Does it sound crazy? Perhaps but who knows maybe it isn't? > > You know the numbers... > > 18's > > Marty > >> On Thu, Aug 23, 2018 at 8:47 AM 'Jeanie' via CMLHope >> wrote: >> Hi perk >> Yes my onc reduced my Ponatinib as soon as my numbers got good. >> It’s so hard to know what to do. We are scared to take mds but know we will >> die if we don’t. >> Good luck with all. >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> >>> On Jul 30, 2018, at 2:24 PM, perk wrote: >>> >>> I had the same problem with Sprycel. I went into the hospital thinking they >>> were going to drain the fluid around my lungs. They took me off of Sprycel >>> and on Tasigna. They also gave me Lasix to assist in removing the fluid. >>> They cautioned that I may experience the same problem with Tasigna. I >>> started taking it every other day instead of everyday and so far, my >>> numbers have been good. I feel a little tightness in my chest sometimes but >>> I seem to do better by not taking it everyday. Why did they increase your >>> dosage? I think they prescribe too much sometimes and you should listen to >>> your own body. This may not be good advice but it has worked for me. >>> >>> Good luck >>> >>> Perk in Texas >>> >>>> On Saturday, July 28, 2018 at 8:26:52 AM UTC-5, Ragavan wrote: >>>> I was taking 50mg Dasatinib per day. An year back it was increased to >>>> 75mg. For the last few months breathing difficulty is keep increasing. I >>>> am not able to take full breath. It is always half breath. I will discuss >>>> with my doctor in the coming visit. >>>> >>>> Did anybody else f
Re: [CMLHope] Re: Breathing Difficulties [Dasatinib]
Hi perk Yes my onc reduced my Ponatinib as soon as my numbers got good. It’s so hard to know what to do. We are scared to take mds but know we will die if we don’t. Good luck with all. My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 30, 2018, at 2:24 PM, perk wrote: > > I had the same problem with Sprycel. I went into the hospital thinking they > were going to drain the fluid around my lungs. They took me off of Sprycel > and on Tasigna. They also gave me Lasix to assist in removing the fluid. They > cautioned that I may experience the same problem with Tasigna. I started > taking it every other day instead of everyday and so far, my numbers have > been good. I feel a little tightness in my chest sometimes but I seem to do > better by not taking it everyday. Why did they increase your dosage? I think > they prescribe too much sometimes and you should listen to your own body. > This may not be good advice but it has worked for me. > > Good luck > > Perk in Texas > >> On Saturday, July 28, 2018 at 8:26:52 AM UTC-5, Ragavan wrote: >> I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. >> For the last few months breathing difficulty is keep increasing. I am not >> able to take full breath. It is always half breath. I will discuss with my >> doctor in the coming visit. >> >> Did anybody else face the same problem? How did you handle? Please help. >> >> thanks, >> Ragavan >> >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Thyroid
Hi all Can anyone give me their experience with thyroid problems? I’ve been in pill since mid July but can’t tell much difference. Thanks My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 31, 2018, at 9:55 AM, Marty Gartenberg wrote: > > https://www.verywellhealth.com/the-lowdown-on-unani-medicine-90032 > > https://www.tandfonline.com/doi/abs/10.3109/10428194.2014.982639 > > Hi Ragavan, I'm glad that your feeling better, and as I have already > explained to you that you are not imagining this because your mind KNOWS when > you are felling better as well as when your feeling worse. And I am sure that > you already know this. > > Now I have included a couple of links that give you some information and I > want you to thoroughly read and understand about the side effects. You have > to remember that your not so much dealing with arthritis or cataracts but > with CML for the most part. > > When I try to help someone I may sit up until early in the morning trying to > understand more about the subjects I am looking for. In your case I want to > make sure that you know the best ways to help yourself try to help yourself. > Yes I know that I am not a doctor nor are you. There are doctors out there > that sometimes also have to learn new things, and as my father told me about > learning new things every day. So just let me repeat this once again: > > When someone learns something new every day then they become smarter. When > they refuse or or not willing then they revert back to yesterday. > > Raganvan that includes you, me and all of the doctors in the world. > > 18's, > > Marty > >> On Tue, Jul 31, 2018 at 1:32 AM, Gopalsamy Ragavan >> wrote: >> Dear Marty, >> >> Thanks for the long caring reply. :) >> >> I am from Chennai, India and part of this group from 2012. Somehow I ended >> up as silent observer. I think I was wrong to be so. >> >> I was diagnosed at the age of 37. >> I started with Imatinib 400mg per day in 2012. >> In 2015, after F359V mutation, switched to Sprycel. >> Initially dosage was very high. That brought down platelet count >> drastically. So the dosage was slowly reduced to check the suitable amount. >> 50mg was working fine. But BCR-ABL wasn't very good. So it was decided to >> check with 70mg per day. Everything is fine including BCR-ABL. >> The only problem is breathing difficulty. >> >> For the last four days, I am taking Indian Herbal medication (Siddha) to >> reduce the water retention in the body. Siddha medicines are usually made of >> herbs and the side effects are almost NIL. I see some improvements in face, >> especially while getting up in the morning. The puffiness under the eyes are >> reducing. Somehow today I find breathing is better compared to yesterday. >> Hope these are all not illusions. :) >> >> I am checking for the appointment with doctor. >> >> I was wondering whether anybody faced the same problem and mailed to this >> group. The wonderful responses are really lovely. :) >> >> I will keep you all updated on the progress. >> >> thanks, >> Ragavan >> >> >>> On Sat, Jul 28, 2018 at 10:49 PM, Marty Gartenberg wrote: >>> Hi Ragavan, I see that your probably new here because I have not seen your >>> name before. Please correct me if I am mistaken. >>> >>> First my name is Marty and I would like to take this opportunity to welcome >>> you here with us. You will find that we are usually an ordinary bunch of >>> caring and helpful people that like to learn from each other. What I call >>> this "club" is the club that no one wants to join or be a member of. And so >>> be this. However, since everyone here is an equal member and partner >>> then,,, Well we are stuck with each other. And believe it or not this is >>> really a good club to learn as well as teach yourself and at the same time >>> to teach others as well. We are unique group of people because we all share >>> something with one and other, and that is CML. >>> >>> So what can I say about us and you as well? We all share the goal of >>> working together and keep on living and enjoying life. And now you know >>> that
Re: [CMLHope] Breathing Difficulties [Dasatinib]
Don’t want to scare you but some people have had to have the water drained off lungs. Glad you are better but as I said get it checked out right away. There are other tki you can take. Good luck My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 31, 2018, at 9:55 AM, Marty Gartenberg wrote: > > https://www.verywellhealth.com/the-lowdown-on-unani-medicine-90032 > > https://www.tandfonline.com/doi/abs/10.3109/10428194.2014.982639 > > Hi Ragavan, I'm glad that your feeling better, and as I have already > explained to you that you are not imagining this because your mind KNOWS when > you are felling better as well as when your feeling worse. And I am sure that > you already know this. > > Now I have included a couple of links that give you some information and I > want you to thoroughly read and understand about the side effects. You have > to remember that your not so much dealing with arthritis or cataracts but > with CML for the most part. > > When I try to help someone I may sit up until early in the morning trying to > understand more about the subjects I am looking for. In your case I want to > make sure that you know the best ways to help yourself try to help yourself. > Yes I know that I am not a doctor nor are you. There are doctors out there > that sometimes also have to learn new things, and as my father told me about > learning new things every day. So just let me repeat this once again: > > When someone learns something new every day then they become smarter. When > they refuse or or not willing then they revert back to yesterday. > > Raganvan that includes you, me and all of the doctors in the world. > > 18's, > > Marty > >> On Tue, Jul 31, 2018 at 1:32 AM, Gopalsamy Ragavan >> wrote: >> Dear Marty, >> >> Thanks for the long caring reply. :) >> >> I am from Chennai, India and part of this group from 2012. Somehow I ended >> up as silent observer. I think I was wrong to be so. >> >> I was diagnosed at the age of 37. >> I started with Imatinib 400mg per day in 2012. >> In 2015, after F359V mutation, switched to Sprycel. >> Initially dosage was very high. That brought down platelet count >> drastically. So the dosage was slowly reduced to check the suitable amount. >> 50mg was working fine. But BCR-ABL wasn't very good. So it was decided to >> check with 70mg per day. Everything is fine including BCR-ABL. >> The only problem is breathing difficulty. >> >> For the last four days, I am taking Indian Herbal medication (Siddha) to >> reduce the water retention in the body. Siddha medicines are usually made of >> herbs and the side effects are almost NIL. I see some improvements in face, >> especially while getting up in the morning. The puffiness under the eyes are >> reducing. Somehow today I find breathing is better compared to yesterday. >> Hope these are all not illusions. :) >> >> I am checking for the appointment with doctor. >> >> I was wondering whether anybody faced the same problem and mailed to this >> group. The wonderful responses are really lovely. :) >> >> I will keep you all updated on the progress. >> >> thanks, >> Ragavan >> >> >>> On Sat, Jul 28, 2018 at 10:49 PM, Marty Gartenberg wrote: >>> Hi Ragavan, I see that your probably new here because I have not seen your >>> name before. Please correct me if I am mistaken. >>> >>> First my name is Marty and I would like to take this opportunity to welcome >>> you here with us. You will find that we are usually an ordinary bunch of >>> caring and helpful people that like to learn from each other. What I call >>> this "club" is the club that no one wants to join or be a member of. And so >>> be this. However, since everyone here is an equal member and partner >>> then,,, Well we are stuck with each other. And believe it or not this is >>> really a good club to learn as well as teach yourself and at the same time >>> to teach others as well. We are unique group of people because we all share >>> something with one and other, and that is CML. >>> >>> So what can I say about us and you as well? We all share the goal of >>> working together and keep on l
Re: [CMLHope] Breathing Difficulties [Dasatinib]
Yes I have heard they have to drain the fluid off. Good luck. My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 29, 2018, at 12:35 AM, bkbarney via CMLHope > wrote: > > Yes Ragavan, I too had the same problem. I can only take a small dose of > Dasatanib because I get the plural effusions and swelling around the heart > from the medication. It is a known side effect that can creep up any time. > Many patients do just fine on a very specific dose, if they raise it, it can > cause this problem you are describing. These TKi's can also impact the heart > in other ways, but I strongly suggest that you see your doc and ask for a > cardio-oncologist to help you. Those are cardiologists that specialize in how > these cancer drugs impact the heart. The standard for sprycel patients, is > that we do an echo cardiogram at least twice a year to make sure the heart > is pumping well and there is no sign of PE etc. > > I do not know when you next appointment is scheduled, but I would not wait to > long to get in to see your doc. It could be from the medication increase, it > could be something else, but knowing is important, because swift action is > needed so you do not under attend a potential big problem. If you cannot > take a deep breath, and this is NOT your baseline, then that's a big problem. > > Sometimes we must push our doctors and fight to advocate for ourselves, to > get the right testing, etc... > > If your doctor chose to push up your dose based upon your BCR-ABl testing, > then talk with them. There are several TKI's out there and two in trials... > > Sending you strength, and peacego see your doc!!! > > Worried about you in Chicago.. > > Love to all, > > 18's Beth. > -Original Message- > From: Joyce Mesnarich > To: cmlhope > Sent: Sat, Jul 28, 2018 3:22 pm > Subject: Re: [CMLHope] Breathing Difficulties [Dasatinib] > > Gopalsamy, > I suggest you make an appointment with your CML specialist right now. My > husband had the same experience with Dasatinib. Turned out it had caused > fluid around his heart. Please get this checked out immediately. > > Joyce in Southern Illinois (USA) > > > On Jul 28, 2018, at 8:26 AM, Gopalsamy Ragavan wrote: > > I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. > For the last few months breathing difficulty is keep increasing. I am not > able to take full breath. It is always half breath. I will discuss with my > doctor in the coming visit. > > Did anybody else face the same problem? How did you handle? Please help. > > thanks, > Ragavan > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message becaus
Re: [CMLHope] Siggy
Thanks Joyce. She’s a treasure too My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 28, 2018, at 4:19 PM, Joyce Mesnarich wrote: > > Your daughter is a very gifted artist. Great job. Thanks for sharing. > Joyce in Southern Illinois > > >> On Jul 28, 2018, at 12:24 PM, 'Jeanie' via CMLHope >> wrote: >> >> My granddaughter is an artist. This is her rendition of Siggy as we call >> him. >> Have a great Evening everyone. >> >> >> >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Breathing Difficulties [Dasatinib]
Yes! My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 28, 2018, at 4:22 PM, Joyce Mesnarich wrote: > > Gopalsamy, > I suggest you make an appointment with your CML specialist right now. My > husband had the same experience with Dasatinib. Turned out it had caused > fluid around his heart. Please get this checked out immediately. > > Joyce in Southern Illinois (USA) > > >> On Jul 28, 2018, at 8:26 AM, Gopalsamy Ragavan wrote: >> >> I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. >> For the last few months breathing difficulty is keep increasing. I am not >> able to take full breath. It is always half breath. I will discuss with my >> doctor in the coming visit. >> >> Did anybody else face the same problem? How did you handle? Please help. >> >> thanks, >> Ragavan >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Breathing Difficulties [Dasatinib]
I need to clarify my post. My hubby had heart disease and I am the one with the cml. I never had the breathing problems with Dasatinib but it is a side effect and could be a lung problem. That is why I said don’t wait to get advice on what to do. It quit working for me after 4 years and I was put on Ponatinib. Read your leaflet that came with your meds very carefully. Make sure you aren’t taking a medicine that might interfere with dasatinib but report this to your onc right away. Good luck. My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 28, 2018, at 1:32 PM, 'Jeanie' via CMLHope > wrote: > > Hi there > You may need oxygen. They gave my husband the choice of oxygen or not since > he was borderline. I wish we had opted for but we didn’t. I don’t think I > would wait for drs visit. Get it checked now. > Just my opinion. > Love you so very much > > > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > Taking 0.05mg 50 mcg levothyroxine > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > >> On Jul 28, 2018, at 9:26 AM, Gopalsamy Ragavan wrote: >> >> I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. >> For the last few months breathing difficulty is keep increasing. I am not >> able to take full breath. It is always half breath. I will discuss with my >> doctor in the coming visit. >> >> Did anybody else face the same problem? How did you handle? Please help. >> >> thanks, >> Ragavan >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Breathing Difficulties [Dasatinib]
Hi there You may need oxygen. They gave my husband the choice of oxygen or not since he was borderline. I wish we had opted for but we didn’t. I don’t think I would wait for drs visit. Get it checked now. Just my opinion. Love you so very much My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 28, 2018, at 9:26 AM, Gopalsamy Ragavan wrote: > > I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. > For the last few months breathing difficulty is keep increasing. I am not > able to take full breath. It is always half breath. I will discuss with my > doctor in the coming visit. > > Did anybody else face the same problem? How did you handle? Please help. > > thanks, > Ragavan > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Siggy
My granddaughter is an artist. This is her rendition of Siggy as we call him. Have a great Evening everyone. My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Trumpet flower
Oh he is beautiful!!! I don’t have any pets but I love my daughters. She has an 8 year old German Shepherd. She got him when he was a baby. What a treasure. He loves me and gives me kisses. He also protects them. I’ll see if I can find a picture for u guys. ❤️ My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 24, 2018, at 8:40 PM, Marty Gartenberg wrote: > > Hey Jeanie, you better start opening a flower shop. You would probably make a > lot of money. > > Al I can do is to keep raising my canaries. And my dog Shylow. These are all > of my flowers. > > > > >> On Tue, Jul 24, 2018 at 1:04 PM, 'Jeanie' via CMLHope >> wrote: >> >> These start off with long closed trumpet flowers and then open up up side >> down with beautiful smell >> >> >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > <000_0149 (1).jpg> > <000_0182.jpg> > > > > > <4 in nest.JPG> -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Bosulif and high blood pressure
Hi Ann I have high blood pressure. I’ve been in tki for years. I have tried all the blood pressure pills with no luck. They all make my heart hurt. He is probably under a lot of stress. Try yoga and other calming exercises. They help some. My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 26, 2018, at 12:47 PM, Ana Burgos wrote: > > Anyone on Bosulif is getting high blood pressure? > Since my mum started Bosulif she has gone to emergency 3 times with very high > pressure! > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Bromeliads
Thanks Marty I will try it. Sounds delicious. My insurance pays. ❤️ My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 24, 2018, at 9:57 PM, Marty Gartenberg wrote: > > Jeanie, of course we are all great. Why would you think otherwise. Why would > you think that I very confused over this thyroid thing. Don't be. > You will see once you get on the right amount to take it will be like a piece > of Cherry pie. I love Cherry pie. I don't feel any side effects or anything > else. I take .75 micrograms. > > Listen... Synthroid and Levothyrxine are basically the same. They work the > same and Levothyrxine is the generic for Synthroid. So what is the > difference? Well if you go to Walmart the price should be around $4.28 for a > 30 day supply of 50mcg. In other words it is dirt cheap. > > But if you go to several others (please see the web site) > https://www.goodrx.com/levothyroxine. Hey let's all hear it for...Walmart, > Walmart, Walmart YAY...Now if you have insurance then let's hear it again > YAY!!! > > By the way is seems to have a sweet taste. No, you shouldn't put it in hot > tea as a sweetener. Although I have never tried it, Hay, you never know? But > let me give you tea toddlers a tip of my own. Instead of putting in a packet > of fake sweeteners try a little packet of orange marmalade. You can pick them > up in any breakfast eating restaurant for free depending if you break down > and eat breakfast every once in a while. > > Or just buy a jar of orange marmalade in your local supermarket. I sometimes > do exactly that during some of the holidays including Thanksgiving whan my > wife fixes her famous Sweet Potato recipe. > > Okay so while we are at it let me give you the recipe and remember don't put > all of the orange marmalade in because you will still have enough for your > hot tea. So before I give you this recipe I just want to say that life is > good because you also enjoy many other things. Jeanie, your garden, me my > canaries and dog and lets find about the rest of you. What do you enjoy? > > So what have you learned today? Well you know my fathers sayings... When you > learn something new every day then you become smarter. But when you refuse or > don't want to learn something new then you revert back to yesterday. > > It's like a magic thing, when you feel good then your health becomes better. > Trust me I already know and by the way so do most of you as well. You should > always try to enjoy your life...I do. > > If you decide to test out Shelly's recipe then enjoy yourself... > > Shelly’s Sweet Potato Casserole > > Ingredients needed: > > One large can of Yams > One can of Apple Pie filling (Sugar free if you desire) > One can of Cherry Pie filling (Sugar free if you desire) > One can of whole berry Cranberry Sauce > Orange Marmalade (one tablespoon, or more to suit your taste) > Apricot Preserves (one tablespoon or more to suit your taste) > > Start by using a can of Apple Pie filling. Also, add a can of Cherry Pie > filling. Put this into a cooking casserole, and then add a large can of > drained, cut up Yams. Cut to your liking, or about one to two inch pieces. > > In a separate mixing bowl put in a can of whole Berry Cranberry Sauce, add > one tablespoon of Orange Marmalade, and then add one tablespoon of Apricot > Preserves. Mix it all together. Pour mixture over the Yams, place covered in > the oven at 350 degrees for approximately 20 to 30 minutes. Be sure to keep > an eye on it to make sure it doesn’t overcook or burn, then serve and enjoy. > > We would like to wish everyone a very happy and healthy Thanksgiving… > > Martin and Rachelle Gartenberg > > > > Yes, let's not forget.. > > 18's, > > Marty > >> On Tue, Jul 24, 2018 at 12:52 PM, 'Jeanie' via CMLHope >> wrote: >> Thanks Marty >> I needed them. I’m very confused over this thyroid thing. My neck isn’t >> swollen but do I need to see a specialist? How did they find yours and are >> you still having symptoms. >> What is your dosage? >> You remember when >> I told you about waking up and my little finger felt like it was broken? >> It has never healed. >> Should I have my onc look into this or stay with my PCd? >> I’m sor
Re: [CMLHope] Thyroid dosage?
Thanks Marty and everyone. How long did it take for tingling to go away? My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 24, 2018, at 9:50 AM, Marty Gartenberg wrote: > > Hi Jeanie and Joyce, > > First to Jeanie: I am very sorry that you are having this problem but you > should know that this will be corrected very soon. And the fact that your > having all of these problems especially about your swaeting and the temporary > loss or tingling of one of your fingers. I am "happy" that you brought this > up because that is also what happened to me as well. In my case it was my > pinky on my right hand, but it will go away. > > Now I did ask you if your dose may be incorrect because if in fact it was 50 > mg and not micrograms then you would have been in the hospital for sure and > who knows what would have happened to you. You see that is what is GOOD about > this CMLhope site. And you know why, it is because other people care about > each other. > > So now let's bring in Joyce: So miss Joyce I need you to stand up and very > gently pat yourself on the back, and if you want to curtsy a little bit then > be my guest.🍒 > > Oh please don't let me forget those cherries for Jeanie as well.🍒 > > 18's, > > Marty > >> On Tue, Jul 24, 2018 at 7:51 AM, 'Jeanie' via CMLHope >> wrote: >> Thank you Joyce >> Yes I was wrong about dosage. It was 0.05mg >> I took a whole 5o this morning but I’m sweating really bAd and shaking. >> So I’m going back to half. >> I woke up a few months ago and my right finger was numb. >> Anyone have that? >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >>> On Jul 19, 2018, at 10:34 PM, Joyce Mesnarich wrote: >>> >>> Jeanie, >>> I would take the dosage your Dr advised. My husband is taking 150. He has >>> been taking it so long that we can’t really remember how often he did blood >>> tests when he first started. I think it was every 3 months. Now he gets >>> tested every 6 months. That, evidently, is what Medicare will pay for and >>> deems necessary. I takes a while for your body to build up the thyroid. >>> I think you should take the whole dosage. It may even be adjusted higher >>> as you go along and they find the right amount that you need. 50 sounds >>> like a very low dose. Don’t think you should have any problems with it. >>> Hope you feel better soon. My husband never noticed any difference in how >>> he felt. He was diagnosed before he had any symptoms, I guess. >>> God bless and keep you, >>> Joyce in Southern Illinois >>> >>> >>>> On Jul 19, 2018, at 1:29 PM, 'Jeanie' via CMLHope >>>> wrote: >>>> >>>> >>>> My dr gave me 50 mg but I am taking half. Should I take the full dose? >>>> 18’s >>>> How often to get tested? >>>> My Motto: >>>> Faith and Pills >>>> With Love >>>> Jeanie >>>> 🐠free >>>> Dx 1/2004 CML Leukemia >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib 1/ 2015 >>>> New Doctor--Dr Martine Extermann >>>> Moffitt Cancer center sept 2017 >>>> Dr Balducci retired >>>> >>>> 0 CBL. ABL >>>> >>>>> On Jul 17, 2018, at 3:39 PM, Marty Gartenberg wrote: >>>>> >>>>> Great drug! I have been taking it for many, many years. What dose is he >>>>> on? >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>>> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich wrote: >>>>>> Jeanie, >>>>>> My hus
Re: [CMLHope] IMG_6459.JPG
The pink lilies are miracles sent to me by my mother who has away years ago. I found some lilies on the side of my property in the shade. There was only one lily. I told my son to plant it in the sun. The property is lined with old southern oaks and not much sun but he did. They started multiplying over the years and I didn’t think much of them. Then one day my son yelled, “Mom look!” There were two large stalks of the pink lilies you saw. They kept blooming for about a month. I felt my mom in those lilies. Now I thought they weren’t going to bloom this year but all of a sudden they were there. Such a beautiful pink and smell so good. I hope you enjoyed them. 18’s to Marty Love you so very much My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 19, 2018, at 8:12 PM, Joyce Mesnarich wrote: > > They are beautiful. > Joyce in Southern Illinois > >> On Jul 19, 2018, at 6:46 PM, sherri swanson >> wrote: >> >> I love the Pink Lillie's! >> >> Sherri >> >>> On Thu, Jul 19, 2018 at 3:55 PM, Marty Gartenberg wrote: >>> Pink Lilies🌺 Close as I can get... >>> 18's, >>> >>> Marty >>> >>>> On Thu, Jul 19, 2018 at 2:56 PM, 'Jeanie' via CMLHope >>>> wrote: >>>> >>>> >>>> >>>> >>>> >>>> My Motto: >>>> Faith and Pills >>>> With Love >>>> Jeanie >>>> 🐠free >>>> 18’s to Marty >>>> Dx 1/2004 CML Leukemia >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib 1/ 2015 >>>> New Doctor--Dr Martine Extermann >>>> Moffitt Cancer center sept 2017 >>>> Dr Balducci retired >>>> >>>> 0 CBL. ABL >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> - >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group.
Re: [CMLHope] IMG_6459.JPG
Yes My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 19, 2018, at 8:22 PM, Marty Gartenberg wrote: > > How about a very large garden...🌷🌹🏵🌺🌻💐🌼🌱🌲🌳🌴🌵🌾🌿🍀🍁🍂🍃🍇🍈🍉🍊🍋🍌🍍🍎🍏🍐🍑🍒🍓🍅🍆🌽🌶🍄🏕🏜🏝🎃🎄🔆 > > 18's, > > Marty > >> On Thu, Jul 19, 2018 at 8:12 PM, Joyce Mesnarich wrote: >> They are beautiful. >> Joyce in Southern Illinois >> >>> On Jul 19, 2018, at 6:46 PM, sherri swanson >>> wrote: >>> >>> I love the Pink Lillie's! >>> >>> Sherri >>> >>>> On Thu, Jul 19, 2018 at 3:55 PM, Marty Gartenberg wrote: >>>> Pink Lilies🌺 Close as I can get... >>>> 18's, >>>> >>>> Marty >>>> >>>>> On Thu, Jul 19, 2018 at 2:56 PM, 'Jeanie' via CMLHope >>>>> wrote: >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> My Motto: >>>>> Faith and Pills >>>>> With Love >>>>> Jeanie >>>>> 🐠free >>>>> 18’s to Marty >>>>> Dx 1/2004 CML Leukemia >>>>> Started Gleevec 2/2004 >>>>> Started Tasigna 9/2009 >>>>> Started Sprycel 11/2009 >>>>> Started Ponatinib 1/ 2015 >>>>> New Doctor--Dr Martine Extermann >>>>> Moffitt Cancer center sept 2017 >>>>> Dr Balducci retired >>>>> >>>>> 0 CBL. ABL >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> - >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-unsubscr...@googlegroups.com >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to cmlhope+unsubscr...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> - >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send a
Re: [CMLHope] Thyroid dosage?
Thank you Joyce Yes I was wrong about dosage. It was 0.05mg I took a whole 5o this morning but I’m sweating really bAd and shaking. So I’m going back to half. I woke up a few months ago and my right finger was numb. Anyone have that? My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 19, 2018, at 10:34 PM, Joyce Mesnarich wrote: > > Jeanie, > I would take the dosage your Dr advised. My husband is taking 150. He has > been taking it so long that we can’t really remember how often he did blood > tests when he first started. I think it was every 3 months. Now he gets > tested every 6 months. That, evidently, is what Medicare will pay for and > deems necessary. I takes a while for your body to build up the thyroid. I > think you should take the whole dosage. It may even be adjusted higher as > you go along and they find the right amount that you need. 50 sounds like a > very low dose. Don’t think you should have any problems with it. Hope you > feel better soon. My husband never noticed any difference in how he felt. > He was diagnosed before he had any symptoms, I guess. > God bless and keep you, > Joyce in Southern Illinois > > >> On Jul 19, 2018, at 1:29 PM, 'Jeanie' via CMLHope >> wrote: >> >> >> My dr gave me 50 mg but I am taking half. Should I take the full dose? >> 18’s >> How often to get tested? >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >>> On Jul 17, 2018, at 3:39 PM, Marty Gartenberg wrote: >>> >>> Great drug! I have been taking it for many, many years. What dose is he on? >>> >>> 18's, >>> >>> Marty >>> >>>> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich wrote: >>>> Jeanie, >>>> My husband has had hypothyroidism for years…..before he got CML. It never >>>> caused him any problems. It was diagnosed at a regular office visit with >>>> a blood test. He takes levothyroxin and has regular blood tests. >>>> >>>> Joyce in Southern Illinois >>>> >>>> >>>>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope >>>>> wrote: >>>>> >>>>> Anyone have a thyroid problem? >>>>> >>>>> My Motto: >>>>> Faith and Pills >>>>> With Love >>>>> Jeanie >>>>> 🐠free >>>>> Dx 1/2004 CML Leukemia >>>>> Started Gleevec 2/2004 >>>>> Started Tasigna 9/2009 >>>>> Started Sprycel 11/2009 >>>>> Started Ponatinib 1/ 2015 >>>>> New Doctor--Dr Martine Extermann >>>>> Moffitt Cancer center sept 2017 >>>>> Dr Balducci retired >>>>> >>>>> 0 CBL. ABL >>>>> >>>>>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg wrote: >>>>>> >>>>>> Okay Jeanie, >>>>>> >>>>>> Since there is a lot to talk about I will do it between your lines. >>>>>> >>>>>> Hi >>>>>> That’s cute >>>>>> When I first started dating my hubby I was 16. When we went to leave I >>>>>> hugged and kissed my mom and dad goodbye. He told me later he had never >>>>>> seen that before. >>>>>> >>>>>> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM >>>>>> THE WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE >>>>>> WOULD HUG AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST >>>>>> HUG ME THEN KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. >>>>>> DO YOU KNOW WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO >>>>>> FORGET HIM. >>>>>> >>>>>> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF >>>>>> TWIST AND
Re: [CMLHope] IMG_6459.JPG
Nice My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 19, 2018, at 8:22 PM, Marty Gartenberg wrote: > > How about a very large garden...🌷🌹🏵🌺🌻💐🌼🌱🌲🌳🌴🌵🌾🌿🍀🍁🍂🍃🍇🍈🍉🍊🍋🍌🍍🍎🍏🍐🍑🍒🍓🍅🍆🌽🌶🍄🏕🏜🏝🎃🎄🔆 > > 18's, > > Marty > >> On Thu, Jul 19, 2018 at 8:12 PM, Joyce Mesnarich wrote: >> They are beautiful. >> Joyce in Southern Illinois >> >>> On Jul 19, 2018, at 6:46 PM, sherri swanson >>> wrote: >>> >>> I love the Pink Lillie's! >>> >>> Sherri >>> >>>> On Thu, Jul 19, 2018 at 3:55 PM, Marty Gartenberg wrote: >>>> Pink Lilies🌺 Close as I can get... >>>> 18's, >>>> >>>> Marty >>>> >>>>> On Thu, Jul 19, 2018 at 2:56 PM, 'Jeanie' via CMLHope >>>>> wrote: >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> My Motto: >>>>> Faith and Pills >>>>> With Love >>>>> Jeanie >>>>> 🐠free >>>>> 18’s to Marty >>>>> Dx 1/2004 CML Leukemia >>>>> Started Gleevec 2/2004 >>>>> Started Tasigna 9/2009 >>>>> Started Sprycel 11/2009 >>>>> Started Ponatinib 1/ 2015 >>>>> New Doctor--Dr Martine Extermann >>>>> Moffitt Cancer center sept 2017 >>>>> Dr Balducci retired >>>>> >>>>> 0 CBL. ABL >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> - >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-unsubscr...@googlegroups.com >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to cmlhope+unsubscr...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> - >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send a
[CMLHope] Thyroid problems
My t3 and t4 were normal My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 19, 2018, at 2:22 PM, 'Jeanie' via CMLHope > wrote: > > Thanks everyone. > I was worried about the meds. Did the meds get your tsh levels back to > normal. Mine was 13. ❤️ > > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > > 0 CBL. ABL > >> On Jul 19, 2018, at 4:24 AM, sherri swanson >> wrote: >> >> Hi Jeanie, >> >> I too take Levothroxine and have for about 25 or 30 years. The only thing I >> was told was not to take it at the same time I take my Gleevec as the >> Gleevec may decrease the level of Levothroxine may not work as well. But I >> have not any issues and my Onc and GP are watching my blood levels. >> >> Hope everyone is well and enjoying the summer. Here is a photo from the >> garden. >> >> >> >> Sherri >> >> >>> On Wed, Jul 18, 2018 at 8:46 PM, bkbarney via CMLHope >>> wrote: >>> Hi Jeanie, >>> >>> Yep, have taken levothroxine since I was 30. Still on it without incident. >>> >>> Much love to all and 18's >>> >>> Beth >>> >>> >>> -Original Message- >>> From: 'Jeanie' via CMLHope >>> To: cmlhope >>> Sent: Tue, Jul 17, 2018 10:58 am >>> Subject: Re: [CMLHope] Re: Sudden problem after twenty years. >>> >>> Anyone have a thyroid problem? >>> >>> My Motto: >>> Faith and Pills >>> With Love >>> Jeanie >>> 🐠free >>> Dx 1/2004 CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib 1/ 2015 >>> New Doctor--Dr Martine Extermann >>> Moffitt Cancer center sept 2017 >>> Dr Balducci retired >>> >>> 0 CBL. ABL >>> >>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg wrote: >>> >>> Okay Jeanie, >>> >>> Since there is a lot to talk about I will do it between your lines. >>> >>> Hi >>> That’s cute >>> When I first started dating my hubby I was 16. When we went to leave I >>> hugged and kissed my mom and dad goodbye. He told me later he had never >>> seen that before. >>> >>> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE >>> WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG >>> AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN >>> KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW >>> WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM. >>> >>> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF >>> TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED >>> LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER >>> FORGET THEM >>> >>> His mom and dad never hugged or kissed him. It was just the way we were. >>> Kiss goodbye and kiss hello. >>> >>> BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, >>> SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON >>> THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE >>> >>> I THINK THAT HE JUST NEEDED A KNIPPLE. >>> >>> Same way with my kids. I tell them a hug is better than a pill. >>> How are you today? >>> >>> HEY JEANIE, KINPPLES FOR EVERY ONE. 😀 >>> >>> I’m waiting on my daughter as she will take me to a late lunch. >>> I find my appetite not as good as it used to be. How bout you? >>> >>> BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T >>> HAVE A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO. >>> A WHOLE STORY BEHIND THIS BUT FOR ANOTHER TIME... >>> >>> I loved Millie’s cooking and recipes. I s
[CMLHope] Thyroid dosage?
My dr gave me 50 mg but I am taking half. Should I take the full dose? 18’s How often to get tested? My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 17, 2018, at 3:39 PM, Marty Gartenberg wrote: > > Great drug! I have been taking it for many, many years. What dose is he on? > > 18's, > > Marty > >> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich wrote: >> Jeanie, >> My husband has had hypothyroidism for years…..before he got CML. It never >> caused him any problems. It was diagnosed at a regular office visit with a >> blood test. He takes levothyroxin and has regular blood tests. >> >> Joyce in Southern Illinois >> >> >>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope >>> wrote: >>> >>> Anyone have a thyroid problem? >>> >>> My Motto: >>> Faith and Pills >>> With Love >>> Jeanie >>> 🐠free >>> Dx 1/2004 CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib 1/ 2015 >>> New Doctor--Dr Martine Extermann >>> Moffitt Cancer center sept 2017 >>> Dr Balducci retired >>> >>> 0 CBL. ABL >>> >>>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg wrote: >>>> >>>> Okay Jeanie, >>>> >>>> Since there is a lot to talk about I will do it between your lines. >>>> >>>> Hi >>>> That’s cute >>>> When I first started dating my hubby I was 16. When we went to leave I >>>> hugged and kissed my mom and dad goodbye. He told me later he had never >>>> seen that before. >>>> >>>> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE >>>> WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG >>>> AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN >>>> KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW >>>> WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM. >>>> >>>> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF >>>> TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED >>>> LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER >>>> FORGET THEM >>>> >>>> His mom and dad never hugged or kissed him. It was just the way we were. >>>> Kiss goodbye and kiss hello. >>>> >>>> BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, >>>> SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON >>>> THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE >>>> >>>> I THINK THAT HE JUST NEEDED A KNIPPLE. >>>> >>>> Same way with my kids. I tell them a hug is better than a pill. >>>> How are you today? >>>> >>>> HEY JEANIE, KINPPLES FOR EVERY ONE. 😀 >>>> >>>> I’m waiting on my daughter as she will take me to a late lunch. >>>> I find my appetite not as good as it used to be. How bout you? >>>> >>>> BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T >>>> HAVE A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO. >>>> A WHOLE STORY BEHIND THIS BUT FOR ANOTHER TIME... >>>> >>>> I loved Millie’s cooking and recipes. I sure do miss her. >>>> She fought hard. >>>> I remember when she started losing the use of her arms she said she didn’t >>>> know what she would do if she couldn’t do her sewing and etc. >>>> though I never met her I felt I knew her all my life. More later—— >>>> >>>> THAT'S WHY I CALLED HER MOMMY LOTTIE. >>>> >>>> And she knew what 18's meant. >>>> >>>> So 18's, >>>> >>>> Marty, and a Knipple to you. >>>> >>>> >>>> >>>> >>>>> On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope >>>>> wrote: >>>>> Hi >>>>> That’s cute >>
[CMLHope] Thyroid issues hair loss?
Yes that’s the drug I was put on. I had noticed my hair was falling out and I was so sleepy and tired. My PCd took a blood test and found it. Did your hair fall out and if it did did it start coming back in? Thanks 18’s My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 18, 2018, at 7:55 AM, Marty Gartenberg wrote: > > Thank you Joyce. > > 18's, > > Marty > >> On Wed, Jul 18, 2018 at 12:07 AM, Joyce Mesnarich wrote: >> I think he is on 150 micrograms. >>Joyce in Southern Illinois >> >> >>> On Jul 17, 2018, at 2:39 PM, Marty Gartenberg wrote: >>> >>> Great drug! I have been taking it for many, many years. What dose is he on? >>> >>> 18's, >>> >>> Marty >>> >>>> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich wrote: >>>> Jeanie, >>>> My husband has had hypothyroidism for years…..before he got CML. It never >>>> caused him any problems. It was diagnosed at a regular office visit with >>>> a blood test. He takes levothyroxin and has regular blood tests. >>>> >>>> Joyce in Southern Illinois >>>> >>>> >>>>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope >>>>> wrote: >>>>> >>>>> Anyone have a thyroid problem? >>>>> >>>>> My Motto: >>>>> Faith and Pills >>>>> With Love >>>>> Jeanie >>>>> 🐠free >>>>> Dx 1/2004 CML Leukemia >>>>> Started Gleevec 2/2004 >>>>> Started Tasigna 9/2009 >>>>> Started Sprycel 11/2009 >>>>> Started Ponatinib 1/ 2015 >>>>> New Doctor--Dr Martine Extermann >>>>> Moffitt Cancer center sept 2017 >>>>> Dr Balducci retired >>>>> >>>>> 0 CBL. ABL >>>>> >>>>>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg wrote: >>>>>> >>>>>> Okay Jeanie, >>>>>> >>>>>> Since there is a lot to talk about I will do it between your lines. >>>>>> >>>>>> Hi >>>>>> That’s cute >>>>>> When I first started dating my hubby I was 16. When we went to leave I >>>>>> hugged and kissed my mom and dad goodbye. He told me later he had never >>>>>> seen that before. >>>>>> >>>>>> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM >>>>>> THE WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE >>>>>> WOULD HUG AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST >>>>>> HUG ME THEN KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. >>>>>> DO YOU KNOW WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO >>>>>> FORGET HIM. >>>>>> >>>>>> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF >>>>>> TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED >>>>>> LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER >>>>>> FORGET THEM >>>>>> >>>>>> His mom and dad never hugged or kissed him. It was just the way we >>>>>> were. >>>>>> Kiss goodbye and kiss hello. >>>>>> >>>>>> BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, >>>>>> SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE >>>>>> ON THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE >>>>>> >>>>>> I THINK THAT HE JUST NEEDED A KNIPPLE. >>>>>> >>>>>> Same way with my kids. I tell them a hug is better than a pill. >>>>>> How are you today? >>>>>> >>>>>> HEY JEANIE, KINPPLES FOR EVERY ONE. 😀 >>>>>> >>>>>> I’m waiting on my daughter as she will take me to a late lunch. >>>>>> I find my appetite not as good as it used to be. How bout you? >>>>>> >>>>>> BOTH OF MY PARENTS WERE
Re: [CMLHope] Re: Sudden problem after twenty years.
Beautiful My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 19, 2018, at 4:24 AM, sherri swanson > wrote: > > Hi Jeanie, > > I too take Levothroxine and have for about 25 or 30 years. The only thing I > was told was not to take it at the same time I take my Gleevec as the Gleevec > may decrease the level of Levothroxine may not work as well. But I have not > any issues and my Onc and GP are watching my blood levels. > > Hope everyone is well and enjoying the summer. Here is a photo from the > garden. > > > > Sherri > > >> On Wed, Jul 18, 2018 at 8:46 PM, bkbarney via CMLHope >> wrote: >> Hi Jeanie, >> >> Yep, have taken levothroxine since I was 30. Still on it without incident. >> >> Much love to all and 18's >> >> Beth >> >> >> -Original Message- >> From: 'Jeanie' via CMLHope >> To: cmlhope >> Sent: Tue, Jul 17, 2018 10:58 am >> Subject: Re: [CMLHope] Re: Sudden problem after twenty years. >> >> Anyone have a thyroid problem? >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg wrote: >> >> Okay Jeanie, >> >> Since there is a lot to talk about I will do it between your lines. >> >> Hi >> That’s cute >> When I first started dating my hubby I was 16. When we went to leave I >> hugged and kissed my mom and dad goodbye. He told me later he had never seen >> that before. >> >> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE >> WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG >> AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN >> KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW >> WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM. >> >> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF >> TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED >> LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER >> FORGET THEM >> >> His mom and dad never hugged or kissed him. It was just the way we were. >> Kiss goodbye and kiss hello. >> >> BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, >> SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON >> THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE >> >> I THINK THAT HE JUST NEEDED A KNIPPLE. >> >> Same way with my kids. I tell them a hug is better than a pill. >> How are you today? >> >> HEY JEANIE, KINPPLES FOR EVERY ONE. 😀 >> >> I’m waiting on my daughter as she will take me to a late lunch. >> I find my appetite not as good as it used to be. How bout you? >> >> BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T HAVE >> A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO. A >> WHOLE STORY BEHIND THIS BUT FOR ANOTHER TIME... >> >> I loved Millie’s cooking and recipes. I sure do miss her. >> She fought hard. >> I remember when she started losing the use of her arms she said she didn’t >> know what she would do if she couldn’t do her sewing and etc. >> though I never met her I felt I knew her all my life. More later—— >> >> THAT'S WHY I CALLED HER MOMMY LOTTIE. >> >> And she knew what 18's meant. >> >> So 18's, >> >> Marty, and a Knipple to you. >> >> >> >> >> On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope >> wrote: >> Hi >> That’s cute >> When I first started dating my hubby I was 16. When we went to leave I >> hugged and kissed my mom and dad goodbye. He told me later he had never seen >> that before. His mom and dad never hugged or kissed him. It was just the >> way we were. >> Kiss goodbye and kiss hello. >> Same way with my ki
Re: [CMLHope] Re: Sudden problem after twenty years.
Thanks everyone. I was worried about the meds. Did the meds get your tsh levels back to normal. Mine was 13. ❤️ My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 19, 2018, at 4:24 AM, sherri swanson > wrote: > > Hi Jeanie, > > I too take Levothroxine and have for about 25 or 30 years. The only thing I > was told was not to take it at the same time I take my Gleevec as the Gleevec > may decrease the level of Levothroxine may not work as well. But I have not > any issues and my Onc and GP are watching my blood levels. > > Hope everyone is well and enjoying the summer. Here is a photo from the > garden. > > > > Sherri > > >> On Wed, Jul 18, 2018 at 8:46 PM, bkbarney via CMLHope >> wrote: >> Hi Jeanie, >> >> Yep, have taken levothroxine since I was 30. Still on it without incident. >> >> Much love to all and 18's >> >> Beth >> >> >> -Original Message- >> From: 'Jeanie' via CMLHope >> To: cmlhope >> Sent: Tue, Jul 17, 2018 10:58 am >> Subject: Re: [CMLHope] Re: Sudden problem after twenty years. >> >> Anyone have a thyroid problem? >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg wrote: >> >> Okay Jeanie, >> >> Since there is a lot to talk about I will do it between your lines. >> >> Hi >> That’s cute >> When I first started dating my hubby I was 16. When we went to leave I >> hugged and kissed my mom and dad goodbye. He told me later he had never seen >> that before. >> >> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE >> WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG >> AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN >> KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW >> WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM. >> >> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF >> TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED >> LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER >> FORGET THEM >> >> His mom and dad never hugged or kissed him. It was just the way we were. >> Kiss goodbye and kiss hello. >> >> BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, >> SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON >> THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE >> >> I THINK THAT HE JUST NEEDED A KNIPPLE. >> >> Same way with my kids. I tell them a hug is better than a pill. >> How are you today? >> >> HEY JEANIE, KINPPLES FOR EVERY ONE. 😀 >> >> I’m waiting on my daughter as she will take me to a late lunch. >> I find my appetite not as good as it used to be. How bout you? >> >> BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T HAVE >> A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO. A >> WHOLE STORY BEHIND THIS BUT FOR ANOTHER TIME... >> >> I loved Millie’s cooking and recipes. I sure do miss her. >> She fought hard. >> I remember when she started losing the use of her arms she said she didn’t >> know what she would do if she couldn’t do her sewing and etc. >> though I never met her I felt I knew her all my life. More later—— >> >> THAT'S WHY I CALLED HER MOMMY LOTTIE. >> >> And she knew what 18's meant. >> >> So 18's, >> >> Marty, and a Knipple to you. >> >> >> >> >> On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope >> wrote: >> Hi >> That’s cute >> When I first started dating my hubby I was 16. When we went to leave I >> hugged and kissed my mom and dad goodbye. He told me later he had never seen >> that before. His mom and dad never hugged or kissed him. It was ju
Re: [CMLHope] Re: Sudden problem after twenty years.
Anyone have a thyroid problem? My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 15, 2018, at 12:44 PM, Marty Gartenberg wrote: > > Okay Jeanie, > > Since there is a lot to talk about I will do it between your lines. > > Hi > That’s cute > When I first started dating my hubby I was 16. When we went to leave I hugged > and kissed my mom and dad goodbye. He told me later he had never seen that > before. > > OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE WAY > THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG AND > THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN KISS > ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW WHAT A > KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM. > > HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF TWIST > AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED LATER ON > IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER FORGET THEM > > His mom and dad never hugged or kissed him. It was just the way we were. > Kiss goodbye and kiss hello. > > BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, > SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON > THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE > > I THINK THAT HE JUST NEEDED A KNIPPLE. > > Same way with my kids. I tell them a hug is better than a pill. > How are you today? > > HEY JEANIE, KINPPLES FOR EVERY ONE. 😀 > > I’m waiting on my daughter as she will take me to a late lunch. > I find my appetite not as good as it used to be. How bout you? > > BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T HAVE > A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO. A WHOLE > STORY BEHIND THIS BUT FOR ANOTHER TIME... > > I loved Millie’s cooking and recipes. I sure do miss her. > She fought hard. > I remember when she started losing the use of her arms she said she didn’t > know what she would do if she couldn’t do her sewing and etc. > though I never met her I felt I knew her all my life. More later—— > > THAT'S WHY I CALLED HER MOMMY LOTTIE. > > And she knew what 18's meant. > > So 18's, > > Marty, and a Knipple to you. > > > > >> On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope >> wrote: >> Hi >> That’s cute >> When I first started dating my hubby I was 16. When we went to leave I >> hugged and kissed my mom and dad goodbye. He told me later he had never seen >> that before. His mom and dad never hugged or kissed him. It was just the >> way we were. >> Kiss goodbye and kiss hello. >> Same way with my kids. I tell them a hug is better than a pill. >> How are you today? >> I’m waiting on my daughter as she will take me to a late lunch. >> I find my appetite not as good as it used to be. How bout you? >> I loved Millie’s cooking and recipes. I sure do miss her. >> She fought hard. >> I remember when she started losing the use of her arms she said she didn’t >> know what she would do if she couldn’t do her sewing and etc. >> though I never met her I felt I knew her all my life. More later—— >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >>> On Jul 13, 2018, at 9:52 AM, Marty Gartenberg wrote: >>> >>> Jeanie, And I love you to, but when you say " Love you so very much" Do you >>> mean like hugging me so much that your going to crush me until my ribs >>> crumble? >>> >>> Ah yet another opportunity to let me say again... >>> >>> 18's, >>> >>> Marty >>> >>>> On Fri, Jul 13, 2018 at 9:16 AM, 'Jeanie' via CMLHope >>>> wrote: >>>> So true Marty >>>> You aren’t even on tki’s and look what you’ve been through. >>>> Thank you for this email. >>>> Love you so very much >>>> Jeanie >>>>
Re: [CMLHope] Re: Sudden problem after twenty years.
Hi everyone My daughter is flying to Turkey for a Persian wedding tomorrow. Please pray for her and family. I found out the reason they are all going to Turkey is that it is a neutral country that Persians and Americans can all meet in without a lot of regulations. I thought that was very interesting. I would be there but I had already made other plans and that is a long airplane ride. Anybody been to Turkey? That is where the seven churches mentioned in the revelations in the New Testament are located. They even have a tour for them. How exciting!!! Keep positive and love is the best thing of all. 18’s to Marty. My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 15, 2018, at 12:44 PM, Marty Gartenberg wrote: > > Okay Jeanie, > > Since there is a lot to talk about I will do it between your lines. > > Hi > That’s cute > When I first started dating my hubby I was 16. When we went to leave I hugged > and kissed my mom and dad goodbye. He told me later he had never seen that > before. > > OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE WAY > THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG AND > THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN KISS > ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW WHAT A > KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM. > > HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF TWIST > AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED LATER ON > IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER FORGET THEM > > His mom and dad never hugged or kissed him. It was just the way we were. > Kiss goodbye and kiss hello. > > BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, > SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON > THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE > > I THINK THAT HE JUST NEEDED A KNIPPLE. > > Same way with my kids. I tell them a hug is better than a pill. > How are you today? > > HEY JEANIE, KINPPLES FOR EVERY ONE. 😀 > > I’m waiting on my daughter as she will take me to a late lunch. > I find my appetite not as good as it used to be. How bout you? > > BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T HAVE > A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO. A WHOLE > STORY BEHIND THIS BUT FOR ANOTHER TIME... > > I loved Millie’s cooking and recipes. I sure do miss her. > She fought hard. > I remember when she started losing the use of her arms she said she didn’t > know what she would do if she couldn’t do her sewing and etc. > though I never met her I felt I knew her all my life. More later—— > > THAT'S WHY I CALLED HER MOMMY LOTTIE. > > And she knew what 18's meant. > > So 18's, > > Marty, and a Knipple to you. > > > > >> On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope >> wrote: >> Hi >> That’s cute >> When I first started dating my hubby I was 16. When we went to leave I >> hugged and kissed my mom and dad goodbye. He told me later he had never seen >> that before. His mom and dad never hugged or kissed him. It was just the >> way we were. >> Kiss goodbye and kiss hello. >> Same way with my kids. I tell them a hug is better than a pill. >> How are you today? >> I’m waiting on my daughter as she will take me to a late lunch. >> I find my appetite not as good as it used to be. How bout you? >> I loved Millie’s cooking and recipes. I sure do miss her. >> She fought hard. >> I remember when she started losing the use of her arms she said she didn’t >> know what she would do if she couldn’t do her sewing and etc. >> though I never met her I felt I knew her all my life. More later—— >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >>> On Jul 13, 2018, at 9:52 AM, Marty Gartenberg wrote: >>> >>> Jeanie, And I love you to, but when you say " Love you so very much" Do you >>&
Re: [CMLHope] Tomato pepper plants
Hi How are you this wonderful tues? I’m good I have 5 children 14 grandchildren and 15 great grandchildren Do you have any children? Do they visit? Did you ever get to meet Millie ? I noticed u both lived in Pa. She had an exciting life. My kids have taken me all over. My youngest dau took me to Europe after my hubby died. It was a 10 day bus tour. Exciting! How is your neck? Good I hope. More later—18s My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 16, 2018, at 12:30 PM, Marty Gartenberg wrote: > > Ahhh the kids! 👦👧👨👩👴👵👶👱👸👼👯💆💇👰🙍🙎🙅🙆💁🙋🙇🚶🏃💃👫👬👭💏💑👪 Which ones? > > 18's, > > Marty > >> On Mon, Jul 16, 2018 at 10:50 AM, 'Jeanie' via CMLHope >> wrote: >> I sure wish I could but I don’t do any socializing anymore. >> I’m away a lot with my daughters and it’s enough for me >> I don’t cook either. >> It’s funny, that used to be my life, cooking and eating. I had 5 children so >> you can imagine the cooking I did. >> Now I let the kids do it. >> Love >> Jeanie >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >>> On Jul 15, 2018, at 12:49 PM, Marty Gartenberg wrote: >>> >>> I'm coming over to you. I will bring the bread you cut up the vegetables >>> and cook them. Let's have a party! >>> >>> Gee I get to do it again. >>> >>> 18's, >>> >>> Marty >>> >>>> On Sun, Jul 15, 2018 at 12:38 PM, 'Jeanie' via CMLHope >>>> wrote: >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> My Motto: >>>> Faith and Pills >>>> With Love >>>> Jeanie >>>> 🐠free >>>> Dx 1/2004 CML Leukemia >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib 1/ 2015 >>>> New Doctor--Dr Martine Extermann >>>> Moffitt Cancer center sept 2017 >>>> Dr Balducci retired >>>> >>>> 0 CBL. ABL >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> - >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A
Re: [CMLHope] Tomato pepper plants
I sure wish I could but I don’t do any socializing anymore. I’m away a lot with my daughters and it’s enough for me I don’t cook either. It’s funny, that used to be my life, cooking and eating. I had 5 children so you can imagine the cooking I did. Now I let the kids do it. Love Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 15, 2018, at 12:49 PM, Marty Gartenberg wrote: > > I'm coming over to you. I will bring the bread you cut up the vegetables and > cook them. Let's have a party! > > Gee I get to do it again. > > 18's, > > Marty > >> On Sun, Jul 15, 2018 at 12:38 PM, 'Jeanie' via CMLHope >> wrote: >> >> >> >> >> >> >> >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Lilies
Didn’t know you could. There is a red flower that I call the Florida hibiscus and it is sweet and edible. I used to take the green part off and suck the sweet juice from the flower. Hope everyone is good. Lob My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 15, 2018, at 12:51 PM, Marty Gartenberg wrote: > > Can't eat Lillie's they give mt heartburn' > > Once more... > > 18's, > > Marty > >> On Sun, Jul 15, 2018 at 12:34 PM, 'Jeanie' via CMLHope >> wrote: >> >> >> >> >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Rose garden
Awe! I didn’t know that. So far so good but those big red ants have taken over my yard and I’m sure killed my Japanese plum trees. Also my fruit trees are in bad shape. Could be same thing. I’m like you just go with it. I try not to plant things that need a lot of watering. Blessings. My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On May 8, 2018, at 10:28 PM, bkbarney via CMLHope > wrote: > > Dear Jeanie, > > Rabbits and squirrels ate my rose bushes down to the earth for the fifth and > final straight year..so I just dug up the roots, and am going to plant an > alternative flowering bush that they don't eat...I just came home from work > and saw two squirrels running up my front tree with the heads of two of my > beautiful tulips in their mouths.. around the tree are ten bulb > heads...beheadings thanks to the squirrels handy work... sooo frustrating..I > surrender to my animal friends... > > Thankfully they do not eat daffodils or hyacinth or hydrangea.. > > I have pain every day Jeanie, do my best to ignore it, if I have to I take > some meds for it...am working on eating more plant based and anti > inflammation diet to see if I feel better... > Doing O.K. grateful for the spring time because it always lifts me to > distract myself with my gardening... > > lots and lots to do!!! > > much love to all...nice to hear from Susan Z and others who haven't written > in awhile...How are GReenie, and Richard and Skip, etc??? > > 18's Beth > > > > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Tue, May 8, 2018 2:29 pm > Subject: [CMLHope] Rose garden > > Rose garden my son planted for Mother’s Day. I don’t have much luck with > them but wish me luck with these. > Thanks > > > > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extermann > Moffitt Cancer center > > 0 CBL. ABL > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Re: Sudden problem after twenty years.
Hi That’s cute When I first started dating my hubby I was 16. When we went to leave I hugged and kissed my mom and dad goodbye. He told me later he had never seen that before. His mom and dad never hugged or kissed him. It was just the way we were. Kiss goodbye and kiss hello. Same way with my kids. I tell them a hug is better than a pill. How are you today? I’m waiting on my daughter as she will take me to a late lunch. I find my appetite not as good as it used to be. How bout you? I loved Millie’s cooking and recipes. I sure do miss her. She fought hard. I remember when she started losing the use of her arms she said she didn’t know what she would do if she couldn’t do her sewing and etc. though I never met her I felt I knew her all my life. More later—— My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 13, 2018, at 9:52 AM, Marty Gartenberg wrote: > > Jeanie, And I love you to, but when you say " Love you so very much" Do you > mean like hugging me so much that your going to crush me until my ribs > crumble? > > Ah yet another opportunity to let me say again... > > 18's, > > Marty > >> On Fri, Jul 13, 2018 at 9:16 AM, 'Jeanie' via CMLHope >> wrote: >> So true Marty >> You aren’t even on tki’s and look what you’ve been through. >> Thank you for this email. >> Love you so very much >> Jeanie >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >>> On Jul 10, 2018, at 8:53 AM, Marty Gartenberg wrote: >>> >>> Oh Jeanie, >>> >>> first let me take you back to something I wrote to Richard >>> >>> I have heard a lot of people mentioning that they blame some of the TKI >>> that they are taking. Perhaps that may be so, but what if it isn't that at >>> all? That is why they need to consult with their doctors because that is >>> his or her job. 👉And if they feel that there is someone that can help as >>> well then get a second opinion.👈 Don't forget they won't be hurt or >>> offended because they are all getting together to help you. >>> >>> >>> And we will now continue on. Please read this. I took the time to write it >>> for a reason and I see that you took my 👉advice👈. A lot more... But I want >>> to hug your grand-daughter. My father once taught me a lesson and I think >>> that you may want to pass this onto her, and yourself as well. >>> >>> When a person/s learns something new everyday then they become smarter. >>> When a person/s refuses to learn something every day then they revert back >>> to yesterday. >>> >>> Hum, let me think. Oh yea I think that your grand-daughter already >>> knows this? >>> >>> >>> "Take it Day by day and as my granddaughter says". She said “every little >>> thing’s gonna be alright.” >>> ❤️ >>> Blood transfusions: A sort of long story but learning something new every >>> day made me smarter and I am still alive... Jeanie I don't blame you for >>> not wanting other peoples blood in you but let me ask you a question? How >>> many units of blood did you require? Did it help you? Well i needn't know >>> the answer because I already know but nothing that you told me but I know >>> and here is why. >>> >>> I had O+ blood and my sister had B+ blood. So my transplant doctor told me >>> that since my white blood count was past 186,000 that I need to have the >>> bone marrow transplant now. Or I may not survive because I was in Blast >>> crises that I was in. >>> >>> But he knew about my blood type wasn't a match for my sister but everything >>> was perfect but the matching type. He told me that there may be a way to >>> change my blood type but it could also cause my death. I then told him that >>> i was dieing anyway so let's try it. >>> >>> He started it before my transplant. It would require that I would have to >>> get many, many blood transfu
Re: [CMLHope] Re: Sudden problem after twenty years.
So true Marty You aren’t even on tki’s and look what you’ve been through. Thank you for this email. Love you so very much Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 10, 2018, at 8:53 AM, Marty Gartenberg wrote: > > Oh Jeanie, > > first let me take you back to something I wrote to Richard > > I have heard a lot of people mentioning that they blame some of the TKI that > they are taking. Perhaps that may be so, but what if it isn't that at all? > That is why they need to consult with their doctors because that is his or > her job. 👉And if they feel that there is someone that can help as well then > get a second opinion.👈 Don't forget they won't be hurt or offended because > they are all getting together to help you. > > > And we will now continue on. Please read this. I took the time to write it > for a reason and I see that you took my 👉advice👈. A lot more... But I want to > hug your grand-daughter. My father once taught me a lesson and I think that > you may want to pass this onto her, and yourself as well. > > When a person/s learns something new everyday then they become smarter. When > a person/s refuses to learn something every day then they revert back to > yesterday. > > Hum, let me think. Oh yea I think that your grand-daughter already knows > this? > > > "Take it Day by day and as my granddaughter says". She said “every little > thing’s gonna be alright.” > ❤️ > Blood transfusions: A sort of long story but learning something new every day > made me smarter and I am still alive... Jeanie I don't blame you for not > wanting other peoples blood in you but let me ask you a question? How many > units of blood did you require? Did it help you? Well i needn't know the > answer because I already know but nothing that you told me but I know and > here is why. > > I had O+ blood and my sister had B+ blood. So my transplant doctor told me > that since my white blood count was past 186,000 that I need to have the bone > marrow transplant now. Or I may not survive because I was in Blast crises > that I was in. > > But he knew about my blood type wasn't a match for my sister but everything > was perfect but the matching type. He told me that there may be a way to > change my blood type but it could also cause my death. I then told him that i > was dieing anyway so let's try it. > > He started it before my transplant. It would require that I would have to get > many, many blood transfusions as well a a lot of platelets infusions, and > Gama globulin and other human blood products. > > Who already knew about this? R* Z. Who showed up with 41 > "members" of his "family" > (Yes you know what I mean about this) ready to donate blood. But there was a > problem. At that time there was a new disease called AIDS and all of the > blood banks started testing and this slowed down the collection of gathering > of blood. > > Not to keep you on the edge of your seat. I once helped save a woman's life > because she was dying of stage four breast cancer and I did this because I > knew a doctor who may help her, and it took more then two years. He never > forgot me. > > Some people just have their power but most don't. He was one of those that > did to a certain extent. The way that I look about it was one life foe > another. > > In order to have my blood type converted from O to B I needed 96 units of > blood and I already knew where 41 of them came from. Just to let you know if > a donated unit of blood did not match my blood profile it would be switched > and someone else would get that unit of blood and a "trade" was made. I am > now called a Chimera with B+ blood in me. > > Now I am going forward in my life once more: Twenty years later my kidneys > started started to fail. I was on Dialysis for four years and through a > miracle I was able to get a kidney transplant and while I was outside of the > operating room I noticed a white cooler with a red cross and it said "Human > organs, B right side short urethra. > > I almost jumped out of the gurney because it was B type and then I remembered > that I used to be O type. Now what are the chances that this could ever > happen? > > Now Jeanie and all of the rest of you reading this, don't you think that > there truly Miracles floating around? Just ask your grand daughterNow you > already know
Re: [CMLHope] Re: Sudden problem after twenty years.
Hi Marty You are so right. I admire you so much for fighting bravely every hardship that life has handed you. I feel privileged to have met you and have learned so much from you. This thyroid problem is just another battle to go through. Thanks for everything. Love Jeanie My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 11, 2018, at 9:12 AM, Marty Gartenberg wrote: > > Richard and all, just like Jeanie wrote. do you know what a THS level is all > about? Let me post an article: > Below I > I > I > Richard has your oncologist mentioned that you should be on a blood thinning > medication? Even 81mg baby aspirin? So why are you worried about a stroke > when you know that a simple medicine will probably prevent it. As Jeanie > stated and so did I... Listen to your body and do what you feel is right. > > I feel just like a Parrot Puppet with Jeanie pulling my strings because I > echo exactly what she squawks about because this makes me squawk about what > she says, and Richard we are right so let us do some squawking to you. And do > you know why? It is quite evident because she does it her way and I do it my > way... ❤️❤ 18's, Marty > Thyroxine, Triiodothyronine, and TSH Levels > > The main job of the thyroid gland is to make the hormone thyroxine, also > known as T4 because it has four iodine molecules. The thyroid also makes the > hormone triiodothyronine, known as T3 because it has three iodine molecules, > but in smaller amounts, explains Cathy Doria-Medina, MD, an endocrinologist > with HealthCare Partners Medical Group in Torrance, California. “The thyroid > gland makes mostly T4, [and] the T4 has to be converted to T3, because T3 is > the part of thyroxine that actually does the work," she says. > > The pituitary gland at the base of the brain controls hormone production in > your body. It makes thyroid-stimulating hormone, or TSH, which tells the > thyroid gland how much T4 and T3 to produce. The TSH level in your blood > reveals how much T4 your pituitary gland is asking your thyroid gland to > make. If your TSH levels are abnormally high, it could mean you have an > underactive thyroid, or hypothyroidism. > > “TSH levels go in the opposite direction of your thyroid hormone,” Dr. > Doria-Medina explains. “If you’re making too little thyroid hormone, your TSH > will go up. If you’re making too much thyroid hormone, your TSH will go down.” > > What’s normal can vary depending on a number of factors, including the > laboratory where your blood test is done, she adds. A normal range for TSH in > most laboratories is 0.4 milliunits per liter (mU/L) to 4.0 mU/L. > > If your TSH is higher than 4.0 mU/L on repeat tests, you probably have > hypothyroidism. > > Your doctor may also order a T4 test. Most of the T4 in your blood attaches > to a protein, and when it does, it can’t get into your cells. Only T4 that is > unattached or “free” can get into your cells to go to work. A blood test can > measure how much free T4 is available. > > > >> On Wed, Jul 11, 2018 at 6:32 AM, 'Jeanie' via CMLHope >> wrote: >> Hi Richard and all >> I take Ponatinib and one of the main side effects is stroke and blood clots >> along with many more. I knew this going in and since I was in blast I knew I >> had to do something. >> My onc advised an aspirin daily which I take. So far it is all working. >> Blood counts are good however I was just diagnosed with a Thyroid problem. >> My tsh is 13. Anyone else have this? >> I am very tired with weight loss and sweats at any time. I am taking a >> small dose of thyroid med. >> when you are 80 you never know if it’s just old age or what. >> Listen to your body and do what you feel is right. My mother and >> grandmother both had strokes when they were my age. Also s sister and aunt. >> Prayers to you and all >> ❤️❤️ >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >>> On Jul 11, 2018, at 12:46 AM, Marty Gartenberg wrote: >>> >>> Richard, now I know what your problem is. It is your kidney function being >&
Re: [CMLHope] Re: Sudden problem after twenty years.
Hi Richard and all I take Ponatinib and one of the main side effects is stroke and blood clots along with many more. I knew this going in and since I was in blast I knew I had to do something. My onc advised an aspirin daily which I take. So far it is all working. Blood counts are good however I was just diagnosed with a Thyroid problem. My tsh is 13. Anyone else have this? I am very tired with weight loss and sweats at any time. I am taking a small dose of thyroid med. when you are 80 you never know if it’s just old age or what. Listen to your body and do what you feel is right. My mother and grandmother both had strokes when they were my age. Also s sister and aunt. Prayers to you and all ❤️❤️ My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 11, 2018, at 12:46 AM, Marty Gartenberg wrote: > > Richard, now I know what your problem is. It is your kidney function being 3 > what is your doctor doing about this? That is why your HGB is so low. Do you > have a nephroligist near you? if so then go see him or her. Do it as soon as > you can. Because it is not to late. When I had to go onto Dialysis my kidney > function was already almost six. When I got my kidney transplant it went down > to .97 and there it is now. > > Now you mentioned "Probably headed for a stroke or stints in my neck". Guess > what? I already had a stroke. And have you discussed anything about anti > coagulants (blood thinners) with you doctor? Hopefully a Cardiac doctor? And > I now know how to take care of myself I also had a pace maker implanted in my > upper chest and it made a world of difference. > > Move yourself on I know what I am talking about. Are you diabetic? If so do > you take anything for it? Start drinking Cranberry juice if you can because > it will hydrate and clean your kidneys very important. > > Am I right? Do you think that your doctor is doing the right things for you? > I told you before get a second opinion. > > I can only give you suggestions but you are the one that carrys them out. If > you want to speak to me personally just let me know. > > I am now going to tell you what my father told me a long time ago... If > someone learns something new every day that will become smart, but if someone > refuses to learn something every day then they revert back to being > yesterday. Please listen to me. I am just a mortal man. I am no one special, > but I have had so many things happen to me, but why am I still alive? Do you > want to know why as well? It is because WE are still here. > > 17's > > Marty > >> On Tue, Jul 10, 2018 at 11:58 PM, Richard H wrote: >> Thanks Marty. Yes hemoglobin below 10. and himeric below 30 is correct.. >> That is for time to allow it to start doing its work and then will go toward >> normal. If I take it just over then the counts build over the normal >> level. >> Just trying to maintain that level just below normal according to his >> specification. I do comment to the nurse giving me the results each time. >> I do have my kidneys checked and am on a regular basis seeing him. I am >> running close to 3 on kidney function. I am having more heart related >> problems at this point. Probably headed for a stroke or stints in my neck. >> >> But like is still good when I wake up each morning >> >> 18's >> Richard H. >> >>> On Monday, July 9, 2018 at 9:21:42 AM UTC-5, wa2yyx wrote: >>> Richard, first thing is when your hemoglobin drops to 10 or below then is >>> the time that procrit generic Epoetin Alfa should start. It should increase >>> your red/hemoglobin count. However it may take a week or two to start >>> showing results. Why don't you mention this to your doctor. >>> Also, have your kidney function checked as well. >>> >>> When my kidneys started to fail I was on Dialsys and found that my >>> hemoglobin level started dropping. Kidney function has a lot to do with >>> that. The reason why is because there is a hormone called Erythropoietin >>> which is released in response to hypoxia (low levels of oxygen at tissue >>> level) in the renal circulation. It stimulates erythropoiesis (production >>> of red blood cells) in the bone marrow. I am writing this in bold font to >>> make sure that it can be understood, it is that important! >>> >>> When I was on Diaysis sometimes my HGB would drop to from 7% to 9% and I >&g
Re: [CMLHope] Re: Sudden problem after twenty years.
Hi all I had this problem when on Tasigna. My hmg dropped to 8. I argued with my onc as I didn’t want someone else’s blood in me. I knew if he would take me off the tasigna the hbg would come back up. He finally talked me into it and I had to stay for hours getting transfusions. As most of you know not fun. Tasigna about killed me and I landed back in the hospital until I could talk my doctor into giving me Sprycel. I decided to make the move to Moffitt and never regretted it. Good luck to everyone. Take it Day by day and as my granddaughter says, “every little thing’s gonna be alright.” ❤️ My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 9, 2018, at 10:21 AM, Marty Gartenberg wrote: > > Richard, first thing is when your hemoglobin drops to 10 or below then is the > time that procrit generic Epoetin Alfa should start. It should increase your > red/hemoglobin count. However it may take a week or two to start showing > results. Why don't you mention this to your doctor. > Also, have your kidney function checked as well. > > When my kidneys started to fail I was on Dialsys and found that my hemoglobin > level started dropping. Kidney function has a lot to do with that. The reason > why is because there is a hormone called Erythropoietin which is released > in response to hypoxia (low levels of oxygen at tissue level) in the renal > circulation. It stimulates erythropoiesis (production of red blood cells) in > the bone marrow. I am writing this in bold font to make sure that it can be > understood, it is that important! > > When I was on Diaysis sometimes my HGB would drop to from 7% to 9% and I felt > like I coulden't even get out of bed. My wife would help me into her car and > help me into the Dialysis center. I lived a horrible life until I had a > kidney Transplant. > > I have heard a lot of people mentioning that they blame some of the TKI that > they are taking. Perhaps that may be so, but what if it isn't that at all? > That is why they need to consult with their doctors because that is his or > her job. And if they feel that there is someone that can help as well then > get a second opinion. Don't forget they won't be hurt or offended because > they are all getting together to help you. > > Richard and everyone else, there was a time a very long time ago that my > father tought me something. He said that everyone needs to learn something > new everyday because it will make you smarter. If you refuse to learn > something new everyday then you will revert back to yesterday. And he was > right! > > 18's > > Marty > >> On Sun, Jul 8, 2018 at 11:31 PM, Richard H wrote: >> Yes, I have been struggling with this for years. I have had Transfusions, >> and now check my CBC every month to see if I need to take Procreate to bring >> my blood level back up. I am currently on 200 mg Gleevec daily because my >> CML levels will rise if I don't use it as a maintenance feature. I am >> approaching 16 1/2 years since diagnosis. >> >> Richard H. >> >>> On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote: >>> I suddenly became terribly anemic and my doctor cut my intake of 400mg >>> Gleevec daily in half. It took five months but I am no longer anemic and >>> the CML does not seem to have become visible as yet. Has anyone else had a >>> problem like this? >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. &g
Re: [CMLHope] Trip to cemetery yest
Hi Joyce Yes so much fun. Enjoyed fireplaces so much My Motto: Faith and Pills With Love Jeanie 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On Jun 13, 2018, at 10:41 AM, Joyce Mesnarich wrote: > > Jeanie, > I have been following you on your great trip to the Smoky Mountains. Looks > like you have really enjoyed yourself. Glad you got to visit with your > sister as well.So happy that you are well enough to travel. It adds so much > to our lives. >Joyce in Southern Illinois > > >> On May 7, 2018, at 4:15 AM, 'Jeanie' via CMLHope >> wrote: >> >> This is my brother in law grace. My sister is 87 and still doing good. I >> forgot to take my glasses off. I don’t need them to read just long distant. >> Have a great Monday everyone. >> 💋💋💋💄 >> >> >> >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Fantastic cabin.
Hi all. I highly recommend this cabin if you want to visit The Great Smoky Mountains. I loved it. Hated to leave. Love you so very much. My Motto: Faith and Pills With Love Jeanie 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Great Smokie mountains
Love it!! My Motto: Faith and Pills With Love Jeanie 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Great Smokie Mountains
Having a ball. Shopping Cherokee today. Indians all around. ❤️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On Jun 6, 2018, at 4:49 PM, Pete Pabon wrote: > > > > Get Outlook for iOS > > From: 'Jeanie' via CMLHope > Sent: Wednesday, June 6, 2018 4:45:57 PM > To: cmlhope@googlegroups.com > Subject: Re: [CMLHope] New Canary hatchings > > Hi all > Actually my mother was called Jean but I never have been. Don’t know why I > signed it that way. My mom liked the song Jeanie with the light brown hair > and she named me Jeanie. As for my hair it has fallen out a lot but I still > have some. Pictures later. > Jeanie > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extermann > Moffitt Cancer center > > 0 CBL. ABL > > On Jun 6, 2018, at 12:33 PM, Marty Gartenberg wrote: > >> Oh Susan, what are you and "Jean" going to do to me? Or better still what is >> everyone else going to do to me? Do you think that i should hide some ware?😂 >> >> 18's >> >> Marty >> >>> On Wed, Jun 6, 2018 at 12:12 PM, 'Susan Zimmerman' via CMLHope >>> wrote: >>> I noticed that, too! (Jean) >>> >>> >>> >>> Susan F. Zimmerman >>> A merry heart does good like a medicine. >>> >>> >>> -Original Message- >>> From: Marty Gartenberg >>> To: cmlhope >>> Sent: Wed, Jun 6, 2018 12:08 pm >>> Subject: Re: [CMLHope] New Canary hatchings >>> >>> Hey have a great time. Well one thing that bothers me. Since did you become >>> a male subject? Now your sporting the name of Jean? Hey I hope that your >>> still growing hair in all of the right places. >>> >>> Marty >>> >>> On Wed, Jun 6, 2018 at 11:00 AM, 'Jeanie' via CMLHope >>> wrote: >>> Hi all >>> I’m in The great smokie mountains with my 2 daughters. She rented a >>> fantastic cabin with indoor and outdoor fireplaces. We have been having a >>> ball. Headed to Chimney Rocks to picnic today. >>> Tell more when I get home. >>> Love you so very much >>> Jean >>> >>> My Motto: >>> Faith and Pills >>> With Love >>> 🐠18's >>> Dx 1/2004 CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib 1/ 2015 >>> New Doctor--Dr Martine Extermann >>> Moffitt Cancer center >>> >>> 0 CBL. ABL >>> >>> On Jun 3, 2018, at 4:28 PM, Joyce Mesnarich wrote: >>> >>> Marty, >>> I love canaries. But I have to say that your new babies are ugly. Sorry >>> about that harsh statement, but all baby birds are ugly. I would like to >>> see another picture when they have feathers. Through my life I have had >>> about 5 canaries but they always got sick and died. I think that is a >>> wonderful hobby to raise birds (with the exception of having to see them as >>> babies without feathers). I’m sure they give you many hours of >>> entertainment. How many adult canaries do you have? Do you have other >>> birds as well? >>> When my Mom was in the nursing home they had a large bird cage and we would >>> sit and watch them for long periods of time. >>> Please know that I am kidding about your ugly babies. Don’t hold that >>> against me. They will be adorable in a short time. >>> >>> Hope everyone is doing well and staying cool. Here in the midwest we have >>> had the coolest April on record…..and the HOTTEST May on record. We missed >>> spring it seems. >>> >>> Joyce in Southern Illinois >>> >>> >>> On Jun 2, 2018, at 11:52 PM, Marty Gartenberg wrote: >>> >>> Here are two new pictures of my newest baby canary chicks. >>> There are two nests and the second has four eggs but so far they haven't >>> hatched as yet. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> -
Re: [CMLHope] Smokey Mountains
A cabin on top of a mountain. What more could you ask? I get a little dizzy from the heights. More pictures later. My Motto: Faith and Pills With Love Jeanie 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On Jun 6, 2018, at 4:48 PM, 'Jeanie' via CMLHope > wrote: > > > > > > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extermann > Moffitt Cancer center > > 0 CBL. ABL > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Smokey Mountains
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] New Canary hatchings
Hi all Actually my mother was called Jean but I never have been. Don’t know why I signed it that way. My mom liked the song Jeanie with the light brown hair and she named me Jeanie. As for my hair it has fallen out a lot but I still have some. Pictures later. Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On Jun 6, 2018, at 12:33 PM, Marty Gartenberg wrote: > > Oh Susan, what are you and "Jean" going to do to me? Or better still what is > everyone else going to do to me? Do you think that i should hide some ware?😂 > > 18's > > Marty > >> On Wed, Jun 6, 2018 at 12:12 PM, 'Susan Zimmerman' via CMLHope >> wrote: >> I noticed that, too! (Jean) >> >> >> >> Susan F. Zimmerman >> A merry heart does good like a medicine. >> >> >> -Original Message- >> From: Marty Gartenberg >> To: cmlhope >> Sent: Wed, Jun 6, 2018 12:08 pm >> Subject: Re: [CMLHope] New Canary hatchings >> >> Hey have a great time. Well one thing that bothers me. Since did you become >> a male subject? Now your sporting the name of Jean? Hey I hope that your >> still growing hair in all of the right places. >> >> Marty >> >> On Wed, Jun 6, 2018 at 11:00 AM, 'Jeanie' via CMLHope >> wrote: >> Hi all >> I’m in The great smokie mountains with my 2 daughters. She rented a >> fantastic cabin with indoor and outdoor fireplaces. We have been having a >> ball. Headed to Chimney Rocks to picnic today. >> Tell more when I get home. >> Love you so very much >> Jean >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >> On Jun 3, 2018, at 4:28 PM, Joyce Mesnarich wrote: >> >> Marty, >> I love canaries. But I have to say that your new babies are ugly. Sorry >> about that harsh statement, but all baby birds are ugly. I would like to >> see another picture when they have feathers. Through my life I have had >> about 5 canaries but they always got sick and died. I think that is a >> wonderful hobby to raise birds (with the exception of having to see them as >> babies without feathers). I’m sure they give you many hours of >> entertainment. How many adult canaries do you have? Do you have other >> birds as well? >> When my Mom was in the nursing home they had a large bird cage and we would >> sit and watch them for long periods of time. >> Please know that I am kidding about your ugly babies. Don’t hold that >> against me. They will be adorable in a short time. >> >> Hope everyone is doing well and staying cool. Here in the midwest we have >> had the coolest April on record…..and the HOTTEST May on record. We missed >> spring it seems. >> >> Joyce in Southern Illinois >> >> >> On Jun 2, 2018, at 11:52 PM, Marty Gartenberg wrote: >> >> Here are two new pictures of my newest baby canary chicks. >> There are two nests and the second has four eggs but so far they haven't >> hatched as yet. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> <0602181651_Burst03.jpg><0602181651a_Burst01.jpg> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subsc
Re: [CMLHope] New Canary hatchings
Hi all I’m in The great smokie mountains with my 2 daughters. She rented a fantastic cabin with indoor and outdoor fireplaces. We have been having a ball. Headed to Chimney Rocks to picnic today. Tell more when I get home. Love you so very much Jean My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On Jun 3, 2018, at 4:28 PM, Joyce Mesnarich wrote: > > Marty, > I love canaries. But I have to say that your new babies are ugly. Sorry > about that harsh statement, but all baby birds are ugly. I would like to see > another picture when they have feathers. Through my life I have had about 5 > canaries but they always got sick and died. I think that is a wonderful > hobby to raise birds (with the exception of having to see them as babies > without feathers). I’m sure they give you many hours of entertainment. How > many adult canaries do you have? Do you have other birds as well? > When my Mom was in the nursing home they had a large bird cage and we would > sit and watch them for long periods of time. > Please know that I am kidding about your ugly babies. Don’t hold that > against me. They will be adorable in a short time. > > Hope everyone is doing well and staying cool. Here in the midwest we have > had the coolest April on record…..and the HOTTEST May on record. We missed > spring it seems. > > Joyce in Southern Illinois > > >> On Jun 2, 2018, at 11:52 PM, Marty Gartenberg wrote: >> >> Here are two new pictures of my newest baby canary chicks. >> There are two nests and the second has four eggs but so far they haven't >> hatched as yet. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> <0602181651_Burst03.jpg><0602181651a_Burst01.jpg> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
Sorry I resent that picture. Senior moment. Love you so very much. Jean My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 7, 2018, at 2:28 PM, Victoria Reiter wrote: > > Been a long time. Trust you are well and holding steady. > >> On Tue, Feb 27, 2018 at 5:15 AM, wrote: >> >> cmlhope@googlegroups.com Google Groups >> Topic digest >> View all topics >> The Daffodil principal - 1 Update >> The Daffodil principal >> Marty Gartenberg : Feb 26 09:20PM -0500 >> >> Just sit back and relax when your day isn't what it should be. It is >> somewhat of a long read but the pictures are unbelievable. >> >> Marty >> Back to top >> You received this digest because you're subscribed to updates for this >> group. You can change your settings on the group membership page. >> To unsubscribe from this group and stop receiving emails from it send an >> email to cmlhope+unsubscr...@googlegroups.com. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] My thought of the day
Hi Marty and all. Sometimes when I read your post I cannot believe that they are written by someone who has been through all you have. I never thought I would make it through cml because Gleevec through every side effect it had in me and then some. I started a diary to God and wrote in it daily. I hadn’t found a good list at that time and it seemed the list I was in was always telling me I needed aspecialist and downing the onc I had and they could have been right but it was not uplifting to me. I finally left the list. Then I found this one through Millie. Do you remember Millie? She wrote me daily uplifting post telling me about her life in PA and since I’m from FL I enjoyed them so much. She was so active and if she got to feeling too bad she would tell me would take care of it in a few minutes. She was on all kinds of pain pills and had to take them daily. She used her hands doing handiwork and then her muscles in her arms started to wear down. She worked so hard with a therapist even though she was hurting so bad. Even then she wrote her uplifting post. As you all know I have been in blast 3 times having to change tki’s but think I’ve finally found the one that did the job however with leukemia you never know when it will raise its ugly head. Most of you here know what I am talking about Anyway Marty and all keep writing. You never know when that one post will be the one that saves someone’s life. Love ya 💋💋 My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On Mar 17, 2018, at 8:31 PM, Marty Gartenberg wrote: > > Hi Holly, > > No, your not wearied but i am. Don't you think that after i wrote all of the > answers on that form that i am not? But that is me and this is how i live my > life. > > Well then again come to think of it, maybe you are also wearied because you > traded off your depression for CML but the end result is that your still here > with us. Who knows maybe we are all wearied in are own ways? > > It's our attitudes that counts, don't you think? > > 18's, dear Holly. > > Marty > >> On Sat, Mar 17, 2018 at 5:49 PM, 'Holly' via CMLHope >> wrote: >> Hi Marty, >> Great post from you! I felt like I suffered from depression in my 20’s(even >> was prescribed Prozac). I was diagnosed with CML at 36 and the depression >> was gone. Everyday is a gift and at 54 I’m quitting my meds. People think >> I’m weird because Cancer “cured” my depression but it put my life into >> perspective. >> Thanks, >> Holly >> >> Sent from my iPhone >> >>> On Mar 17, 2018, at 4:05 PM, Marty Gartenberg wrote: >>> >>> Before i start off with this. I went to my internist yesterday and while i >>> was sitting in the waiting room with my wife sitting beside me for my >>> regular two month check up, the receptionist calls me over to the window >>> and asks me to fill out a form. She says that it will be done once a year >>> as is the general practice of all the patients in his practice starting >>> from now on. >>> >>> Okay i took the form to be filled out and started reading it. There was a >>> list of eight things that needed to be checked off with either a yes or no. >>> As i continued to read it I noticed that all of these questions stated that >>> i feel like i was depressed in the last three months that i should check >>> off the yes. Another question was have i ever felt worthless in the last >>> three months, and still another asked me if i have ever felt like the world >>> is closing me in, and so forth for the remaining questions. >>> >>> You know what? I just couldn't resist as my wife looked on... I actually >>> crossed out both yes and no. At the end of this "quiz" i wrote a note on >>> the bottom of this form. In bold letters it said "ARE YOU KIDDING ME?" and >>> signed it on the bottom even though that form had asked me to print and >>> sign that form on the top portion which i did as well. As i went to the >>> counter and handed it in the receptionist closed the window behind me and >>> about ten seconds later i heard uncontrollable laughter from behind the >>> window. >>> >>> On my way out i had to check out and as i passed by them i told them that >>> the only time that i may have been depressed is when i broke my neck but >>> since i was in a coma i wouldn't know if i was depressed or not until i >>> woke up more then a week later. And i further mentioned, does this count >>> because this was more then three months but rather about three years ago >>> ago and i asked all of them again "does this count"? >>> >>> Then remained absolutely motionless and didn't say a word... >>> >>> So anyway i thought about it and decided to write my Thought of the day. >>> You must realize that when you smile the world smiles with you and for >>> those that do not smi
Re: [CMLHope]stroke
Hi Marty and all So good to hear from you but sorry To hear about your cancer on nose I think I told you about my sister having a small mole on her ankle that turned out to be cancer she had to have skin grafted on and it turned out to be a weekly visit to Moffitt. Yes sometimes we have to take something just to get some rest. Your courage inspires me to keep going. Remember Millie? No matter what she could always make me smile. How brave she was at the end. How are you Beth and all. Let’s hear from everyone. ❤️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 16, 2018, at 9:25 PM, Marty Gartenberg wrote: > > Jeanie, I almost forgot something. When you read Pslam 1188. Take a close > look at the numbers, what are the two numbers in the center? 18, and this is > what i learned many years ago. That is because i always use them every time i > end any message that i send out. I do most things for a reason. > > 18's > > Marty > >> On Wed, May 16, 2018 at 7:23 PM, Marty Gartenberg wrote: >> You know what Jeanie i also love you! and just about everyone here. How's >> that. >> >> I just don't know why some people and institutions have so many rules like >> not accepting you for having pain. I will now go out of my "polite mode" and >> call them AZZ Wipes, because let it happen to them and they wouldn't be as >> nice as i am. >> >> Okay back into my polite mode. Jeanie, i have had some very bad times with >> pain especially when i had to live in that plastic bubble and had the >> mucocytes in my entire digestive tract. >> From my lips to my rectum. It was by far the worst pain that i have ever >> experienced in my life. >> >> It got so bad that i would say to myself that i just wanted to die and they >> put me on a Morphine drip with a button in the inside of that bubble. I >> tried it and no relief so i kept pushing the button and it did no good until >> i fell asleep. Once i got up the pain didn't leave so eventually i became >> addicted to that Morphine and would start hallucinating and it kept on going >> until i was severely addicted. For the next few months i had to become UN >> addicted and that was the terrible part but i did it. >> >> I had to live 24-7 with that pain. But there were "good times coming up" One >> day my transplant coordinator first gowned up and put on booties, serial >> surgical mask, serial gown two sets of serial surgical gloves and before >> she came in she turned on the >> Laminar air flow chamber blower to high and when she got inside she made >> sure that i was always up wind of her so no bacteria would be transferred to >> me. That was how only certain people could enter that chamber. She sat down >> downwind of me and motioned that she wanted me to hear what she was going to >> tell me. >> however she couldn't touch me or any part of me and she whispered three >> words to me. "It's only Temporary" and i knew exactly what she said. Then >> she immediately left the chamber. >> >> Jeanie do you know why i am telling you this? Well that was one of the >> reasons that i became to know that my mind does control my body. Yes the >> pain was still there but i put it in the back of my mind. It took about a >> week to finally get my white cell count to approach that magic number to get >> to 1,000 and shortly when i was put on a solid food diet, i was finally able >> to get out of there after seven awful months. Now you know why! And that was >> the time that i garbed that clock with that second hand that always >> tormented me off the plastic wall and smashed it on the floor. I finally got >> even!!! >> >> Now on today. I had an operation yesterday using Mohs surgery on the bridge >> of my nose to get rid of a Basil Cell Carcinoma and that came out with >> little problems, so i had to go back to have the sutures put in and about >> two hours later came the pain after the Anastasia wore off, and the pain >> started, and it hurts now so i did what i did then and had my mind sort of >> control my body, but i think tonight i will take a pain reliving pill so >> that i can get some sleep tonight. I am simply getting too old for this. >> >> Listen i can't make up these stories because they are all true. >> >> Now, i really liked your story about how everyone in your family kissed >> each
Re: [CMLHope]stroke
Hi Marty First I want to tell you that I love you because you Lift my heart as do all of you on this list. Yes this was my fourth tki and probably My last chance as far as tki’s are Concerned. The Sprycel I had been On for four years was great as long As it lasted. Yes my onc told me to go right To the eye dr bit other than needing Far vision glasses they seem to Be okay. Moffitt is great but they Won’t take care of your pain. I thought that was weird. They have Two big pain centers there And wouldn’t take me. Told me to Go to a pain clinic. Had a wonderful day today. Was reading the Bible on kisses Today and it’s interesting. Our family kissed hello and goodby. Probably handed down from generations. Google kisses and Bible. Prayers to all and Holy kisses. ❤️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 13, 2018, at 1:05 PM, Marty Gartenberg wrote: > > > Marty Gartenberg > 12:55 PM (9 minutes ago) > > to cmlhope > Hi Jeanie, or should i say Grandma? > > I am quite filmier with Iclusig or ponatinib because i always research > anything to do with them or CML. And yes there are a lot of bad things that > could happen when taking it. However, if it does work for you or anyone else > then you should consider it a life saving therapy because your still alive, > and that is called 18's which i always end anything which i post because that > is the way i feel about all of you. I remember more then thirty years ago > that's three decades ago, it was done for me and i now do it for everyone. > > Also you should know that it is not recommended for newly diagnosed patients > first beginning therapy. One must get their eyes checked for what could be > problems later. > > It is very simple to go to an ophthalmologist and have him or her check it > out... Just do it! > > Remember no one is immune to death but it is yourself that helps to preserve > yourself. > With all that i have been through and most of you already know what i am > talking about, then all you can do is to go on and try to preserve yourself > as best as you can, and from what i am seeing then you are! And part of that > is to enjoy your life. > > Two of my favorite sayings are what Forrest Gump said in the movie... "Life > is just like a box of Chocolates, you never know what you get" As i read that > to me it meant that you don't know just what you got but since his mother > said that then since it came out a box of Chocolates then how could any of > them be bad? > > And the other saying was.. "That's enough about that" > > > Remember> 18's, > > Marty > > > >> On Sun, May 13, 2018 at 12:55 PM, Marty Gartenberg wrote: >> Hi Jeanie, or should i say Grandma? >> >> I am quite filmier with Iclusig or ponatinib because i always research >> anything to do with them or CML. And yes there are a lot of bad things that >> could happen when taking it. However, if it does work for you or anyone else >> then you should consider it a life saving therapy because your still alive, >> and that is called 18's which i always end anything which i post because >> that is the way i feel about all of you. I remember more then thirty years >> ago that's three decades ago, it was done for me and i now do it for >> everyone. >> >> Also you should know that it is not recommended for newly diagnosed patients >> first beginning therapy. One must get their eyes checked for what could be >> problems later. >> >> It is very simple to go to an ophthalmologist and have him or her check it >> out... Just do it! >> >> Remember no one is immune to death but it is yourself that helps to preserve >> yourself. >> With all that i have been through and most of you already know what i am >> talking about, then all you can do is to go on and try to preserve yourself >> as best as you can, and from what i am seeing then you are! And part of that >> is to enjoy your life. >> >> Two of my favorite sayings are what Forrest Gump said in the movie... "Life >> is just like a box of Chocolates, you never know what you get" As i read >> that to me it meant that you don't know just what you got but since his >> mother said that then since it came out a box of Chocolates then how could >> any of them be bad? >> >> And the other saying was.. "That's enough about that" >> >> >>
Re: [CMLHope]stroke
Hi Marty and all I am so glad you told me about what to expect from a stroke. As they run in our family I will know what to expect. My chemo was taken off the market at first because of heart attacks and blood clots. They then decide it would do more good than bad so they put it back on. I know it had me in remission in three months. Look up Ponatinib and you will see what I mean. Happy Mother’s Day to all the mothers on this group. I started my family when I was 18 and had 5 babies in 10 years. Those were the busiest years of my life and I enjoyed every minute of them. My youngest daughter and her daughter are picking me up for lunch. Have a great day everyone. ❤️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 11, 2018, at 6:22 PM, Marty Gartenberg wrote: > > Jeanie, > > Sorry to hear about your family having these such problems. If I could kick > that stroke man in where the sun don't shine i am sure that his butt will > never be the same. > > It all comes down to the doctor/s that take care of you. You may find that > the majority of them are good caring people with your best intentions in mind > then there are some that don't really care about you or me and i happen to > know thank GOD only a very few of them. > > While we were on our cruise and got back the buzz in the neighborhood was > that one of my neighbors went in for some back surgery and it was successful > for a few days and then died from a surgical sponge that was left inside of > her. > > You know what? the same thing also happened to me when I had what is called a > TURP procedure but it wasn't a sponge but one of the stents that was left in > me and blocked the output of my prostate causing the worst pain that i had in > a long time. I had to be rushed to my local hospital and they had to remove > that stent. Oh yes i almost forgot that the "doctor" had left on vacation and > no one was covering for him. > > Now there are some of the people of today that are very incapable of even > understanding what the meaning of the Hippocratic oath actually means. > > Don't get me wrong most of these doctors actually helped to save my life, > many times. And this is what i dedicate to them. > > Now there must have been a very good reason why someone would drill holes > into someones skull? Did you ever find out why he did that? It sounds on the > surface like Jeffrey Dahmer. I can not understand why surgical things are > left behind because every shred of anything is always counted and counted > again. > > I can tell you for a fact that there are so many good doctors in this world, > but you have to find them and that's what makes a very big difference. One > thing more: If it were not for the nurses that always took such good care of > me then i wouldn't be alive today. > > I give credit to all of the people that are so dedicated to all of us, but... > Well in my case, it's about about 98.6% My temperature, and the rest of the > 1.4% they can go to where the sun don't shine (one of my favorite sayings and > for good reason > > 18's, > > Marty > >> On Fri, May 11, 2018 at 9:40 AM, 'Jeanie' via CMLHope >> wrote: >> Hi Marty and all >> That is so interesting about your stroke. My mother had the same thing in >> her late 70s. She lived alone but her son lived up the street and somehow >> she managed to call him. His wife answered and told her hubby it was a prank >> call because my mother was just jabbering in the phone. He looked at her and >> said that’s mom. They called 911 and soon she was in the hospital. By the >> time I got there I learned the only thing she could do was sign her name. >> She had to relearn everything. I took her to speech class every week and she >> had a tablet she was learning to write again. It took her about a year of >> therapy. My grandmother also had a stroke the same way. So far my sister >> and I have been lucky. My older sister died from the stroke she had and I >> always thought the doctor didn’t treat her right. They drilled s hole in her >> head and I think they should have just let the brain heal. >> Yes Marty. Learning and doing something daily will help keep our brain >> going. But also if you are tired rest >> Beth so sorry about your botched surgery. That is why I have refused to go >> under the knife for my pain. I may have to eventually but right now pills >> and faith are keeping me going. >
Re: [CMLHope] Beth
I didn’t get pictures for some reason. Can you resend? Thanks Love you so very much Jean My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 10, 2018, at 11:52 PM, Marty Gartenberg wrote: > > Hi Beth, > > Believe me once you put your mind to it there isn't anything that you can't > do. All that you have to do is to try it. Yes at first you may fail but once > you get it into your head you will thieve. > It is a matter of will. > A story for you: Several years ago right after my kidney transplant my wife > and i went furniture shopping when i suddenly felt dizzy and clasped to the > floor, i tried to get up but i just managed to crawl on the floor. Shelly was > really trying to help me to a seat and the manager came over and told us that > he just called 911. Within less then ten minutes i was in an ambulance on my > way to the hospital. When one of the paramedics asked me how i was feeling i > didn't know what he was saying, it was like someone was mumbling to me. Once > they got me to the hospital they seemed to be moving there mouths but all > that i heard were these funny sounds coming out of their mouths. When i came > out of my coma i couldn't understand English. In my mind i was trying to ask > for a glass of water but didn't know how to say it > > It was very frustrating and i knew in my mind that i could talk but not > anything with English but i did remember that i was still able to speak and > understand five different foreign languages and the Morse Code because ever > since i was a young man i was a ham radio operator, but how could i try to > convey it to anyone. I was in bed and badly needed some water. So i started > yelling in different languages and tapping on the table with my fingers in > Morse Code but only my right hand would work, until one of the nurses > understood what i was asking for in Hungarian one of the languages that my > parents taught me when i was a young child. From that day on while i was > still in the hospital there was always a pitcher of cold water on my table. > > It took me over a year to teach myself how to learn English again, and i did > it all by myself. An usual thing happened to me when i went to see my > ophthalmologist because he was checking for any symptom that the stroke may > have caused to my eyes, but he found nothing thank GOD. I then mentioned to > him what had happened to me when i could not speak > English This is what he told me. He has another patient that also had a > similar stroke in the same region of the brain that i had mine in. He then > tells me that this man suddenly started speaking words with a heavy French > accent but not French but English with a heavy French accent. This lasted for > about almost two years and he is back to normal. Amazing what can happen. > > So this is another example of what your mind can do. All you have to do it to > try and help yourself. > > To my understanding the human brain uses about 10% of it's capacity, more or > less. If you know to the contrary please let me know. > > 18's, > > Marty > >> On Thu, May 10, 2018 at 9:59 PM, bkbarney via CMLHope >> wrote: >> Just beautiful Marty!!! I love the stained glass... >> >> thanks for sharing!! >> >> >> >> -Original Message- >> From: Marty Gartenberg >> To: cmlhope >> Sent: Wed, May 9, 2018 8:40 am >> Subject: Re: [CMLHope] Beth >> >> >> >> On Wed, May 9, 2018 at 9:38 AM, Marty Gartenberg wrote: >> Beth, Jeanie your learning from eachother and i am also learning from the >> both of you as you are learning from me. This is what it is. I always say >> that life is a learning process and well, it is. You must learn something >> new every day of your life. >> >> Now i would like to send you some pictures that i took of some of my >> projects that me and my wife did together mostly when i wasn't feeling very >> well, but i still did it. Shelly did the cutting for the most part and i did >> the grinding and fitting and the soldering, sometimes switching off but we >> did it together. And it made both of us feel that much better. >> >> Everything that you may see in these three pictures are things that we >> personally accomplished by ourselves including the crown moldings as well as >> the moldings on the ceiling. Both of us never said that maybe we should >> stop, but sat down and rested for a while and had
Re: [CMLHope]stroke
> wrote: >> Just beautiful Marty!!! I love the stained glass... >> >> thanks for sharing!! >> >> >> >> -Original Message- >> From: Marty Gartenberg >> To: cmlhope >> Sent: Wed, May 9, 2018 8:40 am >> Subject: Re: [CMLHope] Beth >> >> >> >> On Wed, May 9, 2018 at 9:38 AM, Marty Gartenberg wrote: >> Beth, Jeanie your learning from eachother and i am also learning from the >> both of you as you are learning from me. This is what it is. I always say >> that life is a learning process and well, it is. You must learn something >> new every day of your life. >> >> Now i would like to send you some pictures that i took of some of my >> projects that me and my wife did together mostly when i wasn't feeling very >> well, but i still did it. Shelly did the cutting for the most part and i did >> the grinding and fitting and the soldering, sometimes switching off but we >> did it together. And it made both of us feel that much better. >> >> Everything that you may see in these three pictures are things that we >> personally accomplished by ourselves including the crown moldings as well as >> the moldings on the ceiling. Both of us never said that maybe we should >> stop, but sat down and rested for a while and had lunch or watched TV and >> then got back to "business". Sure it sometimes taxed me out but i still >> continued on for weeks at a time or even months. >> >> There is a point to all of this, just get your priorities together and there >> is nothing that you can't accomplish. >> >> 18's, >> >> Marty >> >> On Wed, May 9, 2018 at 6:40 AM, 'Jeanie' via CMLHope >> wrote: >> Hi Beth and all >> I know exactly what you mean Beth. Sometimes I just want to go back to bed >> and do nothing. >> I have found however if you make a plan of what you want to accomplish that >> day it helps a lot. Even write it down. Start on it even if you don’t feel >> like finishing it. >> One time I made a plan to read the Bible again all the way through. I have >> read it before but this was just another plan. So each day I read a little >> and soon I had accomplished my plan. Well not soon but I did it. >> Getting through Job is difficult but well worth it especially since he >> fought disease daily. He had boils all over his body. Can you imagine! >> I love the part where it got to Leviathan. My granddaughter even drew me a >> picture of him. >> Now today is walking and gardening as long as I feel like it. If I get tired >> or weary I just rest. >> I remember when I was in the hospital and they wheeled that big old blood >> cleansing machine in my room I was in for it. They would hook it up and I >> had to my still for about 4 hours while my blood ran through this machine. I >> thought it would never be over. It never did any good. The next day my >> platelets and whites were right back up. I learned from Moffitt they don’t >> even do that. They just give you the pills and hope for the best. >> This last chemo Ponatinib has been the best chemo yet with the least side >> effects except for hair falling out. >> What do you take? I developed mutants to all the other chemo >> Just each day at a time and make a plan. Prayers. >> You have helped me a lot Beth. >> ❤️ >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >> On May 8, 2018, at 11:40 PM, Marty Gartenberg wrote: >> >> Just look at what your writing... >> Each and every day is another day so keep on blessing your medication >> because without it then it wouldn't be another day. Don't despair because >> you may feel like life is trying to give you a difficult time but then there >> are other days that that will restore your faith. >> >> I have been there and what i found out is that i am still here and by the >> way so are you. >> >> I have always told everyone that Leukemia is a powerful disease and so it is >> BUT so is your mind... Use it! >> >> 18's, >> >> Marty >> >> PS why do you think that all of my posts ends up with 18's? >> >> Because it means LIFE. >> >> On Tue, May 8, 20
Re: [CMLHope] Beth
Hi Beth and all I know exactly what you mean Beth. Sometimes I just want to go back to bed and do nothing. I have found however if you make a plan of what you want to accomplish that day it helps a lot. Even write it down. Start on it even if you don’t feel like finishing it. One time I made a plan to read the Bible again all the way through. I have read it before but this was just another plan. So each day I read a little and soon I had accomplished my plan. Well not soon but I did it. Getting through Job is difficult but well worth it especially since he fought disease daily. He had boils all over his body. Can you imagine! I love the part where it got to Leviathan. My granddaughter even drew me a picture of him. Now today is walking and gardening as long as I feel like it. If I get tired or weary I just rest. I remember when I was in the hospital and they wheeled that big old blood cleansing machine in my room I was in for it. They would hook it up and I had to my still for about 4 hours while my blood ran through this machine. I thought it would never be over. It never did any good. The next day my platelets and whites were right back up. I learned from Moffitt they don’t even do that. They just give you the pills and hope for the best. This last chemo Ponatinib has been the best chemo yet with the least side effects except for hair falling out. What do you take? I developed mutants to all the other chemo Just each day at a time and make a plan. Prayers. You have helped me a lot Beth. ❤️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 8, 2018, at 11:40 PM, Marty Gartenberg wrote: > > Just look at what your writing... > Each and every day is another day so keep on blessing your medication because > without it then it wouldn't be another day. Don't despair because you may > feel like life is trying to give you a difficult time but then there are > other days that that will restore your faith. > > I have been there and what i found out is that i am still here and by the way > so are you. > > I have always told everyone that Leukemia is a powerful disease and so it is > BUT so is your mind... Use it! > > 18's, > > Marty > > PS why do you think that all of my posts ends up with 18's? > > Because it means LIFE. > >> On Tue, May 8, 2018 at 10:52 PM, bkbarney via CMLHope >> wrote: >> Dear Marty, >> >> >> I sing praises every dayfor my life and for sprycel. I even bless my >> medication in my hand before I take it each night.. my little ritual. the >> side effects of the medication coupled with the two botched surgeries have >> left me with a great deal to navigate daily. I know I am blessed. But today >> I am just very very very weary. Tomorrow is another day... >> >> Hope everyone is well and enjoying spring...one day at a time...breath in >> the flowers and enjoy!!! >> >> Love to each and every one of you...and thanks for reading.. >> >> 18's B >> >> >> >> >> -Original Message- >> From: 'Jeanie' via CMLHope >> To: cmlhope >> Sent: Tue, May 8, 2018 2:21 pm >> Subject: Re: [CMLHope] Beth >> >> Hi Beth and great news. Are you any pain? Marty I wanted to asked you if >> you they gave you any meds for pain? Did you ever have to take anything for >> leukemia ever again? Can you walk well? >> My daughter bought me a wheel chair just in case I get to tired of walking. >> Do you walk well Beth? >> So happy you are in remission. I’m in remission too but I know from >> experience how leukemia can test it’s ugly head. >> Prayer and pills is my motto and it’s working. >> Good luck >> Jean >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >> On May 8, 2018, at 8:40 AM, Marty Gartenberg wrote: >> >> Beth, Beth, Beth, >> >> What can i say, As you mentioned you are now UN-detectable, but what you >> should have written should have more piazzas to it. Something like shouting >> it at the top of your voice on the top of a high mountain with your hands >> and arms reaching upward and stretched and extended out to HIM. >> >> Well Beth som
Re: [CMLHope] Beth
Hi Beth and great news. Are you any pain? Marty I wanted to asked you if you they gave you any meds for pain? Did you ever have to take anything for leukemia ever again? Can you walk well? My daughter bought me a wheel chair just in case I get to tired of walking. Do you walk well Beth? So happy you are in remission. I’m in remission too but I know from experience how leukemia can test it’s ugly head. Prayer and pills is my motto and it’s working. Good luck Jean My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 8, 2018, at 8:40 AM, Marty Gartenberg wrote: > > Beth, Beth, Beth, > > What can i say, As you mentioned you are now UN-detectable, but what you > should have written should have more piazzas to it. Something like shouting > it at the top of your voice on the top of a high mountain with your hands and > arms reaching upward and stretched and extended out to HIM. > > Well Beth sometimes i get carried away but please scroll down. > > > > > > > > BUT NOT THIS TIME🌷 > > Do you know why? It took place more then 30 years ago. Once my bone marrow > transplant was finished after being confined inside of that bubble that i was > in about a week before i was to be finally discharged i still had to wait > that one week and i was fixated on the clock within that bubble with that > second hand ticking away. Tick Tock, tick tock, tick tock I > waited for the seconds to tick away the whole day and night until i finally > fell asleep, and then i was woken up again and it continued on for most of > that never ending week. I was in there for seven months and let me tell you > it was more then horrible but i had to do it until the final seconds that i > was able to finally to leave there, or so i thought only to find myself back > in there two weeks later because of a severe infection from my in chest > Hickman catheter that put me back in there for another two weeks. > > Was it all over? Not until i was about to leave that plastic bubble and at > that time i raised my hands fully extended and ripped that clock right off > the wall and since i finally had my shoes on i STOMPED the life of that clock > to death. > > However, on that original day that i was discharged from the hospital it was > raining like cats and dogs coming out of the sky and i just stood there in > the street and let the rain populate on my face and then i remember raising > my hands and arms up toward HIM and it was finally over with. > > Oh yes i am not kidding, about a week later i received a bill in the mail for > $25 for the clock that i put out of my misery and it was marked PAID. And > there was a reason for that. To be continued. > > There is a Moral to this story... Beth all that you need to do it put your > hands and arms up toward the sky and HE will do the rest. > > 18's > > Marty > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope]
Hi Joyce So glad to hear from you and to know your hubby is good. Can he walk? If he can walk some twice a day. That will help with the weight. I have been trying to garden some. Can’t hold out to long. Moffitt visit was kk. They turned me over to a nurse practitioner. Is that natural if you lose your doctor. Maxine Extraman is my dr but I didn’t see her. I’m not to happy about that. Do any of you see practitioners ? Oh well, not to much they can do at this point. My blood is good. My daughter rented a beautiful mountain cabin for June. Grand Smokies Mountains. Can’t wait. We took our kids to the mountains every summer when they were growing up. It is beautiful. Pray that my health stays good enough to go. Thanks. Love to you all. Still out there Norm? Let’s hear from all. Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On Apr 26, 2018, at 10:54 PM, Joyce Mesnarich wrote: > > Amazingly entertaining. Thank you Marty. > I haven’t posted for awhile. My hubby just had a visit with Dr Talpaz in Ann > Arbor and things are going well. Dr Talpaz continues to “encourage” him to > lose weight. He says CML will not kill him but his weight could. I do what > I can. > I continue to improve after my surgery. We are eager to welcome spring but > it won’t make its appearance. Hopefully some day soon. > God bless and keep you all. > Joyce in Southern Illinois. > > >> On Apr 26, 2018, at 9:26 AM, 'Jeanie' via CMLHope >> wrote: >> >> Wonderful Marty >> Hope you are good. >> >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >>> On Mar 18, 2018, at 12:09 AM, Marty Gartenberg wrote: >>> >>> I know that some were not able to open it due to some technical problems >>> but here is something else. It is called the magical marble music machine. >>> It has 2,000 marbles in it, and it is all hand made. Enjoy this it is very >>> unusual. But so am i.😁 >>> >>> https://www.youtube.com/watch?v=IvUU8joBb1Q >>> >>> Marty >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more op
Re: [CMLHope]
Wonderful Marty Hope you are good. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On Mar 18, 2018, at 12:09 AM, Marty Gartenberg wrote: > > I know that some were not able to open it due to some technical problems but > here is something else. It is called the magical marble music machine. It has > 2,000 marbles in it, and it is all hand made. Enjoy this it is very unusual. > But so am i.😁 > > https://www.youtube.com/watch?v=IvUU8joBb1Q > > Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Beth muscle issues
Thank you so much and sorry for waiting so long to answer. As you know I have been suffering with pain under my right rib for years now. In 2009 I was switched from gleevec to tasing a. The pain under my rib increased and my onc At that time gave me tramadol. It seemed to help for a while. The. I went out of remission and had to be hospitalized while they cleansed my blood. I kept asking my onc to put me on spyrcel but he wasn’t familiar with the drug and kept refusing. A nurse that had worked at Moffitt finally convinced him to do so. About this time I decided I needed to go to Moffitt. So after getting my sprycel I got an appointment with Dr Balducci at Moffitt. Sprycel put me in remission for 4 years and then developed a mutant. The newest thing out was Ponatinib and he put me in that. It put me back in remission in 3 Months. But on this drug my right side pain became unbearable and my onc put me on oxycodone. I had every test available if they ant find cause of the pain so my only choice is to treat the pain. Then the pain in my right pinky started and went to my elbow waking me up at night in terrible pain. Sometimes burning in my feet and pain also. Dr Balducci has retired and I now have his colleague Dr Martine Extermann but only met with her once. I am just trying to work through this pain and keep active when I can. Faith and pills is my motto. I will be 80 soon. My daughter is giving me a pool party with all family. 5 children 14 grandchildren and 15 great grandchildren. I am so blessed. I lost my hubby of 42 years in 1998 from diabetes and heart problems. Thanks for uplifting me and keep up the good work. I pray for your body to heal. Blessing My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Mar 23, 2018, at 12:45 AM, bkbarney via CMLHope > wrote: > > Dear Jeanie, > > So good to hear from you. I know you struggle with lots of different > things...and yet carry on...and stay strong with your faith and friends > etc...80 years youngsounds good to me.. I am in my mid fifties so need to > work, so praying I will be able to do so for a long time to come. My answer > to your question is a bit complicated. Spraining your ankle, that REALLY can > hurt... That type of pain my docs would recommend arnica spray or/ and some > advil or similar anti inflammatory..your bones and muscles are two different > things..so if both are waking you up at night...I would ask the doc about > that..does massage help??? is it like a cramp or a deep ache? Ponatinib is > known for some specific side effects...but it could be arthritis > etcremember to stay really hydrated as that can cause real muscle > cramping at night... > > My situation is that the TKI's created a pretty immediate elevation in my CPK > levels..a test that measures muscle breakdown...so the sprycel does a great > job for me but also inhibits other processes in my particular case, ( as we > are all different and the drugs seem to affect us all quite differently) so > my muscles have a ahrd time repairing and when I am active for a period of > time, my body starts to hurt all over..muscularly, I can start to feel > weakened and in a lot of pain. Good rest, some aspirin or upon rarer > occasion, tramadol seems to help, so does therapeutic massage when I can > afford it as well as being in the warm water pool...very soothing and > relaxing to the muscleshate the chlorine, but love the feeling!! > > My love and 18's to all.spring is here,, the weather just needs to wake > up to that fact! > > Write soon, > > Beth > > -Original Message- > From: 'Jeanie' via CMLHope > To: cmlhope > Sent: Sun, Mar 11, 2018 5:52 am > Subject: [CMLHope] Beth muscle issues > > > Hi sweet Beth > So glad to hear from you and get our uplifts we so badly need. > I sprained my muscle in the top part of my right leg and it really hurt. > Then my bones a muscles started to wake me up at night. I get up and massage > them. I was wondering if you are under a doctors care for the muscles and > what they told you to do for pain and all. > I take Ponatinib and have for 3 years this Jan. > I limped for about a week but it's gradually getting better I don't think I > could work but I am 80 years young in May. > Looking forward to your advice. > I still walk and do some house work and gardening. > Love you so very much. > Jeanie > My Motto: > Faith and Pills > With Love > \uD83D\uDC2018's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started P
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
Hi my little sweetheart Marty. You are such an uplift to me. Surviving cml at a time when the odds were against you and then fight for your life with those kidneys. I know a church member who tripped on a rug in a favorite restaurant and broke his neck and he died. So God wants you around to help the way you do. You are a light to anyone who knows you. What are you able to do physically? I don't care much for tv so I read a lot, walk a little and garden a little. My mother broke her leg when she was my age and never walked again. Gotta be careful walking. So easy to trip and fall. Keep us all in your prayers. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Mar 10, 2018, at 5:16 PM, Marty Gartenberg wrote: > > Hi Jeanie, > > Wow 17 years! Good for you as well. My congratulates to you. Hey are you > catching up with me? 30 years for me. > Time fly's by when your riding on the Marquis Express. Okay now lets all sing > along all of you people out there...`🙎🙆💁🙋🙇🙌🚶🏃💃👫👬👭💏💑👪 > > 18's, > > Marty > >> On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope >> wrote: >> I am celebrating 17 years also. I'm on my 4 tki: Ponatinib. Been a rough >> ride. How bout you! >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extramine >> 0 CBL. ABL >> >>> On Mar 10, 2018, at 2:10 PM, Kristin Lieberman >>> wrote: >>> >>> I’m here. Celebrating my 17th year as a CML survivor! >>> >>> Kristin >>> >>> Sent from my iPhone >>> >>>> On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote: >>>> >>>> >>>> cmlhope@googlegroups.com Google Groups >>>> Topic digest >>>> View all topics >>>> Hello - 1 Update >>>> Hello >>>> Marty Gartenberg : Mar 09 04:12PM -0500 >>>> >>>> Hello, hello... Is anyone out there? >>>> >>>> 18's, >>>> >>>> Marty >>>> Back to top >>>> You received this digest because you're subscribed to updates for this >>>> group. You can change your settings on the group membership page. >>>> To unsubscribe from this group and stop receiving emails from it send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are
[CMLHope] So good to hear from you Susan
Hi Susan It's been so good hearing from all of you. I would ask the group if we could hear a word from each of you to let us know where you are in your fight. I would also like to bless all the ones who fought hard but are resting in Heaven now. Norm, are you there? Let us know. I guess John is gone from us. He was on Ponatinib but not doing well on it. Blessings My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Mar 10, 2018, at 5:18 PM, 'Susan Zimmerman' via CMLHope > wrote: > > For me it's been 13 years. > 18's, > > Susan F. Zimmerman > > > On Saturday, March 10, 2018 Marty Gartenberg wrote: > > Hi Jeanie, > > Wow 17 years! Good for you as well. My congratulates to you. Hey are you > catching up with me? 30 years for me. > Time fly's by when your riding on the Marquis Express. Okay now lets all sing > along all of you people out > there...`\uD83D\uDE4E\uD83D\uDE46\uD83D\uDC81\uD83D\uDE4B\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A > > 18's, > > Marty > >> On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope >> wrote: >> I am celebrating 17 years also. I'm on my 4 tki: Ponatinib. Been a rough >> ride. How bout you! >> >> My Motto: >> Faith and Pills >> With Love >> \uD83D\uDC2018's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extramine >> 0 CBL. ABL >> >> On Mar 10, 2018, at 2:10 PM, Kristin Lieberman >> wrote: >> >> I’m here. Celebrating my 17th year as a CML survivor! >> >> Kristin >> >> Sent from my iPhone >> >> On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote: >> >> cmlhope@googlegroups.com Google Groups >> Topic digest >> View all topics >> Hello - 1 Update >> Hello >> Marty Gartenberg : Mar 09 04:12PM -0500 >> >> Hello, hello... Is anyone out there? >> >> 18's, >> >> Marty >> Back to top >> You received this digest because you're subscribed to updates for this >> group. You can change your settings on the group membership page. >> To unsubscribe from this group and stop receiving emails from it send an >> email to cmlhope+unsubscr...@googlegroups.com. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-
[CMLHope] Beth muscle issues
Hi sweet Beth So glad to hear from you and get our uplifts we so badly need. I sprained my muscle in the top part of my right leg and it really hurt. Then my bones a muscles started to wake me up at night. I get up and massage them. I was wondering if you are under a doctors care for the muscles and what they told you to do for pain and all. I take Ponatinib and have for 3 years this Jan. I limped for about a week but it's gradually getting better I don't think I could work but I am 80 years young in May. Looking forward to your advice. I still walk and do some house work and gardening. Love you so very much. Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Mar 10, 2018, at 8:41 PM, bkbarney via CMLHope > wrote: > > Dear Marty, Jeanie, Greenie, Susan, SuzieQ, Richard, Kristen and everyone > else who am forgetting because of my chemo brain. I am here, think about > everyone often...had a bad flu season...really starting to feel better only > now....Wow17 years for both Kristen and Jeanie!! Congrats...I just hit 8 > years on February 12thTime marches on..so glad to be here with all of > you... > > My latest blood work came back undetectable...so I was very happy to see > thatstill navigating the severe muscle fatigue, deterioration issues, and > some heart sprycel related stuff..but I am truly blessed to be here...and to > still be able to work > > love to all of you out there.the glass is half full in Chicago! > > 18's > Beth > > > -Original Message- > From: 'Susan Zimmerman' via CMLHope > To: wa2yyx ; cmlhope > Sent: Sat, Mar 10, 2018 4:18 pm > Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 > topic > > For me it's been 13 years. > 18's, > Susan F. Zimmerman > On Saturday, March 10, 2018 Marty Gartenberg wrote: > Hi Jeanie, > > Wow 17 years! Good for you as well. My congratulates to you. Hey are you > catching up with me? 30 years for me. > Time fly's by when your riding on the Marquis Express. Okay now lets all sing > along all of you people out > there...`\uD83D\uDE4E\uD83D\uDE46\uD83D\uDC81\uD83D\uDE4B\uD83D\uDE47\uD83D\uDE4C\uD83D\uDEB6\uD83C\uDFC3\uD83D\uDC83\uD83D\uDC6B\uD83D\uDC6C\uD83D\uDC6D\uD83D\uDC8F\uD83D\uDC91\uD83D\uDC6A > > 18's, > > Marty > > On Sat, Mar 10, 2018 at 5:00 PM, 'Jeanie' via CMLHope > wrote: > I am celebrating 17 years also. I'm on my 4 tki: Ponatinib. Been a rough > ride. How bout you! > > My Motto: > Faith and Pills > With Love > \uD83D\uDC2018's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extramine > 0 CBL. ABL > > On Mar 10, 2018, at 2:10 PM, Kristin Lieberman > wrote: > > I’m here. Celebrating my 17th year as a CML survivor! > > Kristin > > Sent from my iPhone > > On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote: > > cmlhope@googlegroups.com Google Groups > Topic digest > View all topics > Hello - 1 Update > Hello > Marty Gartenberg : Mar 09 04:12PM -0500 > > Hello, hello... Is anyone out there? > > 18's, > > Marty > Back to top > You received this digest because you're subscribed to updates for this group. > You can change your settings on the group membership page. > To unsubscribe from this group and stop receiving emails from it send an > email to cmlhope+unsubscr...@googlegroups.com. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLH
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic
I am celebrating 17 years also. I'm on my 4 tki: Ponatinib. Been a rough ride. How bout you! My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Mar 10, 2018, at 2:10 PM, Kristin Lieberman > wrote: > > I’m here. Celebrating my 17th year as a CML survivor! > > Kristin > > Sent from my iPhone > >> On Mar 10, 2018, at 2:11 AM, cmlhope@googlegroups.com wrote: >> >> >> cmlhope@googlegroups.com Google Groups >> Topic digest >> View all topics >> Hello - 1 Update >> Hello >> Marty Gartenberg : Mar 09 04:12PM -0500 >> >> Hello, hello... Is anyone out there? >> >> 18's, >> >> Marty >> Back to top >> You received this digest because you're subscribed to updates for this >> group. You can change your settings on the group membership page. >> To unsubscribe from this group and stop receiving emails from it send an >> email to cmlhope+unsubscr...@googlegroups.com. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Hello
Me too Eating my oatmeal right now. Love you so very much. Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Mar 9, 2018, at 4:12 PM, Marty Gartenberg wrote: > > Hello, hello... Is anyone out there? > > 18's, > > Marty > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] My annual appreciation day
Oh no Joyce, I am so sorry. Had you been hurting? I have been in pain now for a long time and many years later they have found nothing. I think I'm scared because many years ago my brother who was in his late 50s went in for exploratory surgery and they found a tumors cancer. He died not long after. When I went in the hospital in May they still did test but found nothing. The nurse would come in the evening and give me a shot in tummy. She said it was to keep blood from clotting. And you got clots anyway. That was a lot of surgery for one time. You sure are strong. So happy for you. Do you go to a cancer center? I've been thinking about changing since my dr retired. It's hard to change when you've been with someone so long. They gave me morphine in my Iv tube every 4 hours. It helped some but nothing has really taken this pain away. When they took my gall bladder out years ago the dr said my appendix was setting right on top of everything so he took it out too. All this happened when I was in late 40s. My dad has his out too at that age. I think it's amazing how our bodies have some of the same traits as our parents. My mom died at 87 but I don't think I'll make it as she never had any deadly diseases. More later My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Feb 18, 2018, at 10:38 PM, bkbarney via CMLHope > wrote: > > Dear Joyce, Oh my gosh!!! You have been through so much!! You are amazing! . > I am so glad you came through your surgery and complications and get to be > back home with your hubbie...glad that your daughters were able to help out > as well!! Glad you are back here...take good care and keep on healing > 18s and care, > Beth > > > -Original Message- > From: Joyce Mesnarich > To: cmlhope > Sent: Fri, Feb 16, 2018 11:09 pm > Subject: Re: [CMLHope] My annual appreciation day > > Beautiful slideshow, Marty. Thank you. > Have not been on this site for 3 weeks. Went to ER with gallbladder attack > and they did a CAT scan and noticed that my old hiatal hernia that has been > bugging me for some 20 years had twisted, and evidently that is a very bad > thing, because they put me in an ambulance and sent me from our local > hospital to BarnesJewish in St Louis and said I would have emergency surgery > as soon as I got there. That didn’t happen but I was in the hospital for 3 > days as they did test upon test. I went home for 3 days and had surgery on > Monday the next week. Had gallbladder removed and hiatal hernia was repaired. > I was doing very well and planned to go home on Wednesday when my oxygen > levels went down. Long story short: I had blood clots in both lungs and one > in my right calf. Was in hospital for 8 days and came home using belly shots > of Lovenox to bridge to warfarin. Am doing better and gaining strength. Had > to eat pureed food for 2 weeks. Now on soft diet. It was a trying time > because I am the caregiver for my husband who has CML and is also legally > blind. But we pulled through with the help of our two daughters. I’ll have to > get caught up on what went on while I was out of commission. > Joyce in Southern Illinois > > > > On Feb 16, 2018, at 10:36 AM, Marty Gartenberg wrote: > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com
[CMLHope] Hey there
Hey Joyce Wow! You have really been through the mill. So happy you made it through. You and I are about the same age and that it the reason I never pushed for surgery. Sounds like you are well on the way to recovery. I would have it done if I could get up the nerve. I have been in the hospital but no doctor ever pushed for surgery. We are warriors and MArty is our faithful leader so let's just keep fighting a good battle. Do you have to go to the dr much Marty? I go every three months to Moffitt and a couple month to my PCd. I pray Joyce that all will be alright. Are you bed ridden ? Keep fighting. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Feb 17, 2018, at 8:13 AM, Marty Gartenberg wrote: > > You see Joyce that slideshow actually did it's thing for you, not to mention > about why i always add my 18's. You and your husband have gone through a lot, > but both of you keep on bouncing back. And i can honestly vouch for that. > > When your feeling lousy why don't you watch that slide show again? > > You know that everyone also has their own set of problems but it is in the > way that they handle them. > > Glad that your both feeling better. This is for you... 🌷 > > 18's, > > Marty > >> On Sat, Feb 17, 2018 at 12:09 AM, Joyce Mesnarich wrote: >> Beautiful slideshow, Marty. Thank you. >> Have not been on this site for 3 weeks. Went to ER with gallbladder attack >> and they did a CAT scan and noticed that my old hiatal hernia that has been >> bugging me for some 20 years had twisted, and evidently that is a very bad >> thing, because they put me in an ambulance and sent me from our local >> hospital to BarnesJewish in St Louis and said I would have emergency surgery >> as soon as I got there. That didn’t happen but I was in the hospital for 3 >> days as they did test upon test. I went home for 3 days and had surgery on >> Monday the next week. Had gallbladder removed and hiatal hernia was >> repaired. I was doing very well and planned to go home on Wednesday when my >> oxygen levels went down. Long story short: I had blood clots in both lungs >> and one in my right calf. Was in hospital for 8 days and came home using >> belly shots of Lovenox to bridge to warfarin. Am doing better and gaining >> strength. Had to eat pureed food for 2 weeks. Now on soft diet. It was a >> trying time because I am the caregiver for my husband who has CML and is >> also legally blind. But we pulled through with the help of our two >> daughters. I’ll have to get caught up on what went on while I was out of >> commission. >> Joyce in Southern Illinois >> >> >> > On Feb 16, 2018, at 10:36 AM, Marty Gartenberg wrote: >> > >> > >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr
[CMLHope] Re: Joyce blood clots?
His could you tell you had blood clots?. Lots in legs. I bruise easily my Ponatinib has blood clots as side effects. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Feb 18, 2018, at 12:32 PM, Jeanie wrote: > > > So sorry to hear about all your problems. Did you get good care? I have > umbelical hernia. Been afraid to get it fixed. Anyone had this fixed? > Mine happened due to umbelical surgery twice from gallbladder and getting > tubes tied. Just weakened the area. I wish I had had it fixed when I was > younger. > I live in the outskirts of Orlando. It's close to my daughters. > Does anyone have any idea which type of dr I should see ? > I don't drink. Smoke. Overeat,and live a healthy lifestyle. Pray for all > Love you so very much > Jeanie > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extramine > 0 CBL. ABL > >> On Feb 17, 2018, at 12:09 AM, Joyce Mesnarich wrote: >> >> Beautiful slideshow, Marty. Thank you. >> Have not been on this site for 3 weeks. Went to ER with gallbladder attack >> and they did a CAT scan and noticed that my old hiatal hernia that has been >> bugging me for some 20 years had twisted, and evidently that is a very bad >> thing, because they put me in an ambulance and sent me from our local >> hospital to BarnesJewish in St Louis and said I would have emergency surgery >> as soon as I got there. That didn’t happen but I was in the hospital for 3 >> days as they did test upon test. I went home for 3 days and had surgery on >> Monday the next week. Had gallbladder removed and hiatal hernia was >> repaired. I was doing very well and planned to go home on Wednesday when my >> oxygen levels went down. Long story short: I had blood clots in both lungs >> and one in my right calf. Was in hospital for 8 days and came home using >> belly shots of Lovenox to bridge to warfarin. Am doing better and gaining >> strength. Had to eat pureed food for 2 weeks. Now on soft diet. It was a >> trying time because I am the caregiver for my husband who has CML and is >> also legally blind. But we pulled through with the help of our two >> daughters. I’ll have to get caught up on what went on while I was out of >> commission. >>Joyce in Southern Illinois >> >> >>> On Feb 16, 2018, at 10:36 AM, Marty Gartenberg wrote: >>> >>> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Joyce
So sorry to hear about all your problems. Did you get good care? I have umbelical hernia. Been afraid to get it fixed. Anyone had this fixed? Mine happened due to umbelical surgery twice from gallbladder and getting tubes tied. Just weakened the area. I wish I had had it fixed when I was younger. I live in the outskirts of Orlando. It's close to my daughters. Does anyone have any idea which type of dr I should see ? I don't drink. Smoke. Overeat,and live a healthy lifestyle. Pray for all Love you so very much Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Feb 17, 2018, at 12:09 AM, Joyce Mesnarich wrote: > > Beautiful slideshow, Marty. Thank you. > Have not been on this site for 3 weeks. Went to ER with gallbladder attack > and they did a CAT scan and noticed that my old hiatal hernia that has been > bugging me for some 20 years had twisted, and evidently that is a very bad > thing, because they put me in an ambulance and sent me from our local > hospital to BarnesJewish in St Louis and said I would have emergency surgery > as soon as I got there. That didn’t happen but I was in the hospital for 3 > days as they did test upon test. I went home for 3 days and had surgery on > Monday the next week. Had gallbladder removed and hiatal hernia was > repaired. I was doing very well and planned to go home on Wednesday when my > oxygen levels went down. Long story short: I had blood clots in both lungs > and one in my right calf. Was in hospital for 8 days and came home using > belly shots of Lovenox to bridge to warfarin. Am doing better and gaining > strength. Had to eat pureed food for 2 weeks. Now on soft diet. It was a > trying time because I am the caregiver for my husband who has CML and is also > legally blind. But we pulled through with the help of our two daughters. > I’ll have to get caught up on what went on while I was out of commission. >Joyce in Southern Illinois > > >> On Feb 16, 2018, at 10:36 AM, Marty Gartenberg wrote: >> >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Joyce and all
Hi all I was wondering about gout as my father and brother had it but this is the first time I've had this. My fathers big toe was swollen and was hurting so bad. Have any of you tried Voltaren cream? It helps a lot but you need a prescription. I was drinking a coke a day and thought this might be it but quit and still hurt. Could be the Ponatinib. I never had it with the other tki's. Keep praying my warrior group. Thanks My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Feb 18, 2018, at 9:46 AM, Marty Gartenberg wrote: > > Hi Jeanie, > > Sorry to hear about the pain your having. Hmm it sounds to me like a case of > gout but i could be wrong, for instance the gout usually starts in the lower > feet particularly in the big toe but can also manifest it self in any joint > of your body. It did for me and i suffered all kinds of terrible pain. > > That was right after my diagnoses when i was put on Allopurinal and Hydrea. > About two weeks later my gout was gone and so was my very white cell count. > So what this meant is it usually takes about two weeks to distinguishes the > gout. It's to bad however that my white blood count was going up until i got > my BMT, but at least it "cured the gout". > > From then on no more gout but every once in a while it's ugly head "craps"😖 > up on me if i eat anything containing purines like red meat, mushrooms etc > which is my favorite especially smothered in mushrooms. Now there is more... > Once i received my BMT and my Kidney transplant i had to be put on Prednisone > which will eliminate with in 30 minutes or so even when you have an active > attack. > > I have been taking Allopurinal for over 30 years and Prednisone for the last > 7 years. Yes i have no gout or very little gout for all of there years, > however there is both good and bad... I have already described the good but > the bad is that it increased my blood sugar level... > > Jeanie, i am not a doctor but to answer your question, yes i would go see a > doctor because it is you that should have your questions answered. And maybe > i am wrong about the gout, who knows, but something to talk about with your > doctor? > > Okay now Jeanie i have to answer a comment that you made. It is a really good > to hear that you began your post to me. I even copied and pasted it "Thanks > Sweetheart" i liked that and thought it was cute and i am passing this onto > you 🌷 > > By the way as you probably know that i live in Florida, in West Palm Beach in > a town called Boynton Beach right near the Florida Turnpike. Where do you > live? > > You have a great day. > > 18's, > > Marty > >> On Sun, Feb 18, 2018 at 7:51 AM, 'Jeanie' via CMLHope >> wrote: >> Thanks Sweetheart >> Those were beautiful. You always brighten our day. >> I have been in so much pain lately and don't know if I should go to a dr or >> not. It started in my little right finger and then creeped on up my arm. >> Now my heel and sometimes ankles are killing me. The pain usually wakes me >> up nightly. I get up and massage it good. Do any of my warriors suggest >> another dr? >> Anyway I loved the video and appreciation day is a wonderful idea. My blood >> work show no leukemia. My pain is probably old age and the answer more >> pills. Do any of you have this. It clears up during the day most of the >> time. >> My new dr seems to be kk. I haven't met with her that much yet. I guess the >> next step would be to try and get off pills. There are trials for that. >> Have a wonderful day everyone. >> Love you so very much >> Jeanie from Fl >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extramine >> 0 CBL. ABL >> >>> On Feb 16, 2018, at 11:36 AM, Marty Gartenberg wrote: >>> >>> So that you know my annual appreciation day could be on any day and could >>> happen on any other day. It was set on my actual birthday May 21st which >>> is also on the day of my bone marrow transplant. >>> >>> So just to let you know how much all of you mean to me i am including this >>> to every one of you. >>> Please turn the volume up, sit back and relax, and enjoy this. I sincerely >>
Re: [CMLHope] My annual appreciation day
Thanks Sweetheart Those were beautiful. You always brighten our day. I have been in so much pain lately and don't know if I should go to a dr or not. It started in my little right finger and then creeped on up my arm. Now my heel and sometimes ankles are killing me. The pain usually wakes me up nightly. I get up and massage it good. Do any of my warriors suggest another dr? Anyway I loved the video and appreciation day is a wonderful idea. My blood work show no leukemia. My pain is probably old age and the answer more pills. Do any of you have this. It clears up during the day most of the time. My new dr seems to be kk. I haven't met with her that much yet. I guess the next step would be to try and get off pills. There are trials for that. Have a wonderful day everyone. Love you so very much Jeanie from Fl My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Feb 16, 2018, at 11:36 AM, Marty Gartenberg wrote: > > So that you know my annual appreciation day could be on any day and could > happen on any other day. It was set on my actual birthday May 21st which is > also on the day of my bone marrow transplant. > > So just to let you know how much all of you mean to me i am including this to > every one of you. > Please turn the volume up, sit back and relax, and enjoy this. I sincerely > hope that it will put everything in prospective to you. > > 18's, > > Marty > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] off Sprycel
Hi Beth So good to hear from you. I have a new oncologist at Moffitt and they are moving our entire unit to another out patient building close to the Moffitt hospital. I go to a pain clinic as my onc at Moffitt wouldn't write my pain meds anymore. I was upset about it as it means more dr visits and more dr bills. The DEA has the dr afraid to write pain meds. I wonder if anyone else on this group are on pain meds? Would be a help to me to know if possible. Beautiful weather on its way in Florida. My daughter booked us a cabin in the mountains for the summer. The Great Smokey Mountains. It is beautiful in June. Can't wait. Also going to take in St Augustine in March. My youngest son want to retire in Melborne Fl when he retires. Blessings My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extramine 0 CBL. ABL > On Jan 29, 2018, at 12:12 AM, Marty Gartenberg wrote: > > Lovely Beth! > > 18's, > > Marty > >> On Sun, Jan 28, 2018 at 11:47 PM, bkbarney via CMLHope >> wrote: >> HI Choi, >> >> This sounds very difficult. While your friend is not in molecular remission >> his blood work is stable..it has not spiked while on less sprycel. Is it >> possible he could go on 40 mgs or 40 five days a week and 60 two days a >> week? Sometimes just enough medication will keep the plural effusions at >> bay, while still keeping the cancer at bay as well. The risk is getting >> resistant, which he has already done with the Gleevec. But there are other >> options and another in trials that works in a different area than the other >> TKI's that is showing promise. So hopefully your friend can find the right >> med at the right dose to keep his disease in check. He may not tolerate full >> doses of the more recent and more potent meds..but there are several left to >> try. >> I can only tolerate 40 a day. Keeps me in check. I cannot go off med as I >> cannot take a high enough dose to get into that level of remission..but it >> works for me. >> >> Others who did not tolerate Sprycel have gone on bosutinib and it has worked >> for them... >> >> Take good care.. >> >> 18's hope and love, >> >> >> Beth >> >> >> -Original Message- >> From: Jamie Tufariello >> To: cmlhope >> Sent: Thu, Jan 25, 2018 10:44 am >> Subject: Re: [CMLHope] off Sprycel >> >> >> >> On Tuesday, June 9, 2015, Choi wrote: >> Hi, this is Choi from South Korea. One of my CML friends had some problems >> and I just wonder who had a similar experience. >> >> He was diagnosed with CML chronic phase on july 2012 and started Gleevec >> 400mg for 16 months and switched to Sprycel due to E355G mutation. >> At that time his PCR was 1.89. He started Sprycel and E355G mutaiton was >> disappered. He was on Sprycel for 12 months. >> He developed pleural effusions after 12 months of Sprycel at that time his >> dose was 100mg. His doctor stopped Sprycel for 2 weeks and restarted Sprycel >> 80mg for 3 months. >> Once again he developed pleural effusions so he was off Sprycel for 4 weeks >> and restarted Sprycel 60mg until now and still had minor pleural effusions. >> PCR count was 0.37, 0.47, 0.45 and never drop to under 0.1% so his doctor >> was considering to switch to other drugs but hesitated to switch because of >> he had E355G mutation. >> Is there any one who had a similar experience? >> >> Choi. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.co
